Re: [TMIC] OT - Facebook
I have gotten a few notices about people adding me as a friend on Facebook, but when I try to confirm them, it is not working. According to Facebook that may happen if a different e-mail is used other than what I am registered with. Over there and for a lot in Internet things I use [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) . If you've tried adding me as a friend and haven't received confirmation yet, would you try again using that e-mail? Thanks! BTW there are a few TM groups there. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) - Original Message - From: _CANDIS KALLEY_ (mailto:[EMAIL PROTECTED]) To: _tmic-list_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, November 11, 2008 3:15 PM Subject: [TMIC] OT - Facebook I would like any and all of you to join facebook. I said I wouldn't use this site for political notes but I do listen to alot of TV, especially CNN and MSNBC (occasionally FOXNEWS). Please join facebook and see my note on TORT. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
Re: [TMIC] Osteomyelitis
Jude, I don't know why I hadn't thought to share this before. Early in my tm life, some 12½ years ago, someone in the tmic sent me this prayer. When my pain is rough, I use this. Dear Father in heaven I give this pain to you and I thank you for taking it. I hope this helps. If this message offended anyone, I apologize...but I'll accept your ire, especially if this helps Jude when things are unbearable. janh
RE: [TMIC] Question from Randy
Yes, I get this infusion every 3 months, 1G/day for 3 days. It's prednisone. For me, I get a bit sick after the fourth day, but my neuro says that that is not the norm - just me. After that I feel pretty good, stronger. Bernie From: Jenna [mailto:[EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 1:19 PM To: TMIC; Kim; Martha Fleming; Betty Subject: [TMIC] Question from Randy Randy asked me to forward this. Anyone what to tell him their experience with Solu-Medrol? Jenna [EMAIL PROTECTED] Ok u might forward this to group. I have no forward ability on blackberry. They are treating me with IV methyprnisolone (solu-medrol) and added tergetal for the facial pain. Could someone look up, explain or add personal experiences from the methyprnisolone. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Wed, 12 Nov 2008 05:39:18 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting Very good Randy! Hopefully the new ENT will have good news too! Take care and keep me updated. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 9:01:11 AM Subject: Re: October TM meeting Great news the doc says that it isn't ms. The facial nerves are inflamed but the brain stem is ok. Theyu don't knw the cause but believe it is an ear infection that attacked the nervous system. But it isn't a nuro problem per say. The steriods seem to be working. They also have a better ENT going to look at me. They say that I will probably have to have surgery on inner ear. But that is left up to the ENT. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:56:05 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting Wow what a day. Well I am praying for you and hoping you will recover quickly. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 7:43:57 PM Subject: Re: October TM meeting I had two lumbar punctures. The first got nothing. The second was not much better and the guy hit a nerve TWICE that sent a shock to my testees. It was horrific. They did some evoke potential tests where they electricute ur hands and ankles. I had another mri. They did some visual and auditory tests. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:36:30 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting How are you feeling? What are they doing for you?? Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 7:33:59 PM Subject: Re: October TM meeting Sunday is best for me. I should b out. I thnk the girls said sunday. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:28:19 -0800 (PST) To: [EMAIL PROTECTED]; Susan[EMAIL PROTECTED]; [EMAIL PROTECTED] CC: Martha Fleming[EMAIL PROTECTED]; Betty Budnek[EMAIL PROTECTED]; RANDY RANKIN[EMAIL PROTECTED] Subject: Re: October TM meeting I can meet on Saturday or Sunday just let me know. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED]; Susan [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED]; Betty Budnek [EMAIL PROTECTED]; RANDY RANKIN [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 6:12:21 PM Subject: Re: October TM meeting R we going to meet this weekend??? -- Original message from Jenna [EMAIL PROTECTED]: -- When and where are we meeting. Sunday is fine with me so that Randy can be there. Please let me know. Thanks so much!! Have a great week all. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Susan [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED]; Betty Budnek [EMAIL PROTECTED]; Jenna [EMAIL PROTECTED]; RANDY RANKIN [EMAIL PROTECTED] Sent: Sunday, November 9, 2008 7:40:53 PM Subject: Re: October TM meeting Maybe we can find something between Hiram and D'ville? -- Original message from Martha Fleming [EMAIL PROTECTED]: -- Okay. Sounds good to me. --- On Wed, 11/5/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: October TM meeting To: [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED], Betty Budnek [EMAIL PROTECTED] Date: Wednesday, November 5, 2008, 7:56 PM With Thanksgiving comming up, next weekend might
