Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
>From what I've been reading, you are right about AD being a problem for many >paras, too. Bobbie, the easiest explanation of AD (autonomic dysreflexia) was this. Your bowel and bladder and sex organs function attached to your sympathetic nervous system as well as the central nervous system. When something is wrong your sympathetic nervous system begins to malfunction causing your heart to race, your blood pressure to go up and breathing difficulties as well as spasms. AD also occurs when pain is severe enough to overwhelm your entire nervous system. Untreated it can lead to stroke (hence the severe headache) and heart attack. Some people have told me tthey couldn't catch their breath. This is due to the heart beating to fast and irregular for blood to get oxygen as it passes thru the lungs. As my doctor, (Randall Bradom) told me years ago, a stuffy nose can be a preliminary symptom. Last I heard, he was head of rehab at Columbia University Hospital. I read where there was a study about pneumonia triggering AD. Most quads loose half to two thirds lung capacity just from the injury. I get my flu shots and pneumo-vax regularly. I've never had a cold, but pneumonia once. Avoid snotty children and adults that just can't get rid of a cough. Practice using an inspirometer,(the tube with a hose that you inhale slowly from) and cough when you can. Maybe an aid will help you by doing the Hiemlich manuvre. Since the blood clot hit my lung I only draw .8 litres of air. I use to draw 2.4 litres. I have 2 different inhalers and a nebulizer 4 times a day, oh yeah, in bed I use an oxygen machine. There is absolutely no space left in my bedroom. Go to http://www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453413/k.5E2A/Autonomic_Dysreflexia.htm And read up. I don't think I gave you bad advice, but they can describe it so your understanding is much more detailed. Quality of life is what we all look for, so do what you must so you can do what you want. Best Wishes, Bobbie, john From: Bobbie Humphreys To: Bob Vogel Cc: John S. ; "quad-list@eskimo.com" Sent: Tuesday, June 26, 2012 10:39 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey What is AD? Bobbie Sent from my iPad On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: Hi John, > > >From SCI nurses and physicians I've spoken with-- AD can hit anybody with >SCI of T6 and above, and is possible in people with SCI as low as T10. > > >Bob V > > >On Jun 26, 2012, at 11:10 AM, John S. wrote: > >I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica >for 5. Because my bones deteriorate and fracture from simple lifts I either >take my npain meds or suffer from AD. I broke a multitude of bones in my >original accident and many never healed right. I have deformed so badly that >Dr.s have said it hurts to look at my X-rays. Now, my bones and floating >organs make lifting and moving in my chair almost unbearable. >>Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >>shouldn't have AD. This doesn't mean you have no pain issues. You might try a >>physiatrist. >>bw, >>john >> >> >> >> >> From: Derrick >>To: quad-list@eskimo.com >>Sent: Sunday, June 24, 2012 3:59 PM >>Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >> >>I've been on 5mg (2x/day) narcotic for over 10 years. >>I've been having more pain and asked my latest doc(very rural town) if she >>would up my meds. >>She told me that "narcotics are not prescribed to parapelgics" and the only >>reason she writes me a script because I've been on them so long. >> >>I disagree with her. I would like to hear how many on this list do or do not take narcotics. If do, how many pills&mg? >> >>I built a quick survey with 3 questions. You can see results at end of survey. >>http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >>Thanks in advance, >>Derrick W >> >>By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain >>clinic prescribed "voltran cream" a few years back. Like I can rub on my neck >>myself. I do plan to switch drs but I want to educate her & others in the >>future with survey results. >> >> >> >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Thanks, John--that is a pretty good description, letting people learn more about A.D. Dan H. ** From: John S. To: quad-list@eskimo.com Cc: "quad-list@eskimo.com" Sent: Thu, June 28, 2012 9:41:43 AM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Tell your doctor to read this;http://www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453413/k.5E2A/Autonomic_Dysreflexia.htm bw, john From: Danny Hearn To: todd.daughe...@gmail.com; Bobbie Humphreys Cc: Eric W Rudd ; "quad-list@eskimo.com" Sent: Wednesday, June 27, 2012 3:32 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Yes, I thought every quad knew about A.D. ---We were taught about it in the hospital before they allowed quads to go home, but I suppose all hospitals are different. I have had it a few times, and probably would have died if my wife was not present each time to hurry and get me up out of bed. Feels like head will explode and pressure and pain grows very fast. ( when upright or placed in chair it can subside or get better ) Most my A.D. was from uti's becoming septic--or real bad and putting white blood cell count out of whack., But can be caused by other things also. ( when you get it you sure will know if it gets bad) I have had mild a.d. a lot of times where I sweat and get irregular heatbeat and so on during bowel routine or from needing to be turned or something. Dan H** From: "todd.daughe...