[CMLHope]
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Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
Skip, very well said! So, your at 33++ years out. EXCELLENT!!! I am 21+ years post bone marrow transplant. They are working on CML from all angles and I know they will find a cure for this disease. May GOD bless each and every one of you brave people. Marty On Fri, Jul 2, 2010 at 2:37 PM, Skip Duffie wrote: > Hello to the group, > Jeanie I agree with you, if we have a difference of opinion then, we should > take it off > the group and try to make nice. I neither agree or disagree when I do see > a tiff coming on > I have had CML most likely the longest in the world, and the way things are > going > think this may be the end of it. One of you will become the longest etc > etc. I look > at Lottie and see a bright spirit and wish we all could be like her. Folks > I have seen > many very nice people who did not make it, and wish I could talk with them > again, > they were wonderful people trying to work through their Cancer. This past > two > years I have failed all those new drugs (you call them new) and now I am on > nothing. > I look forward to reading email on the site, every day. You have > wonderful people > on these groups treat them kindly, you just never know. > thank you group for just being there > Skip Duffie > dx'ed 33 ++ years ago. > > -- > *From:* "icandoall...@aol.com" > *To:* cmlhope@googlegroups.com > *Sent:* Fri, July 2, 2010 12:39:53 PM > *Subject:* Re: [CMLHope] Re: I wrote to Sheila offline to spare her > embarrassment > > This group is a wonderful griyo and I have been on it since the beginning > way back when it was a yahoo list. > Sometimes arguments like this happen, but it doesn't in anyway diminish > what this group accomplishes. It has helped me in more ways than I could > say. For you to say this list is a "joke" then you just don't know much > about this group and the people that on it daily. I just sent the > information on Dr Talpaz and from the article it certainly looks like he was > on the team that developed Gleevec. > Let's all come together and fight this CML like the Warriors we are. > Blessings > Jeanie<3 > > In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, > dsh...@midwaynet.net writes: > > You really crack me up that you posted this for everyone to see. Like > I told you this does not embarass me, and no I wasn't having a bad day > I was actually having an awesome day. I don't know how you don't > think that the first e-mail you sent me was agressive??? All I was > doing why trying to give Greenie some inside on Dr. Talpaz and then > you come along and tell me that I don't kow what I'm talking about > when I was told by Zavie a few years back (and I'm really sure I could > find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told > me himself...and I wasn't personally calling Zavie a liar (sorry if > that's the way you took it Zavie and Marty) I was asking you Susan if > you thought he was a liar, sorry if you can't understand my sarcasm. > I used to find his group helpful and now all it is is people > constantly nit picking everything, what a joke anymore! Also you > didn't post my last e-mail to you yesterday so I will paste it here, > don't want to leave anything out do we? Since I'm such a mean > agressive person :) > > To: educatorsu...@aol.com > Subject: Re: about your comment on Dr. Talpaz > > Is this a threat...WOW grow up and if you feel the need to post this > so go right ahead I really don't care and if you think this would be > embarrass me you are so wrong. What a joke you are and I thought > this site was something good well with people like you "lurking" I > guess I was wrong. Like I said grow up and if you feel like > "tattling" on me to the group because apparently you know it go right > ahead :) > > > > > > > > > > On Jul 1, 1:06 pm, educatorsusan wrote: > > Dear Everyone: > > > > I need a little help here. I responded to Sheila privately to spare > > her anything embarrassing. However, she was VERY aggressive and I > > HAVE NEVER been treated like this before. I conferred with Zavie as > > well and he semi-agreed with me...let me know what you think and how I > > could do better the next time. Like I said, I have NEVER been told > > anything negative and my last email to Sheila was that I was going to > > have to bring this to the group. > > > > This is pasted from the emails sent (my original comments should be > > read from the bottom up so you are current with the whole > > conversation: > > > > Sheila: > > > > You are going to force me to send this whole correspondence to the > > CMLHOPE group. This is not even funny. I am sorry that you feel this > > way about me. > > > > Hugs, > > Susan > > > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time, > dsh...@midwaynet.net writes: > > > > Not really being polite in my book. Zavie Miller told me he was on > > the team that invented gleevec so I guess now he's lieing...whatever > > really don't
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
Hello back to you I have had cancer since 1993 and survived breast cancer, and now am fighting CML.So far Tasigna is working for me as Gleevec stopped a while ago. I feel luck as I've had this for 12 years now, and when diagnosed was only given 5We are all fighting for the same thingto live. You are an inspiration to all of us. We all need to support one another. When religion, politics etcget in the way of our supporting each other, I feel that this site is not working well. I know we all have opinions and that's fine, but lets not fight with one another over things that really don't matter. In the end, we have each other. I take one day at a time, and try so hard to be positive. I wish that for each and every one of you. Hugs to allMillie - Original Message - From: Skip Duffie To: cmlhope@googlegroups.com Sent: Friday, July 02, 2010 2:37 PM Subject: Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment Hello to the group, Jeanie I agree with you, if we have a difference of opinion then, we should take it off the group and try to make nice. I neither agree or disagree when I do see a tiff coming on I have had CML most likely the longest in the world, and the way things are going think this may be the end of it. One of you will become the longest etc etc. I look at Lottie and see a bright spirit and wish we all could be like her. Folks I have seen many very nice people who did not make it, and wish I could talk with them again, they were wonderful people trying to work through their Cancer. This past two years I have failed all those new drugs (you call them new) and now I am on nothing. I look forward to reading email on the site, every day. You have wonderful people on these groups treat them kindly, you just never know. thank you group for just being there Skip Duffie dx'ed 33 ++ years ago. -- From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Fri, July 2, 2010 12:39:53 PM Subject: Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment This group is a wonderful griyo and I have been on it since the beginning way back when it was a yahoo list. Sometimes arguments like this happen, but it doesn't in anyway diminish what this group accomplishes. It has helped me in more ways than I could say. For you to say this list is a "joke" then you just don't know much about this group and the people that on it daily. I just sent the information on Dr Talpaz and from the article it certainly looks like he was on the team that developed Gleevec. Let's all come together and fight this CML like the Warriors we are. Blessings Jeanie<3 In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, dsh...@midwaynet.net writes: You really crack me up that you posted this for everyone to see. Like I told you this does not embarass me, and no I wasn't having a bad day I was actually having an awesome day. I don't know how you don't think that the first e-mail you sent me was agressive??? All I was doing why trying to give Greenie some inside on Dr. Talpaz and then you come along and tell me that I don't kow what I'm talking about when I was told by Zavie a few years back (and I'm really sure I could find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told me himself...and I wasn't personally calling Zavie a liar (sorry if that's the way you took it Zavie and Marty) I was asking you Susan if you thought he was a liar, sorry if you can't understand my sarcasm. I used to find his group helpful and now all it is is people constantly nit picking everything, what a joke anymore! Also you didn't post my last e-mail to you yesterday so I will paste it here, don't want to leave anything out do we? Since I'm such a mean agressive person :) To: educatorsu...@aol.com Subject: Re: about your comment on Dr. Talpaz Is this a threat...WOW grow up and if you feel the need to post this so go right ahead I really don't care and if you think this would be embarrass me you are so wrong. What a joke you are and I thought this site was something good well with people like you "lurking" I guess I was wrong. Like I said grow up and if you feel like "tattling" on me to the group because apparently you know it go right ahead :) On Jul 1, 1:06 pm, educatorsusan wrote: > Dear Everyone: > > I need a little help here. I responded to Sheila privately to spare > her anything embarrassing. However, she was VERY aggressive and I > HAVE NEVER been treated like this before. I conferred with Zavie as > well and he semi-agreed with me...let me know what you think and how I > could do better the next time. Like I said, I have NEVE
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
