Re: [QUAD-L] Baclofen q's....
Thanks to all of you who responded!
I shall talk to my doc to see if I should just stick with the diazepam; it
works good, it just makes a not so old grumpy man at times.
I shouldn't say grumpy; just a little edgy (at times, not always), it is
probably the half life.
Tim c5-c6
www.geocities.com/onemofortom
WhoopieKat.com
--- On Mon, 1/26/09, Wendy w...@ptd.net wrote:
From: Wendy w...@ptd.net
Subject: Re: [QUAD-L] Baclofen q's
To: onemofor...@yahoo.com
Date: Monday, January 26, 2009, 4:14 AM
xanax kills your nerve endings so i take the diazapam
- Original Message -
From: t crook
To: quad-list@eskimo.com ; dav...@aol.com
Sent: Wednesday, January 21, 2009 12:19 PM
Subject: Re: [QUAD-L] Baclofen q's
I take the daizapam just PRN; maybe 5 to 10 milligrams every other night (but
not always), the opposite night of my 2 beers (which is the night before my
bowel program). I tend to just deal with the spasms as well; I guess I was
looking for a better alternative to the diazapam, it makes me grumpy. The only
other drugs right now is Midodrine for low blood pressure, and of course the
suppository every other day.
~peace~
Tim
www.geocities.com/onemofortom
WhoopieKat.com
--- On Wed, 1/21/09, dav...@aol.com dav...@aol.com wrote:
From: dav...@aol.com dav...@aol.com
Subject: Re: [QUAD-L] Baclofen q's
To: quad-list@eskimo.com
Date: Wednesday, January 21, 2009, 11:07 AM
my wife told me that none of the three, valium, baclofin, or diazepam actually
stopped my spasms - they just helped me sleep through them. I slept a LOT
while on those drugs - sometimes in bed, sometimes sitting up at my desk. I
have tried Mirapex since and find it provides me some relief although I think
it also causes me some anxiety attacks in the middle of the night. hardly as
good trade. now I pretty much go without drugs and just live with the spasms
- which are not nearly as bad as some I've read about here. beer kills my
spasms pretty well and flush out my kidneys - a win / win in my book.
azdave
Take the world in a love embrace
Fire all of your guns at once
And explode into space
DAVEOCONNELL.COM
In a message dated 1/21/2009 9:37:07 A.M. US Mountain Standard Time,
onemofor...@yahoo.com writes:
OT and PT did help me out quite a bit; of course you have to want to to begin
with, both the patient and therapist. I remember thinking OT was just
senseless; but I soon realized that I like to eat, cook and be as independent
as possible, and that is what I learned in OT. 20 yrs. later on a cold January
afternoon; I will be chopping some ice and snow away from the grill so I can
cook some t-bones, and take advantage of the sunshine with our heat-wave of 30
degrees woohoo!
BTW- I have a tenadisis (spelling may not be correct) grip; so basically my
grip is poor at best, I'm all thumbs but can getr' done.
~peace~
Tim c5-c6
www.geocities.com/onemofortom
WhoopieKat.com
--- On Tue, 1/20/09, NICOLE IRIZARRY imsweet1...@hotmail.com wrote:
From: NICOLE IRIZARRY imsweet1...@hotmail.com
Subject: RE: [QUAD-L] Baclofen q's
To: wheelch...@aol.com, tiffany51...@yahoo.com, dav...@aol.com
Cc: quad-list@eskimo.com
Date: Tuesday, January 20, 2009, 8:48 PM
#yiv385481161 #yiv400741032 #yiv1276393081 .hmmessage P {
PADDING-RIGHT:0px;PADDING-LEFT:0px;PADDING-BOTTOM:0px;MARGIN:0px;PADDING-TOP:0px;}
#yiv385481161 #yiv400741032 #yiv1276393081 {
FONT-SIZE:10pt;FONT-FAMILY:Verdana;}
Hello everyone I am an occupational therapy student also just like marie and
tiffany hi guys we actually go to school. To answer the question whats the
difference between OT and PT is OT wants you and tries to help you reengage in
your prior occupations like school, work, selfcare. We even care about the past
lesuire activites that interest our clients. Pt wants you to build strength and
stamina, however, getting you back into your roles as a student, parent,
husband or wife etc... is not their complete comcern. In OT its the basis of
all our intereventions. does that help? what do you think girls.
From: wheelch...@aol.com
Date: Tue, 20 Jan 2009 20:53:06 -0500
Subject: Re: [QUAD-L] Baclofen q's
To: tiffany51...@yahoo.com; dav...@aol.com
CC: quad-list@eskimo.com
Welcome Ladies,
While you are both here, care to let us all know the difference between an OT
and a PT, education and your technical services offered to your clients when
you graduate..
