[QUAD-L] Adaptive Awesomeness!!!
http://www.quadomated.com/adaptive-awesomeness/
RE: [QUAD-L] Muscle relaxer Baclofen/spasms question
This site has a description of the surgery.http://www.medtronic.com.au/your-health/multiple-sclerosis/getting-a-device/surgery/index.htm The tubing takes the drug straight from the pump to your spine. That is why you use so much less. KK Date: Tue, 10 Jun 2014 15:50:31 -0500 Subject: Re: [QUAD-L] Muscle relaxer Baclofen/spasms question From: quadrod...@gmail.com To: r.pra...@sbcglobal.net CC: quad-list@eskimo.com On Tue, Jun 10, 2014 at 2:23 PM, RONALD L PRACHT r.pra...@sbcglobal.net wrote: Everything involving drugs inside your body has a potential of danger. If your shaking so bad you cant function in life and the pill form doesn't work, this is the next step. The doctor performing the surgery will inform you off all the dangers and risks involved. My pain doctor just starting installing pumps..he can put a mixture of baclofen and morphine or whatever you need. Read the label of any drug on your table, they are have a potential to kill you if used improperly. Ron On Tuesday, June 10, 2014 2:00 PM, Danny Espinoza da...@immortaldesigns.co wrote: *Baclofen pumps* Original Message Subject: RE: [QUAD-L] Muscle relaxer Baclofen/spasms question From: Danny Espinoza da...@immortaldesigns.co Date: Tue, June 10, 2014 11:50 am To: Rene Bullard moip...@yahoo.com, daa...@aol.com daa...@aol.com, blan...@verizon.net blan...@verizon.net Cc: quad-list@eskimo.com quad-list@eskimo.com are baclophen pumps dangerous? Original Message Subject: Re: [QUAD-L] Muscle relaxer Baclofen/spasms question From: Rene Bullard moip...@yahoo.com Date: Tue, June 10, 2014 10:30 am To: daa...@aol.com daa...@aol.com, blan...@verizon.net blan...@verizon.net, da...@immortaldesigns.co da...@immortaldesigns.co Cc: quad-list@eskimo.com quad-list@eskimo.com Kyle was doing 6 a day now he has the pump works good.. On Monday, June 9, 2014 3:42 AM, daa...@aol.com daa...@aol.com wrote: My prescription is 10 mg 4-5 times per day. I used to take 20 and it slowed down my bowels. DanaIn a message dated 6/8/2014 11:40:52 A.M. Central Daylight Time, blan...@verizon.net writes: 30mg 5x a day.Sent from my iPad On Jun 7, 2014, at 22:35, Danny Espinoza da...@immortaldesigns.co wrote: My spasms are increasing and I'm unsure why because it doesnt look/feel like I've got a UTI and I haent dysreflexed in a while. I can only assume my Baclofen needs to be upped... Right now I'm taking 10@9AM, 10MG@4PM and 10MG@10PM. I plan to ask my doctor this week but I'm curious how much those of you that take Baclofen take? -Danny
[QUAD-L] Powerchair Dairies page
http://powerchairdiaries.com/2014/05/23/working-class-hero/ OK watch the video. I used to have a speech machine just like his. As far as using weights - nothing for left arm 5 lb in right. WOO-HOO! KK
RE: [QUAD-L] TV commercial with Quad
https://www.youtube.com/watch?v=P7A2oSEw_Gk This is the ad KK From: bobbiehumphre...@gmail.com Date: Thu, 8 May 2014 16:56:25 -0400 To: quad-list@eskimo.com Subject: [QUAD-L] TV commercial with Quad Has anybody seen the Petco commercial with a male quad in a manual wheelchair being polled, pretty fast, by his dog? Bobbie Smile Everyday
[QUAD-L] April 15 - total eclipse of the moon
http://www.astronomy.com/observing/sky-events/2014/02/watch-a-total-lunar-eclipse-april-15
[QUAD-L] A flashlight for many purposes
http://www.usatechguide.org/blog/clamp-lantern-flashlight-wheelchair-accessory/ Rather expensive for what I had in mind to use it for. Head lights for wheelchair! Be sure to watch the video.
[QUAD-L] What is MS was NORMAL?
Mar 26, 2014 09:34PMJUST PASSING IT ON *HAVE YOU ALL CONSIDERED THIS!?!?!?!?!?!...just saying!!That, maybe, what we are now experiencing with our MS symptoms is what we humanoids were suppose to be like all along!?!?!?!?!!I mean, think about itWasn't it a bitch to have to learn to walk in the first place.!?!!!?! What's wrong with just providing infants 'power chairs' during that toddling phase or whatever the Dr. Spooks call it, and leave it alone. NO FALLS!!!NO TWO YEAR OLDS SCREAMING BECAUSE THEY BUST THEIR ASS ON THE FLOORNO TRYING TO PROVE 'GRAVITY' WRONG TALK ABOUT GOING AGAINST NATURE!!!Then, can anyone tell me who came up with this crazy idea that incontinence isn't the way to go!?!?!?!?!?!??!DHH!!Hell!!! I bet Dyson could come up with something to suction the piddles and poop up if the 'compulsive'/'obsessive' crowd want to make a STINK over itBIG DEAL!!Here again, allowing the 'NATURAL' flow of things occur seems only right, doesn't it!?!?!?The DAMN power chairs could be built with a chute out the back from the seat and if Dyson or Electrolux or Bissell or Hoover don't want society's business, so be it!! What's wrong with having a little 'collection' bag attached to that chute?HUH!?!?!?!!? UH-HUH! NOT BAD!!! ALL ALONG HUMANITY HAS BEEN FIGHTING THE 'NATURAL' COURSE OF HOW CERTAIN 'FACTS OF LIFE' SHOULD HAVE BEEN ALL ALONGHEY!! HEY!! HEY!!! THINK ABOUT IT!!!This way ALL the parking places could be designated 'HANDICAPPED'right!!!???!!!This way ALL buildings and doorways and kitchens would be designed as 'accessible'...what da ya think!!?!?This way ALL the stalls in the restrooms would be 'handicapped' accessible...but even better; if we got the 'collection' bags at the back of our power chair seats, NO body would need public restrooms anymore!!!...in fact, it'd do away with all that small talk at really bad cocktail parties about which of the restroomsmale or femaleare usually the filthiestDoes your MS symptom journey involve vision nuances!?!?!?!?BIG DEAL!!! Power chairs would come equipped with GPS and sonar as standard!!MY GOODNESS!!! Do I have to imagine everything!!?!?!?What about our brothers and sisters who have grasping and dropsy as their periodic systems?Betcha you thought that I'd forgot about you folkhuh!?!?!!NEVERCan't button those shirts Can't tie those shoes? Fastening that bra too much of an effort without assistancePutting one foot at a time into the pant legs and pulling up the boot straps a thing of the past?Do you hate what elastic waist clothing does for your fashion silhouette!?!?!?!SCREW IT I don't remember coming down the birth canal wearing Armani!?!?!?!DID YOU!?!?!?!?!?!?!Well, there you go!!! Why bother with the zippers and laces and buttons and clasps!?!?!?! GET OVER IT If you're spiritual, then what are you doing anyway when theology teaches that GOD made no mistakes in designing us and our bodies; so who in the devil does Chanel and Gucci and Lauren think they are in trying to improve GOD's work!!!?!!REALLY...and then look at all the duplication and cost in holding TWO separate Olympics...one for those 'NORMALS' and then immedicately afterward, doing the Para whatever Games! If everyone is in an adaptive mobility device to begin with; SHOOT We can start having just one Olympic games and get over this focusing of people's differences!Besides, doesn't our democracy teach that 'everyone' is suppose to be 'EQUAL'!?!?!?EH!?!?!?! I've got a point there, don't I!!?!MS Fatigue No problems there!!!Society will come to realize that this is a preferred way to live as dictated by Karma in telling the 'human race' that we need to slow the HELL down and take life at a more 'scenic route' kind of lifestyle!The ones of us with 'actual' MS that experience the 'fatigue' will be considered Shaman or some such guru and will be followed for our wisdom in providing enlightenment as to how we should enjoy our time on earth!SCREW MARTHA STEWART!!OH MY GOODNESS!!! I have rattled on here, haven't I!?!?!It's probably that MS Cognitive Dysfunction stuffoh, well!!Now, what was my point!!?!?GEE!!!NEVER MIND!!!just saying!SHEP
RE: [QUAD-L] What is MS was NORMAL?
