date:20060624




Hi Lori,I enjoyed the larger fonts and big print, I don't have my 
computer set up in larger print because, I had trouble seeing everything on my 
computer, but I probably had it set up wrong.  I like larger print, if they 
are available.
 
Dana
 
 



Dear Lori,
good point! I thought you were like, being loud and it struck 
me as humerous. I'll try to remember it is easier to read. 
Loved your colors too*wink*.
 
peace n love
john
 
 
In a message dated 6/24/2006 5:21:23 PM Eastern Daylight Time, 
[EMAIL PROTECTED] writes:

  Hey John,
   
  Actually, I have been using a big sized font for quite a while now [to 
  friends and family] and will sometimes use it here in my posts.  My 
  vision is just fine but I think it is just so much easier on the eyes to read 
  bigger fonts.
   
  In fact, the last three or four years that I have gone to the library to 
  check out a book ... I always go to the "Large Print Books" first.  They 
  are usually for the vision impaired but, for me, it just seems so much more 
  comfortable in the eyes to read that way.
   
  When I mentioned that to my sister [who also has no problems with vision 
  either] ... she began to enjoy checking out the large print books for the 
  exact same reason.
   
  And I have carried it into e-mail.  When some folks use a font that 
  is so teeny tiny to read ... it is frustrating and I often overlook it.  
  You know what I mean? and then they put it all into one paragraph 
  and *sigh*.  Different strokes for different folks.
   
  I also have everything on the computer [from file manager to our 
  browsers] set up so the font is a bit larger and crisper to read.
   
  NOW, WHEN SOMEONE TYPES IN ALL CAPS  it has been my experience that 
  they think they are trying to be heard better.  LOL
   
  Am I the only one who enjoys a bigger font either on the computer or 
  reading a book?
   
  Lori  
  ---Original Message---
   
  
  From: [EMAIL PROTECTED]
  Date: 6/24/2006 1:02:16 
  PM
  To: [EMAIL PROTECTED]
  Subject: Re: [QUAD-L] 
  Mistaken identity
   
  
  ROFL, Are you writing for the folks that are hard O' reading again? 
  lol
  peace n love
  john
   
  In a message dated 6/23/2006 6:03:31 PM Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  
  


  

 
I asked "Could you 
please refer to the e-mail that you are talking about where I said that 
'you' are not a quad?  
 
The ONLY person 
that I have said who is not a quad on this list is "W".  And he is 
not but he is a great submitter!"
 
You responded [below].
 
 
Thank you Tesela ... I thought I was 
missing something.  In any case, welcome to the group 
again!
 
Lori
---Original 
Message---
 

From: [EMAIL PROTECTED]
Date: 6/23/2006 
10:10:48 AM
To: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] 
Hi, everybody
 

This is the e-mail that I was talking about. I thought that 
you were referring to me because I live in Chicago. Sorry about 
that. 
 
Tesela.
-Original 
Message-From: Lori Michaelson To: Quad 
Sent: Fri, 9 Jun 2006 19:06:21 -0700Subject: Re: [QUAD-L] Hi, 
everybody








 

  
  

  
   
  I also welcome you to the list!  
  
   
  We have a member here who is not a 
  quad [W] and I think he resides in Chicago!  He has a wild 
  sense of humor here so watch out for his welcome!
   
  
  Lori C4/5 Complete 
  Tucson, AZ 
  AGE - 41
  ---Original 
  Message[EMAIL PROTECTED] wrote:
  
  
  Hi, I'm c7 from Chicago and new in this 
  list. I hope we can share experiences, specially with people with my same injury. 
   
  Loseta

Re: [QUAD-L] flap incision pulled

2006-06-24 Thread Stacy Harim





My doc is very nice.  I met him through the wound center.  His 
office chairs are really hard to transfer into so I called the wound center to 
see if I could see him there and they said they'd have to get back to me like 
they don't want me there so I am going to call my doctor about it on  
Monday.
 
Stacy

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Sunday, June 25, 2006 12:31 
AM
  Subject: Re: [QUAD-L] flap incision 
  pulled
  
  
  Stacy,
  You always amaze me how you keep fighting back. i know how 
  desperate you are feeling. I keep reading and looking for anything that could 
  be of any help. I'm getting to that poiunt with the pain. I'm trying mega 
  vitamin c. Sounds stupid but as you can tell, I'll try anything. I'm up to 5 
  grams a day and my only worry is a urine leak. My pee could eat through steel 
  let alone skin. I use aloe all around that area just in case. I don't know if 
  it would help but It feels so good when my ade rubs it in. *wink*. Wish I 
  could feel it.
  You can get your chair modified so U can almost lay on your 
  side and go. Looks strange, But who cares. I use to smoke pot for the pain. I 
  had to stop because my heart is screwing up. Besides, It made me sleep too 
  much. I like using my mind and it keeps me from thinking too much about pain 
  and spasms and folks can't tell if I'm thinking or having a mild siezure. 
  lol
  When you talk to the doctors remember, be nice but be firm. 
  They are practicing medicine and no matter how little they think of your life, 
  they took an oath. You aren't their for experiments. You expect them to use 
  all their talents and if they need more info, ASK!
   
  PLEASE KEEP US INFORMED STACY. 
  PEACE & LOVE
  john 
   
  In a message dated 6/24/2006 10:03:09 PM Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  
I honestly would get up if it didn't hurt so 
damn bad.  All I can do is just cry sometimes because pain medicine 
doesn’t work for it.  The only ting that worked was when I had daludid 
sp? through IV.  I have it by pill now and it doesn't even touch the 
pain.  I don't know if it can be surgically fixed and there are only 
two plastic surgeons that do this type of surgery in the area.  Hopkins 
is a few hours away but I don't know if I can sit on it long enough to get 
there truthfully.  I'm going to give this a lil bit of time and see if 
there are any signs of healing.  I also have a list of questions 
growing for the doctor so we'll have to see what happens.
 
Stacy

Re: [QUAD-L] flap incision pulled

Stacy,
You always amaze me how you keep fighting back. i know how desperate you are feeling. I keep reading and looking for anything that could be of any help. I'm getting to that poiunt with the pain. I'm trying mega vitamin c. Sounds stupid but as you can tell, I'll try anything. I'm up to 5 grams a day and my only worry is a urine leak. My pee could eat through steel let alone skin. I use aloe all around that area just in case. I don't know if it would help but It feels so good when my ade rubs it in. *wink*. Wish I could feel it.
You can get your chair modified so U can almost lay on your side and go. Looks strange, But who cares. I use to smoke pot for the pain. I had to stop because my heart is screwing up. Besides, It made me sleep too much. I like using my mind and it keeps me from thinking too much about pain and spasms and folks can't tell if I'm thinking or having a mild siezure. lol
When you talk to the doctors remember, be nice but be firm. They are practicing medicine and no matter how little they think of your life, they took an oath. You aren't their for experiments. You expect them to use all their talents and if they need more info, ASK!
PLEASE KEEP US INFORMED STACY.
PEACE & LOVE
john
In a message dated 6/24/2006 10:03:09 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

I honestly would get up if it didn't hurt so damn bad. All I can do is just cry sometimes because pain medicine doesn’t work for it. The only ting that worked was when I had daludid sp? through IV. I have it by pill now and it doesn't even touch the pain. I don't know if it can be surgically fixed and there are only two plastic surgeons that do this type of surgery in the area. Hopkins is a few hours away but I don't know if I can sit on it long enough to get there truthfully. I'm going to give this a lil bit of time and see if there are any signs of healing. I also have a list of questions growing for the doctor so we'll have to see what happens.
Stacy

Re: [QUAD-L] Using bigger fonts and Re Mistaken identity




Dear Lori,
good point! I thought you were like, being loud and it struck me as humerous. I'll try to remember it is easier to read. 
Loved your colors too*wink*.
 
peace n love
john
 
 
In a message dated 6/24/2006 5:21:23 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

Hey John,
 
Actually, I have been using a big sized font for quite a while now [to friends and family] and will sometimes use it here in my posts.  My vision is just fine but I think it is just so much easier on the eyes to read bigger fonts.
 
