RE: [QUAD-L] Old-timers and newcomers_Checking in
I have a bad time with remembering if I did something or not, it's mostly just my short-term memory that is really messed up. If I try to remember something I usually can but all the things I don't try to remember I have a horrible time recalling them Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://secureminds.us/ From: John S. [mailto:[EMAIL PROTECTED] Sent: Tuesday, January 01, 2008 10:56 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Old-timers and newcomers_Checking in That is like a key question to people with TBI's. I have an awful time with time. 4 years, 10 years, its the same. Anyone else have memory problems? I wouldn't mind if someone who keeps track would tell when I first posted here. john - Original Message From: MissLiz [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, January 1, 2008 8:58:24 AM Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in I have no clue.4 to five years. Hey... For those of you who post regularly (as well as those who do not or just lurk) I was wondering if you all could tell the rest of us how long you have been on this list? I found it in the latter part of 1995 and never unsubscribed except for six months when we were living in temporary quarters at one time around 2000 so it has been 12 1/2 years for me or so. During the last 12 1/2 years I have told at least four people about this list because they had not heard of it. They know who they are. :-) Anyway, it would be refreshing to see how long y'll all have been on the list. Happy new year to you all! -- Lori C4/5 complete quad, 28 years post Tucson , AZ size=2 width=100% align=center More new features than ever. Check out the new AOL Mail http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?ncid=ao lcmp000503 ! _ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try http://us.rd.yahoo.com/evt=51733/*http:/mobile.yahoo.com/;_ylt=Ahu06i62sR8H DtDypao8Wcj9tAcJ%20 it now.
RE: [QUAD-L] Old-timers and newcomers_Checking in
Yes, Danny...I have that at times too, especially with my medsI have to
really take note of the time or an hour or so later I'm wondering if I took
that med or not.
Dan H.
Danny Espinoza [EMAIL PROTECTED] wrote:
v\:* {behavior:url(#default#VML);} o\:* {behavior:url(#default#VML);}
w\:* {behavior:url(#default#VML);} .shape {behavior:url(#default#VML);}
I have a bad time with remembering if I did something or not, it's
mostly just my short-term memory that is really messed up. If I try to
remember something I usually can but all the things I don't try to remember I
have a horrible time recalling them
Danny Espinoza 24/m/California
Occupation before accident - Network engineer / SR. Network security engineer
Broke c2,c6,c7 and doner bone at c2
TBI from blood going to central cortex from spinal cord
off a vent woohoo however only one diaphragm works right now due to
asymmetric SCI
http://secureminds.us/
From: John S. [mailto:[EMAIL PROTECTED]
Sent: Tuesday, January 01, 2008 10:56 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Old-timers and newcomers_Checking in
That is like a key question to people with TBI's. I have an awful time
with time. 4 years, 10 years, its the same. Anyone else have memory problems?
I wouldn't mind if someone who keeps track would tell when I first posted here.
john
- Original Message
From: MissLiz [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Tuesday, January 1, 2008 8:58:24 AM
Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in
I have no clue
4 to five years.
Hey...
For those of you who post regularly (as well as those who do not or just
lurk) I was wondering if you all could tell the rest of us how long you have
been on this list?
I found it in the latter part of 1995 and never unsubscribed except for six
months when we were living in temporary quarters at one time around 2000 so it
has been 12 1/2 years for me or so. During the last 12 1/2 years I have told
at least four people about this list because they had not heard of it. They
know who they are. :-)
Anyway, it would be refreshing to see how long y'll all have been on the
list.
Happy new year to you all!
--
Lori
C4/5 complete quad, 28 years post
Tucson , AZ
size=2 width=100% align=center
More new features than ever. Check out the new AOL Mail!
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
RE: [QUAD-L] Old-timers and newcomers_Checking in
A long time but who remembers such things? Dan At 08:58 AM 1/1/2008 -0500, MissLiz said something that elicited my response: I have no clue4 to five years. Hey... For those of you who post regularly (as well as those who do not or just lurk) I was wondering if you all could tell the rest of us how long you have been on this list? I found it in the latter part of 1995 and never unsubscribed except for six months when we were living in temporary quarters at one time around 2000 so it has been 12 1/2 years for me or so. During the last 12 1/2 years I have told at least four people about this list because they had not heard of it. They know who they are. :-) Anyway, it would be refreshing to see how long y'll all have been on the list. Happy new year to you all! -- Lori C4/5 complete quad, 28 years post Tucson, AZ size=2 width=100% align=center More new features than ever. Check out the new http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?ncid=aolcmp000503AOL Mail!