Re: RE: [TMIC] Question from Randy
Yes, I get this infusion every 3 months, 1G/day for 3 days. It's prednisone. For me, I get a bit sick after the fourth day, but my neuro says that that is not the norm - just me. After that I feel pretty good, stronger. Bernie, That'sa lot of medication!! For what disease do you get that much Solu-Medro?? Have you started to get the side effects? Good Luck F
[TMIC] Question from Randy
Randy asked me to forward this. Anyone what to tell him their experience with Solu-Medrol? Jenna [EMAIL PROTECTED] Ok u might forward this to group. I have no forward ability on blackberry. They are treating me with IV methyprnisolone (solu-medrol) and added tergetal for the facial pain. Could someone look up, explain or add personal experiences from the methyprnisolone. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Wed, 12 Nov 2008 05:39:18 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting Very good Randy! Hopefully the new ENT will have good news too! Take care and keep me updated. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 9:01:11 AM Subject: Re: October TM meeting Great news the doc says that it isn't ms. The facial nerves are inflamed but the brain stem is ok. Theyu don't knw the cause but believe it is an ear infection that attacked the nervous system. But it isn't a nuro problem per say. The steriods seem to be working. They also have a better ENT going to look at me. They say that I will probably have to have surgery on inner ear. But that is left up to the ENT. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:56:05 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting Wow what a day. Well I am praying for you and hoping you will recover quickly. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 7:43:57 PM Subject: Re: October TM meeting I had two lumbar punctures. The first got nothing. The second was not much better and the guy hit a nerve TWICE that sent a shock to my testees. It was horrific. They did some evoke potential tests where they electricute ur hands and ankles. I had another mri. They did some visual and auditory tests. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:36:30 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting How are you feeling? What are they doing for you?? Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 7:33:59 PM Subject: Re: October TM meeting Sunday is best for me. I should b out. I thnk the girls said sunday. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:28:19 -0800 (PST) To: [EMAIL PROTECTED]; Susan[EMAIL PROTECTED]; [EMAIL PROTECTED] CC: Martha Fleming[EMAIL PROTECTED]; Betty Budnek[EMAIL PROTECTED]; RANDY RANKIN[EMAIL PROTECTED] Subject: Re: October TM meeting I can meet on Saturday or Sunday just let me know. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED]; Susan [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED]; Betty Budnek [EMAIL PROTECTED]; RANDY RANKIN [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 6:12:21 PM Subject: Re: October TM meeting R we going to meet this weekend??? -- Original message from Jenna [EMAIL PROTECTED]: -- When and where are we meeting. Sunday is fine with me so that Randy can be there. Please let me know. Thanks so much!! Have a great week all. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Susan [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED]; Betty Budnek [EMAIL PROTECTED]; Jenna [EMAIL PROTECTED]; RANDY RANKIN [EMAIL PROTECTED] Sent: Sunday, November 9, 2008 7:40:53 PM Subject: Re: October TM meeting Maybe we can find something between Hiram and D'ville? -- Original message from Martha Fleming [EMAIL PROTECTED]: -- Okay. Sounds good to me. --- On Wed, 11/5/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: October TM meeting To: [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED], Betty Budnek [EMAIL PROTECTED] Date: Wednesday, November 5, 2008, 7:56 PM With Thanksgiving comming up, next weekend might be good -- Original message from Martha Fleming [EMAIL PROTECTED]: -- okay. We hope to see you then. I am forwarding Betty a copy of this email so we can pick a day. What would be good for you? --- On Tue, 10/21/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: October TM meeting To: [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED], [EMAIL PROTECTED] Date: Tuesday, October 21, 2008, 9:30 PM SORRY!!!...Brian and I will be camping at the
RE: RE: [TMIC] Question from Randy
