Re: [QUAD-L] List
Carolyn, 50 YEARS is truly remarkable! Way to go!! Bobbie 40 years post Smile Everyday -Original Message- From: carolyndeandrea carolyndeand...@comcast.net To: ppacera ppac...@comcast.net Cc: quad-list quad-list@eskimo.com Sent: Mon, Apr 29, 2013 1:52 pm Subject: Re: [QUAD-L] List Carolyn D'Andrea C3/4 May 5, 1963 car accident in CT now living in Tamarac, FL Sunday will be my 50th anniversary..oh my god - Original Message - From: ppac...@comcast.net To: quad-list@eskimo.com Sent: Monday, April 29, 2013 12:45:01 PM Subject: Re: [QUAD-L] List NJ DIVING Thank you! Paul - Original Message - From: ppac...@comcast.net To: quad-list@eskimo.com Sent: Monday, April 29, 2013 1:42:53 PM Subject: [QUAD-L] List Paul Pacera C5/6 complete 1991 48yrs. old. Thank you! Paul
Re: [QUAD-L] the list
Elizabeth, Do you do all his home health care or a large %?Bobbie Smile Everyday -Original Message- From: Elizabeth Schwab elizabeth2...@gmail.com To: Quad List quad-list@eskimo.com Sent: Mon, Apr 29, 2013 2:33 pm Subject: [QUAD-L] the list Richard (my husband) quadriplegic from advanced progressive MS, dx'd 1984. Uses Permobil ceiling lift to move around, I drive the chair for him. -- Elizabeth
Re: [QUAD-L] Eric's church story!
I know! I can't tell you how many times I've seen motorcycle crashes, and these guys just get back up again. DAMM!Bobbie Smile Everyday -Original Message- From: lwillis821 lwillis...@yahoo.com To: quad-list quad-list@eskimo.com Sent: Mon, Apr 29, 2013 5:07 pm Subject: [QUAD-L] Eric's church story! Eric, if that story didn't end so tragic for you, it would be funny. Oh, what the hell, it is funny. (Only another quad allowed to say that.) I'm only kidding guys. Explain something to me, though. Ever watch those shows like Ridiculousness or Funniest Videos? People crash and land on their heads, necks, backs and in every conceivable position. My little fall was nothing compared to those. Yet here I/we are and there they go. Something in the cosmic scheme of things is just not right. Would you agree? Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Greg lt;mongrelti...@gmail.comgt; Date: April 29, 2013, 1:55:22 PM EDT To: quad-list@eskimo.com lt;quad-list@eskimo.comgt; Subject: Re: [QUAD-L] going to PT for crooked body Just one more reason not to go to church! church we attended decided to add on to accommodate the growth. While I was finishing the concrete pad on one end they had walls studded trusses up and they decided now would be a good time to fall. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Fragile lt;swl...@gmail.comgt; Date: April 29, 2013, 4:17:35 PM EDT To: quad-list lt;quad-list@eskimo.comgt; Subject: Re: [QUAD-L] the list Eddie Castle - C5, MVA, 1994, New Mexico On Mon, Apr 29, 2013 at 12:33 PM, Elizabeth Schwab lt;elizabeth2...@gmail.comgt; wrote: Richard (my husband) quadriplegic from advanced progressive MS, dx'd 1984. Uses Permobil ceiling lift to move around, I drive the chair for him. -- Elizabeth
Re: [QUAD-L] Weight and fasting
Nan has so great advice. But I would like to add 2 things I do, that works for me. I drink a LOT of water about 1/2 hour before eating It makes me feel full. I also eat small amounts about 4-5 times a day (snack size yogurt, pro tine bar, a bowl of cereal) and my main meal is at 5:00-5:30 I also never eat after 7:00 A high quad friend of mine had gained quite a bit of weight and lost a lot mostly by not eating any bread or pasta - carbs. My 2 cents. Bobbie Smile Everyday -Original Message- From: Quadius quad...@gmail.com To: Nan nlg52...@yahoo.com Cc: quad-list quad-list@eskimo.com Sent: Thu, Apr 25, 2013 9:32 pm Subject: Re: [QUAD-L] Weight and fasting Nan, I don't think I crafted my response very well. I'm not a believer in fasting too much when it comes to be a quadriplegic. I guess that's because I have had problems with hypoglycemia, so I believe more in reducing portions and trying to minimize meals a day later if I had the larger than normal meals. Instead of fasting, you might want to think about doing one of those liquid meals like Boost or something like that where you still get the proper amount of protein instead of giving up completely on eating a certain meal on a certain day. I hope you're able to achieve some weight loss. Not getting discouraged is very important. I have found that after reducing portions for a while I tend not to eat as much as I used to. I have also found is easier to eat less if I use smaller plates. It is psychological, but it works effectively for me. Interestingly enough, I was watching a show a couple of months ago where the guy was perplexed as to how the previous owners of his house were able to put plates in their cupboards. He had purchased an extremely old house and come to find out people didn't use large place like we do now 30 or 40 years ago. Just going out to eat in many restaurants is difficult if you're the type of person who likes to eat everything on your plate as I was taught when I was young. Now I force myself to quit whenever I get a little inkling that I am satisfied. I have found that after about 10 minutes of become full and I don't need to beat the rest of that food. Being an individual who is a penny pincher, I still take home the food, but at least I haven't overeating. Good luck. On Tue, Apr 23, 2013 at 11:19 PM, Nan lt;nlg52...@yahoo.comgt; wrote: Thanks Quadius. I needed to hear that it really can work! I get so discouraged because I can't see results ... then I give up, again and again. I'll go back to limiting those bad carbs again starting in the morning, Nan From: Quadius lt;quad...@gmail.comgt; To: Larry Willis lt;lwillis...@yahoo.comgt; Cc: quad-list lt;quad-list@eskimo.comgt; Sent: Tuesday, April 23, 2013 6:52 PM Subject: Re: [QUAD-L] Weight and fasting I have been trying to minimize meals off and on for the last couple of years. I have managed to loss a pretty sizable amount, but I still have my mini quad belly. I need to loss a couple of more pounds of my belly so that my bladder doesn't hurt as much when I sit up. I sometimes eat a big meal for a day or two and then try to eat a little bit less the next few days. My greatest accomplishments in the weight loss department have occurred when I have been able to minimize my carbs significantly. This isn't easy for us, but it does help a lot. Eating a lot more salad and other vegetables in place of pasta or bread will help you shed the pounds pretty quickly. Quadius PS I'm having some trouble with microphones again, so there might be a few more errors than normal. On Thu, Apr 18, 2013 at 2:41 PM, lt;lwillis...@yahoo.comgt; wrote: I know a lot of us have a problem with quad guts, weight, and digestion. I've been watching videos on intermittent fasting and alternate day fasting. Many people swear that they lose weight and feel much better doing it. I know my belly seems to grow a bit every day. I think I'll give fasting a try. If you have time, check it out on YouTube and share your thoughts. I do know that when I eat a big meal, I suffer for 3 days. Thanks, Larry Sent from my iPad
Re: [QUAD-L] going to PT for crooked body
To those of you willing to give me you stats (injury level, when , how - and so on) please put in the subject line something like my stats.Bobbie Smile Everyday -Original Message- From: shirley bell sbell...@cox.net To: Dana Wray daa...@aol.com Cc: quad-list quad-list@eskimo.com Sent: Thu, Apr 25, 2013 11:45 am Subject: Re: [QUAD-L] going to PT for crooked body Hi all, I am c/5/6 37 yrs. Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: Dana Wray To: jume9...@comcast.net Cc: quad-list Sent: Wednesday, April 24, 2013 8:47 PM Subject: Re: [QUAD-L] going to PT for crooked body Hi Shirley, I don't remember Your level and how many years post your injury. Think we all feel like we have crooked back. I'll look forward to hearing about what can be done. Thank You, Dana Sent from my iPhone On Apr 24, 2013, at 2:32 PM, jume9...@comcast.net wrote: I didn't know they could do that, please let us know. Meredith From: Nan lt;nlg52...@yahoo.comgt; To: shirley bell lt;sbell...@cox.netgt;, quad-list@eskimo.com Sent: Wednesday, April 24, 2013 11:46:58 AM Subject: Re: [QUAD-L] going to PT for crooked body Please keep us posted, Shirley. I'm crooked too! Nan From: shirley bell lt;sbell...@cox.netgt; To: quad-list@eskimo.com Sent: Wednesday, April 24, 2013 12:17 PM Subject: [QUAD-L] going to PT for crooked body To all my fellow crooked comrades, I am going to be getting some body work done by and advanced PT person. My first appointment is may 30 for eval. I will let you all know what happens and if it helps. Best, Shirley Bell www.ShirleyBellDesigns.com
Re: [QUAD-L] cell phones
Tom, I use a flip Trac Phone, it a pre-pay program, so you don't have to sign any contracts. You can pay in advance from $25-$200 They also have a great tech support team. Bobbie Smile Everyday -Original Message- From: Thomas E. Cusack tecn...@sbcglobal.net To: quad-list quad-list@eskimo.com Sent: Sat, Apr 20, 2013 8:33 pm Subject: [QUAD-L] cell phones hey, which cell phones are you guys using.i'm looking for a no-contract simple phone that you don't have to be an electrical engineer to figure out how it works as well as not having the finger decxterity of a piano player and no other add-on gadgets and gizmos. thanks tom c.
[QUAD-L] Today the 17th is my 40th Anniversary!
Hello FriendsEmail to my family to Ashia Saturday May 4th 4:30 Hello my friends, Well, I made it to 40 years! Can NOT believe it. I'm going out with family and friends to dinner to celebrate enduring coping against adversity not going completely insane, not dying twice and living to see 2 nieces born, 4 nephews born, 1 great niece and 3 great nephews. Experiencing some unbelievably hysterical situations or experiences for instance; within 2 years post my chair ad 2 fiats, so my sister still got me dressed on a gorgeous summer day and put me in a wheel barrel. She put a folded blanket on the bottom, sat me facing the handles and as a C,5,6,7 was able to stay safely balanced as we proceeded through the day which included going to a local bar where .… everybody knows your name. Needless to say we needed not pay for one drink. Went to my senior high school prom with a eye candy hunk of a man 5 years my senior whom I met on my 1 year anniversary. Lost my virginity that night, laughing the whole night long … which is a story in and of it's self. Went to college, lived on campus 4 years post. At 9 years post I met Pete, we just celebrated 30 years together. He is the love of my life AND my soul caretaker 24/7/365 (not recommended). I've learned to do needle point, crewel work, calligraphy, painting, write and pioneered the peer counseling program at Kessler. Camped cross country, 10,000 mile's in 1980 in my first van with my sister for 8 weeks. Bobbie - sill hanging in there
Re: [QUAD-L] Another anniversary
Good to hear from you again. Bobbie Smile Everyday -Original Message- From: Quadius quad...@gmail.com To: quad-list quad-list@eskimo.com Sent: Fri, Apr 5, 2013 7:20 pm Subject: [QUAD-L] Another anniversary I haven't been on here much lately, but I have seen several people commenting about their SCI injury date. Well, today, April 5, is my SCI injury anniversary. I used to dread this day, but now it really doesn't matter anymore. I choose to celebrate the good things in my life and therefore I usually go out to dinner and celebrate August 6, the first day I was able to breathe on my own without the aid of the ventilator. It's been 18 years now and while I am grayer, a little older looking (actually I look quite a bit older), I still look fondly on that day as if it was yesterday. I'll try to be on here more, but I can't make guarantees. Take care everyone, Quadius
Re: [QUAD-L] Funny Story
I love that story! I have a silly/funny story I just thought of. A few years ago Pete, my husband, and I went to an opening of a Art gallery I helped plan in the next town. It was Valentine's Day and the weather was really crapy but the turn out was big. Pete and I started slowly strolling as we looked at each painting. There was a younger women who was by herself standing next to me. She had on pants with wide bell-bottom's. She must have steped close to my tire because when she tried to move … she couldn't because my tire was on the Conner of her bel-bottom. She didn't say anything p, she just gave me a look that I can't really describe. As she is trying to get away from me, I was trying to move off her pant leg but the place was jammed packed. Pete knew what was happening and we started laughing but trying to hide it at the same time. This lady was getting madder and madder which made us laugh even more. Finally she was set free, and she took off to the other side of the room. All throughout the night as Pete and I made the rounds and got a snack and were talking to different people, this lady was trying to stay as far away from me as possible. We felt bad for her because she was a sad person, all she had to do was laugh at the situation. Bobbie Smile Everyday -Original Message- From: Don Price donpric...@yahoo.com To: quadlist quad-list@eskimo.com Sent: Thu, Apr 4, 2013 5:59 pm Subject: [QUAD-L] Funny Story Someone's comment earlier today reminded me of a funny incident from last Summer. We were out at a local tavern and I introduced my girlfriend to one of my best friends who happens to be a quad. We all talked for a few minutes and my buddy was brimming with excitement. He explained that he had just returned from touring some beautiful high-rise condos and he was interested in purchasing one. Handing his iPhone to my girlfriend he explained: The condos were amazing! Here's a photo of the living room. My girlfriend held up the phone and we both looked at an amazing photo of a beautifully furnished living space with a huge window overlooking the city. The next picture on the phone, my buddy said eagerly, is the amazing view from that condo's window! With that my girlfriend scrolled to the next picture only to be completely surprised by a full-screen close-up picture of my friend's pasty-white ass. After the initial shock we both burst out in laughter, thinking he had pranked us! My friend looked at us strangely and then turned beet red as realization hit him. My girlfriend had gone the wrong direction in his photo album, scrolling backward instead of forward. Against our howls of laughter he tried to explain that the butt pictures were take for tracking the healing of a pressure sore (which I'd already surmised.) The more my friend stammered to explain, the harder I laughed! Eventually he stopped explaining and started laughing with us. Even thinking about it now brings a smile to my face. I'm sure there's a moral to this story but I'm not sure what it is. True story! Don.
[QUAD-L] Help, I don't know what to do anymore?