In fact, the last three or four years that I have gone to the library to check out a book ... I always go to the "Large Print Books" first.  They are usually for the vision impaired but, for me, it just seems so much more comfortable in the eyes to read that way.
 
When I mentioned that to my sister [who also has no problems with vision either] ... she began to enjoy checking out the large print books for the exact same reason.
 
And I have carried it into e-mail.  When some folks use a font that is so teeny tiny to read ... it is frustrating and I often overlook it.  You know what I mean? and then they put it all into one paragraph and *sigh*.  Different strokes for different folks.
 
I also have everything on the computer [from file manager to our browsers] set up so the font is a bit larger and crisper to read.
 
NOW, WHEN SOMEONE TYPES IN ALL CAPS  it has been my experience that they think they are trying to be heard better.  LOL
 
Am I the only one who enjoys a bigger font either on the computer or reading a book?
 
Lori  
---Original Message---
 

From: [EMAIL PROTECTED]
Date: 6/24/2006 1:02:16 PM
To: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Mistaken identity
 

ROFL, Are you writing for the folks that are hard O' reading again? lol
peace n love
john
 
In a message dated 6/23/2006 6:03:31 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:






 
I asked "Could you please refer to the e-mail that you are talking about where I said that 'you' are not a quad?  
 
The ONLY person that I have said who is not a quad on this list is "W".  And he is not but he is a great submitter!"
 
You responded [below].
 
 
Thank you Tesela ... I thought I was missing something.  In any case, welcome to the group again!
 
Lori
---Original Message---
 

From: [EMAIL PROTECTED]
Date: 6/23/2006 10:10:48 AM
To: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Hi, everybody
 

This is the e-mail that I was talking about. I thought that you were referring to me because I live in Chicago. Sorry about that. 
 
Tesela.
-Original Message-From: Lori Michaelson To: Quad Sent: Fri, 9 Jun 2006 19:06:21 -0700Subject: Re: [QUAD-L] Hi, everybody








 





 
I also welcome you to the list!  
 
We have a member here who is not a quad [W] and I think he resides in Chicago!  He has a wild sense of humor here so watch out for his welcome!
 

Lori C4/5 Complete 
Tucson, AZ 
AGE - 41
---Original Message[EMAIL PROTECTED] wrote:


Hi, I'm c7 from Chicago and new in this list. I hope we can share experiences, specially with people with my same injury. 
 
Loseta

Re: [QUAD-L] flap incision pulled




It is so hard to believe that each of our lives can be so compromised and disrupted by a damn ulcer that takes less than 20 minutes to cause. I feel so bad for you Stacy. you are in my prayers. 
I'm openminded to any other new treatments for such sores. Any old treatments? I'm sure you're on multi-vitamins. 
 
john
 
In a message dated 6/24/2006 5:19:23 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:





Dave,
 
I have been writing Stacy privately about this and told her the exact same thing about having a Medicare home health agency nurse come out every day if necessary.  In fact, many of them have specific "wound care nurses."   But she says that they will not do that where she is [only a few days a week].  If it is doctor ordered I don't know how the home health agency can get away with not providing what she needs especially with the intensity of her problem.
 
But it has also been my experience with these home health agencies ... that they do not "put out" any more than THEY deem necessary and, for some reason, the doctors do not have the backbone to stand up for the patient but they believe the home health agency!  It makes me livid!  Especially because it can save the government so much money by NOT having to resort to a nursing home or other type of facility that can oftentimes make it worse.
 
I have been praying for myself as well as for her and many others with these ongoing problems.
 
I pray that this heals quicker than expected for her.
 

Lori C4/5 Complete 
Tucson, AZ 
AGE - 41

 
---Original Message---
 

From: David K. Kelmer
Date: 6/24/2006 10:27:30 AM
To: Stacy Harim; Quad-List; disabledofamerica
Subject: Re: [QUAD-L] flap incision pulled
 
Hi Stacy,
 
I am so sorry that your wound is getting worse.  When I had my flap surgery my wife did the wet-to-dry packing, but I also had a nurse come out each day to check on it.  
As far as what you can do now...you do have Medicare, correct?  When I get an open wound, my Home Health Care nurse will come out every day if needed.  Home Health is covered by  Medicare so get your doctor to write-up the orders for daily care from a wound nurse.
 
I will keep you in my thoughts and prayers.  Stay strong.
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA

Stacy Harim <[EMAIL PROTECTED]> wrote:




My nightmare came true.
 
There was a lot of drainage to the flap where the incision was made so the doctor takes out a staple to allow that drainage to come out.  It gets worse.  I now have a larger hole in my butt than I had before.  It's a different one because it pulled apart.  I'm now dealing with a 5cm long and 5cm deep wound in the back of my leg that is putting in more pain than the other sore ever did.  So what do I have to do? Wet to dry and wait for it to fill in.  Nursing will only come a few times a week now and less each week.  It hurts too bad to touch it myself so I guess back to the hospital I go.  A nursing home most likely and God knows for how long.  I'm at a loss and don't know what to do.  
 
Has this happened to anyone else? If so how did you get the care for the dressing changes if you stayed home.  Medicare won't pay for daily nursing care.  I'm concerned about the healing time and my check being taken away after I am there awhile.  This will not be a quick healing process at all. If I am in a facility more than a couple/few months, they take the check to offset the costs, leaving me to fend for myself.  
 
I am pissed off as hell that I got this flap surgery to only have it be replaced by a larger and more painful wound.  I didn't think there could be more pain involved but I was wrong.  There is no flap to fix this flap.  I just have to wait and hope it heals sometime soon otherwise more time off of school, more depression, and who knows what else this new wound will bring with it.
 
Stacy

Re: [QUAD-L] Ohio




Cincinnati area here. Belated congrats. 
 
john
 
In a message dated 6/24/2006 1:44:40 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

Anyone here in Ohio? or Close !! 
 
Zeraw T-10 T-11  21YEARS YESTERDAY !!! Weee huh ?

Re: [QUAD-L] Help

2006-06-24 Thread wheelchair





You are welcome.  Chicago is a big city and I'm sure that you realize 
that by now.  Make sure that you are registered with the Mayor's Office and 
know his commissioner who represents the disAbled Population.  If you need 
additional info, please advise.
W
 
 
In a message dated 6/24/2006 10:41:12 AM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Thanks W. for the information.
   
  Tesela -Original 
Message-

Re: [QUAD-L] UNSUBSCRIBE

2006-06-24 Thread wheelchair





Oh Dave, lol.  You made it sound so easy.
W
 
 
In a message dated 6/24/2006 12:42:41 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Hi Paul,
   
  If you are posting to the Quad-List then you are subscribed to it.  
  Just send any questions, comments, or advice to this address and we will 
  discuss them.
   
  With Love,
  CtrlAltDel aka 
  DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USA

Re: [QUAD-L] flap incision pulled

2006-06-24 Thread Stacy Harim





I honestly would get up if it didn't hurt so damn bad.  All I can do 
is just cry sometimes because pain medicine doesnt work for it.  The only 
ting that worked was when I had daludid sp? through IV.  I have it by pill 
now and it doesn't even touch the pain.  I don't know if it can be 
surgically fixed and there are only two plastic surgeons that do this type of 
surgery in the area.  Hopkins is a few hours away but I don't know if I can 
sit on it long enough to get there truthfully.  I'm going to give this a 
lil bit of time and see if there are any signs of healing.  I also have a 
list of questions growing for the doctor so we'll have to see what 
happens.
 
