[TMIC] OT Holiday Cheer OT
The Benefactor of the Ball Va. Man Spends $1 Million on Inaugural Package for Disadvantaged By Michael E. Ruane Washington Post Staff Writer Thursday, December 4, 2008; A01 It was billed as the biggest, most eye-popping of the inauguration hotel packages: the JW Marriott's $1 million build-your-own-ball offer. You get 300 rooms, four suites, $200,000 worth of food and drink, and a primo site overlooking the Pennsylvania Avenue parade route. And it was snapped up within hours of Barack Obama's election as president by a customer the hotel declined to identify. This morning, the Marriott is scheduled to announce that the buyer is a Virginia businessman who wants to bring to the inauguration disadvantaged people, terminally ill patients, wounded soldiers and others down on their luck. Earl W. Stafford, 60, of Fairfax County, the founder of a Centreville technology company who grew up as one of 12 children of a Baptist minister, said he will provide his guests lodging, food and special access, as well as beauticians, gowns and tuxedos, if necessary. Stafford has paid the $1 million, a spokesman said, and is prepared to spend $600,000 more for a breakfast, a luncheon and two balls at the hotel. Stafford said he hopes to recoup some of the $600,000 from other sponsors, yet to be recruited. We wanted to . . . bless those who otherwise wouldn't have an opportunity to be a part of the great celebration, the inauguration and the festivities, he said in an interview yesterday. Our objective is to bring in a cross-section of society -- those who are distressed, those who are terminally ill, those who are socially and economically disadvantaged, those veterans who are wounded and served our country. Stafford said the idea was inspired by his deep religious faith and the good fortune that has come his way. The inauguration is an opportunity to remember the less fortunate and remind the country of its traditions of benevolence, he said.
RE: [TMIC] Adjustable Ankle Stabilizer for drop foot
Todd: When I was in the hospital in June when I first contacted TM, my physical therapist suggested I use an ankle support for my right ankle which is the weakest. I did for several months until I built up more strength and to prevent my ankle from turning in. I never wore it at night, just during the day. My physical therapist said I no longer need it, so I am not wearing it presently. Hope this helps. Patti in Wisconsin From: Todd Tarno [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 3:10 PM To: TMIC Subject: [TMIC] Adjustable Ankle Stabilizer for drop foot I saw a friend that had a light brake in his ankle wearing a adjustable ankle stabilizer that he got from Wal-Mart for about $12. I got one, it can be warn on the left or right ankle. It has really helped with my drop foot around the house. I want to be able to where all night long ( I started at 4 pm ), but my foot burned so bad that at 1 am, I had to take it off. There is a smaller one that might be better with shoes for $8. Has anyone else tried this if so, how did it work for you? Hope everyone is having a BETTER day, Todd in CC, TX
RE: [TMIC] House
Hi Gracie: I had no idea it was you mentioned in the program. My husband and I were just amazed that TM was discussed. As soon as your symptoms were mentioned I said to my husband, I bet she has TM. Both our mouths dropped open when they confirmed it. Let's hope we get more attention from the medical field. I agree when they mentioned Devics, I realized how serious your condition is. I don't know if you are a believer, but never the less, I have added you to my prayer box. Patti in Wisconsin From: Grace M. [mailto:[EMAIL PROTECTED] Sent: Wednesday, December 03, 2008 6:11 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] House Hi Patti, Marieke and Heather are right. That was me on the Discovery Channel. Recurrent LETM (Longitudinal Extensive Transverse Myelitis) is one of the symptoms of Devic's. It's pretty wicked. Gracie
Re: [TMIC] Re: tmic-digest Digest V2008 #478
That band is called L'Hermitte's and one of my doctors told me it's where the break in nerves were..that it essentially was the nerve endings trying to find a connection... I think that is an over-simplified explanation so I'd comprehendI had it so bad that at times I thought I wouldn't be able to breathe..I thought it might be the bra- God getting even with me for hating bras!! It finally 'went away' but returns when I've overdone or have let myself get too tired. It no longer is as strong as in the beginning so just know that time will help! My 2¢ janh in OK --- On Thu, 12/4/08, jrushton [EMAIL PROTECTED] wrote: In response to: Jeanne, when I was the hospital I had a band around my waist like a steel band. After some time out of the hospital and for many years it has been a band of pain. No medication relieved it. It was especially bad when i laid on my back. Ken in N.M. It is pretty horrible, isn't it, Ken? This is the first real relief I've gotten from it since the onset. Just don't give up...we can't...j