Everybody, Back in December I was getting up just once a week, then the day after Christmas I stayed in bed through Febuary. In March I was starting getting up twice a week for 3 weeks ...… then BAMM -- the rt was pulled out from under me again and I've been in bed ever since. It's always the same freaking thing, just a superficial wound, enough to keep me in bed. I'm starting to go wacko, trying to keep myself busy. Now that the weather, here in New Jersey, is trying to get warmer (down to 25 last night and tonight) I want to feel like I might be able to PLAN something. What do you guys do at times like these?Bobbie
Re: Fwd: [QUAD-L] Movie's featuring Quadriplegics
With the Brook Ellison Story I was amazed with her ECU She had a retainer in her mouth and with the tip of her tongue she navigated her power chair, bed, computer, lights, doors and TV Bobbie Smile Everyday -Original Message- From: lwillis821 lwillis...@yahoo.com To: quad-list quad-list@eskimo.com Sent: Tue, Mar 26, 2013 4:35 pm Subject: Fwd: [QUAD-L] Movie's featuring Quadriplegics I've seen The Brooke Ellison Story. While it is certainly inspirational, it seemed a bit too syrupy for my taste. We all know that quadom has no wine and roses outcome. You suffer, struggle, and get by the best you can. Or maybe I missed the point of the story -- I don't know. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: bobbie...@aol.com Date: March 24, 2013, 3:27:08 PM EDT To: quad-list@eskimo.com Subject: Re: [QUAD-L] Movie's featuring Quadriplegics Joni. Murder Ball. Who's life is it anyway?. The Brook Ellison Story. Smile Everyday. Bobbie -Original Message- From: jume lt;jume9...@comcast.netgt; To: quad-list lt;quad-list@eskimo.comgt; Sent: Sun, Mar 24, 2013 2:19 pm Subject: Re: [QUAD-L] Movie's featuring Quadriplegics That was a sick flick. From: wheelch...@aol.com To: lwillis...@yahoo.com, quad-list@eskimo.com Sent: Sunday, March 24, 2013 11:02:52 AM Subject: Re: [QUAD-L] Movie's featuring Quadriplegics Monkey Business? Best Wishes In a message dated 3/24/2013 12:55:55 P.M. Central Daylight Time, lwillis...@yahoo.com writes: An outstandingly good idea, Jim. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Jim Lubin lt;jlu...@eskimo.comgt; Date: March 23, 2013, 9:57:52 PM EDT To: quad-list@eskimo.com Subject: [QUAD-L] Movie's featuring Quadriplegics I started a list on IMDB at http://www.imdb.com/list/2OTqiWRR9R8/
Re: Fwd: [QUAD-L] Movie's featuring Quadriplegics
Yes, I do remember theses episodes. The man who played the Quad ended up getting married in one episodes. I don't remember the actor's name. Bobbie Smile Everyday -Original Message- From: lwillis821 lwillis...@yahoo.com To: quad-list quad-list@eskimo.com Sent: Sun, Mar 24, 2013 2:17 pm Subject: Fwd: [QUAD-L] Movie's featuring Quadriplegics I remember an episode or two of Michael Landon's Highway to Heaven that featured a guy who was an actual quad. Landon featured a number of disabled people in the series. Anyone else remember this? Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Nan lt;nlg52...@yahoo.comgt; Date: March 24, 2013, 1:35:57 PM EDT To: jlu...@eskimo.com lt;jlu...@eskimo.comgt;, quad-list@eskimo.com lt;quad-list@eskimo.comgt; Subject: Re: [QUAD-L] Movie's featuring Quadriplegics Reply-To: Nan lt;nlg52...@yahoo.comgt; And I forot ... Born on the 4th of July. From: Nan lt;nlg52...@yahoo.comgt; To: Jim Lubin lt;jlu...@eskimo.comgt;; quad-list@eskimo.com lt;quad-list@eskimo.comgt; Sent: Sunday, March 24, 2013 1:21 PM Subject: Re: [QUAD-L] Movie's featuring Quadriplegics How about The Other Side of the Mountain and The Other Side of the Mountain II ... They're a little sappy, but give a good feel for care/rehab/life back in the day. Or, Coming Home with Jane Fonda Jon Voight ... tho he's a para not a quad. Nan From: Jim Lubin lt;jlu...@eskimo.comgt; To: quad-list@eskimo.com Sent: Saturday, March 23, 2013 9:57 PM Subject: [QUAD-L] Movie's featuring Quadriplegics I started a list on IMDB at http://www.imdb.com/list/2OTqiWRR9R8/
Re: [QUAD-L] Movie's featuring Quadriplegics
Joni. Murder Ball. Who's life is it anyway?. The Brook Ellison Story. Smile Everyday. Bobbie -Original Message- From: jume jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Sun, Mar 24, 2013 2:19 pm Subject: Re: [QUAD-L] Movie's featuring Quadriplegics That was a sick flick. From: wheelch...@aol.com To: lwillis...@yahoo.com, quad-list@eskimo.com Sent: Sunday, March 24, 2013 11:02:52 AM Subject: Re: [QUAD-L] Movie's featuring Quadriplegics Monkey Business? Best Wishes In a message dated 3/24/2013 12:55:55 P.M. Central Daylight Time, lwillis...@yahoo.com writes: An outstandingly good idea, Jim. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Jim Lubin lt;jlu...@eskimo.comgt; Date: March 23, 2013, 9:57:52 PM EDT To: quad-list@eskimo.com Subject: [QUAD-L] Movie's featuring Quadriplegics I started a list on IMDB at http://www.imdb.com/list/2OTqiWRR9R8/
Re: Fwd: [QUAD-L] Movie title help
I just watched The Sessions from Netflix ...… it was great, my Pete loved it too. Bobbie Smile Everyday -Original Message- From: lwillis821 lwillis...@yahoo.com To: quad-list quad-list@eskimo.com Sent: Sat, Mar 23, 2013 12:42 pm Subject: Fwd: [QUAD-L] Movie title help That's it! Thanks Nan. I wanted to recommend it to friend but just couldn't recall it. Sent from my iPad Begin forwarded message: From: Nan lt;nlg52...@yahoo.comgt; Date: March 22, 2013, 11:44:15 PM EDT To: lwillis...@yahoo.com lt;lwillis...@yahoo.comgt;, quad-list@eskimo.com lt;quad-list@eskimo.comgt; Subject: Re: [QUAD-L] Movie title help Reply-To: Nan lt;nlg52...@yahoo.comgt; Rory O'Shea Was Here Another good one! Nan From: lwillis...@yahoo.com lt;lwillis...@yahoo.comgt; To: quad-list@eskimo.com Sent: Friday, March 22, 2013 6:09 PM Subject: [QUAD-L] Movie title help My brain has hit a dead spot, guys, and I need yours. A few years ago there was an excellent movie about two young disabled guys. One had cerebral palsy and the other could only move one finger. He had blonde spiked hair and was the only one who could understand the other guy. I think it was an Irish film. The film's name was the same as spiked hair guy. This is a very well-known film, but I can't think of it to save my life. Help! Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: bobbie...@aol.com Date: March 22, 2013, 3:48:12 PM EDT To: wheelch...@aol.com, Quad-list@eskimo.com Subject: Re: [QUAD-L] Disability humor Please Do Not Disturb Any Further Smile Everyday -Original Message- From: wheelchair lt;wheelch...@aol.comgt; To: bobbie299 lt;bobbie...@aol.comgt;; Quad-list lt;Quad-list@eskimo.comgt; Sent: Fri, Mar 22, 2013 8:44 am Subject: Re: [QUAD-L] Disability humor Yes. me. He Won't Git Fir Best Wishes In a message dated 3/21/2013 9:27:55 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, Anybody ever read John Callahan's disability comic's? I love his humor … got a few of his books. Bobbie Smile Everyday
Re: [QUAD-L] Disability humor
Please Do Not Disturb Any Further Smile Everyday -Original Message- From: wheelchair wheelch...@aol.com To: bobbie299 bobbie...@aol.com; Quad-list Quad-list@eskimo.com Sent: Fri, Mar 22, 2013 8:44 am Subject: Re: [QUAD-L] Disability humor Yes. me. He Won't Git Fir Best Wishes In a message dated 3/21/2013 9:27:55 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, Anybody ever read John Callahan's disability comic's? I love his humor … got a few of his books. Bobbie Smile Everyday
[QUAD-L] Disability humor
Hi All, Anybody ever read John Callahan's disability comic's? I love his humor … got a few of his books. Bobbie Smile Everyday
[QUAD-L] My new chair was approved!
Hi All, Today a nurse from my HMO came to evaluate me for approval or denie me for a Quantum Q center wheel drive (never had one before) chair. I was approved! Including a power headrest. Not the kind of power headrest that oporate's the chair's movements but a power headrest that I oporate from the joy stick where I can comande it to raise up into any position I desire and ten tuck away. It is a Motion Concept power headrest. My vendor said this will be the very first power headrest to be approved that they have done or have EVER known to be approved. There most likely will be wanting to do a short video of me demonstrating it and they will put it on their web site and YouTube … I'll keep you all posted. My turning radius will shrink down 18 because of the poor seating my chair now has and going to center wheel drive. I live in a 400 square foot apartment, so this is going to be a BIG deal. Also, this chair is going to be 3-4 lower and narrower. The chair I have now has been a complete nightmare ever since I sat in it because of the hight and width being WAY to big. There will be somethings I won't be able to reach but I will be able to get back under tables again. Bobbie Smile Everyday
[QUAD-L] Buy sell?
Hi All, I read this idea on the SCI list, I think it was written by Ron C-7 (I'm sorry Ron, I don't know your last name) Anyway, it was suggested that us all here have disability item's we no longer need or use and people here who now find themselves in need of something. There MUST be a way to work this connection. How about if we just try the simplest way and just start posting things. Put in the subject line whist it is that you either need or no-longer need and want to sell, or give away. Let's say I see a single size hand crank bed that was posted up for sale by Pam Zen Now I contact off list and work out the details of how much it will cost and how it will be delivered. We can post things like; used van's, used wheelchair's, power and manual, beds in all sizes, hoyer lifts, or foam wedge's. What dose everybody think of this idea? Bobbie Smile Everyday
Re: [QUAD-L] Buy sell?