RE: [QUAD-L] Old-timers and newcomers_Checking in
5 years Happy New Years! Silas From: MissLiz [mailto:[EMAIL PROTECTED] Sent: Tuesday, January 01, 2008 7:58 AM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in I have no clue.4 to five years. Hey... For those of you who post regularly (as well as those who do not or just lurk) I was wondering if you all could tell the rest of us how long you have been on this list? I found it in the latter part of 1995 and never unsubscribed except for six months when we were living in temporary quarters at one time around 2000 so it has been 12 1/2 years for me or so. During the last 12 1/2 years I have told at least four people about this list because they had not heard of it. They know who they are. :-) Anyway, it would be refreshing to see how long y'll all have been on the list. Happy new year to you all! -- Lori C4/5 complete quad, 28 years post Tucson, AZ hr size=2 width=100% align=center More new features than ever. Check out the new AOL Mail http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?ncid=ao lcmp000503 !
Re: [QUAD-L] Old-timers and newcomers_Checking in/memory
I wouldn't mind if someone who keeps track would tell when I first posted here. Hi John, I don't keep track but I *think* you started posting about 6 mos ago. I know it hasn't been over a yr. The reason I took notice was because you are from Ohio. My short term memory is shot. I believe it's from my meds which are pain meds. I have to write a note about everything! Dianna **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
RE: [QUAD-L] are you happy?
I can honestly say that I am very happy with my life. It certainly helped that I was 51 when I broke my neck, because I already had a full life so I did not have as many regrets that I had missed many opportunities. I think I have more appreciation of each little thing that happens that I did before I broke my neck. I would not choose this, but I am determined to live and enjoy my life for as long as God allows me to. I hope that you find peace and happiness in your future. Joan C4 quad complete 1990 From: Danny Espinoza [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 26, 2007 10:25 AM To: quad-list@eskimo.com Subject: [QUAD-L] are you happy? Just curious if any are honestly happy with your lives? I try to pretend but its getting harder as the days bye . I recently broke up with my fiancé . I felt like I couldnt keep her happy and that she deserved to be . Even if that means I wont Im getting used to it . Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://secureminds.us/ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.8/1196 - Release Date: 12/25/2007 12:18 PM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.12/1203 - Release Date: 12/30/2007 11:27 AM
[QUAD-L] ELF- snow ball throwing contest- if you feel lucky
From: wheelchair To: PWRLNMNsmkFTL69 CC: wheelchair Sent: 12/26/2007 7:35:03 A.M. Central Standard Time Subj: ELF _Elf_ (http://www.elfmovie.com/swf/snowball_fight/index.html) See AOL's _top rated recipes_ (http://food.aol.com/top-rated-recipes?NCID=aoltop000304) and _easy ways to stay in shape_ (http://body.aol.com/fitness/winter-exercise?NCID=aoltop000303) for winter. **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] Old-timers and newcomers_Checking in
I'm glad to hear you all are having memory problems too! Lindaf Anyone else have memory problems? I wouldn't mind if someone who keeps track would tell when I first posted here. john - Original Message From: MissLiz [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, January 1, 2008 8:58:24 AM Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in I have no clue.4 to five years. Hey... For those of you who post regularly (as well as those who do not or just lurk) I was wondering if you all could tell the rest of us how long you have been on this list? I found it in the latter part of 1995 and never unsubscribed except for six months when we were living in temporary quarters at one time around 2000 so it has been 12 1/2 years for me or so. During the last 12 1/2 years I have told at least four people about this list because they had not heard of it. They know who they are. :-) Anyway, it would be refreshing to see how long y'll all have been on the list. Happy new year to you all! -- Lori C4/5 complete quad, 28 years post Tucson , AZ size=2 width=100% align=center More new features than ever. Check out the new AOL Mail! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008 11:29 AM
FW: [QUAD-L] Old-timers and newcomers_Checking in
I joined in 2002. From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in Date: Wed, 2 Jan 2008 13:20:13 -0600 5 years Happy New Years! Silas From: MissLiz [mailto:[EMAIL PROTECTED] Sent: Tuesday, January 01, 2008 7:58 AM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in I have no clue…4 to five years. Hey... For those of you who post regularly (as well as those who do not or just lurk) I was wondering if you all could tell the rest of us how long you have been on this list? I found it in the latter part of 1995 and never unsubscribed except for six months when we were living in temporary quarters at one time around 2000 so it has been 12 1/2 years for me or so. During the last 12 1/2 years I have told at least four people about this list because they had not heard of it. They know who they are. :-) Anyway, it would be refreshing to see how long y'll all have been on the list. Happy new year to you all! -- Lori C4/5 complete quad, 28 years post Tucson, AZ hr size=2 width=100% align=center More new features than ever. Check out the new AOL Mail! _ Don't get caught with egg on your face. Play Chicktionary! http://club.live.com/chicktionary.aspx?icid=chick_wlhmtextlink1_dec