@gmail.com" To: Bobbie Humphreys Cc: Eric W Rudd ; "quad-list@eskimo.com" Sent: Wed, June 27, 2012 1:02:52 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey I can't believe any quad hasn't heard of AD. Bout killed me one day, a headache you'll never forget. On Jun 27, 2012, at 1:20 PM, Bobbie Humphreys wrote: Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie > > >Sent from my iPad > >On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: > > >Autonomic Dysreflexia >> >>Eric W Rudd >>c5sc...@gmail.com >> >>From: Bobbie Humphreys >>Sent: Tuesday, June 26, 2012 9:39 PM >>To: Bob Vogel >>Cc: John S. ; quad-list@eskimo.com >>Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey >>What is AD? Bobbie >> >> >> >>Sent from my iPad >> >>On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: >> >> >>Hi John, >>> >>>From SCI nurses and physicians I've spoken with-- AD can hit anybody with >>>SCI >>>of T6 and above, and is possible in people with SCI as low as T10. >>> >>>Bob V >>> >>> >>>On Jun 26, 2012, at 11:10 AM, John S. wrote: >>> >>>I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >>>lyrica >>>for 5. Because my bones deteriorate and fracture from simple lifts I either >>>take >>>my npain meds or suffer from AD. I broke a multitude of bones in my original >>>accident and many never healed right. I have deformed so badly that Dr.s >>>have >>>said it hurts to look at my X-rays. Now, my bones and floating organs make >>>lifting and moving in my chair almost unbearable. >>>>Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >>>>shouldn't have AD. This doesn't mean you have no pain issues. You might try >>>>a >>>>physiatrist. >>>>bw, >>>>john >>>> >>>>From: Derrick >>>>To: quad-list@eskimo.com >>>>Sent: Sunday, June 24, 2012 3:59 PM >>>>Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >>>> >>>>I've been on 5mg (2x/day) narcotic for over 10 years. >>>>I've been having more pain and asked my latest doc(very rural town) if she >>>>would >>>>up my meds. >>>>She told me that "narcotics are not prescribed to parapelgics" and the only >>>>reason she writes me a script because I've been on them so long. >>>> >>>>I disagree with her. I would like to hear how many on this list do or do >>>>not >>>>take narcotics. If do, how many pills&mg? >>>> >>>>I built a quick survey with 3 questions. You can see results at end of >survey. >>>>http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >>>>Thanks in advance, >>>>Derrick W >>>> >>>>By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >>>>pain >>>>clinic prescribed "voltran cream" a few years back. Like I can rub on my >>>>neck >>>>myself. I do plan to switch drs but I want to educate her & others in the >>>>future >>>>with survey results. >>>> >>>> >>>> >>>> >>>
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
That is exactly it! Same crushing, spasoming feeling here w/o narcotics. BW, john From: Greg To: John S. ; quadlist Sent: Wednesday, June 27, 2012 2:13 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey I went 20+ years with no meds, other than for UTIs. Though after I hurt my hip, the bone tried to heal itself. It never stopped growing. It ended up growing like branches into the muscles. I had to use radiation to get it to stop. It’s still egg size, but they are afraid that if they cut it out it would be very bloody. And that can cause it to grow back even worse. Though I can’t feel it like a point of pain, like a cut, burn, spot. It caused A.D. sweat, high blood pressure. And a very heavy chest, like pneumonia. I’ve never had that feeling with A.D. before. The actual pain is in my whole thigh area. I mean like it’s being crushed. I would dream every night that I was on fires or my leg was trapped in a car door. I went to the E.R. a couple of times doubled over in pain. I had spasms so bad I grunted. Docs just kept trying anti spasm meds, but I knew it was not regular spasms. Finely they found the problem after multiple x-ray trys. Pain meds control it. Very little spasms. My thigh still has a burning/throbbing feeling, but it’s tolerable. Though if I miss a dose of meds, within hours I’m miserable. The meds cause so many bowel issues I’m thinking of trying to cut the growth out. Greg
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Tell your doctor to read this;http://www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453413/k.5E2A/Autonomic_Dysreflexia.htm bw, john From: Danny Hearn To: todd.daughe...@gmail.com; Bobbie Humphreys Cc: Eric W Rudd ; "quad-list@eskimo.com" Sent: Wednesday, June 27, 2012 3:32 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Yes, I thought every quad knew about A.D. ---We were taught about it in the hospital before they allowed quads to go home, but I suppose all hospitals are different. I have had it a few times, and probably would have died if my wife was not present each time to hurry and get me up out of bed. Feels like head will explode and pressure and pain grows very fast. ( when upright or placed in chair it can subside or get better ) Most my A.D. was from uti's becoming septic--or real bad and putting white blood cell count out of whack., But can be caused by other things also. ( when you get it you sure will know if it gets bad) I have had mild a.d. a lot of times where I sweat and get irregular heatbeat and so on during bowel routine or from needing to be turned or something. Dan H** From: "todd.daughe...