This is great, this is exactly what I'm talking about.?? Bobbie Smile Everyday -Original Message- From: RONALD L PRACHT lt;r.pra...@sbcglobal.netgt; To: quad-list lt;quad-list@eskimo.comgt; Sent: Fri, Mar 15, 2013 3:55 pm Subject: Re: [QUAD-L] Buy sell? My?name is Ron Pracht?from St. Louis Missouri. Im all for listing items for sale. Ive got a perfect Easystand 5000 thats just gathering dust, a Ti Lite titanium?rigid chair 18 inches wide hardly used, lots of unopened boxes of cathe tubes and honestly lots of things I just threw away because space is precious. ? Ron Pracht From: wheelch...@aol.com lt;wheelch...@aol.comgt; To: Quad-list@eskimo.com Sent: Fri, March 15, 2013 2:45:11 PM Subject: Re: [QUAD-L] Buy sell? Perhaps we should get Jim Lubin's approval, as his butt is in the sling, for this place. Best Wishes ? In a message dated 3/15/2013 2:24:12 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, ? ? ?? I read this idea on the SCI list, I think it was written by Ron C-7 (I'm sorry Ron, I don't know your last name) Anyway, it was suggested that us all here have disability item's we no longer need or use and people here who now find themselves in need of something. ?? There MUST be a way to work this connection. How about if we just try the simplest way and just start posting things. ?? Put in the subject line whist it is that you either need or no-longer need and want to sell, or give away. ? Let's say I see a single size hand crank bed that was posted up for sale by Pam Zen Now I contact off list and work out the details of how much it will cost and how it will be delivered. ?? We can post things like; used van's, used wheelchair's, power and manual, beds in all sizes, hoyer lifts, or foam wedge's. ? What dose everybody think of this idea?? ?? Bobbie Smile Everyday
Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc
***My 1st Van story** Injured in 1973, settlement 1980 $250 thousand, bought a 1980 E-250 V-8 pose traction, raised roof, 5 power pan drop w/ hydraulic arm to lock me down, electric gear shift. Bench seat that dropped down to a bed, refrigerator, wet sink, totally set-up for camping … total cost $25 thousand! Got it in May took off with my sister in July 4th drove 10,000 miles cross country, 8 week trip … and WHAT a trip. Did cat changes BP programs in tent or back of van. Met some AMAZING people along the way … I would do it all over any day of the week!Bobbie Smile Everyday -Original Message- From: Todd Daugherty todd.daughe...@gmail.com To: Danny Hearn ddh...@sbcglobal.net Cc: RONALD L PRACHT r.pra...@sbcglobal.net; quad list quad-list@eskimo.com Sent: Thu, Mar 14, 2013 8:40 am Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc Here's my van story :) I was hurt in '89 and got about 70k total, so we used some to modify our basement, and also bought a minivan with side lift. After a few years of being driven around I had a swivel seat installed and hand controls. I drove that van to college, about a 6 hour drive and a few years after that drove on my own from Atlanta to Vegas for a 6 month therapy session. The engine died in Oklahoma City and I had to stay in the Bates motel until morning when I towed it to a dealership. A few grand and days later I was back on the road again. I started having lots of electrical issues with the lift and decided I wanted a car instead. After 10+ years of taking my chair apart and using a car I'm ready for a van again. Holy cow are they expensive, can't even afford a used one. Todd D C6 On Wed, Mar 13, 2013 at 11:01 PM, Danny Hearn lt;ddh...@sbcglobal.netgt; wrote: I have not driven since my accident..but I bought my 1st van for 500 bucks, it just needed a new gas tank put on it and a tune up, it had an old side crow river lift, that thing was a huge 8 passenger dodge extended length van, it got us by a few years..my wife made me nervous trying to navigate turns with that monster -lol . After that we got a 1995 chevy astro mini van with a raised roof and rear lift, that we have had for 9 years, it is still going so far...The price of new modified vans are unbelievablea person has to win a lottery or be rich to buy one. Dan H.* From: RONALD L PRACHT lt;r.pra...@sbcglobal.netgt; To: quad-list@eskimo.com Sent: Wed, March 13, 2013 9:16:32 PM Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc I was paralyzed in 98 and started driving about 2000 after alot of effort and help from a few others. My dad found a 84 Ford econoline van in a barn for $1500.00 bucks and we bought it. It had a dropped floor, old transfer seat and a set of rusted hand controls in the back. I got the state to install a new transfer seat, new monarch hand controls and a crescent remote system to operate the lift and power doors. I taught myself to drive it and rolled with it for four years, then on the way to the movies the oil light came on. The oil pump in the engine went out and it was to much to fix, so after pulling everything usable off of it we donated it to the blind. ron From: bobbie...@aol.com lt;bobbie...@aol.comgt; To: lwillis...@yahoo.com; quad-list@eskimo.com Sent: Wed, March 13, 2013 8:27:11 PM Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc I had a power pan that lowered me down 5 in a 1980 Ford E 250 van but t also had a raised roof because I sat so tall in my chair. That was my first van. That thing weighed 2 TONS! It was a monster and ate gas lie it was going out of style. Bobbie Smile Everyday -Original Message- From: lwillis821 lt;lwillis...@yahoo.comgt; To: quad-list lt;quad-list@eskimo.comgt; Sent: Mon, Mar 11, 2013 6:57 pm Subject: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc I have a power pan instead of lowered floor. It takes me down about 5 in. It is in my 1979 E -150 that I bought new back in '79. I don't remember them doing lowered floors back in those days. Sent from my iPad Begin forwarded message: From: dbqjohn lt;dbqj...@yahoo.comgt; Date: March 11, 2013, 4:13:23 PM EDT To: s...@yahoogroups.com Subject: [SCIC] Re: File - Buying an accessable van.doc Reply-To: s...@yahoogroups.com I'm just curious if anybody in the group drives a full size van from their wheelchair and does NOT have a lowered floor or raised top. If anyone does, I would like to know the make and model. I recall somebody talking about it a few years back. Thank you! John C5-6 quad since 1973 --- In s...@yahoogroups.com, s...@yahoogroups.com wrote: gt; gt; gt; gt; File : Buying an accessable van.doc gt; Description : buying an accessable van gt; __._,_.___ Reply via web post
Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc
Ron, Congrats on that van you found. Sounds like a sweet deal! My next van is going to be a used mini because I can't drive anymore. Bobbie Smile Everyday -Original Message- From: RONALD L PRACHT r.pra...@sbcglobal.net To: quad-list quad-list@eskimo.com Sent: Thu, Mar 14, 2013 3:36 pm Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc Rons van Story 2 After my 84 Ford blew up in 2003 I found a 2000 safari wth a side lift, raised roof, handcontrols and swivel seat with 58,000 for 13,300. the girl i bought it from was paralyzed in an accident but to afraid to drive the van. I put an alpine stereo system in it, had a set of cragar wheels special made, loud exhaust, intake and a slick new paintjob at Maaco and I was the hit at the YMCA lol.I drove that van until 2012 and sold her on ebay for 7500.00 to a guy in a nursing home. the man just sent me the check sight unseen and I shipped it. From that van I learned I hated raised roofs because they leak and youcant see out as a passenger so I searched for a new beast with a price no more than 20,000. I found a 2007 Chevy Express full size with a 6 inch dropped floor throughout and a 2 inch body lift. The van was 3/4 ton 6,000 pounds and had a 6.0 litler V8 in her. Had power doors, swivel seat, hand controls and the best part 16,000 miles. Paid 19,500 for her shipped from Texas to St. louis, the guy even installed a remote start fo me in the deal. When the van arrived it was so tall I was a little intimidated, but Im doing ok with it. I called the handicap place that built it in texas and they told me it was special made for a veteran to drive and he died after he drove it to the hospital and his wife just traded it to a dealer. The handicap place was going to buy it off that lot the next day, but I found the ad on ebay first. For 20 grand its the most van I could have ever found. My next one will be a minivan, but i wanted to enjoy one more big, loud, noisey gas guzzler b4 I concede to a carlike van. Ron c7 From: bobbie...@aol.com lt;bobbie...@aol.comgt; To: todd.daughe...@gmail.com; ddh...@sbcglobal.net Cc: r.pra...@sbcglobal.net; quad-list@eskimo.com Sent: Thu, March 14, 2013 1:39:06 PM Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc ***My 1st Van story** Injured in 1973, settlement 1980 $250 thousand, bought a 1980 E-250 V-8 pose traction, raised roof, 5 power pan drop w/ hydraulic arm to lock me down, electric gear shift. Bench seat that dropped down to a bed, refrigerator, wet sink, totally set-up for camping … total cost $25 thousand! Got it in May took off with my sister in July 4th drove 10,000 miles cross country, 8 week trip … and WHAT a trip. Did cat changes BP programs in tent or back of van. Met some AMAZING people along the way … I would do it all over any day of the week! Bobbie Smile Everyday -Original Message- From: Todd Daugherty lt;todd.daughe...@gmail.comgt; To: Danny Hearn lt;ddh...@sbcglobal.netgt; Cc: RONALD L PRACHT lt;r.pra...@sbcglobal.netgt;; quad list lt;quad-list@eskimo.comgt; Sent: Thu, Mar 14, 2013 8:40 am Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc Here's my van story :) I was hurt in '89 and got about 70k total, so we used some to modify our basement, and also bought a minivan with side lift. After a few years of being driven around I had a swivel seat installed and hand controls. I drove that van to college, about a 6 hour drive and a few years after that drove on my own from Atlanta to Vegas for a 6 month therapy session. The engine died in Oklahoma City and I had to stay in the Bates motel until morning when I towed it to a dealership. A few grand and days later I was back on the road again. I started having lots of electrical issues with the lift and decided I wanted a car instead. After 10+ years of taking my chair apart and using a car I'm ready for a van again. Holy cow are they expensive, can't even afford a used one. Todd D C6 On Wed, Mar 13, 2013 at 11:01 PM, Danny Hearn lt;ddh...@sbcglobal.netgt; wrote: I have not driven since my accident..but I bought my 1st van for 500 bucks, it just needed a new gas tank put on it and a tune up, it had an old side crow river lift, that thing was a huge 8 passenger dodge extended length van, it got us by a few years..my wife made me nervous trying to navigate turns with that monster -lol . After that we got a 1995 chevy astro mini van with a raised roof and rear lift, that we have had for 9 years, it is still going so far...The price of new modified vans are unbelievablea person has to win a lottery or be rich to buy one. Dan H.* From: RONALD L PRACHT lt;r.pra...@sbcglobal.netgt; To: quad-list@eskimo.com Sent: Wed, March 13, 2013 9:16:32 PM Subject: Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc I was paralyzed in 98 and
Re: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc
I had a power pan that lowered me down 5 in a 1980 Ford E 250 van but t also had a raised roof because I sat so tall in my chair. That was my first van. That thing weighed 2 TONS! It was a monster and ate gas lie it was going out of style. Bobbie Smile Everyday -Original Message- From: lwillis821 lwillis...@yahoo.com To: quad-list quad-list@eskimo.com Sent: Mon, Mar 11, 2013 6:57 pm Subject: [QUAD-L] Fwd: [SCIC] Re: File - Buying an accessable van.doc I have a power pan instead of lowered floor. It takes me down about 5 in. It is in my 1979 E -150 that I bought new back in '79. I don't remember them doing lowered floors back in those days. Sent from my iPad Begin forwarded message: From: dbqjohn lt;dbqj...@yahoo.comgt; Date: March 11, 2013, 4:13:23 PM EDT To: s...@yahoogroups.com Subject: [SCIC] Re: File - Buying an accessable van.doc Reply-To: s...@yahoogroups.com I'm just curious if anybody in the group drives a full size van from their wheelchair and does NOT have a lowered floor or raised top. If anyone does, I would like to know the make and model. I recall somebody talking about it a few years back. Thank you! John C5-6 quad since 1973 --- In s...@yahoogroups.com, s...@yahoogroups.com wrote: gt; gt; gt; gt; File: Buying an accessable van.doc gt; Description : buying an accessable van gt; __._,_.___ Reply via web post Reply to sender Reply to group Start a New TopicMessages in this topic(28) Recent Activity: New Members 1 Visit Your Group Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use • Send us Feedback . __,_._,___
Re: [QUAD-L] meditation
Love it! Smile Everyday -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: RONALD L PRACHT r.pra...@sbcglobal.net; quad-list quad-list@eskimo.com Sent: Mon, Mar 11, 2013 10:14 am Subject: Re: [QUAD-L] meditation I lay here next to Ron..meditating...he is the pilot and I am the co-pilot..we are preparing to take of on this large jet-liner bound for the carribean Islands, We have a total of 201 souls on board. My final thoughts before take-off are...man, Ron I sure hope we have not taken too many meds for this flight ! (just thought i'd add this bit of silly humor that popped into my mind- lol ) Dan*** From: RONALD L PRACHT lt;r.pra...@sbcglobal.netgt; To: quad-list@eskimo.com Sent: Sun, March 10, 2013 7:22:04 PM Subject: [QUAD-L] meditation i lay there in bed and think about things with my eyes closed when my pain level is out of control..i try to get in the right frame of mind ron
Re: FW: [QUAD-L] My San Francisco Trip
It will be at the Gourmet Café, but I haven't picked a date yet. We'll most likely meet at 5:30 RSVP Bobbie Smile Everyday -Original Message- From: William Willis lt;lwillis82...@msn.comgt; To: quad-list lt;quad-list@eskimo.comgt; Sent: Fri, Mar 8, 2013 1:48 pm Subject: FW: [QUAD-L] My San Francisco Trip DON, where is part 2? We are waitingwaiting..waiting!!! Date: Sat, 23 Feb 2013 11:26:24 -0800 From: kw...@comcast.net To: quad-list@eskimo.com; jume9...@comcast.net Subject: Re: [QUAD-L] My San Francisco Trip Your a great writer. I can totally relate. My aides and I went to SF last September. It was freezing! I looked like a rolling mummy. Looking forward to the rest of your story. Kathy ---Original Message--- From: jume9...@comcast.net Date: 2/23/2013 11:14:06 AM To: quad-list Subject: Re: [QUAD-L] My San Francisco Trip Wow Don, Don't keep us in suspense! I have been to S.F. It is colder than people think for Northern Cailifornia. Continue... Meredith From: Don Price lt;donpric...@yahoo.comgt; To: quadlist lt;quad-list@eskimo.comgt; Sent: Friday, February 22, 2013 6:23:09 PM Subject: [QUAD-L] My San Francisco Trip When I learned that my college team, the AZ State Sun Devils, would be playing in the Kraft Fight Hunger Bowl this year, December 29th at ATT Park in San Francisco, against the Midshipmen of Navy, I was elated. Jokingly, I said to my girlfriend: It would be awesome to go to that football game! To my great surprise she replied Yes, it would.! We flew from Phoenix directly to Oakland via Southwest Airlines, a very easy 2-hour flight. For those of you who fly, if you ever have a choice between airlines I highly recommend SW--they do things the right way, in my experience. We were traveling on a budget so decided not to rent a pricey minivan. Instead, we would use the extensive public transit system in the Bay area to get around. Like most of us quads, I don't do well in cold temperatures on a good day, but I was in for a rough weekend because I didn't realize that I had fractured two toes in my right foot when my laundry caught onto my joystick and sent me [and my tootsies] careening into my bedroom furniture. Well, I knew I had hurt my foot somewhere, but I couldn't see or feel any immediate damage so I wasn't about to cancel my trip to see the Sun Devils! The flight went smoothly, but as we departed our plane I noticed that I was covered with a fine sheen of sweat, the source of this Autonomic Dysreflexia as yet unknown to me. We collected our luggage and headed out the doors to catch a shuttle bus to the BART (Bay Area Rapid Transit--light rail system.) Wham! The cold Bay weather hit this sweaty quad like slap from an icy hand. Luckily, we didn't have to wait long and we were on our way to the BART station. The shuttle to the BART was tolerable, except for the guy across from me who hadn’t bathed in a year. I believe it is Federal law that there must be one stinky person on every bus, and we exceeded that mandate. A few minutes of icy-cold confusion ensued trying to figure out the BART ticketing kiosks. After some experimentation with the machines we were happily ensconced on the train, headed up through Oakland, underneath the Bay and into downtown San Fran where we'd catch one last bus to take us to our hotel near Fisherman's Wharf. [Be prepared when the BART starts moving because there are no chair lock-downs. Powerchairs with electronic breaks have an advantage here, so long as you don't accidentally hit your joystick.] I wasn't thrilled about our plan to save money by using public transportation, but as the BART train shook and rattled its way through the darkness I began thinking this really isn't too bad! A few minutes later we passed the West Oakland station and the train went underground--underwater too--for several minutes as we crossed underneath the Bay. I'm sure I could eventually get used to riding a train underground, but try as I might I could not avoid the thought of earthquakes and the horrendous way we'd go out if that tunnel ever collapsed. I faked a light-hearted smile at my girlfriend who faked a smile right back. I attempted to say something whimsical to ease the tension but neither one of us could hear the other over the screeching and grinding noises in the tunnel--a nice addition to the apocalyptic scene playing out inside of my fevered brain. I looked around and saw another powerchair user on the train and was somewhat comforted by the fact that she looked bored. This is old hat for her; a ho-hum trip into town that she probably takes often. Arriving at our station she zipped off the traincar and we hurriedly followed, trying to keep up with her but she is gone, lost is the sea of humanity exiting these metal rail snakes. She went that way, my girlfriend says, indicating the direction
Re: [QUAD-L] Anybody celebrate their Quad Anniversary?
? I'm . sitten like a princes perched in her electric chair. Bobbie Smile Everyday ? ? -Original Message- From: Nan lt;nlg52...@yahoo.comgt; To: bobbie299 lt;bobbie...@aol.comgt;; Quad-list lt;Quad-list@eskimo.comgt; Sent: Thu, Mar 7, 2013 4:10 pm Subject: Re: [QUAD-L] Anybody celebrate their Quad Anniversary? I... CELEBRATE, CELEBRATE, Dance to the music...!! One more ear I beat the odds. :) From: bobbie...@aol.com lt;bobbie...@aol.comgt; To: Quad-list@eskimo.com Sent: Wednesday, March 6, 2013 8:37 PM Subject: [QUAD-L] Anybody celebrate their Quad Anniversary? I was wondering if anybody goes out of their way to celebrate their anniversary? Or do you guys try to let the day pass?? Bobbie Smile Everyday
Re: [QUAD-L] Anybody celebrate their Quad Anniversary?
