RE: [TMIC] question

[Gerry Surette]

Hi Tracy it is I Gerry I have had tm since I was 21 had two relapses and 
since 2001 have had it back with a vengence; now to answer your question. 
just because your daughter{god blees her} has tm does not necessaryily mean 
that she will get ms. The numerous articles I have read just SUGGEST that 
the symptoms are similar THAT IS ALLLLLLLLL. There is no evidence I have 
seen whereby tm leeds to ms. And having TM does not reduce your life span. I 
have questioned my neuro on the subject and as all doctors do skimmed around 
the subject.the best thing to do is consult your md. Since I joined this 
group the subject of life span has come up. TM does not reduce life span so 
I saith; so it is written soo it shall be

From: "Tracey L. Black" <[EMAIL PROTECTED]>
To: <tmic-list@eskimo.com>
Subject: RE: [TMIC] question
Date: Fri, 29 Feb 2008 09:24:13 -0500

 Ok, now I have a question. In the link that Gerry provided us (Thanks
Gerry) I found the following:
"It is also suggested in the medical literature that patients with
"complete" transverse myelitis (which means severe leg paralysis and
sensory loss) are less likely to develop MS than those who had a partial
or less severe case."
Has anyone on here experienced this? In case some of you don't remember,
my daughter who is now 14 was hit with TM when she was 11. She basically
had paralysis from her thighs down but also lost her bowel and bladder
function. Three years later (and a lot of hard work) she is walking with
forearm crutches and braces on  her legs. I have always thought of her
case as a less severe case because she was not hit like a lot of others
with loss from her chest down or even full paralysis and according to
what I am reading it seems like she is more likely to get MS than those
that had a severe case of TM. When Ashlee first got TM (also combined
with GBS) I read about her condition and tried to get myself, my family,
and especially her prepared for the worst case scenario. We have been so
blessed that she is able to independently take care of herself, and
pretty has, since she started walking again. Now that I am reading up on
it again, I am really concerned.
Any insight would be greatly appreciated!


Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414


Thank you for providing information to us. Please beware that no
coverage is bound and no change to your insurance program is confirmed
until verified by a licensed agent during regular business hours. If you
do not hear from us within 1 business day, please re-contact us in case
your information has not been retained.


-----Original Message-----
From: Gerry Surette [mailto:[EMAIL PROTECTED]
Sent: Friday, February 29, 2008 7:02 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] reITP

Thanks Linda; you will find the correlation of Itp and tm on page4 of
the acticleTransverse myelitis: symtons, causes and diagnosis at at our
own sight www.myelitis.org/tm.htm. I was surprised as you fo find that
out. My neuro never mentioned it to me but sent me to an oncologist.

>From: "L T CHERPESKI" <[EMAIL PROTECTED]>
>To: <tmic-list@eskimo.com>,"Gerry Surette" <[EMAIL PROTECTED]>
>Subject: Re: [TMIC] reITP
>Date: Thu, 28 Feb 2008 22:06:41 -0700
>
>Hi Gerry, thanks for letting us know that you will be in the hospital.

>You will definitely be in my thoughts and prayers.  I like your
>attitude - one week of bliss, just being HIGH.  That will be a nice
>reprieve.  It's interesting that this has come up. I have TM and my
granddaughter has ITP.
>I've gone to medical seminars on ITP with my family so I do understand
>about the disease.  It's been a while since I've done any research and
>I wasn't aware of the connection of TM and ITP - except that they are
>both autoimmune diseases.  I guess it's time for me to start
researching again.
>I hope you have a relaxing weekend planned, then on Monday morning take

>a deep breath, relax and just know that God will be right there with
you.
>Hugs, Linda
>   ----- Original Message -----
>   From: Gerry Surette<mailto:[EMAIL PROTECTED]>
>   To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com>
>   Sent: Wednesday, February 27, 2008 9:45 AM
>   Subject: [TMIC] reITP
>
>
>   Hi everyone' As some of you know I will be entering the hospital
next
>monday
>   morning for an intravenous gamaglobin including a bone maroow
>transplant.
>   Thuis will last five days. To backrack my plelete count is very very

>low. I
>   have ITP whereby my white blood cells are killing each other off.
The
>risk
>   are not so high. Those of us who have TM have gone through much
worst.
>the
>   news is this: It is related to TM> ;;;;;;; I thought it was a new
>   complication to my life but doing some research I discovered that
ITP is
>a
>   directed result to TM in some people. \\\\\\\The<> good part of all
this
>is
>   that I will be so drugged up for four days that I will not feel the
pain
>I
>   have been experiencing for the last 7 years. It is better then
cannibus.
>God
>   bless One week of total bliss. no pain. just HIGH please keep me in
your
>   thoughs and prayers. Again my church is praying for Jude.The lord is

>with us
>   each and everyone of us. Just look around you. your wife; your
>girlfriend;
>   He sent them to us to help; comfort and don't forget to nag us as
well.
>lol
>   gerry [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]>
>
>