Just to voice my opinionI agree with you Ricardo. We are here to help and support one another. Please remember this as we're all in the same boat and we need each other. Millie - Original Message - From: Ricardo Gadelha To: cmlhope@googlegroups.com Sent: Friday, July 02, 2010 3:27 PM Subject: Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment I feel so sorry about all these... My friends, please, remember that the purpose of this group is to help each other - let´s focus on this purpose. On Fri, Jul 2, 2010 at 3:45 PM, wrote: WOW, what a milestone. That gives us other folks some hope. Greenie Good luck to you. In a message dated 7/2/2010 1:37:56 P.M. Central Daylight Time, skipd_2...@yahoo.com writes: Hello to the group, Jeanie I agree with you, if we have a difference of opinion then, we should take it off the group and try to make nice. I neither agree or disagree when I do see a tiff coming on I have had CML most likely the longest in the world, and the way things are going think this may be the end of it. One of you will become the longest etc etc. I look at Lottie and see a bright spirit and wish we all could be like her. Folks I have seen many very nice people who did not make it, and wish I could talk with them again, they were wonderful people trying to work through their Cancer. This past two years I have failed all those new drugs (you call them new) and now I am on nothing. I look forward to reading email on the site, every day. You have wonderful people on these groups treat them kindly, you just never know. thank you group for just being there Skip Duffie dx'ed 33 ++ years ago. -- From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Fri, July 2, 2010 12:39:53 PM Subject: Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment This group is a wonderful griyo and I have been on it since the beginning way back when it was a yahoo list. Sometimes arguments like this happen, but it doesn't in anyway diminish what this group accomplishes. It has helped me in more ways than I could say. For you to say this list is a "joke" then you just don't know much about this group and the people that on it daily. I just sent the information on Dr Talpaz and from the article it certainly looks like he was on the team that developed Gleevec. Let's all come together and fight this CML like the Warriors we are. Blessings Jeanie<3 In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, dsh...@midwaynet.net writes: You really crack me up that you posted this for everyone to see. Like I told you this does not embarass me, and no I wasn't having a bad day I was actually having an awesome day. I don't know how you don't think that the first e-mail you sent me was agressive??? All I was doing why trying to give Greenie some inside on Dr. Talpaz and then you come along and tell me that I don't kow what I'm talking about when I was told by Zavie a few years back (and I'm really sure I could find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told me himself...and I wasn't personally calling Zavie a liar (sorry if that's the way you took it Zavie and Marty) I was asking you Susan if you thought he was a liar, sorry if you can't understand my sarcasm. I used to find his group helpful and now all it is is people constantly nit picking everything, what a joke anymore! Also you didn't post my last e-mail to you yesterday so I will paste it here, don't want to leave anything out do we? Since I'm such a mean agressive person :) To: educatorsu...@aol.com Subject: Re: about your comment on Dr. Talpaz Is this a threat...WOW grow up and if you feel the need to post this so go right ahead I really don't care and if you think this would be embarrass me you are so wrong. What a joke you are and I thought this site was something good well with people like you "lurking" I guess I was wrong. Like I said grow up and if you feel like "tattling" on me to the group because apparently you know it go right ahead :) On Jul 1, 1:06 pm, educatorsusan wrote: > Dear Everyone: > > I need a little help here. I responded to Sheila privately to spare > her anything embarrassing. However, she was VERY aggressive and I > HAVE NEVER been treated like this before. I conferred with Zavie as > well and he semi-agreed with me...let me know what you think and how I > could do better the next time. Like
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
I feel so sorry about all these... My friends, please, remember that the purpose of this group is to help each other - let´s focus on this purpose. On Fri, Jul 2, 2010 at 3:45 PM, wrote: > WOW, what a milestone. That gives us other folks some hope. Greenie > Good luck to you. > > In a message dated 7/2/2010 1:37:56 P.M. Central Daylight Time, > skipd_2...@yahoo.com writes: > > Hello to the group, > Jeanie I agree with you, if we have a difference of opinion then, we should > take it off > the group and try to make nice. I neither agree or disagree when I do see > a tiff coming on > I have had CML most likely the longest in the world, and the way things are > going > think this may be the end of it. One of you will become the longest etc > etc. I look > at Lottie and see a bright spirit and wish we all could be like her. Folks > I have seen > many very nice people who did not make it, and wish I could talk with them > again, > they were wonderful people trying to work through their Cancer. This past > two > years I have failed all those new drugs (you call them new) and now I am on > nothing. > I look forward to reading email on the site, every day. You have > wonderful people > on these groups treat them kindly, you just never know. > thank you group for just being there > Skip Duffie > dx'ed 33 ++ years ago. > > -- > *From:* "icandoall...@aol.com" > *To:* cmlhope@googlegroups.com > *Sent:* Fri, July 2, 2010 12:39:53 PM > *Subject:* Re: [CMLHope] Re: I wrote to Sheila offline to spare her > embarrassment > > This group is a wonderful griyo and I have been on it since the beginning > way back when it was a yahoo list. > Sometimes arguments like this happen, but it doesn't in anyway diminish > what this group accomplishes. It has helped me in more ways than I could > say. For you to say this list is a "joke" then you just don't know much > about this group and the people that on it daily. I just sent the > information on Dr Talpaz and from the article it certainly looks like he was > on the team that developed Gleevec. > Let's all come together and fight this CML like the Warriors we are. > Blessings > Jeanie<3 > > In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, > dsh...@midwaynet.net writes: > > You really crack me up that you posted this for everyone to see. Like > I told you this does not embarass me, and no I wasn't having a bad day > I was actually having an awesome day. I don't know how you don't > think that the first e-mail you sent me was agressive??? All I was > doing why trying to give Greenie some inside on Dr. Talpaz and then > you come along and tell me that I don't kow what I'm talking about > when I was told by Zavie a few years back (and I'm really sure I could > find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told > me himself...and I wasn't personally calling Zavie a liar (sorry if > that's the way you took it Zavie and Marty) I was asking you Susan if > you thought he was a liar, sorry if you can't understand my sarcasm. > I used to find his group helpful and now all it is is people > constantly nit picking everything, what a joke anymore! Also you > didn't post my last e-mail to you yesterday so I will paste it here, > don't want to leave anything out do we? Since I'm such a mean > agressive person :) > > To: educatorsu...@aol.com > Subject: Re: about your comment on Dr. Talpaz > > Is this a threat...WOW grow up and if you feel the need to post this > so go right ahead I really don't care and if you think this would be > embarrass me you are so wrong. What a joke you are and I thought > this site was something good well with people like you "lurking" I > guess I was wrong. Like I said grow up and if you feel like > "tattling" on me to the group because apparently you know it go right > ahead :) > > > > > > > > > > On Jul 1, 1:06 pm, educatorsusan wrote: > > Dear Everyone: > > > > I need a little help here. I responded to Sheila privately to spare > > her anything embarrassing. However, she was VERY aggressive and I > > HAVE NEVER been treated like this before. I conferred with Zavie as > > well and he semi-agreed with me...let me know what you think and how I > > could do better the next time. Like I said, I have NEVER been told > > anything negative and my last email to Sheila was that I was going to > > have to bring this to the group. > > > > This is pasted from the emails sent (my original comments should be > > read from the bottom up so you are current with the whole > > conversation: > > > > Sheila: > > > > You are going to force me to send this whole correspondence to the > > CMLHOPE group. This is not even funny. I am sorry that you feel this > > way about me. > > > > Hugs, > > Susan > > > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time, > dsh...@midwaynet.net writes: > > > > Not really being polite in my book. Zavie Miller told me he was on > > the team that
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
WOW, what a milestone. That gives us other folks some hope. Greenie Good luck to you. In a message dated 7/2/2010 1:37:56 P.M. Central Daylight Time, skipd_2...@yahoo.com writes: Hello to the group, Jeanie I agree with you, if we have a difference of opinion then, we should take it off the group and try to make nice. I neither agree or disagree when I do see a tiff coming on I have had CML most likely the longest in the world, and the way things are going think this may be the end of it. One of you will become the longest etc etc. I look at Lottie and see a bright spirit and wish we all could be like her. Folks I have seen many very nice people who did not make it, and wish I could talk with them again, they were wonderful people trying to work through their Cancer. This past two years I have failed all those new drugs (you call them new) and now I am on nothing. I look forward to reading email on the site, every day. You have wonderful people on these groups treat them kindly, you just never know. thank you group for just being there Skip Duffie dx'ed 33 ++ years ago. From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Fri, July 2, 2010 12:39:53 PM Subject: Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment This group is a wonderful griyo and I have been on it since the beginning way back when it was a yahoo list. Sometimes arguments like this happen, but it doesn't in anyway diminish what this group accomplishes. It has helped me in more ways than I could say. For you to say this list is a "joke" then you just don't know much about this group and the people that on it daily. I just sent the information on Dr Talpaz and from the article it certainly looks like he was on the team that developed Gleevec. Let's all come together and fight this CML like the Warriors we are. Blessings Jeanie<3 In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, dsh...