? Dana, ?? April 17th will be 40 years for me, that's a freaking BIGGIE!!! I'm seriously considering going out to dinner with about 12 family and friends what the heck? Every Christmas and Easter Pete and I are invited to his cousin's house, one of which I can't get into. I really get along great with his family, actually one of his cousin's father became a C-5,6 Quad in a MVA about 10 years ago. But he lives down south somewhere. ?? Anyway, I feel like planning a party and seeing some people I havn't seen in awhile. I JUST decided NOW I'm going to do it like in May when it's warmer up here.?? Bobbie Smile Everyday -Original Message- From: Dana Wray lt;daa...@aol.comgt; To: bobbie299 lt;bobbie...@aol.comgt; Cc: nlg52352 lt;nlg52...@yahoo.comgt;; Quad-list lt;Quad-list@eskimo.comgt; Sent: Thu, Mar 7, 2013 6:25 pm Subject: Re: [QUAD-L] Anybody celebrate their Quad Anniversary? Hi Bobbie, I try to plan something near my anniversary date. It will be 39 years on July 27 th.It's a good time of year to find a good concert to go to. We might as well celebrate surviving?another year Doing something we enjoy. Dana Sent from my iPhone On Mar 7, 2013, at 7:40 PM, bobbie...@aol.com wrote: ? I'm . sitten like a princes perched in her electric chair. Bobbie Smile Everyday ? ? -Original Message- From: Nan lt;nlg52...@yahoo.comgt; To: bobbie299 lt;bobbie...@aol.comgt;; Quad-list lt;Quad-list@eskimo.comgt; Sent: Thu, Mar 7, 2013 4:10 pm Subject: Re: [QUAD-L] Anybody celebrate their Quad Anniversary? I... CELEBRATE, CELEBRATE, Dance to the music...!! One more ear I beat the odds. :) From: bobbie...@aol.com lt;bobbie...@aol.comgt; To: Quad-list@eskimo.com Sent: Wednesday, March 6, 2013 8:37 PM Subject: [QUAD-L] Anybody celebrate their Quad Anniversary? I was wondering if anybody goes out of their way to celebrate their anniversary? Or do you guys try to let the day pass?? Bobbie Smile Everyday
[QUAD-L] Anybody celebrate their Quad Anniversary?
I was wondering if anybody goes out of their way to celebrate their anniversary? Or do you guys try to let the day pass? Bobbie Smile Everyday
Re: Fwd: [QUAD-L] 7 years today...
40 years for me in April! I remember cut curbs were people's driveways. I feel like me, Tom, Nan, Shierly and a few more were trail blazer's. being carried up stairs into a bar to go dancing by the bouncer's. EVERYBODY in store's staring as if I had 2 heads. Soo many people would say What a shame ….. Your so pretty. Whst the Hell is that so pose to mean? It's been real, not boring. I'm extremly grateful for having Pete in my life for 30 years now … he's my rock. Bobbie Smile Everyday -Original Message- From: Thomas E. Cusack tecn...@sbcglobal.net To: lwillis821 lwillis...@yahoo.com; quad-list quad-list@eskimo.com Sent: Tue, Mar 5, 2013 8:46 pm Subject: Re: Fwd: [QUAD-L] 7 years today... 42 years for me c 6/7 from a mva-what do i remember-things now are so much better but the fun, exploration, setting the bar for the next 'generation' is not too bad. we weren't supposed tobe around this long, hahaha tom From: lwillis...@yahoo.com lt;lwillis...@yahoo.comgt; To: quad-list@eskimo.com Sent: Tue, March 5, 2013 7:17:55 PM Subject: Fwd: [QUAD-L] 7 years today... Time goes by so very very fast. My teenage years are still clear as a bell to me. The ones since then, not so much. I can't fathom what they meant or why. My family has been my reason for going on all these years. I am in year 42 after being hurt at 19. Right now, I am taking a day at a time.The next ten years are just too uncertain to contemplate. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Toby Ausbun lt;toby.aus...@yahoo.comgt; Date: March 5, 2013, 6:53:02 PM EST To: nichole rohling lt;zoocr...@windstream.netgt; Cc: lt;da...@immortaldesigns.cogt; lt;da...@immortaldesigns.cogt;, Quad-List@Eskimo. Com lt;quad-list@eskimo.comgt; Subject: Re: [QUAD-L] 7 years today... 22yrs here and it's been full of craziness ,Toby Sent from my iPad On Mar 5, 2013, at 4:24 PM, nichole rohling lt;zoocr...@windstream.netgt; wrote: it’ll be 15 for me – crazy nicki From: Danny Espinoza [mailto:da...@immortaldesigns.co] Sent: Tuesday, March 05, 2013 2:53 PM To: quad-list@eskimo.com Subject: [QUAD-L] 7 years today... It’s hard to believe I’ve been paralyzed for seven years already
[QUAD-L] Mattress
Hi All, I was wondering if anybody has a Tempurpedic mattress? Would you recommend them? What did it cost? Bobbie Smile Everyday
Re: FW: [QUAD-L] Pressure sore explosion
I had bone removed back in 1980s when I was AWAKE during the surgery. They played the music I liked and I talked to them throughout. Bobbie Smile Everyday -Original Message- From: William Willis lwillis82...@msn.com To: quad-list quad-list@eskimo.com Sent: Thu, Feb 28, 2013 7:00 pm Subject: FW: [QUAD-L] Pressure sore explosion I have had bone removed twice, Meredith. Just takes forever to get well. Have you ever used a wound vac? It helped me a great deal. Take care and God bless. From: wheelch...@aol.com Date: Thu, 28 Feb 2013 18:22:46 -0500 Subject: Re: [QUAD-L] Pressure sore explosion To: jume9...@comcast.net; quad-list@eskimo.com I'm glad you chose the medical doctor root. Sorry to hear of the results. Best Wishes In a message dated 2/28/2013 4:38:18 P.M. Central Standard Time, jume9...@comcast.net writes: The doctor says my wound is deep and is concerned it could go to the bone and I don't want to go to the hospital so I am on antibiotics and I'm being very diligent. Learned my lesson. Meredith From: Nan lt;nlg52...@yahoo.comgt; To: jume9...@comcast.net Sent: Wednesday, February 27, 2013 8:31:57 PM Subject: Re: [QUAD-L] Pressure sore explosion WTG Meredith. Good luck! Nan From: jume9...@comcast.net lt;jume9...@comcast.netgt; To: quad-list lt;quad-list@eskimo.comgt; Sent: Wednesday, February 27, 2013 5:20 PM Subject: Re: [QUAD-L] Pressure sore explosion Thanks for your advice, I've got an appt. tomorrow morning. Meredith From: wheelch...@aol.com To: jume9...@comcast.net, quad-list@eskimo.com Sent: Wednesday, February 27, 2013 12:49:37 PM Subject: Re: [QUAD-L] Pressure sore explosion Depend on the sore, and its reason. Pressure sores should be clean and debreeded and bandaged. Infections, not treated properly can produce more negative effects. Best Wishes In a message dated 2/27/2013 2:40:40 P.M. Central Standard Time, jume9...@comcast.net writes: Hi all, I ignored my sore and it got bad overnight, my foot swelled up and the sore literally exploded with pus and blood ( my aide almost threw up) She squeezed the ick out and we soaked it in salt water and bandaged it up. Should I get some antibiotics? Can I just continue soaking? Thanks Meredith
[QUAD-L] Nightmare Doctor Stories
I had a GP who ALWAYS made everybody wait 45 minutes to 1 hour. Anyway, I went to him knowing I was going through menopause. I was only 49 but the women in my family all went through it quite early … fine with me, no more bleeding as a Quad. TMI for you guys maybe. After waiting 1 hour I go to see if he can RX me some hormone meds to combat my multiple symptoms. He's the conversation below; What's up? I think I'm going through menopause. How old are you? 40 LOL LOL LOL LOL LOL LOL LOL LOL LOL. And never returned He literally laughed out loud, in my face and walked out of the exam room. I went to the front desk, asked the staff to give me my entire file. They did. I turned around and told everybody what just happened and walked out. I now have a very young GREAT GP. Bobbie
[QUAD-L] Nightmare Doctor's Stories
This one's a whopper! In May 1999 I had to have surgery on a bed sore. I had been seeing a plastic Sergon Dr.Kutlu for a few months. We set the date. I mentioned to him, while we were setting things up at the hospital that I was going to be needing a sand Clinatron bed. He seemed put off that I was telling what to do. I have the sugary Tuesday, on Wednesday he came in to change my dressing, I said to him as he grabbed a pair of gloves from the box on the wall (the non-sterile kind) Please wash your hands. I asked him Well, he went nuts. Who the hell are YOU to tell ME to wash my hands? As he continue's his rant he starts to change my dressing (after washing his hands) and I say to him I'm surprised you except Medicaid. I said to him. What are you talking about, I don't except Medicaid. YOU HAVE MEDICAID!!? he yells He snaps off his gloves and says. I am NOT taking care of you anymore. He's out in the hallway now, out of ear-shot … most of the time and yelling/telling a nurse I want you to get Miss Humphreys a phone and phone book so she can call to get another Doctor I was very glad of this idea because I got to call EVERY plastic Sergon in the phone book and tell his college just what he said and did. Then I called the chief of staff of the hospital who made him apologize and finish taking care of me until I was discharged. I went home to an air bed in my living room that didn't work. The next day I went to Kessler to have my wound looked at (because I have no Doctor) and he ask's Who did your surgery? He screwed me up worse. I was immediately admitted to Kessler for the next 7 weeks. Bobbie
Re: [QUAD-L] BP/Colonoscopy
I, personally, will NEVER EVER go through a colonoscopy, mama gram, pap smear or any other type of disease hunting procedure. I have no desire to live a long life as a quad. I've already put in close to 40 Quad years, I'm 57 now. My pain is out-of-control even though I take morphine … all my meds are pain meds. My scoliosis is only going to get worse and the arthritis in my neck too. I've never had so many different sores on my butt in different places … I have a sorry, skinny, flat ass. Dose anybody else not want to go through disease hunting procedures? Bobbie -Original Message- From: jume jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Sun, Feb 24, 2013 3:30 pm Subject: Re: [QUAD-L] BP/Colonoscopy If there was a way to get a complete removal then I could see it but I have had friends who wasted their time because they were not clean enough and were sent home. If it isn't squeaky clean they can't do the procedure. I just can't go through it Meredith From: Nan lt;nlg52...@yahoo.comgt; To: jume9...@comcast.net, quad-list@eskimo.com Sent: Saturday, February 23, 2013 9:49:43 PM Subject: Re: [QUAD-L] BP/Colonoscopy I know the prep is shitty for all of us, pun intended, but at least I know I don't have colon cancer... From: jume9...@comcast.net lt;jume9...@comcast.netgt; To: Nan lt;nlg52...@yahoo.comgt; Sent: Saturday, February 23, 2013 2:15 PM Subject: Re: [QUAD-L] BP The prep is too difficult. From: Nan lt;nlg52...@yahoo.comgt; To: Quadius lt;quad...@gmail.comgt;, jume9...@comcast.net Cc: quad-list lt;quad-list@eskimo.comgt; Sent: Friday, February 22, 2013 8:48:37 PM Subject: Re: [QUAD-L] BP I've had a colonoscopy and am due for another this year. The prep is a bitch, but I'd rather know what's going on... Do you have other problems that prevent you from having a colonoscopy? Nan From: Quadius lt;quad...@gmail.comgt; To: jume9...@comcast.net Cc: quad-list lt;quad-list@eskimo.comgt; Sent: Friday, February 22, 2013 5:45 PM Subject: Re: [QUAD-L] BP Meredith, In my experience when I am getting blocked up I get a liquefied stool without any hard stool. It's different than diarrhea. I don't know why you can't take a colonoscopy. It's difficult for quadriplegics, but it can definitely be done. The protocol here is really intensive and requires hospitalization. Quadius On Tue, Feb 19, 2013 at 7:53 PM, lt;jume9...@comcast.netgt; wrote: Just wondering, what tests are taken to see if one is blocked up? I'm not really able to do a colonoscopy according to the Doc I spoke to. Meredith From: Billy Lang lt;blan...@verizon.netgt; To: jume9...@comcast.net Cc: quadriple...@cox.net, quad-list lt;quad-list@eskimo.comgt; Sent: Tuesday, February 19, 2013 3:15:23 PM Subject: Re: [QUAD-L] BP See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. Pill form up to 4,8 or 24 mcg. I take monstrous amounts of opiates and the pills along with fiber keep me regular. You will need to experiment with dosages to find the right balance for you. Sent from Billy Lang's iPad On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote: Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you continue in pain go see the doctor. From: quadriple...@cox.net To: quad-list@eskimo.com Sent: Monday, February 18, 2013 1:27:16 PM Subject: [QUAD-L] BP The last 2 weeks I've had such stomach pains. I've been pooping rocks and nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too much, that hurts just as much. I keep using it more often, but I've never had to drink Miralax more than 2 times in a week. Then I can go months without it. I'm on my like 6th dose in 2 weeks. I want to double over in pain. G
Re: [QUAD-L] sad day
I use a d love his lifts. Bobbie -Original Message- From: Mike Mills blackwood4...@yahoo.com To: wheelchair wheelch...@aol.com; quad-list quad-list@eskimo.com Sent: Thu, Feb 14, 2013 8:47 am Subject: Re: [QUAD-L] sad day R.I.P. Mr. Ralph Braun! From: wheelch...@aol.com lt;wheelch...@aol.comgt; To: quad-list@eskimo.com Sent: Wednesday, February 13, 2013 6:48 PM Subject: Re: [QUAD-L] sad day To those who have never heard the name, Ralph Braun, is the Founder and Owner of Braun Mobility Corp in Winemac, IN. Ralph Braun, was a pioneer in the mobility industry, since he was 15 years old in building his own electric scooter, chair lift (in an old milk truck). Braun Corp is the largest employer in Winemac and builds custom personal vans, para-transist systems. He was so much more. He was a Husband, A Father and a generous man. For those who are still interested, Google or Wiki the name Ralph Braun. Best Wishes In a message dated 2/9/2013 3:34:55 P.M. Central Standard Time, daa...@aol.com writes: Please tell us about him. Dana In a message dated 2/9/2013 3:30:09 P.M. Central Standard Time, tecn...@sbcglobal.net writes: I was jus informed that Rlph Braun hs passe away. I dont know the particulars but please say a prayer for arealgreat guy. tom cusack
