Re: [TMIC] reITP
Thanks Linda; you will find the correlation of Itp and tm on page4 of the acticleTransverse myelitis: symtons, causes and diagnosis at at our own sight www.myelitis.org/tm.htm. I was surprised as you fo find that out. My neuro never mentioned it to me but sent me to an oncologist. From: L T CHERPESKI [EMAIL PROTECTED] To: tmic-list@eskimo.com,Gerry Surette [EMAIL PROTECTED] Subject: Re: [TMIC] reITP Date: Thu, 28 Feb 2008 22:06:41 -0700 Hi Gerry, thanks for letting us know that you will be in the hospital. You will definitely be in my thoughts and prayers. I like your attitude - one week of bliss, just being HIGH. That will be a nice reprieve. It's interesting that this has come up. I have TM and my granddaughter has ITP. I've gone to medical seminars on ITP with my family so I do understand about the disease. It's been a while since I've done any research and I wasn't aware of the connection of TM and ITP - except that they are both autoimmune diseases. I guess it's time for me to start researching again. I hope you have a relaxing weekend planned, then on Monday morning take a deep breath, relax and just know that God will be right there with you. Hugs, Linda - Original Message - From: Gerry Surettemailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, February 27, 2008 9:45 AM Subject: [TMIC] reITP Hi everyone' As some of you know I will be entering the hospital next monday morning for an intravenous gamaglobin including a bone maroow transplant. Thuis will last five days. To backrack my plelete count is very very low. I have ITP whereby my white blood cells are killing each other off. The risk are not so high. Those of us who have TM have gone through much worst. the news is this: It is related to TM ;;; I thought it was a new complication to my life but doing some research I discovered that ITP is a directed result to TM in some people. \\\The good part of all this is that I will be so drugged up for four days that I will not feel the pain I have been experiencing for the last 7 years. It is better then cannibus. God bless One week of total bliss. no pain. just HIGH please keep me in your thoughs and prayers. Again my church is praying for Jude.The lord is with us each and everyone of us. Just look around you. your wife; your girlfriend; He sent them to us to help; comfort and don't forget to nag us as well. lol gerry [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]
[TMIC] re itp
Hi everyone; I have received numerous questions regarding ITP: My wife is concerned that since I joined this site; she thinks I am having sex chats;;; Just kidding here goes; the best sight I found is itpinfo.co.uk hope this helps
RE: [TMIC] question
Ok, now I have a question. In the link that Gerry provided us (Thanks Gerry) I found the following: It is also suggested in the medical literature that patients with complete transverse myelitis (which means severe leg paralysis and sensory loss) are less likely to develop MS than those who had a partial or less severe case. Has anyone on here experienced this? In case some of you don't remember, my daughter who is now 14 was hit with TM when she was 11. She basically had paralysis from her thighs down but also lost her bowel and bladder function. Three years later (and a lot of hard work) she is walking with forearm crutches and braces on her legs. I have always thought of her case as a less severe case because she was not hit like a lot of others with loss from her chest down or even full paralysis and according to what I am reading it seems like she is more likely to get MS than those that had a severe case of TM. When Ashlee first got TM (also combined with GBS) I read about her condition and tried to get myself, my family, and especially her prepared for the worst case scenario. We have been so blessed that she is able to independently take care of herself, and pretty has, since she started walking again. Now that I am reading up on it again, I am really concerned. Any insight would be greatly appreciated! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Friday, February 29, 2008 7:02 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] reITP Thanks Linda; you will find the correlation of Itp and tm on page4 of the acticleTransverse myelitis: symtons, causes and diagnosis at at our own sight www.myelitis.org/tm.htm. I was surprised as you fo find that out. My neuro never mentioned it to me but sent me to an oncologist. From: L T CHERPESKI [EMAIL PROTECTED] To: tmic-list@eskimo.com,Gerry Surette [EMAIL PROTECTED] Subject: Re: [TMIC] reITP Date: Thu, 28 Feb 2008 22:06:41 -0700 Hi Gerry, thanks for letting us know that you will be in the hospital. You will definitely be in my thoughts and prayers. I like your attitude - one week of bliss, just being HIGH. That will be a nice reprieve. It's interesting that this has come up. I have TM and my granddaughter has ITP. I've gone to medical seminars on ITP with my family so I do understand about the disease. It's been a while since I've done any research and I wasn't aware of the connection of TM and ITP - except that they are both autoimmune diseases. I guess it's time for me to start researching again. I hope you have a relaxing weekend planned, then on Monday morning take a deep breath, relax and just know that God will be right there with you. Hugs, Linda - Original Message - From: Gerry Surettemailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, February 27, 2008 9:45 AM Subject: [TMIC] reITP Hi everyone' As some of you know I will be entering the hospital next monday morning for an intravenous gamaglobin including a bone maroow transplant. Thuis will last five days. To backrack my plelete count is very very low. I have ITP whereby my white blood cells are killing each other off. The risk are not so high. Those of us who have TM have gone through much worst. the news is this: It is related to TM ;;; I thought it was a new complication to my life but doing some research I discovered that ITP is a directed result to TM in some people. \\\The good part of all this is that I will be so drugged up for four days that I will not feel the pain I have been experiencing for the last 7 years. It is better then cannibus. God bless One week of total bliss. no pain. just HIGH please keep me in your thoughs and prayers. Again my church is praying for Jude.The lord is with us each and everyone of us. Just look around you. your wife; your girlfriend; He sent them to us to help; comfort and don't forget to nag us as well. lol gerry [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]
RE: [TMIC] question
Hi Tracy it is I Gerry I have had tm since I was 21 had two relapses and since 2001 have had it back with a vengence; now to answer your question. just because your daughter{god blees her} has tm does not necessaryily mean that she will get ms. The numerous articles I have read just SUGGEST that the symptoms are similar THAT IS AL. There is no evidence I have seen whereby tm leeds to ms. And having TM does not reduce your life span. I have questioned my neuro on the subject and as all doctors do skimmed around the subject.the best thing to do is consult your md. Since I joined this group the subject of life span has come up. TM does not reduce life span so I saith; so it is written soo it shall be From: Tracey L. Black [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: RE: [TMIC] question Date: Fri, 29 Feb 2008 09:24:13 -0500 Ok, now I have a question. In the link that Gerry provided us (Thanks Gerry) I found the following: It is also suggested in the medical literature that patients with complete transverse myelitis (which means severe leg paralysis and sensory loss) are less likely to develop MS than those who had a partial or less severe case. Has anyone on here experienced this? In case some of you don't remember, my daughter who is now 14 was hit with TM when she was 11. She basically had paralysis from her thighs down but also lost her bowel and bladder function. Three years later (and a lot of hard work) she is walking with forearm crutches and braces on her legs. I have always thought of her case as a less severe case because she was not hit like a lot of others with loss from her chest down or even full paralysis and according to what I am reading it seems like she is more likely to get MS than those that had a severe case of TM. When Ashlee first got TM (also combined with GBS) I read about her condition and tried to get myself, my family, and especially her prepared for the worst case scenario. We have been so blessed that she is able to independently take care of herself, and pretty has, since she started walking again. Now that I am reading up on it again, I am really concerned. Any insight would be greatly appreciated! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Friday, February 29, 2008 7:02 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] reITP Thanks Linda; you will find the correlation of Itp and tm on page4 of the acticleTransverse myelitis: symtons, causes and diagnosis at at our own sight www.myelitis.org/tm.htm. I was surprised as you fo find that out. My neuro never mentioned it to me but sent me to an oncologist. From: L T CHERPESKI [EMAIL PROTECTED] To: tmic-list@eskimo.com,Gerry Surette [EMAIL PROTECTED] Subject: Re: [TMIC] reITP Date: Thu, 28 Feb 2008 22:06:41 -0700 Hi Gerry, thanks for letting us know that you will be in the hospital. You will definitely be in my thoughts and prayers. I like your attitude - one week of bliss, just being HIGH. That will be a nice reprieve. It's interesting that this has come up. I have TM and my granddaughter has ITP. I've gone to medical seminars on ITP with my family so I do understand about the disease. It's been a while since I've done any research and I wasn't aware of the connection of TM and ITP - except that they are both autoimmune diseases. I guess it's time for me to start researching again. I hope you have a relaxing weekend planned, then on Monday morning take a deep breath, relax and just know that God will be right there with you. Hugs, Linda - Original Message - From: Gerry Surettemailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, February 27, 2008 9:45 AM Subject: [TMIC] reITP Hi everyone' As some of you know I will be entering the hospital next monday morning for an intravenous gamaglobin including a bone maroow transplant. Thuis will last five days. To backrack my plelete count is very very low. I have ITP whereby my white blood cells are killing each other off. The risk are not so high. Those of us who have TM have gone through much worst. the news is this: It is related to TM ;;; I thought it was a new complication to my life but doing some research I discovered that ITP is a directed result to TM in some people. \\\The good part of all this is that I will be so drugged up for four days that I will not feel the pain I have been experiencing for the last 7 years. It is better then cannibus. God
RE: [TMIC] question
Hi Tracy it is I Gerry I have had tm since I was 21 had two relapses and since 2001 have had it back with a vengence; now to answer your question. just because your daughter{god blees her} has tm does not necessaryily mean that she will get ms. The numerous articles I have read just SUGGEST that the symptoms are similar THAT IS AL. There is no evidence I have seen whereby tm leeds to ms. And having TM does not reduce your life span. I have questioned my neuro on the subject and as all doctors do skimmed around the subject.the best thing to do is consult your md. Since I joined this group the subject of life span has come up. TM does not reduce life span so I saith; so it is written soo it shall be From: Tracey L. Black [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: RE: [TMIC] question Date: Fri, 29 Feb 2008 09:24:13 -0500 Ok, now I have a question. In the link that Gerry provided us (Thanks Gerry) I found the following: It is also suggested in the medical literature that patients with complete transverse myelitis (which means severe leg paralysis and sensory loss) are less likely to develop MS than those who had a partial or less severe case. Has anyone on here experienced this? In case some of you don't remember, my daughter who is now 14 was hit with TM when she was 11. She basically had paralysis from her thighs down but also lost her bowel and bladder function. Three years later (and a lot of hard work) she is walking with forearm crutches and braces on her legs. I have always thought of her case as a less severe case because she was not hit like a lot of others with loss from her chest down or even full paralysis and according to what I am reading it seems like she is more likely to get MS than those that had a severe case of TM. When Ashlee first got TM (also combined with GBS) I read about her condition and tried to get myself, my family, and especially her prepared for the worst case scenario. We have been so blessed that she is able to independently take care of herself, and pretty has, since she started walking again. Now that I am reading up on it again, I am really concerned. Any insight would be greatly appreciated! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Friday, February 29, 2008 7:02 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] reITP Thanks Linda; you will find the correlation of Itp and tm on page4 of the acticleTransverse myelitis: symtons, causes and diagnosis at at our own sight www.myelitis.org/tm.htm. I was surprised as you fo find that out. My neuro never mentioned it to me but sent me to an oncologist. From: L T CHERPESKI [EMAIL PROTECTED] To: tmic-list@eskimo.com,Gerry Surette [EMAIL PROTECTED] Subject: Re: [TMIC] reITP Date: Thu, 28 Feb 2008 22:06:41 -0700 Hi Gerry, thanks for letting us know that you will be in the hospital. You will definitely be in my thoughts and prayers. I like your attitude - one week of bliss, just being HIGH. That will be a nice reprieve. It's interesting that this has come up. I have TM and my granddaughter has ITP. I've gone to medical seminars on ITP with my family so I do understand about the disease. It's been