RE: [QUAD-L] Trachs

[Danny Espinoza]

I did for a while.. I am off it now however! "yay" 

I have a small scar now but it isn't bad.. The thing about being on a vent
that I liked the most about being on a vent is the suctioning is a lot
easier and less painful.  I hope one day you won't be on a vent!

 

 

Danny Espinoza 24/m/California

 

Occupation before accident - Network engineer / SR. Network security
engineer

Broke c2,c6,c7 and doner  bone at c2

TBI from blood going to central cortex from spinal cord

off a vent "woohoo" however only one diaphragm works right now "due to

asymmetric SCI"

  http://www.myspace.com/DannyLNX

 

From: Miriam Braunstein [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, October 09, 2007 11:13 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Trachs

 

Hi all.
I'm new to the list, but not to quadhood. I have a form of muscular
dystrophy called dysautonomic mitochondrial myopathy/cytopathy. 
Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV
1000 volume ventilator. I've been on a noninvasive protocol, mask at night
and mouthpiece by day, but I'm starting to have problems keeping my sats and
CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be
able to hook my vent up to that and get breathing support more easily than
noninvasively. 
I have heard trach horror stories-- does anybody use a vent via trach? If
you do, is it a huge infection problem, does the Passy-Muir valve really
work, how hard is the care? I'm afraid on this one. It seems really
intimidating. Any advice from a trached person would be most welcome.
Thanks very much.
Take care, all
Miri

  

  _  

Need a vacation? Get
  great
deals to amazing places on Yahoo! Travel. 

[QUAD-L] Trachs

[Miriam Braunstein]

Hi all.
I'm new to the list, but not to quadhood. I have a form of muscular dystrophy 
called dysautonomic mitochondrial myopathy/cytopathy. 
Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 
1000 volume ventilator. I've been on a noninvasive protocol, mask at night and 
mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 
decent. So I'm having a tracheotomy (in December, likely) and I'll be able to 
hook my vent up to that and get breathing support more easily than 
noninvasively. 
I have heard trach horror stories-- does anybody use a vent via trach? If you 
do, is it a huge infection problem, does the Passy-Muir valve really work, how 
hard is the care? I'm afraid on this one. It seems really intimidating. Any 
advice from a trached person would be most welcome.
Thanks very much.
Take care, all
Miri

   
-
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RE: [QUAD-L] Fell out of chair

[Timothy Cox]

as i psychotherapist I thought it was funny

NOTE: The information contained in this message may be protected and 
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-Original Message-
From: Quadius [mailto:[EMAIL PROTECTED]
Sent: Tue 10/9/2007 3:48 PM
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Fell out of chair
 
I was going to make a joke about how a therapist would never give up on
someone, especially one who could take a fall, then I realized most people
wouldn't get that I was talking about a psychotherapist, so I decided not
to.

Damn, once I explained that I ended up telling my stupid joke to begin
with.  (Shaking my head in frustration).
Quadius


On 10/5/07, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
> Ouch!!!  Don't ya hate that? How did ya get back in?
>
> My therapist gave up on trying to help me accomplish this.  I've fallen 10
> times or so.
> Called 911 each time.  (Have tricepts and can't feel nipple down)
>
> Has anyone been successful getting back in your chair?  How did ya do
> it???
> Thanks
>
> 1 year post
> C6-C7
>
>
> -Original Message-
> From: [EMAIL PROTECTED]
> To: quad-list@eskimo.com
> Sent: Fri, 5 Oct 2007 6:34 pm
> Subject: [QUAD-L] Fell out of chair
>
>  Hi all,
> It's been awhile but I fell out of my chair today. I was bending over to
> put a basket of clothes on my feet to get them up to my lap which I do every
> week but today I didn't have any shoes on. My feet slipped off the feet rest
> & down I went. Somehow through the event it tore off one of my toe nails.
> Don'tsha just hate falling out of these things?
> Dianna
> p.s. Last week my hand was taped from a burnthat oughta do me for a
> few months.
>
>
>
>  --
> See what's new at AOL.com and 
> Make
> AOL Your Homepage
> .
>  --
> *Check Out the new free AIM(R) 
> Mail*-- 
> Unlimited storage and industry-leading spam and email virus protection.
>
>

Re: [QUAD-L] advice on bowel program

[John S.]

Damn, I've missed you Quadius. Good to see your feeling better, even if better 
is a lil twisted.

john


- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: Quadius <[EMAIL PROTECTED]>; Corie Jones <[EMAIL PROTECTED]>
Cc: quad-list@eskimo.com
Sent: Tuesday, October 9, 2007 9:42:11 PM
Subject: Re: [QUAD-L] advice on bowel program

Quadiuswhile on this subject of bowel routine stuff---DID YOU HEAR 
ABOUT THE CONSTIPATED MATH MATITION ??HE WORKED IT OUT WITH A PENCIL !
;-)   

Quadius <[EMAIL PROTECTED]> wrote: 
Increase sensitivity is the exact reason that I decided to go to every other 
day and sometimes have to do it every day.  I was really happy doing it three 
days a week for 10 years, but when you can feel the rumbling and the painful 
spasms, there is no alternative other than to go to the bathroom when 
necessary. 
At least that's my view.
Quadius


On 10/8/07, Corie Jones <[EMAIL PROTECTED]> wrote: 
It sounds like most of the people who have responded go only 2-3 times a week.  
I'm wondering if those of you who do not go every day or every other day, have 
no sensation?  I go every day because I have sensation and my gut/bowels feel 
full and bloated if I don't go every day.  I have chronic nerve pain (the 
horrible burning and needles from my injury level down) and with the burning 
pain and feeling full if I don't go every day or even if I'm constipated and 
don't go enough, then I'm just miserable.  Before my SCI (14 years ago), I went 
once a day, sometimes twice a day so I think it's just normal for my body to go 
every day.  Fortunately, I use a magic bullet suppository and usually eliminate 
over the toilet on my shower/commode chair after 15-30 minutes.  When I get 
back into bed, just to make sure I have got it all out, I will have a digital 
and get any remaining stool out.  Most of the time I do not have anything left. 
 I take 4 fiber capsules and
 two stool softener/laxatives every day and it keeps me pretty regular.  Plus, 
I usually try to eat veggies and fruit regularly.  I have been lucky that I 
have only had a handful of accidents in the 14 years I've been injured. 

Corie, C5, incomplete
Redding, CA
- Original Message - 
From: Elizabeth Treston 
To: quad-list@eskimo.com 
Sent: Sunday, October 07, 2007 11:17 AM
Subject: [QUAD-L] advice on bowel program

 
What is your routine?  Do you take meds (i.e. senna tablets, colace, what kind 
of suppository; when do you take them?  How much fiber?  
Do you take narcotics? 
When do you go (every day, every other day etc.
 
As a newly injured person it takes awhile to figure out what is best for you.
 
Many use senna tabs @ 7-8 hours before their schedule..  Some add colace to 
keep stool soft.  Some go every MWF or every other day so they aren't attached 
to the toilet. 
 
Is your stool hard?  Is it enough for what you are consuming?




From: Nichole Rohling [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 07, 2007 1:57 PM
To: [EMAIL PROTECTED]; Quadlist
Subject: Re: [QUAD-L] Please, can you give advice on bowel program 

 
I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO 
RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT 
IT GETS RID OF THE SUPPOSITORY 
 
NICKI
- Original Message - 
From: [EMAIL PROTECTED] 
To: quad-list@eskimo.com 
Sent: Saturday, October 06, 2007 11:19 PM
Subject: [QUAD-L] Please, can you give advice on bowel program

 
I am so sick and tired of this dominating my life.  It is after  12 midnight 
and I am considering sleeping on the potty chair.  

At 8 I inserted a suppository.  An hour and and half later I decided to call it 
quits, nothin happening. 

It's 9:30 and am making my way to bed.  THEN I needed to get back on and did 
not make it.  What a mess. When will this get better?  I am so tired of this 
that I am seriously considering limiting my food intake.  Starting tomorrow. 

Taking a shower and dressing took me 2 hours and I have spent over 3 hours 
doing my bowel program.  It has been a year since my accident.  Shouldn't I 
have this figured out by now?

I am so frustrated and angry. Sick and tired of crying to. 