[QUAD-L] time
Unfortunately, many of us have such a set routine that the days blur together. I have a terrible time with short term memory. I have to write down phone numbers even if I am only crossing the room. I can remember students from 20 years ago but not yesterday. Pitiful. _ Get the power of Windows + Web with the new Windows Live. http://www.windowslive.com?ocid=TXT_TAGHM_Wave2_powerofwindows_122007
Re: [QUAD-L] (no subject)/Community
I have been talking to a developer that due to the very poor real estate market would consider a community development for para/quad/tetra...Club House, Specail Pool, Gym..thinking of all the rehab at Shepherd.. Have own drug store, therapist, equipment technologist, registered nurse...everything that is needed and so hard to come by as per quad emails..Set up business center to train for work or carry on own business.. Vans available for trips to Atlanta/Opera/High Musuem of Art/Shepherds/VA Hospital/etc. all within 30 miles..Kind of like a private club...I know it isn't the best of all worlds..but maybe 40 years ago..Senior Living was put into place..a lot of folks like it and moved to such communities...I'm 75 and would never want to live in such a community..but that is me...The whole situation is set up as a Condo Complex and run by your own management team..etc..etc..To Blue Sky?..Might be worth a try...Maybe get a few large corporations to back it..UPS/HOME DEPOT/ RUBBERMAID/ ETC. Home Depot founders are very big funding backers of Shepherds...Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
i visited a house in champagne illinois that housed 4 quads on level 1, a care giver in the basement and another in the upstairs.? seemed like a pretty handy setup.? if there were 5 or 10 houses like this in a row, it would be even better for everyone.? lots of us don't need 24/7 attention but when we need it, we REALLY need it.? i would live in such a place in a heartbeat if i was alone. dave -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com; [EMAIL PROTECTED] Sent: Wed, 2 Jan 2008 2:24 pm Subject: Re: [QUAD-L] (no subject)/Community I have been talking to a developer that due to the very poor real estate market would consider a community development for para/quad/tetra...Club House, Specail Pool, Gym..thinking of all the rehab at Shepherd.. ? Have own drug store, therapist, equipment technologist, registered nurse...everything that is needed and so hard to come by as per quad emails..Set up business center to train for work or carry on own business.. ? Vans available for trips to Atlanta/Opera/High Musuem of Art/Shepherds/VA Hospital/etc. all within 30 miles..Kind of like a private club...I know it isn't the best of all worlds..but maybe 40 years ago..Senior Living was put into place..a lot of folks like it and moved to such communities...I'm 75 and would never want to live in such a community..but that is me...The whole situation is set up as a Condo Complex and run by your own management team..etc..etc..To Blue Sky?..Might be worth a try...Maybe get a few large corporations to back it..UPS/HOME DEPOT/ RUBBERMAID/ ETC.? Home Depot founders are very big funding backers of Shepherds...Myron See AOL's top rated recipes and easy ways to stay in shape for winter. More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.com
Re: FW: [QUAD-L] Old-timers and newcomers_Checking in
I got injured in a car wreck Aug-3rd 1997--about a year later, Found this
site--so I been here about 9 years or so. Dan H. c-610+
years post. St.Louis, Mo.
William Willis [EMAIL PROTECTED] wrote: .hmmessage P { margin:0px;
padding:0px } body.hmmessage { FONT-SIZE: 10pt; FONT-FAMILY:Tahoma }
I joined in 2002.
-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in
Date: Wed, 2 Jan 2008 13:20:13 -0600
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5 years Happy New Years! Silas
From: MissLiz [mailto:[EMAIL PROTECTED]
Sent: Tuesday, January 01, 2008 7:58 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] Old-timers and newcomers_Checking in
I have no clue
4 to five years.
Hey...
For those of you who post regularly (as well as those who do not or just
lurk) I was wondering if you all could tell the rest of us how long you have
been on this list?
I found it in the latter part of 1995 and never unsubscribed except for six
months when we were living in temporary quarters at one time around 2000 so it
has been 12 1/2 years for me or so. During the last 12 1/2 years I have told
at least four people about this list because they had not heard of it. They
know who they are. :-)
Anyway, it would be refreshing to see how long y'll all have been on the
list.
Happy new year to you all!
--
Lori
C4/5 complete quad, 28 years post
Tucson, AZ
hr size=2 width=100% align=center
More new features than ever. Check out the new AOL Mail!
-
Don't get caught with egg on your face. Play Chicktionary! Check it out!
