Re: [CMLHope] To Susan Zimmerman

[Suzieq]

Hey there Jeanie!  

It has been a while since I have talked to you.  We've been a part of this 
group for a very long time, haven't we? :)...

I have been taking Gleevec now for 12 years this past February.  Started 
out on 400mgs. and am now down to just taking a 100mg. tablet a day.  So 
much better, (smile).  I never had a rash of any kind while on Gleevec. 
 Would just have an itchy spot  here or there on my skin.  I first noticed 
it on upper front chestnothing showing,  just itchy skin.  Then,  it 
stopped there and was down right around the waist band of panties.  My 
husband brought home a plastic can of Monkey Powder and that really did 
great.  Also, Gold Bond for Itchy Skin works, too.  I don't seem to be 
bothered so much any more with it.  It was really weird that nothing showed 
on the skin,  it just lightly itched.   Since reducing the dosage of 
Gleevec,  the side effects don't seem to be so bad.other than the joint 
and bone pain.  Don't think I will ever get rid of that, though, at my age. 
:) 

It's good to see people like you still here, God bless you,

Suzieq

>
>
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Hi Kate,
I was on Gleevec for 5 years and it can cause every kind of rash.  I had bad 
painful rash and boils.  I found you just have to treat the side effects as 
best you can. I was given hydrocortizone cream and used home treatments also. 
One side effect can end and then another will pop up.  Just be patient and try 
to get relief when you can. God bless you. 

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Apr 5, 2016, at 11:14 PM, bkbarney via CMLHope  
> wrote:
> 
> Dear Kate,
> 
> Sorry it has taken a a little while for me to write to you, but I want to 
> welcome you to our groupalong with all the others here, it is a very 
> special place to give and receive support...so do stay close, and hopefully, 
> we can all continue to learn from one another...regarding your question..I 
> was diagnosed at 48, and several others here are younger than me, so I am not 
> sure if your skin conditions are related to age verses medication side 
> effects or/ and toxicity...I know that sometimes changing doses helped as 
> long as CML is managed well...also, sometimes, if it is in response to a new 
> medication uptake it can be an allergic response, or even an auto immune 
> response..which sometimes is helped with short term steroids..of course they 
> can cause their own side effects..as it is medication induced, the rashes, 
> raised bumps, even large red raised look like acne but are not...areas, are a 
> part of the side effect profiles of several of the cml meds...I would keep 
> working with your doc around this, don't hesitate to ask questions, like has 
> he or she ever seen this before with gleevec etc...??Has it been successfully 
> been treated on others???with what???
> 
> Take care, my best, 18
> s
> 
> 
> Beth
> 
> 
> -Original Message-
> From: kathy walls 
> To: cmlhope 
> Sent: Tue, Mar 29, 2016 12:42 pm
> Subject: Re: [CMLHope] To Susan Zimmerman
> 
> Hi all,
> I am real new to the CML world only 14 months out from diagnosis. I have 
> learned a lot from reading posts here. It's been helpful.  My dr is a CML dr 
> and I've had very good results medicine wise but he has no answers for side 
> effects Specially  bad acne break outs. All he says it's because I'm on 
> the young side to have developed CML.  I'm almost 57. Been seeing a 
> dermatologist but results have been minimal. Anyone out there got any 
> suggestions? I'm taking 200mg daily of gleevec. Was on 400 of tasigna which 
> was hell on earth. Anything would be helpful.
> 18's
> Kate
> 
> Sent from my iPhone
> 
> On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Marcie, 
> So glad the gall bladder settled down. I give our God ALL the credit for 
> that! So sorry to hear about your husband's issues as well. Is he doing ok 
> now? Not sposed to take turns at the hospital. How will you ever get in a 
> vacation? Blessings at Passover time.
> Love, 
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Thanks, Susan. I missed an appointment for blood labs because my husband was 
> in the hospital and having complications from his medical issues. No one to 
> blame but myself. 
> 
> The pain on side has gone so at least for now I'm not going to worry about 
> it. I'll be following up this week with my doctor for more labs and tests. 
> 
> So glad you are doing well. This is the season for miracles and I wish you 
> and Roy and the family a happy and very blessed Easter. 
> 
> Marcie 
> 
> Sent from my iPhone
> 
> On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> So sorry to hear about a hospital stay. These are not places we want to hang 
> outlow red cells does not sound good, but I'm sure you have great docs. 
> Was that low a gradual thing or quick? Seems they should or could have caught 
> it before you bottomed out if it was gradual.
> I sure hope it turns out the gallbladder is fine. He still heals today so 
> I'll pray! You could have gotten time off work in an easier way, I'm sure.
> Hope you gets lots of extra tlc and consider this part of it!!!  You are 
> special to me and many others on here!  Keep us updated!!!
> 18's and fight on,
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given eve

Re: [CMLHope] To Susan Zimmerman

[bkbarney via CMLHope]

Dear Kate,


Sorry it has taken a a little while for me to write to you, but I want to 
welcome you to our groupalong with all the others here, it is a very 
special place to give and receive support...so do stay close, and hopefully, we 
can all continue to learn from one another...regarding your question..I was 
diagnosed at 48, and several others here are younger than me, so I am not sure 
if your skin conditions are related to age verses medication side effects or/ 
and toxicity...I know that sometimes changing doses helped as long as CML is 
managed well...also, sometimes, if it is in response to a new medication uptake 
it can be an allergic response, or even an auto immune response..which 
sometimes is helped with short term steroids..of course they can cause their 
own side effects..as it is medication induced, the rashes, raised bumps, even 
large red raised look like acne but are not...areas, are a part of the side 
effect profiles of several of the cml meds...I would keep working with your doc 
around this, don't hesitate to ask questions, like has he or she ever seen this 
before with gleevec etc...??Has it been successfully been treated on 
others???with what???


Take care, my best, 18
s




Beth



-Original Message-
From: kathy walls 
To: cmlhope 
Sent: Tue, Mar 29, 2016 12:42 pm
Subject: Re: [CMLHope] To Susan Zimmerman



Hi all,
I am real new to the CML world only 14 months out from diagnosis. I have 
learned a lot from reading posts here. It's been helpful.  My dr is a CML dr 
and I've had very good results medicine wise but he has no answers for side 
effects Specially  bad acne break outs. All he says it's because I'm on the 
young side to have developed CML.  I'm almost 57. Been seeing a dermatologist 
but results have been minimal. Anyone out there got any suggestions? I'm taking 
200mg daily of gleevec. Was on 400 of tasigna which was hell on earth. Anything 
would be helpful.
18's
Kate

Sent from my iPhone

On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope 
 wrote:



Marcie, 
So glad the gall bladder settled down. I give our God ALL the credit for that! 
So sorry to hear about your husband's issues as well. Is he doing ok now? Not 
sposed to take turns at the hospital. How will you ever get in a vacation? 
Blessings at Passover time.
Love, 


Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11




On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope 
 wrote:



Thanks, Susan. I missed an appointment for blood labs because my husband was in 
the hospital and having complications from his medical issues. No one to blame 
but myself. 


The pain on side has gone so at least for now I'm not going to worry about it. 
I'll be following up this week with my doctor for more labs and tests. 


So glad you are doing well. This is the season for miracles and I wish you and 
Roy and the family a happy and very blessed Easter. 


Marcie 

Sent from my iPhone


On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope 
 wrote:



So sorry to hear about a hospital stay. These are not places we want to hang 
outlow red cells does not sound good, but I'm sure you have great docs. Was 
that low a gradual thing or quick? Seems they should or could have caught it 
before you bottomed out if it was gradual. 
I sure hope it turns out the gallbladder is fine. He still heals today so I'll 
pray! You could have gotten time off work in an easier way, I'm sure.
Hope you gets lots of extra tlc and consider this part of it!!!  You are 
special to me and many others on here!  Keep us updated!!!

