Re: [TMIC] Too Cold
I also will ask her about cattywhompus. Is this a disease that medicine can fix or do I have to go to Frank for the cure for it? I'm not too sure about going to him... Dear Jude, my temperature system is cattywhompus too. my left side ( hand, arm, thorax, leg and foot) go from too cold to too warm. I have increased blood flow in my left hand so much so that my fingernails grow twice as fast as on my right side. My left hand/fingers are so sensitive that I have to have someone to cut my nails every few days. I wish I had an answer... death is not the answer... A double Bourbon or margarita does help. frank
RE: [TMIC] Too Cold
Frank: If you think it will help, put me down for a strawberry margarita. I don't think I could feel any colder than I do now and at least I could enjoy the margarita. Patti in Wisconsin -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, December 01, 2008 6:58 AM To: jrushton; [EMAIL PROTECTED]; TMIC Subject: Re: [TMIC] Too Cold I also will ask her about cattywhompus. Is this a disease that medicine can fix or do I have to go to Frank for the cure for it? I'm not too sure about going to him... Dear Jude, my temperature system is cattywhompus too. my left side ( hand, arm, thorax, leg and foot) go from too cold to too warm. I have increased blood flow in my left hand so much so that my fingernails grow twice as fast as on my right side. My left hand/fingers are so sensitive that I have to have someone to cut my nails every few days. I wish I had an answer... death is not the answer... A double Bourbon or margarita does help. frank
Re: [TMIC] lesions, re-occurance of TM .... and such
Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird opposite reaction to it and it mad everything way worse. I'm so glad to hear it is working for you! Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote: From: George Kittner [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED] Date: Sunday, November 30, 2008, 9:44 PM I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally started out at 50 mg 3x day and then 75 mg 3x day and have been on the current dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid back by late afternoon after working all day. It hit at T7 for me. When walking I lean toward my right side which is the side that it hit me on. I recently went for a balance test and will be going for an evaluation which I am told they will be able to work with me to assist with helping with my walking. Ask your doctor about Lyrica for TM. Let me know what your doctor says and if he will prescribe it for you. Valerie in Illinois --- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: Pieter and Heather [EMAIL PROTECTED], tmic-list@eskimo.com Date: Friday, November 28, 2008, 9:21 AM Thanks Heather. The pain in my back was so severe last night that I decided I would see a doctor and insist that they get to the bottom of it. I want to find out for sure what is causing this pain. It is so easy to blame everything on MS. I'm not a wimp when it comes to pain. I have had chronic pain most of my life, but this is different. I don't think it would help to help to see neuro again. He assumes the pain is nerve pain, is connected to TM level in my spine and says the Neurontin should help. Hello! Neurontin does not help. How is your sister doing now? I run a large MS support group on Yahoo and it's not unusual to have other family members with MS or some of the rare neuro diseases. Hugs))) Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote: From: Pieter and Heather [EMAIL PROTECTED] Subject: Re: [TMIC] lesions, re-occurance of TM and such To: [EMAIL PROTECTED], tmic-list@eskimo.com Date: Thursday, November 27, 2008, 10:42 PM Sharon, Are you going to be seeing your neuro again soon? I would be asking him about it again. Could it be another attack of the MS? I know my sister has MS and hers was a severe attack back in the late 80's. At that time they weren't sure it was MS.She then had a second severe attack in 1991 (when she was finally diagnosed). She figures she must have had MS even in the mid to late 70's and into the 80's but was never diagnosed. So I'm sure that MS can bring attacks more than once. Have you also seen your family physician to rule out any other problems? I know that even with TM or MS that we need to remember there are other medical problems other than these two that can cause problems. Keep us posted Heather in Calgary - Original Message - From: Sharon M To: tmic-list@eskimo.com Sent: Thursday, November 27, 2008 5:39 PM Subject: [TMIC] lesions, re-occurance of TM and such Hi again everyone! I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They have never found lesions in my spine but I do have lesions in my brain. My original neuro says he still thinks I have a hidden lesion on my spine. In late August 08 I was hit again with the severe numbness. This time on the right side instead of the original left side. The numbness has not gotten better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in my back at that same level. I saw my new neuro last week and he said it was all connected. I had already figured it was connected. lol I am having much worse back pain lately, too. Really bad and nothing helps it. It's pain, burning and weakness That said, I am really doing pretty good. MS has kicked my butt at times and I have never been symptom-free since the TM attack Labor Day, 1997. I've just gotten worse over time. I am one of the lucky TMers, though, so I really hate to complain. I know it could be so much worse. I just wonder what you experts have to say about this latest occurance for me. hugs to you all Sharon Marsden --- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #457 To: [EMAIL PROTECTED] Date: Tuesday, November 25, 2008, 3:32 PM tmic-digest Digest Volume 2008 : Issue 457 Today's Topics: Re: [TMIC] Re: tmic-digest