Re: [QUAD-L] (no subject)/Community
I understand the problem with funding and money for disabled..i didn't 30 days ago..but I see it now..The project and its funding..I am working on now...If I could get enough families, folks, etc. to say interested..i think, I can get the lenders, banks, corporations to back the community idea..I am not aware of anything like it in the World..Japan has communities..but they were set up..to hide family problems of disability..things may have changed..Keep the advice coming..The more I learn the less I know..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
[QUAD-L] questions
Someone was talking about meds they started because of a sore last week but I don't remember name of med. if someone could tell me that be great. Also those people with spouses, my wife is more my care giver than wife, any idea's on how to reverse this? And for those with penis implants what are the draw backs if any thank you T- C3-4 1998 Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] (no subject)/Community
Thanks Dave..I would also..due to the need to have someone available..when you don't expect a turn of events..My wife..just developed terrible pain in her feet..she can't stand up at all..I would give anything to have someone or two persons..come by and help me to get her out of her chairbed..This all came about within the past few weeks..She is 75..So am I..I am healtthy..But being a care giver is a tough job..been doing it for the past 10 months..the point is..you never know when you need someone..Lucky in Atlanta..we have the Fire Department that responds right away..and can give a hand in lifting..Thanks for the comments..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L]Community
Considering your potential customers, which by law, can not/should not a pot to pizz in. I don't know if there will be that great of a demand in Atlanta to complete your phase one project. I don't know of anyone who would just pick up and move from the snow belt or anywhere else just to live in a planned community. But if you are truly interested I may have a tangible lead for you. Best Wishes In a message dated 1/2/2008 3:50:52 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I understand the problem with funding and money for disabled..i didn't 30 days ago..but I see it now..The project and its funding..I am working on now...If I could get enough families, folks, etc. to say interested..i think, I can get the lenders, banks, corporations to back the community idea..I am not aware of anything like it in the World..Japan has communities..but they were set up..to hide family problems of disability..things may have changed..Keep the advice coming..The more I learn the less I know..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
A lift chair may help you and others with the transfer problems and can also serve as a sleeper. Best Wishes In a message dated 1/2/2008 3:56:21 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Thanks Dave..I would also..due to the need to have someone available..when you don't expect a turn of events..My wife..just developed terrible pain in her feet..she can't stand up at all..I would give anything to have someone or two persons..come by and help me to get her out of her chairbed..This all came about within the past few weeks..She is 75..So am I..I am healtthy..But being a care giver is a tough job..been doing it for the past 10 months..the point is..you never know when you need someone..Lucky in Atlanta..we have the Fire Department that responds right away..and can give a hand in lifting..Thanks for the comments..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L]Community
I have no idea...eitherI'm going to test the waters..see what happensThe only reason I thought it might work..is that REal Estate is so bad..that..property can be obtained..at a good price...and if i can get some corporate backing, trusts..etc.. Maybe?..Turn operation control over to 501c3 that works with disability only..Thanks for the information..Negative sometimes better than positive as it can save time and another direction might work better..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
[QUAD-L] Cold? I would suggest these!
For those of you who are out there in states that are bitter cold (I see it is barely in the teens in Chicago today) or get cold in the house like I do even though I live in southern Arizona... I'd like to make a suggestion. My husband bought these for me for Christmas. He found them the least expensive on eBay. They're perfect for gals or guys! Prior to nine years ago... fashion was very important to me and I would not be caught dead in sweatpants or anything other than nice jeans, nice shoes, matching this and that, etc. etc. etc.. But then warmth, necessity and age allowed me to change my wardrobe somewhat. In 1997 my feet and ankles began swelling like the sizes of big potatoes. I had to stop wearing tennis shoes and turned to other shoes so I would not get pressure because of my fat feet not fitting in anything. Further... it seemed as time goes on... the colder I would get very easily. Anyway... I wanted to attest that the following Tempur-Pedic Foot Comforters are very, very nice! I have been wearing sandals of some sort over the last seven years and in the winter time I put socks or colored stockings on and then the sandals. At first I thought that they would look too big or out of place but they are actually pretty stylish. The ones that I have are very dark navy blue (that I can only tell when I put them on with my black pants) and are so plush that I just put my bare feet into them. Also... a sore that I have had for many months has JUST healed although it is still a little pink. Since it is my husband would have to deal with the repercussions of the sore coming back...HE WOULD NOT EVEN ATEMPT OR ALLOW me to wear these. But since I am wearing them... that is how soft they are and rather pressure less (since absolutely no pressure is the only solution to get rid of a sore). So if anyone is interested in keeping their feet warm (which will help warm you all over)... check out the following product: http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItemrd=1item=120196407260ssPageName=STRK:MEWN:ITih=002#ebayphotohosting Shipping and handling is free within the United States and this is the best price we could find on the product. NO... I am not the seller! Just trying to help somebody out who easily gets cold. It is sunny and 64° here today but chilly in the shade and the same temperature as always in the house. But I love my new foot comforters despite that! -- Lori C4/5 complete quad, 28 years post Tucson, AZ
Re: [QUAD-L]Community