18's and fight on,
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope 
 wrote:



Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 


I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!


Marcie




Sent from my iPhone


On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:



Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Re: [CMLHope] To Susan Zimmerman

[ICANDOALLTTC via CMLHope]

Hi and yes I use bag balm.  My son bought it at a farm store.
I had rashes, boils, and you name it while on Gleevec.
It works really well.
My doctor gave me some hydrocortizone cream.
Try anything you can and see what works for you.
Mile soda water solution is good also.
Blessings
Jeanie<3
 
 
In a message dated 3/31/2016 1:19:35 P.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 
Hi Kate,


I am sad that you have to be here, but at the same time I am also  glad 
that your here. Sad you have CML but glad because you will be able to  learn 
many things from everyone of us that are here. 


Do you know or possibly know of anyone that have used Bag Balm? Well you  
actually now know of someone that did.. Me.


If you have any rashes or worse on your body, as long as they are not in  
places that come in contact with your clothing because this is very greasy 
and  you don't want it on any of your clothing. 


When I had my bone marrow transplant 27 years ago I had to undergo total  
body radiation after my procedure was completed my body suffered from severe  
burns. My toes were black my ears, nose, fingers, head, hands and most  
other parts, even the bottoms of my feet, and that was the worst of it because  
I was living in a plastic 6 by 9 bubble in the hospital at the time and  
all of the radiation had to be finished at the time. 


They were not even allowed to enter this bubble because it would expose  me 
to any types of bacteria, or mold or any types of viruses, so I had to  
survive living in pain until I was finally able to get out of  there.


They tried many different things like Kerry oil or lotion but it only  
worked very little to heal all of the burns. A friend of mine told me to try  
Bag Balm so I tried it and it finally worked!


Bag Balm comes in small square green tins usually in either 1 ounce or 8  
ounce sizes. They are very inexpensive usually between $6 to $8. They will  
last over 27 years or more providing that you don't touch it with your 
fingers  but a Q-tip would be fine because you only need a very small amount.


I have had my 8 ounce tin for over 27 years now and still use it from  time 
to time and about one half is still left, so you may just wand the one  
ounce tin, but since the price between the 8 ounce and one ounce are only a  
couple of dollars then you make up your mind.


Remember it was and still is used for the otters of cows usually in the  
winter time when they are chapped.






http://www.amazon.com/s/?ie=UTF8&keywords=vermont+original+bag+balm&tag=goog
hydr-20&index=aps&hvadid=92441825437&hvpos=1t2&hvexid=&hvnetw=s&hvrand=80041
28417658345&hvpone=&hvptwo=&hvqmt=b&hvdev=c&ref=pd_sl_6tq5alc55b_b_p10





On Tue, Mar 29, 2016 at 11:53 PM, Richard H <_rbhuffman1@gmail.com_ 
(mailto:rbhuffm...@gmail.com) > wrote:

I only know that some CMLers have a rash but not acne.   Most I have heard 
of treat with an anti-itch creme.  I am sure others  will be able to tell 
you more.  I haven't had one, just remember the  talk.

Welcome to the club that no one wants to be a member of.   I have been 
around for 14 years 

Richard H.

On Tuesday, March  29, 2016 at 1:42:02 PM UTC-5, candles wrote:  
 
Hi all,
I am real new to the CML world only 14 months out from diagnosis. I  have 
learned a lot from reading posts here. It's been helpful.  My dr  is a CML dr 
and I've had very good results medicine wise but he has no  answers for 
side effects Specially  bad acne break outs. All he  says it's because I'm 
on the young side to have developed CML.  I'm  almost 57. Been seeing a 
dermatologist but results have been minimal.  Anyone out there got any 
suggestions? I'm taking 200mg daily of gleevec.  Was on 400 of tasigna which 
was hell 
on earth. Anything would be  helpful.
18's
Kate

Sent from my iPhone

On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope 
 wrote:




Marcie, 
So glad the gall bladder settled down. I give our  God ALL the credit for 
that! So sorry to hear about your husband's  issues as well. Is he doing ok 
now? Not sposed to take turns at the  hospital. How will you ever get in a 
vacation? Blessings at Passover  time. 
Love, 

Susan F. Zimmerman
"All who humble themselves before the  Lord shall be given every blessing, 
and shall have wonderful peace."  Ps.37:11


 

On Saturday,  March 26, 2016 'Marcie Goodman' via CMLHope 
  wrote:


 
Thanks, Susan. I missed an appointment for blood labs because my  husband 
was in the hospital and having complications from his medical  issues. No one 
to blame but myself. 


The pain on side has gone so at least for now I'm not going to  worry about 
it. I'll be following up this week with my doctor for more  labs and tests. 


So glad you are doing well. This is the season for miracles and I  wish you 
and Roy and the family a happy and very blessed  Easter. 


Marcie 

Sent from my iPhone


On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope  
 wrote:

Re: [CMLHope] To Susan Zimmerman

[Marty Gartenberg]

Hi Kate,

I am sad that you have to be here, but at the same time I am also glad that
your here. Sad you have CML but glad because you will be able to learn many
things from everyone of us that are here.

Do you know or possibly know of anyone that have used Bag Balm? Well you
actually now know of someone that did.. Me.

If you have any rashes or worse on your body, as long as they are not in
places that come in contact with your clothing because this is very greasy
and you don't want it on any of your clothing.

When I had my bone marrow transplant 27 years ago I had to undergo total
body radiation after my procedure was completed my body suffered from
severe burns. My toes were black my ears, nose, fingers, head, hands and
most other parts, even the bottoms of my feet, and that was the worst of it
because I was living in a plastic 6 by 9 bubble in the hospital at the time
and all of the radiation had to be finished at the time.

They were not even allowed to enter this bubble because it would expose me
to any types of bacteria, or mold or any types of viruses, so I had to
survive living in pain until I was finally able to get out of there.

They tried many different things like Kerry oil or lotion but it only
worked very little to heal all of the burns. A friend of mine told me to
try Bag Balm so I tried it and it finally worked!

Bag Balm comes in small square green tins usually in either 1 ounce or 8
ounce sizes. They are very inexpensive usually between $6 to $8. They will
last over 27 years or more providing that you don't touch it with your
fingers but a Q-tip would be fine because you only need a very small amount.

I have had my 8 ounce tin for over 27 years now and still use it from time
to time and about one half is still left, so you may just wand the one
ounce tin, but since the price between the 8 ounce and one ounce are only a
couple of dollars then you make up your mind.

Remember it was and still is used for the otters of cows usually in the
winter time when they are chapped.



http://www.amazon.com/s/?ie=UTF8&keywords=vermont+original+bag+balm&tag=googhydr-20&index=aps&hvadid=92441825437&hvpos=1t2&hvexid=&hvnetw=s&hvrand=8004128417658345&hvpone=&hvptwo=&hvqmt=b&hvdev=c&ref=pd_sl_6tq5alc55b_b_p10



On Tue, Mar 29, 2016 at 11:53 PM, Richard H  wrote:

