RE: [QUAD-L] Getting Supra Pubic in 3 weeks

[Mark Jackson]

Hey Tod,
After reading this post I'm definitely going to the sp done.
I'm tired of constantly changing and watching the texas rig rip my soldier
up and it's very painful too.
I've been holding out but after reading your reply I don't know why I've
waited so long.


Thanks,


Mark

-Original Message-
From: Tod E. Santee [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 15, 2008 9:26 PM
To: quad-list@eskimo.com; Tim Syfert
Subject: RE: [QUAD-L] Getting Supra Pubic in 3 weeks

Hi Tim

When I first got my suprapubic in '97 I took the morning off from work.  The
whole procedure was done without anesthesia but they kept careful watch on
my BP... I did get a little AD as a "over-filled" my bladder to begin the
procedure.

I went home with a 12fr foley and went to work that afternoon.  That first
month was a little difficult as I did leak around the stoma at times and
granules would build up and clog the narrow 12fr.  About one month later I
graduated to a 14fr, and then 16fr, and finally settled into using an 18f
foley catheter ever since.  It works well for me but I do still occasionally
get crystallization and granules in the catheter.  That's when I know it's
certainly time to change it... usually every 4 to 6 weeks.

As for cleaning, each day I use a small amount of Neosporin cream and
sprinkle a bit of Tinactin (yep, the foot powder) around it to keep it dry.
I cover it with a 2" x 2" square of gauze drain sponge cut in such a way
that the catheter comes out the middle (kind of a "T" shaped cut into the
center).  Works well for me.

I have friends who went to get a SP and there was no graduating from smaller
to larger diameters.  They came home with the 24fr.  To me, it looks like a
garden hose!  On the other hand, they rarely get clogged.  So I guess it's 6
of one, half a dozen of the other.

However you do it, I wish you the best.  I've had wonderful success with
mine and had far fewer "serious" infections and urethral irritations ever
since.  I'm sure you'll at least have that to look forward to.  (Not to
mention the "Free Willie Factor")

Best of luck!
--Tod

> - Original Message 
> From: Tim Syfert <[EMAIL PROTECTED]>
> To: quad-list@eskimo.com
> Sent: Saturday, April 12, 2008 9:36:38 PM
> Subject: [QUAD-L] Getting Supra Pubic in 3 weeks
> 
> After 35 years of using external caths, I'll be getting a supra pubic in 3
weeks because my bladder just hasn't been draining well in awhile now. Those
> of you with SP's, do you have any advice, tips, input, etc. for this soon
to
> be SP rookie?
>
>   Thanks,
>
>   Tim
>   http://THEQUADLINK.COM 

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Re: [QUAD-L] ladies bc pills

[Corie Jones]

My blood clot was also caused by being on birth control.  So haven't been on it 
since and no blood clots (thank God).

Corie

  - Original Message - 
  From: Elizabeth Treston 
  To: 'Stacy Harim' ; 'Debbie Hamilton' ; 'Maria' ; [EMAIL PROTECTED] 
  Cc: quad-list@eskimo.com 
  Sent: Tuesday, April 15, 2008 7:27 AM
  Subject: [QUAD-L] ladies bc pills


  Birth control pills caused my blood clot.



--
  From: Stacy Harim [mailto:[EMAIL PROTECTED] 
  Sent: Sunday, April 13, 2008 9:57 PM
  To: Debbie Hamilton; Maria; [EMAIL PROTECTED]
  Cc: quad-list@eskimo.com
  Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)


  Do you have any concerns with circulation and birth control?  I'm afraid to 
death to get birth control with my paralysis.

  Stacy


  - Original Message 
  From: Debbie Hamilton <[EMAIL PROTECTED]>
  To: Maria <[EMAIL PROTECTED]>; [EMAIL PROTECTED]
  Cc: quad-list@eskimo.com
  Sent: Saturday, April 12, 2008 7:14:54 PM
  Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)


  I am 49 years old.  I didn't start bleeding until 14 months after my injury.  
And then it came back.  It was awful.  My husband had to deal with the mess and 
also my caregivers.  My OB/GYN decided to put me on Depo-Provera.  I get the 
shot every three months, and I don't have any periods at all.  It has been the 
best thing I could have ever done!  Ask your doctor about it.  It's worked 
great for me.


   
  Debbie
  C4 incomplete/April 2005 



  - Original Message 
  From: Maria <[EMAIL PROTECTED]>
  To: [EMAIL PROTECTED]
  Cc: [EMAIL PROTECTED]; quad-list@eskimo.com
  Sent: Tuesday, April 8, 2008 7:55:16 PM
  Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

  I am 42 years old, and after my accident in December of 2000, I didn't have 
my period for seven months or so.  Of course, when I would mention this to my 
husband back then, he would say let's not talk about it.  Maybe it will never 
come back.  Well, shortly after that it did come back.  Now, I wish it would go 
away.  Couple of things.  One is that I have a 33-year-old caregiver, who had 
to have a total hysterectomy due to cancer.  She is cancer free and we are 
always joking about her not having a period anymore and how I wish I didn't.  
Also, I never thought my husband would be putting in a tampon for me, much less 
showing a caregiver how to do it.  I use a tampon during the bowel and shower 
program.  Thank God we have a good sense of humor.  I have to wonder if I'm 
looking forward to menopause.  As I'm normally cold, and I wonder how the hot 
flashes are, besides the lack of bleeding.  I guess I'll have to wait and see.