@gmail.com" To: Bobbie Humphreys Cc: Eric W Rudd ; "quad-list@eskimo.com" Sent: Wed, June 27, 2012 1:02:52 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey I can't believe any quad hasn't heard of AD. Bout killed me one day, a headache you'll never forget. On Jun 27, 2012, at 1:20 PM, Bobbie Humphreys wrote: Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie > > >Sent from my iPad > >On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: > > >Autonomic Dysreflexia >> >>Eric W Rudd >>c5sc...@gmail.com >> >>From: Bobbie Humphreys >>Sent: Tuesday, June 26, 2012 9:39 PM >>To: Bob Vogel >>Cc: John S. ; quad-list@eskimo.com >>Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey >> What is AD? Bobbie >> >> >> >>Sent from my iPad >> >>On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: >> >> >>Hi John, >>> >>>From SCI nurses and physicians I've spoken with-- AD can hit anybody with >>>SCI of T6 and above, and is possible in people with SCI as low as T10. >>> >>>Bob V >>> >>> >>>On Jun 26, 2012, at 11:10 AM, John S. wrote: >>> >>>I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >>>lyrica for 5. Because my bones deteriorate and fracture from simple lifts I >>>either take my npain meds or suffer from AD. I broke a multitude of bones in >>>my original accident and many never healed right. I have deformed so badly >>>that Dr.s have said it hurts to look at my X-rays. Now, my bones and >>>floating organs make lifting and moving in my chair almost unbearable. >>>>Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >>>>shouldn't have AD. This doesn't mean you have no pain issues. You might try >>>>a physiatrist. >>>>bw, >>>>john >>>> >>>> >>>> >>>>From: Derrick >>>>To: quad-list@eskimo.com >>>>Sent: Sunday, June 24, 2012 3:59 PM >>>>Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >>>> >>>>I've been on 5mg (2x/day) narcotic for over 10 years. >>>>I've been having more pain and asked my latest doc(very rural town) if she >>>>would up my meds. >>>>She told me that "narcotics are not prescribed to parapelgics" and the only >>>>reason she writes me a script because I've been on them so long. >>>> >>>>I disagree with her. I would like to hear how many on this list do or do >>>>not take narcotics. If do, how many pills&mg? >>>> >>>>I built a quick survey with 3 questions. You can see results at end of >>>>survey. >>>>http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >>>>Thanks in advance, >>>>Derrick W >>>> >>>>By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >>>>pain clinic prescribed "voltran cream" a few years back. Like I can rub on >>>>my neck myself. I do plan to switch drs but I want to educate her & others >>>>in the future with survey results. >>>> >>>> >>>> >>>
RE: [QUAD-L] do or don't you use narcotic/pain meds-survey
I am not a doctor, so don't count on me for medical advice. I'm sure you can do a Google search to get some information on this. Sometimes, when something is wrong and you can't feel it, your body will react by giving you a headache, high blood pressure and/ or chills, or some other sensation. In my case, I have a Supra-pubic catheter, and when it gets blocked or is kinked, I start getting weird sensations. In one case, when apparently the catheter was inserted incorrectly, I was admitted to the hospital with extremely high blood pressure and an unbelievable headache. So if you are feeling weird or strange, it might be your body trying to tell you that your shoes are too tight or something is pinching you. Or there is some other thing which is wrong. From: Bobbie Humphreys [mailto:bobbie...@aol.com] Sent: Wednesday, June 27, 2012 1:21 PM To: Eric W Rudd Cc: quad-list@eskimo.com; Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie Sent from my iPad On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: Autonomic Dysreflexia Eric W Rudd c5sc...@gmail.com From: Bobbie Humphreys <mailto:bobbie...@aol.com> Sent: Tuesday, June 26, 2012 9:39 PM To: Bob Vogel <mailto:rhvsh...@pacbell.net> Cc: John S. <mailto:alcibiat...@yahoo.com> ; quad-list@eskimo.com Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey What is AD? Bobbie Sent from my iPad On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: Hi John, >From SCI nurses and physicians I've spoken with-- AD can hit anybody with >SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you shouldn't have AD. This doesn't mean you have no pain issues. You might try a physiatrist. bw, john From: Derrick To: quad-list@eskimo.com Sent: Sunday, June 24, 2012 3:59 PM Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey I've been on 5mg (2x/day) narcotic for over 10 years. I've been having more pain and asked my latest doc(very rural town) if she would up my meds. She told me that "narcotics are not prescribed to parapelgics" and the only reason she writes me a script because I've been on them so long. I disagree with her. I would like to hear how many on this list do or do not take narcotics. If do, how many pills&mg? I built a quick survey with 3 questions. You can see results at end of survey. http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ Thanks in advance, Derrick W By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain clinic prescribed "voltran cream" a few years back. Like I can rub on my neck myself. I do plan to switch drs but I want to educate her & others in the future with survey results.
