Re: Fwd: [QUAD-L] Getting Old

[jume9999]

Greg, I was diagnosed with HO when I was first injured 36 yrs ago. It 
caused me to be lopsided and over the yrs made my other hip and leg to become 
jacked up causing me major pain in the last few years.  Didn't know back then 
that it could be helped with radiation.Meredith 
Sent from my LG Mobile



-- Original message--From: greg Date: Thu, Apr 6, 2017 2:09 PMTo: 
quad-list@eskimo.com;Subject:RE: Fwd: [QUAD-L] Getting Old
I was fine for 20+ years after my injury, no meds, pain was not great, but 
could deal with it. But after a hip injury, I developed Heterotopic 
Ossification (HO). When your  bones try and heal they start growing calcium, 
but when you have HO, the calcium does not stop growing. It grows like tree 
branches into your muscles. Have to take meds and use radiation to stop the 
growing. They will only cut it out if it grows so much you loose range of 
motion. Because it grows into the muscle, it's a very bloody surgery, and that 
is a main cause to restart the growing. Without pain meds, my leg will not go 
straight. Spasms are so bad, I grunt, almost pull myself out of my chair, and 
the worst thing is my chest gets so heavy it's hard to breath. Like someone is 
sitting on my chest. If I miss my meds, within hours my body is like 1 solid 
muscle clinch. They almost OD me trying to raise Baclofen high enough to ease 
my spasms. Many tests to find the cause. Finely took pain meds for my shoulder 
and it was like life changing difference. Docs said no way would pain meds stop 
spasms, I need more Baclofen. I went in and showed them, I'm not spasming. Then 
finely they agreed it was pain causing the spasms. And they found the cause. 
Everyone feels pain differently, has different causes. Both can have pain for 
same issue, but one be in more pain. Not just let it get to them more. Just 
can't quantify pain in different people. 5 quads can each have shoulder pain, 
different causes, different location, different nerves. I would be hard pressed 
to call a pain a 9 out of 10, because I can always think of something that 
could hurt more. My shoulder makes me want to rock, but a hot needle in my eye 
would be worse. Greg

RE: Fwd: [QUAD-L] Getting Old

[Joan Anglin]

So very true, we are the same but totally different.  Have a great day everyone.

 

From: greg [mailto:g...@eskimo.com] 
Sent: 06 April, 2017 2:10 PM
To: quad-list@eskimo.com
Subject: RE: Fwd: [QUAD-L] Getting Old

 

I was fine for 20+ years after my injury, no meds, pain was not great, but 
could deal with it. But after a hip injury, I developed Heterotopic 
Ossification (HO). When your  bones try and heal they start growing calcium, 
but when you have HO, the calcium does not stop growing. It grows like tree 
branches into your muscles. Have to take meds and use radiation to stop the 
growing. They will only cut it out if it grows so much you loose range of 
motion. Because it grows into the muscle, it's a very bloody surgery, and that 
is a main cause to restart the growing.

 

Without pain meds, my leg will not go straight. Spasms are so bad, I grunt, 
almost pull myself out of my chair, and the worst thing is my chest gets so 
heavy it's hard to breath. Like someone is sitting on my chest. If I miss my 
meds, within hours my body is like 1 solid muscle clinch.

 

They almost OD me trying to raise Baclofen high enough to ease my spasms. Many 
tests to find the cause. Finely took pain meds for my shoulder and it was like 
life changing difference. Docs said no way would pain meds stop spasms, I need 
more Baclofen. I went in and showed them, I'm not spasming. Then finely they 
agreed it was pain causing the spasms. And they found the cause.

 

Everyone feels pain differently, has different causes. Both can have pain for 
same issue, but one be in more pain. Not just let it get to them more. Just 
can't quantify pain in different people. 5 quads can each have shoulder pain, 
different causes, different location, different nerves. I would be hard pressed 
to call a pain a 9 out of 10, because I can always think of something that 
could hurt more. My shoulder makes me want to rock, but a hot needle in my eye 
would be worse.

 

Greg

Re: Fwd: [QUAD-L] Getting Old

[RONALD L PRACHT]

Pain is something personal. No one knows how bad another persons pain is unless 
they have dealt with pain themselves and even still we all handle it different. 
The true judge of pain is..can you sleep, do tasks without 
stopping..basically real life changing pain stops normal daily living. 
Every day at least a handful of times under my breath Im praying "god help me 
deal with this", when it get really bad its "god take me out of here". I never 
cried at all the first half of my injury, but there are times now that when Im 
alone I break down for a couple minutes. That's real pain, when it stops you 
like a brick. To do my handcycle now it takes multiple pain pills and I pay for 
it for days. I could talk to a person 5 minutes and know if they have life 
altering pain by these questions. Doctors use the same technique.
Ron  

On Thursday, April 6, 2017 9:05 AM, Jeffrey Gaede <jsga...@yahoo.com> wrote:
 