@midwaynet.net writes: You really crack me up that you posted this for everyone to see. Like I told you this does not embarass me, and no I wasn't having a bad day I was actually having an awesome day. I don't know how you don't think that the first e-mail you sent me was agressive??? All I was doing why trying to give Greenie some inside on Dr. Talpaz and then you come along and tell me that I don't kow what I'm talking about when I was told by Zavie a few years back (and I'm really sure I could find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told me himself...and I wasn't personally calling Zavie a liar (sorry if that's the way you took it Zavie and Marty) I was asking you Susan if you thought he was a liar, sorry if you can't understand my sarcasm. I used to find his group helpful and now all it is is people constantly nit picking everything, what a joke anymore! Also you didn't post my last e-mail to you yesterday so I will paste it here, don't want to leave anything out do we? Since I'm such a mean agressive person :) To: educatorsu...@aol.com Subject: Re: about your comment on Dr. Talpaz Is this a threat...WOW grow up and if you feel the need to post this so go right ahead I really don't care and if you think this would be embarrass me you are so wrong. What a joke you are and I thought this site was something good well with people like you "lurking" I guess I was wrong. Like I said grow up and if you feel like "tattling" on me to the group because apparently you know it go right ahead :) On Jul 1, 1:06 pm, educatorsusan wrote: > Dear Everyone: > > I need a little help here. I responded to Sheila privately to spare > her anything embarrassing. However, she was VERY aggressive and I > HAVE NEVER been treated like this before. I conferred with Zavie as > well and he semi-agreed with me...let me know what you think and how I > could do better the next time. Like I said, I have NEVER been told > anything negative and my last email to Sheila was that I was going to > have to bring this to the group. > > This is pasted from the emails sent (my original comments should be > read from the bottom up so you are current with the whole > conversation: > > Sheila: > > You are going to force me to send this whole correspondence to the > CMLHOPE group. This is not even funny. I am sorry that you feel this > way about me. > > Hugs, > Susan > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time,dsh...@midwaynet.net writes: > > Not really being polite in my book. Zavie Miller told me he was on > the team that invented gleevec so I guess now he's lieing...whatever > really don't care. Like I said I'll never reply again to a post. You > came off as being a no it all bitch...sorry > > > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 7/1/2010 10:25:58 AM > To: dsh...@midwaynet.net > Subject:
Re: [CMLHope] Re: Hi Greenie
Hi Suzieq, Port Richey is nice, we checked it out put my brother wants us to move his way. Sorry, we are not looking for a house. We are looking to rent, condo, etc. No more up keep, would like to find some folks in our age group. Not much into golf, but we do like to go fishing. Grace likes just to be near water and I like to check out the babes (smile). I'll be 71 on July 22nd, my body no's it's 71 but my mind thinks it's 21. We are selling all our belongings and just taking our cloths, and of course my fishing gear. This part is for the guys, one thing that did happen to me yesterday is my wife gives me a shot of testosterone every Wednesday. I've been back on the shots for almost two months. About 30 min. after my shot I started to get fatigue and I do mean fatigue, it lasted all day into the night. Then it went away almost as fast as it started. This is the third time in the last 2 months. I know this is not a women thing but maybe one of the guys out their may have had this same thing happen to them. I use to take a gel each day but that didn't do much for me, always had a lack of energy, etc. When I first started STI-571 in 2000 my study at Northwestern I was on the shots and never had a problem, now 9 years later something new. I still think that their are things out their that they don't know what side effects and others drugs will not mix with Gleevec. I called my nurse this morning and told her what happened and her reply was take the shot before bed time and sleep through the fatigue. WOMEN, they just don't understand us men. (smile) Greenie In a message dated 7/1/2010 4:11:15 P.M. Central Daylight Time, sheila.a.wat...@gmail.com writes: Greenie: If you want to live a little further up the coast line, my mom still has her house in Port Richey, Fl.It's north of Tampa off Hwy. 19. It's not far from Hudson Beach, so that's a plus. She still wants to sell it, if you're interested. It's not on the market right now. she plans to go back down in a few months and get it ready to list once again. Her house sits on a corner lot..has nice full size treesan extremely nice retired elderly couple across the street from her that always helps with anything she needs. Course, you'll might looking more for a condo or something.and be closer to your brother. This is a wee bit back up the other way. Anyway, just wanted to let you know. Are you'll gonna be going to do this just through the winter time and then go back up North in the summer months? Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
Hello to the group, Jeanie I agree with you, if we have a difference of opinion then, we should take it off the group and try to make nice. I neither agree or disagree when I do see a tiff coming on I have had CML most likely the longest in the world, and the way things are going think this may be the end of it. One of you will become the longest etc etc. I look at Lottie and see a bright spirit and wish we all could be like her. Folks I have seen many very nice people who did not make it, and wish I could talk with them again, they were wonderful people trying to work through their Cancer. This past two years I have failed all those new drugs (you call them new) and now I am on nothing. I look forward to reading email on the site, every day. You have wonderful people on these groups treat them kindly, you just never know. thank you group for just being there Skip Duffie dx'ed 33 ++ years ago. From: "icandoall...@aol.com" To: cmlhope@googlegroups.com Sent: Fri, July 2, 2010 12:39:53 PM Subject: Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment This group is a wonderful griyo and I have been on it since the beginning way back when it was a yahoo list. Sometimes arguments like this happen, but it doesn't in anyway diminish what this group accomplishes. It has helped me in more ways than I could say. For you to say this list is a "joke" then you just don't know much about this group and the people that on it daily. I just sent the information on Dr Talpaz and from the article it certainly looks like he was on the team that developed Gleevec. Let's all come together and fight this CML like the Warriors we are. Blessings Jeanie<3 In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, dsh...@midwaynet.net writes: You really crack me up that you posted this for everyone to see. Like >I told you this does not embarass me, and no I wasn't having a bad day >I was actually having an awesome day. I don't know how you don't >think that the first e-mail you sent me was agressive??? All I was >doing why trying to give Greenie some inside on Dr. Talpaz and then >you come along and tell me that I don't kow what I'm talking about >when I was told by Zavie a few years back (and I'm really sure I could >find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told >me himself...and I wasn't personally calling Zavie a liar (sorry if >that's the way you took it Zavie and Marty) I was asking you Susan if >you thought he was a liar, sorry if you can't understand my sarcasm. >I used to find his group helpful and now all it is is people >constantly nit picking everything, what a joke anymore! Also you >didn't post my last e-mail to you yesterday so I will paste it here, >don't want to leave anything out do we? Since I'm such a mean >agressive person :) > >To: educatorsu...@aol.com >Subject: Re: about your comment on Dr. Talpaz > >Is this a threat...WOW grow up and if you feel the need to post this >so go right ahead I really don't care and if you think this would be >embarrass me you are so wrong. What a joke you are and I thought >this site was something good well with people like you "lurking" I >guess I was wrong. Like I said grow up and if you feel like >"tattling" on me to the group because apparently you know it go right >ahead :) > > > > > > > > > >On Jul 1, 1:06 pm, educatorsusan wrote: >> Dear Everyone: >> >> I need a little help here. I responded to Sheila privately to spare >> her anything embarrassing. However, she was VERY aggressive and I >> HAVE NEVER been treated like this before. I conferred with Zavie as >> well and he semi-agreed with me...let me know what you think and how I >> could do better the next time. Like I said, I have NEVER been told >> anything negative and my last email to Sheila was that I was going to >> have to bring this to the group. >> >> This is pasted from the emails sent (my original comments should be >> read from the bottom up so you are current with the whole >> conversation: >> >> Sheila: >> >> You are going to force me to send this whole correspondence to the >> CMLHOPE group. This is not even funny. I am sorry that you feel this >> way about me. >> >> Hugs, >> Susan >> >> In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight >>Time,dsh...@midwaynet.net writes: >> >> Not really being polite in my book. Zavie Miller told me he was on >> the team that invented gleevec so I guess now he's lieing...whatever >> really don't care. Like I said I'll never reply again to a post. You >> came off as being a no it all bitch...sorry >> >> >> >> ---Original Message--- >> >> From: educatorsu...@aol.com >> Date: 7/1/2010 10:25:58 AM >> To: dsh...@midwaynet.net >> Subject: Re: about your comment on Dr. Talpaz >> >> Sheila: >> >> I was being polite. I was not "ass chewing". I am a "lurker" on the >> group and keep up daily with the digests. I know that y
RE: [CMLHope] Re: Beat CML