Diagnosed with TM in 2002, MS in 2008. But I was getting it before the MS diagnosis. Last time I got it was 9/08, due next month. The sick effect goes away completely in a week, then I feel better. Overall, I don't know if it does anything, but it is supposed to reduce inflammation in my spinal cord and nerve myelin, and therefore prevent damage. Bernie -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 1:55 PM To: Butcher; Butcher, Bernard G (NY80); Jenna; TMIC Subject: Re: RE: [TMIC] Question from Randy Yes, I get this infusion every 3 months, 1G/day for 3 days. It's prednisone. For me, I get a bit sick after the fourth day, but my neuro says that that is not the norm - just me. After that I feel pretty good, stronger. Bernie, That'sa lot of medication!! For what disease do you get that much Solu-Medro?? Have you started to get the side effects? Good Luck F
[TMIC] Check out my Facebook profile
Hi tmic-list, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join Facebook! Once you join, you can also create your own profile. Thanks, Ken To sign up for Facebook, follow the link below: http://www.facebook.com/p.php?i=1613683094k=XVA564Q5352MZGDBUEYTYr
Re: [TMIC] Osteomyelitis
Jude, dear one, All you need for a prayer pot is a nice little pot or basket with a lid that you can write a name or names on a little piece of paper, fold it up and put it in. I've put my kid's names in there almost every time, other family members that might be going thru hard times or health issues. You have to be careful, tho! I put a friend's name in where he and his wife had been having a hard time getting pregnant and when she was able to, lost the baby. Well, guess what?? They had triplets so I always warn people it's pretty potent so they had better be sure they want their names in the Prayer Pot because it may not come out the way they think!! Seriously, God knows what your prayer is and takes care of it! I've had two and they never seem to ever get filled up...amazing! I've done this for several years and at work I used a pretty pot that had a candle in it. Then when I had to quit, I changed over to a pretty basket with a lid for here at home. When the time comes when they will be emptied, I'm going to bury a little hole, put the names in there and plant a pretty plant over it. j
Re: [TMIC] Osteomyelitis
Oh, Jan... how can that be offensive. Thank you for sharing and I will begin using it. Sometimes the pain just seems so much worse than other times but it is always there. God is good to have sent us friends like you all.. j
[TMIC] RE: tmic-digest Digest V2008 #411
re: Solu-Medrol I had it for 5 days (I think most of us had it when we had the acute attack of TM). It can cause nightmares, and make you anxious, makes your glucose (blood sugar) rise, so be careful of what you eat. The side effects disappear once you stop it though. It's very effective in bringing down the inflammation. http://www.drugs.com/cdi/solu-medrol-solution.html Tegretol: I never used it, but others I know have. http://www.drugs.com/cdi/tegretol.html Marieke, RN TM since 2004 @ T1 --Forwarded Message Attachment-- Date: Wed, 12 Nov 2008 10:19:18 -0800 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED] Subject: [TMIC] Question from Randy Randy asked me to forward this. Anyone what to tell him their experience with Solu-Medrol? Jenna [EMAIL PROTECTED] Ok u might forward this to group. I have no forward ability on blackberry. They are treating me with IV methyprnisolone (solu-medrol) and added tergetal for the facial pain. Could someone look up, explain or add personal experiences from the methyprnisolone. From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 9:01:11 AM Subject: Re: October TM meeting Great news the doc says that it isn't ms. The facial nerves are inflamed but the brain stem is ok. Theyu don't knw the cause but believe it is an ear infection that attacked the nervous system. But it isn't a nuro problem per say. The steriods seem to be working. They also have a better ENT going to look at me. They say that I will probably have to have surgery on inner ear. But that is left up to the ENT. _
[TMIC] Update from Randy
The ENT came by and is sure that this Rhyemes (look up the spell sorry) - caused by herpes zoster - other words shingles. Being that I had tm and the pain associated with TM in O5 it makes sense. He agreed and sees a correlation. Also since there are no lessions then it mkes since. They r starting me on virals immediately-which I have been asking for since day one. And I have saying all this time that I believed it was shingles. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Wed, 12 Nov 2008 10:19:18 -0800 (PST) To: TMICtmic-list@eskimo.com; Kim[EMAIL PROTECTED]; Martha Fleming[EMAIL PROTECTED]; Betty[EMAIL PROTECTED] Subject: [TMIC] Question from Randy Randy asked me to forward this. Anyone what to tell him their experience with Solu-Medrol? Jenna [EMAIL PROTECTED] Ok u might forward this to group. I have no forward ability on blackberry. They are treating me with IV methyprnisolone (solu-medrol) and added tergetal for the facial pain. Could someone look up, explain or add personal experiences from the methyprnisolone. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Wed, 12 Nov 2008 05:39:18 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting Very good Randy! Hopefully the new ENT will have good news too! Take care and keep me updated. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 9:01:11 AM Subject: Re: October TM meeting Great news the doc says that it isn't ms. The facial nerves are inflamed but the brain stem is ok. Theyu don't knw the cause but believe it is an ear infection that attacked the nervous system. But it isn't a nuro problem per say. The steriods seem to be working. They also have a better ENT going to look at me. They say that I will probably have to have surgery on inner ear. But that is left up to the ENT. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:56:05 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting Wow what a day. Well I am praying for you and hoping you will recover quickly. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 7:43:57 PM Subject: Re: October TM meeting I had two lumbar punctures. The first got nothing. The second was not much better and the guy hit a nerve TWICE that sent a shock to my testees. It was horrific. They did some evoke potential tests where they electricute ur hands and ankles. I had another mri. They did some visual and auditory tests. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:36:30 -0800 (PST) To: [EMAIL PROTECTED] Subject: Re: October TM meeting How are you feeling? What are they doing for you?? Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 7:33:59 PM Subject: Re: October TM meeting Sunday is best for me. I should b out. I thnk the girls said sunday. Sent from my Verizon Wireless BlackBerry From: Jenna [EMAIL PROTECTED] Date: Tue, 11 Nov 2008 15:28:19 -0800 (PST) To: [EMAIL PROTECTED]; Susan[EMAIL PROTECTED]; [EMAIL PROTECTED] CC: Martha Fleming[EMAIL PROTECTED]; Betty Budnek[EMAIL PROTECTED]; RANDY RANKIN[EMAIL PROTECTED] Subject: Re: October TM meeting I can meet on Saturday or Sunday just let me know. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED]; Susan [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED]; Betty Budnek [EMAIL PROTECTED]; RANDY RANKIN [EMAIL PROTECTED] Sent: Tuesday, November 11, 2008 6:12:21 PM Subject: Re: October TM meeting R we going to meet this weekend??? -- Original message from Jenna [EMAIL PROTECTED]: -- When and where are we meeting. Sunday is fine with me so that Randy can be there. Please let me know. Thanks so much!! Have a great week all. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Susan [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: Martha Fleming [EMAIL PROTECTED]; Betty Budnek [EMAIL PROTECTED]; Jenna [EMAIL PROTECTED]; RANDY RANKIN [EMAIL PROTECTED] Sent: Sunday, November 9, 2008 7:40:53 PM Subject: Re: October TM meeting Maybe we can find something between Hiram and D'ville? -- Original message from Martha Fleming [EMAIL PROTECTED]: -- Okay. Sounds good to me. --- On Wed, 11/5/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: October TM meeting To:
Re: [TMIC] Osteomyelitis
Janh - you certainly did not offend me in any way, but sweetie, you sure did make me cry. We love you, Jude. I hope with all my heart you find comfort in this prayer that Janh so graciously shared. Peace and Love to all Linda - Original Message - From: Jan Hargrovemailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-listmailto:tmic-list@eskimo.com Sent: Wednesday, November 12, 2008 8:48 AM Subject: Re: [TMIC] Osteomyelitis Jude, I don't know why I hadn't thought to share this before. Early in my tm life, some 12½ years ago, someone in the tmic sent me this prayer. When my pain is rough, I use this. Dear Father in heaven I give this pain to you and I thank you for taking it. I hope this helps. If this message offended anyone, I apologize...but I'll accept your ire, especially if this helps Jude when things are unbearable. janh
Re: [TMIC] Osteomyelitis
I hadn't either, Pam, and I just started it because there were so many people, patients, family and friends that needed prayer. I would drive my 40 miles to work each morning and say my prayers as I drove. While I was at work I would see so many patients that needed a prayer, I was afraid I would forget to add them to my prayer list even tho I would say a prayer for them at the time. I had this pretty little pot sitting empty on my shelf so I wrote their name on a little note and that's how I started it. J ---Original Message--- From: [EMAIL PROTECTED] Date: 11/12/2008 4:49:52 PM To: [EMAIL PROTECTED] Subject: Re: [TMIC] Osteomyelitis WOW THATS AMAZING. I NEVER HEARD OF A PRAYER POT .I THINK WE ALL WHO BELIEVE SHOULD HAVE ONE WHAT A GREAT IDEA. THANKS TIAD PAM!! Get the Moviefone Toolbar. Showtimes, theaters, movie news more! 17.jpg
Re: [TMIC] Osteomyelitis
Perfectly put, Linda...jeanne in dayton