Stacy

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Saturday, June 24, 2006 3:57 
  PM
  Subject: Re: [QUAD-L] flap incision 
  pulled
  
  
  Lol, no, sorry. wax paper wouldn't work either. We could begin with 
  maggots then slap a chaw of tobacco on it, I just didn't wanna scare stacy. 
  lol I honestly believe it would work better than any wet to dry BS. 
  
   
  I stick with the roll of white wrapping paper. It is made with a 
  bleaching process that makes it relatively clear of bacteria. When I use the 
  microscope I don't see any bacteria growth on it.Even after 
  contaminated bacteria deasn't multiply on it like it will on a telfa 
  pad. If it bothers you to use it then ignore it. Wet to dry anti-bacterial 
  dressings will usually kill tissue, not promote growth. You will be back 
  for more surgery. I can't say I heal up fast but I haven't stayed in bed 
  because of a sore since '78 when I spent 5 months playing with wet to drys and 
  resulted in surgery that required another 6 weeks and I healed much faster 
  than I do now. Stacy, I would try anything to keep from staying in bed. I 
  don't know what would heal your wound fastest but please don't give up on 
  remedies that allow you to have a life.try miracle mist on the wound and bag 
  balm on areas that are carrying weight while it heals. 
  The very first book I ever read about wound care began with, "don't let 
  the wond get too wet or too dry." i got the book from a doctor that prompty 
  prescribed batadine wet to dry twice a day. 
   
  Whatever you try remember to get pressure off of it. good luck
  john 
  P.S. My crappy cure works for me.
   
  In a message dated 6/23/2006 5:00:16 PM Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  
John, 
Will brown paper bag work?  

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Friday, June 23, 2006 11:57 
  AM
  Subject: Re: [QUAD-L] flap incision 
  pulled
  
  
  Dear stacy,
  Doctors say my advice is crazy but it works for me. 
  Don't use wet to drys. these cause the wound to get too wet and then 
  become too dry. Both are exactly what you do not want. use very small 
  amount of mild anti bacterial salve. (if you can get regranex, it is 
  great, but it is so hard to get people that can use it and not introduce a 
  new infection, esp. nurses. The only sterile thing you ask of them and 
  they will ruin a $400 tube on the second shot.)  Get some thin paper. 
  Not gause and not typing paper but like bakery wrapping paper to cover the 
  woumnd when you must sit on it. Any ointment, even vaseline will holl 
  hold it in place. (it breathes and it keeps out debris). Never pack 
  the wound. As often as u can use a small fan to circulate air by the 
  wound. i wrap my fan with cheesecloth to catch any dust. You don't want it 
  to dry out completely but you want it to be comfortably dry and eventually 
  form a scab. You don't need a nurse but an intelligent person helps alot. 
  My ades do it in spite of state laws. When u get up, take a foam pad and 
  place it in ur chair seat. After a few hours get out and have your ade cut 
  away the area that has drainage on it and a little extra. This way you 
  will have the cut out where you need it.
  If your drainage is really excessive, make up 1/4 
  strength dakin's solution. 21 parts water to 1 part clorox with a pinch of 
  baking powder. Wet some very thin gause and place it against the tissue 
  then use the fan to dry it. after an hour get rid of it and let the 
  fan do its thing for another hour if you can stand it. this can be done 3 
  times a day for a week. A lot depends on how much you can take. Remember, 
  your mental health is as important as the wound. Get out of the bed and go 
  out!
   
   
  If you can take being off that wound, and the doctor 
  considers it a candidate for a surgery, just remove any dead or at 
  risk tissue and transplant tissue from the front of your leg. You can 
  even get skin from th

Re: [QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a qua...

Dr. G: Medical ExaminerDr. G: Medical ExaminerDHC Jun 23 08:00pm Add to My CalendarSeries/Other, 60 Mins."The Desperate Crossing" Episode #25.  Dr. G must solve the case of a quadriplegic who died a long distance from her wheelchair.Original Airdate: June 23, 2006.Future Airings:Dr. G - The Desperate Crossing, DHC Jun 23 11:00pmDr. G - The Things Men Do, DHC Jun 30 08:00pmDr. G - The Things Men Do, DHC Jun 30 11:00pmOn Jun 24, 2006, at 8:33 PM, [EMAIL PROTECTED] wrote:  What story, are you talking about?Dana

Re: [QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a quadriplegic's death in Orlando, Florida

I did watch it.  I too had questions.  But the woman's own doctor  
solved the case.


That is the stuff nightmares are made of.

KK

Re: [QUAD-L] Help




Tesela, that is a really pretty name. I have never heard it before.
 
Dana
 
 
 



Thanks W. for the information.
 
Tesela -Original Message-From: 
[EMAIL PROTECTED]To: [EMAIL PROTECTED]; quad-list@eskimo.comSent: 
Wed, 21 Jun 2006 22:14:52 EDTSubject: Re: [QUAD-L] HelpEight lines 




In a message dated 6/21/2006 8:57:29 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  I live in Chicago.
   
  Tesela 

Contact Mercedes at the Chicago Chapter of the Nat SCI Assoc.  Her 
number is
708-352-6223 in LaGrange.  Tell her I sent you.  Her email 
address is:  [EMAIL PROTECTED]
That is a good start.  How you have a valid script for your DME 
needs.  Walgreens, Fitzsimmons and DS Medical, to name a few.
W

Check Out the new free AIM(R) Mail -- 2 GB of storage 
and industry-leading spam and email virus 
protection.

Fwd: [QUAD-L] UNSUBSCRIBE





In a message dated 6/24/2006 12:42:41 P.M. Central Standard Time, Hi 
Michelle, What is your disability and I'm sorry you want to 
unsubscribe from the quadlist?  You can get it in a form called the 
quadlist digest, that only comes once a day, maybe that would be easier for you 
to handle. Sorry to lose you as a member, I don't remember your name as ever 
posting..  Like Dave said just list any questions, you may have, and one of 
us will answer you.
 
  .Dana.
 
Just wondering.
 
[EMAIL PROTECTED] writes:
 

  Hi Paul,
   
  If you are posting to the Quad-List then you are subscribed to it.  
  Just send any questions, comments, or advice to this address and we will 
  discuss them.
   
  With Love,
  CtrlAltDel aka 
  DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USA
  Paul Jacobson <[EMAIL PROTECTED]> 
  wrote:
  



HOW  DO YOU SUBSCRIBE?

  - Original Message - 
  From: 
  Michelle Hansen 
  To: quad-list@eskimo.com 
  Sent: Friday, June 23, 2006 12:46 
  PM
  Subject: [QUAD-L] UNSUBSCRIBE
  Please UNSUBSCRIBE me from this list.Thank 
  you

 
--- Begin Message ---
Hi Paul,     If you are posting to the Quad-List then you are subscribed to it.  Just send any questions, comments, or advice to this address and we will discuss them.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  Paul Jacobson <[EMAIL PROTECTED]> wrote:  HOW  DO YOU SUBSCRIBE?- Original Message -   From: Michelle Hansen   To: quad-list@eskimo.com   Sent: Friday, June 23, 2006 12:46 PM  Subject: [QUAD-L] UNSUBSCRIBE  Please UNSUBSCRIBE me from this list.Thank you
--- End Message ---

Re: [QUAD-L] RE: Baclofen pump




Hi Amy,I hope they tell you what you want to hear, something that 
will help you.  I will be praying for you. Will they be doing the surgery 
or is it just a consultation?Dana
 
Click 

Hi LQ,
 
Good luck getting the pump put in.  You will be in my thoughts and 
prayers!
 
With Love,
CtrlAltDel aka DaveC4/5 
Complete - 30 Years PostTexas, 
USA
~LittleQuad~ <[EMAIL PROTECTED]> 
wrote:

  i have an appointment this next week to see about getting the 
  pump...i'm excited!!

Re: [QUAD-L] I know I am late Years being a Quad !!