 I feel like I've been pretty blessed when I hear what you guys have been 
through; what you are currently going through.  I used to wonder a lot about 
phantom pain.  I didn't know if I was actually feeling what you're feeling and 
I have learned long ago to somehow just ignore what was taking place or that 
maybe I'm just not feeling what you are feeling.  I am 38 years post injury and 
I can stop at any moment in the day and think about what I'm feeling throughout 
the paralyzed portion of my body.  I can feel, at this moment, an intense 
tingling in my left calf, it feels like bumblebees living throughout my left 
leg, I've got this weird numb kind of hurt in my right leg, my gut and/or 
abdomen is just uncomfortable, both my feet and toes feel weird at the moment, 
with a somewhat intense tingling feeling.  I could go on and on but I have no 
idea if I learned long ago to just ignore this for the most part and deal with 
life or if you guys are feeling something completely different.  I've started 
having this "restless legs" situation just over the past couple months.  I 
think it's actually been going on longer but it's gotten to the point where it 
causes dysreflexia, so that's not good.  But I've been having one of my 
attendants exercise them some before she leaves and it helps.  It didn't help 
much last night but it's been helping.  I've got the same itchy scalp problem.  
In fact I've even got a couple small scabs on the back of my head where I 
rubbed it raw at times.  I really try to resist but obviously I haven't tried 
hard enough.  I don't know, Dudes.  Obviously, getting older affects everyone, 
paralyzed or not.  And I agree that those first number of years were much 
easier in some ways and yet I went through a whole lot of learning the hard way 
about some things that I know to avoid now.  No one said it was going to be 
easy, but you would think being paralyzed was enough and from there you could 
at least not be in pain, deal with sores, just be relaxed instead of stressed 
and not knowing which way to turn with what's going on with your body.  Nope.  
Just doesn't work that way.  For those of us who choose to live after becoming 
paralyzed, it's a hard road.  But we must be getting something out of it to put 
up with all this crap!  Jeff

  From: Bryce Willis <lwillis82...@msn.com>
 To: "quad-list@eskimo.com" <quad-list@eskimo.com> 
 Sent: Thursday, April 6, 2017 6:42 AM
 Subject: Fwd: [QUAD-L] Getting Old
  
Yep,I can identify with you guys. I have that same knife in my shoulder. My 
legs are so stiff and spastic I feel like I am planted in concrete. My stomach 
hurts like the devil every time I eat. And finally, burning mouth syndrome 
makes simple eating an ordeal. Oh, let's not forget the pressure sores on my 
hip and butt. I am just tired and wore out. L.Willis, age65, 46 years post.

Sent from my iPad
Begin forwarded message:


Resent-From: <quad-list@eskimo.com>
From: greg <g...@eskimo.com>
Date: April 5, 2017 at 11:50:58 PM EDT
To: <quad-list@eskimo.com>
Subject: [QUAD-L] Getting Old




Yeah, I'm going on 35 years as a quad. The last 10 have gotten worse with pain, 
tightness, etc. And sometimes it's the stupid little things that make life 
harder. My head itching for one. I just got a pet glove brush, I'm cutting it 
out and Velcro on my headrest. Can't get the top of my head which is the worst, 
but the sides itch too. My “Phantom” pains on my butt are driving me nutz. My 
shoulder is my #1 pain now. After every test possible, still can't find the 
knife I know is stuck in there somewhere. I think I have a Gremlin playing 
games with a knife. He comes and goes, leaving no evidence. Xray, MRI, 
CAT-Scan, Nerve Test, Gallstones, Thyroid. Some days I just hold my arm and 
rock. Other days you can poke and prod and its perfect. Moving to AZ and 
“Bagging” my bowel routine are the 2 best things I ever did to help issues. 
Greg ---Yep, Greg all this weird stuff is part of a 

Fwd: [QUAD-L] Getting Old, Panic

[Larry Willis]

I may be slinging manure, but under cover your body absorbs its own heat and 
builds up heat like a greenhouse. The sun/air allow the heat to warm the skin 
then dissipate., that discourages overheating. I could be wrong though!

Larry Willis
Retired and proud of it


Begin forwarded message:

> From: greg <g...@eskimo.com>
> Date: October 3, 2015 at 3:31:38 PM EDT
> To: Larry Willis <lwillis82...@gmail.com>
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
> 
> I often fall asleep a few times in the day, but luckily I don't need as much 
> sleep as I use to.
> Though I am going nutz, I just don't know what to try next. My arms, mostly 
> the back of my forearms, wake me up just burning cold, though they are warm. 
> Yet the first thing I do when I get up is go sit in the sun. It relaxes my 
> muscles and helps stop my shaking.
> 
> Why does warmth from blanket cause cold shaking, but warmth from sun feel 
> great.
> 
> I'm going to try a sun / heat lamp in bed. Maybe that might help
> I hope. 
> 
> Thx, Greg
> 
>> Greg, that sounds like a nightly bit of hell. How do you get any
>> rest? Like I said, I have a touch of it but nothing to the extent
>> that you do. God bless you, my friend. I pray that you find relief
>> and comfort and sweet gentle sleep. Larry
>> 
>> Larry WillisRetired and proud of it
>> 
>> 
>> Begin forwarded message:
>> 
>> 
>>> Resent-From: quad-list@eskimo.com
>>> From: greg <g...@eskimo.com>
>>> Date: October 2, 2015 at 4:24:23 PM EDT
>>> To: <quad-list@eskimo.com>
>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>> 
>>> 
>>> I probably wake up 3-4 times a night, shaking cold (most of the
>>> time I'm warm though) sometimes I can't get back to sleep for
>>> hours. I maybe go all night not waking up shaking 3 nights a
>>> month. I've tried meds, changing position, a drink before bed,
>>> head raised, lowered, heavier blankets, lighter blankets, just a
>>> sheet, etc.
>>> 
>>> I say I'm overheated but really I'm just toasty warm. I can feel
>>> warm hands on my face, but temp is normal. It's only in bed, with
>>> a blanket. My arms feel like they are bruised and in ice water.
>>> During the day they kind of feel that way, but not so bad I shake
>>> uncontrollably. Once I get up, I stop shaking in about 10
>>> minutes. Though my arms always feel like ice water.
>>> 
>>> I was in the hospital about 8 months ago or so, and it did it in
>>> their bed too. So it's not my mattress.
>>> 
>>> Thx, Greg
>>> 
>>> 
>>>> Greg, I have almost that same problem about once a week. I will
>>>> 
>>>> wake up very uncomfortable but I can't tell if I am hot or
>>>> cold. My
>>>> 
>>>> hands are always like icicles regardless. And I have the
>>>> shivers,
>>>> 
>>>> something my father used to doand he was able-bodied. Our
>>>> body
>>>> 
>>>> thermostats are screwed up. I get overheated, think I am cold,
>>>> pile
>>>> 
>>>> on more covers and get even hotter. Sucks to the high heavens.
>>>> Hate
>>>> 
>>>> it.
>>>> 
>>>> 
>>>> Larry WillisRetired and proud of it
>>>> 
>>>> 
>>>> Begin forwarded message:
>>>> 
>>>> 
>>>>> Resent-From: quad-list@eskimo.com
>>>>> 
>>>> 
>>>>> From: greg <g...@eskimo.com>
>>>>> 
>>>> 
>>>>> Date: September 30, 2015 at 8:30:46 PM EDT
>>>>> 
>>>> 
>>>>> To: <quad-list@eskimo.com>
>>>>> 
>>>> 
>>>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>>>> 
>>>> 
>>>>> I went 20 years before I had my first panic attack. I've only
>>>>> had
>>>>> 
>>>> 
>>>>> a few what I would call panic attacks. Where I just had to
>>>>> get up
>>>>> 
>>>> 
>>>>> in the middle of the night. The few bad ones I notice I got
>>>>> 
>>>> 
>>>>> really overheated and could not get the blanket off. When I'm
>>>>> 
>>>> 
>>>>> really hot, I just don't feel like I'm getting enough air. If
>>>>> I
>>>>> 
>>>> 
>>>>&g

Re: Fwd: [QUAD-L] Getting Old, Panic

[greg]

I found a thing that holds the blankets above your feet in bed. I would need 2, 
instead of one at the botom, I could use 2, 1 on each side to hold the blankets 
above my arms. They were not cheap. Maybe I can find 2 old wire hangers and 
make them. That might help. At this point I'll try anything.
Greg 

> Greg, I have almost that same problem about once a week. I will
> wake up very uncomfortable but I can't tell if I am hot or cold. My
> hands are always like icicles regardless. And I have the shivers,

Fwd: [QUAD-L] Getting Old, Panic

[Larry Willis]

I think I have already shared this, but my hands are like chunks of ice 
beginning at the wrist. Don't know what triggers it, when, or why. I hold them 
in front of a heater and they gradually warm up. More manure on the marvelous 
mountain of quad quackery.
Larry Willis
Retired and proud of it


Begin forwarded message:

> From: greg <g...@eskimo.com>
> Date: October 3, 2015 at 3:31:38 PM EDT
> To: Larry Willis <lwillis82...@gmail.com>
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic,
> 
> I often fall asleep a few times in the day, but luckily I don't need as much 
> sleep as I use to.
> Though I am going nutz, I just don't know what to try next. My arms, mostly 
> the back of my forearms, wake me up just burning cold, though they are warm. 
> Yet the first thing I do when I get up is go sit in the sun. It relaxes my 
> muscles and helps stop my shaking.
> 
> Why does warmth from blanket cause cold shaking, but warmth from sun feel 
> great.
> 
> I'm going to try a sun / heat lamp in bed. Maybe that might help
> I hope. 
> 
> Thx, Greg
> 
>> Greg, that sounds like a nightly bit of hell. How do you get any
>> rest? Like I said, I have a touch of it but nothing to the extent
>> that you do. God bless you, my friend. I pray that you find relief
>> and comfort and sweet gentle sleep. Larry
>> 
>> Larry WillisRetired and proud of it
>> 
>> 
>> Begin forwarded message:
>> 
>> 
>>> Resent-From: quad-list@eskimo.com
>>> From: greg <g...@eskimo.com>
>>> Date: October 2, 2015 at 4:24:23 PM EDT
>>> To: <quad-list@eskimo.com>
>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>> 
>>> 
>>> I probably wake up 3-4 times a night, shaking cold (most of the
>>> time I'm warm though) sometimes I can't get back to sleep for
>>> hours. I maybe go all night not waking up shaking 3 nights a
>>> month. I've tried meds, changing position, a drink before bed,
>>> head raised, lowered, heavier blankets, lighter blankets, just a
>>> sheet, etc.
>>> 
>>> I say I'm overheated but really I'm just toasty warm. I can feel
>>> warm hands on my face, but temp is normal. It's only in bed, with
>>> a blanket. My arms feel like they are bruised and in ice water.
>>> During the day they kind of feel that way, but not so bad I shake
>>> uncontrollably. Once I get up, I stop shaking in about 10
>>> minutes. Though my arms always feel like ice water.
>>> 
>>> I was in the hospital about 8 months ago or so, and it did it in
>>> their bed too. So it's not my mattress.
>>> 
>>> Thx, Greg
>>> 
>>> 
>>>> Greg, I have almost that same problem about once a week. I will
>>>> 
>>>> wake up very uncomfortable but I can't tell if I am hot or
>>>> cold. My
>>>> 
>>>> hands are always like icicles regardless. And I have the
>>>> shivers,
>>>> 
>>>> something my father used to doand he was able-bodied. Our
>>>> body
>>>> 
>>>> thermostats are screwed up. I get overheated, think I am cold,
>>>> pile
>>>> 
>>>> on more covers and get even hotter. Sucks to the high heavens.
>>>> Hate
>>>> 
>>>> it.
>>>> 
>>>> 
>>>> Larry WillisRetired and proud of it
>>>> 
>>>> 
>>>> Begin forwarded message:
>>>> 
>>>> 
>>>>> Resent-From: quad-list@eskimo.com
>>>>> 
>>>> 
>>>>> From: greg <g...@eskimo.com>
>>>>> 
>>>> 
>>>>> Date: September 30, 2015 at 8:30:46 PM EDT
>>>>> 
>>>> 
>>>>> To: <quad-list@eskimo.com>
>>>>> 
>>>> 
>>>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>>>> 
>>>> 
>>>>> I went 20 years before I had my first panic attack. I've only
>>>>> had
>>>>> 
>>>> 
>>>>> a few what I would call panic attacks. Where I just had to
>>>>> get up
>>>>> 
>>>> 
>>>>> in the middle of the night. The few bad ones I notice I got
>>>>> 
>>>> 
>>>>> really overheated and could not get the blanket off. When I'm
>>>>> 
>>>> 
>>>>> really hot, I just don't feel like I'm getting enough air. If
>>>>> I
>>>>> 
>>>> 

Re: Fwd: [QUAD-L] Getting Old, Panic

[greg]

I probably wake up 3-4 times a night, shaking cold (most of the time I'm warm 
though) sometimes I can't get back to sleep for hours. I maybe go all night not 
waking up shaking 3 nights a month. I've tried meds, changing position, a drink 
before bed, head raised, lowered, heavier blankets, lighter blankets, just a 
sheet, etc.

I say I'm overheated but really I'm just toasty warm. I can feel warm hands on 
my face, but temp is normal. It's only in bed, with a blanket. My arms feel 
like they are bruised and in ice water. During the day they kind of feel that 
way, but not so bad I shake uncontrollably. Once I get up, I stop shaking in 
about 10 minutes. Though my arms always feel like ice water.

I was in the hospital about 8 months ago or so, and it did it in their bed too. 
So it's not my mattress.

Thx, Greg


> Greg, I have almost that same problem about once a week. I will
> wake up very uncomfortable but I can't tell if I am hot or cold. My
> hands are always like icicles regardless. And I have the shivers,
> something my father used to doand he was able-bodied. Our body
> thermostats are screwed up. I get overheated, think I am cold, pile
> on more covers and get even hotter. Sucks to the high heavens. Hate
> it.
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: greg <g...@eskimo.com>
>> Date: September 30, 2015 at 8:30:46 PM EDT
>> To: <quad-list@eskimo.com>
>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>
>>
>> I went 20 years before I had my first panic attack. I've only had
>> a few what I would call panic attacks. Where I just had to get up
>> in the middle of the night. The few bad ones I notice I got
>> really overheated and could not get the blanket off. When I'm
>> really hot, I just don't feel like I'm getting enough air. If I
>> lay to flat I can't breath as good either. I have the bed remote,
>> but it has fallen a few times.
>>
>> I more often get this obsessive worrying. Then that leads to
>> worrying I'm going to have an attack if I lay down. Only once it
>> was bad enough I stayed up all night in my chair. Then I feel bad
>> I gave in to it.
>>
>> I have bed, fan, tv, remotes now. I have them all tied onto the
>> bed remote. Unfortunately to use one I have to uncover my arm and
>> often can't get it covered back up. Luckily, most of the tv is
>> voice controlled. I still need to get control of my lights. I had
>> it on my Sicare, but the switch receiver burned/shorted out.
>>
>> My biggest issue at night is for some reason just getting pretty
>> warm, not even overheated, just enough to feel warm hands. My
>> arms start feeling like they are frozen. I feel so cold I start
>> uncontrollably shaking. I uncover my arms and it gets better, but
>> just until I get for real cold. I only shake that bad when my
>> arms get warm from blankets, temp normal, or my temp drops to
>> 95.5 or lower.
>>
>> I don't think it's Dysreflexia, that usually drops my temp. No
>> other way of getting warm causes this. Once I start shaking that
>> bad I start feeling like I NEED to get up.
>>
>> Greg