Best Wishes
In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time,
tiffany51...@yahoo.com writes:
Hello everyone I am an occupational therapy student also just like marie hi
marie we actually go to school together. Well all those little activities that
the ot made u do helped regain fine motor control which enables you to engage
in occupations that require you to use your fine motor skills I hope this
helps!!! If not let me know if u need more information we are here to help each
other learn Tiffany
Sent from
Re: Re: [QUAD-L] Baclofen q's....
Yeah me too- it probably didn't help all of those years I felt invincible, and lived that way. Some live and learn, some just live, I may have takin' the long way around the block but I'm learnin'! Tim c5-c6 www.geocities.com/onemofortom WhoopieKat.com --- On Mon, 1/26/09, Wendy w...@ptd.net wrote: From: Wendy w...@ptd.net Subject: Re: Re: [QUAD-L] Baclofen q's To: onemofor...@yahoo.com Date: Monday, January 26, 2009, 4:07 AM no kiddin i take a beatin myself - Original Message - From: t crook To: q-list Sent: Wednesday, January 21, 2009 11:09 AM Subject: Fw: Re: [QUAD-L] Baclofen q's Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I wonder how much all of the AD wear-n'-tear through the years has had on my heart/other organs? ~Peace~ Tim c5-c6 WhoopieKat.com --- On Tue, 1/20/09, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Baclofen q's To: Steve White ste...@pinetel.com, quad-list@eskimo.com Date: Tuesday, January 20, 2009, 9:03 PM AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White ste...@pinetel.com wrote: From: Steve White ste...@pinetel.com Subject: Re: [QUAD-L] Baclofen q's To: alcibiat...@yahoo.com Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White - Original Message - From: John S. To: quad-list@eskimo.com Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Re: [QUAD-L] Baclofen q's....
Ot looks at the whole indvidual not jus there disability Sent from my iPod On Jan 20, 2009, at 8:53 PM, wheelch...@aol.com wrote: Welcome Ladies, While you are both here, care to let us all know the difference between an OT and a PT, education and your technical services offered to your clients when you graduate.. Best Wishes In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time, tiffany51...@yahoo.com writes: Hello everyone I am an occupational therapy student also just like marie hi marie we actually go to school together. Well all those little activities that the ot made u do helped regain fine motor control which enables you to engage in occupations that require you to use your fine motor skills I hope this helps!!! If not let me know if u need more information we are here to help each other learn Tiffany Sent from my iPod On Jan 20, 2009, at 1:33 PM, dav...@aol.com wrote: when i was in o.t. in '67, they helped me work on regaining fine motor control - picking up pennys, determining objects in a bag, building a little coffee table, .. none of which was very 'occupational'. can you share with us what the current objectives in giving o.t. to recovering sci patients? i'm sure a lot of us would be glad to share ideas on the subject. azdave -Original Message- From: Marie Dornbush mariedor...@gmail.com To: emma_wolf2...@yahoo.com Cc: quad-list@eskimo.com Sent: Mon, 19 Jan 2009 9:14 pm Subject: Re: Fw: [QUAD-L] Baclofen q's Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray emma_wolf2...@yahoo.com wrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com A Good Credit Score is 700 or Above. See yours in just 2 easy steps! A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
Fw: Re: [QUAD-L] Baclofen q's....
Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I wonder how much all of the AD wear-n'-tear through the years has had on my heart/other organs? ~Peace~ Tim c5-c6 WhoopieKat.com --- On Tue, 1/20/09, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Baclofen q's To: Steve White ste...@pinetel.com, quad-list@eskimo.com Date: Tuesday, January 20, 2009, 9:03 PM AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White ste...@pinetel.com wrote: From: Steve White ste...@pinetel.com Subject: Re: [QUAD-L] Baclofen q's To: alcibiat...@yahoo.com Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White - Original Message - From: John S. To: quad-list@eskimo.com Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
RE: Re: [QUAD-L] Baclofen q's....
I wonder @ this too! _ From: t crook [mailto:onemofor...@yahoo.com] Sent: Wednesday, January 21, 2009 11:10 AM To: q-list Subject: Fw: Re: [QUAD-L] Baclofen q's Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I wonder how much all of the AD wear-n'-tear through the years has had on my heart/other organs? ~Peace~ Tim c5-c6 http://www.whoopiekat.com/ WhoopieKat.com --- On Tue, 1/20/09, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Baclofen q's To: Steve White ste...@pinetel.com, quad-list@eskimo.com Date: Tuesday, January 20, 2009, 9:03 PM AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White ste...@pinetel.com wrote: From: Steve White ste...@pinetel.com Subject: Re: [QUAD-L] Baclofen q's To: alcibiat...@yahoo.com Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White - Original Message - From: John S. mailto:alcibiat...@yahoo.com To: quad-list@eskimo.com Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861 http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=422 6723src=news cl=11605466ch=4226723src=news Tim c5 c6 http://www.whoopiekat.com/ WhoopieKat.com
RE: [QUAD-L] Baclofen q's....