Hi Chet,
 
You are forgiven for being late, of course.  I'm glad you're 
here.  It is always a success to make it another year.  Nice to see 
you I have not remembered posting for quite some time.Dana.( C 4-5 
quadriplegia, 31 years post, 52, Prairie Village, Kansas, which is a suburb of 
Kansas City).
 

Hi Chet,
 
Better late than never...  Congrats on your 17 years.  :-)
 
With Love,
CtrlAltDel aka DaveC4/5 
Complete - 30 Years PostTexas, 
USA
Chet Smith <[EMAIL PROTECTED]> wrote:

    I have been a Quad for 17 years. I know I am 
  late is
   getting in on the Survey but, just maybe I 
  will be
   forgiven.
   
  Chet   ( Cquad7 )   17 
  years..
  __Do You 
  Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around 
  http://mail.yahoo.com

Fwd: [QUAD-L] Ohio




Hi Zeraw,
 
I don't remember there being any one from Ohio, but surely there is.  
I hope you had a great day.  Do something fun to celebrate. Think about 
your accomplishments, that you never thought he would achieve, no matter how 
small they might seem to you.Dana (C4-5, quadriplegia, 31 years Post, 52, 
Prairie Village, Kansas, suburb of Kansas City)
 
 
 
 

Hi Zeraw,
 
Congratulations on your 21  years.  May you have a long, happy, 
and healthy life ahead of you!
 
With Love,
CtrlAltDel aka DaveC4/5 
Complete - 30 Years PostTexas, 
USA
Zeraw <[EMAIL PROTECTED]> wrote:

  
  

  Anyone here in Ohio? or Close !! 
   
  Zeraw T-10 T-11  21YEARS YESTERDAY !!! Weee 
  huh ? 
--- Begin Message ---
Hi Zeraw,     Congratulations on your 21  years.  May you have a long, happy, and healthy life ahead of you!     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  Zeraw <[EMAIL PROTECTED]> wrote:  Anyone here in Ohio? or Close !!      Zeraw T-10 T-11  21YEARS YESTERDAY !!! Weee huh ? 
--- End Message ---

[QUAD-L] Stem cells without using embryonic cells

| Stem Cell Trigger Protein Isolated                                 ||   posted by art on Friday June 23, @06:30 (Research)               ||   http://www.bostoncure.org:8080/article.pl?sid=06/06/23/1131211   |++[0]art writes "Stem cells hold much potential in degenerative diseaseslike MS. Unfortunately, the "high octane" stem cells come from embryos.And there's a big political/moral debate on the use of embryos that stopsus from finding out what we can do with them.These researchers have [1]isolated a protein that seems to take adultcells that are differentiating and turn them back into embryonic stemcells - all without any of those pesky embryos being involved. While theydon't have it ready for mass production, it's good to see there areavenues where we might get our precious stem cells and avoid the wholeembryo debate."Discuss this story at:    http://www.bostoncure.org:8080/comments.pl?sid=06/06/23/1131211Links:    0. http://www.acceleratedcure.org    1. http://www.theregister.co.uk/2006/06/16/stem_cell_nanog/&*&*&*&*&*&*&**&KK All horses are run aways.

[QUAD-L] Audio books








YUP!  I like listening to audio books as well!  Either alone or with my husband.
 
We have hundreds and hundreds of them on the computer in MP3 format so that I can have any one of many popular ones to stick into my MP3 player and listen away!
 
But many times they put me to sleep ... so I still enjoy reading at my 'over the bed' table in the evenings [regular books -- with and without big fonts].
 
Lori
 
---Original Message---
 

From: KK Batte
Date: 6/24/2006 2:56:25 PM
To: Lori Michaelson
Cc: Quad
Subject: Re: [QUAD-L] Using bigger fonts and Re Mistaken identity
 
Lori, you don't get the books on tape for the blind?  Not being able
to hold a book I have gotten them for years.  Just finished Cybil
Shepard's book this morning.

Re: [QUAD-L] RE: Baclofen pump

2006-06-24 Thread Silas




Hey Amy, 
I have a quad friend Adam Mayla that when they put 
a new baclofen pump he made a appointment at the wound care where I go he was 
eat up with infection at the pump site and in his back where the tubes come 
around.  The wound care nurse said he was near death and she rushed him to 
ICU where as friday he was still there.  She said if he hadn't come in he 
would have surly died.  Not try to scare you but he's always had trouble 
with the pump, any foran body in in your body causes complacations.  If you 
won't his email address let me know!  Hope you don't have any troubles, 
good luck!  Silas 

  - Original Message - 
  From: 
  ~LittleQuad~ 
  To: Quad-list post 
  Sent: Friday, June 23, 2006 4:43 PM
  Subject: [QUAD-L] RE: Baclofen pump
  
  i have an appointment this next week to see about getting the 
  pump...i'm excited!!

Re: [QUAD-L] flap incision pulled

2006-06-24 Thread Bobbie299



Stacy,
 Hang in there, been there done that got the T-shirt and don't want another. Back in the 1980s I had a big mother. My sweetheart of a plastic surgeon use to stop by my place on his way home from the hospital because he didn't want me to be sitting up on it. Unbelievable huh?
  Then in 1999 I got another one not as bad, at Kessler used Regranx (sp) and it healed up VERY FAST. GREAT stuff but it cost $700 for a tiny tube. Medicaid paid it to.
 Bobbie

[QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a quadriplegic's death in Orlando, Florida


 




  
 
Do any of you watch Dr. G., Medical Examiner, on the Discovery Health Channel on Friday nights?
 
Last night's episode covered the story of a female quadriplegic [Shannon Johnson I believe] who was found dead face down in the sand in a park in Orlando, Florida.  I can't recall 'when' the incident happened.
 
I can't remember if Tony lives in Orlando.  If so ... Tony ... do you remember seeing it covered in the news?
 
Even know Dr. G. "supposedly" found the answers to her mysterious death ... there were a lot of questions my husband and I had that did not add up and completely jive with Dr. G.'s findings and final report.
 
Just curious.
 

Lori C4/5 Complete, 26 years post
Tucson, AZ 
AGE - 41

Re: [QUAD-L] flap incision pulled




John,Can magic mist be used on sores internally.  I have only used 
on superficial areas, because I have had no sores, since I purchased, but I 
wanted to have on hand just in case. for my last sore .  Bag balm can only 
put on skin that is not open? I had trouble finding, and I noticed the other 
day, they sell at Wal-Mart, and it is on the pet supplies and food department of 
the store.  I thought that was rather strange.  The wound care 
center had me use fibefill, and it seemed to work well for me.  It was cut 
and put inside the wound and covered with a sterile gauze instead of telfa pad 
for some reason they wanted to use gauze. fiberfill apparently caused tissue to 
grow.  I was also drinking arginine, which was most to help something, that 
a person on the Internet told me about, who was a biologist.  The wound 
care center also recommended, also extra protein (you can buy in a powder form 
from drugstore or discount store) and my rehab doctor gave me a prescription for 
zinc 220mg twice a day.
 
Dana
 
 



Lol, no, sorry. wax paper wouldn't work either. We could begin with maggots 
then slap a chaw of tobacco on it, I just didn't wanna scare stacy. lol I 
honestly believe it would work better than any wet to dry BS. 
 
I stick with the roll of white wrapping paper. It is made with a bleaching 
process that makes it relatively clear of bacteria. When I use the microscope I 
don't see any bacteria growth on it.Even after contaminated bacteria 
deasn't multiply on it like it will on a telfa pad. If it bothers you to 
use it then ignore it. Wet to dry anti-bacterial dressings will usually kill 
tissue, not promote growth. You will be back for more surgery. I can't say 
I heal up fast but I haven't stayed in bed because of a sore since '78 when I 
spent 5 months playing with wet to drys and resulted in surgery that required 
another 6 weeks and I healed much faster than I do now. Stacy, I would try 
anything to keep from staying in bed. I don't know what would heal your wound 
fastest but please don't give up on remedies that allow you to have a life.try 
miracle mist on the wound and bag balm on areas that are carrying weight while 
it heals. 
The very first book I ever read about wound care began with, "don't let the 
wond get too wet or too dry." i got the book from a doctor that prompty 
prescribed batadine wet to dry twice a day. 
 