> I only know that some CMLers have a rash but not acne.  Most I have heard
> of treat with an anti-itch creme.  I am sure others will be able to tell
> you more.  I haven't had one, just remember the talk.
>
> Welcome to the club that no one wants to be a member of.  I have been
> around for 14 years
>
> Richard H.
>
> On Tuesday, March 29, 2016 at 1:42:02 PM UTC-5, candles wrote:
>>
>> Hi all,
>> I am real new to the CML world only 14 months out from diagnosis. I have
>> learned a lot from reading posts here. It's been helpful.  My dr is a CML
>> dr and I've had very good results medicine wise but he has no answers for
>> side effects Specially  bad acne break outs. All he says it's because
>> I'm on the young side to have developed CML.  I'm almost 57. Been seeing a
>> dermatologist but results have been minimal. Anyone out there got any
>> suggestions? I'm taking 200mg daily of gleevec. Was on 400 of tasigna which
>> was hell on earth. Anything would be helpful.
>> 18's
>> Kate
>>
>> Sent from my iPhone
>>
>> On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>> Marcie,
>> So glad the gall bladder settled down. I give our God ALL the credit for
>> that! So sorry to hear about your husband's issues as well. Is he doing ok
>> now? Not sposed to take turns at the hospital. How will you ever get in a
>> vacation? Blessings at Passover time.
>>
>> Love,
>>
>> Susan F. Zimmerman
>> "All who humble themselves before the Lord shall be given every blessing,
>> and shall have wonderful peace." Ps.37:11
>>
>>
>> --
>> On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>> Thanks, Susan. I missed an appointment for blood labs because my husband
>> was in the hospital and having complications from his medical issues. No
>> one to blame but myself.
>>
>> The pain on side has gone so at least for now I'm not going to worry
>> about it. I'll be following up this week with my doctor for more labs and
>> tests.
>>
>> So glad you are doing well. This is the season for miracles and I wish
>> you and Roy and the family a happy and very blessed Easter.
>>
>> Marcie
>>
>> Sent from my iPhone
>>
>> On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>> So sorry to hear about a hospital stay. These are not places we want to
>> hang outlow red cells does not sound good, but I'm sure you have great
>> docs. Was that low a gradual thing or quick? Seems they should or could
>> have caught it before you bottomed out if it was gradual.
>>
>> I sure hope it turns out the gallbladder is fine. He s

Re: [CMLHope] To Susan Zimmerman

[Richard H]

I only know that some CMLers have a rash but not acne.  Most I have heard 
of treat with an anti-itch creme.  I am sure others will be able to tell 
you more.  I haven't had one, just remember the talk.

Welcome to the club that no one wants to be a member of.  I have been 
around for 14 years 

Richard H.

On Tuesday, March 29, 2016 at 1:42:02 PM UTC-5, candles wrote:
>
> Hi all,
> I am real new to the CML world only 14 months out from diagnosis. I have 
> learned a lot from reading posts here. It's been helpful.  My dr is a CML 
> dr and I've had very good results medicine wise but he has no answers for 
> side effects Specially  bad acne break outs. All he says it's because 
> I'm on the young side to have developed CML.  I'm almost 57. Been seeing a 
> dermatologist but results have been minimal. Anyone out there got any 
> suggestions? I'm taking 200mg daily of gleevec. Was on 400 of tasigna which 
> was hell on earth. Anything would be helpful.
> 18's
> Kate
>
> Sent from my iPhone
>
> On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Marcie, 
> So glad the gall bladder settled down. I give our God ALL the credit for 
> that! So sorry to hear about your husband's issues as well. Is he doing ok 
> now? Not sposed to take turns at the hospital. How will you ever get in a 
> vacation? Blessings at Passover time.
>
> Love, 
>
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, 
> and shall have wonderful peace." Ps.37:11
>
>
> --
> On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Thanks, Susan. I missed an appointment for blood labs because my husband 
> was in the hospital and having complications from his medical issues. No 
> one to blame but myself. 
>
> The pain on side has gone so at least for now I'm not going to worry about 
> it. I'll be following up this week with my doctor for more labs and tests. 
>
> So glad you are doing well. This is the season for miracles and I wish you 
> and Roy and the family a happy and very blessed Easter. 
>
> Marcie 
>
> Sent from my iPhone
>
> On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> So sorry to hear about a hospital stay. These are not places we want to 
> hang outlow red cells does not sound good, but I'm sure you have great 
> docs. Was that low a gradual thing or quick? Seems they should or could 
> have caught it before you bottomed out if it was gradual. 
>
> I sure hope it turns out the gallbladder is fine. He still heals today so 
> I'll pray! You could have gotten time off work in an easier way, I'm sure.
>
> Hope you gets lots of extra tlc and consider this part of it!!!  You are 
> special to me and many others on here!  Keep us updated!!!
>
> 18's and fight on,
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, 
> and shall have wonderful peace." Ps.37:11
>
>
> --
> On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
>
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
>
> Marcie
>
>
>
> Sent from my iPhone
>
> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Thanks for the encouragement. I may write him but not confident he would 
> have any different answers. Dr. Jessica Altman is completely on top of 
> things for me. I"ve been to two other specialists at Nwestern to dig into 
> causesnothing unusual except cavernous malformations turns up. Have 
> checked everything at least three times over the yrs. So again off meds 
> hopefully for a long time unless #'s go high. 
>
> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>
> Hope all is well with you!
>
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, 
> and shall have wonderful peace." Ps.37:11
>
>
> --
> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope <
> cml...@googlegroups.com > wrote:
>
> Susan:
>
> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>
> At least email him
>
> Hugs,
> Susan Rosenthal
>
> Have a wonderful day
>
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to cml...@googl

Re: [CMLHope] To Susan Zimmerman

[kathy walls]

Hi all,
I am real new to the CML world only 14 months out from diagnosis. I have 
learned a lot from reading posts here. It's been helpful.  My dr is a CML dr 
and I've had very good results medicine wise but he has no answers for side 
effects Specially  bad acne break outs. All he says it's because I'm on the 
young side to have developed CML.  I'm almost 57. Been seeing a dermatologist 
but results have been minimal. Anyone out there got any suggestions? I'm taking 
200mg daily of gleevec. Was on 400 of tasigna which was hell on earth. Anything 
would be helpful.
18's
Kate

Sent from my iPhone

> On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Marcie, 
> So glad the gall bladder settled down. I give our God ALL the credit for 
> that! So sorry to hear about your husband's issues as well. Is he doing ok 
> now? Not sposed to take turns at the hospital. How will you ever get in a 
> vacation? Blessings at Passover time.
> 
> Love, 
> 
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Thanks, Susan. I missed an appointment for blood labs because my husband was 
> in the hospital and having complications from his medical issues. No one to 
> blame but myself. 
> 
> The pain on side has gone so at least for now I'm not going to worry about 
> it. I'll be following up this week with my doctor for more labs and tests. 
> 
> So glad you are doing well. This is the season for miracles and I wish you 
> and Roy and the family a happy and very blessed Easter. 
> 
> Marcie 
> 
> Sent from my iPhone
> 
> On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> So sorry to hear about a hospital stay. These are not places we want to hang 
> outlow red cells does not sound good, but I'm sure you have great docs. 
> Was that low a gradual thing or quick? Seems they should or could have caught 
> it before you bottomed out if it was gradual.
> 
> I sure hope it turns out the gallbladder is fine. He still heals today so 
> I'll pray! You could have gotten time off work in an easier way, I'm sure.
> 
> Hope you gets lots of extra tlc and consider this part of it!!!  You are 
> special to me and many others on here!  Keep us updated!!!
> 
> 18's and fight on,
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
> 
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
> 
> Marcie
> 
> 
> 
> Sent from my iPhone
> 
> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Thanks for the encouragement. I may write him but not confident he would have 
> any different answers. Dr. Jessica Altman is completely on top of things for 
> me. I"ve been to two other specialists at Nwestern to dig into 
> causesnothing unusual except cavernous malformations turns up. Have 
> checked everything at least three times over the yrs. So again off meds 
> hopefully for a long time unless #'s go high.
> 
> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
> 
> Hope all is well with you!
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>  wrote:
> 
> Susan:
> 
> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
> 
> At least email him
> 
> Hugs,
> Susan Rosenthal
> 
> Have a wonderful day
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
> 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received th

Re: [CMLHope] To Susan Zimmerman

['Susan Zimmerman' via CMLHope]

Marcie, 
So glad the gall bladder settled down. I give our God ALL the credit for that! 
So sorry to hear about your husband's issues as well. Is he doing ok now? Not 
sposed to take turns at the hospital. How will you ever get in a vacation? 
Blessings at Passover time.