The guy who wrote this is just now getting into wheelchair full time. He still thinks he can keep up with his bladder issues. Losing ground rather quickly. Give me your friends email address maybe we can chat a bit. Plenty of groups chats out there for us MSer's. KK Date: Thu, 27 Mar 2014 10:18:09 -0700 From: donpric...@yahoo.com Subject: Re: [QUAD-L] What is MS was NORMAL? To: wheelch...@aol.com; kkba...@outlook.com; ms-qu...@yahoogroups.com; quad-list@eskimo.com Bravo!!You made me laugh and think a bit good stuff!!Your point is actually quite similar to a tenet of Independent Living philosophy: disability is a natural part of life and people with disabilities are not necessarily broken, in need of fixing, but rather the environment around us needs to be changed to accommodate people of all kinds. Allowing all people choice and control in their lives is critical.Sorry to switch to 'serious' mode--your essay had me laughing. Don. On Thursday, March 27, 2014 9:35 AM, wheelch...@aol.com wheelch...@aol.com wrote: Interesting. I met a woman just yesterday who is plus 40, with MS onset that began just 2 years ago. Before that she was without symptoms. Today, she lives by herself, with a powered wheelchair and very depressed. I tried to refer her to a CIL, MS Support Groups and Voc Rehab. I hope the best for her, but I doubt that she will follow up on my suggestion. She appeared to have some home care, but I don't think she has much support. MS-Onset can do that... Best Wishes In a message dated 3/27/2014 11:13:43 A.M. Central Daylight Time, kkba...@outlook.com writes: Mar 26, 2014 09:34PM JUST PASSING IT ON* HAVE YOU ALL CONSIDERED THIS!?!?!?!?!?!...just saying!! That, maybe, what we are now experiencing with our MS symptoms is what we humanoids were suppose to be like all along!?!?!?!?!! I mean, think about it Wasn't it a bitch to have to learn to walk in the first place.!?!!!?! What's wrong with just providing infants 'power chairs' during that toddling phase or whatever the Dr. Spooks call it, and leave it alone. NO FALLS!!! NO TWO YEAR OLDS SCREAMING BECAUSE THEY BUST THEIR ASS ON THE FLOOR NO TRYING TO PROVE 'GRAVITY' WRONG TALK ABOUT GOING AGAINST NATURE!!! Then, can anyone tell me who came up with this crazy idea that incontinence isn't the way to go!?!?!?!?!?!??! DHH!! Hell!!! I bet Dyson could come up with something to suction the piddles and poop up if the 'compulsive'/'obsessive' crowd want to make a STINK over itBIG DEAL!! Here again, allowing the 'NATURAL' flow of things occur seems only right, doesn't it!?!?!? The DAMN power chairs could be built with a chute out the back from the seat and if Dyson or Electrolux or Bissell or Hoover don't want society's business, so be it!! What's wrong with having a little 'collection' bag attached to that chute? HUH!?!?!?!!? UH-HUH! NOT BAD!!! ALL ALONG HUMANITY HAS BEEN FIGHTING THE 'NATURAL' COURSE OF HOW CERTAIN 'FACTS OF LIFE' SHOULD HAVE BEEN ALL ALONG HEY!! HEY!! HEY!!! THINK ABOUT IT!!! This way ALL the parking places could be designated 'HANDICAPPED'right!!!???!!! This way ALL buildings and doorways and kitchens would be designed as 'accessible'...what da ya think!!?!? This way ALL the stalls in the restrooms would be 'handicapped' accessible...but even better; if we got the 'collection' bags at the back of our power chair seats, NO body would need public restrooms anymore!!! ...in fact, it'd do away with all that small talk at really bad cocktail parties about which of the restroomsmale or femaleare usually the filthiest Does your MS symptom journey involve vision nuances!?!?!?!? BIG DEAL!!! Power chairs would come equipped with GPS and sonar as standard!! MY GOODNESS!!! Do I have to imagine everything!!?!?!? What about our brothers and sisters who have grasping and dropsy as their periodic systems? Betcha you thought that I'd forgot about you folkhuh!?!?!! NEVER Can't button those shirts Can't tie those shoes? Fastening that bra too much of an effort without assistance Putting one foot at a time into the pant legs and pulling up the boot straps a thing of the past? Do you hate what elastic waist clothing does for your fashion silhouette!?!?!?! SCREW IT I don't remember coming down the birth canal wearing Armani!?!?!?! DID YOU!?!?!?!?!?!?! Well, there you go!!! Why bother with the zippers and laces and buttons and clasps!?!?!?! GET OVER IT If you're spiritual, then what are you doing anyway when theology teaches that GOD made no mistakes in
[QUAD-L] FW: Limited Time - Belly Bag Urinary Drainage Bag - Only $15.99
passing it on! KK From: ecata...@allegromedical.com To: kkba...@outlook.com Date: Mon, 24 Mar 2014 13:03:32 -0400 Subject: Limited Time - Belly Bag Urinary Drainage Bag - Only $15.99 Limited Time Only - Belly Bag Urinary Drainage Bag - Only $15.99. Limited Time Only -Belly Bag Urinary Drainage Bag - Only $15.99. Shop Now » Manage your preferences publications here | View this email with images | For removal please unsubscribe here Shopping here is 100% secure | My Account | Track My Order Call us at (800) 861-3211 Bathroom Assists | Catheters | Incontinence | Wheelchair Accessories | Wound Care | Exceptional Deals Time to Reorder? Visit MY ALLEGRO » | Allegro BLOG » | Shop by BRAND » | Shop by CONDITION » To continue to receive promotions, please add ecata...@allegromedical.com to your address book. Bariatric Bathroom Assists Beds Catheters Children/Pediatric Cold and Flu Crutches Cushions/Covers/Backs Daily Living Aids Defibrillators Diabetes Supplies Diagnostic Products Dietary Supplements Electrotherapy Emergency Preparation Exercise/Fitness Gift Ideas Handcycles Hospital Discharge Housewares Incontinence Lift Chairs Maternity Care Mobility Scooters OTC Medications Orthopedics/Orthotics Ostomy Supplies Outdoor Gear Pain Management Patient Care Personal Care Personal Protection Ramps Respiratory Therapy Shoes Skin Care Surgical Supplies Syringes Travel Aids Treatment Furniture Walkers/Canes Wheelchair Accessories Wheelchairs Wound Care Do not respond to this email. If you have any questions please contact customer service. Track your order at www.AllegroMedical.com. Professionals interested in quantity discounts or account terms please contact our corporate sales. If you have any questions please contact customer service. Some Restrictions may apply, please see website for details. All prices are subject to change without notice. Images may not accurately depict the actual items. This email was sent by: Allegro Medical 7272 E. Indian School Road, Suite 540 Scottsdale, AZ 85251 For removal please unsubscribe here We respect your right to privacy - go here to view our policy. Copyright © 2014 AllegroMedical.com. All rights reserved.
[QUAD-L] Windows 8 - do you have it?
Son bought (with my income tax money) a laptop with a stand to attach to my wheelchair. He is setting it up for me but it has Windows 8. People have been complaining about it being hard. I'll be using either a mouse or the stylus I made out of a piece a plastic plumbing T. The stand is to get me out of the bed as much as possible. After being in the bed most of the last 3 months, I'll accept that he is trying to do a good thing. It will have text to speech already installed Tobii speech program so I can freely talk to anyone who will listen to my sexy British computer voice. LOL!!! Only problem he has run in to is that Blue Tooth isn't working so he had to send it back. So hopefully next week sometime I'll be able to email chat to my hearts content from my newly rebuilt wheelchair. They, the powers that be, have decided to make me wait another year to get a new wheelchair. Happy Wheeling!KK
[QUAD-L] Don't know if I shared this before
It's about ECU http://www.ablenetinc.com/Assistive-Technology/Environmental-Control-Units-ECU
RE: [QUAD-L] Don't know if I shared this before
At the moment I have separate remotes for lights opening the front door. Need one that will unlock the dead bolt tho. Sleeping with the door unlocked at the moment. Scary. KK Date: Fri, 21 Mar 2014 13:50:23 -0400 From: whe...@cvn.net To: quad-list@eskimo.com Subject: Re: [QUAD-L] Don't know if I shared this before I notice that they have voice control ECU's. I have the Imperium 200H ECU base unit plus large remote. It is rocker switch/push button control. List price of base unit from abledata.com is $3580 I'd be interested in selling if anybody is looking for an ECU. It can control phone,tv,stero, lights, bed, appliances Derrick W On 3/21/2014 12:37 PM, KK Batte wrote: It's about ECU http://www.ablenetinc.com/Assistive-Technology/Environmental-Control-Units-ECU
[QUAD-L] Street legal 3 wheeler
I want one!!! http://www.dcimotors.com/
[QUAD-L] Paralympics telecast schedule
http://www.nbcolympics.com/content/sochi-2014-paralympics-telecast-schedule
[QUAD-L] It only took 7 days to get all the paperwork
for my new Medicare paid wheelchair done. Nursing home health agency called today because they don't order wheelchairs. One more thing down. Can any one suggest a back that will support my upper back? Every back I ever had stopped at the angel bones. Guess I need a full back this time . KK
[QUAD-L] Official website of the Para-Olympics
http://www.paralympic.org/sochi-2014
[QUAD-L] FW: A little walk down memory lane...