OT and PT did help me out quite a bit; of course you have to want to to begin
with, both the patient and therapist. I remember thinking OT was just
senseless; but I soon realized that I like to eat, cook and be as independent
as possible, and that is what I learned in OT. 20 yrs. later on a cold January
afternoon; I will be chopping some ice and snow away from the grill so I can
cook some t-bones, and take advantage of the sunshine with our heat-wave of 30
degrees woohoo!
BTW- I have a tenadisis (spelling may not be correct) grip; so basically my
grip is poor at best, I'm all thumbs but can getr' done.
~peace~
Tim c5-c6
www.geocities.com/onemofortom
WhoopieKat.com
--- On Tue, 1/20/09, NICOLE IRIZARRY imsweet1...@hotmail.com wrote:
From: NICOLE IRIZARRY imsweet1...@hotmail.com
Subject: RE: [QUAD-L] Baclofen q's
To: wheelch...@aol.com, tiffany51...@yahoo.com, dav...@aol.com
Cc: quad-list@eskimo.com
Date: Tuesday, January 20, 2009, 8:48 PM
#yiv1276393081 .hmmessage P
{
margin:0px;padding:0px;}
#yiv1276393081 {
font-size:10pt;font-family:Verdana;}
Hello everyone I am an occupational therapy student also just like marie and
tiffany hi guys we actually go to school. To answer the question whats the
difference between OT and PT is OT wants you and tries to help you reengage in
your prior occupations like school, work, selfcare. We even care about the past
lesuire activites that interest our clients. Pt wants you to build strength and
stamina, however, getting you back into your roles as a student, parent,
husband or wife etc... is not their complete comcern. In OT its the basis of
all our intereventions. does that help? what do you think girls.
From: wheelch...@aol.com
Date: Tue, 20 Jan 2009 20:53:06 -0500
Subject: Re: [QUAD-L] Baclofen q's
To: tiffany51...@yahoo.com; dav...@aol.com
CC: quad-list@eskimo.com
Welcome Ladies,
While you are both here, care to let us all know the difference between an OT
and a PT, education and your technical services offered to your clients when
you graduate..
Best Wishes
In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time,
tiffany51...@yahoo.com writes:
Hello everyone I am an occupational therapy student also just like marie hi
marie we actually go to school together. Well all those little activities that
the ot made u do helped regain fine motor control which enables you to engage
in occupations that require you to use your fine motor skills I hope this
helps!!! If not let me know if u need more information we are here to help each
other learn Tiffany
Sent from my iPod
On Jan 20, 2009, at 1:33 PM, dav...@aol.com wrote:
when i was in o.t. in '67, they helped me work on regaining fine motor control
- picking up pennys, determining objects in a bag, building a little coffee
table, .. none of which was very 'occupational'. can you share with us
what the current objectives in giving o.t. to recovering sci patients? i'm
sure a lot of us would be glad to share ideas on the subject.
azdave
-Original Message-
From: Marie Dornbush mariedor...@gmail.com
To: emma_wolf2...@yahoo.com
Cc: quad-list@eskimo.com
Sent: Mon, 19 Jan 2009 9:14 pm
Subject: Re: Fw: [QUAD-L] Baclofen q's
Hi Everyone! I'm new to this group. I am currently studying to become an
Occupational Therapist. I just wanted to introduce myself, and see your
perspectives. Let me know if you have any questions about occupational therapy
and I would be happy to answer. I'm very interested in what everyone has to
say.
-Mare, OTS
On Mon, Jan 19, 2009 at 1:51 PM, andrea murray emma_wolf2...@yahoo.com wrote:
Hi, Yes I took baclofen for a long time when I was in High School. I have CP
and the doctor I was seeing then was for the drug for people with CP. In 1993 I
broke my neck and the had to go off it. I didn't have any side effect. In away
I wish I was back on it, because I have really bad -muscle spasms..
Wheelchair Warrior
-- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote:
From: t crook onemofor...@yahoo.com
Subject: [QUAD-L] Baclofen q's
To: q-list quad-list@eskimo.com
Date: Monday, January 19, 2009, 1:29 PM
I would like to know who uses baclofen and the side effects you experience;
like hypotension (which I already suffer from), or any side effects. I took
this drug right after my accident in '88, but that was 20 yrs. ago and my
memory did not log any recollection of the side effects.
Below is a news link; a doctor claims it worked for his addiction to alcohol,
it got me thinking of changing my spasm medicine. I do not suffer from alcohol
addiction; but I take diazapam for spasms, and was going to talk to my doc
about baclofen for the spasms. I was just recently diagnosed with inherited
Cardiomyopathy; so I was wondering about any cardio side effects as well, which
I
RE: Re: [QUAD-L] Baclofen q's....