 
Thanks

Shelly
1 year post
C6-C7 incomplete



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RE: [QUAD-L] advice on bowel program

[Eric W Rudd]

LOL...OH SHIT MAN...no pun intended
 
 
Eric W Rudd
[EMAIL PROTECTED]
 

-Original Message-
From: Danny Hearn [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, October 09, 2007 8:42 PM
To: Quadius; Corie Jones
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] advice on bowel program


Quadiuswhile on this subject of bowel routine stuff---DID YOU
HEAR ABOUT THE CONSTIPATED MATH MATITION ??HE WORKED IT OUT WITH A
PENCIL !;-)   

Quadius <[EMAIL PROTECTED]> wrote: 

Increase sensitivity is the exact reason that I decided to go to every other
day and sometimes have to do it every day.  I was really happy doing it
three days a week for 10 years, but when you can feel the rumbling and the
painful spasms, there is no alternative other than to go to the bathroom
when necessary. 
At least that's my view.
Quadius


On 10/8/07, Corie Jones <[EMAIL PROTECTED]> wrote: 

It sounds like most of the people who have responded go only 2-3 times a
week.  I'm wondering if those of you who do not go every day or every other
day, have no sensation?  I go every day because I have sensation and my
gut/bowels feel full and bloated if I don't go every day.  I have chronic
nerve pain (the horrible burning and needles from my injury level down) and
with the burning pain and feeling full if I don't go every day or even if
I'm constipated and don't go enough, then I'm just miserable.  Before my SCI
(14 years ago), I went once a day, sometimes twice a day so I think it's
just normal for my body to go every day.  Fortunately, I use a magic bullet
suppository and usually eliminate over the toilet on my shower/commode chair
after 15-30 minutes.  When I get back into bed, just to make sure I have got
it all out, I will have a digital and get any remaining stool out.  Most of
the time I do not have anything left.  I take 4 fiber capsules and two stool
softener/laxatives every day and it keeps me pretty regular.  Plus, I
usually try to eat veggies and fruit regularly.  I have been lucky that I
have only had a handful of accidents in the 14 years I've been injured. 

Corie, C5, incomplete
Redding, CA


- Original Message - 
From: Elizabeth Treston   
To: quad-list@eskimo.com 

Sent: Sunday, October 07, 2007 11:17 AM
Subject: [QUAD-L] advice on bowel program

 
What is your routine?  Do you take meds (i.e. senna tablets, colace, what
kind of suppository; when do you take them?  How much fiber?  
Do you take narcotics? 
When do you go (every day, every other day etc.
 
As a newly injured person it takes awhile to figure out what is best for
you.
 
Many use senna tabs @ 7-8 hours before their schedule..  Some add colace to
keep stool soft.  Some go every MWF or every other day so they aren't
attached to the toilet. 
 
Is your stool hard?  Is it enough for what you are consuming?

  _  

From: Nichole Rohling [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 07, 2007 1:57 PM
To: [EMAIL PROTECTED]; Quadlist
Subject: Re: [QUAD-L] Please, can you give advice on bowel program 

 
I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND
NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND
IF NOT IT GETS RID OF THE SUPPOSITORY 
 
NICKI

- Original Message - 
From: [EMAIL PROTECTED]   
To: quad-list@eskimo.com 
Sent: Saturday, October 06, 2007 11:19 PM
Subject: [QUAD-L] Please, can you give advice on bowel program

 
I am so sick and tired of this dominating my life.  It is after  12 midnight
and I am considering sleeping on the potty chair.  

At 8 I inserted a suppository.  An hour and and half later I decided to call
it quits, nothin happening. 

It's 9:30 and am making my way to bed.  THEN I needed to get back on and did
not make it.  What a mess. When will this get better?  I am so tired of this
that I am seriously considering limiting my food intake.  Starting tomorrow.


Taking a shower and dressing took me 2 hours and I have spent over 3 hours
doing my bowel program.  It has been a year since my accident.  Shouldn't I
have this figured out by now?

I am so frustrated and angry. Sick and tired of crying to. 

 
Thanks

Shelly
1 year post
C6-C7 incomplete

  _  

 
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spam and email virus protection. 
 

Re: [QUAD-L] advice on bowel program

[Danny Hearn]

Quadiuswhile on this subject of bowel routine stuff---DID YOU HEAR 
ABOUT THE CONSTIPATED MATH MATITION ??HE WORKED IT OUT WITH A PENCIL !
;-)   

Quadius <[EMAIL PROTECTED]> wrote:  Increase sensitivity is the exact reason 
that I decided to go to every other day and sometimes have to do it every day.  
I was really happy doing it three days a week for 10 years, but when you can 
feel the rumbling and the painful spasms, there is no alternative other than to 
go to the bathroom when necessary. 
At least that's my view.
Quadius

  On 10/8/07, Corie Jones <[EMAIL PROTECTED]> wrote:   It sounds like most 
of the people who have responded go only 2-3 times a week.  I'm wondering if 
those of you who do not go every day or every other day, have no sensation?  I 
go every day because I have sensation and my gut/bowels feel full and bloated 
if I don't go every day.  I have chronic nerve pain (the horrible burning and 
needles from my injury level down) and with the burning pain and feeling full 
if I don't go every day or even if I'm constipated and don't go enough, then 
I'm just miserable.  Before my SCI (14 years ago), I went once a day, sometimes 
twice a day so I think it's just normal for my body to go every day.  
Fortunately, I use a magic bullet suppository and usually eliminate over the 
toilet on my shower/commode chair after 15-30 minutes.  When I get back into 
bed, just to make sure I have got it all out, I will have a digital and get any 
remaining stool out.  Most of the time I do not have
 anything left.  I take 4 fiber capsules and two stool softener/laxatives every 
day and it keeps me pretty regular.  Plus, I usually try to eat veggies and 
fruit regularly.  I have been lucky that I have only had a handful of accidents 
in the 14 years I've been injured. 
  Corie, C5, incomplete
Redding, CA

- Original Message - 
  From: Elizabeth Treston 
  To: quad-list@eskimo.com 
Sent: Sunday, October 07, 2007 11:17 AM
  Subject: [QUAD-L] advice on bowel program
  
 
  What is your routine?  Do you take meds (i.e. senna tablets, colace, what 
kind of suppository; when do you take them?  How much fiber?  
  Do you take narcotics? 
  When do you go (every day, every other day etc.
   
  As a newly injured person it takes awhile to figure out what is best for you.
   
  Many use senna tabs @ 7-8 hours before their schedule..  Some add colace to 
keep stool soft.  Some go every MWF or every other day so they aren't attached 
to the toilet. 
   
  Is your stool hard?  Is it enough for what you are consuming?


-
  From: Nichole Rohling [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 07, 2007 1:57 PM
To: [EMAIL PROTECTED]; Quadlist
Subject: Re: [QUAD-L] Please, can you give advice on bowel program 

 
  
  I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND 
NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF 
NOT IT GETS RID OF THE SUPPOSITORY 
   
  NICKI
- Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Saturday, October 06, 2007 11:19 PM
  Subject: [QUAD-L] Please, can you give advice on bowel program
  
 
  I am so sick and tired of this dominating my life.  It is after  12 midnight 
and I am considering sleeping on the potty chair.  

At 8 I inserted a suppository.  An hour and and half later I decided to call it 
quits, nothin happening. 

It's 9:30 and am making my way to bed.  THEN I needed to get back on and did 
not make it.  What a mess. When will this get better?  I am so tired of this 
that I am seriously considering limiting my food intake.  Starting tomorrow. 

Taking a shower and dressing took me 2 hours and I have spent over 3 hours 
doing my bowel program.  It has been a year since my accident.  Shouldn't I 
have this figured out by now?

I am so frustrated and angry. Sick and tired of crying to. 

 
Thanks

Shelly
1 year post
C6-C7 incomplete


-
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spam and email virus protection. 
 

[QUAD-L] advivce on bowel program

[shellbell5705]

Am taking 2 senexon 8.6 mg.at 12 noon.? 

Do not take colace (seeing the doc tom. will ask)

Use Bisac-evac, Bisacodyl usp 10 mg. (am going to ask for magic bullets (what a 
name!)

Until yesterday I have no idea how much fiber.? ?(Bought?Fiberlax 625 
mg.yesterday) taking 2 tablets now

no to narcotics? am taking Dilantin 800mg.? and backlofen 80 mg

Because I still have some sensation, whenever I got the urge I would go.??That 
was ok when I was home bound.

?After each meal I spend time on the potty chair because of all the accidents 
and being afraid.? 

My stool is hard and looks like little pebbles. 

I drink 3 maybe 4 bottles of water a day.? Probably not enough?? Was told by a 
nurse in the hospital S.C.I. patients need to limit water intake.? Now I am 
reading we need alot of water, which is it??

Usually in the evenings I get some results.? But that is not always the case. 
Sometimes it's in the afternoon.? Lately I? have been going a little bit each 
day, After sitting 30 min. or so.? In a days time I am off and on maybe 3 to 6 
times.? I never "feel empty".

My fear is I am not going enough for what I am consuming.? When?I get afraid?I 
try a suppository? (usualy 0nce a week)and end up?with?a mess and ect...which 
ends up in a?"meltdown"!??