  Take care --
  Maria
  C5/6 




  On Tue, Apr 8, 2008 at 9:41 AM, <[EMAIL PROTECTED]> wrote:

Ladies,
   I was 17 when I was injured and didn't get my period for 4 months 
because your body is in shock-I was told. Then I had normal, for me, periods. 
When I turned 40 I started have crying spells and being extremely exasperated, 
I found out it was pre menopause. I had it for 10 years!
  Also, when I was first injured I would sweat like crazy. Sometimes just 
when I was in bed. I would have to sleep with towels all over my bed and my 
hair would be soaking wet. Then I went through a long spell when I only sweat 
when I was in my chair. I had to have my hair cut short and wear towel around 
my neck. I would need to change my top at least once a day.
   DATING WAS A CHALLENGE. I also went through college with sweat dripping 
on my term paper's. This was before computer's and if they got wet, I would 
have to type them all over again. I sweat like this from 1973 till 1988 when I 
had ryzodomy surgery. An uncredited side affect from the surgery was I never 
sweat again AT ALL.
   I hope this helps.
  
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey






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RE: [QUAD-L] Saline

[Joan Anglin]

We make our own saline. My plastic surgeon gave me the recipe J Boil 1 l of
water for 5 minutes-let cool-add 1 1/2 tablespoons of salt. To make a Dakin
solution-add 1 teaspoon of bleach. Joan


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RE: [QUAD-L] ~ Anybody play a Wii?

[Greg]

Hi, I got one.

I have a Velcro strap that holds it to my hands. I can only do a few games.
Though I haven't looked at any new ones lately. I do Tennis mostly.

It's fun, but does tire out your arms.

Greg

 

  _  

 

Hello all,
Does anybody here play game Wii?  I was wondering if us quads are
able to handle the game physically?
Bobbie



  _  

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RE: [QUAD-L] Getting Supra Pubic in 3 weeks

[Tod E. Santee]

Hi Tim

When I first got my suprapubic in '97 I took the morning off from work.  The 
whole procedure was done without anesthesia but they kept careful watch on my 
BP... I did get a little AD as a "over-filled" my bladder to begin the 
procedure.

I went home with a 12fr foley and went to work that afternoon.  That first 
month was a little difficult as I did leak around the stoma at times and 
granules would build up and clog the narrow 12fr.  About one month later I 
graduated to a 14fr, and then 16fr, and finally settled into using an 18f foley 
catheter ever since.  It works well for me but I do still occasionally get 
crystallization and granules in the catheter.  That's when I know it's 
certainly time to change it... usually every 4 to 6 weeks.

As for cleaning, each day I use a small amount of Neosporin cream and sprinkle 
a bit of Tinactin (yep, the foot powder) around it to keep it dry.  I cover it 
with a 2" x 2" square of gauze drain sponge cut in such a way that the catheter 
comes out the middle (kind of a "T" shaped cut into the center).  Works well 
for me.

I have friends who went to get a SP and there was no graduating from smaller to 
larger diameters.  They came home with the 24fr.  To me, it looks like a garden 
hose!  On the other hand, they rarely get clogged.  So I guess it's 6 of one, 
half a dozen of the other.

However you do it, I wish you the best.  I've had wonderful success with mine 
and had far fewer "serious" infections and urethral irritations ever since.  
I'm sure you'll at least have that to look forward to.  (Not to mention the 
"Free Willie Factor")

Best of luck!
--Tod

> - Original Message 
> From: Tim Syfert <[EMAIL PROTECTED]>
> To: quad-list@eskimo.com
> Sent: Saturday, April 12, 2008 9:36:38 PM
> Subject: [QUAD-L] Getting Supra Pubic in 3 weeks
> 
> After 35 years of using external caths, I'll be getting a supra pubic in 3
weeks because my bladder just hasn't been draining well in awhile now. Those
> of you with SP's, do you have any advice, tips, input, etc. for this soon to
> be SP rookie?
>
>   Thanks,
>
>   Tim
>   http://THEQUADLINK.COM 

[QUAD-L] ~ Anybody play a Wii?

[Bobbie299]

Hello all,
Does anybody here play game Wii?  I was wondering if us quads are able to 
handle the game physically?
Bobbie



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[QUAD-L] Saline

[Lori Michaelson]

Does anyone have any bottles of sterile saline that they are not using?
It's terrible that you have to pay for salt water essentially but we need
some and my current insurance does not cover it.  I used to be able to get
those 1 L bottles but not now.

Thanks in advance!

Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ

Re: [QUAD-L] PAIN

[Cullen]

I Agree. My rehab was at the VA in 97 and I use the VA for almost all of my care and I think I get great care. Their sci  care seems to get better every year.Cullen  C3      --- On Mon, 4/14/08, Quadius <[EMAIL PROTECTED]> wrote:From: Quadius <[EMAIL PROTECTED]>Subject: Re: [QUAD-L] PAINTo: "Merrill Burghardt" <[EMAIL PROTECTED]>Cc: quad-list@eskimo.comReceived: Monday, April 14, 2008, 6:27 PMI have received all of my care at the VA here in Tampa and while I did have a similar
 incident (Lori's DVT problem) I received unbelievable care.  
Don't get me wrong, when I first went to the VA in 95, it was not nearly as good as it is now.  Sure, there are still problems, but I think there are problems in every hospital.
As for hospital insurance through physicians mutual, I only pay around $230 a year which equates to less than $20 a month.  It pays me $75 a day if I become hospitalized.  I have had the insurance since 1996 though, so it might cost more now.  I haven't checked in a while.

 
On 4/14/08, Merrill Burghardt <[EMAIL PROTECTED]> wrote:



Your medical care sounds similar as the Veterans Hospital.  I am poverty income also which is exactly why having hospitalization insurance is necessary.  Do the math!  My monthly payment is $46.00 which I am sure you can manage.  Once hospitalized it pays out $80.00 a day.  Two or three days in will pay the annual premium which puts all other days paid into clear pocket money.  How can you afford not to look into insurance if you know you will be hospitalized?

 
Merrill   
 




From: Lori Michaelson [mailto:[EMAIL PROTECTED]] 
Sent: Monday, April 14, 2008 3:13 PMTo: Merrill Burghardt; quad-list@eskimo.com 
Subject: Re: [QUAD-L] PAIN


 

When using the acronym VA ... I am only familiar with it being Veterans Affairs.  If your question is to me... I am a little bit confused.  Just confused today anyway.  LOL.