Love, 



Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope 
 wrote:

Thanks, Susan. I missed an appointment for blood labs because my husband was in 
the hospital and having complications from his medical issues. No one to blame 
but myself. 


The pain on side has gone so at least for now I'm not going to worry about it. 
I'll be following up this week with my doctor for more labs and tests. 


So glad you are doing well. This is the season for miracles and I wish you and 
Roy and the family a happy and very blessed Easter. 


Marcie 

Sent from my iPhone


On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

So sorry to hear about a hospital stay. These are not places we want to hang 
outlow red cells does not sound good, but I'm sure you have great docs. Was 
that low a gradual thing or quick? Seems they should or could have caught it 
before you bottomed out if it was gradual. 

I sure hope it turns out the gallbladder is fine. He still heals today so I'll 
pray! You could have gotten time off work in an easier way, I'm sure.

Hope you gets lots of extra tlc and consider this part of it!!!  You are 
special to me and many others on here!  Keep us updated!!!

18's and fight on,
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope 
 wrote:

Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 


I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!


Marcie




Sent from my iPhone


On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more 

Re: [CMLHope] To Susan Zimmerman

['Susan Zimmerman' via CMLHope]

Dear Jeanie, so sorry you are still in the dark about the side pain. I was 
hoping they would ask for a pet scan to rule out a different kind of cancer. I 
encourage you again to get to the bottom of it.is it at all connected to 
plural effusion? Ponatinib has some ability to give heart or bleeding problems 
said my doc. Because of my bleeding my doc said it would never be the right one 
for me. So glad it's working for you!  Don't mean to share negatives. I know 
your faith and ponatinib are doing well for you!  

Blessings and 18's,



Susan F. Zimmerman


On Thursday, March 24, 2016 'Icandoallttc' via CMLHope 
 wrote:

Hi Susan and thanks so much. 

My side pain is still bad but tests show nothing. Just treating the pain.  I 
read something about an MS hug.  My side pain has a lot of similarities to 
that.  

I think the tkis caused this as it got worse when I had to go on Tasigna.  

My Creatine was up but it seems to go up and down along with potassium.  

I've been on Ponatinib for 12 months now. 

No test planned thank Heavens. Have to go back in 3 months.  They take PCR 
every 3 months. I forgot to get my last results. Thanks again.  

My Motto: Faith and Pills❤️

With 💗Jeanie 🐟🐟18,s Chi

Dx 1/2004. CML Leukemia

Started Gleevec 2/2004

Started Tasigna  9/2009

Started Sprycel 11/2009

Started Ponatinib January 2015

Dr Balducci Moffitt Cancer Center


On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

Thank you so much, Jeanie!!! You are special to us all. How's the sideache and 
any more tests about it specifically?
18"s,

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 24, 2016 'Icandoallttc' via CMLHope 
 wrote:

Hi Susan and Marcie

Prayers for both of you.  Sorry for your hospital stay but we need them when we 
get sick.  I hope you find the root of your problems.  

I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 

Susan good luck off meds.  Hang in there and fight. Blessings 

My Motto: Faith and Pills❤️

With 💗Jeanie 🐟🐟18,s Chi

Dx 1/2004. CML Leukemia

Started Gleevec 2/2004

Started Tasigna  9/2009

Started Sprycel 11/2009

Started Ponatinib January 2015

Dr Balducci Moffitt Cancer Center


On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
 wrote:

Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 


I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!


Marcie




Sent from my iPhone


On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To uns

Re: [CMLHope] To Susan Zimmerman

[ANGELYN ESDERS]

Hi, Marcie.I was sick last year for 5 months, in hospital 3 times...with 
anemia, low platelets, and finally broken ribs from passing out.I was having a 
bird this year about my hair loss. Unreal! It started growing in again after 
Christmas, after I had already bought a wig. I suspect that it was low iron and 
lots of unusual drugs that made me lose my hair. It's fine now. Lupus also can 
affect hair, but so far so good. When I gave my brother a kidney in 1979, in 
the months following the transplant, my hair was coming out at an alarming 
rate. I guess after all the drugs got out of my system it eventually all grew 
back.It was terrifying for me to be losing my hair.That which does not kill us 
only makes us stronger...Angie

  From: 'Marcie Goodman' via CMLHope 
 To: cmlhope@googlegroups.com 
 Sent: Saturday, March 26, 2016 1:26 PM
 Subject: Re: [CMLHope] To Susan Zimmerman
   
Angie, what a time you have had!  It must be a pleasure to be off the Gleevec. 
My platelets and counts were good. The red cells and everything related to them 
were off. Looks like I have perhaps developed severe iron deficient anemia. 
I'll be having more labs and tests to try and figure it out. I'm thrilled to be 
home and I'm from much better. 
Seven years of Gleevec destroyed my hair. So wigs for me and I love it. Never 
have a bad hair day and never have to spend a second on it!
Stay well. So good to hear from you. 
Marcie 

Sent from my iPhone
On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS  wrote:


Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago 
April I lost almost every single platelet, and also needed 6 blood transfusions 
in a week. The specialists had blamed it on my lupus. I recovered and strangely 
lost a LOT of hairbut I have been very well since then. My hair is growing 
back.Have been in remission from CML since July 2001. I have been off Gleevec 
for 10 months now. So far so good.With a tag-team like leukemia and lupus, one 
never knows what to expect next.Anyway, Life is good. No complaints.Angie in 
Canada

  From: 'Marcie Goodman' via CMLHope 
 To: cmlhope@googlegroups.com 
 Sent: Thursday, March 24, 2016 5:07 PM
 Subject: Re: [CMLHope] To Susan Zimmerman
  
Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 
I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!
Marcie


Sent from my iPhone
On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:


Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best 
answers are through prayer!!!Hope all is well with you!Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com/
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com/
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group 

Re: [CMLHope] To Susan Zimmerman

['Marcie Goodman' via CMLHope]

Jeanie, there is a great wig shop literally 5 minutes from my home. It's very 
complete going there as most of the customers suffer hair loss. 

I have a number of wigs so I always have an available one if the others are 
being washed. The wigs cost about $200 and are not human hair. The most 
important thing is to take the wig off when you cook. Not only will heat from 
the oven sear the wig, it will also pick up the aroma of whatever you are 
cooking. I wear cute stretchy turbans around the house. 

Best investments I've made are the wigs since they look better than my hair 
ever did!