Thanks.
Shelly




Original Message 
From: Elizabeth Treston <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Sunday, October 7, 2007 2:17:29 PM
Subject: [QUAD-L] advice on bowel program


What is your routine?? Do you take meds (i.e. senna tablets, colace, what kind 
of suppository; when do you take them?? How much fiber?? 

Do you take narcotics? 

When do you go (every day, every other day etc.

?

As a newly injured person it takes awhile to figure out what is best for you.

?

Many use senna tabs @ 7-8 hours before their schedule..? Some add colace to 
keep stool soft.? Some go every MWF or every other day so they aren't attached 
to the toilet.

?

Is your stool hard?? Is it enough for what you are consuming?


From: Nichole Rohling [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 07, 2007 1:57 PM
To: [EMAIL PROTECTED]; Quadlist
Subject: Re: [QUAD-L] Please, can you give advice on bowel program





I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO 
RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT 
IT GETS RID OF THE SUPPOSITORY

?


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spam and email virus protection.

Re: [QUAD-L] Magic Bullet Suppositories losing their potency?

[Quadius]

I remember you talking about this a while back and I have to agree with
you.  The magic bullets are nowhere near the same quality they were prior to
the debacle three or four years ago.  Additionally, I discovered that I am
addicted to the magic bullet.  I tried going back to other various
suppositories and even using the generic magic bullet, but I am unable to
get hardly any results and end up having severe impaction problems.

I thought I was alone until I went to the Tampa VA and was told by the
clinical nurses there that 90% of the quadriplegics who had become
accustomed to the magic bullets were having the same difficulty.  I never
should have changed to the magic bullet in 98.  I was told it was faster and
frankly I don't think it is, despite the protestations of others.  It seems
like at least once a week I am forced to use to suppositories in order to
get a decent amount of result.

I have also tried using the enemas which have the active ingredient to no
avail.  They definitely have something in that product which is addictive
and it is no longer nearly as effective as it used to be.  We even tried
storing them in the refrigerator to see if this would prolong the
effectiveness.  No go.
Take care,
Quadius


On 10/9/07, Lori Michaelson <[EMAIL PROTECTED]> wrote:
>
> I know that we have discussed this exact topic but it has been at least a
> year or so since we did so.  Anyway, if you read my previous post you will
> have read that I am back to doing my bowel routine in bed and I am no longer
> on OxyContin to bind me up.  Even when I was using my bedside commode and I
> was in an upright position... the Magic Bullets have seemed to have lost the
> potency they once had.
>
> I began using them around 1990 when a coworker of mine told me about
> them.  At that time, and for 10 years later, they worked lickety-split
> within 30 minutes and most every time I was completely evacuating all by
> myself.  They were truly Magic Bullets!
>
> Even in 1996 when I was hospitalized for my shunt surgery and HAD to do my
> bowel routine in bed (after using the commode chair for so many years by
> then) and I had absolutely no problem going after the insertion of the Magic
> bullet.  This is no longer the case.
> There was a time around three years ago that the makers of the Magic
> Bullets took them off the market but from my investigation I found out that
> it was a weird sort of marketing idea because afterward they were more
> expensive.  Most people were told that the formula had to be 'or was' being
> changed, etc. etc. etc but I did not buy into that foolishness even if
> folks still believe that as gospel today.  And it WAS THEN, and since then,
> that I have noticed a great difference by having them not work like they
> used to.
>
> Now no matter if I am doing exactly what I was doing before and now
> adding shredded wheat to my diet and other things for encouragement in the
> bowel department routine... I will feel a whole bunch of pressure* as if*I am 
> going on my own but we will wait an entire hour and it simply will not
> come out.  So I need the digital help EVERY SINGLE TIME because they're not
> working like they used to.
>
> One could say that my body has changed, etc. etc. and that may be true *
> but,* especially not being on that binding narcotic anymore, there is no
> reason I should not be going at least partially on my own.  In fact, after
> weaning myself off of the narcotic... for a good week or more afterward I
> was going at all times of the day.  Ugh!  Loose too.   My body was not used
> to all of a sudden not having the narcotic to buying me up a little bit (or
> a lot) after eight years and my bowels had a hay day!  Fortunately it did
> not take much longer than a week to get it straightened out.  But now I am
> having the opposite problem except for I am not bound up or constipated.
>
> When someone recently posed the question of possibly using two Magic
> Bullets I recently thought about that myself but decided that would be
> too rough on the lower bowel.  They still DO get my stool right there and
> ready to come out but that is the end of the story.
>
> I remember a week in 1997 when I did not go for that entire week and could
> not figure out why.  I began drinking prune juice daily, super increasing my
> fiber intake with absolutely nothing happening.  It then dawned on me that I
> had began purchasing *generic* Senokot tablets that did not say "Senokot"
> on the box.  So I had a family member go right to the store and get those
> and that was the whole problem!  I sure went after that!
>
> That is not my problem now however.  But... my bottom line question is
> still "Has anyone noticed the decrease in performance of the Magic Bullets
> over the last several years?"
> --
> Lori
> C4/5 complete quad, 28 years post
> Tucson, AZ
>

Re: [QUAD-L] advice on bowel program

[Quadius]

Increase sensitivity is the exact reason that I decided to go to every other
day and sometimes have to do it every day.  I was really happy doing it
three days a week for 10 years, but when you can feel the rumbling and the
painful spasms, there is no alternative other than to go to the bathroom
when necessary.
At least that's my view.
Quadius

On 10/8/07, Corie Jones <[EMAIL PROTECTED]> wrote:
>
>  It sounds like most of the people who have responded go only 2-3 times a
> week.  I'm wondering if those of you who do not go every day or every other
> day, have no sensation?  I go every day because I have sensation and my
> gut/bowels feel full and bloated if I don't go every day.  I have chronic
> nerve pain (the horrible burning and needles from my injury level down) and
> with the burning pain and feeling full if I don't go every day or even if
> I'm constipated and don't go enough, then I'm just miserable.  Before my SCI
> (14 years ago), I went once a day, sometimes twice a day so I think it's
> just normal for my body to go every day.  Fortunately, I use a magic bullet
> suppository and usually eliminate over the toilet on my shower/commode chair
> after 15-30 minutes.  When I get back into bed, just to make sure I have got
> it all out, I will have a digital and get any remaining stool out.  Most of
> the time I do not have anything left.  I take 4 fiber capsules and two stool
> softener/laxatives every day and it keeps me pretty regular.  Plus, I
> usually try to eat veggies and fruit regularly.  I have been lucky that I
> have only had a handful of accidents in the 14 years I've been injured.
>
> Corie, C5, incomplete
> Redding, CA
>
> - Original Message -
> *From:* Elizabeth Treston <[EMAIL PROTECTED]>
> *To:* quad-list@eskimo.com
>  *Sent:* Sunday, October 07, 2007 11:17 AM
> *Subject:* [QUAD-L] advice on bowel program
>
>
> What is your routine?  Do you take meds (i.e. senna tablets, colace, what
> kind of suppository; when do you take them?  How much fiber?
> Do you take narcotics?
> When do you go (every day, every other day etc.
>
> As a newly injured person it takes awhile to figure out what is best for
> you.
>
> Many use senna tabs @ 7-8 hours before their schedule..  Some add colace
> to keep stool soft.  Some go every MWF or every other day so they aren't
> attached to the toilet.
>
> Is your stool hard?  Is it enough for what you are consuming?
>
>  --
> *From:* Nichole Rohling [mailto:[EMAIL PROTECTED]
> *Sent:* Sunday, October 07, 2007 1:57 PM
> *To:* [EMAIL PROTECTED]; Quadlist
> *Subject:* Re: [QUAD-L] Please, can you give advice on bowel program
>
>
>  I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR
> AND NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING
> AND IF NOT IT GETS RID OF THE SUPPOSITORY
>
> NICKI
>
> - Original Message -
> *From:* [EMAIL PROTECTED]
> *To:* quad-list@eskimo.com
> *Sent:* Saturday, October 06, 2007 11:19 PM
> *Subject:* [QUAD-L] Please, can you give advice on bowel program
>
>
> I am so sick and tired of this dominating my life.  It is after  12
> midnight and I am considering sleeping on the potty chair.
>
> At 8 I inserted a suppository.  An hour and and half later I decided to
> call it quits, nothin happening.
>
> It's 9:30 and am making my way to bed.  THEN I needed to get back on and
> did not make it.  What a mess. When will this get better?  I am so tired of
> this that I am seriously considering limiting my food intake.  Starting
> tomorrow.
>
> Taking a shower and dressing took me 2 hours and I have spent over 3 hours
> doing my bowel program.  It has been a year since my accident.  Shouldn't I
> have this figured out by now?
>
> I am so frustrated and angry. Sick and tired of crying to.
>
>
> Thanks
>
> Shelly
> 1 year post
> C6-C7 incomplete
>  --
> *Check Out the new free AIM(R) 
> Mail*-- 
> Unlimited storage and industry-leading spam and email virus protection.
>
>
>

