[TMIC] july birthdays
HAPPY BIRTHDAY TO ALL JULY BIRTHDAY PEOPLE Hugs to all, Barbara A ** See what's free at http://www.aol.com.
Re: [TMIC] Re: [QUAD-L] 9 YEARS
Naomi, I pray for more recovery for you also. I also pray that you would be blessed with insurance that takes care of all of your needs. Have a wonderful day! Jenna [EMAIL PROTECTED] wrote: Quadius, Today marks my two year anniversary for my Transverse Myelitis. It's really depressing because I thought, by the two-year period, I would have gained more movement and made more progress. To be perfectly honest, I'm worse off than I am when I left the hospital. I am still struggling with my insurance company to provide more therapy. I know it is stated that you're pretty much where you're going to be at the two-year mark. I certainly hope this isn't true. That would remove all hope. I've read of people progressing beyond this point. I pray for more recovery. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis - See what's free at AOL.com. - Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Yahoo! Travel to find your fit.
[TMIC] TM meeting in Atlanta area this week
Hi, I just wanted to let everyone on the list that lives in the Atlanta area know that there is now a meeting on the 1st Thursday of the month at 6:00pm. The meeting is open to all who have TM. If you are interested in the location contact me off the list and I will let you know. I know I havn't seen some of the Atlanta people on the list in a while...but maybe some of you are reading and not just posting. I hope you have a blessed and wonderful day! Jenna - Get the Yahoo! toolbar and be alerted to new email wherever you're surfing.
[TMIC] Quad 9
Naomi, I wish for you better health soon. I will pray for you. You care for others so well and you deserve to have the blessings and improved health come back to you as well. I've been down for 3 days. I hated it cause it was the weekend. I wanted to enjoy it so bad w/ my husband I was in so much pain I couldn't even find my pills. He had to get them for me. I was trying all I could to not go back into the hospital. Enough on me. As I said, you will be in my prayers. Natalie M. - Pinpoint customers who are looking for what you sell.
Re: [TMIC] Re: [QUAD-L] 9 YEARS
Naomi, Please know that you still can get better. It might be little at a time and very slowly, but you can still get better. I was at my worst at my 2 year, (I had fatigue, so didn't get any improvements), but as the fatigue got better so did I and still am getting better each month. When and how much exercise you can do per week. Exercise, Excessive, and more Excessive. You might not notice your improvements, but a person that has not seen you in awhile will notice your improvements. I have a friend that live about 8 hours away, so we don't get to together very often. I have notice that he has lost a lot of weight and he notice that I have gotten some improvements in getting around. Hang in there, we are praying for you to get better, Todd in Corpus Christi, TX [EMAIL PROTECTED] wrote: Quadius, Today marks my two year anniversary for my Transverse Myelitis. It's really depressing because I thought, by the two-year period, I would have gained more movement and made more progress. To be perfectly honest, I'm worse off than I am when I left the hospital. I am still struggling with my insurance company to provide more therapy. I know it is stated that you're pretty much where you're going to be at the two-year mark. I certainly hope this isn't true. That would remove all hope. I've read of people progressing beyond this point. I pray for more recovery. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis - See what's free at AOL.com.