[TMIC] Re: tmic-digest Digest V2008 #478
In response to: I spent nine weeks in the hospital from Jan. to April in 1981. I haven't heard anyone talking about a swollen belly. I was 235 with 42 waist when I got this. When in the hospital I swelled so when discharged I was 205 with 60 inch waist. It stayed like that for many weeks, and when it finally went down any nervous excitement would make it blow up, this went on for over 20 yrs. When it blew up the band of pain was sometimes nearly unbearable. Ken in N.M. Ken, to this day I still have a poofy tummy that I did not have before TM and sometimes it is worse than others. Each doctor I mentioned it to just shrugged their shoulders so I didn't give it any more thought. I'm glad you mentioned it...Jeanne
Re: [TMIC] Adjustable Ankle Stabilizer for drop foot
Yes I forgot to say that I have AFO for both feet, but that they are not good around the house, because they are tennis shoes get caught in the carpet around the house. I could be using them going out of the house, but have been in a wheelchair, because it was still too hard to walk very far. Once my ankle get stronger, I hope to start wearing my AFO again. Todd in CC, TX --- On Wed, 12/3/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: [TMIC] Adjustable Ankle Stabilizer for drop foot To: jrushton [EMAIL PROTECTED], [EMAIL PROTECTED], TMIC tmic-list@eskimo.com Date: Wednesday, December 3, 2008, 8:58 PM I was fitted with a custom made AFO in 04 at the rehab hospital for drop foot... really helped but problem is I can't take anything (no socks, shoes, blankets) ect on my feet (yes winter is a real buggar let me tell you) but so the AFO does help alot if you have insurance they will pay for it. -- Original message from jrushton [EMAIL PROTECTED]: -- In response to: I saw a friend that had a light brake in his ankle wearing a adjustable ankle stabilizer that he got from Wal-Mart for about $12. I got one, it can be warn on the left or right ankle. It has really helped with my drop foot around the house. I want to be able to where all night long ( I started at 4 pm ), but my foot burned so bad that at 1 am, I had to take it off. There is a smaller one that might be better with shoes for $8. Has anyone else tried this if so, how did it work for you? Hope everyone is having a BETTER day, Todd in CC, TX What is this, Todd? Jeanne
Re: [TMIC] Re: tmic-digest Digest V2008 #478
*You're absolutely right Mindy. Lhermitte's is the shocklike or buzzing feeling that occurs whenever the head is lowered, and the squeezing symptom around the ribcage or other areas is called *banding, or girdling*. In the case of MS, it's referred to as the MS Hug. * *Gracie*
Re: [TMIC] OT Holiday Cheer OT
This truly restores my faith in people!! What a great gift!!Trudy On Thu, Dec 4, 2008 at 9:00 AM, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: The Benefactor of the Ball Va. Man Spends $1 Million on Inaugural Package for Disadvantaged By Michael E. Ruane Washington Post Staff Writer Thursday, December 4, 2008; A01 It was billed as the biggest, most eye-popping of the inauguration hotel packages: the JW Marriott's $1 million build-your-own-ball offer. You get 300 rooms, four suites, $200,000 worth of food and drink, and a primo site overlooking the Pennsylvania Avenue parade route. And it was snapped up within hours of Barack Obama's election as president by a customer the hotel declined to identify. This morning, the Marriott is scheduled to announce that the buyer is a Virginia businessman who wants to bring to the inauguration disadvantaged people, terminally ill patients, wounded soldiers and others down on their luck. Earl W. Stafford, 60, of Fairfax County, the founder of a Centreville technology company who grew up as one of 12 children of a Baptist minister, said he will provide his guests lodging, food and special access, as well as beauticians, gowns and tuxedos, if necessary. Stafford has paid the $1 million, a spokesman said, and is prepared to spend $600,000 more for a breakfast, a luncheon and two balls at the hotel. Stafford said he hopes to recoup some of the $600,000 from other sponsors, yet to be recruited. We wanted to . . . bless those who otherwise wouldn't have an opportunity to be a part of the great celebration, the inauguration and the festivities, he said in an interview yesterday. Our objective is to bring in a cross-section of society -- those who are distressed, those who are terminally ill, those who are socially and economically disadvantaged, those veterans who are wounded and served our country. Stafford said the idea was inspired by his deep religious faith and the good fortune that has come his way. The inauguration is an opportunity to remember the less fortunate and remind the country of its traditions of benevolence, he said.