a while since I've done any research and I wasn't aware of the connection of TM and ITP - except that they are both autoimmune diseases. I guess it's time for me to start researching again. I hope you have a relaxing weekend planned, then on Monday morning take a deep breath, relax and just know that God will be right there with you. Hugs, Linda - Original Message - From: Gerry Surettemailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, February 27, 2008 9:45 AM Subject: [TMIC] reITP Hi everyone' As some of you know I will be entering the hospital next monday morning for an intravenous gamaglobin including a bone maroow transplant. Thuis will last five days. To backrack my plelete count is very very low. I have ITP whereby my white blood cells are killing each other off. The risk are not so high. Those of us who have TM have gone through much worst. the news is this: It is related to TM ;;; I thought it was a new complication to my life but doing some research I discovered that ITP is a directed result to TM in some people. \\\The good part of all this is that I will be so drugged up for four days that I will not feel the pain I have been experiencing for the last 7 years. It is better then cannibus. God
[TMIC] HYPERBERIC MACHINE
I think the machine is great. I was put into one approx. 2 years ago when I had first gotten my leg braces and could not feel it was not on my foot correctly. A bad bruise had formed on the bottom/side and my doctor sent me to the wound care center where that doctor cut it open to see if any infection was forming underneath. NO but then I had a hole so to clear it up before infection did set up, I used the machine for a month (once a week) and it healed like nothing was ever there. Basically all you do is go sit in there like at the movies for 45 minutes and the one I was in could hold 10 people at a time. Ella **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
[TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
I AM SO UPSET.WHEN I SPOKE TO JUDE YESTERDAY THEY WHERE TAKING HER TO THE HOSPITAL TO USE THE HYPERBERIC CHAMBER.SHE TOLD ME THEY REFUSED HER SHE DID NOT QUALIFY. THIS MAKES NO SENSE TO ME. THEY SAID SHE WAS GOING NOW BACK TO SQUARE ONE. I HAD A GREAT DAY NOW THIS AND JUDE IS SO WEAK AND UPSET .I JUST DO NOT UNDERSTAND ANY OF THIS. I TRIED TO CALL DAVE JUDE SAID THE WEATHER WAS BAD SHE TOLD HIM NOT TO COME UP BEFORE WORK. I CANNOT TALK TO HIM TILL TOMORROW. I DO NOT COMPREHEND ANY OF THIS.THE SORE ON HER ANKLE IS BIGGER AND NARCOSIST I KNOW HOW TO SPELL IT AND KNOWS WHAT IT MEANS BUT I AM TYPING FAST AND AM REALLY ANNOYED. I HOPE GUNNYS LETTERS DO SOMETHING. I AM NOW REALLY WORRIED ABOUT HER NOW. THIS IS JUST TO MUCH FOR HER TO DEAL WITH. HER ROOM MATE WENT HOME TODAY AND THEY GOT ALONG GREAT NOW SHE IS AFFRAID THAT SHE WILL GET A BAD ROOM MATE. I TOLD HER IF SHE DID JUST KEEP HER CURTAIN CLOSED . I AM JUST AFFRAID THAT THEY NOW ARE DOING NOTHING AGAIN. IT BREAKS MY HEART AND I BOUGHT SOMETHING FOR HER AGAIN TO CHEER HER UP. I GOT IT OFF TV QVC SHE LIKES HER PRETTY THINGS AND HER NICE SMELLING PERFUMES AND BODY LOTIONS.THIS IS NOT A CURE BUT SHOWS WE ALL CARE. I HAVE TO GET THE ADDRESS FOR TODD I THINK. I DO NOT REMEMBER IT NOW BUT I WILL LOOK IT UP AND GET IT TO YOU. TONIGHT WAS GOING TO BE A SPECIAL NIGHT WE WHERE GOING TO A SEAFOOD BOIL AT FRIENDS. I DO NOT THINK I WILL BE IN A GOOD MOOD. I HAVE TO GO MY HUSBAND IS ALREADY WORRIED THAT I AM GETTING TO STRESSED AND I WILL GET ILL. HE KNOWS JUDE AND HAS SPOKEN TO HER. I AM NOT GOING TO TELL HIM THIS NEWS HE WILL GET UPSET MORE THAN HE IS. PLEASE EVERYONE CONTIMUE TO PRAY FOR HER.SHE NEEDS IT NOW MORE THAN EVER, SHE TOLD ME TO TELL ALL OF YOU HOW GRATEFUL SHE IS FOR THE CARDS THE GIFTS AND MOST OF ALL THE PRAYERS, SHE SAID SHE LOVES YOU ALL. SOUNDED LIKE SHE WAS SAYING GOODBYE, I STARTED TO CRY BUT I HOPE SHE DID NOT HEAR ME SHE NEEDS ME TO BE STRONG WHEN I SPEAK TO HER.. I HAVE TO TALK TO DAVE I MIGHT JUST WAKE HIM UP TOMORROW I NEED ANSWERS. TAKE CARE EVERYONE AND GOD BLESS JUDE AND OUR TM FAMILY! TIAD PAM
RE: [TMIC] question