Sent from my iPhone

> On Mar 26, 2016, at 1:37 PM, 'Icandoallttc' via CMLHope 
>  wrote:
> 
> Hi Marcie
> I loved the wig idea.  My hair was coming out in clumps on Gleevec but for 
> some reason it grew back in. 
> On Ponatinib my hair is coming out again. So thin and my skin feels like 
> leather.  It feels so strange to look at your brush and see all that hair in 
> it. 
> Wigs for me too if it doesn't stop. 
> Thanks for the update. 
> 
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
>> On Mar 26, 2016, at 1:26 PM, 'Marcie Goodman' via CMLHope 
>>  wrote:
>> 
>> Angie, what a time you have had!  It must be a pleasure to be off the 
>> Gleevec. My platelets and counts were good. The red cells and everything 
>> related to them were off. Looks like I have perhaps developed severe iron 
>> deficient anemia. I'll be having more labs and tests to try and figure it 
>> out. I'm thrilled to be home and I'm from much better. 
>> 
>> Seven years of Gleevec destroyed my hair. So wigs for me and I love it. 
>> Never have a bad hair day and never have to spend a second on it!
>> 
>> Stay well. So good to hear from you. 
>> 
>> Marcie 
>> 
>> Sent from my iPhone
>> 
>>> On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS  wrote:
>>> 
>>> Hi. Marcie.
>>> Did your platelets also bottom out with your red cells?
>>> A year ago April I lost almost every single platelet, and also needed 6 
>>> blood transfusions in a week. The specialists had blamed it on my lupus.
>>> I recovered and strangely lost a LOT of hairbut I have been very well 
>>> since then. My hair is growing back.
>>> Have been in remission from CML since July 2001. I have been off Gleevec 
>>> for 10 months now. So far so good.
>>> With a tag-team like leukemia and lupus, one never knows what to expect 
>>> next.
>>> Anyway, Life is good. No complaints.
>>> Angie in Canada
>>> 
>>> 
>>> From: 'Marcie Goodman' via CMLHope 
>>> To: cmlhope@googlegroups.com 
>>> Sent: Thursday, March 24, 2016 5:07 PM
>>> Subject: Re: [CMLHope] To Susan Zimmerman
>>> 
>>> Susan, as always, I have you and Roy in my prayers. Please let us know how 
>>> your test turns out. 
>>> 
>>> I just got out of hospital because my red cells bottomed out and I became 
>>> very sick. So some transfusions and several days later, just came home. I 
>>> will be undergoing more tests, might have gallbladder problem which arose 
>>> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
>>> always interesting!
>>> 
>>> Marcie
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
>>>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>>>  wrote:
>>>> 
>>>> Thanks for the encouragement. I may write him but not confident he would 
>>>> have any different answers. Dr. Jessica Altman is completely on top of 
>>>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>>>> causesnothing unusual except cavernous malformations turns up. Have 
>>>> checked everything at least three times over the yrs. So again off meds 
>>>> hopefully for a long time unless #'s go high.
>>>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>>>> Hope all is well with you!
>>>> Susan F. Zimmerman
>>>> "All who humble themselves before the Lord shall be given every blessing, 
>>>> and shall have wonderful peace." Ps.37:11
>>>> 
>>>> 
>>>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Hi Marcie
I loved the wig idea.  My hair was coming out in clumps on Gleevec but for some 
reason it grew back in. 
On Ponatinib my hair is coming out again. So thin and my skin feels like 
leather.  It feels so strange to look at your brush and see all that hair in 
it. 
Wigs for me too if it doesn't stop. 
Thanks for the update. 

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 26, 2016, at 1:26 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Angie, what a time you have had!  It must be a pleasure to be off the 
> Gleevec. My platelets and counts were good. The red cells and everything 
> related to them were off. Looks like I have perhaps developed severe iron 
> deficient anemia. I'll be having more labs and tests to try and figure it 
> out. I'm thrilled to be home and I'm from much better. 
> 
> Seven years of Gleevec destroyed my hair. So wigs for me and I love it. Never 
> have a bad hair day and never have to spend a second on it!
> 
> Stay well. So good to hear from you. 
> 
> Marcie 
> 
> Sent from my iPhone
> 
>> On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS  wrote:
>> 
>> Hi. Marcie.
>> Did your platelets also bottom out with your red cells?
>> A year ago April I lost almost every single platelet, and also needed 6 
>> blood transfusions in a week. The specialists had blamed it on my lupus.
>> I recovered and strangely lost a LOT of hairbut I have been very well 
>> since then. My hair is growing back.
>> Have been in remission from CML since July 2001. I have been off Gleevec for 
>> 10 months now. So far so good.
>> With a tag-team like leukemia and lupus, one never knows what to expect next.
>> Anyway, Life is good. No complaints.
>> Angie in Canada
>> 
>> 
>> From: 'Marcie Goodman' via CMLHope 
>> To: cmlhope@googlegroups.com 
>> Sent: Thursday, March 24, 2016 5:07 PM
>> Subject: Re: [CMLHope] To Susan Zimmerman
>> 
>> Susan, as always, I have you and Roy in my prayers. Please let us know how 
>> your test turns out. 
>> 
>> I just got out of hospital because my red cells bottomed out and I became 
>> very sick. So some transfusions and several days later, just came home. I 
>> will be undergoing more tests, might have gallbladder problem which arose 
>> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
>> always interesting!
>> 
>> Marcie
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>>  wrote:
>>> 
>>> Thanks for the encouragement. I may write him but not confident he would 
>>> have any different answers. Dr. Jessica Altman is completely on top of 
>>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>>> causesnothing unusual except cavernous malformations turns up. Have 
>>> checked everything at least three times over the yrs. So again off meds 
>>> hopefully for a long time unless #'s go high.
>>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>>> Hope all is well with you!
>>> Susan F. Zimmerman
>>> "All who humble themselves before the Lord shall be given every blessing, 
>>> and shall have wonderful peace." Ps.37:11
>>> 
>>> 
>>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>>>  wrote:
>>> 
>>> Susan:
>>> 
>>> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>>> 
>>> At least email him
>>> 
>>> Hugs,
>>> Susan Rosenthal
>>> 
>>> Have a wonderful day
>>> 
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com/
>>> -
>>> 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
>>> To unsubscribe from this group, send email to 
>>> cmlhope-unsubscr...@googlegroups.com
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> --- 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To unsubscribe from this group and s

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Hi Marcie and happy Easter to you too. 
Glad your pain has stopped. Mine used to stop too but now is constant.  
Have you had your gallbladder out?  I had mine out years ago. 
Yes get an MRI or ultrasound as soon as you can.  I just had a chest X-ray and 
showed my lungs were good and nothing changed since I had my last one. 
Hang in there warrior. 

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 26, 2016, at 1:15 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Thanks so very much, Jeanie. The pain on right side has stopped but I wish 
> get an ultrasound as soon as I feel stronger. You are correct - faith and 
> pills!
> 
> Best wishes for a blessed and Happy Easter. 
> 
> Marcie 
> 
> Sent from my iPhone
> 
>> On Mar 24, 2016, at 5:19 PM, 'Icandoallttc' via CMLHope 
>>  wrote:
>> 
>> Hi Susan and Marcie
>> Prayers for both of you.  Sorry for your hospital stay but we need them when 
>> we get sick.  I hope you find the root of your problems.  
>> I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 
>> Susan good luck off meds.  Hang in there and fight. Blessings 
>> 
>> My Motto: Faith and Pills❤️
>> With 💗Jeanie 🐟🐟18,s Chi
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>> 
>>> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
>>>  wrote:
>>> 
>>> Susan, as always, I have you and Roy in my prayers. Please let us know how 
>>> your test turns out. 
>>> 
>>> I just got out of hospital because my red cells bottomed out and I became 
>>> very sick. So some transfusions and several days later, just came home. I 
>>> will be undergoing more tests, might have gallbladder problem which arose 
>>> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
>>> always interesting!
>>> 
>>> Marcie
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
 On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
  wrote:
 
 Thanks for the encouragement. I may write him but not confident he would 
 have any different answers. Dr. Jessica Altman is completely on top of 
 things for me. I"ve been to two other specialists at Nwestern to dig into 
 causesnothing unusual except cavernous malformations turns up. Have 
 checked everything at least three times over the yrs. So again off meds 
 hopefully for a long time unless #'s go high.
 
 Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
 
 Hope all is well with you!
 
 Susan F. Zimmerman
 "All who humble themselves before the Lord shall be given every blessing, 
 and shall have wonderful peace." Ps.37:11
 
 
 
 On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
  wrote:
 
 Susan:
 
 Are you able to have an appointment with Dr. Druker in Portland, Oregon?
 