Whatever you try remember to get pressure off of it. good luck
john 
P.S. My crappy cure works for me.
 
In a message dated 6/23/2006 5:00:16 PM Eastern Daylight Time, 
[EMAIL PROTECTED] writes:

  John, 
  Will brown paper bag work?  
  
- Original Message - 
From: 
[EMAIL PROTECTED] 
To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
Sent: Friday, June 23, 2006 11:57 
AM
Subject: Re: [QUAD-L] flap incision 
pulled


Dear stacy,
Doctors say my advice is crazy but it works for me. Don't 
use wet to drys. these cause the wound to get too wet and then become too 
dry. Both are exactly what you do not want. use very small amount of mild 
anti bacterial salve. (if you can get regranex, it is great, but it is so 
hard to get people that can use it and not introduce a new infection, esp. 
nurses. The only sterile thing you ask of them and they will ruin a $400 
tube on the second shot.)  Get some thin paper. Not gause and not 
typing paper but like bakery wrapping paper to cover the woumnd when you 
must sit on it. Any ointment, even vaseline will holl hold it in 
place. (it breathes and it keeps out debris). Never pack the wound. As 
often as u can use a small fan to circulate air by the wound. i wrap my fan 
with cheesecloth to catch any dust. You don't want it to dry out completely 
but you want it to be comfortably dry and eventually form a scab. You don't 
need a nurse but an intelligent person helps alot. My ades do it in spite of 
state laws. When u get up, take a foam pad and place it in ur chair seat. 
After a few hours get out and have your ade cut away the area that has 
drainage on it and a little extra. This way you will have the cut out where 
you need it.
If your drainage is really excessive, make up 1/4 strength 
dakin's solution. 21 parts water to 1 part clorox with a pinch of baking 
powder. Wet some very thin gause and place it against the tissue 
then use the fan to dry it. after an hour get rid of it and let the fan 
do its thing for another hour if you can stand it. this can be done 3 times 
a day for a week. A lot depends on how much you can take. Remember, your 
mental health is as important as the wound. Get out of the bed and go 
out!
 
 
If you can take being off that wound, and the doctor 
considers it a candidate for a surgery, just remove any dead or at risk 
tissue and transplant tissue from the front of your leg. You can even 
get skin from there if you need it. Talk

Re: [QUAD-L] Using bigger fonts and Re Mistaken identity

Lori, you don't get the books on tape for the blind?  Not being able  
to hold a book I have gotten them for years.  Just finished Cybil  
Shepard's book this morning.

Re: [QUAD-L] The Woodlands

No I am a transplant from Baton Rouge LA.  Had 2 of my 3 kids here so  
when I retired & finally took my neuro pysch test (& flunked) I moved  
"closer" to my son.  He lives off the 610 loop about an hour away.   
Still want my freedom.


I live in a Volunteers of America apartment building here.  The whole  
town is wheelchair accessible.  I can do my own shopping just 2  
blocks away.


Beyonce's house is for sale about one mile from me.  8 bedrooms 9  
baths & only $7 million.


KK

Re: [QUAD-L] Using bigger fonts and Re Mistaken identity

2006-06-24 Thread Tleath6

Lori, I appreciate the larger fonts. Also, you mention that you might like living in Texas. I think you might like the Dallas/ Ft. Worth or even as far west as Abilene areas. Both are greener than here in West  Texas, but much less humid that Houston, San Antonio, or Austin, and have good medical centers, rehabs, etc.

[QUAD-L] The Woodlands








KK,
 
You live in a great area of Texas!  I am a bit envious.  HEHEHE.  That is a good idea to use the cool vest!
 
I have heard that people just continually stay wet especially after a shower.  But again, it is all what one gets used to.  The population of Texas and the citizens who love the state ... say a lot about the state itself.  
 
The Woodlands are a classy part of urban Texas.  Did you grow up there?
 

Lori C4/5 Complete 
Tucson, AZ 
AGE - 41
 
---Original Message---
 

From: KK Batte
Date: 6/23/2006 5:13:46 PM
To: Lori Michaelson
Cc: Quad
Subject: Re: [QUAD-L] South Texas
 
Moving that far south it is a different world than Houston area.  I
survive the heat with a "cool" vest.  Looks like a hunting vest but
has pockets inside where you place chemical ice packs.  They last
from 4 - 6 hours.  There are days when I wear it inside the house
with the air conditioning running.  It gets that hot.
 
Hope you speak spanish if you are coming to Texas.  It is spoken
almost as much as English.
 
KK
The Woodlands TX

[QUAD-L] Using bigger fonts and Re Mistaken identity








 
Hey John,
 
Actually, I have been using a big sized font for quite a while now [to friends and family] and will sometimes use it here in my posts.  My vision is just fine but I think it is just so much easier on the eyes to read bigger fonts.
 
In fact, the last three or four years that I have gone to the library to check out a book ... I always go to the "Large Print Books" first.  They are usually for the vision impaired but, for me, it just seems so much more comfortable in the eyes to read that way.
 
When I mentioned that to my sister [who also has no problems with vision either] ... she began to enjoy checking out the large print books for the exact same reason.
 
And I have carried it into e-mail.  When some folks use a font that is so teeny tiny to read ... it is frustrating and I often overlook it.  You know what I mean? and then they put it all into one paragraph and *sigh*.  Different strokes for different folks.
 
I also have everything on the computer [from file manager to our browsers] set up so the font is a bit larger and crisper to read.
 
NOW, WHEN SOMEONE TYPES IN ALL CAPS  it has been my experience that they think they are trying to be heard better.  LOL
 
Am I the only one who enjoys a bigger font either on the computer or reading a book?
 
Lori  
---Original Message---
 

From: [EMAIL PROTECTED]
Date: 6/24/2006 1:02:16 PM
To: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Mistaken identity
 

ROFL, Are you writing for the folks that are hard O' reading again? lol
peace n love
john
 
In a message dated 6/23/2006 6:03:31 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:






 
I asked "Could you please refer to the e-mail that you are talking about where I said that 'you' are not a quad?  
 
The ONLY person that I have said who is not a quad on this list is "W".  And he is not but he is a great submitter!"
 
You responded [below].
 
 
Thank you Tesela ... I thought I was missing something.  In any case, welcome to the group again!
 
Lori
---Original Message---
 

From: [EMAIL PROTECTED]
Date: 6/23/2006 10:10:48 AM
To: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Hi, everybody
 

This is the e-mail that I was talking about. I thought that you were referring to me because I live in Chicago. Sorry about that. 
 
Tesela.
-Original Message-From: Lori Michaelson To: Quad Sent: Fri, 9 Jun 2006 19:06:21 -0700Subject: Re: [QUAD-L] Hi, everybody








 





 
I also welcome you to the list!  
 
We have a member here who is not a quad [W] and I think he resides in Chicago!  He has a wild sense of humor here so watch out for his welcome!
 

Lori C4/5 Complete 
Tucson, AZ 
AGE - 41
---Original Message[EMAIL PROTECTED] wrote:


Hi, I'm c7 from Chicago and new in this list. I hope we can share experiences, specially with people with my same injury. 
 
Loseta

Re: [QUAD-L] flap incision pulled







Dave,
 
I have been writing Stacy privately about this and told her the exact same thing about having a Medicare home health agency nurse come out every day if necessary.  In fact, many of them have specific "wound care nurses."   But she says that they will not do that where she is [only a few days a week].  If it is doctor ordered I don't know how the home health agency can get away with not providing what she needs especially with the intensity of her problem.
 