I HAD AD ABOUT 2 WEEKS AGO AND NEVER FOUND OUT WHAT CAUSED IT,,IT WAS THE FIRST TIME I HAD IT IN ABOUT A YEAR. I SUSPECT I MAY HAVE A UTI--BUT I'M SCHEDULED TO GET A SET OF MRI'S ON FRIDAY DUE TO INCREASING BACK PAIN AND PROBLEMS DUE TO SYRINX AND OR INCREASING NERVE DAMAGE. THEY INTEND TO USE DYE'S DURING THE MRI'S---DOES ANYONE KNOW IF THIS CAN BE BAD TO HAVE DONE WHILE HAVING A UTI? THE PAIN IS MAKING MY SPASMS WORSE--I DON'T THINK I CAN MAKE IT THRU TWO SEPERATE 45 MIN. MRI RUNS...THEY WANT THE NECK-CERVICAL AND MID-BACK- THORASIC--I ALWAYS THOUGHT AN MRI COULD DO IT ALL IN ONE RUN ? DAN H. --- On Wed, 1/21/09, Elizabeth Treston missl...@optonline.net wrote: From: Elizabeth Treston missl...@optonline.net Subject: RE: Re: [QUAD-L] Baclofen q's To: onemofor...@yahoo.com, 'q-list' quad-list@eskimo.com Date: Wednesday, January 21, 2009, 10:23 AM I wonder @ this too! From: t crook [mailto:onemofor...@yahoo.com] Sent: Wednesday, January 21, 2009 11:10 AM To: q-list Subject: Fw: Re: [QUAD-L] Baclofen q's Yeah- 20 yrs. of this quad life-style, I have had my share of AD episodes. I wonder how much all of the AD wear-n'-tear through the years has had on my heart/other organs? ~Peace~ Tim c5-c6 WhoopieKat.com --- On Tue, 1/20/09, John S. alcibiat...@yahoo.com wrote: From: John S. alcibiat...@yahoo.com Subject: Re: [QUAD-L] Baclofen q's To: Steve White ste...@pinetel.com, quad-list@eskimo.com Date: Tuesday, January 20, 2009, 9:03 PM AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White ste...@pinetel.com wrote: From: Steve White ste...@pinetel.com Subject: Re: [QUAD-L] Baclofen q's To: alcibiat...@yahoo.com Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White - Original Message - From: John S. To: quad-list@eskimo.com Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Re: [QUAD-L] Baclofen q's....
my wife told me that none of the three, valium, baclofin, or diazepam actually stopped my spasms - they just helped me sleep through them. I slept a LOT while on those drugs - sometimes in bed, sometimes sitting up at my desk. I have tried Mirapex since and find it provides me some relief although I think it also causes me some anxiety attacks in the middle of the night. hardly as good trade. now I pretty much go without drugs and just live with the spasms - which are not nearly as bad as some I've read about here. beer kills my spasms pretty well and flush out my kidneys - a win / win in my book. azdave Take the world in a love embrace Fire all of your guns at once And explode into space _DAVEOCONNELL.COM_ (http://daveoconnell.com/) In a message dated 1/21/2009 9:37:07 A.M. US Mountain Standard Time, onemofor...@yahoo.com writes: OT and PT did help me out quite a bit; of course you have to want to to begin with, both the patient and therapist. I remember thinking OT was just senseless; but I soon realized that I like to eat, cook and be as independent as possible, and that is what I learned in OT. 20 yrs. later on a cold January afternoon; I will be chopping some ice and snow away from the grill so I can cook some t-bones, and take advantage of the sunshine with our heat-wave of 30 degrees woohoo! BTW- I have a tenadisis (spelling may not be correct) grip; so basically my grip is poor at best, I'm all thumbs but can getr' done. ~peace~ Tim c5-c6 _www.geocities.com/onemofortom_ (http://www.geocities.com/onemofortom) _WhoopieKat.com_ (http://www.whoopiekat.com/) --- On Tue, 1/20/09, NICOLE IRIZARRY imsweet1...@hotmail.com wrote: From: NICOLE IRIZARRY imsweet1...@hotmail.com Subject: RE: [QUAD-L] Baclofen q's To: wheelch...@aol.com, tiffany51...@yahoo.com, dav...@aol.com Cc: quad-list@eskimo.com Date: Tuesday, January 20, 2009, 8:48 PM Hello everyone I am an occupational therapy student also just like marie and tiffany hi guys we actually go to school. To answer the question whats the difference between OT and PT is OT wants you and tries to help you reengage in your prior occupations like school, work, selfcare. We even care about the past lesuire activites that interest our clients. Pt wants you to build strength and stamina, however, getting you back into your roles as a student, parent, husband or wife etc... is not their complete comcern. In OT its the basis of all our intereventions. does that help? what do you think girls. From: wheelch...@aol.com Date: Tue, 20 Jan 2009 20:53:06 -0500 Subject: Re: [QUAD-L] Baclofen q's To: tiffany51...@yahoo.com; dav...@aol.com CC: quad-list@eskimo.com Welcome Ladies, While you are both here, care to let us all know the difference between an OT and a PT, education and your technical services offered to your clients when you graduate.. Best Wishes In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time, tiffany51...@yahoo.com writes: Hello everyone I am an occupational therapy student also just like marie hi marie we actually go to school together. Well all those little activities that the ot made u do helped regain fine motor control which enables you to engage in occupations that require you to use your fine motor skills I hope this helps!!! If not let me know if u need more information we are here to help each other learn Tiffany Sent from my iPod On Jan 20, 2009, at 1:33 PM, _dav...@aol.com_ (mailto:dav...@aol.com) wrote: when i was in o.t. in '67, they helped me work on regaining fine motor control - picking up pennys, determining objects in a bag, building a little coffee table, .. none of which was very 'occupational'. can you share with us what the current objectives in giving o.t. to recovering sci patients? i'm sure a lot of us would be glad to share ideas on the subject. azdave -Original Message- From: Marie Dornbush _mariedor...@gmail.com_ (mailto:mariedor...@gmail.com) To: _emma_wolf2...@yahoo.com_ (mailto:emma_wolf2...@yahoo.com) Cc: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Mon, 19 Jan 2009 9:14 pm Subject: Re: Fw: [QUAD-L] Baclofen q's Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray _emma_wolf2...@yahoo.com_ (mailto:emma_wolf2...@yahoo.com) wrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing
Re: [QUAD-L] Baclofen q's....