 At least email him
 
 Hugs,
 Susan Rosenthal
 
 Have a wonderful day
 
 -- 
 -- 
 [CMLHope]
 A support group of http://cmlhope.com
 -
 
 You received this message because you are subscribed to the Google Groups 
 "CMLHope" group.
 To post to this group, send email to CMLHope@googlegroups.com
 To unsubscribe from this group, send email to 
 cmlhope-unsubscr...@googlegroups.com
 For more options, visit this group at 
 http://groups.google.com/group/CMLHope
 --- 
 You received this message because you are subscribed to the Google Groups 
 "CMLHope" group.
 To unsubscribe from this group and stop receiving emails from it, send an 
 email to cmlhope+unsubscr...@googlegroups.com.
 For more options, visit https://groups.google.com/d/optout.
 -- 
 -- 
 [CMLHope]
 A support group of http://cmlhope.com
 -
  
 You received this message because you are subscribed to the Google Groups 
 "CMLHope" group.
 To post to this group, send email to CMLHope@googlegroups.com
 To unsubscribe from this group, send email to 
 cmlhope-unsubscr...@googlegroups.com
 For more options, visit this group at 
 http://groups.google.com/group/CMLHope
 --- 
 You received this message because you are subscribed to the Google Groups 
 "CMLHope" group.
 To unsubscribe from this group and stop receiving emails from it, send an 
 email to cmlhope+unsubscr...@googlegroups.com.
 For more options, visit https://groups.google.com/d/optout.
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you ar

Re: [CMLHope] To Susan Zimmerman

['Marcie Goodman' via CMLHope]

Angie, what a time you have had!  It must be a pleasure to be off the Gleevec. 
My platelets and counts were good. The red cells and everything related to them 
were off. Looks like I have perhaps developed severe iron deficient anemia. 
I'll be having more labs and tests to try and figure it out. I'm thrilled to be 
home and I'm from much better. 

Seven years of Gleevec destroyed my hair. So wigs for me and I love it. Never 
have a bad hair day and never have to spend a second on it!

Stay well. So good to hear from you. 

Marcie 

Sent from my iPhone

> On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS  wrote:
> 
> Hi. Marcie.
> Did your platelets also bottom out with your red cells?
> A year ago April I lost almost every single platelet, and also needed 6 blood 
> transfusions in a week. The specialists had blamed it on my lupus.
> I recovered and strangely lost a LOT of hairbut I have been very well 
> since then. My hair is growing back.
> Have been in remission from CML since July 2001. I have been off Gleevec for 
> 10 months now. So far so good.
> With a tag-team like leukemia and lupus, one never knows what to expect next.
> Anyway, Life is good. No complaints.
> Angie in Canada
> 
> 
> From: 'Marcie Goodman' via CMLHope 
> To: cmlhope@googlegroups.com 
> Sent: Thursday, March 24, 2016 5:07 PM
> Subject: Re: [CMLHope] To Susan Zimmerman
> 
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
> 
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
> 
> Marcie
> 
> 
> 
> Sent from my iPhone
> 
>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>  wrote:
>> 
>> Thanks for the encouragement. I may write him but not confident he would 
>> have any different answers. Dr. Jessica Altman is completely on top of 
>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>> causesnothing unusual except cavernous malformations turns up. Have 
>> checked everything at least three times over the yrs. So again off meds 
>> hopefully for a long time unless #'s go high.
>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>> Hope all is well with you!
>> Susan F. Zimmerman
>> "All who humble themselves before the Lord shall be given every blessing, 
>> and shall have wonderful peace." Ps.37:11
>> 
>> 
>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>>  wrote:
>> 
>> Susan:
>> 
>> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>> 
>> At least email him
>> 
>> Hugs,
>> Susan Rosenthal
>> 
>> Have a wonderful day
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com/
>> -
>> 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com/
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.

Re: [CMLHope] To Susan Zimmerman

['Marcie Goodman' via CMLHope]

Thanks, Susan. I missed an appointment for blood labs because my husband was in 
the hospital and having complications from his medical issues. No one to blame 
but myself. 

The pain on side has gone so at least for now I'm not going to worry about it. 
I'll be following up this week with my doctor for more labs and tests. 

So glad you are doing well. This is the season for miracles and I wish you and 
Roy and the family a happy and very blessed Easter. 

Marcie 

Sent from my iPhone

> On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> So sorry to hear about a hospital stay. These are not places we want to hang 
> outlow red cells does not sound good, but I'm sure you have great docs. 
> Was that low a gradual thing or quick? Seems they should or could have caught 
> it before you bottomed out if it was gradual.
> 
> I sure hope it turns out the gallbladder is fine. He still heals today so 
> I'll pray! You could have gotten time off work in an easier way, I'm sure.
> 
> Hope you gets lots of extra tlc and consider this part of it!!!  You are 
> special to me and many others on here!  Keep us updated!!!
> 
> 18's and fight on,
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
> 
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
> 
> Marcie
> 
> 
> 
> Sent from my iPhone
> 
> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Thanks for the encouragement. I may write him but not confident he would have 
> any different answers. Dr. Jessica Altman is completely on top of things for 
> me. I"ve been to two other specialists at Nwestern to dig into 
> causesnothing unusual except cavernous malformations turns up. Have 
> checked everything at least three times over the yrs. So again off meds 
> hopefully for a long time unless #'s go high.
> 
> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
> 
> Hope all is well with you!
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>  wrote:
> 
> Susan:
> 
> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
> 
> At least email him
> 
> Hugs,
> Susan Rosenthal
> 
> Have a wonderful day
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
> 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email 

Re: [CMLHope] To Susan Zimmerman

['Marcie Goodman' via CMLHope]

Thanks so very much, Jeanie. The pain on right side has stopped but I wish get 
an ultrasound as soon as I feel stronger. You are correct - faith and pills!

Best wishes for a blessed and Happy Easter. 

Marcie 

Sent from my iPhone

> On Mar 24, 2016, at 5:19 PM, 'Icandoallttc' via CMLHope 
>  wrote:
> 
> Hi Susan and Marcie
> Prayers for both of you.  Sorry for your hospital stay but we need them when 
> we get sick.  I hope you find the root of your problems.  
> I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 
> Susan good luck off meds.  Hang in there and fight. Blessings 
> 
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
>> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
>>  wrote:
>> 
>> Susan, as always, I have you and Roy in my prayers. Please let us know how 
>> your test turns out. 
>> 
>> I just got out of hospital because my red cells bottomed out and I became 
>> very sick. So some transfusions and several days later, just came home. I 
>> will be undergoing more tests, might have gallbladder problem which arose 
>> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
>> always interesting!
>> 
>> Marcie
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>>  wrote:
>>> 
>>> Thanks for the encouragement. I may write him but not confident he would 
>>> have any different answers. Dr. Jessica Altman is completely on top of 
>>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>>> causesnothing unusual except cavernous malformations turns up. Have 
>>> checked everything at least three times over the yrs. So again off meds 
>>> hopefully for a long time unless #'s go high.
>>> 
>>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>>> 
>>> Hope all is well with you!
>>> 
>>> Susan F. Zimmerman
>>> "All who humble themselves before the Lord shall be given every blessing, 
>>> and shall have wonderful peace." Ps.37:11
>>> 
>>> 
>>> 
>>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>>>  wrote:
>>> 
>>> Susan:
>>> 
>>> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>>> 
>>> At least email him
>>> 
>>> Hugs,
>>> Susan Rosenthal
>>> 
>>> Have a wonderful day
>>> 
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>> 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
>>> To unsubscribe from this group, send email to 
>>> cmlhope-unsubscr...@googlegroups.com
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> --- 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>> For more options, visit https://groups.google.com/d/optout.
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
>>> To unsubscribe from this group, send email to 
>>> cmlhope-unsubscr...@googlegroups.com
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> --- 
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To unsubscribe from this group and stop receiving emails from it, send an 
>>> email to cmlhope+unsubscr...@googlegroups.com.
>>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> 

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Wow Angie! My platelets go high not low.  So sorry to hear that. I did have 
transfusions on Tasigna as my platelets went under 8. I think he could have 
taken me off meds and they would have gone up. 
Every thing is good now.  