The link I am providing you will be overwhelming in its contents. Please don't let it overwhelm you and your dreams, as you are not the 1st, nor will you be the last. _www.otrassn.com/index.html_ (http://www.otrassn.com/index.html) _Welcome to Over The Rainbow Association_ (http://www.otrassn.com/index.html) Leo the K, was a subscriber to this list for awhile back, is a board member of this fine organization that builds communities. You can call or email them and ask for Leo. They have been around for 20 plus years and know the ropes, windfalls and pitfalls of launching your dream. Best Wishes W In a message dated 1/2/2008 4:09:08 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I have no idea...eitherI'm going to test the waters..see what happensThe only reason I thought it might work..is that REal Estate is so bad..that..property can be obtained..at a good price...and if i can get some corporate backing, trusts..etc.. Maybe?..Turn operation control over to 501c3 that works with disability only..Thanks for the information..Negative sometimes better than positive as it can save time and another direction might work better..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] Permobils Minivans
I would think that a letter (a very good letter) by an occupational therapist would get by the Medicare guidelines. I will be finding that out when I go to look for a new chair myself. I very highly doubt that the size of minivans have changed. Yes, it is very annoying to have to duck my head but I have gotten used to it now. All the items you talked about should fit in the back of the minivan. Since I do not drive and I pull in and pull into the passenger side... we took out the middle seat. I am very glad that I have my Permobil that turns on a dime because otherwise that would be a pain. Although I do not remember it being a problem with my old chair *that did not have* rear wheel drive like the Permobil and several other new chairs out there. It is only a tight fit for me to turn after I get up the ramp because my EZ Lock is right there to my right and I have to maneuver myself *just right so that my front right tire does not keep running into it or scraping it. I have scraped against it many times but the tires have still held up well. Well, the right tire anyway!* I am sure that minivans are much better with mileage for obvious reasons but that is why you have to consider all the pros and cons. For example... my husband has been saying that our next van would probably be a full-sized one again. But having lived in freezing cold areas and very hot areas... I love the ability to zoom up the ramp rather than having to wait on all the hydraulics that come along with all the other lifts (with full-sized vans) to open them, close them, lower them, etc.. The minivan ramp just drops down really quickly. Only time will tell if and when I get a new chair or a new van myself! Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ On Dec 31, 2007 3:57 PM, [EMAIL PROTECTED] wrote: Thank you for the information. I have the elevate but I have been told that with the new Medicare guidelines you can no longer get the elevate.. I wonder if all minivans are the same height. That would be a pain to have to duck your head. Do you have any problems with space trying to carry the things that you need as you go anywhere. I have so many things in my van that I'd tape just in case, like blankets, my suction machine, extra ramps, a jumpy 2000, that will start your van without another vehicle and probably a lot of other things. I really like the elevate because it helps me reach things even though I cannot do much, wide turn the thermostat up, see if I am at a concert and people are standing up, push on my remote easier with my stick on my splint. It seems like the mileage would be better. Is gas cheaper for your minivan compared to your Ford Econoline? Thank you so much for your input you are always so clear and informative. Dana
Re: [QUAD-L] Old-timers and newcomers_Checking in/memory
It was quite easy to know when I got on this list because it was shortly after I got on the Internet. In early 1995I did not even know a single thing about the Internet. Then I signed up but ended up being in the hospital for two weeks with my shunt surgeries. I remember thinking, lying there in the hospital, that I had just signed up for the Internet and was paying for it but could not use it or learn how to use it! I usually can keep track of things (anything) by where I was or who I was with at the time something happened or occurred. Or categories. Like I can remember certain things that were pre-my ex significant other. Or when I was with him. Or where we lived. And then after I split up with him and what I was doing in the interim between breaking up with him and marrying my current husband. And what I have done and where I have lived since our marriage over the last 10 years. Kind of like where I was and who I was with when this or that happened. Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ
Re: [QUAD-L] Old-timers and newcomers_Checking in/memory
I think it sometime after 1993 as that was when I first got the Internet. One of my aides found the quadlist for me. I remember reading it but I didn't really post. I was really happy when she found this for me because it made me feel like there were a lot of other people in my same situation that I could relate to. I live in a large metropolitan area of Kansas City in a suburb in Kansas , but I don't really know hardly any quadriplegics. Shortly after I got out of the hospital at KU and was through my rehabilitation at Yonkers in Des Moines Iowa. We had monthly meetings at each other's houses but that didn't last very long and we did not really keep in contact. There's only one person that I still hear out through my mother, because his mother is good friends with one of my mother's friends and he is a great artist. He has a show every year in a park, but it is always on the day when my best friend, who is the main person that takes me out, is not off. One year my sister-in-law take me but we got there when it was over, so I never got to see any of his artwork. I don't really remember when I first started posting. Thank you so much Jim, for starting this wonderful list and for all the other participants, who make it what it is today. The wealth of information that everyone provides makes it a great place to be. Dana ( C-4-5, 33 years post, 54, Prairie Village Kansas which is a suburb of Kansas City) please everybody post pictures on Mark's website, so we know who everyone is. .http://health.groups.yahoo.com/group/DisabledOfAmerica/ **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L]Community
Thank you..Wonderful site and what they do..You saved me 100's of hours..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L]Community
That is wonderful news! Best Wishes In a message dated 1/2/2008 5:29:12 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Thank you..Wonderful site and what they do..You saved me 100's of hours..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] Cold? I would suggest these!