Fwd: [QUAD-L] Getting Old, Panic

[Larry Willis]

Greg, that sounds like a nightly bit of hell. How do you get any rest? Like I 
said, I have a touch of it but nothing to the extent that you do. God bless 
you, my friend. I pray that you find relief and comfort and sweet gentle sleep. 
Larry

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg <g...@eskimo.com>
> Date: October 2, 2015 at 4:24:23 PM EDT
> To: <quad-list@eskimo.com>
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
> 
> I probably wake up 3-4 times a night, shaking cold (most of the time I'm warm 
> though) sometimes I can't get back to sleep for hours. I maybe go all night 
> not waking up shaking 3 nights a month. I've tried meds, changing position, a 
> drink before bed, head raised, lowered, heavier blankets, lighter blankets, 
> just a sheet, etc.
> 
> I say I'm overheated but really I'm just toasty warm. I can feel warm hands 
> on my face, but temp is normal. It's only in bed, with a blanket. My arms 
> feel like they are bruised and in ice water. During the day they kind of feel 
> that way, but not so bad I shake uncontrollably. Once I get up, I stop 
> shaking in about 10 minutes. Though my arms always feel like ice water.
> 
> I was in the hospital about 8 months ago or so, and it did it in their bed 
> too. So it's not my mattress.
> 
> Thx, Greg
> 
> 
>> Greg, I have almost that same problem about once a week. I will
>> wake up very uncomfortable but I can't tell if I am hot or cold. My
>> hands are always like icicles regardless. And I have the shivers,
>> something my father used to doand he was able-bodied. Our body
>> thermostats are screwed up. I get overheated, think I am cold, pile
>> on more covers and get even hotter. Sucks to the high heavens. Hate
>> it.
>> 
>> Larry WillisRetired and proud of it
>> 
>> 
>> Begin forwarded message:
>> 
>> 
>>> Resent-From: quad-list@eskimo.com
>>> From: greg <g...@eskimo.com>
>>> Date: September 30, 2015 at 8:30:46 PM EDT
>>> To: <quad-list@eskimo.com>
>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
>>> 
>>> 
>>> I went 20 years before I had my first panic attack. I've only had
>>> a few what I would call panic attacks. Where I just had to get up
>>> in the middle of the night. The few bad ones I notice I got
>>> really overheated and could not get the blanket off. When I'm
>>> really hot, I just don't feel like I'm getting enough air. If I
>>> lay to flat I can't breath as good either. I have the bed remote,
>>> but it has fallen a few times.
>>> 
>>> I more often get this obsessive worrying. Then that leads to
>>> worrying I'm going to have an attack if I lay down. Only once it
>>> was bad enough I stayed up all night in my chair. Then I feel bad
>>> I gave in to it.
>>> 
>>> I have bed, fan, tv, remotes now. I have them all tied onto the
>>> bed remote. Unfortunately to use one I have to uncover my arm and
>>> often can't get it covered back up. Luckily, most of the tv is
>>> voice controlled. I still need to get control of my lights. I had
>>> it on my Sicare, but the switch receiver burned/shorted out.
>>> 
>>> My biggest issue at night is for some reason just getting pretty
>>> warm, not even overheated, just enough to feel warm hands. My
>>> arms start feeling like they are frozen. I feel so cold I start
>>> uncontrollably shaking. I uncover my arms and it gets better, but
>>> just until I get for real cold. I only shake that bad when my
>>> arms get warm from blankets, temp normal, or my temp drops to
>>> 95.5 or lower.
>>> 
>>> I don't think it's Dysreflexia, that usually drops my temp. No
>>> other way of getting warm causes this. Once I start shaking that
>>> bad I start feeling like I NEED to get up.
>>> 
>>> Greg
> 

Re: Fwd: [QUAD-L] Getting Old, Panic

[greg]

I went 20 years before I had my first panic attack. I've only had a few what I 
would call panic attacks. Where I just had to get up in the middle of the 
night. The few bad ones I notice I got really overheated and could not get the 
blanket off. When I'm really hot, I just don't feel like I'm getting enough 
air. If I lay to flat I can't breath as good either. I have the bed remote, but 
it has fallen a few times.

I more often get this obsessive worrying. Then that leads to worrying I'm going 
to have an attack if I lay down. Only once it was bad enough I stayed up all 
night in my chair. Then I feel bad I gave in to it.

I have bed, fan, tv, remotes now. I have them all tied onto the bed remote. 
Unfortunately to use one I have to uncover my arm and often can't get it 
covered back up. Luckily, most of the tv is voice controlled. I still need to 
get control of my lights. I had it on my Sicare, but the switch receiver 
burned/shorted out.

My biggest issue at night is for some reason just getting pretty warm, not even 
overheated, just enough to feel warm hands. My arms start feeling like they are 
frozen. I feel so cold I start uncontrollably shaking. I uncover my arms and it 
gets better, but just until I get for real cold. I only shake that bad when my 
arms get warm from blankets, temp normal, or my temp drops to 95.5 or lower.

I don't think it's Dysreflexia, that usually drops my temp. No other way of 
getting warm causes this. Once I start shaking that bad I start feeling like I 
NEED to get up.