>From the Leukemia and Lymphoma Society, U.S.: About 5,050 people in the United States are expected to be diagnosed with chronic myelogenous leukemia (CML) in 2009. It is estimated that approximately 22,475 people in the United States are living with CML (SEER, National Cancer Institute, 2009). I don't know of a resource (yet!) for a worldwide total, but the countries that have leukemia foundations tend to have the individual country numbers on their websites. _ From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of Ted Sent: Friday, July 02, 2010 9:59 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Beat CML I am sorry, Suziq,I searched the internet again ,this number is Leukemia patient. Now,there are 4,000,000 Leukemia patient in China ,and 40,000 new patients each year. Last year, i saw a news that our Prime minister Wen Jiabao have saved CML kid in a railway station.His family can not afford the Gleevic.what's more it is quite complicated for chinese rural man to apply for the free drugs. Fortunately,I got the "3+9"plan provided by the Novartis. I have a dream ,that one day Novartis can invent a drug which can cure the CML and never relapse ! God bless. PS: I am a sophomore diagnosed with this disease since Feb,2010. 2010/7/3 Suzieq Really, Ted, 4 million? That seems like such an unreasonable number to me, since I was told in the beginning when diagnosed back the last of January, '04 that this was a 'rare' form of Leukemia. And, the information given to me back then was that there were only around 5000 to 6000 cases of CML. Yes, I know there have been many more diagnosed since then, but I have to question this number, especially for one country. And, if I'm wrong, I apologize. Suziq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Re: Beat CML
I am sorry, Suziq,I searched the internet again ,this number is Leukemia patient. Now,there are 4,000,000 Leukemia patient in China ,and 40,000 new patients each year. Last year, i saw a news that our Prime minister Wen Jiabao have saved CML kid in a railway station.His family can not afford the Gleevic.what's more it is quite complicated for chinese rural man to apply for the free drugs. Fortunately,I got the "3+9"plan provided by the Novartis. I have a dream ,that one day Novartis can invent a drug which can cure the CML and never relapse ! God bless. PS: I am a sophomore diagnosed with this disease since Feb,2010. 2010/7/3 Suzieq > Really, Ted, 4 million? That seems like such an unreasonable number > to me, since I was told in the beginning when diagnosed back the last > of January, '04 that this was a 'rare' form of Leukemia. And, the > information given to me back then was that there were only around 5000 > to 6000 cases of CML. Yes, I know there have been many more diagnosed > since then, but I have to question this number, especially for one > country. And, if I'm wrong, I apologize. > > Suziq > > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
Well put, Jeanie! Tom In a message dated 7/2/2010 11:41:07 A.M. Eastern Daylight Time, icandoall...@aol.com writes: This group is a wonderful griyo and I have been on it since the beginning way back when it was a yahoo list. Sometimes arguments like this happen, but it doesn't in anyway diminish what this group accomplishes. It has helped me in more ways than I could say. For you to say this list is a "joke" then you just don't know much about this group and the people that on it daily. I just sent the information on Dr Talpaz and from the article it certainly looks like he was on the team that developed Gleevec. Let's all come together and fight this CML like the Warriors we are. Blessings Jeanie<3 In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, dsh...@midwaynet.net writes: You really crack me up that you posted this for everyone to see. Like I told you this does not embarass me, and no I wasn't having a bad day I was actually having an awesome day. I don't know how you don't think that the first e-mail you sent me was agressive??? All I was doing why trying to give Greenie some inside on Dr. Talpaz and then you come along and tell me that I don't kow what I'm talking about when I was told by Zavie a few years back (and I'm really sure I could find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told me himself...and I wasn't personally calling Zavie a liar (sorry if that's the way you took it Zavie and Marty) I was asking you Susan if you thought he was a liar, sorry if you can't understand my sarcasm. I used to find his group helpful and now all it is is people constantly nit picking everything, what a joke anymore! Also you didn't post my last e-mail to you yesterday so I will paste it here, don't want to leave anything out do we? Since I'm such a mean agressive person :) To: educatorsu...@aol.com Subject: Re: about your comment on Dr. Talpaz Is this a threat...WOW grow up and if you feel the need to post this so go right ahead I really don't care and if you think this would be embarrass me you are so wrong. What a joke you are and I thought this site was something good well with people like you "lurking" I guess I was wrong. Like I said grow up and if you feel like "tattling" on me to the group because apparently you know it go right ahead :) On Jul 1, 1:06 pm, educatorsusan wrote: > Dear Everyone: > > I need a little help here. I responded to Sheila privately to spare > her anything embarrassing. However, she was VERY aggressive and I > HAVE NEVER been treated like this before. I conferred with Zavie as > well and he semi-agreed with me...let me know what you think and how I > could do better the next time. Like I said, I have NEVER been told > anything negative and my last email to Sheila was that I was going to > have to bring this to the group. > > This is pasted from the emails sent (my original comments should be > read from the bottom up so you are current with the whole > conversation: > > Sheila: > > You are going to force me to send this whole correspondence to the > CMLHOPE group. This is not even funny. I am sorry that you feel this > way about me. > > Hugs, > Susan > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time,dsh...@midwaynet.net writes: > > Not really being polite in my book. Zavie Miller told me he was on > the team that invented gleevec so I guess now he's lieing...whatever > really don't care. Like I said I'll never reply again to a post. You > came off as being a no it all bitch...sorry > > > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 7/1/2010 10:25:58 AM > To: dsh...@midwaynet.net > Subject: Re: about your comment on Dr. Talpaz > > Sheila: > > I was being polite. I was not "ass chewing". I am a "lurker" on the > group and keep up daily with the digests. I know that you are proud > that he is your doctor. I just wanted you to be informed. "Ass > Chewing" would have been replying via the digest...I thought I was > being considerate... > > Hugs, > Susan > > In a message dated 6/30/2010 1:14:52 P.M. Eastern Daylight Time, > dsh...@midwaynet.net writes: > OK I didn't mean to get an ass chewing...I was told by someone > else in the group a few years back that he was involved SORRY, guess I > won't be posting anything again, just trying to help a fellow CMLer > along > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 6/30/2010 11:00:12 AM > To: dsh...@midwaynet.net > Subject: about your comment on Dr. Talpaz > > Sheila: > > Dr. Talpaz did not NOR did he have any input on the development of > Gleevec. His main focus was the old drug Interferon, of which he is > still experimenting with this drug to help Gleevec along. > > The only way Dr. Moshe Talpaz became involved was when at MD Anderson, > he chose to become involved since he realized his pet, Interfer
Re: [CMLHope] HHT SITE
Thanks! In a message dated 7/2/2010 11:28:21 A.M. Eastern Daylight Time, icandoall...@aol.com writes: HHT SITE _http://www.nature.com/leu/journal/v11/n5/abs/2400608a.html_ (http://www.nature.com/leu/journal/v11/n5/abs/2400608a.html) In a message dated 6/30/2010 7:41:25 A.M. Pacific Daylight Time, ted...@aol.com writes: John...what is HHT...I googled it and got lots of hits...but none related to CML. Tom in KY In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time, jl...@rogers.com writes: Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and sprycel. Now I am on HHT and I understand that ariad is the next good one. There are many others being workedJohn - Original Message - From: _myvet...@aol.com_ (mailto:myvet...@aol.com) To: _cmlh...@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Tuesday, June 29, 2010 11:42 AM Subject: Re: [CMLHope] Hi group Thanks Jeanie. In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, _icandoall...@aol.com_ (mailto:icandoall...@aol.com) writes: Hi Greenie and sorry for your problems. If you know my story you know that Gleevec quit working for me after 5 years. I started taking Tasigna and it only worked for 8 months and I am now on Sprycel, the last drug out there for CML. Don't worry, you can get help for the other drugs if you have to take them. I worried every time I had to change drugs but they always get paid for. Let us hope it was just a bloop in the test and pray for the best. Good luck, Jeanie<3 In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time, myvet...@aol.com writes: Hi, I've noticed the same thing about less mail. I had blood work at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let me know that cancer cells were showing up in my blood. I've been in a study beginning Feb 5, 2000 and now after all these years I'm having problems. She wants me back June 30 for more blood work, if their is no change then she wants to do a BMB. Of course she told me not to worry, yea sure. She said, their are other drugs out their that we can use. But she didn't know that I get my Gleevec for free from Northwestern. That I'm grand fathered in for life. Some of these Doctors have no idea what's going on, their in their own little world and don't have cancer. They just go to work each day, spend 3 min. with you in a room and out the door. Their are some good Doctor's out their that will listen but this one I have now, she's got to go. I'm going to ask for a different one on my next visit. Sorry lady, don't mean to hurt your feelings but you just don't understand. Greenie -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) __ Information from ESET NOD32 Antivirus, version of virus signature database 5238 (20100629) __ The message was checked by ESET NOD32 Antivirus. _http://www.eset.com_ (http://www.eset.com/) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (
[CMLHope] Re: gall bladder surgery what foods to avoid?