ARE they slippery or rubber bottomed? i put my feet on hardwood floors to transfer and slipery isn't cool. i have an electric heater under my desk on lo so i don't burn. dave -Original Message- From: Lori Michaelson [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wed, 2 Jan 2008 3:18 pm Subject: [QUAD-L] Cold? I would suggest these! For those of you who are out there in states that are bitter cold (I see it is barely in the teens in Chicago today) or get cold in the house like I do even though I live in southern Arizona... I'd like to make a suggestion. My husband bought these for me for Christmas. He found them the least expensive on eBay. They're perfect for gals or guys! Prior to nine years ago... fashion was very important to me and I would not be caught dead in sweatpants or anything other than nice jeans, nice shoes, matching this and that, etc. etc. etc.. But then warmth, necessity and age allowed me to change my wardrobe somewhat. In 1997 my feet and ankles began swelling like the sizes of big potatoes. I had to stop wearing tennis shoes and turned to other shoes so I would not get pressure because of my fat feet not fitting in anything. Further... it seemed as time goes on... the colder I would get very easily. Anyway... I wanted to attest that the following Tempur-Pedic Foot Comforters are very, very nice! I have been wearing sandals of some sort over the last seven years and in the winter time I put socks or colored stockings on and then the sandals. At first I thought that they would look too big or out of place but they are actually pretty stylish. The ones that I have are very dark navy blue (that I can only tell when I put them on with my black pants) and are so plush that I just put my bare feet into them. Also... a sore that I have had for many months has JUST healed although it is still a little pink. Since it is my husband would have to deal with the repercussions of the sore coming back...HE WOULD NOT EVEN ATEMPT OR ALLOW me to wear these. But since I am wearing them... that is how soft they are and rather pressure less (since absolutely no pressure is the only solution to get rid of a sore). So if anyone is interested in keeping their feet warm (which will help warm you all over)... check out the following product: http://cgi.ebay.com/ws/eBayISAPI.dll?ViewItemrd=1item=120196407260ssPageName=STRK:MEWN:ITih=002#ebayphotohosting Shipping and handling is free within the United States and this is the best price we could find on the product. NO... I am not the seller! Just trying to help somebody out who easily gets cold. It is sunny and 64° here today but chilly in the shade and the same temperature as always in the house. But I love my new foot comforters despite that! -- Lori C4/5 complete quad, 28 years post Tucson, AZ More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.com
Re: [QUAD-L] (no subject)/Community
Myron, Perhaps you could get a hoyer lift to help you with your wife's care. That is what the girls do to get me up. Being a caregiver is a tuff job, I am sure you get tired. We just don't realize how hard it can be at times. In the long run your wife knows how hard it can be as the patient. Lindaf
[QUAD-L] New Years Event
Hey Linda F. How come you didn't tell the world about you and Warrior going out on NewYears Eve? Warrior called me and said that her kneecaps are busted and her hams strained. What did you guys do on New Years Eve? Speaking of a hoyer for Warrior. She's going to need one now. You guys have to stay away for the Valpo Hoods. Geez Girl W In a message dated 1/2/2008 6:08:20 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Myron, Perhaps you could get a hoyer lift to help you with your wife's care. That is what the girls do to get me up. Being a caregiver is a tuff job, I am sure you get tired. We just don't realize how hard it can be at times. In the long run your wife knows how hard it can be as the patient. Lindaf **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
[QUAD-L] Fwd: MY BAD - Send the CCA hearing to supporters FAR AND WIDE!
**See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304) ---BeginMessage--- The House Hearing for the Community Choice Act has been set! The hearing on CCA and other long term care issues will be held on Wednesday, January 16, 2008 at 10 am. The hearing will held by the Health Subcommittee of the House Energy and Commerce committee. we still don't have the details on what room but we will let you know when we get them. We want a BIG turnout, like we had for the Senate hearing. If you have a orange shirt, wear it because it showed up very well not only in the hearing room, but on the internet as well! This hearing will keep the momentum going for passage of CCA and reform of the long term services and supports system. Let's keep pushing MFP and getting it implemented in the states, BUT let's also focus on passage of CCA! This hearing is the next step... The ADAPT Community www.adapt.org Celebrating 25 years of Activism April 26th-May 2nd Washington, DC www.adapt25.org NATIONAL ADAPT MAILING LIST - Adapt Community Choice Act List http://www.adapt.org ---End Message---
Re: [QUAD-L] questions
Hi Tom, I don't know too much about penis implants other than being a surgical nurse during the insertion during surgery. I do know they have come along way with the improvement of implants. You also wanted to know about medication for a pressure sore, I have one on the gluteal fold of my left buttocks it is almost healed. We are using nitrostatin powder, a small piece of auglicill covered with small piece of polymehm metaphor tape. Hope this helps. Lindaf - Original Message - From: tom garbisch To: quad list Sent: Wednesday, January 02, 2008 3:54 PM Subject: [QUAD-L] questions Someone was talking about meds they started because of a sore last week but I don't remember name of med. if someone could tell me that be great. Also those people with spouses, my wife is more my care giver than wife, any idea's on how to reverse this? And for those with penis implants what are the draw backs if any thank you T- C3-4 1998 -- Never miss a thing. Make Yahoo your homepage. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008 11:29 AM