Re: [QUAD-L] Wound Care
Are you fearing kidding me, Regranex has been my go to medication for a major wound. I can't believe it isn't being manufactured anymore!! I still have a tube in my refregaartor.Bobbie -Original Message- From: Billy Lang blan...@verizon.net To: quad-list quad-list@eskimo.com Sent: Tue, Feb 12, 2013 2:03 pm Subject: [QUAD-L] Wound Care Got a pressure sore the size of a quarter on my ass. My pharmacy informed me that Regranex is not be manufactured anymore, And I have $100 co-pay for it. I'm using Hydrogel, but the wound needs something more effective before it starts Tunneling. Any suggestions? I heard natural bee honey works, anyone have experience with it? Me Bum is causing lousy spasms. Thanks. Sent from Billy Lang's iPad
Re: [QUAD-L] I'm moving
KK, That is just wonderful!!! I'm so excited for you. I remember when I moved into my own HUD apartment 30 YEARS ago. It's just a very small one bedroom with accessible bathroom and kitchen I can wheel under. BUT IT'S MINE!!! Do you have a mov-in date? Please let me know when you move in. Bobbie -Original Message- From: KK kkba...@yahoo.com To: Lainie Batte lainieba...@yahoo.com; susan mccarstle smccars...@bellsouth.net; Ann Cyr tro...@megalink.net; MS Quads ms-qu...@yahoogroups.com; quad-list quad-list@eskimo.com Sent: Mon, Feb 11, 2013 3:55 pm Subject: [QUAD-L] I'm moving I got approved to move to a wheelchair accessible apartment. I will be able to take a bath wash my hair inside the bath tub. Bake a cake - yeah no way! But I could do it in my accessible kitchen. I will have a dressing area a separate bath room. The bed room isn't big, just enough room for the bed. The living room kitchen area is huge. Everyone I have met there is happy and they are able to leave their apt and sit in the common area visit. There is no management on site. There is a social worker there. Here is what the apt is going to look like http://www.accessiblespace.org/housing/Pages/housingdetails.aspx?housingid=115 I am so excited. KK
[QUAD-L] Snow totals in New Jersey
Well, we got 15 and WIND. Today is brilliant sunshine, tonight 6 degrees with wind chill well below zero. How about you Shirley, how much did you get in RI? Bobbie
Re: [QUAD-L] Snow totals in New Jersey
Because it snows here fairy resent (but nt every year) there are plows out there as the snow falls. The Bain roads are ALWAYS cleared within a few hours. There a girl, Dawn, who lives in my building who is a C-6,7 Quad and she went out tonight to play BINGO My Pete shelves himself out, my van and Dawn's van. The building hires someone to plow our parking lot, they do it while were all sleeping. But tonight it's going down to 7 degrees. Bobbie -Original Message- From: jume jume9...@comcast.net To: bobbie299 bobbie...@aol.com; quad-list quad-list@eskimo.com Sent: Sat, Feb 9, 2013 3:40 pm Subject: Re: [QUAD-L] Snow totals in New Jersey Oh my goodness, How in the heck do you guys handle that? Meredith From: bobbie...@aol.com To: quad-list@eskimo.com Sent: Saturday, February 9, 2013 11:04:18 AM Subject: [QUAD-L] Snow totals in New Jersey Well, we got 15 and WIND. Today is brilliant sunshine, tonight 6 degrees with wind chill well below zero. How about you Shirley, how much did you get in RI? Bobbie
[QUAD-L] No Thanks
Remember I was telling you all about Dawn a neighbor who happens to be a Quad that lives in our apartment building. Every single snow storm we've gotten in the past 20 years that she and us have been living here, she has NEVER EVER said Thanks to Pete for digging her out. Today Pete dug her out while I was stuck in bed. When he came in, changed his cloths to dry one's. He looks out the window to see Dawn going out to he van and take off. WITHOUT ever calling to say Thanks or stopping by our apartment, which is the first unit to the front door to say Thanks Just don't understand. Bobbie
[QUAD-L] Here comes 12-16 of snow
Hi All, I live 25 miles due west of NYC in Northen New Jersey. While I'm stuck in bed were going to get 12-16 of snow. I LOVE to drive my van chair in te snow … shit I'm going to miss it. OH well, I'll just have to watch it outside my window. Anybody else out there going to be in thus historic storm? Bobbie
Re: [QUAD-L] Old age
I'm 57 and 40 years post this April and my pain is insane. I take A LOT of morphine plus other pain meds. I find I don't remember things like I use to ...… it's definitely a side effect of pain meds.Bobbie -Original Message- From: Danny Hearn ddh...@sbcglobal.net To: lwillis821 lwillis...@yahoo.com; quad-list quad-list@eskimo.com Sent: Fri, Feb 8, 2013 8:15 pm Subject: Re: [QUAD-L] Old age Yep, It can be tough, especially during the winter months, I feel tired and in pain a lot-some days it can be hard to just do simple things, I don't sleep well either as I got older It is hard to sleep more than an hour or so at a time. You are much ahead of me i'm 15 1/2 years post now and at age 56. Dan H.* From: lwillis...@yahoo.com lt;lwillis...@yahoo.comgt; To: quad-list@eskimo.com Sent: Fri, February 8, 2013 6:52:28 PM Subject: [QUAD-L] Old age To all of you long time quads: Do you find yourself more listless/tired/unmotivated than you used to be? I am now 42 years post and it seems like I have no drive to do anything other than sit here. Anyone else have this problem? Sent from my iPad
Re: [QUAD-L] finding regular doctor
I called my insurance company to get a short list of Doctor's then I set up appointments and interviewed the Doctor's themselves, then I choose. Bring with you questions and also ask if you can fit in at least one examine room. For kidney stones go to a urologist. Bobbie -Original Message- From: DAVID LEWIS curlyle...@verizon.net To: quad-list quad-list@eskimo.com Sent: Sat, Feb 2, 2013 5:54 pm Subject: [QUAD-L] finding regular doctor i recently had my regular doctor stop her practice Im in need of finding another very soon. Im a 54 year old quad who dosent have to many problems over the years except maybe kidney stones and a few urine infections. How did you guys find one and how do you think i should. Thank you Johnny
[QUAD-L] Roho seat cushion
Hi All, Has anybody ever gotten a specialty Roho seat cushion? As you may, or may not know, I've been stuck in bed since November because of a chronic sore on my right issum (sp) area. I called Roho and asked if they have any cushion that dose not have any cells in the issum area. They told me that they make specialty cushions. She said … you would contact your vendor and work through them to properly order the specialty cushion. The cost would be under $500. Has anybody ever dose this through Roho?Bobbie
Re: [QUAD-L] Dr.Oz probiotics
I've been using probiotics for years in the form of Activia yogurt … I've been eating one per day for well over 5 years. I don't get as many UTI's but I also change my bag frequently and soak it every night in a solution plus alcohol wipes at every connection. Bobbie -Original Message- From: jume jume9...@comcast.net To: quad-list quad-list@eskimo.com Sent: Tue, Jan 22, 2013 11:15 am Subject: Re: [QUAD-L] Dr.Oz probiotics Yes, probiotics are beneficial, however I find that you must buy a good one. It should contain 5 to 10 billion active cultures from many sources ( several different strains). I think my body gets immune to them after a while so as with everything else I change it up. They will not get rid of the quad gut but they help a lot with constipation and even infections. Meredith From: Larry Willis lt;lwillis82...@msn.comgt; To: quad-list@eskimo.com Sent: Tuesday, January 22, 2013 7:16:34 AM Subject: [QUAD-L] Dr.Oz probiotics I watched Dr.Oz last week and he was singing the praises of probiotics. According to him, they were the solution to bloating, gas, constipation, stomach pain, etc. I know many of us, including myself, fight this battle constantly. Have any of you tried probiotics? Do they help? I just bought some but haven't started them yet. Any opinions? Sent from my iPad
RE: [QUAD-L] fingers....
I was told by my Doctor's that the reason my finger's are curled up is because … the position your finger's are in when your nerves are severed is how they will stay. I personaly had my fingers wraped around motor cycle handles when I broke my neck. How about the rest of you. What position were your hands when you broke your neck and are they in the same position? Bobbie -Original Message- From: Theo Kyparissis kypar...@hol.gr To: Quad-list quad-list@eskimo.com Sent: Mon, Jan 21, 2013 11:05 am Subject: RE: [QUAD-L] fingers Does anyone know why some Quads fingers are straight and flexible while others are curled and stiff? Theo From: Joan Anglin [mailto:poaj...@sbcglobal.net] Sent: Monday, January 21, 2013 17:53 To: quad-list@eskimo.com Subject: RE: [QUAD-L] fingers It has never been any kind of option for me as my hands are flat and not curled up. We do range of motion and work the fingers everyday but other than getting partial feeling back in the right hand they haven’t changed at all in 22 years. I too never consider a cure for SCI for myself as I know that I am too old to be a viable candidate for any form of treatment which requires trials and cetera. At least this way I will never have to look for a seat anywhere I go! J Have a great day everyone. Joan From: donald scott [mailto:rollingl...@yahoo.com] Sent: Sunday, January 20, 2013 5:43 PM To: bobbie...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] fingers I agree with bobbie. My hands are closed with thumbs out and on my left hand (I'm a lefty) my index finger is straighter so I have a little pinch when I twist my wrist up. With hands closed I can drive, write, ps2 with handles, rc cars, fish, hold stuff, plus lots more. If your thinking about a cure for later don't worry they will make your hands open again. I personally never think about a cure and could careless at this point. Take care all, Donald From: bobbie...@aol.com lt;bobbie...@aol.comgt; To: da...@immortaldesigns.co; quad-list@eskimo.com Sent: Sunday, January 20, 2013 5:30 PM Subject: Re: [QUAD-L] fingers Mine have been locked closed like a fist since day on in the 1970s Nobody ever tried to straighten them out ever. It has been advantage to have them curled up and locked … I'm able to one doors very easily along with any other tasks. Bobbie -Original Message- From: Danny Espinoza lt;da...@immortaldesigns.cogt; To: quad-list lt;quad-list@eskimo.comgt; Sent: Sun, Jan 20, 2013 7:55 pm Subject: [QUAD-L] fingers I was wondering what you guys do about your fingers… mine are becoming stiff and locked up… obviously I want to be able to use my fingers again someday and was wondering if you guys could give me some information on how you keep your fingers in good health… right now my caregivers stretches them twice a day but its only getting worse and I’m getting worried…
Re: [QUAD-L] Ditropan vs. Propantheline
Nan, Many, MANY years ago … back in the 1970s … I was prescribed propatheline. I HATETED the dry mouth side affects SO much that I told my Doc's that I was allegic. Then I realized, a few more years later, that if they thought I was allegic to propatheline then they would assume I would be allergic to any other related meds. It took an amazing amount of YEARS to convince nurse's, Doctor's, ER intake people that I am NOT allegic to propatheline - I just said so because yada, yada, yada. Bobbie -Original Message- From: Nan nlg52...@yahoo.com To: DAANOO daa...@aol.com; greg g...@eskimo.com; quad-list quad-list@eskimo.com Sent: Sun, Jan 20, 2013 2:04 pm Subject: Re: [QUAD-L] Ditropan vs. Propantheline I'll take the dry mouth to the sweating any day. I recently tried cutting the Propantheline in half, thanks to a Q-List member, and that really helped. Plus, I never mind drinking more - and when my mouth is dry I always drink more... I'm a Propantheline advocate, but what it boils down to is that we are all different. Try some to the meds that have been discussed and go with whatever works for you. :) . Nan From: daa...@aol.com lt;daa...@aol.comgt; To: g...@eskimo.com; quad-list@eskimo.com Sent: Friday, January 18, 2013 11:55 PM Subject: Re: [QUAD-L] Ditropan vs. Propantheline There are so many things that Medicare part D doesn't cover. My out-of-pocket has tripled. I don't even know if mine is covered because they charge my credit card. It doesn't say what it is for. Propantheline really dries out my mouth and it is uncomfortable. I have to drink all the time. It takes quite some time to wear off. Dana In a message dated 1/18/2013 4:51:19 P.M. Central Standard Time, g...@eskimo.com writes: Ditropan gave me like panic dreams. Not nightmares, but I'd wakeup startled. No idea what I was dreaming. Greg gt;gt; My insurance stopped covering my propantheline as of this month. gt;gt; Can anyone tell me if ditropan works as well? gt;gt; gt;gt; Meredith gt;gt; gt;gt; From: Larry Willis lt;lwillis82...@msn.comgt; gt;gt; To: quad-list@eskimo.com gt;gt; Sent: Thursday, January 17, 2013 5:08:14 PM gt;gt; Subject: Fwd: [QUAD-L] Flu Shots/vomiting gt;gt; gt;gt; I take ditropan but I have never tried propantheline. It sounds gt;gt; like something that would help me a lot. Do any of you take both? gt;gt; The ditropan dries out my mouth so bad I think my tongue is going gt;gt; to break off. I'll definitely mention prop. to my doc next time. gt;gt; gt;gt; Sent from my iPad gt;gt; gt;gt; Begin forwarded message: gt;gt; gt;gt; gt;gt;gt; From: greg lt;g...@eskimo.comgt; gt;gt;gt; Date: January 17, 2013, 4:07:29 PM EST gt;gt;gt; To: Larry Willis lt;lwillis82...@msn.comgt; gt;gt;gt; Subject: Re: Fwd: [QUAD-L] Flu Shots/vomiting gt;gt;gt; gt;gt;gt; gt;gt;gt; like
Re: [QUAD-L] fingers....