Jeanie: I have no idea about the foodsI do remember that after my surgery, I still had some problems and the doctor sort of made me avoid fried foods and spicy foods for about six weekssort of like they use to put people on a bland type diet who had ulcers.but that was it. Mom told me that most likely it's the "pork" products that I eat that could be upsetting me at times. I really don't know and wished I did. Yesterday we stopped to eat breakfast where I go often and I had a half order of biscuits & plain white gravy with crispy bacon & coffee. Not long (within five minutes) after I ate, I had to practically run to the bathroom. It was mostly just yellow water..this went on frequently throughout the morning and then my side starting hurting as usual. I felt a little better later on after eating some vanilla yogurt as well as a little cottage cheese. I am having a colonoscopy the 27th with "supposedly" a good lady doctor who comes out from the city, so I am hoping to finally learn what's going on. I am also going to ask about the gall bladder and foods. I decided earlier this year I had to quit blaming all my little health problems on "Gleevec", LOL!!! I have had this type of intestinal problem for a long time though. It use to be even worse & I hated to travel cause I never knew when it was going to hit me. I finally decided not to eat anything while on the road until I got to where we were going. When my mom brought this up earlier this year about it maybe being associated with my having my gall bladder out, it was like a light bulb going off in my head. Cause I was young (24) when i had that done, & I do not remember having any of this before that. Will let you know what I find out. Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Beat CML
Really, Ted, 4 million? That seems like such an unreasonable number to me, since I was told in the beginning when diagnosed back the last of January, '04 that this was a 'rare' form of Leukemia. And, the information given to me back then was that there were only around 5000 to 6000 cases of CML. Yes, I know there have been many more diagnosed since then, but I have to question this number, especially for one country. And, if I'm wrong, I apologize. Suziq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Hi group
Jeanie: Yesthat's my husband's "mantra", I do believe.."why change if what you're doing now is working" & that is kind of how I feel, too.I know your story as well as others who have been here with us @ CML Hope where Gleevec began to fail after being on it for several years. I guess I am very thankful that now, if it should begin to fail, we have many more options than we did in the beginning. So, I "thankfully" swallow that little gold pill each day & (dare I mention) "praise the Lord" for being able to see another day. (smile) I am now able to just see my Hem/Onc only twice a year & I sort of plan to make a day out of it, since it's in St. Louis and I live about 80 miles away. My mom goes with me and I make my appointments early in the day so we have time to go do things we don't normally get to do afterwords, whether it be shopping or "site" seeing such as the Botanical Garden or maybe the Zoo. Oh, and lest I forget, we always, always plan to have a nice meal somewhere special like "Adrianna's" on "The Hill"! (yummy) And, my doctor (Dr. Amanda Cashen) or her nurse, Holly, will spend all the time I need with me and answers any questions I might have. I think every doctor I've had since going up to Sitemen has been that way, they sit there and just relax after your exam and you feel free to talk to them almost about anything. LOL!!! I only had one that sort of "wearied" me a bit, but not because he didn't spend time with me or answer my questions. His name was Dr. Vig..and it never failed when I visited, sometime during the visit, he would say "I need to go check the computer about this"..LOL!!! I only had him for a little time, then my next visit I was told I would be seeing another because Dr. Vig was only taking the more seriously ill patients. My husband thought that was a good thing...it meant I was doing well. LOL!!! One thing I tell all with a serious illness or chronic disease such as what we have, you have to have a sense of humor. Look for the comical, something to make you laugh! Don't be so serious all the time & don't just sit around and focus on all the sickness. It'll drive you to depression & having this disease is depressing enough, LOL!!! Ok, I've said enough. Except for this, let's stop with the personal attacks...that isn't what this site is all about, people. Love & kindness to all, Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Beat CML
There are 4 million CML patients in China. And I believe we can beat CML in future ! Come on!!! -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
This group is a wonderful griyo and I have been on it since the beginning way back when it was a yahoo list. Sometimes arguments like this happen, but it doesn't in anyway diminish what this group accomplishes. It has helped me in more ways than I could say. For you to say this list is a "joke" then you just don't know much about this group and the people that on it daily. I just sent the information on Dr Talpaz and from the article it certainly looks like he was on the team that developed Gleevec. Let's all come together and fight this CML like the Warriors we are. Blessings Jeanie<3 In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, dsh...@midwaynet.net writes: You really crack me up that you posted this for everyone to see. Like I told you this does not embarass me, and no I wasn't having a bad day I was actually having an awesome day. I don't know how you don't think that the first e-mail you sent me was agressive??? All I was doing why trying to give Greenie some inside on Dr. Talpaz and then you come along and tell me that I don't kow what I'm talking about when I was told by Zavie a few years back (and I'm really sure I could find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told me himself...and I wasn't personally calling Zavie a liar (sorry if that's the way you took it Zavie and Marty) I was asking you Susan if you thought he was a liar, sorry if you can't understand my sarcasm. I used to find his group helpful and now all it is is people constantly nit picking everything, what a joke anymore! Also you didn't post my last e-mail to you yesterday so I will paste it here, don't want to leave anything out do we? Since I'm such a mean agressive person :) To: educatorsu...@aol.com Subject: Re: about your comment on Dr. Talpaz Is this a threat...WOW grow up and if you feel the need to post this so go right ahead I really don't care and if you think this would be embarrass me you are so wrong. What a joke you are and I thought this site was something good well with people like you "lurking" I guess I was wrong. Like I said grow up and if you feel like "tattling" on me to the group because apparently you know it go right ahead :) On Jul 1, 1:06 pm, educatorsusan wrote: > Dear Everyone: > > I need a little help here. I responded to Sheila privately to spare > her anything embarrassing. However, she was VERY aggressive and I > HAVE NEVER been treated like this before. I conferred with Zavie as > well and he semi-agreed with me...let me know what you think and how I > could do better the next time. Like I said, I have NEVER been told > anything negative and my last email to Sheila was that I was going to > have to bring this to the group. > > This is pasted from the emails sent (my original comments should be > read from the bottom up so you are current with the whole > conversation: > > Sheila: > > You are going to force me to send this whole correspondence to the > CMLHOPE group. This is not even funny. I am sorry that you feel this > way about me. > > Hugs, > Susan > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time,dsh...@midwaynet.net writes: > > Not really being polite in my book. Zavie Miller told me he was on > the team that invented gleevec so I guess now he's lieing...whatever > really don't care. Like I said I'll never reply again to a post. You > came off as being a no it all bitch...sorry > > > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 7/1/2010 10:25:58 AM > To: dsh...@midwaynet.net > Subject: Re: about your comment on Dr. Talpaz > > Sheila: > > I was being polite. I was not "ass chewing". I am a "lurker" on the > group and keep up daily with the digests. I know that you are proud > that he is your doctor. I just wanted you to be informed. "Ass > Chewing" would have been replying via the digest...I thought I was > being considerate... > > Hugs, > Susan > > In a message dated 6/30/2010 1:14:52 P.M. Eastern Daylight Time, > dsh...@midwaynet.net writes: > OK I didn't mean to get an ass chewing...I was told by someone > else in the group a few years back that he was involved SORRY, guess I > won't be posting anything again, just trying to help a fellow CMLer > along > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 6/30/2010 11:00:12 AM > To: dsh...@midwaynet.net > Subject: about your comment on Dr. Talpaz > > Sheila: > > Dr. Talpaz did not NOR did he have any input on the development of > Gleevec. His main focus was the old drug Interferon, of which he is > still experimenting with this drug to help Gleevec along. > > The only way Dr. Moshe Talpaz became involved was when at MD Anderson, > he chose to become involved since he realized his pet, Interferon, was > going nowhere fast!!! This is the scoop! > > I did not want to embarrass you in front of the group so I am choosing