Re: [QUAD-L] RE: REGULAR B. PROGRAM

[Quadius]

Check your draft box Lori.  I had that happen a couple of times and I ended
up finding them there.
Quadius

On 10/9/07, Lori Michaelson <[EMAIL PROTECTED]> wrote:
>
> Yesterday I wrote quite a lengthy e-mail to the Quad list regarding
> exactly how I do my bowel program now compared to when I finally left the
> hospital and rehab post injury.  For some reason... in my gmail account it
> said that the message was sent but it is not in my  box and I see that
> it never made it to the list.  :-(  It poofed.
> I do not have the energy to write it all over again so I will just say
> ditto regarding what Danny just wrote (below).
>
> I am only using a gmail account for the Quad list since Eskimo, for some
> odd reason, has not been accepting e-mails from Comcast for well over a year
> now.  No big deal ... it's just that I have to get more acquainted with this
> gmail account and I don't always have the time.  At a cursory glance... it
> looks like a pretty good browser e-mail as far as browser e-mails go.
>
> I also wrote a separate e-mail regarding the magic bullet suppositories
> and I see that it never made it to the list either.  So I just tried
> resending it again today with hopes that it will go through.
>
> Lori Michaelson
> C4/5 complete quad, 28 years post
> Tucson, AZ
>  On 10/9/07, Danny Hearn <[EMAIL PROTECTED]> wrote:
>
> > Most the once a day I know either have accidents or can't go each day.
> > Doctors tell me that every 3 days is fine, especially if it works
> > regular.God I would hate having to sit and go thru that stinking routine
> > EVERY DAY !  It would consume a great part of ones daily life. My Wife is my
> > caregiver and works full time and told me thank God it is only twice a week,
> > because as much as she loves me she could not do it, along with all the
> > other quad stuff too. Plus Doctors said the Less one uses suppository's and
> > things that quads use the better---because all that stuff causes hemoroids
> > and many other colon related cancer in the long term anyway.So  I guess
> > to each whatever works for your life.  Dan
> >
> > *Papillon MF <[EMAIL PROTECTED] >* wrote:
> >
> >  Hi
> > I Go once a day too, couldn't imagine any other way. A while back I send
> > some info. regarding the importance of Colon cleaning-detox. I'm a strong
> > believer in keeping our body free of toxic and the only way to do that is
> > having BM everyday, if not, the toxic in your colon goes back up to your
> > body cells resulting in fatigue and an unhealthy body. I wanted to answer
> > Shelly's e-mail, but since your answer was so well put I will leave it at
> > that.
> > Stay safe
> > Marie-France c5-c7 incomplete 4 years post.
> >
> >

Re: [QUAD-L] Please, can you give advice on bowel program

[Quadius]

Shelley,
For 10 years I did my bowel program on Monday Wednesday and Friday, but when
I turned 40 my body wouldn't let that happen any longer.  I now do it every
other day and occasionally have to do it every day.

I drink a ton of green tea, so maybe this is why my bowel seem like they
want to move sometimes, but thankfully I have had no cases of incontinence
yet.

I usually start out with Metamucil and mineral oil on bowel care Day.  The
mineral oil helps move any hard stool down and seems to also give me a
better feeling in my bowels.  I have been told to be real careful using
mineral oil because if it is accidentally aspirated into the lungs it could
be quite dangerous.

Good luck and hopefully you will get better soon.
Quadius


On 10/7/07, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
> I am so sick and tired of this dominating my life.  It is after  12
> midnight and I am considering sleeping on the potty chair.
>
> At 8 I inserted a suppository.  An hour and and half later I decided to
> call it quits, nothin happening.
>
> It's 9:30 and am making my way to bed.  THEN I needed to get back on and
> did not make it.  What a mess. When will this get better?  I am so tired of
> this that I am seriously considering limiting my food intake.  Starting
> tomorrow.
>
> Taking a shower and dressing took me 2 hours and I have spent over 3 hours
> doing my bowel program.  It has been a year since my accident.  Shouldn't I
> have this figured out by now?
>
> I am so frustrated and angry. Sick and tired of crying to.
>
>
> Thanks
>
> Shelly
> 1 year post
> C6-C7 incomplete
>  --
> *Check Out the new free AIM(R) 
> Mail*-- 
> Unlimited storage and industry-leading spam and email virus protection.
>
>

Re: [QUAD-L] Fell out of chair

[Quadius]

I was going to make a joke about how a therapist would never give up on
someone, especially one who could take a fall, then I realized most people
wouldn't get that I was talking about a psychotherapist, so I decided not
to.

Damn, once I explained that I ended up telling my stupid joke to begin
with.  (Shaking my head in frustration).
Quadius


On 10/5/07, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
> Ouch!!!  Don't ya hate that? How did ya get back in?
>
> My therapist gave up on trying to help me accomplish this.  I've fallen 10
> times or so.
> Called 911 each time.  (Have tricepts and can't feel nipple down)
>
> Has anyone been successful getting back in your chair?  How did ya do
> it???
> Thanks
>
> 1 year post
> C6-C7
>
>
> -Original Message-
> From: [EMAIL PROTECTED]
> To: quad-list@eskimo.com
> Sent: Fri, 5 Oct 2007 6:34 pm
> Subject: [QUAD-L] Fell out of chair
>
>  Hi all,
> It's been awhile but I fell out of my chair today. I was bending over to
> put a basket of clothes on my feet to get them up to my lap which I do every
> week but today I didn't have any shoes on. My feet slipped off the feet rest
> & down I went. Somehow through the event it tore off one of my toe nails.
> Don'tsha just hate falling out of these things?
> Dianna
> p.s. Last week my hand was taped from a burnthat oughta do me for a
> few months.
>
>
>
>  --
> See what's new at AOL.com and 
> Make
> AOL Your Homepage
> .
>  --
> *Check Out the new free AIM(R) 
> Mail*-- 
> Unlimited storage and industry-leading spam and email virus protection.
>
>

Re: [QUAD-L] Psuedamonas UTI

[SCIQuad96]

 
Clip< Ironically my bowels have been feeling wonderful since I  started 
taking Cipro for this UTI. >Clip
 
This happens to me as well. Crazy isn't it?
 
Keith/34/C4-5/NJ-11yrsPost


 



** See what's new at http://www.aol.com

Re: [QUAD-L] advice on bowel program

[Stacy Harim]

Shelly,

It took me almost 7 months to get it right and then after I got home it all 
changed.  It worked great in rehab but the food was also different and 
healthier.  I had problems with constantly going and then had to start 
stimulating to empty all of the way.  Now I'm on antibiotics having the same 
problems as before whether I stimulate or not.  I feel like there is no point 
in doing the routine bc I am empting anyhow.  You aren't alone.  Most of us 
have been there.

Stacy


- Original Message 
From: Elizabeth Treston <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Sunday, October 7, 2007 2:17:29 PM
Subject: [QUAD-L] advice on bowel program


What is your routine?  Do you take meds (i.e. senna tablets, colace, what kind 
of suppository; when do you take them?  How much fiber?  
Do you take narcotics? 
When do you go (every day, every other day etc.
 
As a newly injured person it takes awhile to figure out what is best for you.
 
Many use senna tabs @ 7-8 hours before their schedule..  Some add colace to 
keep stool soft.  Some go every MWF or every other day so they aren't attached 
to the toilet.
 
Is your stool hard?  Is it enough for what you are consuming?




From: Nichole Rohling [mailto:[EMAIL PROTECTED] 
Sent: Sunday, October 07, 2007 1:57 PM
To: [EMAIL PROTECTED]; Quadlist
Subject: Re: [QUAD-L] Please, can you give advice on bowel program


I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO 
RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT 
IT GETS RID OF THE SUPPOSITORY
 
NICKI
- Original Message - 
From: [EMAIL PROTECTED] 
To: quad-list@eskimo.com 
Sent: Saturday, October 06, 2007 11:19 PM
Subject: [QUAD-L] Please, can you give advice on bowel program


I am so sick and tired of this dominating my life.  It is after  12 midnight 
and I am considering sleeping on the potty chair.  

At 8 I inserted a suppository.  An hour and and half later I decided to call it 
quits, nothin happening.

It's 9:30 and am making my way to bed.  THEN I needed to get back on and did 
not make it.  What a mess. When will this get better?  I am so tired of this 
that I am seriously considering limiting my food intake.  Starting tomorrow.