Re: [TMIC] Feet pain
I sure needed a ball today. Hmm, maybe that would be an idea. I did use furniture though. Yikes. I had an accident today though and was lucky I didn't knock myself right out. I was vacuuming.I had a plant in the living room that I think will do better in the basement where it is much cooler for the summer. Well, I picked up the plant, went to step over the hose of the vacuum system and instead with my stupid weak leg I stepped onto the hose. The pot went flying and I fell onto my butt and whacked the back of my head into the corner of one of the end tables. I had a terrible time to get up which I do all the time anyway but my head hurt like the devil and I immediately went and got the freezer pack. I sat for 15 mins with it on the back of my head. I took an Ibuprofen too. I now have a lovely big goose egg on the back of my head. OUCH! Like I said, I'm sure glad I didn't draw blood or knock myself out. So then it was good I had the vacuum out as I could then clean up the dirt and the dead leaves of the plant. I was actually ready to toss the think outside I was somewhat upset about it all. I don't feel any pain in the tailbone so am hoping that I didn't do too much damage there. I guess I have padding there. LOL LOL Heather in Calgary where it is FINALLY warm enough to consider it summer. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Tuesday, July 03, 2007 2:54 PM Subject: Re: [TMIC] Feet pain Hi Pam, Did you send your ball system for getting up to the list or just me? I wondered since I only got it once. In case you didn't, I'm attaching it to the bottom of this for the list to see. Also, don't worry about being embarrassed about falling when going out. First of all, hopefully you won't hurt yourself. Then, if you do fall, which I have, you just get the help you need. And, I fell the first day I went back to work after having had TM for seven months. I went to work on a part-time basis, and parked in the parking lot at work. I proceeded to fall, smack down on the pavement, right on my bottom just past my car or I could have gotten up on my own. Several people came over and tried to help to pick me up, but they were trying to do it the wrong way. I could only be helped in one certain way that worked, and my son also worked in the same building, so I asked someone to go inside and get him. I sat on the pavement with people coming and going for about 5 minutes waiting for him. I caused quite a stir. I was determined to go back to work, so I went home, composed myself for a couple of hours and went back in to work. Stuff happens!!! Hugs, Barbara HI BARBARA., IF I FALL THANK GOODNESS I KEEP MY CELL PHONE WITH ME AT ALL TIMES. I CAN CALL A NEIGHBOR. I DO NOT LIKE TO DO THAT SO I EXERCISE ON THE HUGE BIG BLUE BALL. ALOT. I HAVE ONE IN MY DEN , KITCHEN, MY BATH ROOM ANY ROOM I AM GOING TO BE IN ALOT. I ALSO HAVE MY GRIPPERS IN EVERY ROOM IN MY HOME. WE HAVE 4 ROOMS WE HARDLY EVER USE. THEY DO NEED TO BE CLEANED THOUGH. I FELL A FEW MONTHS AGO AND IT WAS IN THE DEN. I WAS NOT CLOSE TO ANY FURNITURE BUT I HAD MY GRIPPER SO I CRAWLED A LITTLE BIT USED THE GRIPPER TO GET THE BALL GOT UP WITH NO PROBLEM.MY KNEES DO HURT ALOT WHEN I CRAWL ALSO. WE KEEP ONE BY THE POOL AND IN OUR ENCLOSED PATIO. I WAS ASKED ONE DAY WHY NOT JUST PUSH THE BALL TO ANY ROOM YOU GO IN. I DID TRY THAT BUT ITS EASIER FOR ME TO HAVE BOUGHT 4 MORE. IT SOUNDS EXTREME BUT IT WORKS AND I DO NOT HAVE TO CALL A NEIGHBOR. I AM VERY CAREFUL BUT WE NEVER KNOW IF OUR LEGS WILL TIRE OR WE JUST LOOSE OUR BALANCE. I DO WHAT WORKS FOR ME AND THIS DID.SO I HAVE 5 BALLS AND I CAN USE THEM TO EXERCISE ON IN THOSE ROOMS NOT JUST MY SMALL EXERCISE ROOM. ONE BALL MIGHT WORK FOR SOME OF YOU BUT I GUESS I DO NOT LIKE TO PUSH IT AROUND. WHEN MY GRANDKIDS ARE HERE THEY PLAY WITH THEM .I HAVE 4 GRANDKIDS SO NO ARGUING THEY EACH HAVE ONE TO PLAY WITH. SO I GET MORE THAN ONE USE WITH THEM. IF I GO OUT I JUST HOPE I DO NOT FALL I DO NOT THINK I COULD GET UP, PLUS I WOULD BE SO EMBARASSED.MY PT TAUGHT ME TO USE IT IF I FELL. NOT TO BUY SO MANY THOUGH. IT WORKED FOR ME AND YOU CAN USE IT FOR THERAPY. HOPE THIS MIGHT HELP YOU ALL WHO COULD FALL AT HOME ALONE .I FEEL SILLY TELLING THIS BUT IT WORKS.WE ALL SHOULD DO WHAT WORKS FOR US. I DO! HOPE NONE OF US FALL SO BE CAREFUL!! PAM -- See what's free at AOL.com. -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/885 - Release Date: 7/3/2007 10:02 AM
