Teri, I ran into the same issues with my local social security office, it 
took years to get a hearing.  That doesn't help you in the here and now.  I 
can tell you from personal experience that going to your congress person 
will backfire, at least it did for me.  Caused the local office to 
automatically deny my appeal!  You might want to contact HICAP 
http://www.cahealthadvocates.org/HICAP/   Tell them that this change is 
putting your life in danger and that you do not understand why you were 
terminated within the appeal period.  They have connections inside Medicare 
and can sometimes make things happen quickly.  I would not necessarily 
mention that you have a lawyer if you can avoid that.  Since they might 
then defer all action to you lawyer.  Anything they do should not affect 
your legal case, I am just thinking that they may be able to get your 
Medicare restored under the appeal.  

Marty...if you are still following this chain....thanks so much for the 
kind thoughts.  I will take all of them.  I picture it like a brightly 
colored parachute that I am sitting in the middle of.  Each person who 
wishes me well is holding a edge of this and together I am uplifted by it.  
I wish you well also!

Love to everyone...fight on!  peg

On Tuesday, August 6, 2013 12:16:50 PM UTC-7, peg wrote:
>
> Terri,
>
> Your Nephrologist is an ass...and is not the final word on whether you are 
> disabled or not, there are plenty of folks on disability because they are 
> on dialysis.  However, remember that you don't want to file a NEW claim but 
> rather, reopen the old one.  If you were to file it on the basis of 
> dialysis it would start an entirely new claim with a new wait period for 
> your Medicare.  You want to show that your health has deteriorated as a 
> result of the ORIGINAL claim, so all of that time applies to the wait and 
> you could have Medicare immediately.  ANY doctor that cares about you and 
> recognizes that you are unable to work can file your disability.  If you 
> don't have one on your team that will do that for you, perhaps a disability 
> lawyer can recommend one.  
>
> Sorry about the tough road ahead...I relate...I have just been diagnosed 
> with my third primary cancer since being diagnosed with CML three years 
> ago, have had MS for 24 years and care for my husband who has brain 
> damage.  The best advice I can give you besides find a caring doc and a new 
> lawyer is to take each day, one bite at a time.  Message me any time I can 
> be of help.  I care.  peg  
>

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