A little walk down memory lane... This should bring back a lot of memories. =
RE: [QUAD-L] 12 of snow here in New Jersey GOT YOU BEAT
Just to give you guys a moment to dream, I am going to the park to watch the ducks. It is almost noon 62 degrees. KK - loving today's weather in Houston TX CC: quad-list@eskimo.com From: blan...@verizon.net Subject: Re: [QUAD-L] 12 of snow here in New Jersey GOT YOU BEAT Date: Sat, 15 Feb 2014 11:35:07 -0500 To: jume9...@comcast.net Stare out the window and wait for spring. Snowing now on the Jersey Shore, Bobbie may have us beat. Still can't get out of my driveway. Sent from my iPad On Feb 15, 2014, at 11:23, jume9...@comcast.net wrote: Wow, guys how do you handle all that cold?? Can we have some of your snow? Here in Cali it has been so warm that the mosquitos are gre going crazy. It is such a drought here. I am not posting to gloat but to state that the climate is all screwed up. Meredith From: gah17...@aol.com To: bobbiehumphre...@gmail.com Cc: quad-list@eskimo.com Sent: Saturday, February 15, 2014 3:56:52 AM Subject: Re: [QUAD-L] 12 of snow here in New Jersey GOT YOU BEAT Tuesday .5 inch iceThursday 14 snowFriday 5Saturday 4 Enough already In a message dated 2/14/2014 3:24:05 P.M. Eastern Standard Time, bobbiehumphre...@gmail.com writes:Yesterday we got 12 of snow that was on top of 8 already threre. Saturday were going to get 3-5 MORE Bobbie. Northren New Jersey Smile Everyday
[QUAD-L] FW: [MS-Quads] Texting Elderly
Subject: Texting Elderly Texting Elderly An elderly couple had just learned how to send text messages on their cell phones. The wife was a romantic type, and the husband was more of a no-nonsense guy. One afternoon the wife went out to meet a friend for coffee. She decided to send her husband a romantic text message, so she wrote: If you are sleeping, send me your dreams. If you are laughing, send me your smile. If you are eating, send me a bite. If you are drinking, send me a sip. If you are crying, send me your tears. I love you. The husband texted back to her: I'm using the bathroom. Please advise. __._,_.___ Reply via web post Reply to sender Reply to group Start a New Topic Messages in this topic (1) Visit Your Group • Privacy • Unsubscribe • Terms of Use . __,_._,___
[QUAD-L] United Spinal Hosts Free Webinars
PR Newswire NEW YORK, Feb. 6, 2014 .@UnitedSpinal Hosts Free Feb Webinars: Access to #Catheters Home Modifications for #Wheelchair Users #accessibility http://bit.ly/1bZJbsm NEW YORK, Feb. 6, 2014 /PRNewswire-USNewswire/ -- United Spinal Association's membership division, National Spinal Cord Injury Association (NSCIA), will host two free webinars in February on the topics of how to access catheters that best work for people with disabilities followed by successful home modifications for wheelchair users. (Logo: http://photos.prnewswire.com/prnh/20110413/MM82757LOGO) The first webinar Accessing the Catheter that Best Works for You –– Thursday, February 13th from 2 p.m. to 3 p.m. EST, will focus on the availability of today's intermittent catheters under Medicare. The webinar will provide attendees the opportunity to learn about the full range of catheter types, both open and closed systems, taking into account medical need and safety. The webinar is specifically geared toward people living with spinal cord injuries and disorders, caregivers and health care professionals. Guest speaker will be Steve Boettcher, Reimbursement Specialist, Coloplast Corporation and Sharon Osgood, RN, BSN, CWOCN, Clinical Consultant, Coloplast Corporation. The second webinar The Formula for Successful Home Modifications –– Wednesday, February 26th from 3 p.m. to 4 p.m. EST, will provide wheelchair users and caregivers a blueprint and all the necessary information and tools to make any accessible home modification job a successful one. Guest speaker will be Frank Gucciardi, MS, PT, CAPS., CGP, President Owner, Frangeli Consulting Design. To view a full list of NSCIA's upcoming and archived webinars, please visit http://www.spinalcord.org/webinar-archive/. About United Spinal Association United Spinal is a national 501(c) (3) nonprofit membership organization formed in 1946 by paralyzed veterans and is dedicated to improving the quality of life for all Americans with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, ALS and post-polio. It played a significant role in writing the Americans with Disabilities Act, and made important contributions to the Fair Housing Amendments Act and the Air Carrier Access Act. Membership is free and is open to all individuals with SCI/D. United Spinal was instrumental in getting New York City to create sidewalk curb ramps and accessible public transportation that has been used as a model for many United States cities. Media contact: Ahvi Spindell Media Relations Services United Spinal Association (212) 580-4567 a...@spindellmediarelations.com Twitter @ahvispin Available Topic Expert: For information on the listed expert, click appropriate link. James Weisman http://www.profnetconnect.com/jim_weisman SOURCE United Spinal Association Read more: http://www.digitaljournal.com/pr/1724218#ixzz2seMlKHMN
[QUAD-L] Remote Control Door Opener
I have a front door remote opener. But if the door is locked, the remote doesn't work. When you are alone, how do you unlock open the door? KK
[QUAD-L] Posting this for a friend about colostomy's
Date: Sun, 2 Feb 2014 20:40:37 -0500 Subject: would you please post this From: elizabeth2...@gmail.com To: kkba...@outlook.com You said you could post things for me since I am unable to do it. They are discussing colostomy on the QUAD-L email group. Would you please post this link to a past New Mobility article about it. There are other articles, they can go to the magazine site do a search for colostomy. This is a good article.http://www.newmobility.com/1998/07/the-joy-of-colostomy/ -- Elizabeth
RE: [QUAD-L] Re: quad site
Sorry guys but I got sick with flu type illness Christmas. Finish the antibiotics tomorrow still not better. GRRR!! KKB Date: Thu, 16 Jan 2014 11:24:16 -0800 From: scamper2...@att.net Subject: Re: [QUAD-L] Re: quad site To: wheelch...@aol.com; gah17...@aol.com CC: quad-list@eskimo.com Their either out and about or frozen in snow with no internet or just to cold to get out of a nice warm bed From: wheelch...@aol.com wheelch...@aol.com To: gah17...@aol.com Cc: quad-list@eskimo.com Sent: Thursday, January 16, 2014 10:17 AM Subject: [QUAD-L] Re: quad site Not much happening here Glenn. I suppose that summer came early this year and everyone is out n about trying to improve their suntans. Hope you are ok. Best Wishes In a message dated 1/16/2014 12:12:28 P.M. Central Standard Time, gah17...@aol.com writes: Hey Wheels, Has the quad site have many posts over the past 2 weeks? I'm not getting anything. Isn't there a way to look at archives? Thanks, Glenn Henry
RE: [QUAD-L] Very, very cold tonight
Love the storm names. Keep y our socks on snuggle tight! KK From: bobbiehumphre...@gmail.com Date: Fri, 3 Jan 2014 16:47:08 -0500 To: quad-list@eskimo.com Subject: [QUAD-L] Very, very cold tonight Hi All, Here in Northern New Jersey we got 8 inches of snow overnight today's high is 15 and tonight it's going to be -11 Bobbie Smile Everyday
[QUAD-L] Issues with ALT/air mattress pump
I have a Mason 2000ADJ which is cheap I know. This is my 3rd pump in 4 years. They seem to lose pump pressure over time. I have gotten a new pump each time - no charge - of course. But this newest one isn't keeping the level where it should be. What kind of Alternating air mattress do you have are pleased with? Any other mattress suggestions will also be helpful. Seem to be spending a lot more time in the bed these days. KK
RE: [QUAD-L] Somebody asked me if I want to die
If it is my time, I ain't going to fight it BUT... I am not going to do anything to make it happen today. Now if life got to be a chore just to breathe, then I may have to think twice. LOL!!! Make everyday count. KK From: bobbiehumphre...@gmail.com Date: Wed, 4 Dec 2013 16:22:48 -0500 To: quad-list@eskimo.com Subject: [QUAD-L] Somebody asked me if I want to die I that deer hunter's family Doctor asked HIM if he wanted to Live like this? WHY DOES SOMEBODY ASKED ME, NOW, I WANT TO DIE? I'm ready, I'm shaking my head back and forth, I'm verbally say yes pull the god damn fucking plug already Smile Everyday
RE: [QUAD-L] Posts?
But they are easier to keep clean. If I didn't have one, I'm not sure I could stand living. The idea of being in a wet diaper is appalling. KK CC: bobbiehumphre...@gmail.com; gah17...@aol.com; quad-list@eskimo.com From: gentr...@yahoo.com Subject: Re: [QUAD-L] Posts? Date: Fri, 29 Nov 2013 08:41:14 -0600 To: wheelch...@aol.com SP tubes are NOT supposed to reduce infections. They actually increase them bc u have a non-sterile foreign body in ur body. Every urologist will tell u that with an SP tube it is impossible NOT to have an infection 100% of the time. You just don't treat them unless you are symptomatic (fever/sweating). All my best, Gentrie Pool On Nov 29, 2013, at 8:05 AM, wheelch...@aol.com wrote: Now that is strange as SP are suppose to reduce or eliminate infections. Standing therapy helps to empty the bladder and reduces the chance of infections, as urine doesn't pool when standing. An acidic bladder also helps to reduce the chance of infections. Best Wishes In a message dated 11/29/2013 7:38:48 A.M. Central Standard Time, gentr...@yahoo.com writes: Thanks. :) He does/is. He has a suprapubic cath so infections are too common. Hoping he can eventually go back to a condom cath---less infection and maybe this terrible and constant burning since 2006 will stop. It rules our life. All my best, Gentrie Pool On Nov 29, 2013, at 7:22 AM, wheelch...@aol.com wrote: Our best to your husband. and to you. I hope he is taking his meds as he flushes his kidneys and bladder. Best Wishes In a message dated 11/28/2013 11:18:29 P.M. Central Standard Time, gentr...@yahoo.com writes: My husband (c5/6 since age 17 in 1992) has been fighting a serious pseudomonas infection in his bladder for two weeks...(heightening his central neuropathic pain in his bladder which he has had 24/7/365 since 2006.) Been very rough and scary. Today was the best day he's had in two weeks though. :) All my best, Gentrie Pool On Nov 28, 2013, at 10:17 PM, Gmail bobbiehumphre...@gmail.com wrote: I'm still here stuck in bed, my 9th week or 10th depending on how you look at it. I was home with just Pete, no company, so it just seemed like just another day. Bobbie Smile Everyday On Nov 28, 2013, at 8:18 PM, gah17...@aol.com wrote: Anybody posting or are you too busy? Haven't had anythingin days. GA==
RE: [QUAD-L] Need to test my skype account
Tell me about Skype. I haven't tried it. Have a camera but no microphone. Is it free it call someone else with Skype? KK From: da...@immortaldesigns.co To: ismaelcavaz...@gmail.com; quad-List@eskimo.com Subject: RE: [QUAD-L] Need to test my skype account Date: Sat, 5 Oct 2013 18:59:57 -0700 I sent you a friend request on Skype. -Danny From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com] Sent: Saturday, October 05, 2013 6:42 PM To: quad-List@eskimo.com Subject: [QUAD-L] Need to test my skype account Can someone from the quad list who has Skype please call me at Ismael.Cavazos1? I am setting up my Skype account and would like to test it with a live person. Thanks. Ismael C.