 

If you ARE talking to me and asking me if I am using something for circulation, etc. since my DVT ... just a baby aspirin a day.  I was on Coumadin for 10 years only because I was afraid to go off of it... because I am immobile, etc..  But that arsenic can build up in your bones and I finally called it quits about three years ago and have been fine with just a baby aspirin a day.


 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ

 

On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt <[EMAIL PROTECTED]> wrote:



Tell me about it.  Are you using the VA system?
 
Merrill
 





From: Lori Michaelson [mailto:[EMAIL PROTECTED]] 
Sent: Sunday, April 13, 2008 12:38 PMTo: NICHOLE ROHLING; quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN


 

I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by surgeries.  I was also very, very, very lucky to have survived it because I was telling doctors (my neurosurgeon and his staff hours away) my symptoms and they were ignoring them even though they were classic symptoms of a DVT!  Hitherto ... I was not familiar with clots of any type so I was in the dark.  It was the Internet that saved my life essentially.


 

With what I described... they should have wanted to at the very least eliminate the possibility of a clot since I just had two surgeries with that doctor and that is a primary thing to worry about after surgery.  But noo... I thought it was probably just swelling and I should wear some of those tight hose.  QUACK, QUACK


 

I went around for about a month with my left lower leg very swollen and very hard.  I finally read an article on the net (I was very new to the Internet back then and only knew how to look things up) and one doctor in Washington state had an article about spinal cord injuries and folks with MS.  A sentence said "If one leg is significantly larger than the other... it could indicate a clot."  All I knew was that "a clot" was not good but I had no idea that I had a DVT whereby all I had to do was move a certain way to have it move directly to my lungs to kill me.


The very next morning I called my primary care physician and I went to see him.  He looked at it and said "I don't know... I don't think it could be a clot but I will send you over to the hospital to have an ultrasound done."  Needless to say... I never left the hospital because it was a lengthy clot and I was in immediate danger.


 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ

 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTED]> wrote:


YES, CLOTS TAKE 4-6 WEEKS TO DISSOLVE SO I'M ON COUMADIN (?) TO THIN MY BLOOD. MY INR LEVEL NEEDS TO STAY BETWEEN 2.0 AND 3.0


 

MR DR SAID THEY DO HAVE MEDS TO BUST CLOTS BUT THE RISKS FOR ME OUTWEIGHED THE BENEFITS.

 

I'M JUST THANKFUL TO BE ALIVE.

NICKIQuadius <[EMAIL PROTECTED]> wrote:



Thank goodness you made it through it.  They send you home with blood clots?Quadius


On 4/12/08, NICHOLE ROHLING 

Re: FW: [QUAD-L] Getting Supra Pubic in 3 weeks

[Quadius]

The main reason I asked about the type of catheter is because I discovered
about 10 years ago that I am allergic to the silicone products.  I first
noticed it when I had a silicone trach to which my skin became adhered.  Ear
nose and throat had to rip the trach right out of my neck and finally got
them to agree to do reconstructive surgery about five or six years later.

When I have a silicone catheter in my body, my bladder spasms profusely, I
feel like I have a terrible UTI, the stoma tries to adhered itself to the
catheter, and there are excessive amounts of calcification on the end of the
catheter when it is removed.  I now only use latex catheters with a little
bit of silicone coating.

According to my care providers, this is an abnormal allergy, but I thought
I'd let you know about it since you're, seems to close around your catheter.
Quadius


On 4/15/08, Merrill Burghardt <[EMAIL PROTECTED]> wrote:
>
>  I use 10 cc's of natural saline.  I daily apply triple action antibiotic
> gel, but when the SP is first installed it will generally leak for a few
> days.  The type used is a 24 French.  Mine was a headache for several days.
>  I even thought it was a mistake but it was worth it.
>
>
>
> Merrill
>
>
>   --
>
> *From:* Quadius [mailto:[EMAIL PROTECTED]
> *Sent:* Tuesday, April 15, 2008 12:39 PM
> *To:* gina
> *Cc:* quad-list
> *Subject:* Re: [QUAD-L] Getting Supra Pubic in 3 weeks
>
>
>
> Gina,
> How much sailing are you putting into the bulb?  I used to have a problem
> with the SP leaking if I put in 5 cc, but I now put in anywhere from eight
> to 10 cc.
>
> What type of catheter are you using, i.e. silicone or latex?
> Quadius
>
>
>
> On 4/15/08, *gina* <[EMAIL PROTECTED]> wrote:
>
> Hi,
>
> I've had a SP for about 3yrs now and it is better. I get mine changed
> every month the only problems I really have with mine is it leaks some but
> when I get it changed it hurts some because my body heals so fast that it
> tries to heal itself around the catheter and I get alot of calcium built up
> around the end of it.  But I am glad I did it the UTI's are alot less. And
> it is great to have that area down below free... I hope it all goes well
> with yours...
>
> Gina
>
>
>

Re: [QUAD-L] PAIN

[Quadius]

It has significantly improved over the last nine years.  Down here in Tampa,
the leadership is what keeps everything going well.  I noticed they big
difference when we changed chiefs back in 1998 or 1999.  Since then there
has been an appreciable difference in the care one receives.  Although there
are always those who complain bitterly about their treatment, but I'm by and
large received really good care.
Quadius
Where do you get your care?

