Hey Tod, Speaking of atibiotics I've trying the colloidal silver out to keep rid of uti's and it seems to be working for me so far. I haven't had a bad uti since I started it and usually I get them monthly which is way too often. I just take a table spoon a day so I'll let you know if anything changes but so far so good.
PS: I hate the learning curve. Mark Jackson RollinOn -----Original Message----- From: Tod E. Santee [mailto:[EMAIL PROTECTED] Sent: Wednesday, April 16, 2008 10:51 AM To: Mark Jackson; 'Tim Syfert'; quad-list@eskimo.com Subject: RE: [QUAD-L] Getting Supra Pubic in 3 weeks Hey Mark, Tim... (<-Mark, Great hearing from you again!->) (...and Tim, I think I remember you from way back? Or am I thinking of another Tim?) Anyway: One thing I forgot to mention.... although I said I've had far fewer "serious" infections, that isn't to say I don't get infections. This seems to vary across the board but personally, the full truth of it is I've had to leasrn to live with the fact I almost always have a so-called low grade infection that none of my docs feel should be treated. By "low grade" I mean the only real symptom is cloudy urine almost all the time... sometimes even "chunky" urine that looks more like ricotta or cottage cheese in the bedside drainage bag tube. The latter "cheese" is not the norm but the ricotta is usually Ok. At first we treated UTIs as usual with the lab, urine C&S, and antiobiotics. We slowly backed off on the antibiotics to: #1) prevent the buildup or creation of resistant strains and #2) make sure I didn't kill all the good gastrointestinal bacteria while allowing a resistant H. pylori to form and cause ulcers... a common problem with frequent antibiotic treatments, especially oral ones, or switching them often. (I eat yogurt every day because of what "too many" antibiotics started doing to my stomach lining.) Even with the constant low-grade UTI, I've only had 3-4 UTIs needing antibiotics in the last 5-7 years. At the advice of 3 docs, I don't even get them checked anymore unless I get other continuing symptoms. Things like fever, spasms, a red and irritated SP site (stoma) that doesn't clear up by changing the catheter, etc. are my "Red Flag" UTI symptoms. THOSE get checked out. There's an SP learning curve. It takes a whiile to figure it all out... just like "Everything Quad"... but once you get the hang of it [poor pun intended] it's quite a freeing experience ['nother pun] that gives an opportunity to do much, MUCH more with far fewer worries about springing a leak or blowing off a Texas cath at "just the wrong time." OH... ONE MORE... If you have the ability to know or feel when you're voiding, that sensation will be gone. It will be a continuous trickle. Because of that it can be more difficult to know when/if your legbag ids getting full unless you can see it. You should be sure you can empty it whenever you want to or need to... i.e. doing it yourself, an electric bag emptier, or always with someone who can do it for you. It's different for everyone, but mostly a positive change overall. Once again, good luck! ---- Mark Jackson <[EMAIL PROTECTED]> wrote: > Hey Tod, > After reading this post I'm definitely going to the sp done. > I'm tired of constantly changing and watching the texas rig rip my > soldier up and it's very painful too. > I've been holding out but after reading your reply I don't know why > I've waited so long. > > > Thanks, > > > Mark > > -----Original Message----- > From: Tod E. Santee [mailto:[EMAIL PROTECTED] > Sent: Tuesday, April 15, 2008 9:26 PM > To: quad-list@eskimo.com; Tim Syfert > Subject: RE: [QUAD-L] Getting Supra Pubic in 3 weeks > > Hi Tim.... > > When I first got my suprapubic in '97 I took the morning off from > work. The whole procedure was done without anesthesia but they kept > careful watch on my BP... I did get a little AD as a "over-filled" my > bladder to begin the procedure. > > I went home with a 12fr foley and went to work that afternoon. That > first month was a little difficult as I did leak around the stoma at > times and granules would build up and clog the narrow 12fr. About one > month later I graduated to a 14fr, and then 16fr, and finally settled > into using an 18f foley catheter ever since. It works well for me but > I do still occasionally get crystallization and granules in the > catheter. That's when I know it's certainly time to change it... usually every 4 to 6 weeks. > > As for cleaning, each day I use a small amount of Neosporin cream and > sprinkle a bit of Tinactin (yep, the foot powder) around it to keep it dry. > I cover it with a 2" x 2" square of gauze drain sponge cut in such a > way that the catheter comes out the middle (kind of a "T" shaped cut > into the center). Works well for me. > > I have friends who went to get a SP and there was no graduating from > smaller to larger diameters. They came home with the 24fr. To me, it > looks like a garden hose! On the other hand, they rarely get clogged. > So I guess it's 6 of one, half a dozen of the other. > > However you do it, I wish you the best. I've had wonderful success > with mine and had far fewer "serious" infections and urethral > irritations ever since. I'm sure you'll at least have that to look > forward to. (Not to mention the "Free Willie Factor") > > Best of luck! > --Tod > > > ----- Original Message ---- > > From: Tim Syfert <[EMAIL PROTECTED]> > > To: quad-list@eskimo.com > > Sent: Saturday, April 12, 2008 9:36:38 PM > > Subject: [QUAD-L] Getting Supra Pubic in 3 weeks > > > > After 35 years of using external caths, I'll be getting a supra > > pubic in 3 > weeks because my bladder just hasn't been draining well in awhile now. > Those > > of you with SP's, do you have any advice, tips, input, etc. for this > > soon > to > > be SP rookie? > > > > Thanks, > > > > Tim > > http://THEQUADLINK.COM No virus found in this incoming message. Checked by AVG. 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