[QUAD-L] My next step?
http://www.youtube.com/watch?v=NokH2IHCUd4feature=em-uploademail Yes Elizabeth this is another Chris, the quad video. But please watch it help me figure this out. He makes it look like it takes so little energy. Is this really life using a lift? Is it safe to use a lift when you are alone. In other video's it looks like he will be hanging himself. Life as a quad who is getting weaker by the day. KK
[QUAD-L] Non-UTI Problems Common with Urethral Catheters
http://www.renalandurologynews.com/non-uti-problems-common-with-urethral-catheters/article/311531/# May cause bladder stones if improperly inserted.
[QUAD-L] FW: Chobani, Inc. Voluntarily Recalls Greek Yogurt Because of Product Concerns
Subject: Chobani, Inc. Voluntarily Recalls Greek Yogurt Because of Product Concerns Date: Thu, 5 Sep 2013 11:13:27 -0500 To: kkba...@outlook.com From: f...@service.govdelivery.com Chobani, Inc. Voluntarily Recalls Greek Yogurt Because of Product Concerns You are subscribed to Recalls, Market Withdrawals and Safety Alerts for U.S. Food Drug Administration (FDA). This information has recently been updated and is now available. Chobani, Inc. Voluntarily Recalls Greek Yogurt Because of Product Concerns 09/05/2013 11:51 AM EDT Chobani, Inc., of Twin Falls, Idaho is voluntarily recalling Greek Yogurt. The company has ceased the distribution of the product due to reports of product bloating and swelling and some claims of illness as the company continues its investigation to identify the root cause. . For detailed information pertaining to this Recalls, Market Withdrawals and Safety Alerts message, please click the link at the beginning of this bulletin. Manage your FDA Subscriptions: Update your preferences or unsubscribe Questions about this service? supp...@govdelivery.com Other inquiries? webm...@oc.fda.gov This email was sent to kkba...@outlook.com using GovDelivery, on behalf of: U.S. Food Drug Administration (FDA) · 10903 New Hampshire Ave · Silver Spring, MD 20993 · 800-439-1420
[QUAD-L] Blair Underwood as wheelchair bound cop
http://www.contactmusic.com/story/blair-underwood-makes-mum-proud-as-wheelchair-bound-cop_389 His Mom has Multiple Sclerosis
[QUAD-L] Do-It-Yourself Designs for Daily Living
http://online.wsj.com/article/SB10001424127887323415304578368591622892684.html#project=IVHackprintarticleTabs=interactive
[QUAD-L] Taxis for All
attachment: ShowLetter.jpg July 26, 2006 Re: ADA Anniversary Launch of Taxis For All – North America Dear Friend: United Spinal Association, one of the founding groups of the New York City Taxis For All Campaign coalition, is pleased to announce the launch of Taxis For All -North America. Via www.taxisforallna.org, we will inform you about the benefits of wheelchair-accessible taxi service and we will provide advocacy tools to you which can be used to begin such service in any community. As you know well, the lack of accessible transportation services continues to be a significant daily problem facing millions of individuals with disabilities. While the Americans with Disabilities Act transportation provisions have resulted in tremendous gains in the number of accessible buses and trains in operation, the fact remains that accessible public transportation doesn’t extend to all communities. Gaps in available accessible transportation service continue to keep persons with disabilities out of the labor force and isolated in their communities. But change is on the way. Since early 2006, United Spinal Association has been in contact with a company that is designing a new purpose-built, affordable sedan taxi which will meet ADA specifications. It incorporates a manually- deployed ramp that extends to the curb at the side-rear passenger door, and a wheelchair-seating location in the front passenger seating area. This vehicle can also transport four other seated passengers. A prototype of it will be unveiled at a transportation regulators conference in September and manufacturing of the vehicle is planned to start in late 2007. United Spinal Association believes that a widely-available affordable, accessible sedan taxi can open up this mode of transportation to wheelchair users in communities of all sizes, particularly in towns where little public transportation operates. If you would like to receive regular updates from Taxis For All - North America concerning various taxi advocacy strategies and the development of this vehicle, log on to www.taxisforallna.org for further information. Thank you for your interest in accessible taxis. Sincerely, Terence Moakley Director of Special Projects United Spinal Association
Re: [QUAD-L] A Question For The Ladies
Since I am one of the few females I will at least put a word. Had uterine cancer in 1979 had all that stuff taken out. Don't even remember much about those things. LOL!
[QUAD-L] OT is coming
After 3 years of recovering I have finally accepted that this is as good as I am going to get. Got the referral for OT at home. I have eating under control bathing. I can stand for about 10 minutes, long enough to wash the dishes. My aid comes 29 hours a week. But I want to be able to do more even while she is here. I have use of my right arm. What things can you do for yourself? KK
Re: [QUAD-L] Feeling Vs. Pain research
I have a C-3 partial a T-6/7 partial. No feeling from nipple line down except for right arm. No feeling except at muscle/joint connection. My biggest problem is with muscle spasms. KK
Re: [QUAD-L] I Wonder Why-starts in the ER
Hey at least with most SCI's you know what happened, the cause of not being able to move. MS has been around since the 1400's. They still don't know what causes it, how to fix it, how to prevent getting it. It would be great to be able to move again but I am not counting on it for me. KK
Re: [QUAD-L] Google Earth
Too many trees in my area. LOL KK
[QUAD-L] Bored, lonely mind needs to be occupied
Can I SCREAM? I live in a retired community. All that means is everyone, except me my neighbor who is 54 I am 58, are over 65. People are dropping all around me. No one wants to go any place or do anything. I may be in a wheelchair can't remember sh** but I am not dead. Don't qualify for any of the senior groups at the community centers. Don't drive so anything I do has to be during the day time bus hours 10-2. Where do you go when you need to be around others? What activities ddo you do in a group setting? KK Bad ozone day so staying inside.
Re: [QUAD-L] RLS - Requip
What is the cost? Imagine it is expensive being so new. My aid was filing my toe nails today I almost kicked her in the face. Hate it when I have no control over the legs.
[QUAD-L] Minor success in my apartment
Was sitting outside drinking my coffee the maintenance man came up started talking. HUD will be here for inspection today. We started talking about my handicapped accessible kitchen. The counters are a regular width so nothing can be done on that count but the switches are at the back of the counter. These switches turn on the under counter light, garbage disposal the owen light fan. He suggested moving the plugs to under the sink in the open space. Never thought it would happen. Now if I can get markings for the burners on the stove. Now I have masking tape showing the front burners. Took off the knobs or should I say the parrot did. Have to put them on each time I use the stove. KK With a heat index of 105 today!
[QUAD-L] Overcoming paralysis is a case of mind over matter
http://www.newscientisttech.com/article.ns? id=mg19125606.200feedId=health_rss20 Overcoming paralysis is a case of mind over matter 15 July 2006 Celeste Biever Magazine issue 2560 A MAN paralysed from the neck down by knife injuries sustained five years ago can now check his email, control a robot arm and even play computer games using the power of thought alone. Matt Nagle's extraordinary abilities first grabbed the headlines in March 2005. Now details of the technology that lets him perform these and other tasks are published in Nature this week (vol 442, p 164). Electrodes implanted in Nagle's brain measure the neural signals generated when he concentrates on trying to move one of his paralysed limbs. Software trained to recognise different patterns of neural activity then translates the attempted gesture into the movement of an on-screen cursor or a robotic arm at Nagle's side. The fundamental findings are that you can record activity from the brain years after injury, that thinking about movement is sufficient to activate the brain, and that we can decode the signal, ...
Re: [QUAD-L] I miss Jerry rockers
Did you hear that Sid Barrett died last weekend? He was the co- founder of Pink Floyd.