Mine have been locked closed like a fist since day on in the 1970s Nobody ever tried to straighten them out ever. It has been an advantage to have them curled up and locked … I'm able to one doors very easily along with any other tasks.Bobbie -Original Message- From: Danny Espinoza da...@immortaldesigns.co To: quad-list quad-list@eskimo.com Sent: Sun, Jan 20, 2013 7:55 pm Subject: [QUAD-L] fingers I was wondering what you guys do about your fingers… mine are becoming stiff and locked up… obviously I want to be able to use my fingers again someday and was wondering if you guys could give me some information on how you keep your fingers in good health… right now my caregivers stretches them twice a day but its only getting worse and I’m getting worried…
Re: [QUAD-L] Fwd: My Buddy Ray
Sounds like a wonderful cherished friendship. That was a very nice tribute. -Original Message- From: Billy Lang blan...@verizon.net To: quad-list quad-list@eskimo.com Sent: Mon, Jan 14, 2013 1:20 pm Subject: [QUAD-L] Fwd: My Buddy Ray From: Billy Lang Sent: Saturday, January 12, 2013 1:35 PM Subject: My Buddy Ray My Buddy Ray died last week. He had COPD and carried an oxygen tank along with him everywhere he went. A few years ago he contracted pneumonia. He was placed in a coma and put on a respirator. I never thought I would see him again but he pulled through. This completely changed my perception . From that day on I would never give up on anyone. Never in my realm of experiencing loved ones dying did I expect Ray to breathe on his own once he was taken off the respirator. Years later, after going out to eat with my parents, Bobbie and my wife Paula, Ray fell and broke his hip. It was the beginning of a long desperate battle that ended ultimately in his death. At the wake there were the same platitudes namely it was his time, he couldn't fight anymore and he is at rest now. Today, I got back on my old desktop computer and realized I had no new jokes. For at least the last five years Ray had been sending me emails of jokes, prayers, lessons on life, politics (mostly against Obama) and the occasional e-card. Now, Ray did not send one a day. He would send five or the occasional seven emails. Up until the middle of 2012 he would send the emails as attachments where you annoyingly had to click open the email he sent then click open the attachment and If the attachment opened a web address or a movie there was another click. It got so frustrating that I really didn't care if the email was funny. So, as a tribute to Ray, my Buddy, here’s a message he sent me in October, 2012 as an attachment: Just in case I'm gone tomorrow As I approach my mid-seventies, I am struck by the inevitability that the party must end. And one clear, cold morning after I'm gone, my wife will awaken in the warmth of our bedroom and she will be struck with the pain of learning that sometimes there isn't anymore. No more hugs, no more special moments to celebrate together, no more phone calls just to chat, no more just one minute. Sometimes, what we care about the most gets all used up and goes away, never to return before we can say good-bye, say I love you. So while we have it, it's best we love it, care for it, fix it when it's broken and heal it when it's sick. This is true for marriage.And old cars. And children with bad report cards, And dogs with bad hips. And aging parents and grandparents. We keep them because they are worth it, because we are worth it. Some things we keep -- like a best friend who moved away or a sister-in-law after divorce. There are just some things that make us happy, no matter what. Life is important, like people we know who are special. And so, we keep them close! Suppose one morning you never wake up, do all your friends know how you really feel? The important thing is to let every one of your friends know your true feelings, even if you think they don't love you back. RIP Ray, I miss you and the emails. Don't let what you cannot do interfere with what you can do! Billy
[QUAD-L] Invalid
I just looked up the work invalid … it's me …. Bobbie
Re: Fwd: [QUAD-L] successful
Larry, Did you write a chapter in the book From There to Here ? There was a quad in that book who was transported in a hearse. I wrote a chapter in that book. Bobbie -Original Message- From: Larry Willis lwillis82...@msn.com To: quad-list quad-list@eskimo.com Sent: Sun, Jan 13, 2013 5:08 pm Subject: Fwd: [QUAD-L] successful Interesting stories, guys. Out of curiosity, how many on this list, like myself, have not ridden an airplane as a quad? Heck, I've never ridden a passenger plane in my life. The nearest airport to my homestead is over 100 miles away. We are an urbane and sophisticated lot down here in Ky.:) The Turtle Man is from the neighboring county. When I was injured back in 1971, I was taken to the hospital in a hearse! (True) Hope everyone has a happy and healthy night. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: wheelch...@aol.com Date: January 13, 2013, 3:08:14 PM EST To: aa999...@yahoo.com, quad-list@eskimo.com Subject: Re: [QUAD-L] successful I've taken both the Coach USA bus to Midway and O'Hare Airports (they run every two hours) and I've taken the Chicago-South Shore to downtown and the Orange Line to Midway as well as the Blue Line to OHare. Both Chicago Airports have a Sticky Patch they issue to DisAbled Travelers, for special attention. Wearing the Sticky Patch with the airline symbol offers its user the best in mobility services. Those wearing the Maroon Vest work for the airports to ensure safety. The Sticky Patch also can help going thru security to the departing gates. I hope your return was just as easy. Best Wishes In a message dated 1/13/2013 12:44:41 P.M. Central Standard Time, aa999...@yahoo.com writes: my recent travels from Indiana, southern Arizona just before the holiday season.yes, I have traveled numerous times before this but flying out of Chicago has always been a nightmare!taking a shuttle bus from South Bend to Chicago in just over a two hour ride departing at 4 AM. So once in Chicago I had about an hour and a half before the departing flight and it seemed going through security was not too much of a hassle. Just after a few minutes of waiting at the departing the gate, I was approached by the individual for special needs. Now, in times past, they usually transferred me from my power chair directly to the aisle chair for the aircraft but I had a different idea. This time around. Straight from my power chair to a manual chair and then to the aisle chair. , With following my directions of breaking down my chair and securing a gym bag of my clothing on top of the wheelchair parts to make one beautiful package to fit under the plane. Using two ratchet straps and commercial grade saran wrap to ensure everything would stay together even when they laid chair down on its side. Even with my chair broken down, it barely fits in the cargo hole of the aircraft. Getting the bulkhead seats are the first row of seats in coach section and on the right-hand side of seating in the middle seat with my traveling companion taking the window seat. Departing nearly on time, which was very rare than previous departures. I am 3/4c complete 6 feet tall and just over 200 pounds, so transferring me is not the easiest. Once we touched down the chair was actually still all put together the same way we packed it prior to flight. So getting to the airport with enough time to spare is key in not getting a damage chair during flight and this occurred also on the returning flight. So anybody has any questions about this travel fell free to ask and had an excellent time celebrating my grandpa's 90th birthday. I hope everybody had a great holiday season and is ready for this new year. All is well. Concerning my health really don't have any complaints at this time except for my new chair. And it's been nearly a year now on getting my new chair ordered and delivered. It's from 21st-century product and looks a lot more durable than my current Invacare product! But for now programming it is the next hurdle and hope to have it on the road in the near future. Will let you know once I have it up and running. Take care my friends and have a good one.
[QUAD-L] Christmas gifts
Hi All, I'm tempting to change the subject from vomiting to something much more pleasing. I got a Kindle for reading in bed … it's working out very well, I love it. What did everybody else get for Christmas? Bobbie
Re: [QUAD-L] Flu Shots/vomiting
Don, OH yea, I have vomited as a quad. If I'm up or in bed and know what's about going to happen, I hold a basin, like you'd use for a bed bath in the hospital, and hurl away. It just happens … your body takes over. Bobbie -Original Message- From: Derrick Winegardner whe...@cvn.net To: quad-list quad-list@eskimo.com Sent: Fri, Jan 11, 2013 7:58 pm Subject: Re: [QUAD-L] Flu Shots/vomiting I puked up captain morgan/coke twice. Was wasted. Have not touched adrop since. That is only time that I ever threwup. Derrick who does not miss hangovers On 1/11/2013 6:31 PM, Don Price wrote: I get a flushot every year around September. This year Igot the shot on my birthday, Sept. 28th. At Christmas myroommate/caregiver became sick with the flu. I managed toavoid catching it for a week but I did eventually get sick. While Icaught the virus, my recovery time was much shorter than myroommate who did not get the shot. I think the flu shotaided in my quicker recovery, but I cannot prove that. Myroommate is STILL suffering, while I am almost back to fullhealth. I have nevervomited in 30 years as a quad, but my body was definitelytrying. I heaved for several minutes but did not vomit.Which made me wonder: are quads able to throw up? Do youneed help to do this? Anyone have puking experience? Iapologize for the unpleasant topic, but I'm truly curious. Don. c5-6 From: greg lt;g...@eskimo.comgt; To:quad-list@eskimo.com Sent:Friday, January 11, 2013 3:23 PM Subject:[QUAD-L] Flue Shots Do you guys get flue shots? I saw on the news how bad the flue outbreak is this year. Greg
RE: [QUAD-L] Back-up power for our beds ~ solution!
My brother is an electrician and said plugging the sump pump back-up system would be fine for my electric bed.Bobbie -Original Message- From: Dave Krehbiel davekrehb...@earthlink.net To: bobbie299 bobbie...@aol.com; quad-list quad-list@eskimo.com Sent: Thu, Jan 10, 2013 8:35 am Subject: RE: [QUAD-L] Back-up power for our beds ~ solution! A word of warning about backups and generators and so forth. I did a bit of research on this, and apparently there are different qualities of electricity. From what I read, a generator or a battery might put out pure sinewave” or “modified sinewave” power. The modified sinewave is less expensive and is perfectly acceptable for large motors in refrigerators and sump pumps, but I have heard that this could be dangerous to batteries and sensitive electronic devices. In other words, a backup or generation solution which works perfectly fine for your sump pump could possibly ruin your bed, computer, and so forth. I'm not an engineer or an electrician. But maybe you might want to research this a bit further before you plug in your sensitive devices. If anybody has more information about this topic, I'd sure like to know about it. Good luck, and take care, Dave Krehbiel -Original Message- From: bobbie...@aol.com [mailto:bobbie...@aol.com] Sent: Wednesday, January 09, 2013 3:48 PM To: quad-list@eskimo.com Subject: [QUAD-L] Back-up power for our beds ~ solution! Hi All, Remember when Hurricane Sandy hit and we were all talking about a back-up system to power our beds if the power goes out? Well, I thought of a solution … sump pump back-up battery! My brother is an electrician and he said these back-up battery systems would be perfectly safe for in the bedroom. The way they would work is you plug in the back-up battery directly into a wall outlet, then plug your bed into the back-up battery. The entire time the battery is plugged in it is being charged. Then you plug in your bed directly into the back-up battery system. You can have a light or TV plugged in as well, but the more you drain from the system the shortest it would last. As soon as a power outage would happen the sump pump back-up battery would automatically switch on … you wouldn't even need to be home. The sump pump back-up battery cost anywhere from $150-$800 depending on how may Amps you want to have … the higher the cost the longer you'd have back-up power. They can be bought at a Battery Plus store or Home Depo type stores, if they don't have them in stock you can have the store order it. You can also order them on line just Google sump pump back-u battery. Bobbie
Re: [QUAD-L] Damn it!