On 4/15/08, Cullen <[EMAIL PROTECTED]> wrote:
>
>   I Agree. My rehab was at the VA in 97 and I use the VA for almost all of
> my care and I think I get great care. Their sci  care seems to get better
> every year.
>
> *Cullen*
> *C3*
>
>
>
>
> --- On *Mon, 4/14/08, Quadius <[EMAIL PROTECTED]>* wrote:
>
> From: Quadius <[EMAIL PROTECTED]>
> Subject: Re: [QUAD-L] PAIN
> To: "Merrill Burghardt" <[EMAIL PROTECTED]>
> Cc: quad-list@eskimo.com
> Received: Monday, April 14, 2008, 6:27 PM
>
>  I have received all of my care at the VA here in Tampa and while I did
> have a similar incident (Lori's DVT problem) I received unbelievable care.
>
> Don't get me wrong, when I first went to the VA in 95, it was not nearly
> as good as it is now.  Sure, there are still problems, but I think there are
> problems in every hospital.
>
> As for hospital insurance through physicians mutual, I only pay around
> $230 a year which equates to less than $20 a month.  It pays me $75 a day if
> I become hospitalized.  I have had the insurance since 1996 though, so it
> might cost more now.  I haven't checked in a while.
>
>
>
>
>
> On 4/14/08, Merrill Burghardt <[EMAIL PROTECTED]> wrote:
> >
> >  Your medical care sounds similar as the Veterans Hospital.  I am
> > poverty income also which is exactly why having hospitalization insurance is
> > necessary.  Do the math!  My monthly payment is $46.00 which I am sure you
> > can manage.  Once hospitalized it pays out $80.00 a day.  Two or three days
> > in will pay the annual premium which puts all other days paid into clear
> > pocket money.  How can you afford not to look into insurance if you know you
> > will be hospitalized?
> >
> >
> >
> > Merrill
> >
> >
> >  --
> >
> > *From:* Lori Michaelson [mailto:[EMAIL PROTECTED]
> > *Sent:* Monday, April 14, 2008 3:13 PM
> > *To:* Merrill Burghardt; quad-list@eskimo.com
> > *Subject:* Re: [QUAD-L] PAIN
> >
> >
> >
> > When using the acronym VA ... I am only familiar with it being Veterans
> > Affairs.  If your question is to me... I am a little bit confused.  Just
> > confused today anyway.  LOL.
> >
> >
> >
> > If you ARE talking to me and asking me if I am using something for
> > circulation, etc. since my DVT ... just a baby aspirin a day.  I was on
> > Coumadin for 10 years only because I was afraid to go off of it... because I
> > am immobile, etc..  But that arsenic can build up in your bones and I
> > finally called it quits about three years ago and have been fine with just a
> > baby aspirin a day.
> >
> >
> >
> > Lori Michaelson
> >
> > Age - 43
> >
> > C4/5 complete quad, 28 years post
> >
> > Tucson, AZ
> >
> >
> >
> >
> >
> > On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt <[EMAIL PROTECTED]>
> > wrote:
> >
> > Tell me about it.  Are you using the VA system?
> >
> >
> >
> > Merrill
> >
> >
> >   --
> >
> > *From:* Lori Michaelson [mailto:[EMAIL PROTECTED]
> > *Sent:* Sunday, April 13, 2008 12:38 PM
> > *To:* NICHOLE ROHLING; quad-list@eskimo.com
> > *Subject:* Re: [QUAD-L] PAIN
> >
> >
> >
> > I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by
> > surgeries.  I was also very, very, very lucky to have survived it because I
> > was telling doctors (my neurosurgeon and his staff hours away) my symptoms
> > and they were ignoring them even though they were classic symptoms of a
> > DVT!  Hitherto ... I was not familiar with clots of any type so I was in the
> > dark.  It was the Internet that saved my life essentially.
> >
> >
> >
> > With what I described... they should have wanted to at the very least
> > eliminate the possibility of a clot since I just had two surgeries with that
> > doctor and that is a primary thing to worry about after surgery.  But
> > noo... I thought it was probably just swelling and I should wear some of
> > those tight hose.  QUACK, QUACK
> >
> >
> >
> > I went around for about a month with my left lower leg very swollen and
> > very hard.  I finally read an article on the net (I was very new to the
> > Internet back then and only knew how to look things up) and one doctor in
> > Washington state had an article about spinal cord injuries and folks with
> > MS.  A sentence said "If one leg is significantly larger than the other...
> > it could indicate a clot."  All I knew was that "a clot" was not good but I
> > had no idea that I had a DVT whereby all I had to do was move a certain way
> > to have it move directly to my lungs to kill me.
> >
> >
> > The very next morning I called my 

Re: [QUAD-L] PAIN

[Quadius]

Let me clarify Danny.  This particular insurance policy I am referring to
provide $75 a day if you are hospitalized.  It is not medical insurance.
Sorry if I confused anyone.
If you're interested in checking this out, you can call the company.
http://www.physiciansmutual.com/services/
Quadius