Re: [QUAD-L] More PT for me
I have to request a therapist who knows about CNS symptoms. If there is no one, they either must find someone or I go to another place. Like I kept telling my mother, it is your body, speak up tell them what you need. KK
Re: [QUAD-L] question
http://www.unitedspinal.org/publications/action/2006/07/01/accessible-taxis-everywhere-a-realistic-goal/Accessible Taxis Everywhere: A Realistic GoalWhat’s good news for people with disabilities who want to use taxis in New York City is good news for people with disabilities nationwide.By Terry MoakleyAt the end of May, partly as a result of advocacy by United Spinal and other local groups, the New York City Council passed a law that soon will raise the total of hybrid or clean-air taxis to 273 and wheelchair- accessible cabs to 231. In a joint press release issued by Mayor Michael R. Bloomberg’s office on the day of this vote, City Council Speaker Christine C. Quinn stated, “We have a responsibility to make sure that all New Yorkers, especially individuals with disabilities and senior citizens, can get around town easily. By adding 204 wheelchair accessible taxis this year, we are taking a step toward our ultimate goal of making every taxi in New York wheelchair accessible.”This objective is shared by the Taxis for All Campaign, a city-based coalition of disability groups that includes United Spinal. In fact, Taxis for All has submitted a proposed bill to the City Council that would gradually transform the yellow taxi system to a totally clean air and wheelchair-accessible service, as existing taxis are replaced. This concept of phasing in accessible cabs through a reasonable replacement cycle received a little boost on May 28, when The New York Times editorialized in favor of this approach.Not Just a New York ConcernWhile all of the above may appear to be “New York- centric,” United Spinal believes strongly that a plan to make all cabs accessible in our city could reverberate nationwide, for several reasons.New York City is the largest new taxi vehicle market in the land. Each year, about one-fourth of new taxi vehicles purchased in this country are placed into service in The Big Apple. Most of the other new taxi vehicles sold annually wind up in a small number of big American cities, including Chicago, Illinois; Washington, DC; and Los Angeles, California. These new taxi vehicles are then re-sold after about two years and recycled as taxis in smaller communities. This is how accessible New York cabs will become accessible Atlanta cabs, for example.The federal transportation law’s New Freedom Program, adopted last August, will provide funds in communities across America in the future for worthwhile transportation projects that go beyond the Americans with Disabilities Act (ADA) requirements. The ADA does not require that when new taxi vehicles are purchased, they must be wheelchair-accessible taxi vehicles, so the congressional authors of the New Freedom transportation law listed the purchase of accessible cabs in the House-Senate conference report as a potential eligible activity for this funding. The proposed Federal Transit Administration regulations keep the purchase of accessible taxis as an eligible activity, and we think that a lot of communities will choose taxi purchases as a means to improve mobility for citizens with disabilities.Because taxi service operates not just in large cities, but in many suburbs and even in rural towns, United Spinal is poised to launch a national “Taxis for All” education and advocacy effort. We believe that the future availability of wheelchair-accessible taxis in communities large and small could make a tremendous difference for wheelchair-using Americans who currently have no other transportation options.As of this writing, we have a commitment for funding a national Taxis for All project from an American company that has designed, and plans to manufacture, a wheelchair-accessible sedan taxi. Understandably, we are extremely excited to be moving forward on this project, and we will keep Action readers informed in future issues of our progress on it and on the first factory-built accessible taxi in our nation.Terry Moakley, associate executive director of Public Affair, chairs the Taxis for All Campaign.
Re: [QUAD-L] What's out your back door down the street?
Here they have to meet strict building codes. It took 3 years to get them to keep the trees hide the garbage make the entire store parking wheelchair accessible. It is a super Walmart. Takes me 2 days to get groceries one day drugs such the next. It is such a happy store. Just opened I hope it stays that way.
[QUAD-L] From United Spinal Magazine
Study participants wanted Forgiveness Copying after SCI [EMAIL PROTECTED] Parenting with a Disability [EMAIL PROTECTED] KK PS - Does anyone else get this magazine? It is free from the VA has some great subjects. Last month it was MS. This month it is about legislation. No I was not in the service. They are doing research on MS because so many that were in the service are getting MS.
Re: [QUAD-L] FEELING?
I have no feeling from the chest down, don't even know where my body is unless I look at it. Used to be able to walk by looking where my feet were. awfully tiring on the poor damaged brain tho. Kept running into walls. I do have muscle spasms but only feel them at the point where muscle attaches to bone. KK MS since 1960, last major episode paralyzed from C3 down.
Re: [QUAD-L] handle users
KK is my initials. I am female, 58, MS since 1960, wheelchair last 12 years.
Re: [QUAD-L] Quality of Life and SCI ~~ Huh?
This same question should be asked of everyone - injured or not. All we have is today. That's it. Make the best of the moment you have. Worrying just gives you wrinkles. Then you have to buy a cream make someone else rich. Don't worry in the first place keep your own pennies! KK
Re: [QUAD-L] Comebacks_Re: Quality of Life and SCI ~~ Huh?
The one I get most often is - How can you be so happy?
Re: [QUAD-L] What's out your back door down the street?
I live in The Woodlands TX. That pretty much describes it. Trees block all structures from the roads. No signs can be more than 5 ft tall. Trees, trees more trees! 2 blocks down the street is a shopping center. It is hidden in the trees also. Every structure must be wheelchair accessible. There are accessible paths going to everywhere. KK
Re: [QUAD-L] did you guys see this?
He has been on a Discovery channel show. The man who slept for 19 years I think is the name of the episode.KKOn Jul 4, 2006, at 11:59 AM, [EMAIL PROTECTED] wrote: http://articles.news.aol.com/news/_a/injured-mans-brain-rewires-itself/20060703184509990001?ncid=NWS000101 Dave www.daveoconnell.com
[QUAD-L] IM
I have Yahoo Instant Message running all the time. So if anyone wants to chat look me up. [EMAIL PROTECTED]
[QUAD-L] Workshop solutions for the disabled
http://www.workshopsolutions.com/index.htm
[QUAD-L] Core strengthening exercises
My upper body strength is getting worse by the day. Just tried sitting on a ball my insides felt wobbley. Didn't fall but... Is there a site that you go to for these types of exercises? KK
[QUAD-L] Radio on the computer - OT
I have a dial up system so my speed is slow. I can only listen to stations with bands like 26. Love Beethoven.com but they do have commercials. BostonPete.com has a lot of types of music but for some unknown to me reason it will only play one song then the sound stops. It says it is still playing but no sound comes out. Does anyone else use the feature on their computer? If so, what stations do you listen to. KK
Re: [QUAD-L] Love, music, stories and love again
How old when you had kids?KKOn Jun 28, 2006, at 10:46 AM, [EMAIL PROTECTED] wrote: broken at 19 - married at 26. job at 31, retired at 58. still crazy after all these years. Dave In a message dated 6/27/2006 4:25:39 P.M. US Mountain Standard Time, DAANOO writes: Hi Dave,how old were you when you got married and when you had your accident? I dated my wife once when I was 17 and she was 14. that was about 142 years ago. she married me after my accident - yes, we're still married and still good buddies. Dave In a message dated 6/27/2006 9:02:31 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Just thought I'd throw my 2 cents in for what its worth. I too met my husband online. We just celebrated our 3 rd anniversary April 26. I met my husband in a bar, we've been together 23 years Dave www.daveoconnell.com c3-inc-1967 Dave www.daveoconnell.com c3-inc-1967From: [EMAIL PROTECTED]Date: June 27, 2006 6:25:39 PM CDTTo: [EMAIL PROTECTED]Subject: Re: [QUAD-L] Love, music, stories and love again Hi Dave,how old were you when you got married and when you had your accident? I dated my wife once when I was 17 and she was 14. that was about 142 years ago. she married me after my accident - yes, we're still married and still good buddies. Dave In a message dated 6/27/2006 9:02:31 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: Just thought I'd throw my 2 cents in for what its worth. I too met my husband online. We just celebrated our 3 rd anniversary April 26. I met my husband in a bar, we've been together 23 years Dave www.daveoconnell.com c3-inc-1967
[QUAD-L] Gastro Appt
After getting lost, not once but twice, I finally found the docs new office. Was only 45 minutes late. Late enough to have to cancel my Uro appt for kidney pain relief. Rescheduled it for tomorrow. Have a colonscopy endscopy scheduled. But I know it is only a MS related swallowing problem. I am not ready to think about a feeding tube. I enjoy the mouth feel of food. Got a prescription for Miralax. It is a powdered laxative. Supposed to add liquid to the stool. I am to take it every day. Sure hope it helps with the constipation. Anyone used this before?
Re: [QUAD-L] Gastro Appt
The doc gave me Half Lytely. Thank goodness it is only a quart to drink. Always had these tests done first thing in the morning. She is doing it at 4:00 in the evening. Will be hard not to put anything in my mouth all day.
Re: [QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a quadriplegic's death in Orlando, Florida
She apparently lost track of her dog was trying to retrieve it off the side walk her chair got stuck in the sand. She yelled but with the air conditioners on, no one heard her. She got out of the chair crawled to a shady spot under a tree. She had breathed in sand smothered died.KKOn Jun 25, 2006, at 2:44 PM, S. Dial wrote:What did happen to Shannon Johnson? I don't get that channel but I did google her and went to the DHC website but it didn't specify what the findings were. It also said she died in a hospital? I thought she was found lying dead in the sand? Steph
Re: [QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a quadriplegic's death in Orlando, Florida
I can only relate in my MS situation. Fatigue plus overheating my body stops moving from C3 down. I can not tell when I am either hot or tired so it is bad news for me. This fatigue would cause me not to have the strength to continue to raise my head above the sand. Whenever I leave the house I put a note on my door saying where I went what time I left. Just in case. KK
Re: [QUAD-L] Audio books
There are extensions that can be placed on the tape player buttons so you can use your fists to turn it on off. I'll see if I can find a site with a picture. KK
Re: [QUAD-L] Using bigger fonts and Re Mistaken identity
Lori, you don't get the books on tape for the blind? Not being able to hold a book I have gotten them for years. Just finished Cybil Shepard's book this morning.