But it has also been my experience with these home health agencies ... that they do not "put out" any more than THEY deem necessary and, for some reason, the doctors do not have the backbone to stand up for the patient but they believe the home health agency!  It makes me livid!  Especially because it can save the government so much money by NOT having to resort to a nursing home or other type of facility that can oftentimes make it worse.
 
I have been praying for myself as well as for her and many others with these ongoing problems.
 
I pray that this heals quicker than expected for her.
 

Lori C4/5 Complete 
Tucson, AZ 
AGE - 41

 
---Original Message---
 

From: David K. Kelmer
Date: 6/24/2006 10:27:30 AM
To: Stacy Harim; Quad-List; disabledofamerica
Subject: Re: [QUAD-L] flap incision pulled
 
Hi Stacy,
 
I am so sorry that your wound is getting worse.  When I had my flap surgery my wife did the wet-to-dry packing, but I also had a nurse come out each day to check on it.  
As far as what you can do now...you do have Medicare, correct?  When I get an open wound, my Home Health Care nurse will come out every day if needed.  Home Health is covered by  Medicare so get your doctor to write-up the orders for daily care from a wound nurse.
 
I will keep you in my thoughts and prayers.  Stay strong.
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA

Stacy Harim <[EMAIL PROTECTED]> wrote:




My nightmare came true.
 
There was a lot of drainage to the flap where the incision was made so the doctor takes out a staple to allow that drainage to come out.  It gets worse.  I now have a larger hole in my butt than I had before.  It's a different one because it pulled apart.  I'm now dealing with a 5cm long and 5cm deep wound in the back of my leg that is putting in more pain than the other sore ever did.  So what do I have to do? Wet to dry and wait for it to fill in.  Nursing will only come a few times a week now and less each week.  It hurts too bad to touch it myself so I guess back to the hospital I go.  A nursing home most likely and God knows for how long.  I'm at a loss and don't know what to do.  
 
Has this happened to anyone else? If so how did you get the care for the dressing changes if you stayed home.  Medicare won't pay for daily nursing care.  I'm concerned about the healing time and my check being taken away after I am there awhile.  This will not be a quick healing process at all. If I am in a facility more than a couple/few months, they take the check to offset the costs, leaving me to fend for myself.  
 
I am pissed off as hell that I got this flap surgery to only have it be replaced by a larger and more painful wound.  I didn't think there could be more pain involved but I was wrong.  There is no flap to fix this flap.  I just have to wait and hope it heals sometime soon otherwise more time off of school, more depression, and who knows what else this new wound will bring with it.
 
Stacy

Re: [QUAD-L] Hey Friends/ problem

2006-06-24 Thread Charles Belliveau

This pills I have are 10 MG and are quick 
disolved for quick effect.

  - Original Message - 
  From: 
  David K. Kelmer 
  To: Charles Belliveau ; Quad-List 

  Sent: Saturday, June 24, 2006 2:11 
  PM
  Subject: Re: [QUAD-L] Hey Friends/ 
  problem

  http://www.drugdigest.org/DD/DVH/Uses/0,3915,488|Nifedipine,00.html

  With Love,
  CtrlAltDel aka 
  DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USA
  Charles Belliveau <[EMAIL PROTECTED]> wrote: 

On the bottle it's Apo-Nifed Nifedipine, but my 
doctor refers to it as adalate which I don't know the correct 
spelling.

  - Original Message - 
  From: 
  Danny 
  Hearn 
  To: Charles Belliveau ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; 
  quad-list@eskimo.com 
  Sent: Thursday, June 22, 2006 8:33 
  PM
  Subject: Re: [QUAD-L] Hey Friends/ 
  problem
    What is the Medication you carry for AD 
  called???    
  Charles Belliveau <[EMAIL PROTECTED]> wrote: 

I don't post often. But AD is by far the worst pain I've ever had, 
so hope this can help someone.  For me all initial AD 
were caused by not being able to empty my bladder. But once I get a bad 
case of AD, it seem for the next few weeks many things can trigger AD. 
Like a semi-full bladder, or during my bowel program and one very 
annoying one is just transferring to bed and lifting knees/legs to 
get my pants off, if not done very slowly and gently would trigger AD. 
We did an in hospital test with the medication "adalate" not sure of 
spelling. Not a very fun experiment, as I was going into hospital 
(outpatient for the evening) to trigger AD. This medication can be 
very dangerous as it lowers the blood pressure very fast.  It 
doesn't solve the cause just reduces the symptoms. In my case the cause 
at this point is more my body's sensitivity to AD. It was painful but it 
worked. Now I always have some with me. 

For me after a bad case of AD, the actual headache can last hours 
and I feel like shit for a day or two. Not to mentioned being prone to 
AD for the next few weeks. If it's a milder one then it may only last 
for a few days.

One other thing I find very annoying about AD is that beside AD 
mode, my blood pressure is low to the point were it can be very 
uncomfortable. Oh well, just my two cents.

Charlie

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Wednesday, June 21, 2006 
  5:43 PM
  Subject: Re: [QUAD-L] Hey 
  Friends/ problem

  That sounds like AD type thing your having Dylan. It can kill 
  you. You need to isolate it and get some blood pressure meds so you u 
  don't stroke while figuring it out. Just curious, did you have a 
  traumatic brain injury when you broke your neck? My tbi will cause a 
  seizure similar to AD but it won't respnd to me sitting up. Make sure 
  they are aware that elevating your upper body helps. the stroke is 
  usually a few minutes ahead of the heart attack. You shouldn't panic 
  but you need to check, your bowels, then bladder, and finally check 
  for a source of pain. It sounds like you have a pain source. I'm told 
  those darn sores are extremely painfull. You should also ask to have a 
  blood presure med that you can keep with you, that will 
  bring down your BP very fast. There was some stuff made back in the 
  50's for high BP, but its hard to find. It brings ur BP down 
  fast. (so fast that normal people had problems using it, but us 
  paralyzed people can use it dead on for AD) I'm on other heart meds 
  now so I haven't had any in years. I'm sorry I don't remember the name 
  of it. Rick is right on about keeping your stool soft. An impaction 
  can mess you up, too.
  Congrats on the 14 yld. You have much to live for. Peace and 
  good luck.

  john 30years post, C-5

  In a message dated 6/21/2006 3:14:07 PM Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  --- Dylan <[EMAIL PROTECTED]> wrote:> Hi, 
I haven't written in in years but I still> receive and read 
the > quad-list. I have a warm spot in my heart for all 
of> you people. And I have > found reading it to be 
both encouraging and helpful,> at times wen I really > 
need information about this disability. I fell like> a 
veteran of this quad

Re: [QUAD-L] Baclofen pump

2006-06-24 Thread ~LittleQuad~

well i'm maxed out on baclofen and doc says more meds similar will just irritatemy liver which i'm having to watch closely! i tried botox, helped some, but not enough!  the spasms are waking me up all night long... which makes me wake up mom.can't be independent if doing thatChet Smith <[EMAIL PROTECTED]> wrote:  Hi Amye,   I take it you have troubles with a lot of Spazms as I do as well. I am  not interested in having the pump though, I just think that would be  another something else having to deal with. I already have enough  trying to keep these UTI's I've been having a lot of away.     Your Fried Friend, Chet  (  oo California is HOT !!!  )~LittleQuad~ <[EMAIL PROTECTED]>
 wrote:i have an appointment this next week to see about getting the pump...i'm excited!!  __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com

Re: [QUAD-L] I know I am late Years being a Quad !!

2006-06-24 Thread ~LittleQuad~

being late comes with age, haha, we forgive easy!Chet Smith <[EMAIL PROTECTED]> wrote:  I have been a Quad for 17 years. I know I am late is   getting in on the Survey but, just maybe I will be   forgiven.     Chet   ( Cquad7 )   17 years..  __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com

Re: [QUAD-L] Ohio the heart of it all

2006-06-24 Thread River Wolfe

I'm in Columbus ;-)RiverOn Jun 24, 2006, at 2:49 PM, David K. Kelmer wrote:Hi Zeraw, Congratulations on your 21  years.  May you have a long, happy, and healthy life ahead of you! With Love,CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USAZeraw <[EMAIL PROTECTED]> wrote:Anyone here in Ohio? or Close !! Zeraw T-10 T-11  21YEARS YESTERDAY !!! Weee huh ?

