Hi Skip....Thanks for the photo. You do look relaxed and that's a good thing.
I think that you deal with everything so well. I guess you don't have a choice
though, right. It's just good to be alive. I have people tell me that they'd
rather be dead then deal with what I have to deal with, and I just look at them
and say "You never will know until you're there". That's the way I feel. I'm
not giving up ever, and know that you don't either. Isn't it nice to have one
another to share with? I'm so happy I am part of such a wonderful group of
caring people....Hugs, Millie
----- Original Message -----
From: Skip Duffie
To: cmlhope@googlegroups.com
Sent: Saturday, August 10, 2013 10:19 AM
Subject: Re: [CMLHope] Re: For Terri
Hi all
This is me starting my bi-weekly drill, First I get a bag of Desferol, and
Benadryl, next comes Platelets, then last but not least
Red cells. I look to relaxed so they snapped this picture. Takes about 5
to 6 hours twice weekly, but I have no complaints feel
pretty good for an old man. I just though I would put a face on me in case
your ever down this way.
Be safe have a great day and weekend.
Skip^D dx 1977
On Fri, Aug 9, 2013 at 9:20 PM, C.M. Houtz <ho...@ptd.net> wrote:
Peg, Marty, and everyone else....There isn't a day that I don't think
about each and every one of you and just wish I could help more. I've been
lucky to have great insurance and prescription coverage and haven't had to deal
with things that others have, but I also feel the warmth of having everyone
helping each other. It's so comforting to know that you are out there and
willing to listen and do whatever you can to help. It truly helps each and
every one of us. Hope that you all are having a great evening....Hugs, Millie
----- Original Message -----
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Friday, August 09, 2013 9:08 PM
Subject: Re: [CMLHope] Re: For Terri
Hi Peg, this is what this is all about, one person trying to help
another person...
18's
Marty
On Fri, Aug 9, 2013 at 10:43 AM, peg <peg....@live.com> wrote:
Teri, I ran into the same issues with my local social security
office, it took years to get a hearing. That doesn't help you in the here and
now. I can tell you from personal experience that going to your congress
person will backfire, at least it did for me. Caused the local office to
automatically deny my appeal! You might want to contact HICAP
http://www.cahealthadvocates.org/HICAP/ Tell them that this change is putting
your life in danger and that you do not understand why you were terminated
within the appeal period. They have connections inside Medicare and can
sometimes make things happen quickly. I would not necessarily mention that you
have a lawyer if you can avoid that. Since they might then defer all action to
you lawyer. Anything they do should not affect your legal case, I am just
thinking that they may be able to get your Medicare restored under the appeal.
Marty...if you are still following this chain....thanks so much for
the kind thoughts. I will take all of them. I picture it like a brightly
colored parachute that I am sitting in the middle of. Each person who wishes
me well is holding a edge of this and together I am uplifted by it. I wish you
well also!
Love to everyone...fight on! peg
On Tuesday, August 6, 2013 12:16:50 PM UTC-7, peg wrote:
Terri,
Your Nephrologist is an ass...and is not the final word on whether
you are disabled or not, there are plenty of folks on disability because they
are on dialysis. However, remember that you don't want to file a NEW claim but
rather, reopen the old one. If you were to file it on the basis of dialysis it
would start an entirely new claim with a new wait period for your Medicare.
You want to show that your health has deteriorated as a result of the ORIGINAL
claim, so all of that time applies to the wait and you could have Medicare
immediately. ANY doctor that cares about you and recognizes that you are
unable to work can file your disability. If you don't have one on your team
that will do that for you, perhaps a disability lawyer can recommend one.
Sorry about the tough road ahead...I relate...I have just been
diagnosed with my third primary cancer since being diagnosed with CML three
years ago, have had MS for 24 years and care for my husband who has brain
damage. The best advice I can give you besides find a caring doc and a new
lawyer is to take each day, one bite at a time. Message me any time I can be
of help. I care. peg
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