Re: [QUAD-L] (no subject)/Community
Thanks again..SpinLife was reccommended by Shepherds for equipment..They have them available..plus a sling..I guess you attach to sling and raise the person..seems simple enough..I will go over this with my daughter tomorrow..She is a Georgia Tech Graduate as well..I guess we can figure it out.Will call SpinLife tomorrowMyron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
Durable Medical Goods dealers. They are in most anywhere. They sell home medical supplies and equipment. Remember, its like buying shoes in they have to fit you otherwise. Best Wishes W In a message dated 1/2/2008 8:30:47 P.M. Central Standard Time, MyronBenLevy writes: Thank you..What is a DME?..where do I find one..Forgive me for my lack of knowledge..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
I would try a few out at a local DME before making any decisions. Spinlife is good, but you can't try out the products on the internet Best Wishes In a message dated 1/2/2008 8:22:00 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Thanks again..SpinLife was reccommended by Shepherds for equipment..They have them available..plus a sling..I guess you attach to sling and raise the person..seems simple enough..I will go over this with my daughter tomorrow..She is a Georgia Tech Graduate as well..I guess we can figure it out.Will call SpinLife tomorrowMyron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
Thank you..What is a DME?..where do I find one..Forgive me for my lack of knowledge..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
[QUAD-L] Community
Shepard Hospital, has a list of DMEs in your area, and then some. They may also have a technology center there for you to try out some of the equipment you are seeking. Best Wishes In a message dated 1/2/2008 9:03:44 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Thank you..What is a DME?..where do I find one..Forgive me for my lack of knowledge..Myron **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
Hi Dave, do you know if it was funded or private pay? Dana In a message dated 1/2/2008 3:41:33 P.M. Central Standard Time, [EMAIL PROTECTED] writes: i visited a house in champagne illinois that housed 4 quads on level 1, a care giver in the basement and another in the upstairs. seemed like a pretty handy setup. if there were 5 or 10 houses like this in a row, it would be even better for everyone. lots of us don't need 24/7 attention but when we need it, we REALLY need it. i would live in such a place in a heartbeat if i was alone. dave -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com; [EMAIL PROTECTED] Sent: Wed, 2 Jan 2008 2:24 pm Subject: Re: [QUAD-L] (no subject)/Community I have been talking to a developer that due to the very poor real estate market would consider a community development for para/quad/tetra...Club House, Specail Pool, Gym..thinking of all the rehab at Shepherd.. Have own drug store, therapist, equipment technologist, registered nurse...everything that is needed and so hard to come by as per quad emails..Set up business center to train for work or carry on own business.. Vans available for trips to Atlanta/Opera/High Musuem of Art/Shepherds/VA Hospital/etc. all within 30 miles..Kind of like a private club...I know it isn't the best of all worlds..but maybe 40 years ago..Senior Living was put into place..a lot of folks like it and moved to such communities...I'm 75 and would never want to live in such a community..but that is me...The whole situation is set up as a Condo Complex and run by your own management team..etc..etc..To Blue Sky?..Might be worth a try...Maybe get a few large corporations to back it..UPS/HOME DEPOT/ RUBBERMAID/ ETC. Home Depot founders are very big funding backers of Shepherds...Myron See AOL's _top rated recipes_ (http://food.aol.com/top-rated-recipes?NCID=aoltop000304) and _easy ways to stay in shape_ (http://body.aol.com/fitness/winter-exercise?NCID=aoltop000303) for winter. More new features than ever. Check out the new _AOL Mail_ (http://o.aolcdn.com/cdn.webmail.aol.com/mailtour/aol/en-us/text.htm?ncid=aolcmp000503) ! **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
[QUAD-L] CCA Letter to Ed in NYT...just fyi
In a message dated 1/2/2008 3:29:14 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Posted by: Carl Herr [EMAIL PROTECTED] Sat Dec 29, 2007 7:38 pm (PST) Carl Herr's letter to the Editor made the New York Times in the City Section: It's not th whole letterHere's how it ran. State Budget Cutters: Don't Limit Home Aides To the editor: Out of all the state budget cuts suggested by Diana Fortuna, president of the Citizens Budget Commission (An Easy Trim Op-Ed, Dec. 16), the unkindest one was to limit the hours of home attendant service. Many people with home attendants depend on them so they can continue to live in the community. Lowering the hours covered by Medicaid would mean cutting back on their quality of life. They would risk slipping back into institutional care, poverty and neglect. What is needed is financing to help people move from nursing home care to living in the community. This would actually both save money and promote the humanitarian needs of elderly people and people with disabilities. A bill before Congress, the Community Choice Act is a better idea Carl Herr Flushing, Queens The writer is president of the board of the Alexandre Foundation More new features than ever. Check out the new AOL Mail! NATIONAL ADAPT MAILING LIST - Adapt Community Choice Act List http://www.adapt.org **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304) ---BeginMessage--- Posted by: Carl Herr [EMAIL PROTECTED] Sat Dec 29, 2007 7:38 pm (PST) Carl Herr's letter to the Editor made the New York Times in the City Section: It's not th whole letterHere's how it ran. State Budget Cutters: Don't Limit Home Aides To the editor: Out of all the state budget cuts suggested by Diana Fortuna, president of the Citizens Budget Commission (An Easy Trim Op-Ed, Dec. 16), the unkindest one was to limit the hours of home attendant service. Many people with home attendants depend on them so they can continue to live in the community. Lowering the hours covered by Medicaid would mean cutting back on their quality of life. They would risk slipping back into institutional care, poverty and neglect. What is needed is financing to help people move from nursing home care to living in the community. This would actually both save money and promote the humanitarian needs of elderly people and people with disabilities. A bill before Congress, the Community Choice Act is a better idea Carl Herr Flushing, Queens The writer is president of the board of the Alexandre Foundation More new features than ever. Check out the new AOL Mail! NATIONAL ADAPT MAILING LIST - Adapt Community Choice Act List http://www.adapt.org ---End Message---