On 4/15/08, Danny Hearn <[EMAIL PROTECTED]> wrote:
>
> *Hi  Quadius, i'm interested in how those of you get by on the $75-$85
> hospital insurance for each day, is that in addition to private or
> medicaid-or medicare? because hospital bills each day now are huge !  I'm
> trying to find out because my wife's job and coverage is becoming unsure
> these day's . I used to have excellent coverage but my Job retired me about
> a year after getting hurt.*
> * 
>   Thanks!
> Dan H.*
>
> *Quadius <[EMAIL PROTECTED]>* wrote:
>
> I have received all of my care at the VA here in Tampa and while I did
> have a similar incident (Lori's DVT problem) I received unbelievable care.
> Don't get me wrong, when I first went to the VA in 95, it was not nearly
> as good as it is now.  Sure, there are still problems, but I think there are
> problems in every hospital.
> As for hospital insurance through physicians mutual, I only pay around
> $230 a year which equates to less than $20 a month.  It pays me $75 a day if
> I become hospitalized.  I have had the insurance since 1996 though, so it
> might cost more now.  I haven't checked in a while.
>
>
>
>
> On 4/14/08, Merrill Burghardt <[EMAIL PROTECTED]> wrote:
> >
> >  Your medical care sounds similar as the Veterans Hospital.  I am
> > poverty income also which is exactly why having hospitalization insurance is
> > necessary.  Do the math!  My monthly payment is $46.00 which I am sure you
> > can manage.  Once hospitalized it pays out $80.00 a day.  Two or three days
> > in will pay the annual premium which puts all other days paid into clear
> > pocket money.  How can you afford not to look into insurance if you know you
> > will be hospitalized?
> >
> > Merrill
> >
> >  --
> >  *From:* Lori Michaelson [mailto:[EMAIL PROTECTED]
> > *Sent:* Monday, April 14, 2008 3:13 PM
> > *To:* Merrill Burghardt; quad-list@eskimo.com
> > *Subject:* Re: [QUAD-L] PAIN
> >
> >  When using the acronym VA ... I am only familiar with it being Veterans
> > Affairs.  If your question is to me... I am a little bit confused.  Just
> > confused today anyway.  LOL.
> >
> >  If you ARE talking to me and asking me if I am using something for
> > circulation, etc. since my DVT ... just a baby aspirin a day.  I was on
> > Coumadin for 10 years only because I was afraid to go off of it... because I
> > am immobile, etc..  But that arsenic can build up in your bones and I
> > finally called it quits about three years ago and have been fine with just a
> > baby aspirin a day.
> >
> >  Lori Michaelson
> >  Age - 43
> >  C4/5 complete quad, 28 years post
> >  Tucson, AZ
> >
> >
> >
> >  On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt <[EMAIL PROTECTED]>
> > wrote:
> >  Tell me about it.  Are you using the VA system?
> >
> > Merrill
> >
> >   --
> >  *From:* Lori Michaelson [mailto:[EMAIL PROTECTED]
> > *Sent:* Sunday, April 13, 2008 12:38 PM
> > *To:* NICHOLE ROHLING; quad-list@eskimo.com
> > *Subject:* Re: [QUAD-L] PAIN
> >
> >  I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by
> > surgeries.  I was also very, very, very lucky to have survived it because I
> > was telling doctors (my neurosurgeon and his staff hours away) my symptoms
> > and they were ignoring them even though they were classic symptoms of a
> > DVT!  Hitherto ... I was not familiar with clots of any type so I was in the
> > dark.  It was the Internet that saved my life essentially.
> >
> >  With what I described... they should have wanted to at the very least
> > eliminate the possibility of a clot since I just had two surgeries with that
> > doctor and that is a primary thing to worry about after surgery.  But
> > noo... I thought it was probably just swelling and I should wear some of
> > those tight hose.  QUACK, QUACK
> >
> >  I went around for about a month with my left lower leg very swollen and
> > very hard.  I finally read an article on the net (I was very new to the
> > Internet back then and only knew how to look things up) and one doctor in
> > Washington state had an article about spinal cord injuries and folks with
> > MS.  A sentence said "If one leg is significantly larger than the other...
> > it could indicate a clot."  All I knew was that "a clot" was not good but I
> > had no idea that I had a DVT whereby all I had to do was move a certain way
> > to have it move directly to my lungs to kill me.
> >
> > The very next morning I called my primary care physician and I went to
> > see him.  He looked at it and said "I don't know... I don't think it could
> > be 

FW: [QUAD-L] Getting Supra Pubic in 3 weeks

[Merrill Burghardt]

I use 10 cc's of natural saline.  I daily apply triple action antibiotic
gel, but when the SP is first installed it will generally leak for a few
days.  The type used is a 24 French.  Mine was a headache for several days.
I even thought it was a mistake but it was worth it.

 

Merrill

 

  _  

From: Quadius [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, April 15, 2008 12:39 PM
To: gina
Cc: quad-list
Subject: Re: [QUAD-L] Getting Supra Pubic in 3 weeks

 

Gina,
How much sailing are you putting into the bulb?  I used to have a problem
with the SP leaking if I put in 5 cc, but I now put in anywhere from eight
to 10 cc.

What type of catheter are you using, i.e. silicone or latex?
Quadius

 

On 4/15/08, gina <[EMAIL PROTECTED]> wrote: 

Hi,

I've had a SP for about 3yrs now and it is better. I get mine changed every
month the only problems I really have with mine is it leaks some but when I
get it changed it hurts some because my body heals so fast that it tries to
heal itself around the catheter and I get alot of calcium built up around
the end of it.  But I am glad I did it the UTI's are alot less. And it is
great to have that area down below free... I hope it all goes well with
yours...

Gina

 

Re: [QUAD-L] Getting Supra Pubic in 3 weeks

[Quadius]

Gina,
How much sailing are you putting into the bulb?  I used to have a problem
with the SP leaking if I put in 5 cc, but I now put in anywhere from eight
to 10 cc.

What type of catheter are you using, i.e. silicone or latex?
Quadius


On 4/15/08, gina <[EMAIL PROTECTED]> wrote:
>
> Hi,
> I've had a SP for about 3yrs now and it is better. I get mine changed
> every month the only problems I really have with mine is it leaks some but
> when I get it changed it hurts some because my body heals so fast that it
> tries to heal itself around the catheter and I get alot of calcium built up
> around the end of it.  But I am glad I did it the UTI's are alot less. And
> it is great to have that area down below free... I hope it all goes well
> with yours...
> Gina
>
>
>

FW: [QUAD-L] shift happens - Now & in the Future

[Merrill Burghardt]

The answer is in one word, that being Lobby in Washington D.C.  