[QUAD-L] Stem cells without using embryonic cells
| Stem Cell Trigger Protein Isolated || posted by art on Friday June 23, @06:30 (Research) || http://www.bostoncure.org:8080/article.pl?sid=06/06/23/1131211 |++[0]art writes "Stem cells hold much potential in degenerative diseaseslike MS. Unfortunately, the "high octane" stem cells come from embryos.And there's a big political/moral debate on the use of embryos that stopsus from finding out what we can do with them.These researchers have [1]isolated a protein that seems to take adultcells that are differentiating and turn them back into embryonic stemcells - all without any of those pesky embryos being involved. While theydon't have it ready for mass production, it's good to see there areavenues where we might get our precious stem cells and avoid the wholeembryo debate."Discuss this story at: http://www.bostoncure.org:8080/comments.pl?sid=06/06/23/1131211Links: 0. http://www.acceleratedcure.org 1. http://www.theregister.co.uk/2006/06/16/stem_cell_nanog/KK All horses are run aways.
Re: [QUAD-L] Dr G. [Medical Examiner] and the circumstances surrounding a quadriplegic's death in Orlando, Florida
I did watch it. I too had questions. But the woman's own doctor solved the case. That is the stuff nightmares are made of. KK
Re: [QUAD-L] South Texas
Moving that far south it is a different world than Houston area. I survive the heat with a cool vest. Looks like a hunting vest but has pockets inside where you place chemical ice packs. They last from 4 - 6 hours. There are days when I wear it inside the house with the air conditioning running. It gets that hot. Hope you speak spanish if you are coming to Texas. It is spoken almost as much as English. KK The Woodlands TX
[QUAD-L] All things Considered today
http://www.npr.org/templates/story/story.php?storyId=5498671All Things Considered, June 20, 2006 · Twelve years ago, Tennessee launched a bold experiment in health care that drew national attention. The state guaranteed health insurance to every poor resident.Now Tennessee is again drawing attention; this time for revoking that guarantee. Last August, some 200,000 people were cut from its "TennCare" program. And more than half a million more are living with new limits on their health care.Family Helping FamilyLinda Warner is one of those half a million. She lives in a double-wide trailer on top of a hill overlooking the Great Smoky Mountains in Cocke County, one of the state's poorest. The trailer is comfortable inside, if a bit cramped. The walls are covered with pictures of her children and grandchildren. Scattered on the shag carpet are dozens of toys that belong to her three-year-old great-grandson, Bryson.Warner looks after Bryson most weekdays. His father, Linda's grandson, drops him off each morning at 4:30 a.m., before driving 1 1/2 hours to his job. To be able to afford Bryson's health insurance, his mother works full-time as a hospital clerk. She's also studying to be a nurse.But even though Linda Warner is in a wheelchair, living on $600 a month in disability payments, she still makes time to help those in her community who have even less."I'm not totally useless yet," she says. "A lot of people see me sitting in a (wheel) chair and think I'm dead weight. Well, I'm not really dead weight. I'm involved in our church... I work many many hours and still volunteer."Warner says she's not letting her disabling health problems get in the way. She's had three failed joint-replacement surgeries and a case of pneumonia that has made it hard for her to breathe.Budget Cuts Threaten IndependenceLast year's TennCare cuts are threatening what little independence Warner has left.TennCare now limits adults to five prescriptions per month, and only two of them can be brand-name medications. That's one of the tightest limits anywhere in the country.It has forced Warner -- who was taking eight different medications -- to make some painful choices.She goes down the list of medications she's had to give up."I stopped taking the antidepressant," Warner says, "the medicine I took for my stomach because I had serious gallbladder surgery. The hormones to stop all the hot flashes, I don't get it anymore. It's over my limit."For most of the fall and winter after the cuts, things were bearable. Then in February, Warner got sick."I thought maybe it was sinus. I thought maybe it was the change of weather," Warner says. "I was taking some sinus pills, running the vaporizer, using Vicks, anything I thought would make the fever go away."But the fever didn't go away. And she had already reached her five-prescription limit for the month, so she resisted her family's urging to go see her doctor."My daughter said, 'Please mom, please! You're not getting better.' I said, 'I understand that, honey.' "In an attempt to put her daughter off, Warner said she couldn't get an appointment."That wasn't true. I can get an appointment anytime I call," she says. "But there's no sense in going to the doctor, if you can't get the medicine."But by early March, Warner wasn't much better. And when her fever reached 103, it was time to get help. "I went to see Dr. Williams, and it was on a Thursday," she recalls. "And he fussed at me, and asked why I waited so long before I came to see him."It turned out she had strep throat, as well as kidney and bladder infections. The doctor gave her a couple of injections, which don't count against her monthly drug limit. But he also gave her two prescriptions for antibiotics, which do.Choosing Among Ailments"So that means I have to decide for the month of March what I'm going to do without," she says.Warner's doctor James Williams says she's hardly the only one of his patients with these problems."I see it all the time," he says. "Patients who don't come in at all and you never know what happened to them. Then they show up critically ill in the emergency room with congestive heart failure or have had a heart attack, or terrible pneumonia; or their diabetes is out of control; their thyroid's out of control because they haven't taken their medicines."Meanwhile, Warner gathered up all her prescriptions and her portable wheelchair, climbed in her car, and went to the drugstore.She gave the pharmacist her prescriptions, but told him not to fill the bladder medicine. Normally, she takes it four times a day."It stops me from wearing a diaper, a disposable diaper," Warner sighs. "I really hate to do without the bladder medicine because I can't go anywhere without it."Along with the bladder medicine, she decided to skip her pain medication for the month. That way TennCare would cover the $28 worth of antibiotics she needed."You have to choose," Warner says. "And I have to have the inhaler ... because I have to breathe.
Re: [QUAD-L] Toothpaste
OK no one has mentioned my way yet. I squirt it on the side of the sink wipe the brush in it. I also do hair mousse that way.
[QUAD-L] Paralyzed Pregnant on Discovery Health
She is a quad. It is very informativeKKParalyzed and PregnantDHC Jun 12 07:00pm Special/Other, 60 Mins.A paralyzed woman's pregnancy.Original Airdate: June 12, 2006.Future Airings:Paralyzed and Pregnant, DHC Jun 12 10:00pmParalyzed and Pregnant, DHC Jun 17 02:00pm
Re: [QUAD-L] I'm kinda new here
When will the time be right for you? For me it is when I can no longer take care of myself. Today I realized that I was nearer than I thought to that point. But I have too much to do yet in this world.KKOn Jun 10, 2006, at 5:42 PM, [EMAIL PROTECTED] wrote: I think a bottle of valium and a fifth of some good hooch ought to do it. that's my plan when the time is right. Dave
Re: [QUAD-L] BP changing/ looking up
My case worker came last week mentioned it. Said more hours better pay for the aides. My aide, Sheryll above in the addresses, does more than clean house cook. She deserves to be paid more.That was a long wait. How many hours did you have before? I have 29.KKOn Jun 9, 2006, at 5:33 PM, David K. Kelmer wrote:Hi KK I was just taken off the Texas waiting list and put on the Home and Community-Based Services Waiver (HCS-W). I've been on the waiting list for 21 months and I called them every 3 months to ask what my number was. They said they only tracked the people that made it on the Waiver. We're doing the paperwork now, but the program already looks good to me already. With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte [EMAIL PROTECTED] wrote: It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly.Do you even have someone assigned to your case yet? All horses are run aways.
Re: [QUAD-L] Tank Chair
How in the world do you get in/on that thing! We are having a hurricane evacuation meeting tomorrow. Maybe I should bring it up with Emergency Preparedness. KK All horses are run aways.
[QUAD-L] The Bone Collector coming on tonight
I like this story.KKThe Bone Collector (1999)USA Jun 06 08:00pm Add to My CalendarMovies, 155 Mins.**+ (Rated R)A quadriplegic detective and a patrol cop try to catch a killer re-creating grisly crimes. Based on the book by Jeffery Deaver.Cast: Denzel Washington, Angelina Jolie, Queen Latifah, Michael Rooker, Mike McGlone, Luis Guzman, Leland Orser, John Benjamin Hickey, Bobby Cannavale, Ed O'Neill, Larry Day.Director(s): Phillip Noyce.Producer(s): Michael Klawitter, Dan Jinks, Michael S. Bregman, Martin Bregman, Louis A. Stroller.Writer(s): jeffrey Deaver , Jeremy Iacone.Distribution: Universal Pictures Future Airings:The Bone Collector (1999), USA Jun 07 03:30pmKK All horses are run aways.