My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS  wrote:
> 
> Hi. Marcie.
> Did your platelets also bottom out with your red cells?
> A year ago April I lost almost every single platelet, and also needed 6 blood 
> transfusions in a week. The specialists had blamed it on my lupus.
> I recovered and strangely lost a LOT of hairbut I have been very well 
> since then. My hair is growing back.
> Have been in remission from CML since July 2001. I have been off Gleevec for 
> 10 months now. So far so good.
> With a tag-team like leukemia and lupus, one never knows what to expect next.
> Anyway, Life is good. No complaints.
> Angie in Canada
> 
> 
> From: 'Marcie Goodman' via CMLHope 
> To: cmlhope@googlegroups.com 
> Sent: Thursday, March 24, 2016 5:07 PM
> Subject: Re: [CMLHope] To Susan Zimmerman
> 
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
> 
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
> 
> Marcie
> 
> 
> 
> Sent from my iPhone
> 
>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>  wrote:
>> 
>> Thanks for the encouragement. I may write him but not confident he would 
>> have any different answers. Dr. Jessica Altman is completely on top of 
>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>> causesnothing unusual except cavernous malformations turns up. Have 
>> checked everything at least three times over the yrs. So again off meds 
>> hopefully for a long time unless #'s go high.
>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>> Hope all is well with you!
>> Susan F. Zimmerman
>> "All who humble themselves before the Lord shall be given every blessing, 
>> and shall have wonderful peace." Ps.37:11
>> 
>> 
>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>>  wrote:
>> 
>> Susan:
>> 
>> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>> 
>> At least email him
>> 
>> Hugs,
>> Susan Rosenthal
>> 
>> Have a wonderful day
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com/
>> -
>> 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com/
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com/
> 

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Hi Anthony and good to hear from you.  My right side pain was with me for a 
while but got worse when put in Tasigna.  
It now goes up to a 10 and have to take pain meds for it. No cure just 
management.  Probably a lot like Lupus. 
What tki do you take?

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 25, 2016, at 10:52 AM, Anthony Lanoue  wrote:
> 
> 
> I also get mild right side pain
> 
> Anthony Lanoue
> Sent with MailBuzzr
> On Mar 24, 2016, 5:44 PM, Icandoallttc' via CMLHope wrote:
> Hi Susan and thanks so much. 
> My side pain is still bad but tests show nothing. Just treating the pain.  I 
> read something about an MS hug.  My side pain has a lot of similarities to 
> that.  
> I think the tkis caused this as it got worse when I had to go on Tasigna.  
> My Creatine was up but it seems to go up and down along with potassium.  
> I've been on Ponatinib for 12 months now. 
> No test planned thank Heavens. Have to go back in 3 months.  They take PCR 
> every 3 months. I forgot to get my last results. Thanks again.  
> 
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
>> On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope 
>>  wrote:
>> 
>> Thank you so much, Jeanie!!! You are special to us all. How's the sideache 
>> and any more tests about it specifically?
>> 18"s,
>> 
>> 
>> Susan F. Zimmerman
>> "All who humble themselves before the Lord shall be given every blessing, 
>> and shall have wonderful peace." Ps.37:11
>> 
>> 
>> 
>> On Thursday, March 24, 2016 'Icandoallttc' via CMLHope 
>>  wrote:
>> 
>> Hi Susan and Marcie
>> Prayers for both of you.  Sorry for your hospital stay but we need them when 
>> we get sick.  I hope you find the root of your problems.  
>> I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 
>> Susan good luck off meds.  Hang in there and fight. Blessings 
>> 
>> My Motto: Faith and Pills❤️
>> With 💗Jeanie 🐟🐟18,s Chi
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>> 
>> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
>>  wrote:
>> 
>> Susan, as always, I have you and Roy in my prayers. Please let us know how 
>> your test turns out. 
>> 
>> I just got out of hospital because my red cells bottomed out and I became 
>> very sick. So some transfusions and several days later, just came home. I 
>> will be undergoing more tests, might have gallbladder problem which arose 
>> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
>> always interesting!
>> 
>> Marcie
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>  wrote:
>> 
>> Thanks for the encouragement. I may write him but not confident he would 
>> have any different answers. Dr. Jessica Altman is completely on top of 
>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>> causesnothing unusual except cavernous malformations turns up. Have 
>> checked everything at least three times over the yrs. So again off meds 
>> hopefully for a long time unless #'s go high.
>> 
>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>> 
>> Hope all is well with you!
>> 
>> Susan F. Zimmerman
>> "All who humble themselves before the Lord shall be given every blessing, 
>> and shall have wonderful peace." Ps.37:11
>> 
>> 
>> 
>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>>  wrote:
>> 
>> Susan:
>> 
>> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>> 
>> At least email him
>> 
>> Hugs,
>> Susan Rosenthal
>> 
>> Have a wonderful day
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>> 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are su

Re: Re: [CMLHope] To Susan Zimmerman

[Anthony Lanoue]

I also get mild right side painAnthony LanoueSent with MailBuzzrOn Mar 24, 2016, 5:44 PM, Icandoallttc' via CMLHope wrote:Hi Susan and thanks so much. My side pain is still bad but tests show nothing. Just treating the pain.  I read something about an MS hug.  My side pain has a lot of similarities to that.  I think the tkis caused this as it got worse when I had to go on Tasigna.  My Creatine was up but it seems to go up and down along with potassium.  I've been on Ponatinib for 12 months now. No test planned thank Heavens. Have to go back in 3 months.  They take PCR every 3 months. I forgot to get my last results. Thanks again.  My Motto: Faith and Pills❤️With 💗Jeanie 🐟🐟18,s ChiDx 1/2004. CML LeukemiaStarted Gleevec 2/2004Started Tasigna  9/2009Started Sprycel 11/2009Started Ponatinib January 2015Dr Balducci Moffitt Cancer CenterOn Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope  wrote:Thank you so much, Jeanie!!! You are special to us all. How's the sideache and any more tests about it specifically?
18"s,
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11
On Thursday, March 24, 2016 'Icandoallttc' via CMLHope  wrote:

Hi Susan and MarciePrayers for both of you.  Sorry for your hospital stay but we need them when we get sick.  I hope you find the root of your problems.  I had my gallbladder out many years ago.   That's some bad pain.  Good luck. Susan good luck off meds.  Hang in there and fight. Blessings My Motto: Faith and Pills❤️With 💗Jeanie 🐟🐟18,s ChiDx 1/2004. CML LeukemiaStarted Gleevec 2/2004Started Tasigna  9/2009Started Sprycel 11/2009Started Ponatinib January 2015Dr Balducci Moffitt Cancer Center
On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope  wrote:Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!MarcieSent from my iPhoneOn Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope  wrote:Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causesnothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. 
Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
Hope all is well with you!
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11
On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope  wrote:Susan:Are you able to have an appointment with Dr. Druker in Portland, Oregon?At least email himHugs,Susan RosenthalHave a wonderful day-- -- [CMLHope]A support group of http://cmlhope.com-You received this message because you are subscribed to the Google Groups "CMLHope" group.To post to this group, send email to CMLHope@googlegroups.comTo unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.comFor more options, visit this group at http://groups.google.com/group/CMLHope--- You received this message because you are subscribed to the Google Groups "CMLHope" group.To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com.For more options, visit https://groups.google.com/d/optout.



-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups "CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups "CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.