Re: [QUAD-L] (no subject)/Community
Where would this be? who would fund this and would it just before the wealthy persons with disabilities? Dana In a message dated 1/2/2008 3:25:44 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I have been talking to a developer that due to the very poor real estate market would consider a community development for para/quad/tetra...Club House, Specail Pool, Gym..thinking of all the rehab at Shepherd.. Have own drug store, therapist, equipment technologist, registered nurse...everything that is needed and so hard to come by as per quad emails..Set up business center to train for work or carry on own business.. Vans available for trips to Atlanta/Opera/High Musuem of Art/Shepherds/VA Hospital/etc. all within 30 miles..Kind of like a private club...I know it isn't the best of all worlds..but maybe 40 years ago..Senior Living was put into place..a lot of folks like it and moved to such communities...I'm 75 and would never want to live in such a community..but that is me...The whole situation is set up as a Condo Complex and run by your own management team..etc..etc..To Blue Sky?..Might be worth a try...Maybe get a few large corporations to back it..UPS/HOME DEPOT/ RUBBERMAID/ ETC. Home Depot founders are very big funding backers of Shepherds...Myron See AOL's _top rated recipes_ (http://food.aol.com/top-rated-recipes?NCID=aoltop000304) and _easy ways to stay in shape_ (http://body.aol.com/fitness/winter-exercise?NCID=aoltop000303) for winter. **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
Good question Dana. Also would this place be for individuals or family members as well. How about aging seniors and developmental disabled. Would this place accept those in Atlanta only or the State of Georgia? How about those from other states and their families? How about those without funds or money? Who writes and establishes the criteria? Intelligent Minds, want to know. Best Wishes In a message dated 1/2/2008 10:12:07 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Where would this be? who would fund this and would it just before the wealthy persons with disabilities? Dana **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] (no subject)/Community
I'm sure that he's referring to Gimp House on the campus of U of Illinois. It's owned by the campus. Voc Rehab has paid for most of the budgets over the years with attending students. I've seen the same at Ball State in Muncie, IN and Kent State in Ohio. Best Wishes In a message dated 1/2/2008 10:06:40 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Hi Dave, do you know if it was funded or private pay? Dana In a message dated 1/2/2008 3:41:33 P.M. Central Standard Time, [EMAIL PROTECTED] writes: i visited a house in champagne illinois that housed 4 quads on level 1, a care giver in the basement and another in the upstairs. seemed like a pretty handy setup. if there were 5 or 10 houses like this in a row, it would be even better for everyone. lots of us don't need 24/7 attention but when we need it, we REALLY need it. i would live in such a place in a heartbeat if i was alone. dave **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
Re: [QUAD-L] Gimp project
I live in Kansas Myron,. I doubt that I would move away from my family, unless it was really a good place to live. My family doesn't do a lot for me physically, but it's nice to have family around and I am on a fixed budget and I get my care through self-directed care so I don't have money to travel back and forth. It is a great idea for those who can afford to do so. I think it would be great to be in a warmer state. We have had a horrible winter in Kansas. I can't imagine the government paying for anything that is that elaborate! They haven't yet and the budget is getting tighter. I sure don't like that last e-mail from adapt to cut care hours, which would put a lot of us in nursing homes for sure. I think you often get more funding when you are going to college? Do a lot of you worry about your future, I sure do. It's hard to find PCA's on the amount of money they give us through self-directed care and it will be even harder as we get older and our needs increase., especially those of us without a significant other. I know that sometimes with a significant other, you get less care and that person may not receive payment for their services. Can anyone address the issue of how, Money follows the person might change anything for those of us on state-funded care will really just provide more persons that need to live independently rather than in the institutional setting? Will it just provide extra money to the states for this?. Will money directed to institutions be used for persons getting independent living instead? I understand what those are saying about their spouses being caregivers and not lovers, just because of the stress and burnout that a lot of caregivers get. That is a another topic it is a remarkable couple that can keep the relationship alive in that respect. They need to write a manual. Sorry I talked about so many different things in one e-mail. Dana **See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop000304)