Taking a shower and dressing took me 2 hours and I have spent over 3 hours 
doing my bowel program.  It has been a year since my accident.  Shouldn't I 
have this figured out by now?

I am so frustrated and angry. Sick and tired of crying to.

 
Thanks

Shelly
1 year post
C6-C7 incomplete



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spam and email virus protection.


  

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Re: [QUAD-L] Bugs

[Quadius]

That's definitely the approach I usually take.  I use all of the remedies
many people on here try (extra cranberry, extra fluid, apple cider vinegar,
etc.).  I only treat UTIs which become symptomatic.  This latest one I am
having, the first one since last year and also my first one which wasn't
caused by bladder stones or Urodynamics in seven years, has been one of the
worst I have experienced since 1998.  I forgot how terrible least things
make me feel.

Take care everyone.
Quadius


On 10/5/07, Dan <[EMAIL PROTECTED]> wrote:
>
> I have a SP and my primary says that with any type of artificial opening
> into your bladder you'll ALWAYS have bugs growing there so it would be a
> losing cause to treat them - unless they are giving you symptoms.
> However, since we have so many different kinds of bugs growing the docs
> just try one of the broad spectrum antibiotics. If that one doesn't
> work, he tries another. So, I agree with John. Unless you're
> symptomatic, don't worry about it and don't be too concerned about which
> bug is causing your symptoms since there are so many growing there it
> might not be the one you're thinking of that is giving you trouble.
>
> Dan V
>
>

Re: [QUAD-L] Magic Bullet Suppositories losing their potency?

[SCIQuad96]

I for one use the bisocodyl fleet.
 
Keith/34/C4-5/NJ-11yrsPost



** See what's new at http://www.aol.com

Re: [QUAD-L] Psuedamonas UTI

[Quadius]

I know Lori I'm really late responding to this, but I am just getting back
on my feet again (so to speak).

I have been suffering from a UTI which has had me pretty much paralyzed (get
it?  Paralyzed!  Is everyone laughing? sadly probably not.)  For much of the
last week.  Last year I suffered from three UTIs myself and I found that be
multiple stones I had a my bladder were causing the repeated infections.
This is the first UTI I have had in quite some time that I wasn't able to
get under control myself.  It really threw me for a loop and I am just
thankful I didn't require IV medications to get this thing under control.
However, I'm not totally out of the woods yet.  I'm still pretty weak,
beginning stronger.

Everyone has written on here about how to get the pH balance down, so I
won't go into that again, but I have noticed since I have been able to get
mine down I have had virtually no sediment in my urine and therefore have
required less frequent catheter changes.  Although, my doctor just told me I
definitely shouldn't be going a month without changing the catheter.  I had
always heard it was common in most cases to go a month without changing a SP
catheter.

Stacy,
I am so sorry you're going through all of these trials and tribulations.  I
have been having difficulty with my bowels since I took an antibiotic in
June.  I occasionally get everything under control with the use of
probiotics and dieting, but seems like any little thing would throw me off.
Ironically my bowels have been feeling wonderful since I started taking
Cipro for this UTI.  I am now starting to suspect that I probably had some
sort of bad bacteria in my bowels which were causing a lot of the
irritation.

It's good to be back.  I'll talk to you all later.
Quadius


On 10/2/07, Lori Michaelson <[EMAIL PROTECTED]> wrote:
>
>
> Hi Danny,
>
> You and I have been talking (around 2 years now?) about the chronic UTIs
> that we both have
> been plagued with.  But it seems like you have not had very good luck with
> competent doctors.
> *Neither have I *but I finally found out that "the culprit" were those
> very big, big bladder stones
> that had been sitting in growing in my bladder *for years and kept
> growing.*
>
> Anyway, you said that you have had a bad UTI for a month now!  If it is
> "bad" then I must assume
> it has gone systemic and you have been running a fever with severe chills
> for a whole month?
> Something does not sound right.  Not to mention being extremely
> dangerous!!!  In other words...
>
> what the F***? have you or the doctors than waiting on/for?  After a whole
> month... you just
> got urine culture results today which only take three days (on the
> outside)?
>
> Just before, and after, having my bladder stones removed a year ago this
> past May...
> the bug that came after me twice in 2 months was Pseudomonas.  It is one
> of the worst ones and both times
> I had to be treated with IV antibiotics via a PICC line at home.
>
> Again, you and I have discussed these ongoing UTIs both on list and off
> list.  There must
> be some source, or culprit, causing your chronic infections.  Mine was
> bladder stones
> but it has to be a process of elimination kind of deal.  And only you know
> your body best!
>
> You already know that I have had repeated serious UTIs such as
> Pseudomonas.
> Yes, it is very depressing not to mention life-threatening.  And going
> through an entire month
> ... how in the world did you let it go that long if it WAS so BAD?  My
> fevers that bad really quick
> and I thought I would die before ibuprofen in some sort of antibiotic
> began kicking in.
>
> Then finding out that Pseudomonas has been growing in there the whole
> time?  I would
> began to think that your urologist OR even your regular physician... sits
> around reading
> comic books rather than trying to help you!
>
> As far as how many times one can use the IV drugs before the bug gets
> resistant to them
> it is really academic if you NEED them anyway.  My greatest fear with all
> my troubles ALSO
> was the fear that the bugs were growing more and more resistant.  After
> all...
> when you have to resort to IV antibiotics... that is scary enough!  There
> is nothing left to resort to.
> This is what leads me to think that your position does not give a rat's
> ass about your well-being.
> How you describe it... this is dead serious and something not to just
> brush off again and again.
>
> Also, like I have told you so many times... you might need to travel to
> get a better urologist
> and one really cares about your well-being!  This quack that you keep
> going to has not
> been very helpful... has he?  Therefore, because these things can get
> quite serious...
> you better get real proactive real fast.  If I sound like I am yelling at
> you or preaching
> to you... maybe it is because that I care more about you than your doctor
> does!  Tough love
> if you want to call it that. :-)
>
> I was so upset when I got a Pseudomonas infec

Re: [QUAD-L] Psuedamonas UTI

[Quadius]

I have been out with my own UTI for some time and am just getting a chance
to respond to some of the e-mails.
I hope you're able to get over this UTI pretty quickly.  I agree with Lori
that you need to look for another position ASAP.  A doctor that waits that
long to respond to something as serious as what you have is either
incompetent or seriously negligent.

Take care and hopefully you will be able to go on your vacation.
Quadius


On 10/3/07, Danny Hearn <[EMAIL PROTECTED]> wrote:
>
> HI, LorI,   Yes we have had a lot of uti problems last few years. While
> you were off the list or unable to respond---I wrote about how I also had
> my 1st bladder stone removed just this past Febuary, it was large about a
> golf ball size, So I don't know what is causing my infections now...I was
> hoping after that things would go well for a long time. The Lab my insurance
> uses is INCOMPETENT !  always throwing my culture out saying ( more than 1
> organism ) So last week I made them write MUST TEST FOR ALL
> ORGANISM"S...because I have a supra pubic catheter and ALWAYS have more than
> 1 .  This time they did it correct and found out yesterday it is
> Pseudamonas..I called 1st thing this morn but still have not heard from
> my Urologist as to what to do?  The other 2 times in years past he told me
> wait and see what happens, and  both times I was  rushed to the emergency
> with Autonomic Dysreflexia feeling like I was gonna die...Also my
> bloodstream was infected and my white blood cells were almost gone, I was so
> weak I could hardly sit up.  I'm so confused NOW--I don't know if I should
> wait or if It can possibly get better OR will the past repeat.?  We changed
> my catheter today and flushed with acetic acid..my wife stayed home from
> work to help do all this. To tpo it all off---We had a vacation to Branson
> Mo, planned with family members for 4 day's the 20th to 24th of this month!
> My wife and other family had this scheduled for a year...I sure hope I don't
> cause it to be messed up. Oh well such is life...I hope this will work out
> soon.   Take care and thanks for all the advice from all you on the
> list.!Dan H.
>
> *Lori Michaelson <[EMAIL PROTECTED]>* wrote:
>
>
> Hi Danny,
>
> You and I have been talking (around 2 years now?) about the chronic UTIs
> that we both have
> been plagued with.  But it seems like you have not had very good luck with
> competent doctors.
> *Neither have I *but I finally found out that "the culprit" were those
> very big, big bladder stones
> that had been sitting in growing in my bladder *for years and kept
> growing.*
>  Anyway, you said that you have had a bad UTI for a month now!  If it is
> "bad" then I must assume
> it has gone systemic and you have been running a fever with severe chills
> for a whole month?
> Something does not sound right.  Not to mention being extremely
> dangerous!!!  In other words...
> what the F***? have you or the doctors than waiting on/for?  After a whole
> month... you just
> got urine culture results today which only take three days (on the
> outside)?
>
> Just before, and after, having my bladder stones removed a year ago this
> past May...
> the bug that came after me twice in 2 months was Pseudomonas.  It is one
> of the worst ones and both times
> I had to be treated with IV antibiotics via a PICC line at home.
> Again, you and I have discussed these ongoing UTIs both on list and off
> list.  There must
> be some source, or culprit, causing your chronic infections.  Mine was
> bladder stones
> but it has to be a process of elimination kind of deal.  And only you know
> your body best!
> You already know that I have had repeated serious UTIs such as
> Pseudomonas.
> Yes, it is very depressing not to mention life-threatening.  And going
> through an entire month
> ... how in the world did you let it go that long if it WAS so BAD?  My
> fevers that bad really quick
> and I thought I would die before ibuprofen in some sort of antibiotic
> began kicking in.
> Then finding out that Pseudomonas has been growing in there the whole
> time?  I would
> began to think that your urologist OR even your regular physician... sits
> around reading
> comic books rather than trying to help you!
> As far as how many times one can use the IV drugs before the bug gets
> resistant to them
> it is really academic if you NEED them anyway.  My greatest fear with all
> my troubles ALSO
> was the fear that the bugs were growing more and more resistant.  After
> all...
> when you have to resort to IV antibiotics... that is scary enough!  There
> is nothing left to resort to.
> This is what leads me to think that your position does not give a rat's
> ass about your well-being.
> How you describe it... this is dead serious and something not to just
> brush off again and again.
>
> Also, like I have told you so many times... you might need to travel to
> get a better urologist
> and one really cares about your well-being!  Thi