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Yes, I thought every quad knew about A.D. ---We were taught about it in the hospital before they allowed quads to go home, but I suppose all hospitals are different. I have had it a few times, and probably would have died if my wife was not present each time to hurry and get me up out of bed. Feels like head will explode and pressure and pain grows very fast. ( when upright or placed in chair it can subside or get better ) Most my A.D. was from uti's becoming septic--or real bad and putting white blood cell count out of whack., But can be caused by other things also. ( when you get it you sure will know if it gets bad) I have had mild a.d. a lot of times where I sweat and get irregular heatbeat and so on during bowel routine or from needing to be turned or something. Dan H** From: "todd.daughe...@gmail.com" To: Bobbie Humphreys Cc: Eric W Rudd ; "quad-list@eskimo.com" Sent: Wed, June 27, 2012 1:02:52 PM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey I can't believe any quad hasn't heard of AD. Bout killed me one day, a headache you'll never forget. On Jun 27, 2012, at 1:20 PM, Bobbie Humphreys wrote: Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie > > >Sent from my iPad > >On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: > > >Autonomic Dysreflexia >> >>Eric W Rudd >>c5sc...@gmail.com >> >>From: Bobbie Humphreys >>Sent: Tuesday, June 26, 2012 9:39 PM >>To: Bob Vogel >>Cc: John S. ; quad-list@eskimo.com >>Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey >>What is AD? Bobbie >> >> >> >>Sent from my iPad >> >>On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: >> >> >>Hi John, >>> >>>From SCI nurses and physicians I've spoken with-- AD can hit anybody with >>>SCI >>>of T6 and above, and is possible in people with SCI as low as T10. >>> >>>Bob V >>> >>> >>>On Jun 26, 2012, at 11:10 AM, John S. wrote: >>> >>>I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >>>lyrica >>>for 5. Because my bones deteriorate and fracture from simple lifts I either >>>take >>>my npain meds or suffer from AD. I broke a multitude of bones in my original >>>accident and many never healed right. I have deformed so badly that Dr.s >>>have >>>said it hurts to look at my X-rays. Now, my bones and floating organs make >>>lifting and moving in my chair almost unbearable. >>>>Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >>>>shouldn't have AD. This doesn't mean you have no pain issues. You might try >>>>a >>>>physiatrist. >>>>bw, >>>>john >>>> >>>>From: Derrick >>>>To: quad-list@eskimo.com >>>>Sent: Sunday, June 24, 2012 3:59 PM >>>>Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >>>> >>>>I've been on 5mg (2x/day) narcotic for over 10 years. >>>>I've been having more pain and asked my latest doc(very rural town) if she >>>>would >>>>up my meds. >>>>She told me that "narcotics are not prescribed to parapelgics" and the only >>>>reason she writes me a script because I've been on them so long. >>>> >>>>I disagree with her. I would like to hear how many on this list do or do >>>>not >>>>take narcotics. If do, how many pills&mg? >>>> >>>>I built a quick survey with 3 questions. You can see results at end of >survey. >>>>http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >>>>Thanks in advance, >>>>Derrick W >>>> >>>>By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >>>>pain >>>>clinic prescribed "voltran cream" a few years back. Like I can rub on my >>>>neck >>>>myself. I do plan to switch drs but I want to educate her & others in the >>>>future >>>>with survey results. >>>> >>>> >>>> >>>> >>>
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Bobbie , most frequent cause is over-extended bladder or bowel. Infections are secondary reasons. It is both dangerous and deadly. Best Wishes In a message dated 6/27/2012 12:05:53 P.M. Central Daylight Time, bobbie...@aol.com writes: Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie Sent from my iPad On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" <_c5sci97@gmail.com_ (mailto:c5sc...@gmail.com) > wrote: Autonomic Dysreflexia Eric W Rudd _c5sci97@gmail.com_ (mailto:c5sc...@gmail.com) From: _Bobbie Humphreys_ (mailto:bobbie...@aol.com) Sent: Tuesday, June 26, 2012 9:39 PM To: _Bob Vogel_ (mailto:rhvsh...@pacbell.net) Cc: _John S._ (mailto:alcibiat...@yahoo.com) ; _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey What is AD? Bobbie Sent from my iPad On Jun 26, 2012, at 2:34 PM, Bob Vogel <_rhvshark@pacbell.net_ (mailto:rhvsh...@pacbell.net) > wrote: Hi John, >From SCI nurses and physicians I've spoken with-- AD can hit anybody with SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you shouldn't have AD. This doesn't mean you have no pain issues. You might try a physiatrist. bw, john From: Derrick < (mailto:whe...@cvn.net) _wheels@cvn.net_ (mailto:whe...@cvn.net) > To: (mailto:quad-list@eskimo.com) _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Sunday, June 24, 2012 3:59 PM Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey I've been on 5mg (2x/day) narcotic for over 10 years. I've been having more pain and asked my latest doc(very rural town) if she would up my meds. She told me that "narcotics are not prescribed to parapelgics" and the only reason she writes me a script because I've been on them so long. I disagree with her. I would like to hear how many on this list do or do not take narcotics. If do, how many pills&mg? I built a quick survey with 3 questions. You can see results at end of survey. (http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ) _http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ_ (http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ) Thanks in advance, Derrick W By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain clinic prescribed "voltran cream" a few years back. Like I can rub on my neck myself. I do plan to switch drs but I want to educate her & others in the future with survey results.