Glenn, I'd like to suggest hot mist I get a pasta pot, which is usually the largest pot in the kitchen, fill it with water and just et it simmer. It will keep you warm and not have a dry trought. I live in northern New Jersey and do the above every cold winter. Hope this helps. Bobbie -Original Message- From: wheelchair wheelch...@aol.com To: Gah17582 gah17...@aol.com; quad-list quad-list@eskimo.com Sent: Tue, Jan 8, 2013 7:35 pm Subject: Re: [QUAD-L] Damn it! Warm or Hot lemonaide as your daily beverage, should help. Best Wishes In a message dated 1/8/2013 6:29:29 P.M. Central Standard Time, gah17...@aol.com writes: Excuse the language. In 2010, 2011 and 2012 each year with in two weeks of May 1, I went to the hospital with either a mucous plug, severe bronchitis, pneumonia whenever they could put on paper is what they called it. I can't remember but in 2011 in 2012 it started with a scratchy throat and sinus drainage. All three years happened after I visited the doctor, and blood tests and really didn't have much of an issue. And here it is, a new year, 2013. Am I about to do it again? On Thursday and Friday evening I had a scratchy throat during the night and morning. During the day it did not seem to be an issue. On Saturday my sinuses started to drain down my throat and now I have this dry hacking cough. It almost feels like a reflex cough. We have forced air heat in the home and I believe the air to be dry. Saturday night I had a humidifier and it may have helped a little, but here it is Tuesday and I feel like crap. I have been taking Musenex for the last 24 hours, not really having much sinus drainage, but I never really had a lot, just a scratchy throat. The reflex seems to be in the center of my chest and it almost feels like I am having minor muscle spasms in my chest. I had blood tests done two weeks ago, the doctor said everything looks good and I felt good. Does anybody have trouble with dry heat? Does this sound familiar to anyone? I had started using my nebulizer, taking cough drops, and Musenex. I have no temperature in my oxygen level is 97. Disgusted in Pennsylvania! Glenn Henry
Re: [QUAD-L] all quiet on the Western front
I'm so glad your starting t feel better! Bobbie -Original Message- From: Quadius quad...@gmail.com To: lwillis821 lwillis...@yahoo.com Cc: quad-list quad-list@eskimo.com Sent: Sat, Jan 5, 2013 6:05 pm Subject: Re: [QUAD-L] all quiet on the Western front I'm just now getting to all of my backup emails. I have been sick with a severe respiratory virus/infection since early in December. I wish I could say Christmas is great for me, but all I did was sit and watch everyone else eat. At least my family was with me. I'm feeling considerably better now and hopefully if I take it easy I'll be able to recover in the next few days. Take care everyone, Quadius On Tue, Jan 1, 2013 at 9:33 PM, lt;lwillis...@yahoo.comgt; wrote: Hope everyone had a wonderful Christmas and a joyful New Year's Day. We ate our annual spread of black-eyed peas and cabbage! The weather has been overcast and in the 30's. No bad weather at all, just gloomy and gray. Good old KY weather. To make things worse, the 'Cats have lost 4 games! Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Dana Wray lt;daa...@aol.comgt; Date: December 31, 2012, 8:16:42 PM EST To: Lori Taylor lt;llt1...@sbcglobal.netgt; Cc: Joan Anglin lt;poaj...@sbcglobal.netgt;, wheelch...@aol.com lt;wheelch...@aol.comgt;, gah17...@aol.com lt;gah17...@aol.comgt;, quad-list@eskimo.com lt;quad-list@eskimo.comgt; Subject: Re: [QUAD-L] all quiet on the Western front Happy new year to everyone on the Quad-list. I wish everybody a safe and wonderful new year. It has been snowing in the Kansas City area, but I'm not sure how many inches yet. The roads have been treated fairly well. I am just staying home watching New Year's celebration. Happy new year all and God bless, Dana Sent from my iPhone On Dec 31, 2012, at 5:28 PM, Lori Taylor lt;llt1...@sbcglobal.netgt; wrote: OMAGOSH, Joan, where do you live??? I'm freezing just reading your email..I'm basically a hermit when the weather drops below 70 degrees. I can't imagine having that kind of weather. Beautiful to look at I'm sure From: Joan Anglin lt;poaj...@sbcglobal.netgt; To: wheelch...@aol.com; gah17...@aol.com; quad-list@eskimo.com Sent: Mon, December 31, 2012 4:22:47 PM Subject: RE: [QUAD-L] all quiet on the Western front We’re staying at home, it was 1° this morning and the high today has been 27° so that’s a good reason to stay home, plus 5 inches of snow on our mountainside makes getting in and out of our property somewhat difficult. My van is not a four wheel drive.Curry chicken, lobster and twice baked potatoes for dinner and coffee and bailey’s Irish for toasting, can’t get much better.Thanks Glenn for the prayers for healthy, and I just replaced my tires and now my batteries, so I will be good to go. Happy new year to all of you, and may each of you find what your heart desires or at least peace within yourself.Joan From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Monday, December 31, 2012 12:47 PM To: gah17...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] all quiet on the Western front Thank You Glenn and May The New Year Provide You With Good Health! Best Wishes In a message dated 12/31/2012 2:42:56 P.M. Central Standard Time, gah17...@aol.com writes: I notice there has not been a lot of postings over the holidays. I hope everyone is just relaxing. Just a few hours away from a new year, my prayer is that each and every persons that post on this site has a safe and enjoyable evening and may 2013 be one of those years of no hospital visits and your wheelchair tires need replaced twice. Happy new year, Glenn Henry
Re: [QUAD-L] all quiet on the Western front
Cold here in New Jersey … about 28 Pete and I are staying in. Curling up in bed together and watching movies. Bobbie -Original Message- From: shirley bell sbell...@cox.net To: Joan Anglin poaj...@sbcglobal.net Cc: quad-list quad-list@eskimo.com Sent: Mon, Dec 31, 2012 5:53 pm Subject: Re: [QUAD-L] all quiet on the Western front Thanks Joan, happy new year to everyone as well! Cold here in RI staying home with my husband eating artichoke dip and shrimp for dinner! Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: Joan Anglin To: wheelch...@aol.com ; gah17...@aol.com ; quad-list@eskimo.com Sent: Monday, December 31, 2012 5:21 PM Subject: RE: [QUAD-L] all quiet on the Western front Were staying at home, it was 1° this morning and the high today has been 27° so thats a good reason to stay home, plus 5 inches of snow on our mountainside makes getting in and out of our property somewhat difficult. My van is not a four wheel drive. Curry chicken, lobster and twice baked potatoes for dinner and coffee and baileys Irish for toasting, cant get much better. Thanks Glenn for the prayers for healthy, and I just replaced my tires and now my batteries, so I will be good to go. Happy new year to all of you, and may each of you find what your heart desires or at least peace within yourself. Joan From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Monday, December 31, 2012 12:47 PM To: gah17...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] all quiet on the Western front Thank You Glenn and May The New Year Provide You With Good Health! Best Wishes In a message dated 12/31/2012 2:42:56 P.M. Central Standard Time, gah17...@aol.com writes: I notice there has not been a lot of postings over the holidays. I hope everyone is just relaxing. Just a few hours away from a new year, my prayer is that each and every persons that post on this site has a safe and enjoyable evening and may 2013 be one of those years of no hospital visits and your wheelchair tires need replaced twice. Happy new year, Glenn Henry
[QUAD-L] Barriers for family visits
Hi all. This happens EVERY single year, nd it STILL breaks my heart. My husbands out tonight visiting his family … with whom I've gotten very close to in the past 30 years. I us to be be to get in this hose until they planted scrubs where my ramp use to go … now I can't get in. Pete is glad, in a way, because he never liked carring the big ramp in his nice cloths. So, here I amin bed, alone, while Pete is off at a Christmas party. Yes, I'm feeling sorry for my self. Bobbie
[QUAD-L] Merry Christmas!
Hi All, I'd like to wish you all a very Merry Christmas! I hope you all are happy and healthy in 2013! I'll be in bed still but my brother in-law (my husbands brother) comes to our place on Christmas Day. We ALWAYS have a blast. What is everybody else doing Christmas?Bobbie
RE: [QUAD-L] Im back! but........
I'll NEVER give permission for anybody to do a track EVER! But I'm glad things worked out for you and your out of the hospital Bobbie -Original Message- From: Danny Espinoza da...@immortaldesigns.co To: wheelchair wheelch...@aol.com; quad-list quad-list@eskimo.com Sent: Sun, Dec 16, 2012 10:29 am Subject: RE: [QUAD-L] Im back! but Thanks! :D From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Sunday, December 16, 2012 7:05 AM To: da...@immortaldesigns.co; quad-list@eskimo.com Subject: Re: [QUAD-L] Im back! but Welcome Back and may the new year offer you better breathing! Best Wishes In a message dated 12/15/2012 6:20:02 P.M. Central Standard Time, da...@immortaldesigns.co writes: I ended up in the hospital with breathing problems… it turns out I had an 85 percent occluded airway into my lungs. So far I’ve had one surgery where they removed some scar tissue and did a tracheotomy as well… In 6 months I’ve got another surgery to remove more of the scar tissue and to remove the hole in my neck as well.
[QUAD-L] ipad what you'll need how much $$
_Click here: iPad - iPad WiFi - iPad WiFi + 3G - Apple Store (U.S.)_ (http://store.apple.com/us/browse/home/shop_ipad/family/ipad?afid=p219|GOUScid=OAS -US-KWG-iPad-US) Hi All, I'm very much enjoying my ipad (I got the 32 GB $599.00) the web site above in very informative about cost and what you need to get it up and going. Enjoy, Bobbie
[QUAD-L] I got an ipad
Hi all, I've been in bed the last two months, and I got an ipad. It is so very easy to use in bed. Bobbie
[QUAD-L] Back in bed again
Hi All, I have to stay in bed till Aug 2nd Bobbie
[QUAD-L] Need to vent, one of those nights
Hello dear comrades, OK, here is the set up. I've got a lot on my mind, like July 7th I'm going to a wound care Dr. because I have the beginnings of a pressure sore on my upper thigh, July 19th I'm going to a neurosurgeon to find out how he can help me with my syrinx that is causing out of control pain in my neck from C 4 to C 7. August 4th I'm going to the hospital for a procedure to check out my stoma from my urostomy because I've been getting a lot of bleeding. Yesterday I went to my GP and found out I have Mersa in my urine which most likely means I have Mersa in my open wound as well. My right shoulder hurts like hell because I have arthritis, bone spur and chronic tendentious in the rotator cuff. My s/o care taker 24/7 for over 25 years turns me on my left side to give me the magic bullet, which hurts my shoulder because I have no support for it, which means I can't sleep because of the pain in my neck and shoulder. I can't turn on my other side because of the stoma. Pete turns me around 2:30am so I can get some sleep - this is after he cleans me up. As he turns me he discovers that the bed is completely soaked because the stoma is leaking, urine every where. Now he has to turn me on my back and change the stoma which takes about 45 minutes while Iay naked because my bed shirt got wet and if I put on a clean one it also will get wet before he changes the entire bed which he dose after changing the stoma. OK, now the bed is changed, with me in it, and now he needs to change the dressing on my wound on my upper thigh. So, now it's 3:45am I watch a little TV to calm down, fall asleep around 5:30am when around 7:00am the lawn more crew shows up at our apartment complex to wake us up. Bobbie
[QUAD-L] pain meds question
Hi All, Anybody here take Hydrocodone on a steady basics, if so what strength? Anybody here take Pennsaid (topical) I just started - so far so good. Bobbie
[QUAD-L] pain Doctor a gem
Hi All, I went back to Kessler to see the pain management Doctor - the week prior I had to first see a psychologist who was an ass. This pain Doctor was very compassionate and listened to me and asked good questions. He doubled the strength of the Hydrocodone to the highest strength and gave my pennsaid a topical medication to put directly on where it hurts the most. I had an MRI last month on my neck and it was discovered that my syrinx (fluid based syct) had grown quite a bit since 2005 from just C 5 to C 4 down to C 7 which is causing a lot of my pain. My shoulder has artritis and cronic teniditis in the rotator cuff. I go to see this pain Doctor in one month to see how I'm doing. I had to pee in a cup and will need to each visit - fine with me. Bobbie C 5,6,7 37 years post
[QUAD-L] Pain management pain in the a** psychologist
Hi All, I saw a psychologist last week, it was the first part before going to see the pain Doctor who will prescribe my new and improved pain meds. I thought it was a JOKE! They, Kessler, had mailed me a 15 page form to fill out regarding my pain - where is it, what meds am I on now and on a scale of 1 to 10 how do I rate my pain. OK, so I filled it out then went to see the physiologist who had the personality of a blank piece of paper, he sat behind his desk in front of his computer and asked me ALL the questions that I filled out the day before. He ONLY asked me Where is you pain? How long have you had pain? On a scale of 1 to 10 how is your pain now? Then he said OK, you can go now I got a little miffed and said You didn't ask me about what I do and now can't do because of my pain, you never asked if I was ever suicidal or depressed or if the pain interfered with my every day life, you didn't ask what do I do on a daily basis - hobbies or interests. I told him that I thought all those things were just as important. He said nothing AT ALL. The next day I wrote down on a piece of paper what I wanted to tell him, then I called and left him this long message. Something like this; I think it is important that you realize that there is more to me than my pain. I use to drive but cannot because of my pain, I can't type as long, stay in my chair as long as before. I use to be very active in my community now I cannot. Tomorrow, I'll see what happens.Bobbie
Fwd: [QUAD-L] phone headsets
No, no luck. Nobody has responded to my request as of yet. I'll ask again - I becoming to painful for me to hold a phone to my ear, anybody know of a wireless headset phone under $50? I'm not crazy about the head sets that have a head band type. Please send links of tried a true ones. Bobbie ---BeginMessage--- Any luck Bobbie? I need one also. - Original Message - From: bobbie...@aol.com To: quad-list@eskimo.com Sent: Thursday, May 27, 2010 6:34 PM Subject: [QUAD-L] phone headsets Hi All, I'm in the market for a wireless headset for my existing house phone. Which ones are comfortable and under $50 Bobbie ---End Message---
[QUAD-L] pain management
Hi All, I'm going for pain management, but first I have to go talk to a psychologist. I want to know from an of you out there who have gone through this; what should I say and what shouldn't I say in order to get some pretty strong pain medication for my syrinx pain? I had an MRI back in 2005 which diagnosed my with a syrinx then just a few weeks back had a second MRI on my neck to find my syrinx is much larger-hence more intense pain, so much pain I am no longer driving. Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
[QUAD-L] pain management - again from Bobbie
I forgot to mention what pain meds I'm taking now; late afternoon darvaset around 8:30 Hydrocodone around 3:00am soma and valuim 10 mg every night I've only started taking this much this often in the past few weeks so I can sleep, my GP told me to o this and it is helping.Bobbie
[QUAD-L] phone headsets
Hi All, I'm in the market for a wireless headset for my existing house phone. Which ones are comfortable and under $50 Bobbie
[QUAD-L] Anybody with a cyst on thir neck?
Hi All, The cyst on my neck, syrinx, is getting worse - I can't drive out of town anymore. My arm falls asleep at night and the pain is bad. I take 500mgs of Gabapentin for the nerve pain and perkiest, Hydrocodone and soma for just good old pain. You know I was doing fine with the not walking thing, it's all this secondary crap that's the toughest.Bobbie
[QUAD-L] I got fingerprinted - not
Hi All, Anybody here ever get fingerprinted since your accident? I started a summer job at a center where some of the students are developmentally disabled. I am an assistant meditation instructor to 12 students with physically disabilities but have to be fingerprinted nevertheless. My finger are curled up so the only prints they could attempt were my thumbs, but I very rarely use my left thumb so it had no raised ridges - no print, they could only get my right thumb. Bobbie
Re: [QUAD-L] I got fingerprinted - not
I wrote this poem a few years ago; We lock our homes We lock our Churches We lock out cars We lock our schools We lock out work places Land of the free Home of the brave?Bobbie Humphreys
Re: [QUAD-L] How about the 10 most wonderful things people do to or for peopl...
I love it when a woman straddles me and sits on my lap up and personal, good times. My brother is the ONLY person who dose this when he gives me a hug and I haven't seen him in a lng time - he lives in FL me in NJ
Re: [QUAD-L] How about the 10 most wonderful things people do to or for peopl...
Whenever I'm getting in to my van 9 X's out of 10 someone asks me if I need any help. Bobbie
[QUAD-L] I sent a news paper article about me my Labyrinth
Hi All, The previous email I sent. Bobbie
[QUAD-L] Mother's in-law and other family reactions
The hand puppet I can't match - pun intended. My Mother in-law's intention, or explanation, was I thought Pete could work it for you Pete and I had been dating about one month before I met her, that night when I saw him he started crying. He said My Mother doesn't want me to see you anymore Pete was 31 My immediate question was Well, do you want to keep seeing me? he said Yes, of course I told him plainly Well then keep seeing me Pete who NEVER went against his Mother's wishes said All right I will we've been happily together 28 years. Bobbie
Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs
I don't like it when people saw to me What a shame, your so pretty Is this a complement? For Christmas one year I got a hand puppet!! Bobbie
[QUAD-L] 37 years today
Hello my beloved comrades, I'd like to take this opportunity to thank each and every one of you for being there whenever I need to vent or get information and advice. I'm dam proud of us all as well, this quad stuff is not for the faint of heart. ** Greg ** thank YOU for this list of special people. Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
[QUAD-L] *clicking* chairs WHY - WHY - WHY???????????
