Did they spray up north like they did down south My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center
> On Feb 6, 2017, at 11:04 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Jeanie, > > First of all in today's reams of dental radiation the amount or dental > radiation it is so small that you have nothing to worry about it. However in > my case the radiation was total body radiation coming out of a linear > extracellular every dry and then a repeat performance every day. By the > second round i would usually faint and they would bring me back to the bubble > wrapped in several sterile sheets,but i didn't remember a thing because i had > fainted all that i remembered was that pounding headache and after two dsys > the severe radiation burns on the soles of my feet and then it progressed > into the most severe pain that i ever had it effects the mucous membranes of > my entire body from my lips to me anus nothing is spared. > Then my eye began to develop cataract which had to be taken care of but only > my right eye and so far the left has not progressed as of yet. > > This went on for a couple of weeks. > > Jeannie don't worry about any radiation because it is so minute and the only > thing i need to worry about is keeping sun blocker on of at least 30 and to > keep my head covered because any large amounts of gamma rays will cause me > problems because of three factors. 1 All of the high dose radiation will > cause me skin cancer especially on the top of my head which i have totaling > four that had to be removed bu Mohs surgery, > > Then finally the immune drugs that keeps my systen free of rejection. > > 18's > > Marty > >> On Mon, Feb 6, 2017 at 8:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> I was donating blood and having lots of tooth X-rays when I got it. Just >> don't know. Was around a lot of pesticides in my generation. Always >> spraying for mosquitos and such when I was a girl. Lived by a strawberries >> farm and they sprayed every day. No sickness of any kind until CML. Go >> figure >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >>> On Feb 5, 2017, at 5:39 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>> >>> Hi Kate, >>> >>> Just before i had my bone marrow transplant my blood typing was O+ and >>> since my donor who was my donor was B+. She was a perfect HLA match except >>> for her blood type. Since i was in blast crises and no other person was >>> even a match to me and since i was dying, my transplant doctor decided to >>> change my blood type from O to B. He told me that there were poor results >>> from changing but i had no other choice. >>> >>> I received 96 wholr blood transfusions along with dozens of platelet >>> infusions plus a lot of other human blood products like >>> gamma Globulin and a few others. So in essence i turned from O to B. >>> >>> There is a word for that. it is called Chimera which i am now after a >>> successful transplant more then 27 years ago. >>> >>> But it didn't stop there. Twenty years later my kidneys went bad and i had >>> to have dialysis for four years, and finally received a kidney transplant. >>> Guess what the donor was a young man 20 years old and he had a fatal >>> accident and his kidney matched me and even his blood type was B+.It is now >>> exactly two years later and i am still alive. >>> >>> Now one last thing. Skip and i have been good friends for many years now >>> and he will be going to another year with his blood transfusions so the way >>> i figure it I had only 96 transfusions and no more after them, while Skip >>> had probably thousands of blood transfusions, and more to come but my >>> friend is still alive and so i am hands down on Skip having all of them. >>> Skip holds the record. Have you ever seen that furry pink bunny on TV of >>> that critter marching around beating his drum and always has power. Well, >>> that is Skip for sure. >>> >>> 18's, (the symbol for life) >>> >>> Marty >>> >>>> On Sun, Feb 5, 2017 at 12:06 PM, kathy walls <cand...@originalsbykate.com> >>>> wrote: >>>> I'm into my 3rd yr with cml/ph. I'm doing well. Took a few meds to find >>>> one that did the job with side effects I can live with. But I've been >>>> obsessed with the why/how this happened. From 2004 to about 2013 I've had >>>> many surgeries that required dozens of blood transfusions. Anyone else >>>> been thru something like that prior to the cml diagnosis? I'm also 15 yrs >>>> younger than the average age for the onset. I know that is relative as >>>> there have been people much younger than myself affected as well. It was >>>> just something the dr thru out there. >>>> Any insight would be helpful >>>> Thanks, Kate >>>> 18's >>>> >>>> Sent from my iPhone >>>> >>>>> On Feb 4, 2017, at 11:28 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>>> >>>>> yes,YES,yes,YES,yes,YES >>>>> >>>>> 18,s, >>>>> >>>>> Marty >>>>> >>>>>> On Sat, Feb 4, 2017 at 11:12 PM, 'Susan Zimmerman' via CMLHope >>>>>> <cmlhope@googlegroups.com> wrote: >>>>>> Yippie Kayay, whoohoo, whoohoo, and I remember Zavie. I've been >>>>>> fightin' this thing for 11 years myself. >>>>>> >>>>>> and another Yippie Kayay! >>>>>> >>>>>> 18's, >>>>>> Susan >>>>>> >>>>>> -----Original Message----- >>>>>> From: Marty Gartenberg <wa2...@gmail.com> >>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>> Sent: Fri, Feb 3, 2017 8:32 pm >>>>>> Subject: Re: [CMLHope] 39 years with cml >>>>>> >>>>>> Susan, >>>>>> >>>>>> Sounds like you dialed 911 and that is what you got back .911%. I would >>>>>> like to remind you of what our friend Zavie used to say when something >>>>>> went right especially when that person got a good pcr/abl. >>>>>> He would shout out Yippi Yahooy and repeat it a zillion times. He was >>>>>> some type of guy and i really do miss him and his wife Ida... >>>>>> >>>>>> So Susan now it is your time... >>>>>> >>>>>> 18's, >>>>>> >>>>>> Marty >>>>>> >>>>>>> On Fri, Feb 3, 2017 at 6:54 PM, 'Susan Zimmerman' via CMLHope >>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>> Thanks, good to hear from you, Skip!!! Keep on keepin on... >>>>>>> >>>>>>> Great news everybody! Just got my numbers back from last bcr/abl. In >>>>>>> the third month of taking bosulif at 100 mg every OTHER day, it is down >>>>>>> to .911%. YAY, HAPPY DANCE, HOORAY, HALLELUHIAH, THANK GOD, >>>>>>> WHOOPPEEEE, WHOOP WHOOP!!! >>>>>>> >>>>>>> I am praying for all of you to be well and enjoy every day. smooches, >>>>>>> 18's, >>>>>>> Susan F. Zimmerman >>>>>>> >>>>>>> -----Original Message----- >>>>>>> From: skipd <skip...@gmail.com> >>>>>>> To: CMLHope <cmlhope@googlegroups.com> >>>>>>> Sent: Wed, Feb 1, 2017 7:04 pm >>>>>>> Subject: [CMLHope] 39 years with cml >>>>>>> >>>>>>> /just want to say hi to all you cml'ers and to let you know I am still >>>>>>> on the green side was talking to Marty he told me to get on >>>>>>> >>>>>>> >>>>>>> In case you do not know me here is a place you can see but its not >>>>>>> finished still have about 10 years still to enter >>>>>>> >>>>>>> http://easyskipcacom.coffeecup.com/index.html >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You 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it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at 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