I was donating blood and having lots of tooth X-rays when I got it. Just don't know. Was around a lot of pesticides in my generation. Always spraying for mosquitos and such when I was a girl. Lived by a strawberries farm and they sprayed every day. No sickness of any kind until CML. Go figure
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Feb 5, 2017, at 5:39 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Kate, > > Just before i had my bone marrow transplant my blood typing was O+ and since > my donor who was my donor was B+. She was a perfect HLA match except for her > blood type. Since i was in blast crises and no other person was even a match > to me and since i was dying, my transplant doctor decided to change my blood > type from O to B. He told me that there were poor results from changing but i > had no other choice. > > I received 96 wholr blood transfusions along with dozens of platelet > infusions plus a lot of other human blood products like > gamma Globulin and a few others. So in essence i turned from O to B. > > There is a word for that. it is called Chimera which i am now after a > successful transplant more then 27 years ago. > > But it didn't stop there. Twenty years later my kidneys went bad and i had to > have dialysis for four years, and finally received a kidney transplant. Guess > what the donor was a young man 20 years old and he had a fatal accident and > his kidney matched me and even his blood type was B+.It is now exactly two > years later and i am still alive. > > Now one last thing. Skip and i have been good friends for many years now and > he will be going to another year with his blood transfusions so the way i > figure it I had only 96 transfusions and no more after them, while Skip had > probably thousands of blood transfusions, and more to come but my friend is > still alive and so i am hands down on Skip having all of them. Skip holds the > record. Have you ever seen that furry pink bunny on TV of that critter > marching around beating his drum and always has power. Well, that is Skip for > sure. > > 18's, (the symbol for life) > > Marty > >> On Sun, Feb 5, 2017 at 12:06 PM, kathy walls <cand...@originalsbykate.com> >> wrote: >> I'm into my 3rd yr with cml/ph. I'm doing well. Took a few meds to find one >> that did the job with side effects I can live with. But I've been obsessed >> with the why/how this happened. From 2004 to about 2013 I've had many >> surgeries that required dozens of blood transfusions. Anyone else been thru >> something like that prior to the cml diagnosis? I'm also 15 yrs younger >> than the average age for the onset. I know that is relative as there have >> been people much younger than myself affected as well. It was just something >> the dr thru out there. >> Any insight would be helpful >> Thanks, Kate >> 18's >> >> Sent from my iPhone >> >>> On Feb 4, 2017, at 11:28 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>> >>> yes,YES,yes,YES,yes,YES >>> >>> 18,s, >>> >>> Marty >>> >>>> On Sat, Feb 4, 2017 at 11:12 PM, 'Susan Zimmerman' via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> Yippie Kayay, whoohoo, whoohoo, and I remember Zavie. I've been fightin' >>>> this thing for 11 years myself. >>>> >>>> and another Yippie Kayay! >>>> >>>> 18's, >>>> Susan >>>> >>>> -----Original Message----- >>>> From: Marty Gartenberg <wa2...@gmail.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Fri, Feb 3, 2017 8:32 pm >>>> Subject: Re: [CMLHope] 39 years with cml >>>> >>>> Susan, >>>> >>>> Sounds like you dialed 911 and that is what you got back .911%. I would >>>> like to remind you of what our friend Zavie used to say when something >>>> went right especially when that person got a good pcr/abl. >>>> He would shout out Yippi Yahooy and repeat it a zillion times. He was some >>>> type of guy and i really do miss him and his wife Ida... >>>> >>>> So Susan now it is your time... >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>>> On Fri, Feb 3, 2017 at 6:54 PM, 'Susan Zimmerman' via CMLHope >>>>> <cmlhope@googlegroups.com> wrote: >>>>> Thanks, good to hear from you, Skip!!! Keep on keepin on... >>>>> >>>>> Great news everybody! Just got my numbers back from last bcr/abl. In >>>>> the third month of taking bosulif at 100 mg every OTHER day, it is down >>>>> to .911%. YAY, HAPPY DANCE, HOORAY, HALLELUHIAH, THANK GOD, WHOOPPEEEE, >>>>> WHOOP WHOOP!!! >>>>> >>>>> I am praying for all of you to be well and enjoy every day. smooches, >>>>> 18's, >>>>> Susan F. Zimmerman >>>>> >>>>> -----Original Message----- >>>>> From: skipd <skip...@gmail.com> >>>>> To: CMLHope <cmlhope@googlegroups.com> >>>>> Sent: Wed, Feb 1, 2017 7:04 pm >>>>> Subject: [CMLHope] 39 years with cml >>>>> >>>>> /just want to say hi to all you cml'ers and to let you know I am still on >>>>> the green side was talking to Marty he told me to get on >>>>> >>>>> >>>>> In case you do not know me here is a place you can see but its not >>>>> finished still have about 10 years still to enter >>>>> >>>>> http://easyskipcacom.coffeecup.com/index.html >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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