RE: [TMIC] Too Cold
Try an electric underlayer, wich can set on and off in parts. I use only the legs side, wich helps. My wife goes earlier to bed as I am, and I step in a warm bed in this cold days. As soon as I get sleepy, I put it off to avoid burning legs at night. Wim From: [EMAIL PROTECTED]: Sat, 29 Nov 2008 01:39:49 -0500To: [EMAIL PROTECTED]: [TMIC] Too Cold Hi All, Is anyone else out there suffering from that bone-chilling cold that settles deeply into your bones and nothing you do helps to warm you up? I began to get cold earlier in the evening and have had Dave put mega blankets on me until they are so heavy I can barely lift them. I now have a queen sized silk blanket doubled on top of all of my other covers on my small hospital bed. This kind of cold came with the Transverse Myelitis and I don't believe it will ever go away. At least there is no kind of medication to warm me up that I know of. Does anyone out there have a clue? I know that some of you have also felt this chilling cold. What do you do to combat it? It is ridiculous the lengths I go to in order to be able to sleep, but am so uncomfortable that I can't. At least I am tired enough to give it a go... Jude Life should be easier. So should your homepage. Try the NEW AOL.com. _ De leukste online filmpjes vind je op MSN Video! http://video.msn.com/video.aspx?mkt=nl-nl
Re: [TMIC] Too Cold
Ha! I knew you would recommend something like that. When I wrote to Jude I suggested scotch or red wine. Also told her that probably the only doctor who would approve was our own Dr. Phran3que. Gilly... Dear Jude, my temperature system is cattywhompus too. my left side ( hand, arm, thorax, leg and foot) go from too cold to too warm. I have increased blood flow in my left hand so much so that my fingernails grow twice as fast as on my right side. My left hand/fingers are so sensitive that I have to have someone to cut my nails every few days. I wish I had an answer... death is not the answer... A double Bourbon or margarita does help. frank
Re: [TMIC] Too Cold
How about a good old Dutch ice cold beer? I'm not much of a drinker so one would put me right under the table!! Jeanne
Re: [TMIC] lesions, re-occurance of TM .... and such
I also tried Lyrica and all it did was make me loopy. Leg stinging was still the same and banding pain on waist did nto change Any other suggestions? (also tried Neuroten) it did not work either -- Original message from Sharon M [EMAIL PROTECTED]: -- Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird opposite reaction to it and it mad everything way worse. I'm so glad to hear it is working for you!SharonThe bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong"--- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote: From: George Kittner [EMAIL PROTECTED]Subject: Re: [TMIC] lesions, re-occurance of TM and suchTo: [EMAIL PROTECTED]Date: Sunday, November 30, 2008, 9:44 PM I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally started out at 50 mg 3x day and then 75 mg 3x day and have been on the current dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid back by late afternoon after working all day. It hit at T7 for me. When walking I lean toward my right side which is the side that it hit me on. I recently went for a balance test and will be going for an evaluation which I am told they will be able to work with me to assist with helping with my walking. Ask your doctor about Lyrica for TM. Let me know what your doctor says and if he will prescribe it for you. Valerie in Illinois --- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED]Subject: Re: [TMIC] lesions, re-occurance of TM and suchTo: "Pieter and Heather" [EMAIL PROTECTED], tmic-list@eskimo.comDate: Friday, November 28, 2008, 9:21 AM Thanks Heather. The pain in my back was so severe last night that I decided I would see a doctor and insist that they get to the bottom of it. I want to find out for sure what is causing this pain. It is so easy to blame everything on MS.I'm not a wimp when it comes to pain. I have had chronic pain most of my life, but this is different. I don't think it would help to help to see neuro again. He assumes the pain is nerve pain, is connected to TM level in my spine and says the Neurontin should help. Hello! Neurontin does not help.How is your sister doing now? I run a large MS support group on Yahoo and it's not unusual to have other family members with MS or some of the rare neuro diseases.Hugs)))SharonThe bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong"--- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote: From: Pieter and Heather [EMAIL PROTECTED]Subject: Re: [TMIC] lesions, re-occurance of TM and suchTo: [EMAIL PROTECTED], tmic-list@eskimo.comDate: Thursday, November 27, 2008, 10:42 PM Sharon, Are you going to be seeing your neuro again soon? I would be asking him about it again. Could it be another attack of the MS? I know my sister has MS and hers was a severe attack back inthe late 80's. At that time they weren't sure it was MS.Shethen had a second severe attack in 1991 (when she was finally diagnosed).She figures she must have had MS even in the mid to late 70's and into the 80's but was never diagnosed. So I'm sure that MS can bring attacks more than once. Have you also seen your family physician to rule out any other problems? I know that even with TM or MS that we need to remember there are other medical problems other than these two that can cause problems. Keep us posted Heather in Calgary - Original Message - From: Sharon M To: tmic-list@eskimo.com Sent: Thursday, November 27, 2008 5:39 PM Subject: [TMIC] lesions, re-occurance of TM and such Hi again everyone! I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They have never found lesions in my spine but I do have lesions in my brain. My original neuro says he still thinks I have a hidden lesion on my spine. In late August 08 I was hit again with the severe numbness. This time on the right side instead of the original left side. The numbness has not gotten better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in my back at that same level. I saw my new neuro last week and he said it was "all connected". I had already figured it was "connected". lolI am having much worse back pain lately, too. Really bad and nothing helps it. It's pain, burning and weaknessThat said, I am really doing pretty good. MS has kicked my butt at times and I have never been symptom-free since the TM attack Labor Day, 1997. I've just gotten worse over time.I am one of the lucky TMers, though, so I really hate to complain. I know it could be so much worse. I just wonder what you experts have to say about this latest occurance for me.hugs to you allSharon Marsden--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED]Subject: tmic-digest Digest V2008 #457To: [EMAIL PROTECTED]Date: Tuesday,
[TMIC] REFLECTIONS
To my fellow TM'ers.. think of below when they days seem to be hard and and the daily struggles seem harder.. Kim REFLECTIONS (by unknown) You know, time has a way of moving quickly and catching you unaware of the passing years. It seems just yesterday that I was young, just married and embarking on my new life with my mate. And yet in a way, it seems like eons ago, and I wonder where all the years went. I know that I lived them all... and I have glimpses of how it was back then, and of all my hopes and dreams... But, here it is... the winter of my life and it catches me by surprise... How did I get here so fast? Where did the years go and where did my babies go?Where did my youth go? I remember well... seeing older people through the years and thinking that those people were years away from me, and that winter was so far off that I could not fathom it or imagine fully what it would be like... But, here it is... I see the great change... andweare now those older folks that we used to see and never thought we'd be. Each day now, I find that just getting a shower is a real target for the day! And taking a nap is not a treat anymore... it's mandatory! Becauseif I don't on my own free will... I just fall asleep where I sit! And so, now I enter into this new season of my life unprepared for all the aches and pains, and the loss of strength and ability to go and do things. But, at least I know that though the winter has come, and I'm not sure how long it will last... this I know, that when it's over... it's over... There are things I wish I hadn't done... things I should have done... But indeed, there are many things I'm happy to have done... Its all in a lifetime...No real regrets... So, if you're not in your winter yet... let me remind you that it will be here faster than you think. So, whatever you would like to accomplish in your life please do it soon! Life goes by quickly... So, do what you can today because you can never be sure whether this is your winter or not! You have no promise that you will see all the seasons of your life... so live for good today and say all the things that you want your loved ones to remember... 'Life is a gift to you. The way you live it is your gift to those who came after. Make it a fantastic one.' LIVE IT WELL , with Love in your Heart !! ** There comes a point in your life when you realize: who matters ,... (those you love and those that love you .) who never did ,...(those who loved themselves and not you .) who won't anymore...(those who have decieved you and lost thelove foryou .) and who always will...(those who truly show love and love the Lord too .)
Re: [TMIC] December birthdays
HAPPY BIRTHDAY TO ALL OF OUR DECEMBER KIDS! ENJOY!MAYBE A HOT-TODDY SHOULD BE ON THE MENU ON YOUR SPECIAL DAY! - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, December 01, 2008 9:34 PM Subject: [TMIC] December birthdays Happy Birthday to the December kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com 12-2 Meghan ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12/2/ Ashlee Black ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12-3 Wim from Holland ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12- 4 Jan Burgess ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12-8 Lori Malloy ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12-10 Shirley from UK ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12-15-34 [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] 12-15-70 Carol Ann from South Carolina ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12/23/49 Roger Pratt ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ) 12-25 Gilly ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) 12/31 Janet ([EMAIL PROTECTED]mailto:[EMAIL PROTECTED]) -- Life should be easier. So should your homepage. Try the NEW AOL.comhttp://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0002.
Re: [TMIC] REFLECTIONS
How perfectly put, Kim.. Thanks for sharing with us. Jeanne
Re: [TMIC] December birthdays
Happy Birthday to the all of the December chickadees! Jeanne 12-2 Meghan ([EMAIL PROTECTED]) 12/2/ Ashlee Black ([EMAIL PROTECTED]) 12-3 Wim from Holland ([EMAIL PROTECTED]) 12- 4 Jan Burgess ([EMAIL PROTECTED]) 12-8 Lori Malloy ([EMAIL PROTECTED]) 12-10 Shirley from UK ([EMAIL PROTECTED]) 12-15-34 [EMAIL PROTECTED] 12-15-70 Carol Ann from South Carolina ([EMAIL PROTECTED]) 12/23/49 Roger Pratt ([EMAIL PROTECTED] ) 12-25 Gilly ([EMAIL PROTECTED]) 12/31 Janet ([EMAIL PROTECTED])