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Injured '89 c6 inc, I stopped taking muscle relaxers in 1994, haven't taken any other meds or narcotics since then. Todd On Jun 27, 2012, at 2:13 PM, "Greg" wrote: > I went 20+ years with no meds, other than for UTIs. Though after I hurt my > hip, the bone tried to heal itself. It never stopped growing. It ended up > growing like branches into the muscles. I had to use radiation to get it to > stop. It’s still egg size, but they are afraid that if they cut it out it > would be very bloody. And that can cause it to grow back even worse. > > Though I can’t feel it like a point of pain, like a cut, burn, spot. It > caused A.D. sweat, high blood pressure. And a very heavy chest, like > pneumonia. I’ve never had that feeling with A.D. before. The actual pain is > in my whole thigh area. I mean like it’s being crushed. I would dream every > night that I was on fires or my leg was trapped in a car door. I went to the > E.R. a couple of times doubled over in pain. I had spasms so bad I grunted. > Docs just kept trying anti spasm meds, but I knew it was not regular spasms. > Finely they found the problem after multiple x-ray trys. > > Pain meds control it. Very little spasms. My thigh still has a > burning/throbbing feeling, but it’s tolerable. Though if I miss a dose of > meds, within hours I’m miserable. The meds cause so many bowel issues I’m > thinking of trying to cut the growth out. > > Greg
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
I went 20+ years with no meds, other than for UTIs. Though after I hurt my hip, the bone tried to heal itself. It never stopped growing. It ended up growing like branches into the muscles. I had to use radiation to get it to stop. It’s still egg size, but they are afraid that if they cut it out it would be very bloody. And that can cause it to grow back even worse. Though I can’t feel it like a point of pain, like a cut, burn, spot. It caused A.D. sweat, high blood pressure. And a very heavy chest, like pneumonia. I’ve never had that feeling with A.D. before. The actual pain is in my whole thigh area. I mean like it’s being crushed. I would dream every night that I was on fires or my leg was trapped in a car door. I went to the E.R. a couple of times doubled over in pain. I had spasms so bad I grunted. Docs just kept trying anti spasm meds, but I knew it was not regular spasms. Finely they found the problem after multiple x-ray trys. Pain meds control it. Very little spasms. My thigh still has a burning/throbbing feeling, but it’s tolerable. Though if I miss a dose of meds, within hours I’m miserable. The meds cause so many bowel issues I’m thinking of trying to cut the growth out. Greg
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
I can't believe any quad hasn't heard of AD. Bout killed me one day, a headache you'll never forget. On Jun 27, 2012, at 1:20 PM, Bobbie Humphreys wrote: > Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't > Everett hearing about this except on the q-list. Bobbie > > > Sent from my iPad > > On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: > >> Autonomic Dysreflexia >> >> Eric W Rudd >> c5sc...@gmail.com >> >> From: Bobbie Humphreys >> Sent: Tuesday, June 26, 2012 9:39 PM >> To: Bob Vogel >> Cc: John S. ; quad-list@eskimo.com >> Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey >> >> What is AD? Bobbie >> >> >> >> Sent from my iPad >> >> On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: >> >>> Hi John, >>> >>> From SCI nurses and physicians I've spoken with-- AD can hit anybody with >>> SCI of T6 and above, and is possible in people with SCI as low as T10. >>> >>> Bob V >>> >>> On Jun 26, 2012, at 11:10 AM, John S. wrote: >>> >>>> I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >>>> lyrica for 5. Because my bones deteriorate and fracture from simple lifts >>>> I either take my npain meds or suffer from AD. I broke a multitude of >>>> bones in my original accident and many never healed right. I have deformed >>>> so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones >>>> and floating organs make lifting and moving in my chair almost >>>> unbearable. >>>> Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >>>> shouldn't have AD. This doesn't mean you have no pain issues. You might >>>> try a physiatrist. >>>> bw, >>>> john >>>> >>>> From: Derrick >>>> To: quad-list@eskimo.com >>>> Sent: Sunday, June 24, 2012 3:59 PM >>>> Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >>>> >>>> I've been on 5mg (2x/day) narcotic for over 10 years. >>>> I've been having more pain and asked my latest doc(very rural town) if she >>>> would up my meds. >>>> She told me that "narcotics are not prescribed to parapelgics" and the >>>> only reason she writes me a script because I've been on them so long. >>>> >>>> I disagree with her. I would like to hear how many on this list do or do >>>> not take narcotics. If do, how many pills&mg? >>>> >>>> I built a quick survey with 3 questions. You can see results at end of >>>> survey. >>>> http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >>>> Thanks in advance, >>>> Derrick W >>>> >>>> By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >>>> pain clinic prescribed "voltran cream" a few years back. Like I can rub on >>>> my neck myself. I do plan to switch drs but I want to educate her & others >>>> in the future with survey results. >>>> >>>> >>> >>>
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
http://calder.med.miami.edu/pointis/automatic.html Eric W Rudd c5sc...@gmail.com From: Bobbie Humphreys Sent: Wednesday, June 27, 2012 12:20 PM To: Eric W Rudd Cc: quad-list@eskimo.com ; mailto:quad-list@eskimo.com Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie Sent from my iPad On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: Autonomic Dysreflexia Eric W Rudd c5sc...@gmail.com From: Bobbie Humphreys Sent: Tuesday, June 26, 2012 9:39 PM To: Bob Vogel Cc: John S. ; quad-list@eskimo.com Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey What is AD? Bobbie Sent from my iPad On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: Hi John, From SCI nurses and physicians I've spoken with-- AD can hit anybody with SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you shouldn't have AD. This doesn't mean you have no pain issues. You might try a physiatrist. bw, john From: Derrick To: quad-list@eskimo.com Sent: Sunday, June 24, 2012 3:59 PM Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey I've been on 5mg (2x/day) narcotic for over 10 years. I've been having more pain and asked my latest doc(very rural town) if she would up my meds. She told me that "narcotics are not prescribed to parapelgics" and the only reason she writes me a script because I've been on them so long. I disagree with her. I would like to hear how many on this list do or do not take narcotics. If do, how many pills&mg? I built a quick survey with 3 questions. You can see results at end of survey. http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ Thanks in advance, Derrick W By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain clinic prescribed "voltran cream" a few years back. Like I can rub on my neck myself. I do plan to switch drs but I want to educate her & others in the future with survey results.