Re: [QUAD-L] flap incision pulled




Lol, no, sorry. wax paper wouldn't work either. We could begin with maggots then slap a chaw of tobacco on it, I just didn't wanna scare stacy. lol I honestly believe it would work better than any wet to dry BS. 
 
I stick with the roll of white wrapping paper. It is made with a bleaching process that makes it relatively clear of bacteria. When I use the microscope I don't see any bacteria growth on it.Even after contaminated bacteria deasn't multiply on it like it will on a telfa pad. If it bothers you to use it then ignore it. Wet to dry anti-bacterial dressings will usually kill tissue, not promote growth. You will be back for more surgery. I can't say I heal up fast but I haven't stayed in bed because of a sore since '78 when I spent 5 months playing with wet to drys and resulted in surgery that required another 6 weeks and I healed much faster than I do now. Stacy, I would try anything to keep from staying in bed. I don't know what would heal your wound fastest but please don't give up on remedies that allow you to have a life.try miracle mist on the wound and bag balm on areas that are carrying weight while it heals. 
The very first book I ever read about wound care began with, "don't let the wond get too wet or too dry." i got the book from a doctor that prompty prescribed batadine wet to dry twice a day. 
 
Whatever you try remember to get pressure off of it. good luck
john 
P.S. My crappy cure works for me.
 
In a message dated 6/23/2006 5:00:16 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

John, 
Will brown paper bag work?  

- Original Message - 
From: [EMAIL PROTECTED] 
To: [EMAIL PROTECTED] ; quad-list@eskimo.com 
Sent: Friday, June 23, 2006 11:57 AM
Subject: Re: [QUAD-L] flap incision pulled


Dear stacy,
Doctors say my advice is crazy but it works for me. Don't use wet to drys. these cause the wound to get too wet and then become too dry. Both are exactly what you do not want. use very small amount of mild anti bacterial salve. (if you can get regranex, it is great, but it is so hard to get people that can use it and not introduce a new infection, esp. nurses. The only sterile thing you ask of them and they will ruin a $400 tube on the second shot.)  Get some thin paper. Not gause and not typing paper but like bakery wrapping paper to cover the woumnd when you must sit on it. Any ointment, even vaseline will holl hold it in place. (it breathes and it keeps out debris). Never pack the wound. As often as u can use a small fan to circulate air by the wound. i wrap my fan with cheesecloth to catch any dust. You don't want it to dry out completely but you want it to be comfortably dry and eventually form a scab. You don't need a nurse but an intelligent person helps alot. My ades do it in spite of state laws. When u get up, take a foam pad and place it in ur chair seat. After a few hours get out and have your ade cut away the area that has drainage on it and a little extra. This way you will have the cut out where you need it.
If your drainage is really excessive, make up 1/4 strength dakin's solution. 21 parts water to 1 part clorox with a pinch of baking powder. Wet some very thin gause and place it against the tissue then use the fan to dry it. after an hour get rid of it and let the fan do its thing for another hour if you can stand it. this can be done 3 times a day for a week. A lot depends on how much you can take. Remember, your mental health is as important as the wound. Get out of the bed and go out!
 
 
If you can take being off that wound, and the doctor considers it a candidate for a surgery, just remove any dead or at risk tissue and transplant tissue from the front of your leg. You can even get skin from there if you need it. Talk to more than one doctor. The skin on ur butt is not what it use to be  It is thin, not as elestic and heals poorly. I buy cheap pillows to put in my bed when I must spend time on my side. I'm just afraid that if I don't get out of bed, one day, I won't ever get up again.
 
Love and Peace,
john
 
 
In a message dated 6/23/2006 10:16:47 AM Eastern Daylight Time, [EMAIL PROTECTED] writes:

My nightmare came true.
 
There was a lot of drainage to the flap where the incision was made so the doctor takes out a staple to allow that drainage to come out.  It gets worse.  I now have a larger hole in my butt than I had before.  It's a different one because it pulled apart.  I'm now dealing with a 5cm long and 5cm deep wound in the back of my leg that is putting in more pain than the other sore ever did.  So what do I have to do? Wet to dry and wait for it to fill in.  Nursing will only come a few times a week now and less each week.  It hurts too bad to touch it myself so I guess back to the hospital I go.  A nursing home most likely and God knows for how long.  I'm at a loss and don't know what to do.  
 
Has this happened to anyone else? If so how did you get the care for the dressing changes if you stayed home.  Medicare won't pay for daily nur

Re: [QUAD-L] Ohio

Hi Zeraw,     Congratulations on your 21  years.  May you have a long, happy, and healthy life ahead of you!     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  Zeraw <[EMAIL PROTECTED]> wrote:  Anyone here in Ohio? or Close !!      Zeraw T-10 T-11  21YEARS YESTERDAY !!! Weee huh ?

Re: [QUAD-L] I know I am late Years being a Quad !!

Hi Chet,     Better late than never...  Congrats on your 17 years.  :-)     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  Chet Smith <[EMAIL PROTECTED]> wrote:  I have been a Quad for 17 years. I know I am late is   getting in on the Survey but, just maybe I will
 be   forgiven.     Chet   ( Cquad7 )   17 years..  __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com

Re: [QUAD-L] RE: Baclofen pump

Hi LQ,     Good luck getting the pump put in.  You will be in my thoughts and prayers!     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  ~LittleQuad~ <[EMAIL PROTECTED]> wrote:i have an appointment this next week to see about getting the pump...i'm excited!!

Re: [QUAD-L] South Texas

Hi MR, I live in North Texas but there are people living in South Texas, too. Here are a few places you might want to check into before moving. Texas Health and Human Services Commission CALL: 2-1-1 -- Area Information Centers (AIC) This system will allow Texans to apply for a variety of services including Medicaid, food stamps, the Children's Health Insurance Program (CHIP), Temporary Assistance to Needy Families (TANF) and long-term care in person, through the Internet, over the phone and by fax or mail. The call centers, which will provide assistance from 8 a.m. to 8 p.m., will receive and process applications, and consumers will be able to track their applications through an automated phone system. http://www.hhsc.state.tx.us/about_hhsc/contact/contact.htmlTexas State Independent Living Council (SILC) P.O. Box 9879, N. Lamar, Suite K103, Austin, Texas 78766 Ph: Toll Free: 1-877-371-7353, Voice/TTY: 512-371-7353,Fax: 512-371-7370 Web Site: http://www.texsilc.org/ Click on "Centers" on this Home Page for info on other TEXAS CENTERS FOR INDEPENDENT LIVING.Web Site: http://www.il-net.org Click on "LINKS" on this Home Page for info on other TEXAS CENTERS FOR INDEPENDENT LIVING. Independent Living Centers (ILC) - Texas Independent Living Centers. Web Site: http://www.ilusa.com/links/ilcenters.htm#TX Independent Living Research Utilization (ILRU) ILRU Directory of Texas Centers & SILCs -- 2006 Web Site: http://www.ilru.org/html/publications/directory/texas.html ADAPT of Texas 1339 Lamar SQ DR #101Austin, TX 78704512-442-0252.E-Mail: [EMAIL PROTECTED] I hope this helps. With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA
MR <[EMAIL PROTECTED]> wrote:Does anyone live in south Texas, i.e., Brownsville, Harlingen, McAllen? We are considering a move, perhaps to that area and wondered about wheelchair accessibility, both in housing and public buildings/areas, ease of finding attendants, etc. I did notice that housing was VERY affordable (not sure why), which is a plus if we need to remodel. I'm assuming it's just like any other areas -- but any information, good or bad, would be helpful. How low will we go? Check out Yahoo! Messengers low PC-to-Phone call rates.