[CMLHope] Information on Dr Talpaz
Found this online about Dr Talpaz Moshe Talpaz, M.D. Associate Director of Translational Research and Alexander J. Trotman Professor of Leukemia researchMoshe Talpaz, M.D., Associate Chief, Division of Hematology/Oncology, is a leading clinical investigator in hematologic malignancies. Dr. Talpaz focuses on the treatment of chronic myelogenous leukemia (CML) and brings special expertise in immunotherapy, cytokines and biologic response modifiers. Internationally known for his role in the development of targeted cancer therapeutics, Dr. Talpaz pioneered the study of interferon in CML, which was the first line therapy for CML until the introduction of STI571 (Gleevec). As a pivotal member of the team that developed Gleevec, Dr. Talpaz was instrumental in bringing to market one of the most effective targeted treatments used to date in cancer care. As a leader in the development of novel therapeutics, Dr. Talpaz has unique experience in the building of Phase I clinical trial programs. In addition to expanding U-M’s program in hematologic malignances, he will be establishing a Phase I therapeutics program at the Cancer Center. Dr. Talpaz joined U-M in 2006, from M.D. Anderson Cancer Center in Houston, where he was professor of medicine and held the David Bruton Chair for Cancer Research. He has authored or co-authored nearly 400 articles in top national journals and textbooks, and is a member of the American Society of Hematology and the NCCN Chronic Myelogenous Leukemia Guidelines Panel. In a message dated 7/1/2010 11:06:40 A.M. Pacific Daylight Time, educatorsu...@aol.com writes: Dear Everyone: I need a little help here. I responded to Sheila privately to spare her anything embarrassing. However, she was VERY aggressive and I HAVE NEVER been treated like this before. I conferred with Zavie as well and he semi-agreed with me...let me know what you think and how I could do better the next time. Like I said, I have NEVER been told anything negative and my last email to Sheila was that I was going to have to bring this to the group. This is pasted from the emails sent (my original comments should be read from the bottom up so you are current with the whole conversation: Sheila: You are going to force me to send this whole correspondence to the CMLHOPE group. This is not even funny. I am sorry that you feel this way about me. Hugs, Susan In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time, dsh...@midwaynet.net writes: Not really being polite in my book. Zavie Miller told me he was on the team that invented gleevec so I guess now he's lieing...whatever really don't care. Like I said I'll never reply again to a post. You came off as being a no it all bitch...sorry ---Original Message--- From: educatorsu...@aol.com Date: 7/1/2010 10:25:58 AM To: dsh...@midwaynet.net Subject: Re: about your comment on Dr. Talpaz Sheila: I was being polite. I was not "ass chewing". I am a "lurker" on the group and keep up daily with the digests. I know that you are proud that he is your doctor. I just wanted you to be informed. "Ass Chewing" would have been replying via the digest...I thought I was being considerate... Hugs, Susan In a message dated 6/30/2010 1:14:52 P.M. Eastern Daylight Time, dsh...@midwaynet.net writes: OK I didn't mean to get an ass chewing...I was told by someone else in the group a few years back that he was involved SORRY, guess I won't be posting anything again, just trying to help a fellow CMLer along ---Original Message--- From: educatorsu...@aol.com Date: 6/30/2010 11:00:12 AM To: dsh...@midwaynet.net Subject: about your comment on Dr. Talpaz Sheila: Dr. Talpaz did not NOR did he have any input on the development of Gleevec. His main focus was the old drug Interferon, of which he is still experimenting with this drug to help Gleevec along. The only way Dr. Moshe Talpaz became involved was when at MD Anderson, he chose to become involved since he realized his pet, Interferon, was going nowhere fast!!! This is the scoop! I did not want to embarrass you in front of the group so I am choosing to just email you privately. I just thought I would give you a little bit of history. This does not make Dr. Talpaz in my opinion any less of a doctor...BUT he had NO INVOLVEMENT in the trials with Gleevec. Hugs, Susan Rosenthal AGAIN, please advise me as to how to handle this in the future...just reply to the group instead of individually? I am just assuming that Sheila had a very bad day! Hugs, Susan Rosenthal Miami, Florida dx. January 8th, 2003 Began Gleevec: 4/10/2003 Ceased Gleevec: 4/21/2003 "Rebegan" Gleevec: 4/25/2003 Tranfusion dependent: May 2004-November 2005 Gleevec reduced to 400mg: 8/2004 Gleevec reduced to 300mg: 8/2005 Gleevec reduced to 200/300 alternating days: November 7, 2006 to present day except now I am taking 250 e
[CMLHope] HHT SITE
HHT SITE _http://www.nature.com/leu/journal/v11/n5/abs/2400608a.html_ (http://www.nature.com/leu/journal/v11/n5/abs/2400608a.html) In a message dated 6/30/2010 7:41:25 A.M. Pacific Daylight Time, ted...@aol.com writes: John...what is HHT...I googled it and got lots of hits...but none related to CML. Tom in KY In a message dated 6/29/2010 8:59:26 P.M. Eastern Daylight Time, jl...@rogers.com writes: Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and sprycel. Now I am on HHT and I understand that ariad is the next good one. There are many others being workedJohn - Original Message - From: _myvet...@aol.com_ (mailto:myvet...@aol.com) To: _cmlh...@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Tuesday, June 29, 2010 11:42 AM Subject: Re: [CMLHope] Hi group Thanks Jeanie. In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, _icandoall...@aol.com_ (mailto:icandoall...@aol.com) writes: Hi Greenie and sorry for your problems. If you know my story you know that Gleevec quit working for me after 5 years. I started taking Tasigna and it only worked for 8 months and I am now on Sprycel, the last drug out there for CML. Don't worry, you can get help for the other drugs if you have to take them. I worried every time I had to change drugs but they always get paid for. Let us hope it was just a bloop in the test and pray for the best. Good luck, Jeanie<3 In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time, myvet...@aol.com writes: Hi, I've noticed the same thing about less mail. I had blood work at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let me know that cancer cells were showing up in my blood. I've been in a study beginning Feb 5, 2000 and now after all these years I'm having problems. She wants me back June 30 for more blood work, if their is no change then she wants to do a BMB. Of course she told me not to worry, yea sure. She said, their are other drugs out their that we can use. But she didn't know that I get my Gleevec for free from Northwestern. That I'm grand fathered in for life. Some of these Doctors have no idea what's going on, their in their own little world and don't have cancer. They just go to work each day, spend 3 min. with you in a room and out the door. Their are some good Doctor's out their that will listen but this one I have now, she's got to go. I'm going to ask for a different one on my next visit. Sorry lady, don't mean to hurt your feelings but you just don't understand. Greenie -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) __ Information from ESET NOD32 Antivirus, version of virus signature database 5238 (20100629) __ The message was checked by ESET NOD32 Antivirus. _http://www.eset.com_ (http://www.eset.com/) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Goog
[CMLHope] new drugs for cml?