Greg

Fwd: [QUAD-L] Getting Old, Panic

[Larry Willis]

Greg, I have almost that same problem about once a week. I will wake up very 
uncomfortable but I can't tell if I am hot or cold. My hands are always like 
icicles regardless. And I have the shivers, something my father used to 
doand he was able–bodied. Our body thermostats are screwed up. I get 
overheated, think I am cold, pile on more covers and get even hotter. Sucks to 
the high heavens. Hate it.

Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: greg <g...@eskimo.com>
> Date: September 30, 2015 at 8:30:46 PM EDT
> To: <quad-list@eskimo.com>
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
> 
> 
> I went 20 years before I had my first panic attack. I've only had a few what 
> I would call panic attacks. Where I just had to get up in the middle of the 
> night. The few bad ones I notice I got really overheated and could not get 
> the blanket off. When I'm really hot, I just don't feel like I'm getting 
> enough air. If I lay to flat I can't breath as good either. I have the bed 
> remote, but it has fallen a few times.
> 
> I more often get this obsessive worrying. Then that leads to worrying I'm 
> going to have an attack if I lay down. Only once it was bad enough I stayed 
> up all night in my chair. Then I feel bad I gave in to it.
> 
> I have bed, fan, tv, remotes now. I have them all tied onto the bed remote. 
> Unfortunately to use one I have to uncover my arm and often can't get it 
> covered back up. Luckily, most of the tv is voice controlled. I still need to 
> get control of my lights. I had it on my Sicare, but the switch receiver 
> burned/shorted out.
> 
> My biggest issue at night is for some reason just getting pretty warm, not 
> even overheated, just enough to feel warm hands. My arms start feeling like 
> they are frozen. I feel so cold I start uncontrollably shaking. I uncover my 
> arms and it gets better, but just until I get for real cold. I only shake 
> that bad when my arms get warm from blankets, temp normal, or my temp drops 
> to 95.5 or lower.
> 
> I don't think it's Dysreflexia, that usually drops my temp. No other way of 
> getting warm causes this. Once I start shaking that bad I start feeling like 
> I NEED to get up.
> 
> Greg
> 

Re: Fwd: [QUAD-L] Getting Old, Panic

[Danny Hearn]

Well said Don, I think you are right , I used to get panic attacks and many 
times it can be related to the fear of dying or loss of control, like you said 
try to find a way to control as much as possible then try to learn ways to calm 
the mindlike you said Tv or etc., Myself I  think praying helps me plus 
trying to stay positive as much as one can.  Dan H** 


 On Tuesday, September 29, 2015 3:34 PM, Don Price  
wrote:
   

 
I think a large factor in panic attacks is related to loss of control (e.g. 
inability to get up, turn, etc.) I've learned that if you can find ways of 
controlling as many things in your environment -- especially while in bed -- it 
greatly helps reduce panic/anxiety attacks. Examples: raising and lowering your 
bed independently, ability to control room temperature or a fan, ability to 
control tv/radio/lights and especially the ability to use the phone and 
computer. All of these things are possible using today's technology. If you are 
able to control things around you I believe you will feel less anxious. 
However, I'm not a doctor and I don't even play one on TV.
I remember my first anxiety attack; it occurred one night while I was in the 
acute care hospital after my diving accident. I was still in a halo-like device 
and completely immobile. I began to feel the walls closing in on me and the 
panic set in. Somehow, I managed to flip through the TV channels and, 
mercifully, I found a movie that held my attention and calmed me down. To this 
day that miracle film is still one of my all-time favorite movies -- it's not 
that it's all that special cinematically, but it holds a special place in my 
heart for calming my soul that dark night in 1982. The movie is: Jeremiah 
Johnson.
The only other times I get these anxiety attacks is when I roll myself too far 
at night and end up face-down in my bed, unable to roll back over. For one 
thing it's hard to breathe, but secondly it puts me back in the memory of 
floating face-down in the water when I had my diving accident. I was fully 
conscious and floated face down, unable to move for what seemed like minutes, 
although it may have been seconds. Very scary stuff, and I wouldn't wish that 
kind of panic on anyone. Sometimes, when I hear news stories about an 
earthquake where people are buried alive, I think about the people under that 
rubble and how they must have that same feeling of horror being unable to move 
and breathe. Nightmare inducing.
OK, now let's think of something more positive: if we still have trouble with 
panic attacks, instead of relying on drugs we might want to check into hypnosis 
or meditation techniques. I've thought about doing this many times, but 
haven't. The power of the mind is amazing; if we can learn techniques to shut 
off the negative thoughts we will be better able to avoid the worry, panic, 
anxiety.
This morning I was driving to pick up a friend. As I pulled my Honda into her 
parking lot the sun was just rising and I was driving east, looking straight 
into the orange-yellow glow. My windshield was dusty so I hit the fluid button 
and the wiper solvent sprayed onto my window. For a brief moment I witnessed a 
tiny rainbow prism in the mist, against the morning sky, and then, as if by 
magic, a hummingbird flew in view and hovered, for a second, right in front of 
me. The beauty of that moment was so moving that I literally said thanks to 
God. If I saw that scene in a movie I would say it was over-the-top hokey, but 
it actually happened. The next time I'm panicking I'll try to recall that image 
of the hummingbird in the rainbow in the morning sun. Of course, Jeremiah 
Johnson might laugh at me, but Robert Redford would understand.
Don P.Tempe, AZ 