Merrill

> -Original Message-
> From: Tod E. Santee [mailto:[EMAIL PROTECTED]
> Sent: Monday, April 14, 2008 5:31 PM
> To: quad-list@eskimo.com; John S.
> Subject: Re: [QUAD-L] shift happens - Now & in the Future
> 
> H... About this:
> > There is no reason to use corn to make ethanol unless you intend to
> > drink it. Faster growing starch producing plants could be used to make
> > more ethanol faster.
> 
> -- AND --
> 
> > The government does not consider studies of marijuana
> > as valid unless it was grown for the purpose of making rope.
> 
> What if it was grown to produce ethanol?  After all, it grows like a weed!
> 
> --Tod
> Tryin to be forward thinking
> 
>  "John S." <[EMAIL PROTECTED]> wrote:
> > Heres are some horrible little facts that have been widely ignored.
> 1.3 billion people have no access to drinkable water. By 2040 half the
> worlds population will not have safe water to drink.
> If America continues to buy up world corn surpluses to make fuel
> worldwide famine will increase by 200 percent in 10 years. Food riots have
> already happened in 8 third world nations that depend on cornbread for
> daily calorie needs.
> There is no reason to use corn to make ethanol unless you intend to drink
> it. Faster growing starch producing plants could be used to make more
> ethanol in less time without endangering world food reserves. The use of
> such plants is illegal.
> Medicare pays for viagra but not birth control pills or condoms.
> The government does not consider studies of marijuana as valid unless it
> was grown for the purpose of making rope.
> Pigs raised for medical harvesting of heart valves and thyroid glands are
> destroyed as medical waste.
> Finally, it is against the law to lie to anyone on the phone claiming to
> be a federal investigator. (Ask Martha Stewart.)
> In Kansas a law reads: "When trains meet at a
> crossing, both shall come to a full stop and neither
> shall proceed until the other has gone."
> In Cleveland, Ohio you need a hunting permit to trap or kill mice.
> I personally blame it all on a lack of asylums.
> 
> john
> 
> - Original Message 
> From: Tod E. Santee <[EMAIL PROTECTED]>
> To: quad-list@eskimo.com
> Sent: Saturday, April 12, 2008 11:29:22 PM
> Subject: Re: [QUAD-L] shift happens - Now & in the Future
> 
> Yep... technology is an incredible, useful, and evolving tool with a path
> that's had to predict.  Not long ago, nobody would have thought Ray
> Kurzweil could teleport himself from his office (in MA, I believe) to a
> stage in Tucson to give a lecture and answer questions while looking at
> you face-to-face!  But he did it.
> 
> Kurzweil is an amazing futurist focusing on technology that seems straight
> out of sci-fi.
> 
> Check his site at www.kurzweilai.net ... could blow your mind!
> 
> --Tod

RE: [QUAD-L] PAIN

[Merrill Burghardt]

I remember hearing through the '90's that the Tampa VA SCI was the best of
top five SCI units in the U.S. followed by other VA SCI units.  Mine in San
Diego was great when it opened but the when Staff Head took over his
thinking is not patient orientated which the negligence shows.  I've even
had my pension increased due to their negligence.  Well I lost my prostate
also.  The VA SCIU in Palo Alto was wonderful so I did not mean a bad wrap
against all VA hospitals.

 

You also have Physicians Mutual insurance?  I have their two policies which
helps hugely in keeping out of debt in my poverty income.  Do you know of
another good policy or company?  Thank you.

 

Merrill

 

  _  

From: Quadius [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 14, 2008 6:27 PM
To: Merrill Burghardt
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN

 

I have received all of my care at the VA here in Tampa and while I did have
a similar incident (Lori's DVT problem) I received unbelievable care.  

Don't get me wrong, when I first went to the VA in 95, it was not nearly as
good as it is now.  Sure, there are still problems, but I think there are
problems in every hospital.

As for hospital insurance through physicians mutual, I only pay around $230
a year which equates to less than $20 a month.  It pays me $75 a day if I
become hospitalized.  I have had the insurance since 1996 though, so it
might cost more now.  I haven't checked in a while.


 

 

On 4/14/08, Merrill Burghardt <[EMAIL PROTECTED]> wrote: 

Your medical care sounds similar as the Veterans Hospital.  I am poverty
income also which is exactly why having hospitalization insurance is
necessary.  Do the math!  My monthly payment is $46.00 which I am sure you
can manage.  Once hospitalized it pays out $80.00 a day.  Two or three days
in will pay the annual premium which puts all other days paid into clear
pocket money.  How can you afford not to look into insurance if you know you
will be hospitalized?

 

Merrill   

 

  _  

From: Lori Michaelson [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 14, 2008 3:13 PM
To: Merrill Burghardt; quad-list@eskimo.com 


Subject: Re: [QUAD-L] PAIN

 

When using the acronym VA ... I am only familiar with it being Veterans
Affairs.  If your question is to me... I am a little bit confused.  Just
confused today anyway.  LOL.

 

If you ARE talking to me and asking me if I am using something for
circulation, etc. since my DVT ... just a baby aspirin a day.  I was on
Coumadin for 10 years only because I was afraid to go off of it... because I
am immobile, etc..  But that arsenic can build up in your bones and I
finally called it quits about three years ago and have been fine with just a
baby aspirin a day.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ



 

On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt <[EMAIL PROTECTED]>
wrote:

Tell me about it.  Are you using the VA system?

 

Merrill

 

  _  

From: Lori Michaelson [mailto:[EMAIL PROTECTED] 
Sent: Sunday, April 13, 2008 12:38 PM
To: NICHOLE ROHLING; quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN

 

I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by
surgeries.  I was also very, very, very lucky to have survived it because I
was telling doctors (my neurosurgeon and his staff hours away) my symptoms
and they were ignoring them even though they were classic symptoms of a DVT!
Hitherto ... I was not familiar with clots of any type so I was in the dark.
It was the Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least
eliminate the possibility of a clot since I just had two surgeries with that
doctor and that is a primary thing to worry about after surgery.  But
noo... I thought it was probably just swelling and I should wear some of
those tight hose.  QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and very
hard.  I finally read an article on the net (I was very new to the Internet
back then and only knew how to look things up) and one doctor in Washington
state had an article about spinal cord injuries and folks with MS.  A
sentence said "If one leg is significantly larger than the other... it could
indicate a clot."  All I knew was that "a clot" was not good but I had no
idea that I had a DVT whereby all I had to do was move a certain way to have
it move directly to my lungs to kill me.


