Dear Angie,
I am so happy that you are taking a drug vacation..it sounds like the right
thing to do...as everyone is saying..just keep doing monthly PCR tests.....you
can go back on...if need be in the future, but for now, let your body heal as
it needs to.. ..thinking of you...Beth
-----Original Message-----
From: David Bradley <dbra...@hotmail.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, Jun 17, 2015 10:23 am
Subject: RE: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1
topic
Angelyn: I was in complete molecular remission. I stopped Gleevec in December
to commence another medication for my CLL. A PCR was done in March and I was
positive for CML. I went back on Gleevec (concurrently administered with a
reduced dose of my CLL med), and now, 3 months later, I have a major molecular
response. --David from Michigan
To: cmlhope@googlegroups.com
From: cmlhope@googlegroups.com
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic
Date: Wed, 17 Jun 2015 10:21:09 +0000
cmlhope@googlegroups.com
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Topic digest
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Stopping Gleevec - 3 Updates
Stopping Gleevec
ANGELYN ESDERS <esd...@rogers.com>: Jun 17 01:02AM
I just received an email from my oncologist telling me that it is safe for me
to stop Gleevec for 3 months.I started Gleevec in January 2001, and reached
cytogenic remission in July 2001. I've continued on 300mg per day.I was in the
study for 12 years.I feel like it is my safety net between wellness and
reoccurrence of CML.I am almost afraid to stop it. I no longer have any side
effects from it.Who has stopped Gleevec, and what have you experienced as a
result of doing so?Thanking you all for your input...Angie in Canada
Giora Sharf <gio...@inter.net.il>: Jun 17 09:35AM +0300
Hi Angie
We have similar story. I started Glivec on 14.2.2001 and was on 400 mg till
10.6.2014 when I agreed to my Dr's advise to stop. I am now 1 year without
treatment doing very well, monthly PCR are all in deep MR4.5 response.
I fully understand your concern, I had the same issues and didn’t agree to
stop for couple of years. When I saw the data indicating that all the patients
who stop and relapse (about 50-60 %) respond well when they restart treatment,
I agreed to stop. I also didn’t have severe side effects on Glivec, but I am
happy to be drug free and do very strict monthly or 6 weeks monitoring. Please
remember if you decide to stop- the most important thing is a very strict
monthly PCR on international scale. (IS)
Good luck whatever you decide
Giora
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of
ANGELYN ESDERS
Sent: Wednesday, June 17, 2015 4:03 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] Stopping Gleevec
I just received an email from my oncologist telling me that it is safe for me
to stop Gleevec for 3 months.
I started Gleevec in January 2001, and reached cytogenic remission in July
2001.
I've continued on 300mg per day.
I was in the study for 12 years.
I feel like it is my safety net between wellness and reoccurrence of CML.
I am almost afraid to stop it. I no longer have any side effects from it.
Who has stopped Gleevec, and what have you experienced as a result of doing so?
Thanking you all for your input...
Angie in Canada
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ANGELYN ESDERS <esd...@rogers.com>: Jun 17 10:12AM
Thank you for your kind letter, Giora. I remember you from years back. You
live in Tel Aviv? I am so happy to hear that you are doing so well. I feel
encouraged.Angie
From: Giora Sharf <gio...@inter.net.il>
To: cmlhope@googlegroups.com
Sent: Wednesday, June 17, 2015 2:35 AM
Subject: RE: [CMLHope] Stopping Gleevec
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div.yiv1061552755WordSection1 {}#yiv1061552755 Hi AngieWe have similar story. I
started Glivec on 14.2.2001 and was on 400 mg till 10.6.2014 when I agreed to
my Dr's advise to stop. I am now 1 year without treatment doing very well,
monthly PCR are all in deep MR4.5 response.I fully understand your concern, I
had the same issues and didn’t agree to stop for couple of years. When I saw
the data indicating that all the patients who stop and relapse (about 50-60 %)
respond well when they restart treatment, I agreed to stop. I also didn’t have
severe side effects on Glivec, but I am happy to be drug free and do very
strict monthly or 6 weeks monitoring. Please remember if you decide to stop-
the most important thing is a very strict monthly PCR on international scale.
(IS)Good luck whatever you decideGiora
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of
ANGELYN ESDERS
Sent: Wednesday, June 17, 2015 4:03 AM
To: cmlhope@googlegroups.com
Subject: [CMLHope] Stopping Gleevec I just received an email from my
oncologist telling me that it is safe for me to stop Gleevec for 3 months.I
started Gleevec in January 2001, and reached cytogenic remission in July 2001.
I've continued on 300mg per day.I was in the study for 12 years.I feel like it
is my safety net between wellness and reoccurrence of CML.I am almost afraid to
stop it. I no longer have any side effects from it.Who has stopped Gleevec, and
what have you experienced as a result of doing so?Thanking you all for your
input...Angie in Canada--
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