  

Fwd: [QUAD-L] Getting Old, Panic

[Bryce Willis]

Don, that is one of the best posts I have read in a long time! Intelligent, 
passionate, informative, and captivating. I agree that panic is entirely 
mental, but oh what power it has! Your third paragraph really hits home because 
I've experienced the same thing. It is the helplessness, the anger, the fear, 
the heart and blood pounding irrationally in the ears, and the exploding head 
that set things off. Thanks for sharing, Don. Embrace the night and all that it 
brings, Calm my soul as the night bird sings.
Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Danny Hearn <ddh...@sbcglobal.net>
> Date: September 29, 2015 at 7:09:15 PM EDT
> To: Don Price <donpric...@yahoo.com>, Larry Willis <lwillis82...@gmail.com>,  
> "quad-list@eskimo.com" <quad-list@eskimo.com>
> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic
> Reply-To: Danny Hearn <ddh...@sbcglobal.net>
> 
> Well said Don, I think you are right , I used to get panic attacks and many 
> times it can be related to the fear of dying or loss of control, like you 
> said try to find a way to control as much as possible then try to learn ways 
> to calm the mindlike you said Tv or etc., Myself I  think praying helps 
> me plus trying to stay positive as much as one can.  Dan H**
> 
> 
> 
> On Tuesday, September 29, 2015 3:34 PM, Don Price <donpric...@yahoo.com> 
> wrote:
> 
> 
> 
> I think a large factor in panic attacks is related to loss of control (e.g. 
> inability to get up, turn, etc.) I've learned that if you can find ways of 
> controlling as many things in your environment -- especially while in bed -- 
> it greatly helps reduce panic/anxiety attacks. Examples: raising and lowering 
> your bed independently, ability to control room temperature or a fan, ability 
> to control tv/radio/lights and especially the ability to use the phone and 
> computer. All of these things are possible using today's technology. If you 
> are able to control things around you I believe you will feel less anxious. 
> However, I'm not a doctor and I don't even play one on TV.
> 
> I remember my first anxiety attack; it occurred one night while I was in the 
> acute care hospital after my diving accident. I was still in a halo-like 
> device and completely immobile. I began to feel the walls closing in on me 
> and the panic set in. Somehow, I managed to flip through the TV channels and, 
> mercifully, I found a movie that held my attention and calmed me down. To 
> this day that miracle film is still one of my all-time favorite movies -- 
> it's not that it's all that special cinematically, but it holds a special 
> place in my heart for calming my soul that dark night in 1982. The movie is: 
> Jeremiah Johnson.
> 
> The only other times I get these anxiety attacks is when I roll myself too 
> far at night and end up face-down in my bed, unable to roll back over. For 
> one thing it's hard to breathe, but secondly it puts me back in the memory of 
> floating face-down in the water when I had my diving accident. I was fully 
> conscious and floated face down, unable to move for what seemed like minutes, 
> although it may have been seconds. Very scary stuff, and I wouldn't wish that 
> kind of panic on anyone. Sometimes, when I hear news stories about an 
> earthquake where people are buried alive, I think about the people under that 
> rubble and how they must have that same feeling of horror being unable to 
> move and breathe. Nightmare inducing.
> 
> OK, now let's think of something more positive: if we still have trouble with 
> panic attacks, instead of relying on drugs we might want to check into 
> hypnosis or meditation techniques. I've thought about doing this many times, 
> but haven't. The power of the mind is amazing; if we can learn techniques to 
> shut off the negative thoughts we will be better able to avoid the worry, 
> panic, anxiety.
> 
> This morning I was driving to pick up a friend. As I pulled my Honda into her 
> parking lot the sun was just rising and I was driving east, looking straight 
> into the orange-yellow glow. My windshield was dusty so I hit the fluid 
> button and the wiper solvent sprayed onto my window. For a brief moment I 
> witnessed a tiny rainbow prism in the mist, against the morning sky, and 
> then, as if by magic, a hummingbird flew in view and hovered, for a second, 
> right in front of me. The beauty of that moment was so moving that I 
> literally said thanks to God. If I saw that scene in a movie I would say it 
> was over-the-top hokey, but it actually happened. The next time I'm panicking 
> I'll try to recall that image of the hummingbird in the rainbow in the 
> morning sun. Of course, Jeremiah Johnson might laugh at me, but Robert 
> Redford would understand.
> 
> Don P.
> Tempe, AZ
> 
> 

Re: Fwd: [QUAD-L] Getting Old, Panic

[Don Price]