I take the daizapam just PRN; maybe 5 to 10 milligrams every other night (but
not always), the opposite night of my 2 beers (which is the night before my
bowel program). I tend to just deal with the spasms as well; I guess I was
looking for a better alternative to the diazapam, it makes me grumpy. The only
other drugs right now is Midodrine for low blood pressure, and of course the
suppository every other day.
~peace~
Tim
www.geocities.com/onemofortom
WhoopieKat.com
--- On Wed, 1/21/09, dav...@aol.com dav...@aol.com wrote:
From: dav...@aol.com dav...@aol.com
Subject: Re: [QUAD-L] Baclofen q's
To: quad-list@eskimo.com
Date: Wednesday, January 21, 2009, 11:07 AM
my wife told me that none of the three, valium, baclofin, or diazepam actually
stopped my spasms - they just helped me sleep through them. I slept a LOT
while on those drugs - sometimes in bed, sometimes sitting up at my desk. I
have tried Mirapex since and find it provides me some relief although I think
it also causes me some anxiety attacks in the middle of the night. hardly as
good trade. now I pretty much go without drugs and just live with the spasms
- which are not nearly as bad as some I've read about here. beer kills my
spasms pretty well and flush out my kidneys - a win / win in my book.
azdave
Take the world in a love embrace
Fire all of your guns at once
And explode into space
DAVEOCONNELL.COM
In a message dated 1/21/2009 9:37:07 A.M. US Mountain Standard Time,
onemofor...@yahoo.com writes:
OT and PT did help me out quite a bit; of course you have to want to to begin
with, both the patient and therapist. I remember thinking OT was just
senseless; but I soon realized that I like to eat, cook and be as independent
as possible, and that is what I learned in OT. 20 yrs. later on a cold January
afternoon; I will be chopping some ice and snow away from the grill so I can
cook some t-bones, and take advantage of the sunshine with our heat-wave of 30
degrees woohoo!
BTW- I have a tenadisis (spelling may not be correct) grip; so basically my
grip is poor at best, I'm all thumbs but can getr' done.
~peace~
Tim c5-c6
www.geocities.com/onemofortom
WhoopieKat.com
--- On Tue, 1/20/09, NICOLE IRIZARRY imsweet1...@hotmail.com wrote:
From: NICOLE IRIZARRY imsweet1...@hotmail.com
Subject: RE: [QUAD-L] Baclofen q's
To: wheelch...@aol.com, tiffany51...@yahoo.com, dav...@aol.com
Cc: quad-list@eskimo.com
Date: Tuesday, January 20, 2009, 8:48 PM
#yiv400741032 #yiv1276393081 .hmmessage P
{
margin:0px;padding:0px;}
#yiv400741032 #yiv1276393081 {
font-size:10pt;font-family:Verdana;}
Hello everyone I am an occupational therapy student also just like marie and
tiffany hi guys we actually go to school. To answer the question whats the
difference between OT and PT is OT wants you and tries to help you reengage in
your prior occupations like school, work, selfcare. We even care about the past
lesuire activites that interest our clients. Pt wants you to build strength and
stamina, however, getting you back into your roles as a student, parent,
husband or wife etc... is not their complete comcern. In OT its the basis of
all our intereventions. does that help? what do you think girls.
From: wheelch...@aol.com
Date: Tue, 20 Jan 2009 20:53:06 -0500
Subject: Re: [QUAD-L] Baclofen q's
To: tiffany51...@yahoo.com; dav...@aol.com
CC: quad-list@eskimo.com
Welcome Ladies,
While you are both here, care to let us all know the difference between an OT
and a PT, education and your technical services offered to your clients when
you graduate..
