Tracey, Isn't it odd how we interpret the "severity" of our cases? I have had TM for about a year and a half. I have lost bladder function, some numbness (burning, pin-pricks) in my feet and legs, but no paralasys. Only a minor gait disturbance. Fatigue is also huge with me. But, I haven't lost all function in any part of my body, besides the bladder. So, to me, I would say my symptoms are much less than your daughters. Hers sound very severe to me. So, would I be more at risk than her to develop MS? And, exponentially, would she be more at risk than say someone with total paralysis? I would say yes. BUT, like Gerry said...my neuro told me there was really no conclusive evidence that TM and MS are more related than cousins. That the symptoms mirror each other in type, but not in overall severity, and certainly not in progression.
Tim Tim Holder Worship Leader for Celebrate Recovery [EMAIL PROTECTED] (501)224-7171 ext. 1454 Fellowship Bible Church 1901 Napa Valley Drive Little Rock, AR 72212-3913 -----Original Message----- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Friday, February 29, 2008 9:46 AM To: tmic-list@eskimo.com Cc: [EMAIL PROTECTED] Subject: RE: [TMIC] question Hi Tracy it is I Gerry I have had tm since I was 21 had two relapses and since 2001 have had it back with a vengence; now to answer your question. just because your daughter{god blees her} has tm does not necessaryily mean that she will get ms. The numerous articles I have read just SUGGEST that the symptoms are similar THAT IS ALLLLLLLLL. There is no evidence I have seen whereby tm leeds to ms. And having TM does not reduce your life span. I have questioned my neuro on the subject and as all doctors do skimmed around the subject.the best thing to do is consult your md. Since I joined this group the subject of life span has come up. TM does not reduce life span so I saith; so it is written soo it shall be >From: "Tracey L. Black" <[EMAIL PROTECTED]> >To: <tmic-list@eskimo.com> >Subject: RE: [TMIC] question >Date: Fri, 29 Feb 2008 09:24:13 -0500 > > Ok, now I have a question. In the link that Gerry provided us (Thanks >Gerry) I found the following: >"It is also suggested in the medical literature that patients with >"complete" transverse myelitis (which means severe leg paralysis and >sensory loss) are less likely to develop MS than those who had a partial >or less severe case." >Has anyone on here experienced this? In case some of you don't remember, >my daughter who is now 14 was hit with TM when she was 11. She basically >had paralysis from her thighs down but also lost her bowel and bladder >function. Three years later (and a lot of hard work) she is walking with >forearm crutches and braces on her legs. I have always thought of her >case as a less severe case because she was not hit like a lot of others >with loss from her chest down or even full paralysis and according to >what I am reading it seems like she is more likely to get MS than those >that had a severe case of TM. When Ashlee first got TM (also combined >with GBS) I read about her condition and tried to get myself, my family, >and especially her prepared for the worst case scenario. We have been so >blessed that she is able to independently take care of herself, and >pretty has, since she started walking again. Now that I am reading up on >it again, I am really concerned. >Any insight would be greatly appreciated! > > >Tracey L. Black >Certified Insurance Service Representative >Hockley & O'Donnell Insurance Agency >Phone - 717-334-6741, x 29 >Fax - 717-334-3414 > > >Thank you for providing information to us. Please beware that no >coverage is bound and no change to your insurance program is confirmed >until verified by a licensed agent during regular business hours. If you >do not hear from us within 1 business day, please re-contact us in case >your information has not been retained. > > >-----Original Message----- >From: Gerry Surette [mailto:[EMAIL PROTECTED] >Sent: Friday, February 29, 2008 7:02 AM >To: tmic-list@eskimo.com >Subject: Re: [TMIC] reITP > >Thanks Linda; you will find the correlation of Itp and tm on page4 of >the acticleTransverse myelitis: symtons, causes and diagnosis at at our >own sight www.myelitis.org/tm.htm. I was surprised as you fo find that >out. My neuro never mentioned it to me but sent me to an oncologist. > > >From: "L T CHERPESKI" <[EMAIL PROTECTED]> > >To: <tmic-list@eskimo.com>,"Gerry Surette" <[EMAIL PROTECTED]> > >Subject: Re: [TMIC] reITP > >Date: Thu, 28 Feb 2008 22:06:41 -0700 > > > >Hi Gerry, thanks for letting us know that you will be in the hospital. > > >You will definitely be in my thoughts and prayers. I like your > >attitude - one week of bliss, just being HIGH. That will be a nice > >reprieve. It's interesting that this has come up. I have TM and my >granddaughter has ITP. > >I've gone to medical seminars on ITP with my family so I do understand > >about the disease. It's been a while since I've done any research and > >I wasn't aware of the connection of TM and ITP - except that they are > >both autoimmune diseases. I guess it's time for me to start >researching again. > >I hope you have a relaxing weekend planned, then on Monday morning take > > >a deep breath, relax and just know that God will be right there with >you. > >Hugs, Linda > > ----- Original Message ----- > > From: Gerry Surette<mailto:[EMAIL PROTECTED]> > > To: tmic-list@eskimo.com<mailto:tmic-list@eskimo.com> > > Sent: Wednesday, February 27, 2008 9:45 AM > > Subject: [TMIC] reITP > > > > > > Hi everyone' As some of you know I will be entering the hospital >next > >monday > > morning for an intravenous gamaglobin including a bone maroow > >transplant. > > Thuis will last five days. To backrack my plelete count is very very > > >low. I > > have ITP whereby my white blood cells are killing each other off. >The > >risk > > are not so high. Those of us who have TM have gone through much >worst. > >the > > news is this: It is related to TM> ;;;;;;; I thought it was a new > > complication to my life but doing some research I discovered that >ITP is > >a > > directed result to TM in some people. \\\\\\\The<> good part of all >this > >is > > that I will be so drugged up for four days that I will not feel the >pain > >I > > have been experiencing for the last 7 years. It is better then >cannibus. > >God > > bless One week of total bliss. no pain. just HIGH please keep me in >your > > thoughs and prayers. Again my church is praying for Jude.The lord is > > >with us > > each and everyone of us. Just look around you. your wife; your > >girlfriend; > > He sent them to us to help; comfort and don't forget to nag us as >well. > >lol > > gerry [EMAIL PROTECTED]<mailto:[EMAIL PROTECTED]> > > > > > > >