Re: [QUAD-L] Magic Bullet Suppositories losing their potency?

[Oconnelldb]

 
it probably scares the crap outta you.  no coveting?   NONE??
Dave
 
 
In a message dated 10/9/2007 1:55:32 P.M. US Mountain Standard 
 
Time, [EMAIL PROTECTED] writes:

 
I  asked a pharmacist about the difference between magic bullets and dulcolax 
and  he told me the active ingredients are the same, the magic bullet simply  
dissolves faster. I just use the bisocodyl suppositories and only a digital  
check to be sure I'm empty. The day before I use glyco-lax three times. I  
drink a tall glass of water the night before. 
Medication  changes have always caused some trouble. Anti-biotics either bind 
you up or  clean you out. No telling what they will do next time. I take 
hydro-codone and  it can stop everything so I'm always sure not to take one 6 
hours before  getting on the commode. I mostly need them when I'm up in the 
wheelchair  anyway. Someone said oxycontin bound then up. It would do exactly 
that.  
Opiates and derivetive opiates virtually paralyze your digestive tract for a  
period of time. If you have the runs, hydrocodone, percaset or oxycontin  
should be a remedy. I can't say it enough, do not abuse these drugs! Like  the 
anti biotics and anti siezure drugs some of us use, these are very strong  
drugs. Tylenol is a serious medication that has never caused me to bind up,  
but it 
is hard on the liver. The only time I have a hard time driving my  wheelchair 
is when I'm taking a pain med.  
My  commode chair is rather comfy. My sister made a seat for it with 6 inches 
of  foam that always poofs outward. My feet are on a stool (the kind you put 
feet  on)and there's a sprinkle of baby powder on the seat. Don't remember 
why, but  after 32 years its part of the system. The only time I have trouble 
seems to  be when I'm not using my commode chair. I guess I love my potty!   :->
Oh  yea, the strangest thing I do is read the bible while I'm on my throne. 
I'm  not saying its an act of God. But I seem to go faster and easier. Everyone 
all  together now, "HOLY CRAP BATMAN!" I've tried other books. nada! I'm not  
preaching, it just happens to help me.
 
Best  wishes
john  C-5 post 32





-  Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To:  Lori Michaelson <[EMAIL PROTECTED]>; quad-list@eskimo.com
Sent:  Tuesday, October 9, 2007 3:23:28 PM
Subject: Re: [QUAD-L] Magic Bullet  Suppositories losing their potency?

Lori, I do remember you and a lot of the members talking about  that subject 
of the Magic bullets and it was a while back---but I recall you  and a few 
others saying they seemed to be losing potency, I also recall all  that 
marketing 
Scam or whatever was going on , making them unavailable or very  hard to get 
for a long while. I don't know if any ingredients were changed  then or not. 
We use the other type ( I think the slower acting Veggie oil  based) but we do 
keep Magic Bullets on hand to use on occasion if we are in a  hurry...( I 
think they are water based and a bit faster acting ) if ones  system has not 
changed or like you said--got to be less effective. And like  you stated...Our 
bodies can go thru changes and OR different drugs can have an  effect also.  
Funny 
how this Quad Life can be so complicated, at times we  all must help our own 
doctors even, to solve some problems.   
 Hang in there   Dan""

Lori Michaelson  <[EMAIL PROTECTED]> wrote:

I know that we have discussed this exact topic but it has been at least  a 
year or so since we did so.  Anyway, if you read my previous post you  will 
have 
read that I am back to doing my bowel routine in bed and I am no  longer on 
OxyContin to bind me up.  Even when I was using my bedside  commode and I was 
in an upright position... the Magic Bullets have seemed to  have lost the 
potency they once had. 
I began using them around 1990 when a coworker of mine told me about  them.  
At that time, and for 10 years later, they worked lickety-split  within 30 
minutes and most every time I was completely evacuating all by  myself.  They 
were truly Magic Bullets! 
Even in 1996 when I was hospitalized for my shunt surgery and HAD  to do my 
bowel routine in bed (after using the commode chair for so many  years by then) 
and I had absolutely no problem going after the insertion of  the Magic 
bullet.  This is no longer the case. 
There was a time around three years ago that the makers of the Magic  Bullets 
took them off the market but from my investigation I found out that  it was a 
weird sort of marketing idea because afterward they were more  expensive.  
Most people were told that the formula had to be 'or was'  being changed, etc. 
etc. etc but I did not buy into that foolishness  even if folks still 
believe that as gospel today.  And it WAS THEN, and  since then, that I have 
noticed a great difference by having them not work  like they used to. 
 
Now no matter if I am doing exactly what I was doing before and now  
adding shredded wheat to my diet and other things for encouragement in 

[QUAD-L] NEED YOUR VOTES for bachelor of the year (yes, really)!

[Nichole Rohling]

 NEEDSYOUR VOTES for bachelor of the year (yes, really)!


What fun! You should've seen Sheri trying to explain this one - proud, yet 
slightly embarassed - so cute!  For those you who don't know her - 
She sent me this link to vote for her son in Cosmo's bachelor contest. I think 
he is adorable and I'm sure you will too - if you would please, cast your vote 
for him and pass this on to anyone you think will vote! Thanks! 

NICKI

  > Subject: Ripley is Cosmopolitan's Virginia Bachelor...I NEED YOUR VOTES!
  > 
  > Hey everyone. I was selected to be the Virginia Bachelor for Cosmos annual
  > bachelor issue. I was entered into the contest by a very special person
  > named Heather. Somehow they chose me for Virginia. 
  > 
  > Each state has a bachelor and the winner is chosen by who gets the most
  > online votes. The voting starts tonight at midnight (9 Oct at 12:00 AM) and
  > ends on Thursday at 11:59 PM. There are only 3 days to get as many votes as
  > possible and then the winner is chosen from the guy who gets the most votes!
  > 
  > The magazine comes out on the 16th of October and the winner is announced on
  > the 18th.
  > 
  > I would appreciate you help by voting for me on cosmos website. Here is the
  > web address:
  > 
  > https://subscribe.hearstmags.com/subscribe/cosmopolitan/11643 
  > 
  > Just click on Virginia from the drop down menu and vote as many times as you
  > want. You can only vote 1 time per day per email address you have (the
  > survey will let you vote multiple times with a different email address
  > entered each time). It would be awesome if you would pass on this message
  > to your other friends in your address book and have them vote too. 
  > 
  > 
  > 
  > I appreciate all of your support and for those of you who will, your spears
  > and funny comments. 
  > 
  > 
  > 
  > RIPLEY
  > 
  > This is the link to vote for Dustin as Bachelor of the year. Please pass on 
to your email contacts. Thanks.

  > 

Re: [QUAD-L] Magic Bullet Suppositories losing their potency?

[John S.]