Re: [QUAD-L] Re: The Bone Collector coming on tonight
Just ordered all these tapes from Library for the blind handicapped. First 3 are by The Bone Collector author. The Cold Moon : A Lincoln Rhyme Novel (Lincoln Rhyme Novels by Jeffery Deaver The Twelfth Card (A Lincoln Rhyme Novel) -- by Jeffery Deaver The Lesson of Her Death -- by Jeffery Deaver Learning Disabilities: The Ultimate Teen Guide RC 59729 The Immortal Highlander Velocity RC 60001 KK
[QUAD-L] From the New York Times - Glossing Over Mistreatment in the Magbie Case
Glossing Over Mistreatment in the Magbie CaseBy Colbert I. KingSaturday, April 8, 2006; A23Jonathan Magbie was a 27-year-old man who was paralyzed from the neck down as a result of a childhood accident. Although he had never been convicted of a criminal offense and although he required private nursing care for as much as 20 hours a day, Magbie was given a 10-day sentence in the D.C. jail in September 2004 by D.C. Superior Court Judge Judith E. Retchin for possession of a marijuana cigarette. He died in city custody four days later. His story has been the subject of several previous columns.Earlier this week Edward D. Reiskin, deputy mayor for public safety and justice, provided D.C. Council members David Catania (I-At Large) and Phil Mendelson (D-At Large), chairmen, respectively, of the council's Health and Judiciary committees, with the findings from the D.C. Department of Corrections (DOC) investigation into the care provided Magbie from Sept. 20 to Sept. 24, 2004.Actually, to call the Corrections Department's report an "investigation" is like describing a BB gun as an AK-47. The eight-page document produced by the department's Office of Internal Affairs attempts to explain away a more extensive and highly critical investigation into Magbie's death that D.C. Inspector General Charles J. Willoughby conducted last October. Willoughby's report and the lawsuit filed by the American Civil Liberties Union and two lawyers on behalf of Magbie's mother, Mary R. Scott, are more credible. They provide real insight into Magbie's neglectful treatment by the criminal justice system.Now to the Department of Corrections "investigation." The findings were dutifully and uncritically transmitted to the council by Reiskin, who, incidentally, complained to lawmakers that "the investigation was hindered by legal advice provided to [the contractor medical staff] by its counsel not to release any information to DOC regarding this issue due to pending litigation."That clampdown on salient information did not, however, stop Corrections from arriving on the scene after Willoughby completed his extensive investigation and producing an Internal Affairs document that exonerates or at least gives a virtuous appearance to many of the actions by staff and employees at the corrections facility where Magbie was confined. But even Corrections couldn't cover all the participants with whitewash.In some cases, Corrections' critical findings were accompanied by recommended disciplinary actions that have all the harshness of a beating with a wet noodle.Internal Affairs found:· There were instances in which Magbie's medical care was not documented. But the nurses culpable in the acts of omission couldn't be identified because the medical contractor, paid by the Corrections Department with D.C. tax dollars, wouldn't give access to the contractor's employees.· The associate medical director of the jail where Magbie was confined knew about Magbie's vulnerable medical condition and that he needed acute care immediately, but failed to notify higher-ups. The associate medical director, the report noted, resigned last October. Undeterred, Corrections bravely directed the medical contractor to "place a letter of reprimand in the doctor's Official Personnel File" and to determine "any other appropriate disciplinary action to be pursued against the doctor."· Correctional and medical staff provided written memos to the Corrections Department director stating that they never saw Magbie's cell door locked while he was in the unit. (It should have remained unlocked, because there was no way that Magbie, a quadriplegic, could reach the emergency button.) Corrections discovered information that contradicted the staff-written memos: Magbie's cell door had in fact been locked, in violation of doctor's orders. For their lying, Corrections fearlessly instructed the warden, disciplinary action was to be taken against the two officers and a disciplinary letter placed in the personnel file of each.· A physician in the Corrections facility housing Magbie told the inspector general that he was unaware of Magbie's return from Greater Southeast Community Hospital, where he had been taken as an emergency patient during his first night in jail. It turns out, the Corrections report noted, that the physician did see Magbie upon his return. That physician, thundered the Corrections report, "will no longer be permitted on DOC premises . . . this action is to take place posthaste."As for the Corrections Department's decision to keep the ventilator-dependent Magbie confined for four days to the Correctional Treatment Facility, where no ventilator or appropriate medical care was available? The "investigation," done by Corrections staff and passed along by Reiskin, gave the rest of the nurses, physicians and staff a pass.Judge Retchin? She was cleared by the Commission on Judicial Disabilities and Tenure.Say this much for ol' D.C., it takes care of its own.If justice is to be had
Re: [QUAD-L] Handicap Parking
If it is a parking lot, like a grocery store or Walmart, the police do not have the right to give tickets because it is considered private property.KKOn May 26, 2006, at 4:13 PM, [EMAIL PROTECTED] wrote: In a message dated 5/25/2006 9:15:12 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Hey, When my dad sees a strapping young man pull into a handicap spot without any tags, he takes matters into his own hands and gives then a nice 8 foot keyjob. Maybe this is wrong but I sure feel good when I hear he made one of these a-holes pay.lol ron Most everyone carries a cell phone these dayshe could have called the cops. People don't want to pay $500 bucks for a parking ticket either. Diane
Re: [QUAD-L] Question for the group
In most of the stalls I have been in room has been taken from the other stalls. The hc stalls look large luxurious in comparison. I think waiting, in their face so they have to see you, makes a statement without saying a word.
Re: [QUAD-L] MegaBus invades Greyhound Territory
This is from their web site www.megabus.com They aren't in the south yet. Would be a great way to travel into Houston for appointments thou. The buses that leave here aren't wheelchair accessible.\KKDo your buses take wheelchairs?If you normally use a wheelchair and are able to climb the few steps into the bus, we will store your wheelchair in the luggage bay and the driver will help you into your seat.However, if you normally use a wheelchair and you need to remain in it for your trip on megabus, please do NOT purchase your ticket on megabus.com, but call 877-GO2-MEGA and explain to the customer service agent the date, time and destination of your travel plans. Please have your credit card handy. The agent will check that there is space on the trip you want. If there is room on the trip, then a bus with a wheelchair lift will be allocated to that trip. If the trip you want is full, the agent will suggest another departure. Please also tell the agent if a personal care attendant (PCA) will be accompanying you and a reservation will also be made for them.It is very important that you make your reservation as early as possible, but no less than 48 hours before the date of intended travel.On May 22, 2006, at 10:23 AM, [EMAIL PROTECTED] wrote: Have you seen the $1 rates with this new bus line that wishes to become the SouthWest Airlines of regional buses? MEGABUS W
Re: [QUAD-L] 3miles
Hey Mark - Is there a YMCA in your area? We have 2 in our tiny town. They have a sliding scale payment plan a lift to get you in out. The warm warm, heck any heat at all makes my body stop functioning. That makes it impossible to go to any of the rehab pools. The indoor pool at the Y is not heated but open year round.--KKOn May 19, 2006, at 11:35 AM, RollinOn wrote: Houston I wish I was in St. Louis I really would like the aquatics exercise it sounds like something I'd enjoy because when I'm in my shower chair under warm water it makes a lot of my pain subside and exercising in water! What could be better! Let me know how you like it. Mark
Re: [QUAD-L] 3miles
Yes income minus ALL medical expenses. I only paid $19 a month.KKOn May 19, 2006, at 12:38 PM, Miss Liz wrote:how do they determine a sliding scale?do you show proof of income? From: KK BatteTo: RollinOn ; quad-List@eskimo.comSent: Friday, May 19, 2006 1:28 PMSubject: Re: [QUAD-L] 3milesHey Mark - Is there a YMCA in your area? We have 2 in our tiny town. They have a sliding scale payment plan a lift to get you in out. The warm warm, heck any heat at all makes my body stop functioning. That makes it impossible to go to any of the rehab pools. The indoor pool at the Y is not heated but open year round.--KKOn May 19, 2006, at 11:35 AM, RollinOn wrote:Houston I wish I was in St. Louis I really would like the aquatics exercise it sounds like something I'd enjoy because when I'm in my shower chair under warm water it makes a lot of my pain subside and exercising in water! What could be better!Let me know how you like it. Mark
Re: [QUAD-L] BP changing
It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly. Do you even have someone assigned to your case yet?
Re: [QUAD-L] Lyrica-- to Ron and others interested
Let me know if you get dry mouth. Again I stopped taking Neurontin for 5 days, only take 900mg, now I have things crawling on me biting me. Not really but that is what it feels like. Finally broke down took a Neurontin at lunch. Couldn't take the pain any more. KK
Re: [QUAD-L] Scorpion
Allergic to wasps bees. No perfume or scents for me ever. I even had a bee attack me while wearing a beautiful flowered blouse. Guess it wasn't a very bright bee! KK
[QUAD-L] Prisoner In Wheelchair Escapes
Thought you might get a laugh from this one!Prisoner In Wheelchair EscapesCall Crime Stoppers With InformationPOSTED: 4:12 pm CDT May 5, 2006HOUSTON -- A prisoner in a wheelchair escaped while he was being transferred Thursday night, officials told KPRC Local 2.It happened when METRO Lift transported Rafael Cruz, 20, to the Harris County Jail shortly before 9 p.m.Police said the METRO Lift driver did not realize he was supposed to wait for an officer to ride with him and Cruz to the jail and took off once Cruz was placed in the vehicle.The driver then dropped off Cruz at 1201 Commerce, where Cruz has not been seen since.Cruz was being held on possession of a controlled substance.Anyone with information about his whereabouts is asked to call Crime Stoppers at (713) 222-TIPS.Copyright 2006 by Click2Houston.com. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.
Re: [QUAD-L] Living alone and the future- slippery slope
My computer has been my way to connect to others. Have friends from all over the world. I chatted just yesterday with someone from Australia who was home playing hooky.KKOn May 5, 2006, at 7:56 PM, S. Dial wrote:John, What you said pretty much mirrors my experience regarding no friends and little contact with relatives beyond my Dad. I've often wondered was it just me, but the longer I'm in this chair, the more loneliness in this world I see, especially in the disabled and elderly community. Those of you with a family and friend support system - you're blessed. Hope you always have it. Stephc3 quad from TM (1986)
[QUAD-L] Joystick alternative
I have a friend who is losing use of both arms hands. He is still working wants to continue but can't figure out what to do about the joystick issue. What are the alternatives to him using the joystick? KK
Re: [QUAD-L] ~ Any Moody Blues fans out there?
You would love it here. This is our theater. Free tickets on the grass for most concerts. http://pavilion.woodlandscenter.org/ This is who is coming. http://www.tickco.com/venue_schedules/woodlands_pavilion.htm Kid Rock, Nine Inch Nails, Melissa Etheridge, Rob Thomas...