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett hearing about this except on the q-list. Bobbie Sent from my iPad On Jun 27, 2012, at 10:40 AM, "Eric W Rudd" wrote: > Autonomic Dysreflexia > > Eric W Rudd > c5sc...@gmail.com > > From: Bobbie Humphreys > Sent: Tuesday, June 26, 2012 9:39 PM > To: Bob Vogel > Cc: John S. ; quad-list@eskimo.com > Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey > > What is AD? Bobbie > > > > Sent from my iPad > > On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: > >> Hi John, >> >> From SCI nurses and physicians I've spoken with-- AD can hit anybody with >> SCI of T6 and above, and is possible in people with SCI as low as T10. >> >> Bob V >> >> On Jun 26, 2012, at 11:10 AM, John S. wrote: >> >>> I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >>> lyrica for 5. Because my bones deteriorate and fracture from simple lifts I >>> either take my npain meds or suffer from AD. I broke a multitude of bones >>> in my original accident and many never healed right. I have deformed so >>> badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and >>> floating organs make lifting and moving in my chair almost unbearable. >>> Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >>> shouldn't have AD. This doesn't mean you have no pain issues. You might try >>> a physiatrist. >>> bw, >>> john >>> >>> From: Derrick >>> To: quad-list@eskimo.com >>> Sent: Sunday, June 24, 2012 3:59 PM >>> Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >>> >>> I've been on 5mg (2x/day) narcotic for over 10 years. >>> I've been having more pain and asked my latest doc(very rural town) if she >>> would up my meds. >>> She told me that "narcotics are not prescribed to parapelgics" and the only >>> reason she writes me a script because I've been on them so long. >>> >>> I disagree with her. I would like to hear how many on this list do or do >>> not take narcotics. If do, how many pills&mg? >>> >>> I built a quick survey with 3 questions. You can see results at end of >>> survey. >>> http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >>> Thanks in advance, >>> Derrick W >>> >>> By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >>> pain clinic prescribed "voltran cream" a few years back. Like I can rub on >>> my neck myself. I do plan to switch drs but I want to educate her & others >>> in the future with survey results. >>> >>> >> >> >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Autonomic Dysreflexia Eric W Rudd c5sc...@gmail.com From: Bobbie Humphreys Sent: Tuesday, June 26, 2012 9:39 PM To: Bob Vogel Cc: John S. ; quad-list@eskimo.com Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey What is AD? Bobbie Sent from my iPad On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: Hi John, From SCI nurses and physicians I've spoken with-- AD can hit anybody with SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you shouldn't have AD. This doesn't mean you have no pain issues. You might try a physiatrist. bw, john From: Derrick To: quad-list@eskimo.com Sent: Sunday, June 24, 2012 3:59 PM Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey I've been on 5mg (2x/day) narcotic for over 10 years. I've been having more pain and asked my latest doc(very rural town) if she would up my meds. She told me that "narcotics are not prescribed to parapelgics" and the only reason she writes me a script because I've been on them so long. I disagree with her. I would like to hear how many on this list do or do not take narcotics. If do, how many pills&mg? I built a quick survey with 3 questions. You can see results at end of survey. http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ Thanks in advance, Derrick W By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain clinic prescribed "voltran cream" a few years back. Like I can rub on my neck myself. I do plan to switch drs but I want to educate her & others in the future with survey results.