Best Wishes
In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time,
tiffany51...@yahoo.com writes:
Hello everyone I am an occupational therapy student also just like marie hi
marie we actually go to school together. Well all those little activities that
the ot made u do helped regain fine motor control which enables you to engage
in occupations that require you to use your fine motor skills I hope this
helps!!! If not let me know if u need more information we are here to help each
other learn Tiffany
Sent from my iPod
On Jan 20, 2009, at 1:33 PM, dav...@aol.com wrote:
when i was in o.t. in '67, they helped me work on regaining fine motor control
- picking up pennys, determining objects in a bag, building a little coffee
table, .. none of which was very 'occupational'. can you share with us
what the current objectives in giving o.t. to recovering sci patients? i'm
sure a lot of us would be glad to share ideas on the subject.
azdave
-Original Message-
From: Marie Dornbush mariedor...@gmail.com
To: emma_wolf2...@yahoo.com
Cc: quad-list@eskimo.com
Sent: Mon, 19 Jan 2009 9:14 pm
Subject: Re: Fw: [QUAD-L] Baclofen q's
Hi Everyone! I'm new to this group. I am currently studying to become an
Occupational Therapist. I just wanted to introduce myself, and see your
perspectives. Let me know
Re: [QUAD-L] Baclofen q's....
when i was in o.t. in '67, they helped me work on regaining fine motor control - picking up pennys, determining objects in a bag, building a little coffee table, .. none of which was very 'occupational'. can you share with us what the current objectives in giving o.t. to recovering sci patients? i'm sure a lot of us would be glad to share ideas on the subject. azdave -Original Message- From: Marie Dornbush mariedor...@gmail.com To: emma_wolf2...@yahoo.com Cc: quad-list@eskimo.com Sent: Mon, 19 Jan 2009 9:14 pm Subject: Re: Fw: [QUAD-L] Baclofen q's Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray emma_wolf2...@yahoo.com wrote: Hi, Yes I took baclofen for a long20time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Re: [QUAD-L] Baclofen q's....
I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Re: [QUAD-L] Baclofen q's....
I have been on baclofen since I was first injured in 1995. At one time I was taking 120 mg a day and it still wasn't controlling my spasms, so they had me on that dosage plus 10 mg of Valium. Other than the side effects mentioned here, I believe it also reacts badly with alcohol, but then what type of these drugs doesn't? Over the years they lowered my baclofen level down to 80 mg, but then again I was taking 40 mg of Valium a day. Due to a problem with excessive drowsiness, they ended up lowering my Valium down to 30 mg a day, but ended up putting me on dantrelene. Now that I think about it, you inquired about baclofen. Baclofen is not always effective for everyone. There is also the issue of out quitting the drug abruptly. Here is some information I found. *Side EFFECTS: * Baclofen may cause drowsiness, weakness, dizziness, headache http://www.medicinenet.com/script/main/art.asp?articlekey=20628, seizures, nausea, vomiting, low blood pressure, constipationhttp://www.medicinenet.com/script/main/art.asp?articlekey=331, confusion, respiratory depression, inability to sleephttp://www.medicinenet.com/script/main/art.asp?articlekey=6177, and increased urinary frequency or urinary retention. Abrupt discontinuation of oral baclofen may cause seizures and hallucinations. Abrupt discontinuation of intrathecal baclofen may result in high fever, rebound spasticity, muscle rigidity, and rhabdomyolysis (muscle breakdown) that can progress to failure of several organs, including the kidney, and even death. Q On Mon, Jan 19, 2009 at 1:29 PM, t crook onemofor...@yahoo.com wrote: I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com http://www.whoopiekat.com/ -- Quadius C2-3 incomplete 13 years post injury
Re: [QUAD-L] Baclofen q's....
Hello everyone I am an occupational therapy student also just like marie hi marie we actually go to school together. Well all those little activities that the ot made u do helped regain fine motor control which enables you to engage in occupations that require you to use your fine motor skills I hope this helps!!! If not let me know if u need more information we are here to help each other learn Tiffany Sent from my iPod On Jan 20, 2009, at 1:33 PM, dav...@aol.com wrote: when i was in o.t. in '67, they helped me work on regaining fine motor control - picking up pennys, determining objects in a bag, building a little coffee table, .. none of which was very 'occupational'. can you share with us what the current objectives in giving o.t. to recovering sci patients? i'm sure a lot of us would be glad to share ideas on the subject. azdave -Original Message- From: Marie Dornbush mariedor...@gmail.com To: emma_wolf2...@yahoo.com Cc: quad-list@eskimo.com Sent: Mon, 19 Jan 2009 9:14 pm Subject: Re: Fw: [QUAD-L] Baclofen q's Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray emma_wolf2...@yahoo.com wrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
Re: [QUAD-L] Baclofen q's....