Re: [QUAD-L] elevating chair
I just got my 3rd chair, 2nd power chair in 15 years. I have private insurance no Medicare. Insurance company was being a hard a** about the new chair. But I have gotten so much worse in the last 3 years, it was necessary. Letters written by neuro internists finally got approval but they have not paid the dealer I have had the chair since October.
Re: [QUAD-L] Daily meds/ American Wayyyyyy
And remember, they are allowed to advertise. Another way to get someone to ASK for the drug. I am thinking about asking for Requip for restless leg syndrome. If I hadn't seen it on tv, I wouldn't know to ask for it.The bruises on my legs are horrible. Wake myself up kicking myself. OUCH!KKOn Apr 28, 2006, at 8:29 AM, Houston809 wrote: Well Kemal if you didn’t know we Americans have 2 support these multi-billion drug companies. It’s the American way. :) that’s what keeps our drug prices so hi. Some Americans have 2 go 2 Canada 2 purchase drugs manufactured here in America but are a fraction of the cost in another country. Dr.s do prescribe medicines at times because certain drug manufacturers give them incentives. My sister-in-law is a pharmaceutical rep. She goes 2 Dr offices and gives them samples. Every so often she has luncheons and dinner parties for the Dr.s at expensive restaurants paid for by the drug manufacturer. Which in turn they ad into the cost of their products. It’s the American way. On 4/28/06 4:49 AM, "Kemal" [EMAIL PROTECTED] wrote: I am a regular reader on this list . Every time I see people talking about the drugs they take but they do not talk about the side effects. It appears that these people (majority are Americans, I suspect) are taking too much drugs and the doctors prescribe it as requested, may be because it is easily or freely available.Eventhough I have no idea about other places, I know myself that I am taking only bisacodyl every two days for my BP. Otherwise I am not taking any other medicinefor the last five years and I am ok! I do my exercises regular and take my regular diet and keep myself busy ... I remember when I was in the hospital they used to give me all sorts of drugs--- for spastisity,bowel,infection , blood thinning etc--- to build up their bill.But not know and no problem. It is better to live our body try to heal itself as much as possible and make the drugs a last resort. ---Original Message--- From: Houston809 mailto:[EMAIL PROTECTED] Date: 04/27/06 23:20:38 To: David K. Kelmer mailto:[EMAIL PROTECTED] ; quadlist mailto:quad-list@eskimo.com Subject: Re: [QUAD-L] Daily meds/ Need Advice Thnx Dave as I said I’m going 2 talk 2 Dr. I actually got an appt. 2morrow with neurologist. I don’t know why it took this 2 take a look at all these meds. But I guess the move was a change so I guess everythings gotta change. On 4/27/06 2:37 PM, "David K. Kelmer" [EMAIL PROTECTED] wrote: Hi Houston, DIAZEPAM -- 10mg 3 X per day. OXYBUTYNIN -- 5mg 2 X per day. METHENAM MAN -- 500mg 4 X per day. ASCORBIC ACID (VIT C) -- 500mg 4 X per day. APAP/CODEINE300 -- Use as needed...4 per day MAX. With Love, CtrlAltDel aka Dave C4/5 Complete - 30 Years Post Texas, USA Houston809 [EMAIL PROTECTED] wrote: 1st question. How many meds do you take daily? What meds and what for? I moved to St. Louis found out that Medicaid is different here than Indiana. I've been taking same meds since Rehab Hospital. Which I knew were more than most other quads I knew but never questioned because I knew each person was different. But now I need to reassess my meds. The Dr. I've gone to here doesn't now much about quads as I'd expect. My last Dr. I was her 1st quad patient. Anyway I've been taking axid daily since Aug. 98. Since I've been in St. Louis I ran out a few weeks back. Medicaid here guess doesn't fully cover it the pharmacy told me that I'd have to pay $54.00 for script. I decided it wasn't an option I've not taken it in weeks have not noticed any difference. A few yrs back I stopped taking the anti depressants after I finally got out of my system I've been fine. A bout of depression here and there but I'd have them even without being quad. :) Here's the other meds I'm taking. Gabapentin 300mg 3 times daily Oxybutynin 5mg 3 times daily Effexor 37.5mg 1 time daily Fludrocortisone 1 time daily Tizanidine 4mg 1 in morn. 2 evening Fexofenadine 180mg 1 time daily Ducosate sod cap 100mg I take 1 every evening supposed to take 2 a day Vitamin C 1 a day Multi Vitamin 1 a day Can I probably cut back or stop some of these at this point. Almost 8yrs image.jpg http://www.incredimail.com/index.asp?id=96845
Re: [QUAD-L] Re: Why Ditropan
How much Ditropan are you taking? Just changed to it a few weeks ago. It isn't helping. Still have to wear diapers SP cath.KKOn Apr 27, 2006, at 9:57 AM, ~LittleQuad~ wrote:i do too - may also try sanctura... is similar but stronger results for me... took for 2 weeks until started messing with my digestion track YUP. I GET THE GENERIC OF IT [OXYBUTYNIN] LORI ---Original Message--- From: tahouston Date: 04/26/06 15:17:36 To: Lori Michaelson; Quad Subject: Re: [QUAD-L] WHY DITROPAN You need a prescription for Ditropan? T. Houston Sent: Wednesday, April 26, 2006 5:06 PMSubject: [QUAD-L] WHY DITROPAN I was put on Ditropan right after my injury 26 yrs ago. Funny thing is ... is that I recall DRs prescribing it FOR STOPPING THE SWEATS AND GOOSEBUMPS AND NOT FOR BLADDER SPASMS. I thought I didn't need it one time back in the 80s so went off it. It wasn't 48 hours before the sweats and goosebumps were present. So have been on it ever since. NEVER HAD A PROBLEM WITH CATHETER LEAKING. So the drug seems to be more of an autonomic nervous system drug. Lori ---Original Message--- From: William Willis Date: 04/26/06 03:37:44 To: quad-list@eskimo.com Subject: FW: Re: Fwd: [QUAD-L] About your eyes being tested For 30 yrs. I would shake, sweatt, and shiver, and none of my doctors could stop it. Four years ago I joined the quad-list and members suggested ditropan. I told my doc, he prescribed it, and I haven't sweat since. The sad thing is none of my doctors told me about it.
Re: [QUAD-L] Shower Chairs
I have one of those chairs. Using it in the shower (I have to take a shower) water gets everywhere. I have cut slits in the curtain, sometimes it works, other times wet floor. KK
Re: [QUAD-L] Using Comp
I need a new mouse am thinking about going wireless. Anybody use one? How long do the batteries last? What about wireless keyboards? I am using a right hand Divorak keyboard set up because only the right arm works.
Re: [QUAD-L] Transfers Chairs
Where you foot pad is, I decided to get articulating legs that raise up down. Helps prevent swelling in legs.Now for transferring, it is easiest to remove the leg closest to whatever I am transferring into. My chair is a Quantum rehab chair. My legs are heavy only have one arm to use do manage it. KK On Apr 4, 2006, at 5:09 PM, Brien wrote: I transfer into a power chair. With the armrest all the way back and behind the cushion, there is no obstruction to sliding directly onto the cushion. What do you mean about legs what legs? Here is the url for my chair notice the footrests are not in the way at all http://www.invacare.com/cgi-bin/imhqprd/inv_catalog/ prod_cat_detail.jsp?s=0prodID=TDX5catOID=-536885369 Let's figure this out Brien On Apr 2, 2006, at 12:34 PM, ~LittleQuad~ wrote: Those of you who transfer, I'm assuming you are in manual chairs? What kind do you use? I am obviously not going to be able to do it into a electric wheelchair. The legs are like 8 lbs each! Thanks
Re: [QUAD-L] Neurontin
What I did (for the month I tried it) was go down on Neurontin start the Lyrica at the same time. Went to Neurologist today. He is not changing something that works (Neurontin) for pain seizures to something new that has the same side effect (dry mouth).
[QUAD-L] Age
Am I the only MSer on the list? I am 57(58 on the 12th), female, single, mother of 3, grandmother of 4 a half. Lesion on brain stem, C-3 T-6/7
Re: [QUAD-L] Turning lights on/off in bed
I like to do needlework in bed so I need bright light. Yes I have a special frame to work it on it takes forever to finish but it gives me something to do besides just vegetate. Also have periods when I can't speak so I am hoping the remote controller will work. Should be getting it today or tomorrow.
Re: [QUAD-L] To all on list that have a Supra Pubic Catheter
I found that cleaning with alcohol the connectors from the bag to the catheter. That has stopped most infections. Except now I have a drug resistant pseudomonas viral infection. Been on a week of Cipro then another week of Levaquin. Fever is gone since Levaquin.
Re: [QUAD-L] Turning lights on/off in bed
I just ordered this from QVC. Hoping the remote will work from the bed.3 Outlet Wireless Lighting System with RemoteQVC Price $25.23Shipping and Handling $4.47Save! Buy two or more and save on S H. Let this three-outlet wireless system with remote help you take charge of lighting. Well suited for the holidays, it's an easy way to plug in your tree lights and outdoor lights. The five-button keychain transmitter controls effects from up to 50' away and features five settings. Radio frequency technology activates the receiver without line of sight--it even transmits through walls! LED indicator on both transmitter and receiver. 315MHz/1/3 HP motor load.Approximate measurements: Lighting system 5"L x 4"W. Cord 13"L.Made in China.