[QUAD-L] Ohio

2006-06-24 Thread Zeraw




Anyone here in Ohio? or Close !! 
 
Zeraw T-10 T-11  21YEARS YESTERDAY !!! Weee 
huh ?

Re: [QUAD-L] UNSUBSCRIBE

Hi Paul,     If you are posting to the Quad-List then you are subscribed to it.  Just send any questions, comments, or advice to this address and we will discuss them.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  Paul Jacobson <[EMAIL PROTECTED]> wrote:  HOW  DO YOU SUBSCRIBE?- Original Message -   From: Michelle Hansen   To: quad-list@eskimo.com   Sent: Friday, June 23, 2006 12:46 PM  Subject: [QUAD-L] UNSUBSCRIBE  Please UNSUBSCRIBE me from this list.Thank you

Re: [QUAD-L] flap incision pulled

Hi Stacy,     I am so sorry that your wound is getting worse.  When I had my flap surgery my wife did the wet-to-dry packing, but I also had a nurse come out each day to check on it.    As far as what you can do now...you do have Medicare, correct?  When I get an open wound, my Home Health Care nurse will come out every day if needed.  Home Health is covered by  Medicare so get your doctor to write-up the orders for daily care from a wound nurse.     I will keep you in my thoughts and prayers.  Stay strong.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USAStacy Harim <[EMAIL PROTECTED]> wrote:  My nightmare came true.     There was a lot of drainage to the flap where the incision was made so the doctor takes out a staple to allow that drainage to come out.  It gets worse.  I now have a larger hole in my butt than I had before.  It's a different one because it pulled apart.  I'm now dealing with a 5cm long and 5cm deep wound in the back of my leg that is putting in more pain than the other sore ever did.  So what do I have to
 do? Wet to dry and wait for it to fill in.  Nursing will only come a few times a week now and less each week.  It hurts too bad to touch it myself so I guess back to the hospital I go.  A nursing home most likely and God knows for how long.  I'm at a loss and don't know what to do.       Has this happened to anyone else? If so how did you get the care for the dressing changes if you stayed home.  Medicare won't pay for daily nursing care.  I'm concerned about the healing time and my check being taken away after I am there awhile.  This will not be a quick healing process at all. If I am in a facility more than a couple/few months, they take the check to offset the costs, leaving me to fend for myself.       I am pissed off as hell that I got this flap surgery to only have it be replaced by a larger and more painful wound.  I didn't think there could be more
 pain involved but I was wrong.  There is no flap to fix this flap.  I just have to wait and hope it heals sometime soon otherwise more time off of school, more depression, and who knows what else this new wound will bring with it.     Stacy

Re: [QUAD-L] Hey Friends/ problem

http://www.drugdigest.org/DD/DVH/Uses/0,3915,488|Nifedipine,00.html     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA  Charles Belliveau <[EMAIL PROTECTED]> wrote:   On the bottle it's Apo-Nifed Nifedipine, but my doctor refers
 to it as adalate which I don't know the correct spelling.- Original Message -   From: Danny Hearn   To: Charles Belliveau ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com   Sent: Thursday, June 22, 2006
 8:33 PM  Subject: Re: [QUAD-L] Hey Friends/ problem    What is the Medication you carry for AD called???    Charles Belliveau <[EMAIL PROTECTED]> wrote:   I don't post often. But AD is by far the worst pain I've ever had, so hope this can help someone.  For me all initial AD were caused by not being able to empty my bladder. But once I get a bad case of AD, it seem for the next few weeks many things can trigger AD. Like a semi-full bladder, or during my bowel program and one very annoying one is just transferring to bed and lifting knees/legs to get my
 pants off, if not done very slowly and gently would trigger AD. We did an in hospital test with the medication "adalate" not sure of spelling. Not a very fun experiment, as I was going into hospital (outpatient for the evening) to trigger AD. This medication can be very dangerous as it lowers the blood pressure very fast.  It doesn't solve the cause just reduces the symptoms. In my case the cause at this point is more my body's sensitivity to AD. It was painful but it worked. Now I always have some with me.      For me after a bad case of AD, the actual headache can last hours and I feel like shit for a day or two. Not to mentioned being prone to AD for the next few weeks. If it's a milder one then it may only last for a few days.     One other thing I find very annoying about AD is that beside AD mode, my blood pressure is low to the point were it can be very uncomfortable. Oh well, just my two cents. 
    Charlie   - Original Message -   From: [EMAIL PROTECTED]   To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com   Sent: Wednesday, June 21, 2006 5:43 PM  Subject: Re: [QUAD-L] Hey Friends/ problem  That sounds like AD type thing your having Dylan.
 It can kill you. You need to isolate it and get some blood pressure meds so you u don't stroke while figuring it out. Just curious, did you have a traumatic brain injury when you broke your neck? My tbi will cause a seizure similar to AD but it won't respnd to me sitting up. Make sure they are aware that elevating your upper body helps. the stroke is usually a few minutes ahead of the heart attack. You shouldn't panic but you need to check, your bowels, then bladder, and finally check for a source of pain. It sounds like you have a pain source. I'm told those darn sores are extremely painfull. You should also ask to have a blood presure med that you can keep with you, that will bring down your BP very fast. There was some stuff made back in the 50's for high BP, but its hard to find. It brings ur BP down fast. (so fast that normal people had problems using it, but us paralyzed people can use it dead on for AD) I'm on other heart meds now so I haven't had any
 in years. I'm sorry I don't remember the name of it. Rick is right on about keeping your stool soft. An impaction can mess you up, too.  Congrats on the 14 yld. You have much to live for. Peace and good luck.     john 30years post, C-5     In a message dated 6/21/2006 3:14:07 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:  --- Dylan <[EMAIL PROTECTED]> wrote:> Hi, I haven't written in in years but I still> receive and read the > quad-list. I have a warm spot in my heart for all of> you people. And I have > found reading it to be both encouraging and helpful,> at times wen I really > need information about this disability. I fell like> a veteran of this quad > thing now :-)  I was injured 8/10/86, a month after>
 my sixteenth birthday. > So I've now been in this wheelchair thingy for 20> years! wow.> > What keeps my going and positive are my daughter,> who is now going on 14 > years old and doing very well (and yes she was> conceived naturally by a > c5/6 complete quad, so it is possible), and my> friends both old and new. > Recently, well in the past year, I've gotten into> playing this online > computer game called World of Warcraft. I'm having> great fun with it. I get > to pretend I can walk, run, and jump again :)> > Anyway, one reason I'm writing in is because lately,> like in the last month > or two, I've started to have these super> uncomfortable type of > disreflexia/spasm. I assume that others of you must> have experienced it as > well. Its a different type than the normal> disreflexia or spasm that might >
 happen if, say, you are having a pressure spot or> are cold or whatever. It > seems to trigger in the morning after or during my> stretching routine or > just after I get in bed(they're usual

Re: [QUAD-L] Help

2006-06-24 Thread losetaloseto


Thanks W. for the information.
 
Tesela -Original Message-From: [EMAIL PROTECTED]To: [EMAIL PROTECTED]; quad-list@eskimo.comSent: Wed, 21 Jun 2006 22:14:52 EDTSubject: Re: [QUAD-L] Help




In a message dated 6/21/2006 8:57:29 PM Central Daylight Time, [EMAIL PROTECTED] writes:

I live in Chicago.
 
Tesela 

Contact Mercedes at the Chicago Chapter of the Nat SCI Assoc.  Her number is
708-352-6223 in LaGrange.  Tell her I sent you.  Her email address is:  [EMAIL PROTECTED]
That is a good start.  How you have a valid script for your DME needs.  Walgreens, Fitzsimmons and DS Medical, to name a few.
W

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Re: [QUAD-L] Mattress Options