-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups "CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to cmlhope-unsubscr...@googleg

Re: [CMLHope] To Susan Zimmerman

[ANGELYN ESDERS]

Hi. Marcie.Did your platelets also bottom out with your red cells?A year ago 
April I lost almost every single platelet, and also needed 6 blood transfusions 
in a week. The specialists had blamed it on my lupus. I recovered and strangely 
lost a LOT of hairbut I have been very well since then. My hair is growing 
back.Have been in remission from CML since July 2001. I have been off Gleevec 
for 10 months now. So far so good.With a tag-team like leukemia and lupus, one 
never knows what to expect next.Anyway, Life is good. No complaints.Angie in 
Canada

  From: 'Marcie Goodman' via CMLHope 
 To: cmlhope@googlegroups.com 
 Sent: Thursday, March 24, 2016 5:07 PM
 Subject: Re: [CMLHope] To Susan Zimmerman
   
Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 
I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!
Marcie


Sent from my iPhone
On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:


Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best 
answers are through prayer!!!Hope all is well with you!Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com/
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.
-- 
-- 
[CMLHope]
A support group of http://cmlhope.com/
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com/
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.


  

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Hi Susan and thanks so much. 
My side pain is still bad but tests show nothing. Just treating the pain.  I 
read something about an MS hug.  My side pain has a lot of similarities to 
that.  
I think the tkis caused this as it got worse when I had to go on Tasigna.  
My Creatine was up but it seems to go up and down along with potassium.  
I've been on Ponatinib for 12 months now. 
No test planned thank Heavens. Have to go back in 3 months.  They take PCR 
every 3 months. I forgot to get my last results. Thanks again.  

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 24, 2016, at 5:30 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Thank you so much, Jeanie!!! You are special to us all. How's the sideache 
> and any more tests about it specifically?
> 18"s,
> 
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 24, 2016 'Icandoallttc' via CMLHope 
>  wrote:
> 
> Hi Susan and Marcie
> Prayers for both of you.  Sorry for your hospital stay but we need them when 
> we get sick.  I hope you find the root of your problems.  
> I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 
> Susan good luck off meds.  Hang in there and fight. Blessings 
> 
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
> 
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
> 
> Marcie
> 
> 
> 
> Sent from my iPhone
> 
> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Thanks for the encouragement. I may write him but not confident he would have 
> any different answers. Dr. Jessica Altman is completely on top of things for 
> me. I"ve been to two other specialists at Nwestern to dig into 
> causesnothing unusual except cavernous malformations turns up. Have 
> checked everything at least three times over the yrs. So again off meds 
> hopefully for a long time unless #'s go high. 
> 
> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
> 
> Hope all is well with you!
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>  wrote:
> 
> Susan:
> 
> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
> 
> At least email him
> 
> Hugs,
> Susan Rosenthal
> 
> Have a wonderful day
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
> 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send

Re: [CMLHope] To Susan Zimmerman

['Susan Zimmerman' via CMLHope]

Thank you so much, Jeanie!!! You are special to us all. How's the sideache and 
any more tests about it specifically?
18"s,



Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, March 24, 2016 'Icandoallttc' via CMLHope 
 wrote:

Hi Susan and Marcie

Prayers for both of you.  Sorry for your hospital stay but we need them when we 
get sick.  I hope you find the root of your problems.  

I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 

Susan good luck off meds.  Hang in there and fight. Blessings 

My Motto: Faith and Pills❤️

With 💗Jeanie 🐟🐟18,s Chi

Dx 1/2004. CML Leukemia

Started Gleevec 2/2004

Started Tasigna  9/2009

Started Sprycel 11/2009

Started Ponatinib January 2015

Dr Balducci Moffitt Cancer Center


On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
 wrote:

Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 


I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!


Marcie




Sent from my iPhone


On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails

Re: [CMLHope] To Susan Zimmerman

['Susan Zimmerman' via CMLHope]

Marcie,
I'm hoping for some quiet time for you and your hubby. Not exactly dull, but 
peaceful!



Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope 
 wrote:

Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 


I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!


Marcie




Sent from my iPhone


On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

Re: [CMLHope] To Susan Zimmerman

['Susan Zimmerman' via CMLHope]

So sorry to hear about a hospital stay. These are not places we want to hang 
outlow red cells does not sound good, but I'm sure you have great docs. Was 
that low a gradual thing or quick? Seems they should or could have caught it 
before you bottomed out if it was gradual. 

I sure hope it turns out the gallbladder is fine. He still heals today so I'll 
pray! You could have gotten time off work in an easier way, I'm sure.

Hope you gets lots of extra tlc and consider this part of it!!!  You are 
special to me and many others on here!  Keep us updated!!!


18's and fight on,
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope 
 wrote:

Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 


I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!


Marcie




Sent from my iPhone


On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
 wrote:

Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11



On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:

Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

Re: [CMLHope] To Susan Zimmerman

['Icandoallttc' via CMLHope]

Hi Susan and Marcie
Prayers for both of you.  Sorry for your hospital stay but we need them when we 
get sick.  I hope you find the root of your problems.  
I had my gallbladder out many years ago.   That's some bad pain.  Good luck. 
Susan good luck off meds.  Hang in there and fight. Blessings 

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 24, 2016, at 5:07 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Susan, as always, I have you and Roy in my prayers. Please let us know how 
> your test turns out. 
> 
> I just got out of hospital because my red cells bottomed out and I became 
> very sick. So some transfusions and several days later, just came home. I 
> will be undergoing more tests, might have gallbladder problem which arose 
> after I was discharged, naturally!  Ultrasound tomorrow. Never dull but 
> always interesting!
> 
> Marcie
> 
> 
> 
> Sent from my iPhone
> 
>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>>  wrote:
>> 
>> Thanks for the encouragement. I may write him but not confident he would 
>> have any different answers. Dr. Jessica Altman is completely on top of 
>> things for me. I"ve been to two other specialists at Nwestern to dig into 
>> causesnothing unusual except cavernous malformations turns up. Have 
>> checked everything at least three times over the yrs. So again off meds 
>> hopefully for a long time unless #'s go high.
>> 
>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
>> 
>> Hope all is well with you!
>> 
>> Susan F. Zimmerman
>> "All who humble themselves before the Lord shall be given every blessing, 
>> and shall have wonderful peace." Ps.37:11
>> 
>> 
>> 
>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>>  wrote:
>> 
>> Susan:
>> 
>> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
>> 
>> At least email him
>> 
>> Hugs,
>> Susan Rosenthal
>> 
>> Have a wonderful day
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>> 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.

Re: [CMLHope] To Susan Zimmerman

['Marcie Goodman' via CMLHope]

Susan, as always, I have you and Roy in my prayers. Please let us know how your 
test turns out. 

I just got out of hospital because my red cells bottomed out and I became very 
sick. So some transfusions and several days later, just came home. I will be 
undergoing more tests, might have gallbladder problem which arose after I was 
discharged, naturally!  Ultrasound tomorrow. Never dull but always interesting!

Marcie



Sent from my iPhone

> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> Thanks for the encouragement. I may write him but not confident he would have 
> any different answers. Dr. Jessica Altman is completely on top of things for 
> me. I"ve been to two other specialists at Nwestern to dig into 
> causesnothing unusual except cavernous malformations turns up. Have 
> checked everything at least three times over the yrs. So again off meds 
> hopefully for a long time unless #'s go high.
> 
> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!
> 
> Hope all is well with you!
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
>  wrote:
> 
> Susan:
> 
> Are you able to have an appointment with Dr. Druker in Portland, Oregon?
> 
> At least email him
> 
> Hugs,
> Susan Rosenthal
> 
> Have a wonderful day
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
> 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

RE: [CMLHope] To Susan Zimmerman

['Susan Zimmerman' via CMLHope]

Thanks for the encouragement. I may write him but not confident he would have 
any different answers. Dr. Jessica Altman is completely on top of things for 
me. I"ve been to two other specialists at Nwestern to dig into 
causesnothing unusual except cavernous malformations turns up. Have checked 
everything at least three times over the yrs. So again off meds hopefully for a 
long time unless #'s go high. 

Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!!

Hope all is well with you!

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope 
 wrote:
Susan:

Are you able to have an appointment with Dr. Druker in Portland, Oregon?

At least email him

Hugs,
Susan Rosenthal

Have a wonderful day

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/d/optout.