I asked a pharmacist about the difference between magic bullets and dulcolax 
and he told me the active ingredients are the same, the magic bullet simply 
dissolves faster. I just use the bisocodyl suppositories and only a digital 
check to be sure I'm empty. The day before I use glyco-lax three times. I drink 
a tall glass of water the night before. 
Medication changes have always caused some trouble. Anti-biotics either bind 
you up or clean you out. No telling what they will do next time. I take 
hydro-codone and it can stop everything so I'm always sure not to take one 6 
hours before getting on the commode. I mostly need them when I'm up in the 
wheelchair anyway. Someone said oxycontin bound then up. It would do exactly 
that. Opiates and derivetive opiates virtually paralyze your digestive tract 
for a period of time. If you have the runs, hydrocodone, percaset or oxycontin 
should be a remedy. I can't say it enough, do not abuse these drugs! Like the 
anti biotics and anti siezure drugs some of us use, these are very strong 
drugs. Tylenol is a serious medication that has never caused me to bind up, but 
it is hard on the liver. The only time I have a hard time driving my wheelchair 
is when I'm taking a pain med.  
My commode chair is rather comfy. My sister made a seat for it with 6 inches of 
foam that always poofs outward. My feet are on a stool (the kind you put feet 
on)and there's a sprinkle of baby powder on the seat. Don't remember why, but 
after 32 years its part of the system. The only time I have trouble seems to be 
when I'm not using my commode chair. I guess I love my potty!  :->
Oh yea, the strangest thing I do is read the bible while I'm on my throne. I'm 
not saying its an act of God. But I seem to go faster and easier. Everyone all 
together now, "HOLY CRAP BATMAN!" I've tried other books. nada! I'm not 
preaching, it just happens to help me.

Best wishes
john C-5 post 32





- Original Message 
From: Danny Hearn <[EMAIL PROTECTED]>
To: Lori Michaelson <[EMAIL PROTECTED]>; quad-list@eskimo.com
Sent: Tuesday, October 9, 2007 3:23:28 PM
Subject: Re: [QUAD-L] Magic Bullet Suppositories losing their potency?


Lori, I do remember you and a lot of the members talking about that subject of 
the Magic bullets and it was a while back---but I recall you and a few others 
saying they seemed to be losing potency, I also recall all that marketing Scam 
or whatever was going on , making them unavailable or very hard to get for a 
long while. I don't know if any ingredients were changed then or not. We use 
the other type ( I think the slower acting Veggie oil based) but we do keep 
Magic Bullets on hand to use on occasion if we are in a hurry...( I think they 
are water based and a bit faster acting ) if ones system has not changed or 
like you said--got to be less effective. And like you stated...Our bodies can 
go thru changes and OR different drugs can have an effect also.  Funny how this 
Quad Life can be so complicated, at times we all must help our own doctors 
even, to solve some problems.  
   
Hang in there   Dan""

Lori Michaelson <[EMAIL PROTECTED]> wrote:
I know that we have discussed this exact topic but it has been at least a year 
or so since we did so.  Anyway, if you read my previous post you will have read 
that I am back to doing my bowel routine in bed and I am no longer on OxyContin 
to bind me up.  Even when I was using my bedside commode and I was in an 
upright position... the Magic Bullets have seemed to have lost the potency they 
once had. 
I began using them around 1990 when a coworker of mine told me about them.  At 
that time, and for 10 years later, they worked lickety-split within 30 minutes 
and most every time I was completely evacuating all by myself.  They were truly 
Magic Bullets! 
Even in 1996 when I was hospitalized for my shunt surgery and HAD to do my 
bowel routine in bed (after using the commode chair for so many years by then) 
and I had absolutely no problem going after the insertion of the Magic bullet.  
This is no longer the case. 
There was a time around three years ago that the makers of the Magic Bullets 
took them off the market but from my investigation I found out that it was a 
weird sort of marketing idea because afterward they were more expensive.  Most 
people were told that the formula had to be 'or was' being changed, etc. etc. 
etc but I did not buy into that foolishness even if folks still believe 
that as gospel today.  And it WAS THEN, and since then, that I have noticed a 
great difference by having them not work like they used to. 
 
Now no matter if I am doing exactly what I was doing before and now adding 
shredded wheat to my diet and other things for encouragement in the bowel 
department routine... I will feel a whole bunch of pressure as if I am going on 
my own but we will wait an entire hour and it simply will not come out.  S

Re: [QUAD-L] RE: REGULAR B. PROGRAM

[Danny Hearn]

Wow, that is great...Nothing needed but Digital Stem,  that goes to show us 
many things or methods work for different people,, Yes my wife is a gem 
too.All of us that have family to help with caregiving are blessed. My wife 
does all my care including changing my supra-pupic catheter, any irrigation or 
flushing if ever needed and so on.From what All the Members say---finding 
good quality caregivers can be hard.

Dan"

Papillon MF <[EMAIL PROTECTED]> wrote:
I understand your wife completely Dan my husband doesn't appreciate it 
either and I don't like to have to depends on him BUT it's necessary, he helps 
me every day he's a gem. I don't use suppository's my husband stimulate my 
rectum a bit and there it goes no mess no fuss no big deal and I never have 
accidents either. Please read the info. I sent the Quad list on Colon 
cleanig-detox.
  Stay safe and healthy.
  Marie-France
- Original Message - 
  From: Danny Hearn 
  To: Papillon MF ; QUAD-LIST 
  Sent: Tuesday, October 09, 2007 11:39 AM
  Subject: Re: [QUAD-L] RE: REGULAR B. PROGRAM
  

Most the once a day I know either have accidents or can't go each day. Doctors 
tell me that every 3 days is fine, especially if it works regular.God I would 
hate having to sit and go thru that stinking routine EVERY DAY !  It would 
consume a great part of ones daily life. My Wife is my caregiver and works full 
time and told me thank God it is only twice a week, because as much as she 
loves me she could not do it, along with all the other quad stuff too. Plus 
Doctors said the Less one uses suppository's and things that quads use the 
better---because all that stuff causes hemoroids and many other colon related 
cancer in the long term anyway.So  I guess to each whatever works for your 
life.  Dan

Papillon MF <[EMAIL PROTECTED]> wrote:   Hi
  I Go once a day too, couldn't imagine any other way. A while back I send some 
info. regarding the importance of Colon cleaning-detox. I'm a strong believer 
in keeping our body free of toxic and the only way to do that is having BM 
everyday, if not, the toxic in your colon goes back up to your body cells 
resulting in fatigue and an unhealthy body. I wanted to answer Shelly's e-mail, 
but since your answer was so well put I will leave it at that.
  Stay safe
  Marie-France c5-c7 incomplete 4 years post.
  
   

Re: [QUAD-L] Magic Bullet Suppositories losing their potency?

[Danny Hearn]

Lori, I do remember you and a lot of the members talking about that subject of 
the Magic bullets and it was a while back---but I recall you and a few others 
saying they seemed to be losing potency, I also recall all that marketing Scam 
or whatever was going on , making them unavailable or very hard to get for a 
long while. I don't know if any ingredients were changed then or not. We use 
the other type ( I think the slower acting Veggie oil based) but we do keep 
Magic Bullets on hand to use on occasion if we are in a hurry...( I think they 
are water based and a bit faster acting ) if ones system has not changed or 
like you said--got to be less effective. And like you stated...Our bodies can 
go thru changes and OR different drugs can have an effect also.  Funny how this 
Quad Life can be so complicated, at times we all must help our own doctors 
even, to solve some problems.  

 Hang in there   Dan""

Lori Michaelson <[EMAIL PROTECTED]> wrote:
I know that we have discussed this exact topic but it has been at least a 
year or so since we did so.  Anyway, if you read my previous post you will have 
read that I am back to doing my bowel routine in bed and I am no longer on 
OxyContin to bind me up.  Even when I was using my bedside commode and I was in 
an upright position... the Magic Bullets have seemed to have lost the potency 
they once had. 
  I began using them around 1990 when a coworker of mine told me about them.  
At that time, and for 10 years later, they worked lickety-split within 30 
minutes and most every time I was completely evacuating all by myself.  They 
were truly Magic Bullets! 
  Even in 1996 when I was hospitalized for my shunt surgery and HAD to do my 
bowel routine in bed (after using the commode chair for so many years by then) 
and I had absolutely no problem going after the insertion of the Magic bullet.  
This is no longer the case. 
  There was a time around three years ago that the makers of the Magic Bullets 
took them off the market but from my investigation I found out that it was a 
weird sort of marketing idea because afterward they were more expensive.  Most 
people were told that the formula had to be 'or was' being changed, etc. etc. 
etc but I did not buy into that foolishness even if folks still believe 
that as gospel today.  And it WAS THEN, and since then, that I have noticed a 
great difference by having them not work like they used to. 
   
  Now no matter if I am doing exactly what I was doing before and now 
adding shredded wheat to my diet and other things for encouragement in the 
bowel department routine... I will feel a whole bunch of pressure as if I am 
going on my own but we will wait an entire hour and it simply will not come 
out.  So I need the digital help EVERY SINGLE TIME because they're not working 
like they used to.
   