Welcome Ladies, While you are both here, care to let us all know the difference between an OT and a PT, education and your technical services offered to your clients when you graduate.. Best Wishes In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time, tiffany51...@yahoo.com writes: Hello everyone I am an occupational therapy student also just like marie hi marie we actually go to school together. Well all those little activities that the ot made u do helped regain fine motor control which enables you to engage in occupations that require you to use your fine motor skills I hope this helps!!! If not let me know if u need more information we are here to help each other learn Tiffany Sent from my iPod On Jan 20, 2009, at 1:33 PM, _dav...@aol.com_ (mailto:dav...@aol.com) wrote: when i was in o.t. in '67, they helped me work on regaining fine motor control - picking up pennys, determining objects in a bag, building a little coffee table, .. none of which was very 'occupational'. can you share with us what the current objectives in giving o.t. to recovering sci patients? i'm sure a lot of us would be glad to share ideas on the subject. azdave -Original Message- From: Marie Dornbush _mariedor...@gmail.com_ (mailto:mariedor...@gmail.com) To: _emma_wolf2...@yahoo.com_ (mailto:emma_wolf2...@yahoo.com) Cc: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Mon, 19 Jan 2009 9:14 pm Subject: Re: Fw: [QUAD-L] Baclofen q's Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray _emma_wolf2...@yahoo.com_ (mailto:emma_wolf2...@yahoo.com) wrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook _onemofor...@yahoo.com_ (mailto:onemofor...@yahoo.com) wrote: From: t crook _onemofor...@yahoo.com_ (mailto:onemofor...@yahoo.com) Subject: [QUAD-L] Baclofen q's To: q-list _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. _http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=42267 23src=news_ (http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news) Tim c5 c6 _WhoopieKat.com_ (http://www.whoopiekat.com/) A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/10075x1216817552x1201106465/aol?redir=http://www. freecreditreport.com/pm/default.aspx?sc=668072hmpgID=82bcd=DecemailfooterNO8 2) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
RE: [QUAD-L] Baclofen q's....
Hello everyone I am an occupational therapy student also just like marie and tiffany hi guys we actually go to school. To answer the question whats the difference between OT and PT is OT wants you and tries to help you reengage in your prior occupations like school, work, selfcare. We even care about the past lesuire activites that interest our clients. Pt wants you to build strength and stamina, however, getting you back into your roles as a student, parent, husband or wife etc... is not their complete comcern. In OT its the basis of all our intereventions. does that help? what do you think girls. From: wheelch...@aol.comdate: Tue, 20 Jan 2009 20:53:06 -0500Subject: Re: [QUAD-L] Baclofen q'sTo: tiffany51...@yahoo.com; dav...@aol.comcc: quad-list@eskimo.com Welcome Ladies, While you are both here, care to let us all know the difference between an OT and a PT, education and your technical services offered to your clients when you graduate.. Best Wishes In a message dated 1/20/2009 7:22:09 P.M. Central Standard Time, tiffany51...@yahoo.com writes: Hello everyone I am an occupational therapy student also just like marie hi marie we actually go to school together. Well all those little activities that the ot made u do helped regain fine motor control which enables you to engage in occupations that require you to use your fine motor skills I hope this helps!!! If not let me know if u need more information we are here to help each other learn TiffanySent from my iPod On Jan 20, 2009, at 1:33 PM, dav...@aol.com wrote: when i was in o.t. in '67, they helped me work on regaining fine motor control - picking up pennys, determining objects in a bag, building a little coffee table, .. none of which was very 'occupational'. can you share with us what the current objectives in giving o.t. to recovering sci patients? i'm sure a lot of us would be glad to share ideas on the subject. azdave-Original Message-From: Marie Dornbush mariedor...@gmail.comTo: emma_wolf2...@yahoo.comcc: quad-l...@eskimo.comsent: Mon, 19 Jan 2009 9:14 pmSubject: Re: Fw: [QUAD-L] Baclofen q's Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray emma_wolf2...@yahoo.com wrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q'sTo: q-list quad-list@eskimo.comDate: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6WhoopieKat.com A Good Credit Score is 700 or Above. See yours in just 2 easy steps! A Good Credit Score is 700 or Above. See yours in just 2 easy steps! _ Windows Live™ Hotmail®: Chat. Store. Share. Do more with mail. http://windowslive.com/howitworks?ocid=TXT_TAGLM_WL_t1_hm_justgotbetter_howitworks_012009
Re: [QUAD-L] Baclofen q's....