The very next morning I called my primary care physician and I went to see
him.  He looked at it and said "I don't know... I don't think it could be a
clot but I will send you over to the hospital to have an ultrasound done."
Needless to say... I never left the hospital because it was a lengthy clot
and I was in immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ


 

On Sat, Apr 12, 20

[QUAD-L] Sleep aid...

[Oconnelldb]

I found something that helps me sleep without knocking me out  or giving me 
morning hangover.  It is a generic Allergy suppressant.   I don't remember if 
it was from Walmart or Sam's club but it's the cheap  stuff.   Ingredients are: 
acetaminophen 325mg,  chlorphenlamine maleate 2mg and phenylephrine HCL 5mg.  
I take 2 in the AM  and 2 around 6PM.  Sleep like a baby.
AZDAVE  
P.S.  Sorry for any drug misspellings -  the label  is tiny.
 
Hope is the  last thing that dies in man; and though it be exceedingly 
deceitful, yet it is  of this good use to us, that while we are traveling 
through 
life it conducts us  in an easier and more pleasant way to our journey's end. 
_François  de La Rochefoucauld  


_ (http://www.quotationspage.com/quotes/Francois_de_La_Rochefoucauld/) 



**It's Tax Time! Get tips, forms and advice on AOL Money & 
Finance.  (http://money.aol.com/tax?NCID=aolcmp0030002850)

Re: [QUAD-L] PAIN

[Danny Hearn]

Hi  Quadius, i'm interested in how those of you get by on the $75-$85 hospital 
insurance for each day, is that in addition to private or medicaid-or medicare? 
because hospital bills each day now are huge !  I'm trying to find out because 
my wife's job and coverage is becoming unsure these day's . I used to have 
excellent coverage but my Job retired me about a year after getting hurt.

 Thanks! Dan H.

Quadius <[EMAIL PROTECTED]> wrote:
I have received all of my care at the VA here in Tampa and while I did have 
a similar incident (Lori's DVT problem) I received unbelievable care.  
  Don't get me wrong, when I first went to the VA in 95, it was not nearly as 
good as it is now.  Sure, there are still problems, but I think there are 
problems in every hospital.
  As for hospital insurance through physicians mutual, I only pay around $230 a 
year which equates to less than $20 a month.  It pays me $75 a day if I become 
hospitalized.  I have had the insurance since 1996 though, so it might cost 
more now.  I haven't checked in a while.
  
 


  On 4/14/08, Merrill Burghardt <[EMAIL PROTECTED]> wrote: Your medical 
care sounds similar as the Veterans Hospital.  I am poverty income also which 
is exactly why having hospitalization insurance is necessary.  Do the math!  My 
monthly payment is $46.00 which I am sure you can manage.  Once hospitalized it 
pays out $80.00 a day.  Two or three days in will pay the annual premium which 
puts all other days paid into clear pocket money.  How can you afford not to 
look into insurance if you know you will be hospitalized?
   
  Merrill   
   
  
-
  
  From: Lori Michaelson [mailto:[EMAIL PROTECTED] 
Sent: Monday, April 14, 2008 3:13 PM
To: Merrill Burghardt; quad-list@eskimo.com   
Subject: Re: [QUAD-L] PAIN
  
  

 
When using the acronym VA ... I am only familiar with it being Veterans 
Affairs.  If your question is to me... I am a little bit confused.  Just 
confused today anyway.  LOL.

 

If you ARE talking to me and asking me if I am using something for 
circulation, etc. since my DVT ... just a baby aspirin a day.  I was on 
Coumadin for 10 years only because I was afraid to go off of it... because I am 
immobile, etc..  But that arsenic can build up in your bones and I finally 
called it quits about three years ago and have been fine with just a baby 
aspirin a day.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ



 

On Sun, Apr 13, 2008 at 7:20 PM, Merrill Burghardt <[EMAIL PROTECTED]> 
wrote:
  Tell me about it.  Are you using the VA system?
   
  Merrill
   

-
  

  From: Lori Michaelson [mailto:[EMAIL PROTECTED] 
Sent: Sunday, April 13, 2008 12:38 PM
To: NICHOLE ROHLING; quad-list@eskimo.com
Subject: Re: [QUAD-L] PAIN

   
I had a DVT (deep vein clot/thrombosis) in 1995 that was encouraged by 
surgeries.  I was also very, very, very lucky to have survived it because I was 
telling doctors (my neurosurgeon and his staff hours away) my symptoms and they 
were ignoring them even though they were classic symptoms of a DVT!  Hitherto 
... I was not familiar with clots of any type so I was in the dark.  It was the 
Internet that saved my life essentially.

 

With what I described... they should have wanted to at the very least 
eliminate the possibility of a clot since I just had two surgeries with that 
doctor and that is a primary thing to worry about after surgery.  But 
noo... I thought it was probably just swelling and I should wear some of 
those tight hose.  QUACK, QUACK

 

I went around for about a month with my left lower leg very swollen and 
very hard.  I finally read an article on the net (I was very new to the 
Internet back then and only knew how to look things up) and one doctor in 
Washington state had an article about spinal cord injuries and folks with MS.  
A sentence said "If one leg is significantly larger than the other... it could 
indicate a clot."  All I knew was that "a clot" was not good but I had no idea 
that I had a DVT whereby all I had to do was move a certain way to have it move 
directly to my lungs to kill me.


The very next morning I called my primary care physician and I went to see him. 
 He looked at it and said "I don't know... I don't think it could be a clot but 
I will send you over to the hospital to have an ultrasound done."  Needless to 
say... I never left the hospital because it was a lengthy clot and I was in 
immediate danger.

 

DOCTORS!  QUACK, QUACK!

 

I think I'm on my 95th life because of so many negligent doctors.

 

Lori Michaelson

Age - 43

C4/5 complete quad, 28 years post

Tucson, AZ


 

On Sat, Apr 12, 2008 at 4:55 PM, NICHOLE ROHLING <[EMAIL PROTECTE

[QUAD-L] ladies bc pills

[Elizabeth Treston]

Birth control pills caused my blood clot.