  One could say that my body has changed, etc. etc. and that may be true but, 
especially not being on that binding narcotic anymore, there is no reason I 
should not be going at least partially on my own.  In fact, after weaning 
myself off of the narcotic... for a good week or more afterward I was going at 
all times of the day.  Ugh!  Loose too.   My body was not used to all of a 
sudden not having the narcotic to buying me up a little bit (or a lot) after 
eight years and my bowels had a hay day!  Fortunately it did not take much 
longer than a week to get it straightened out.  But now I am having the 
opposite problem except for I am not bound up or constipated. 
   
  When someone recently posed the question of possibly using two Magic 
Bullets I recently thought about that myself but decided that would be too 
rough on the lower bowel.  They still DO get my stool right there and ready to 
come out but that is the end of the story. 
   
  I remember a week in 1997 when I did not go for that entire week and could 
not figure out why.  I began drinking prune juice daily, super increasing my 
fiber intake with absolutely nothing happening.  It then dawned on me that I 
had began purchasing generic Senokot tablets that did not say "Senokot" on the 
box.  So I had a family member go right to the store and get those and that was 
the whole problem!  I sure went after that!
   
  That is not my problem now however.  But... my bottom line question is still 
"Has anyone noticed the decrease in performance of the Magic Bullets over the 
last several years?"
-- 
Lori 
C4/5 complete quad, 28 years post 
Tucson, AZ 

Re: [QUAD-L] RE: REGULAR B. PROGRAM

[Lori Michaelson]

Yesterday I wrote quite a lengthy e-mail to the Quad list regarding exactly
how I do my bowel program now compared to when I finally left the hospital
and rehab post injury.  For some reason... in my gmail account it said that
the message was sent but it is not in my  box and I see that it never
made it to the list.  :-(  It poofed.
I do not have the energy to write it all over again so I will just say ditto
regarding what Danny just wrote (below).

I am only using a gmail account for the Quad list since Eskimo, for some odd
reason, has not been accepting e-mails from Comcast for well over a year
now.  No big deal ... it's just that I have to get more acquainted with this
gmail account and I don't always have the time.  At a cursory glance... it
looks like a pretty good browser e-mail as far as browser e-mails go.

I also wrote a separate e-mail regarding the magic bullet suppositories and
I see that it never made it to the list either.  So I just tried resending
it again today with hopes that it will go through.

Lori Michaelson
C4/5 complete quad, 28 years post
Tucson, AZ
On 10/9/07, Danny Hearn <[EMAIL PROTECTED]> wrote:

> Most the once a day I know either have accidents or can't go each day.
> Doctors tell me that every 3 days is fine, especially if it works
> regular.God I would hate having to sit and go thru that stinking routine
> EVERY DAY !  It would consume a great part of ones daily life. My Wife is my
> caregiver and works full time and told me thank God it is only twice a week,
> because as much as she loves me she could not do it, along with all the
> other quad stuff too. Plus Doctors said the Less one uses suppository's and
> things that quads use the better---because all that stuff causes hemoroids
> and many other colon related cancer in the long term anyway.So  I guess to
> each whatever works for your life.  Dan
>
> *Papillon MF <[EMAIL PROTECTED]>* wrote:
>
>  Hi
> I Go once a day too, couldn't imagine any other way. A while back I send
> some info. regarding the importance of Colon cleaning-detox. I'm a strong
> believer in keeping our body free of toxic and the only way to do that is
> having BM everyday, if not, the toxic in your colon goes back up to your
> body cells resulting in fatigue and an unhealthy body. I wanted to answer
> Shelly's e-mail, but since your answer was so well put I will leave it at
> that.
> Stay safe
> Marie-France c5-c7 incomplete 4 years post.
>
>

[QUAD-L] Magic Bullet Suppositories losing their potency?

[Lori Michaelson]

I know that we have discussed this exact topic but it has been at least a
year or so since we did so.  Anyway, if you read my previous post you will
have read that I am back to doing my bowel routine in bed and I am no longer
on OxyContin to bind me up.  Even when I was using my bedside commode and I
was in an upright position... the Magic Bullets have seemed to have lost the
potency they once had.

I began using them around 1990 when a coworker of mine told me about them.
At that time, and for 10 years later, they worked lickety-split within 30
minutes and most every time I was completely evacuating all by myself.  They
were truly Magic Bullets!

Even in 1996 when I was hospitalized for my shunt surgery and HAD to do my
bowel routine in bed (after using the commode chair for so many years by
then) and I had absolutely no problem going after the insertion of the Magic
bullet.  This is no longer the case.
There was a time around three years ago that the makers of the Magic Bullets
took them off the market but from my investigation I found out that it was a
weird sort of marketing idea because afterward they were more expensive.
Most people were told that the formula had to be 'or was' being changed,
etc. etc. etc but I did not buy into that foolishness even if folks
still believe that as gospel today.  And it WAS THEN, and since then, that I
have noticed a great difference by having them not work like they used to.

Now no matter if I am doing exactly what I was doing before and now
adding shredded wheat to my diet and other things for encouragement in the
bowel department routine... I will feel a whole bunch of pressure* as if* I
am going on my own but we will wait an entire hour and it simply will not
come out.  So I need the digital help EVERY SINGLE TIME because they're not
working like they used to.

One could say that my body has changed, etc. etc. and that may be true *but,
* especially not being on that binding narcotic anymore, there is no reason
I should not be going at least partially on my own.  In fact, after weaning
myself off of the narcotic... for a good week or more afterward I was going
at all times of the day.  Ugh!  Loose too.   My body was not used to all of
a sudden not having the narcotic to buying me up a little bit (or a lot)
after eight years and my bowels had a hay day!  Fortunately it did not take
much longer than a week to get it straightened out.  But now I am having the
opposite problem except for I am not bound up or constipated.

When someone recently posed the question of possibly using two Magic
Bullets I recently thought about that myself but decided that would be
too rough on the lower bowel.  They still DO get my stool right there and
ready to come out but that is the end of the story.

I remember a week in 1997 when I did not go for that entire week and could
not figure out why.  I began drinking prune juice daily, super increasing my
fiber intake with absolutely nothing happening.  It then dawned on me that I
had began purchasing* generic* Senokot tablets that did not say "Senokot" on
the box.  So I had a family member go right to the store and get those and
that was the whole problem!  I sure went after that!

That is not my problem now however.  But... my bottom line question is still
"Has anyone noticed the decrease in performance of the Magic Bullets over
the last several years?"
-- 
Lori
C4/5 complete quad, 28 years post
Tucson, AZ

Re: [QUAD-L] RE: REGULAR B. PROGRAM

[Danny Hearn]

Most the once a day I know either have accidents or can't go each day. Doctors 
tell me that every 3 days is fine, especially if it works regular.God I would 
hate having to sit and go thru that stinking routine EVERY DAY !  It would 
consume a great part of ones daily life. My Wife is my caregiver and works full 
time and told me thank God it is only twice a week, because as much as she 
loves me she could not do it, along with all the other quad stuff too. Plus 
Doctors said the Less one uses suppository's and things that quads use the 
better---because all that stuff causes hemoroids and many other colon related 
cancer in the long term anyway.So  I guess to each whatever works for your 
life.  Dan

Papillon MF <[EMAIL PROTECTED]> wrote:  Hi
  I Go once a day too, couldn't imagine any other way. A while back I send some 
info. regarding the importance of Colon cleaning-detox. I'm a strong believer 
in keeping our body free of toxic and the only way to do that is having BM 
everyday, if not, the toxic in your colon goes back up to your body cells 
resulting in fatigue and an unhealthy body. I wanted to answer Shelly's e-mail, 
but since your answer was so well put I will leave it at that.
  Stay safe
  Marie-France c5-c7 incomplete 4 years post.
  
   

[QUAD-L] RE: REGULAR B. PROGRAM

[Papillon MF]

  Hi
  I Go once a day too, couldn't imagine any other way. A while back I send some 
info. regarding the importance of Colon cleaning-detox. I'm a strong believer 
in keeping our body free of toxic and the only way to do that is having BM 
everyday, if not, the toxic in your colon goes back up to your body cells 
resulting in fatigue and an unhealthy body. I wanted to answer Shelly's e-mail, 
but since your answer was so well put I will leave it at that.
  Stay safe
  Marie-France c5-c7 incomplete 4 years post.

RE: [QUAD-L] New Van

[RollinOn]

Interesting question, I'll have to look into it.
 

Mark Jackson

   RollinOn

 

 

   _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, October 08, 2007 7:15 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] New Van


Can he place the equal money in a no touch fund like 401, so that you done
have access to it, until you retire
 
Best Wishes



   _  

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