[TMIC] Re: [QUAD-L] 9 YEARS
Hi Naomi, It's a little over two years since my first attack also. Please don't give up hoping for more improvement. A little over two years ago, I never dreamed that I would be walking unassisted again (I do still use my cane.) or being hopeful about life. Yes, I'll have more attacks, Devics is like that, but hopefully thanks to Rituxin they'll be more manageable than in the past. I know it's tough to remain hopeful. During my last eye bout I thought I might lose my mind, but somehow I found the will to keep plugging---and I'm still hopeful that I'll regain more of my sight. Naomi, please know that you are in the thoughts and prayers of many, and don't give up. Your friend, Grace (And I understand where you're coming from re; insurance companies. What a pain.) On 7/2/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Quadius, Today marks my two year anniversary for my Transverse Myelitis. It's really depressing because I thought, by the two-year period, I would have gained more movement and made more progress. To be perfectly honest, I'm worse off than I am when I left the hospital. I am still struggling with my insurance company to provide more therapy. I know it is stated that you're pretty much where you're going to be at the two-year mark. I certainly hope this isn't true. That would remove all hope. I've read of people progressing beyond this point. I pray for more recovery. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis See what's free at AOL.com.
Re: [TMIC] Re: [QUAD-L] 9 YEARS
Regina, I had a neck MRI and a thoracic spine MRI last year. The neck MRI showed a lot of arthritis in the neck. The neurologist at that time said the asrthritia has nothing to do with my hands. Why couldn't it? My doctor yesterday is my PCP, and he has been treating me for high BP. He did not have an opinion yet about my hands. He took blood to test for anything systemic that might be going on, such as thyroid. Won't have results until next week. I'm seeing a new neurologist in a few weeks who comes highly recommended. I do believe my hand numbness might be coming from my neck. I also have neck and shoulder pain. Have a good holiday, Kevin Regina Rummel wrote: Kevin, When I told my doctor that I was starting to get numbness in my hands, he prescribed a neck MRI. What did the doctor suggest about your hand numbness? R */Kevin Wolfthal [EMAIL PROTECTED]/* wrote: Naomi, Over the first 4-5 years of onset (1988), I improved very slowly. I went from crutches to cane, to walking without aid, except ankle braces.. However, there was always pain, always balance problems, gait difficulty, numbness. I was doing fairly well until 1997, when my car was rear-ended. It wasn't a major collision, but as my neurologist said at the time, it shook things up. Sure did, things went steadily downhill after the accident, until I was using a cane again and had to stop working in 1999. I never had steroid therapy because it took me years to get a dx. Now I am using a rollator, actually used it to get to the doctor today, with the assistance of a nurse's aid. It wore me out, but I did it. Now I'm trying to find out why my hands are going numb. I don't think anything is set in stone with TM. We are all affected differently. I still try to stay hopeful, I hope you can too. Best wishes, Kevin [EMAIL PROTECTED] wrote: Quadius, Today marks my two year anniversary for my Transverse Myelitis. It's really depressing because I thought, by the two-year period, I would have gained more movement and made more progress. To be perfectly honest, I'm worse off than I am when I left the hospital. I am still struggling with my insurance company to provide more therapy. I know it is stated that you're pretty much where you're going to be at the two-year mark. I certainly hope this isn't true. That would remove all hope. I've read of people progressing beyond this point. I pray for more recovery. Naomi C-4 quad, incomplete since July 2, 2005 Transverse Myelitis See what's free at AOL.com http://www.aol.com/?ncid=AOLAOF0002000503.