Tracey, Isn't it odd how we interpret the severity of our cases? I have had TM for about a year and a half. I have lost bladder function, some numbness (burning, pin-pricks) in my feet and legs, but no paralasys. Only a minor gait disturbance. Fatigue is also huge with me. But, I haven't lost all function in any part of my body, besides the bladder. So, to me, I would say my symptoms are much less than your daughters. Hers sound very severe to me. So, would I be more at risk than her to develop MS? And, exponentially, would she be more at risk than say someone with total paralysis? I would say yes. BUT, like Gerry said...my neuro told me there was really no conclusive evidence that TM and MS are more related than cousins. That the symptoms mirror each other in type, but not in overall severity, and certainly not in progression. Tim Tim Holder Worship Leader for Celebrate Recovery [EMAIL PROTECTED] (501)224-7171 ext. 1454 Fellowship Bible Church 1901 Napa Valley Drive Little Rock, AR 72212-3913 -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Friday, February 29, 2008 9:46 AM To: tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Subject: RE: [TMIC] question Hi Tracy it is I Gerry I have had tm since I was 21 had two relapses and since 2001 have had it back with a vengence; now to answer your question. just because your daughter{god blees her} has tm does not necessaryily mean that she will get ms. The numerous articles I have read just SUGGEST that the symptoms are similar THAT IS AL. There is no evidence I have seen whereby tm leeds to ms. And having TM does not reduce your life span. I have questioned my neuro on the subject and as all doctors do skimmed around the subject.the best thing to do is consult your md. Since I joined this group the subject of life span has come up. TM does not reduce life span so I saith; so it is written soo it shall be From: Tracey L. Black [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: RE: [TMIC] question Date: Fri, 29 Feb 2008 09:24:13 -0500 Ok, now I have a question. In the link that Gerry provided us (Thanks Gerry) I found the following: It is also suggested in the medical literature that patients with complete transverse myelitis (which means severe leg paralysis and sensory loss) are less likely to develop MS than those who had a partial or less severe case. Has anyone on here experienced this? In case some of you don't remember, my daughter who is now 14 was hit with TM when she was 11. She basically had paralysis from her thighs down but also lost her bowel and bladder function. Three years later (and a lot of hard work) she is walking with forearm crutches and braces on her legs. I have always thought of her case as a less severe case because she was not hit like a lot of others with loss from her chest down or even full paralysis and according to what I am reading it seems like she is more likely to get MS than those that had a severe case of TM. When Ashlee first got TM (also combined with GBS) I read about her condition and tried to get myself, my family, and especially her prepared for the worst case scenario. We have been so blessed that she is able to independently take care of herself, and pretty has, since she started walking again. Now that I am reading up on it again, I am really concerned. Any insight would be greatly appreciated! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Friday, February 29, 2008 7:02 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] reITP Thanks Linda; you will find the correlation of Itp and tm on page4 of the acticleTransverse myelitis: symtons, causes and diagnosis at at our own sight www.myelitis.org/tm.htm. I was surprised as you fo find that out. My neuro never mentioned it to me but sent me to an oncologist. From: L T CHERPESKI [EMAIL PROTECTED] To: tmic-list@eskimo.com,Gerry Surette [EMAIL PROTECTED] Subject: Re: [TMIC] reITP Date: Thu, 28 Feb 2008 22:06:41 -0700 Hi Gerry, thanks for letting us know that you will be in the hospital. You will definitely be in my thoughts and prayers. I like your attitude - one week of bliss, just being HIGH. That will be a nice reprieve. It's interesting that this has come up. I have TM and my granddaughter has ITP. I've gone to medical seminars on ITP with my family so I do understand about the disease. It's been a while since I've done any research and I wasn't aware of the connection of TM and ITP - except
[TMIC] March Birthdays
Happy Birthday to the March babies! I love that spring comes this month! And an early Easter this year, too. Hope you all have a great birthday. As always, send any corrections or additions to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) . 3-3 Marsha Scholes ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 03.05 Bettie Imus ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-6 Robert Lovette [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) 3-7 Sue Mattis ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-15 Sandra Melville ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-17 Joy S. ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3/24 Rachel ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3/24 john h (JOHNLOVESKARAOKE) 3/30 Gary ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-31 Jan H ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)