Hi John Have any of these drugs been okd yet? Jeanie<3 In a message dated 6/30/2010 1:06:42 A.M. Pacific Daylight Time, fanruif...@gmail.com writes: Hi there I am a sophomore in china. I diagnosed with CML on Feb 18th,2010. And i started to take Gleevic since Feb 21st. Fortunately now everything is ok and the drugs work on me quit well but the price of Gleevic is too high for an average people in china. Sent from my iPhone 在 Jun 30, 2010，8:59 AM，"john barrons" <_jl...@rogers.com_ (mailto:jl...@rogers.com) > 写到： Hi there. I have had cml for 10 and 1/2 yearsnow. Failed gleevec, and sprycel. Now I am on HHT and I understand that ariad is the next good one. There are many others being workedJohn - Original Message - From: _myvet...@aol.com_ (mailto:myvet...@aol.com) To: _cmlh...@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Tuesday, June 29, 2010 11:42 AM Subject: Re: [CMLHope] Hi group Thanks Jeanie. In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, _icandoall...@aol.com_ (mailto:icandoall...@aol.com) writes: Hi Greenie and sorry for your problems. If you know my story you know that Gleevec quit working for me after 5 years. I started taking Tasigna and it only worked for 8 months and I am now on Sprycel, the last drug out there for CML. Don't worry, you can get help for the other drugs if you have to take them. I worried every time I had to change drugs but they always get paid for. Let us hope it was just a bloop in the test and pray for the best. Good luck, Jeanie<3 In a message dated 6/28/2010 8:14:19 P.M. Pacific Daylight Time, _myvet...@aol.com_ (mailto:myvet...@aol.com) writes: Hi, I've noticed the same thing about less mail. I had blood work at Northwestern Hosp. in Chicago June 2nd. and my new Doctor called me to let me know that cancer cells were showing up in my blood. I've been in a study beginning Feb 5, 2000 and now after all these years I'm having problems. She wants me back June 30 for more blood work, if their is no change then she wants to do a BMB. Of course she told me not to worry, yea sure. She said, their are other drugs out their that we can use. But she didn't know that I get my Gleevec for free from Northwestern. That I'm grand fathered in for life. Some of these Doctors have no idea what's going on, their in their own little world and don't have cancer. They just go to work each day, spend 3 min. with you in a room and out the door. Their are some good Doctor's out their that will listen but this one I have now, she's got to go. I'm going to ask for a different one on my next visit. Sorry lady, don't mean to hurt your feelings but you just don't understand. Greenie -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _cmlh...@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _cmlhope-unsubscr...@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) __ Information from ESET NOD32 Antivirus, version of virus signature database 5238 (20100629) __ The message was checked by ESET NOD32 Antivirus. _http://www.eset.com_ (http://www.eset.com/) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _cmlh...@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _cmlhope-unsubscr...@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _cmlh...@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _cmlhope-unsubscr...@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send em
Re: [CMLHope] Re: Hi group
Oh also, My cholesterol went way down on Gleevec. In a message dated 6/25/2010 9:43:30 A.M. Pacific Daylight Time, sheila.a.wat...@gmail.com writes: I've not been getting anything either, Greenie. Like Martin says, you probably just need to give it a good "cleaning" to get rid of some unwanted "malware" or "trogan" that you picked up somewhere. It's easy to do that without realizing. I use to use "Noadware" which cleaned off all the spyware cookies and such, but since having a problem with a program that was on my computer that interfered with internet service and just gave me general grief period, my son cleaned everything off and added "Malwarebytes Anti-malware" as well as "Avast! Anti-virus" and I just use all that frequently. It won't let me activate the Noadware program anymore, but it was a good program to use and simple. "AVG" is also a very good one to use as well. I use Facebook and have no problem. Just set your privacy controls and also "block" what or who you do not want. I do not know of any other CML'ers on there except maybe a couple from other countries. I, too, miss all our fellow CML survivors that use to post frequently here. It helped us all tremendously. I do hope they are doing well. I finally broke down and visited my doctor's nurse practitioner (primary doc.) who I was told is better than he is. I have to agree, I liked her very well. Told her what was going on with the pain in my side and wanting to schedule the colonoscopy to see what is going on, so it is set for the end of July. Everyone still thinks it's most likely Diversticulitis, which I do too. Along with not having a gall bladder. All the years since having that removed, I never once thought about my intestinal problems stemming from that. LOL!!! My mom being a nurse for many years (she's 81 now) came up with that saying that it seems that doctors quit giving their patients information on what not to eat after having their gall bladders removed like they did back in the earlier years such as fifties and sixties when she worked for our family doctor in one of the local clinics and hospitals. I had mine removed in '77 and they never told me one thing about certain foods causing digestive & intestinal problems afterwards. Oh well, we live and learn, don't we? She did run blood work, and all really looked good. My total cholesterol is down to 190, I can remember back in fall of 2004 after being on Gleevec since Feb. of that year, it ran around 356 with my good being a high number. The reason he let me work on it through diet and stuff..but, I am pretty sure it's the Gleevec that has brought it down and under control. The only red flag I saw was my platelets were 182 and I need to get my last blood work done at my Hem./Onc. last Feb., cause I thought they were up around 240 something. Not sure why they've dropped like that if it's true. I see her the 12th of July, so am not concerned. If there is a problem, I know she'll catch it. Everyone have a great day. Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] gall bladder surgery what foods to avoid?
Hi Suzieq, I had my gall bladder removed also and have always suffered with a pain in my right side under my ribs. I believe it stems from the gall bladder surgery but don't know for sure. I have had CT scans with nothing showing up at all. I didn't know you weren't supposed to eat certain fools either. What foods are you supposed to avoid? Thanks Jeanie<3 In a message dated 6/25/2010 9:43:30 A.M. Pacific Daylight Time, sheila.a.wat...@gmail.com writes: I've not been getting anything either, Greenie. Like Martin says, you probably just need to give it a good "cleaning" to get rid of some unwanted "malware" or "trogan" that you picked up somewhere. It's easy to do that without realizing. I use to use "Noadware" which cleaned off all the spyware cookies and such, but since having a problem with a program that was on my computer that interfered with internet service and just gave me general grief period, my son cleaned everything off and added "Malwarebytes Anti-malware" as well as "Avast! Anti-virus" and I just use all that frequently. It won't let me activate the Noadware program anymore, but it was a good program to use and simple. "AVG" is also a very good one to use as well. I use Facebook and have no problem. Just set your privacy controls and also "block" what or who you do not want. I do not know of any other CML'ers on there except maybe a couple from other countries. I, too, miss all our fellow CML survivors that use to post frequently here. It helped us all tremendously. I do hope they are doing well. I finally broke down and visited my doctor's nurse practitioner (primary doc.) who I was told is better than he is. I have to agree, I liked her very well. Told her what was going on with the pain in my side and wanting to schedule the colonoscopy to see what is going on, so it is set for the end of July. Everyone still thinks it's most likely Diversticulitis, which I do too. Along with not having a gall bladder. All the years since having that removed, I never once thought about my intestinal problems stemming from that. LOL!!! My mom being a nurse for many years (she's 81 now) came up with that saying that it seems that doctors quit giving their patients information on what not to eat after having their gall bladders removed like they did back in the earlier years such as fifties and sixties when she worked for our family doctor in one of the local clinics and hospitals. I had mine removed in '77 and they never told me one thing about certain foods causing digestive & intestinal problems afterwards. Oh well, we live and learn, don't we? She did run blood work, and all really looked good. My total cholesterol is down to 190, I can remember back in fall of 2004 after being on Gleevec since Feb. of that year, it ran around 356 with my good being a high number. The reason he let me work on it through diet and stuff..but, I am pretty sure it's the Gleevec that has brought it down and under control. The only red flag I saw was my platelets were 182 and I need to get my last blood work done at my Hem./Onc. last Feb., cause I thought they were up around 240 something. Not sure why they've dropped like that if it's true. I see her the 12th of July, so am not concerned. If there is a problem, I know she'll catch it. Everyone have a great day. Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
RE: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