Anybody, I have a 41/2 year old storm series Action power chair. When I ordered it, the very FIRST thing I asked was Which chair can I order won't click every time I move? Question; can I get my repair chair people to turn off this clicking? I understand the clicking has something to do with a magnet so the chair won't go backwards when I'm going forward, or something like that. Am I right? Bobbie
[QUAD-L] bad shoulder pain
I have osteoarthritis (arthritis in my shoulder) and chronic tendentious in my shoulder. I saw an orthopedist today and all he did was write me two RX's for PT, OT and pain management. I can't put a coat or sweater any more as of mid-February or brush the back of my hair. Anybody else have anything like this? Bobbie
[QUAD-L] reaching greeting cards
Hi All, I see my sister Bobbie had sent a message through you about SendOutCards. I also think it was very prudent of you to add your insight to the fact that other choices are available. It shows you do watch what is being passed around and that you care about the content and make positive comments and suggestions. That being said I am excited to ask you to please go to _http://www.garysueh.com/_ (http://www.garysueh.com/) (that is Gary Susan Humphreys) and send a couple of cards (pre-paid with the stamp) on us. Then you will see the competitive difference first hand. We have a fully functional contact management system (put names in one time, even from an excel spread sheet) with birthday and anniversary reminders. We print a high quality card with pictures, address it, seal it, put it in a real envelope, with a real postage stamp and take it to the PO. As you mentioned some of the web based programs you have to print it yourself (it you have a color printer of quality available), fold it, address it, seal it, stamp it and get it to the postman. Hardly compares to what we do. Most of the other companies that will print you a quality card have a minimum set you must buy, then pay the shipping back to you and you have to get them ready for the mail. Average cost $3.37 Now I just got off the latest Hallmark site. They will print a high quality card with editing capabilities and mail it for you with what they call a free stamp for $3.49. Our cost is $1.42 (card .98 + stamp .44) with the stamp or less, depending on volume. go to _http://www.hallmark.com/_ (http://www.hallmark.com/) , or _http://www.shutterfly.com/_ (http://www.shutterfly.com/) or _http://www.walgreens.com/_ (http://www.walgreens.com/) or others see for yourself. Then go to our site and send a couple of trial cars on us. Send one back to someone you care about and can see the card for yourself. I am more than willing to spend $2.84 so you can send 2 cards and see it first hand. By the way when you put in the address don't forget to hit Create new contact manager entry. That way you will never have to type in that address again. Try it, you'll like it. -- Thanks, Gary Humphreys SendOutCards Distributor
[QUAD-L] I'm not sure what to do
Hi All, My shoulder hurt like crazy. My rehab Doc said it was tendoninitus(sp) and gave me a pain patch - it helped a little. I couldn't stand the pain any more so I went to my GP he ordered x-rays which showed chronic tendonitius(sp) arthritis in the shoulder and bone spurs. I'm going Thursday to an Ortopitic(sp) to see if he can help. Tuesday I have a follow-up with my rehab Doc so I can get a 2nd opinion. Anybody else out there with any of the above? Bobbie
[QUAD-L] Reaching greeting cards
Hi All, I don't know about you but I love sending greeting cards in the mail (and getting them) but it's almost impossible to look at the cards in a store. I either get a kind person to help or ask someone who works there to help me find a card. What do you guys do? Do you not send cards because it's to hard to look at and reach the cards? Bobbie
Re: [QUAD-L] Reaching greeting cards
I think both Hallmark and American Greetings [and probably others] have Websites that allow you to browse greetings cards and then print them at your desk. There is a fee to use these services. I've just learned about a great company Send Out Cards that is just great. If you type _www.GarySueH.com_ (http://www.GarySueH.com) you will get a link to my brother Gary. I love these cards, you can look at them online and if you read a verse you don't like - you can write whatever you want. There is a free trial, send a card to your self so you can see the quality. And if you have ANY questions my brother answers the phone and will talk you through it till you get the hang of it. At first I thought it was to expensive but then I found out that you can put in only the amount you want to spend and not the deals their trying to sell you. Give it a try, the first card is free.Bobbie
[QUAD-L] Going from rear wheel drive to center wheel or vice versa
How many people here have gone from rear wheel drive to center wheel drive or vice versa? How was it better or worse? I now have rear wheel and am seriously considering ordering center wheel for my next power chair. I live in a tiny 400 square foot apartment and I think center wheel will be easier for me to get around. One more question; can i get a center wheel drive that is absolutely silent that won't *click* every time I make a move? What kind of chair would that be and what model? Thanks in advance for your help, Bobbie
Re: [QUAD-L] Dizzy?
I get real dizzy when I'm being turned to get dressed and when i first sit up long sitting in bed. i do NOT want to take any more pills. ~ Bobbie
Re: [QUAD-L] Dizzy?
stomach binder I use to wear one but now I have a stoma~ Bobbie
[QUAD-L] How much is too much pain?
Hi All, My pain has gotten so bad that I'm having trouble sleeping. I went to my rehab Dr. at Kessler and she prescribed me Flector Patch to put on my shoulder where I tore a tendon between my bicep and shoulder and she also said ...try not to use that arm so it can heal. My neck also has been nasty bad with pain, I guess, from my srynix which she suggested I have a shunt implanted. I tried the patch on my neck and it did seem to help - I'm going to end up being covered with patches all the way around my neck. But I do NOT want surgery on my neck - hell no! I already take Methocarbamol, perkiest, Hydrocodone and now this patch, but I NEVER take more that two at the same time. I started meditating more often for pain control. In New Jersey a law was passed to legalize marijuana for medical use but it isn't implemented yet. My pain has been getting progressively worse every year and in April it will be 37 years. I'm scared of what is around the conner - how bad can it get? How do ya'll deal with your pain?~ Bobbie
[QUAD-L] Who's falt was my broken neck - you be the judge
Hi all, Here is the story of how I had my accident. Bobbie After lunch in Denville at Bond’s Ice Cream polor, we dropped my mom off. When she closed the door to the van, she leaned her head in, pointed at the dirt-bike tied up in the back and said “I don’t want you riding that thing” I told her “ OK, I won’t” The thought actually hadn’t crossed my mind, because a few month prior I had tried to ride the very same bike in Eddie’s driveway, but ended up crashing it into their garage. Once we got to the make shift “track” Eddie unloaded to van. We could hear and periodical see a young 12 year old boy riding his small dirt bike too as he buzzed around the track. Eddie put his helmet on and hopped on his brother’ s bike, started it up immediately and took off. I watched as he did “donunts” which is spinning the bike around in circles leaving the front tire in one place. Then he would go way up a large mound of dirt that had been plowed up high by bulldozer’s who were clearing the land of it’s corn fields, making it ready for a new office building complex. Eddie would also make the bike ride on just the back wheel and sometimes stand on the seat while the bike was moving. Tired and exhilarated Eddie stopped right next to me very quickly and asked “Do you want to give it a try, it’s fun”? I told him a few times that I really didn’t want to, without giving him any reason. Finally I just blurted out “For once I want to do something my mother told me to do” He wouldn’t hear of it. I remember him saying at one time “You know you want to” Eddie said as he was strapping on his sweaty helmet. Next thing I remember I was sitting on the 250 Kawasaki wearing my ped sneakers, jeans and a short sleeved blue shirt I bowered from my brother Gary, while he was away in Korea with the Army. Eddie explained to me again how to control the dirt bike. “…turn this to give the bike gas, squeeze here for the break, keep your feet up” “See it’s easy and there’s nothing around here for you to run into” Reminding me teasingly of my crash into his family’s garage in Newark. I played around with the bike to get a feel of how it would handle on the dirt. At one point I accidentally went over a small clump of packed down earth, a bump. The bike lifted off the ground slightly. I loved the feeling and asked Eddie how I could do that jump higher and faster? He explained “When the front wheel of the bike hits the bump, give the bike all the gas and lift the handle bars up at the same time” I decided to back up a little bit so I could build up more speed. I distinctly remember looking up at the sky and at my watch, it was 4:15 and looked like it was going to rain soon. I told myself ‘I’ll just try this once because I need to get back home to pick up my sister DeeDee from her girlfriends house and bring my other sister Patti’s girlfriend back to her own house before dinner. I had promised my mom that I would do that for her today. My eyes were fixed on the jump and I was determined to do this right. As the bike picked up quite a bit of speed I saw the front wheel hit the jump, so I twisted the throttle with my left hand aggressively, giving the bike all the power it had, just like Eddie said. Immediately I realized that I had forgotten a very important step in doing a proper jump. I didn’t lift the handle bars up. I got so excited about building up good speed and timing the gas with hitting the bump, that I just totally forgot about the handlebars. This can’t be good, I thought. At that second, everything began moving in slow motion even though I had built up enough speed to fly through the air at 30 mph. Some how I instinctively knew what exactly was going to happen, actually one of two things, I just didn’t know yet which was going to prove to be true. I was going to crash and break my neck and be killed or be paralyzed for life. The bike dropped away from me and fell the ground and I continued through the air like a rocket headed for the large 25 foot high mound of dirt. I hit dead head on, my chin went into my chest and I fell to the ground like a rag doll, resting on my left side in a fetal position. I opened my eyes and saw only dirt, I thought I was dead and buried; this is what it was like to die. Just then Eddie turned me over onto my back. “Are you alright”? he asked nervously. Realizing I wasn’t dead, I calmly answered “No, I broke my neck” “How do you know that”? he asked confused “Because I can’t move” I stated as a matter of fact. “Did you try to move”? he was getting annoyed now “No” I told him “Well try” he demanded I looked over at my right arm which was now lying outstretched away from my body seemingly unattached, I concentrated on moving it with all my might. But it only moved about a half an inch. “That’s it” I said to Eddie Just then the 12 year old boy who
[QUAD-L] A project I worked over the summer
Hi all, I've kept meaning to tell you about a project that came to fruition this past summer. I built a wheelchair accessible labyrinth in one of my town's parks. It is 60 feet in diameter painted on flat black top sandwiched between a rather large picnic area with a provillion and a public 18 hole golf course. For those of you who may not be sure what a labyrinth is - it is sometimes confused with a maze. A Maze is built to confuse by having dead ends also your not to see the center, where a labyrinth is never confusing - there is one way in and one way out with no dead ends - and you can always see the center. The reason for a labyrinth is for meditation or prayer that a person walking/rolling would do all you walk the labyrinth, mine takes about 15 minutes to complete. In September when it was finished I had a candle lit walk a sunset with about 12 people from 5 to 84 years old. If you'd like to see what it looks like google labyrinth locator then type my zip code 07054 and a picture will come up along details of my Lenape Labyrinth. ~ Bobbie
Re: [QUAD-L] New Chair?
Hopefully soon I can qualify for a new chair. Greg, Start NOW making a list, literally, of things you want for your new chair - right down to the size of the foot plates, arm rest size EVERYTHING. ~ Bobbie
[QUAD-L] can't visit family - not accessable
Pete just left to go visit his/my family, can't get in to the house - I've them all over 27 years. This CRAP hurts a LOT!! I'm crying as I'm typing ~ Bobbie
Re: [QUAD-L] Scoliosis +
Bobbie, are you incomplete or a complete injury? How many years post and on what level C./4? Do you deal with pain? Mine is through the roof! I am complete C 4,5,6,7 36 years post, I deal with my pain by limiting my hours in the chair averaging 8 hrs per day and taking three different types of pain meds - perkiest (sp) soma, Hydrocodone. I don't take then all at the same time, I take different ones according to my pain level at the time and of course the weather here in New Jersey. I also have a syrinx at C 5 that is a worse pain than my scoliosis - sometimes. Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I don't get the flu shot or breast exams or uro exams or any other preventive health exams because I don't want to prolong my life as a quad. I'm grateful to you guys to talk to and hear what you have to say. Happy New Year! ~ Bobbie
[QUAD-L] SCI, death depression
If you want to die, you need some help. Depression is also very painful. I know. I have had it, and see the other side. Please take care of yourself and your depression, and look to see what meds or other depression treatment you can have to live a long quality of life... Okay? What is wrong with death, it's a part of life? I'm not depressed, I've been depressed and I know what it's like - even when I was depressed I never took medication because it was not going to change the situation. I have SO much to be grateful for - my apartment, my husband, my van AND the ability to drive, many friends family. I'm just so very tired of 36 years of waking up as a quad period. ~ Bobbie
[QUAD-L] Correction regarding the movie Avatar
Hi All, I told you about the movie Avatar and mentioned that it cost $300,000 to make it really cost $300,000,000 - $300 million the most expensive movie ever made. ~ Bobbie
Re: [QUAD-L] Scoliosis
Does anyone else out there have scoliosis -- curvature of the spine? I do Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
[QUAD-L] The movie Avatar a para has the lead
Hi Everybody, Go see the movie Avatar it is AMAZING. It's shown in 3D and the special effects are just outstanding. It's 2 hrs 45 mins long but went by very quickly. The lead guy is a para in a manual w/c I think from a war injury because he is still a marine and with a unit was sent to a futuristic lab that he is filling in for his twin brother. The main story line is he, and others, are placed in capsule like chambers where while they sleep are put in to a body of people from another planet, of course when he goes to the other planet in the sleep chamber he is walking, to learn as much as he can about them. It cost over $300,000 to make this movie, James Cameron (Titanic) wrote and directed it. I highly recommend going to see this movie but if you have any problems with motion sickness, don't go. ~ Bobbie
Re: [QUAD-L] Merry Christmas from Oklahoma
My dad wanted to drive me, son wanted to put me in manual chair and transfer me in/out of pickup...just not worth the risk! Hoping they forgive me and understandwe're in a blizzard! If they don't, we do. Merry Christmas Everybody from New Jersey
[QUAD-L] Merry Christmas From New Jersey
Merry Christmas everybody My brother in-law, my husband Pete's brother, is coming over tomorrow - we'll go out to eat at a dinner then come back to our place and open gifts. I wish you all a happy and healthy New Years2010 ~ Bobbie Pete Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