AD is autonomic dysreflexia. Most quads experience this type of a nerve disorder from time to time. Your body generates enough pain that it creates and electrical pulse that somehoe sends signals into the autonomiuc nervous system where it wreaks havoc on pulse rate, blood pressure, hormone production. Organ failure may occur. Stroike and heart attack can also happen. It is a serious problem. So, what does everyone else take when AD begins. john --- On Tue, 1/20/09, Steve White ste...@pinetel.com wrote: From: Steve White ste...@pinetel.com Subject: Re: [QUAD-L] Baclofen q's To: alcibiat...@yahoo.com Date: Tuesday, January 20, 2009, 4:21 PM What is AD? Summer White - Original Message - From: John S. To: quad-list@eskimo.com Sent: Tuesday, January 20, 2009 11:18 AM Subject: Re: [QUAD-L] Baclofen q's I had the same choice back in the 80's when baclophen was being touted as the end all be all of controlling spasms. I was taking about 30-40 mg of valium a day and pretty addicted. (had been on Valium for 13years). Just to start the change meant detoxing from one drug to another. I find that detoxing involves AD, or at least a very good chance of it. I mean the kind where you can't talk anymore and a 20 hour nap. I gave up after one episode. Going to the ER once is not my idea of a sucessful attempt. I had a friend that went for baclophen. He was a C-4 and felt valium was old fashioned. A year later hes having to take a lot of baclophen to control spasms. Easy cure, go to Texas and get a baclophen pump installed. 1st one malfunctioned and couldn't refill after a month. Rush back to Texas. Second pump surgery screws up and he gets a staph infection. He died on a plane between Huston and Cincinnati while the pilot was turning the plane around. In all sincerety, I don't believe most doctors or nurses have a real understanding of AD I know that I can pop six to eight Valiums to get AD into control if need be. I had an anti-seizure drug but it didn't work as well or as fast as simply taking a blood pressure pill and 2 Valiums. If it doesn't work for you then, by all means, search for a drug that will work. What do folks on here take for their AD? I find that it is easy to tell when I need a valium and it has the side effect of making me far less suicidal or depressed. john --- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
[QUAD-L] Baclofen q's....
I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Re: [QUAD-L] Baclofen q's....
Hi, Baclofen acts on the spinal cord nerves and decreases the number and severity of muscle spasms. It also relieves pain and improves muscle movement. Side effects: drowsiness, dizziness, weakness, confusion and upset stomach. I have all but weakness and upset stomach. Paul 5/6 - Original Message - From: t crook To: q-list Sent: Monday, January 19, 2009 10:29 AM Subject: [QUAD-L] Baclofen q's I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Fw: [QUAD-L] Baclofen q's....
Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook onemofor...@yahoo.com wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com
Re: Fw: [QUAD-L] Baclofen q's....
Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray emma_wolf2...@yahoo.comwrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On *Mon, 1/19/09, t crook onemofor...@yahoo.com* wrote: From: t crook onemofor...@yahoo.com Subject: [QUAD-L] Baclofen q's To: q-list quad-list@eskimo.com Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news Tim c5 c6 WhoopieKat.com http://www.whoopiekat.com/
Re: Fw: [QUAD-L] Baclofen q's....
Hi Marie, Thank you for joining. I'm sure you will be able to provide some good ideas and answers to questions we have. I'm glad you joined the group. My disability is C4-5, 34 post, 55 and I live in Prairie Village, Kansas I had several OT students when I lived in Lawrence, Kansas until the school moved to the the KU Hospital in Kansas City and campus. It was really fun having an OT students as a school aide, while going there and as a home aide. Dana In a message dated 1/19/2009 10:14:58 P.M. Central Standard Time, mariedor...@gmail.com writes: Hi Everyone! I'm new to this group. I am currently studying to become an Occupational Therapist. I just wanted to introduce myself, and see your perspectives. Let me know if you have any questions about occupational therapy and I would be happy to answer. I'm very interested in what everyone has to say. -Mare, OTS On Mon, Jan 19, 2009 at 1:51 PM, andrea murray _emma_wolf2...@yahoo.com_ (mailto:emma_wolf2...@yahoo.com) wrote: Hi, Yes I took baclofen for a long time when I was in High School. I have CP and the doctor I was seeing then was for the drug for people with CP. In 1993 I broke my neck and the had to go off it. I didn't have any side effect. In away I wish I was back on it, because I have really bad -muscle spasms.. Wheelchair Warrior -- On Mon, 1/19/09, t crook _onemofor...@yahoo.com_ (mailto:onemofor...@yahoo.com) wrote: From: t crook _onemofor...@yahoo.com_ (mailto:onemofor...@yahoo.com) Subject: [QUAD-L] Baclofen q's To: q-list _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Date: Monday, January 19, 2009, 1:29 PM I would like to know who uses baclofen and the side effects you experience; like hypotension (which I already suffer from), or any side effects. I took this drug right after my accident in '88, but that was 20 yrs. ago and my memory did not log any recollection of the side effects. Below is a news link; a doctor claims it worked for his addiction to alcohol, it got me thinking of changing my spasm medicine. I do not suffer from alcohol addiction; but I take diazapam for spasms, and was going to talk to my doc about baclofen for the spasms. I was just recently diagnosed with inherited Cardiomyopathy; so I was wondering about any cardio side effects as well, which I will find out when I have another echo cardiogram next week. _http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=42267 23src=news_ (http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861cl=11605466ch=4226723src=news) Tim c5 c6 _WhoopieKat.com_ (http://www.whoopiekat.com/) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