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Don, You are sooo correct about the cold temps. I'm 39 years post and live in Northern New Jersey. I have scoliosis and a syrnix in my neck. I take morphine, hydrocodone, Valium, nurontin and pennsaid. Bobbie Sent from my iPad On Jun 26, 2012, at 2:58 PM, Don Price wrote: > I am thankful, but after 30 years [in Aug.] of SCI I've never taken anything > stronger than Tylenol for pain. That's not to say I never have pain, but I > decided long ago that I wanted to avoid drugs [of any kind] as long as I > could. If I lived in a cold climate I would probably need pain meds. > > My remedies for pain include: massage, range-of-motion, heat, Tylenol, Aleve, > exercise and red wine. :) Well, I guess wine could be considered a drug. > > Don. > > > From: Bob Vogel > To: John S. > Cc: "quad-list@eskimo.com" > Sent: Tuesday, June 26, 2012 11:34 AM > Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey > > Hi John, > > From SCI nurses and physicians I've spoken with-- AD can hit anybody with > SCI of T6 and above, and is possible in people with SCI as low as T10. > > Bob V > > On Jun 26, 2012, at 11:10 AM, John S. wrote: > >> I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >> lyrica for 5. Because my bones deteriorate and fracture from simple lifts I >> either take my npain meds or suffer from AD. I broke a multitude of bones in >> my original accident and many never healed right. I have deformed so badly >> that Dr.s have said it hurts to look at my X-rays. Now, my bones and >> floating organs make lifting and moving in my chair almost unbearable. >> Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >> shouldn't have AD. This doesn't mean you have no pain issues. You might try >> a physiatrist. >> bw, >> john >> >> From: Derrick >> To: quad-list@eskimo.com >> Sent: Sunday, June 24, 2012 3:59 PM >> Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >> >> I've been on 5mg (2x/day) narcotic for over 10 years. >> I've been having more pain and asked my latest doc(very rural town) if she >> would up my meds. >> She told me that "narcotics are not prescribed to parapelgics" and the only >> reason she writes me a script because I've been on them so long. >> >> I disagree with her. I would like to hear how many on this list do or do not >> take narcotics. If do, how many pills&mg? >> >> I built a quick survey with 3 questions. You can see results at end of >> survey. >> http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >> Thanks in advance, >> Derrick W >> >> By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >> pain clinic prescribed "voltran cream" a few years back. Like I can rub on >> my neck myself. I do plan to switch drs but I want to educate her & others >> in the future with survey results. >> >> > > >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
What is AD? Bobbie Sent from my iPad On Jun 26, 2012, at 2:34 PM, Bob Vogel wrote: > Hi John, > > From SCI nurses and physicians I've spoken with-- AD can hit anybody with > SCI of T6 and above, and is possible in people with SCI as low as T10. > > Bob V > > On Jun 26, 2012, at 11:10 AM, John S. wrote: > >> I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >> lyrica for 5. Because my bones deteriorate and fracture from simple lifts I >> either take my npain meds or suffer from AD. I broke a multitude of bones in >> my original accident and many never healed right. I have deformed so badly >> that Dr.s have said it hurts to look at my X-rays. Now, my bones and >> floating organs make lifting and moving in my chair almost unbearable. >> Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >> shouldn't have AD. This doesn't mean you have no pain issues. You might try >> a physiatrist. >> bw, >> john >> >> From: Derrick >> To: quad-list@eskimo.com >> Sent: Sunday, June 24, 2012 3:59 PM >> Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey >> >> I've been on 5mg (2x/day) narcotic for over 10 years. >> I've been having more pain and asked my latest doc(very rural town) if she >> would up my meds. >> She told me that "narcotics are not prescribed to parapelgics" and the only >> reason she writes me a script because I've been on them so long. >> >> I disagree with her. I would like to hear how many on this list do or do not >> take narcotics. If do, how many pills&mg? >> >> I built a quick survey with 3 questions. You can see results at end of >> survey. >> http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >> Thanks in advance, >> Derrick W >> >> By the way, I'm a C5/6 quad, not a para. Not only her but the next towns >> pain clinic prescribed "voltran cream" a few years back. Like I can rub on >> my neck myself. I do plan to switch drs but I want to educate her & others >> in the future with survey results. >> >> >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
I'm not in pain Don. It really doesn't hurt in the sense that I feel the pain. When I don't treat it my blood preassure rises, I get cold sweats to the point of being drenched. My heart starts an irregular fast beat and I feel like I'm being crushed. I become rigid then start convulsing violently. I have done this on fountain square, Dr.s office, several times in the hospital. At home many times. Untill I feel crushed I can't say it hurts. Its my body that hurts, unfortunately, I have to keep it happy or it'll kill me. Dr.s that have seen it in the waiting room were stunned, why, "I had no idea it was like that.". Morphine and nitro, ten minutes later, I'm fine. couple hydrocodones for that extra kick while I wait for my ride. I hope that helps explain it a bit. john From: Don Price To: quadlist Sent: Tuesday, June 26, 2012 2:58 PM Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey I am thankful, but after 30 years [in Aug.] of SCI I've never taken anything stronger than Tylenol for pain. That's not to say I never have pain, but I decided long ago that I wanted to avoid drugs [of any kind] as long as I could. If I lived in a cold climate I would probably need pain meds. My remedies for pain include: massage, range-of-motion, heat, Tylenol, Aleve, exercise and red wine. :) Well, I guess wine could be considered a drug. Don. From: Bob Vogel To: John S. Cc: "quad-list@eskimo.com" Sent: Tuesday, June 26, 2012 11:34 AM Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Hi John, From SCI nurses and physicians I've spoken with-- AD can hit anybody with SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. >Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >shouldn't have AD. This doesn't mean you have no pain issues. You might try a >physiatrist. >bw, >john > > > > >From: Derrick >To: quad-list@eskimo.com >Sent: Sunday, June 24, 2012 3:59 PM >Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey > >I've been on 5mg (2x/day) narcotic for over 10 years. >I've been having more pain and asked my latest doc(very rural town) if she >would up my meds. >She told me that "narcotics are not prescribed to parapelgics" and the only >reason she writes me a script because I've been on them so long. > >I disagree with her. I would like to hear how many on this list do or do not >take narcotics. If do, how many pills&mg? > >I built a quick survey with 3 questions. You can see results at end of survey. >http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >Thanks in advance, >Derrick W > >By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain >clinic prescribed "voltran cream" a few years back. Like I can rub on my neck >myself. I do plan to switch drs but I want to educate her & others in the >future with survey results. > > >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Bob and all, Here's what I found: "Autonomic dysreflexia, also known as hyperreflexia, is a state that is unique to patients after spinal cord injury at a T-5 level and above. Patients with spinal cord injuries at Thoracic 5 (T-5) level and above are very susceptible. Patients with spinal cord injuries at Thoracic 6 - Thoracic 10 (T6-T10) may be susceptible. Patients with Thoracic 10 (T-10) and below are usually not susceptible. Also, the older the injury the less likely the person will experience autonomic dysreflexia." http://calder.med.miami.edu/pointis/automatic.html Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey Hi John, From SCI nurses and physicians I've spoken with-- AD can hit anybody with SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. >Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you >shouldn't have AD. This doesn't mean you have no pain issues. You might try a >physiatrist. >bw, >john > > >From: Derrick >To: quad-list@eskimo.com >Sent: Sunday, June 24, 2012 3:59 PM >Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey > >I've been on 5mg (2x/day) narcotic for over 10 years. >I've been having more pain and asked my latest doc(very rural town) if she >would up my meds. >She told me that "narcotics are not prescribed to parapelgics" and the only >reason she writes me a script because I've been on them so long. > >I disagree with her. I would like to hear how many on this list do or do not >take narcotics. If do, how many pills&mg? > >I built a quick survey with 3 questions. You can see results at end of survey. >http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ >Thanks in advance, >Derrick W > >By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain >clinic prescribed "voltran cream" a few years back. Like I can rub on my neck >myself. I do plan to switch drs but I want to educate her & others in the >future with survey results. > > >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
Hi John, From SCI nurses and physicians I've spoken with-- AD can hit anybody with SCI of T6 and above, and is possible in people with SCI as low as T10. Bob V On Jun 26, 2012, at 11:10 AM, John S. wrote: > I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and > lyrica for 5. Because my bones deteriorate and fracture from simple lifts I > either take my npain meds or suffer from AD. I broke a multitude of bones in > my original accident and many never healed right. I have deformed so badly > that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating > organs make lifting and moving in my chair almost unbearable. > Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you > shouldn't have AD. This doesn't mean you have no pain issues. You might try a > physiatrist. > bw, > john > > From: Derrick > To: quad-list@eskimo.com > Sent: Sunday, June 24, 2012 3:59 PM > Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey > > I've been on 5mg (2x/day) narcotic for over 10 years. > I've been having more pain and asked my latest doc(very rural town) if she > would up my meds. > She told me that "narcotics are not prescribed to parapelgics" and the only > reason she writes me a script because I've been on them so long. > > I disagree with her. I would like to hear how many on this list do or do not > take narcotics. If do, how many pills&mg? > > I built a quick survey with 3 questions. You can see results at end of survey. > http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ > Thanks in advance, > Derrick W > > By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain > clinic prescribed "voltran cream" a few years back. Like I can rub on my neck > myself. I do plan to switch drs but I want to educate her & others in the > future with survey results. > >
Re: [QUAD-L] do or don't you use narcotic/pain meds-survey
I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica for 5. Because my bones deteriorate and fracture from simple lifts I either take my npain meds or suffer from AD. I broke a multitude of bones in my original accident and many never healed right. I have deformed so badly that Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs make lifting and moving in my chair almost unbearable. Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you shouldn't have AD. This doesn't mean you have no pain issues. You might try a physiatrist. bw, john From: Derrick To: quad-list@eskimo.com Sent: Sunday, June 24, 2012 3:59 PM Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey I've been on 5mg (2x/day) narcotic for over 10 years. I've been having more pain and asked my latest doc(very rural town) if she would up my meds. She told me that "narcotics are not prescribed to parapelgics" and the only reason she writes me a script because I've been on them so long. I disagree with her. I would like to hear how many on this list do or do not take narcotics. If do, how many pills&mg? I built a quick survey with 3 questions. You can see results at end of survey. http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ Thanks in advance, Derrick W By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain clinic prescribed "voltran cream" a few years back. Like I can rub on my neck myself. I do plan to switch drs but I want to educate her & others in the future with survey results.