Here we go again!!! > Date: Fri, 2 Jul 2010 07:15:08 -0700 > Subject: [CMLHope] Re: I wrote to Sheila offline to spare her embarrassment > From: dsh...@midwaynet.net > To: cmlhope@googlegroups.com > > You really crack me up that you posted this for everyone to see. Like > I told you this does not embarass me, and no I wasn't having a bad day > I was actually having an awesome day. I don't know how you don't > think that the first e-mail you sent me was agressive??? All I was > doing why trying to give Greenie some inside on Dr. Talpaz and then > you come along and tell me that I don't kow what I'm talking about > when I was told by Zavie a few years back (and I'm really sure I could > find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told > me himself...and I wasn't personally calling Zavie a liar (sorry if > that's the way you took it Zavie and Marty) I was asking you Susan if > you thought he was a liar, sorry if you can't understand my sarcasm. > I used to find his group helpful and now all it is is people > constantly nit picking everything, what a joke anymore! Also you > didn't post my last e-mail to you yesterday so I will paste it here, > don't want to leave anything out do we? Since I'm such a mean > agressive person :) > > To: educatorsu...@aol.com > Subject: Re: about your comment on Dr. Talpaz > > Is this a threat...WOW grow up and if you feel the need to post this > so go right ahead I really don't care and if you think this would be > embarrass me you are so wrong. What a joke you are and I thought > this site was something good well with people like you "lurking" I > guess I was wrong. Like I said grow up and if you feel like > "tattling" on me to the group because apparently you know it go right > ahead :) > > > > > > > > > > On Jul 1, 1:06 pm, educatorsusan wrote: > > Dear Everyone: > > > > I need a little help here. I responded to Sheila privately to spare > > her anything embarrassing. However, she was VERY aggressive and I > > HAVE NEVER been treated like this before. I conferred with Zavie as > > well and he semi-agreed with me...let me know what you think and how I > > could do better the next time. Like I said, I have NEVER been told > > anything negative and my last email to Sheila was that I was going to > > have to bring this to the group. > > > > This is pasted from the emails sent (my original comments should be > > read from the bottom up so you are current with the whole > > conversation: > > > > Sheila: > > > > You are going to force me to send this whole correspondence to the > > CMLHOPE group. This is not even funny. I am sorry that you feel this > > way about me. > > > > Hugs, > > Susan > > > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight > > Time,dsh...@midwaynet.net writes: > > > > Not really being polite in my book. Zavie Miller told me he was on > > the team that invented gleevec so I guess now he's lieing...whatever > > really don't care. Like I said I'll never reply again to a post. You > > came off as being a no it all bitch...sorry > > > > > > > > ---Original Message--- > > > > From: educatorsu...@aol.com > > Date: 7/1/2010 10:25:58 AM > > To: dsh...@midwaynet.net > > Subject: Re: about your comment on Dr. Talpaz > > > > Sheila: > > > > I was being polite. I was not "ass chewing". I am a "lurker" on the > > group and keep up daily with the digests. I know that you are proud > > that he is your doctor. I just wanted you to be informed. "Ass > > Chewing" would have been replying via the digest...I thought I was > > being considerate... > > > > Hugs, > > Susan > > > > In a message dated 6/30/2010 1:14:52 P.M. Eastern Daylight Time, > > dsh...@midwaynet.net writes: > > OK I didn't mean to get an ass chewing...I was told by someone > > else in the group a few years back that he was involved SORRY, guess I > > won't be posting anything again, just trying to help a fellow CMLer > > along > > > > ---Original Message--- > > > > From: educatorsu...@aol.com > > Date: 6/30/2010 11:00:12 AM > > To: dsh...@midwaynet.net > > Subject: about your comment on Dr. Talpaz > > > > Sheila: > > > > Dr. Talpaz did not NOR did he have any input on the development of > > Gleevec. His main focus was the old drug Interferon, of which he is > > still experimenting with this drug to help Gleevec along. > > > > The only way Dr. Moshe Talpaz became involved was when at MD Anderson, > > he chose to become involved since he realized his pet, Interferon, was > > going nowhere fast!!! This is the scoop! > > > > I did not want to embarrass you in front of the group so I am choosing > > to just email you privately. > > > > I just thought I would give you a little bit of history. This does > > not make Dr. Talpaz in my opinion any less of a doctor...BUT he had NO > > INVOLVEMENT in the trials with Gleevec. > > > > Hugs, > > Susan Rosenthal > > > > AGAIN, please advise me as to
[CMLHope] Re: I wrote to Sheila offline to spare her embarrassment
You really crack me up that you posted this for everyone to see. Like I told you this does not embarass me, and no I wasn't having a bad day I was actually having an awesome day. I don't know how you don't think that the first e-mail you sent me was agressive??? All I was doing why trying to give Greenie some inside on Dr. Talpaz and then you come along and tell me that I don't kow what I'm talking about when I was told by Zavie a few years back (and I'm really sure I could find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told me himself...and I wasn't personally calling Zavie a liar (sorry if that's the way you took it Zavie and Marty) I was asking you Susan if you thought he was a liar, sorry if you can't understand my sarcasm. I used to find his group helpful and now all it is is people constantly nit picking everything, what a joke anymore! Also you didn't post my last e-mail to you yesterday so I will paste it here, don't want to leave anything out do we? Since I'm such a mean agressive person :) To: educatorsu...@aol.com Subject: Re: about your comment on Dr. Talpaz Is this a threat...WOW grow up and if you feel the need to post this so go right ahead I really don't care and if you think this would be embarrass me you are so wrong. What a joke you are and I thought this site was something good well with people like you "lurking" I guess I was wrong. Like I said grow up and if you feel like "tattling" on me to the group because apparently you know it go right ahead :) On Jul 1, 1:06 pm, educatorsusan wrote: > Dear Everyone: > > I need a little help here. I responded to Sheila privately to spare > her anything embarrassing. However, she was VERY aggressive and I > HAVE NEVER been treated like this before. I conferred with Zavie as > well and he semi-agreed with me...let me know what you think and how I > could do better the next time. Like I said, I have NEVER been told > anything negative and my last email to Sheila was that I was going to > have to bring this to the group. > > This is pasted from the emails sent (my original comments should be > read from the bottom up so you are current with the whole > conversation: > > Sheila: > > You are going to force me to send this whole correspondence to the > CMLHOPE group. This is not even funny. I am sorry that you feel this > way about me. > > Hugs, > Susan > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight > Time,dsh...@midwaynet.net writes: > > Not really being polite in my book. Zavie Miller told me he was on > the team that invented gleevec so I guess now he's lieing...whatever > really don't care. Like I said I'll never reply again to a post. You > came off as being a no it all bitch...sorry > > > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 7/1/2010 10:25:58 AM > To: dsh...@midwaynet.net > Subject: Re: about your comment on Dr. Talpaz > > Sheila: > > I was being polite. I was not "ass chewing". I am a "lurker" on the > group and keep up daily with the digests. I know that you are proud > that he is your doctor. I just wanted you to be informed. "Ass > Chewing" would have been replying via the digest...I thought I was > being considerate... > > Hugs, > Susan > > In a message dated 6/30/2010 1:14:52 P.M. Eastern Daylight Time, > dsh...@midwaynet.net writes: > OK I didn't mean to get an ass chewing...I was told by someone > else in the group a few years back that he was involved SORRY, guess I > won't be posting anything again, just trying to help a fellow CMLer > along > > ---Original Message--- > > From: educatorsu...@aol.com > Date: 6/30/2010 11:00:12 AM > To: dsh...@midwaynet.net > Subject: about your comment on Dr. Talpaz > > Sheila: > > Dr. Talpaz did not NOR did he have any input on the development of > Gleevec. His main focus was the old drug Interferon, of which he is > still experimenting with this drug to help Gleevec along. > > The only way Dr. Moshe Talpaz became involved was when at MD Anderson, > he chose to become involved since he realized his pet, Interferon, was > going nowhere fast!!! This is the scoop! > > I did not want to embarrass you in front of the group so I am choosing > to just email you privately. > > I just thought I would give you a little bit of history. This does > not make Dr. Talpaz in my opinion any less of a doctor...BUT he had NO > INVOLVEMENT in the trials with Gleevec. > > Hugs, > Susan Rosenthal > > AGAIN, please advise me as to how to handle this in the future...just > reply to the group instead of individually? I am just assuming that > Sheila had a very bad day! > > Hugs, > Susan Rosenthal > > Miami, Florida > dx. January 8th, 2003 > Began Gleevec: 4/10/2003 > Ceased Gleevec: 4/21/2003 > "Rebegan" Gleevec: 4/25/2003 > Tranfusion dependent: May 2004-November 2005 > Gleevec reduced to 400mg: 8/2004 > Gleevec reduced to 300mg: 8/2005 > Gleevec reduced to 200/300 alternating days: November 7, 2006 to > prese