  _  

From: Stacy Harim [mailto:[EMAIL PROTECTED] 
Sent: Sunday, April 13, 2008 9:57 PM
To: Debbie Hamilton; Maria; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)


Do you have any concerns with circulation and birth control?  I'm afraid to
death to get birth control with my paralysis.
 
Stacy


- Original Message 
From: Debbie Hamilton <[EMAIL PROTECTED]>
To: Maria <[EMAIL PROTECTED]>; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Saturday, April 12, 2008 7:14:54 PM
Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)



I am 49 years old.  I didn't start bleeding until 14 months after my injury.
And then it came back.  It was awful.  My husband had to deal with the mess
and also my caregivers.  My OB/GYN decided to put me on Depo-Provera.  I get
the shot every three months, and I don't have any periods at all.  It has
been the best thing I could have ever done!  Ask your doctor about it.  It's
worked great for me.


 
Debbie
C4 incomplete/April 2005 


- Original Message 
From: Maria <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]
Cc: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Tuesday, April 8, 2008 7:55:16 PM
Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)

I am 42 years old, and after my accident in December of 2000, I didn't have
my period for seven months or so.  Of course, when I would mention this to
my husband back then, he would say let's not talk about it.  Maybe it will
never come back.  Well, shortly after that it did come back.  Now, I wish it
would go away.  Couple of things.  One is that I have a 33-year-old
caregiver, who had to have a total hysterectomy due to cancer.  She is
cancer free and we are always joking about her not having a period anymore
and how I wish I didn't.  Also, I never thought my husband would be putting
in a tampon for me, much less showing a caregiver how to do it.  I use a
tampon during the bowel and shower program.  Thank God we have a good sense
of humor.  I have to wonder if I'm looking forward to menopause.  As I'm
normally cold, and I wonder how the hot flashes are, besides the lack of
bleeding.  I guess I'll have to wait and see.

Take care --
Maria
C5/6 




On Tue, Apr 8, 2008 at 9:41 AM, <[EMAIL PROTECTED]> wrote:


Ladies,
   I was 17 when I was injured and didn't get my period for 4 months
because your body is in shock-I was told. Then I had normal, for me,
periods. When I turned 40 I started have crying spells and being extremely
exasperated, I found out it was pre menopause. I had it for 10 years!
  Also, when I was first injured I would sweat like crazy. Sometimes just
when I was in bed. I would have to sleep with towels all over my bed and my
hair would be soaking wet. Then I went through a long spell when I only
sweat when I was in my chair. I had to have my hair cut short and wear towel
around my neck. I would need to change my top at least once a day.
   DATING WAS A CHALLENGE. I also went through college with sweat dripping
on my term paper's. This was before computer's and if they got wet, I would
have to type them all over again. I sweat like this from 1973 till 1988 when
I had ryzodomy surgery. An uncredited side affect from the surgery was I
never sweat again AT ALL.
   I hope this helps.
  
Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17
Married to Sweet Pete Living in Parsippany, New Jersey




  _  

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RE: [QUAD-L] Getting Supra Pubic in 3 weeks

[gina]

Hi,
  I've had a SP for about 3yrs now and it is better. I get mine changed every 
month the only problems I really have with mine is it leaks some but when I get 
it changed it hurts some because my body heals so fast that it tries to heal 
itself around the catheter and I get alot of calcium built up around the end of 
it.  But I am glad I did it the UTI's are alot less. And it is great to have 
that area down below free... I hope it all goes well with yours...
  Gina

Tim Syfert <[EMAIL PROTECTED]> wrote:
Thanks Merrill for your SP input.
   
  Tim
  http://THEQUADLINK.COM 

Merrill Burghardt <[EMAIL PROTECTED]> wrote:
v\:* {behavior:url(#default#VML);}  o\:* {behavior:url(#default#VML);}  
w\:* {behavior:url(#default#VML);}  .shape {behavior:url(#default#VML);}
st1\:*{behavior:url(#default#ieooui) }My SP is 15 years post 
injury.  The doctors always tried talking me into switching but it was just to 
strange to me.  Now I am part of the club, “Best thing I’ve ever done.  In the 
last two years I might have had three small UIS, where in Texas there would be 
three every four months.
   
  I have it changed every six months, clean daily with natural saline solution 
then apply small film of triple action antibiotic ointment. SP + H2O=0 UTIs.  
When one is suspected I push fluids which generally clears it up.  If still 
suspected I am successful with UTI Clear and Colloidal Meso Silver for four 
days.
   
  Be sure to tape and lock SP secirly to your leg, and leave a small loop 
between sight and tape.  The lock last for about a week.  Do you know how your 
urethra is closed to prevent Willy leaking?  Some people say just introducing 
the SP to the body invites bacteria.  I do not know because I am opposite.  
Finally, one for the good guy.  Feels great to be writing this.
   
  Merrill
   
  
-
  
  From: Tim Syfert [mailto:[EMAIL PROTECTED] 
Sent: Saturday, April 12, 2008 8:00 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Getting Supra Pubic in 3 weeks

   
Every once in awhile the top of Willy's head would get a little raw because 
of being wrapped up in a Texas cath so much of the time so it will be nice to 
'free Willy' and get rid of his sausage costume.

 

Tim

http://THEQUADLINK.COM 



"John S." <[EMAIL PROTECTED]> wrote:

Sorry to loose you from the Texas club, Tim. I hope you do well with 
your choice.

john
- Original Message 
From: Tim Syfert <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Saturday, April 12, 2008 9:36:38 PM
Subject: [QUAD-L] Getting Supra Pubic in 3 weeks
After 35 years of using external caths, I'll be getting a supra pubic in 3 
weeks because my bladder just hasn't been draining well in awhile now. Those of 
you with SP's, do you have any advice, tips, input, etc. for this soon to be SP 
rookie?

 

Thanks,

 

Tim

http://THEQUADLINK.COM 

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