I think a large factor in panic attacks is related to loss of control (e.g. 
inability to get up, turn, etc.) I've learned that if you can find ways of 
controlling as many things in your environment -- especially while in bed -- it 
greatly helps reduce panic/anxiety attacks. Examples: raising and lowering your 
bed independently, ability to control room temperature or a fan, ability to 
control tv/radio/lights and especially the ability to use the phone and 
computer. All of these things are possible using today's technology. If you are 
able to control things around you I believe you will feel less anxious. 
However, I'm not a doctor and I don't even play one on TV.
I remember my first anxiety attack; it occurred one night while I was in the 
acute care hospital after my diving accident. I was still in a halo-like device 
and completely immobile. I began to feel the walls closing in on me and the 
panic set in. Somehow, I managed to flip through the TV channels and, 
mercifully, I found a movie that held my attention and calmed me down. To this 
day that miracle film is still one of my all-time favorite movies -- it's not 
that it's all that special cinematically, but it holds a special place in my 
heart for calming my soul that dark night in 1982. The movie is: Jeremiah 
Johnson.
The only other times I get these anxiety attacks is when I roll myself too far 
at night and end up face-down in my bed, unable to roll back over. For one 
thing it's hard to breathe, but secondly it puts me back in the memory of 
floating face-down in the water when I had my diving accident. I was fully 
conscious and floated face down, unable to move for what seemed like minutes, 
although it may have been seconds. Very scary stuff, and I wouldn't wish that 
kind of panic on anyone. Sometimes, when I hear news stories about an 
earthquake where people are buried alive, I think about the people under that 
rubble and how they must have that same feeling of horror being unable to move 
and breathe. Nightmare inducing.
OK, now let's think of something more positive: if we still have trouble with 
panic attacks, instead of relying on drugs we might want to check into hypnosis 
or meditation techniques. I've thought about doing this many times, but 
haven't. The power of the mind is amazing; if we can learn techniques to shut 
off the negative thoughts we will be better able to avoid the worry, panic, 
anxiety.
This morning I was driving to pick up a friend. As I pulled my Honda into her 
parking lot the sun was just rising and I was driving east, looking straight 
into the orange-yellow glow. My windshield was dusty so I hit the fluid button 
and the wiper solvent sprayed onto my window. For a brief moment I witnessed a 
tiny rainbow prism in the mist, against the morning sky, and then, as if by 
magic, a hummingbird flew in view and hovered, for a second, right in front of 
me. The beauty of that moment was so moving that I literally said thanks to 
God. If I saw that scene in a movie I would say it was over-the-top hokey, but 
it actually happened. The next time I'm panicking I'll try to recall that image 
of the hummingbird in the rainbow in the morning sun. Of course, Jeremiah 
Johnson might laugh at me, but Robert Redford would understand.
Don P.Tempe, AZ 

Fwd: [QUAD-L] Getting Old, Panic

[Larry Willis]

Well, play it again, Dave! Old Hitchcock movies work well, too. I watched The 
Birds and Psycho back-to-back yesterday. I have watched both countless times, 
but they never get old. Another great one is The Quiet Man with John Wayne. He 
plays a boxer who returns to his homeland in Ireland. They do not make such 
movies anymore.
A few years ago I went through a round of heavy depression and panic attacks. 
They always happened at night when I felt like the room was devouring me. It 
was God-awful and terrifying. The doc put me on Paxil which helped considerably 
with my mood. The panic attacks continued, though, until she added a small dose 
of Xanax at bedtime. I took that for about six months and finally leveled out. 
Haven't had an attack since.
This mixture came with some strong warnings, though. I was taking oxy 40, 
Percocet, ditropan, Paxil, and Xanax. That could be a deadly mixture if abused, 
especially the oxy/Xanax combo. I eliminated the Xanax as quickly as possible. 
Good luck and God bless to all my suffering peeps this morning.
Ps. My mother-in-law, an ER nurse always swore by Valium instead of Xanax.
Larry Willis
Retired and proud of it


Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: "Dave Krehbiel" 
> Date: September 28, 2015 at 7:30:06 AM EDT
> To: , "'greg'" 
> Cc: 
> Subject: RE: [QUAD-L] Getting Old, Panic
> 
> Regarding falling asleep: I record movies and I watch the same movie every 
> night when I'm ready to go to sleep. For over a year I have been watching 
> Casablanca every night, and I usually fall asleep in just a few minutes.
> 
> -Original Message-
> From: ntpgrn...@aol.com [mailto:ntpgrn...@aol.com] 
> Sent: Sunday, September 27, 2015 8:13 PM
> To: greg
> Cc: 
> Subject: Re: [QUAD-L] Getting Old, Panic
> 
> I hear you
> No paralysis put worry, anxiety and panic for sure.
> 
> 
> Nancy
> 
> 
> 
>> On Sep 27, 2015, at 8:08 PM, greg  wrote:
>> 
>> Getting older, 51… 32 post injury. I'm having more health issues, most 
>> worrisome or at least hardest to deal with are panic attacks. Not classic 
>> panic attacks, mine are more worry attacks. I get stuck in a loop of 
>> obsessive worrying. Mostly money, what's going to happen when old, etc. It 
>> leads to the panic feeling. Like feeling like not getting enough air. 
>> 
>> The worst part is going to bed when worrying. I get obsessive worrying, then 
>> the feeling of having to get up. I start feeling like I'm going to panic. 
>> The worry of going to have one can be worse than having one. I start to 
>> worry about going to bed. What if I have one in bed.
>> 
>> I tried a few antidepressants, and panic attack meds, from my doc. Made me 
>> feel sick, I had to stop. So I'm going to see someone about it. Someone who 
>> knows more and can adjust them. I just don't know if it can help when they 
>> are lagit worries. No med can take the worries away. I just have to stop the 
>> obsessive part.
>> 
>> G.
>> 
>