Re: [TMIC] Re: tmic-digest Digest V2008 #478
Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, -- Original message from "jrushton" [EMAIL PROTECTED]: -- In response to: I spent nine weeks in the hospital from Jan. to April in 1981. I haven't heard anyonetalking about a swollen belly. I was 235 with 42 waist when I got this. When inthe hospital I swelled so when discharged I was 205 with 60 inch waist. It stayed like thatfor many weeks, and when it finally went down any nervous excitement would make it blow up,this went on for over 20 yrs. When it blew up the band of pain was sometimes nearlyunbearable.Ken in N.M. Ken, to this day I still have a poofy tummy that I did not have before TM and sometimes it is worse than others. Each doctor I mentioned it to just shrugged their shoulders so I didn't give it any more thought. I'm glad you mentioned it...Jeanne
Re: [TMIC] Re: tmic-digest Digest V2008 #478
In response to: Oh my gosh! same here I feel like the Stay Puff Marshmellow Gal! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, Kim, it's not like we can go out and run around the block or through the woods, right??? Heck, we can't even tell if we're holding our tummy in or not! We could try some of that stuff that Oprah is advertising so much now (Acai?) except I saw a picture of it in a bowl and it looks like a bowl of purple intestines!! Jeanne
Re: [TMIC] Re: tmic-digest Digest V2008 #478
Hear ya!!! the fatigue is hard to deal with working full time and hard to explain to others somedays it hurts just to get out of bed but we do... then to go and work out! please workout anymore is just getting off the couch and being able to balance with my walker without falling on my face.. -- Original message from "jrushton" [EMAIL PROTECTED]: -- In response to: Oh my gosh! same here I feel like the "Stay Puff Marshmellow Gal"! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, Kim, it's not like we can go out and run around the block or through the woods, right??? Heck, we can't even tell if we're holding our tummy in or not! We could try some of that stuff that Oprah is advertising so much now (Acai?) except I saw a picture of it in a bowl and it looks like a bowl of purple intestines!! Jeanne
Re: [TMIC] Re: tmic-digest Digest V2008 #478
I gained a beer belly at the onset and have kept it ever since. Who duh thunk it??? Jude In a message dated 12/4/2008 10:19:37 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Oh my gosh! same here I feel like the Stay Puff Marshmellow Gal! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, -- Original message from jrushton [EMAIL PROTECTED]: -- In response to: I spent nine weeks in the hospital from Jan. to April in 1981. I haven't heard anyone talking about a swollen belly. I was 235 with 42 waist when I got this. When in the hospital I swelled so when discharged I was 205 with 60 inch waist. It stayed like that for many weeks, and when it finally went down any nervous excitement would make it blow up, this went on for over 20 yrs. When it blew up the band of pain was sometimes nearly unbearable. Ken in N.M. Ken, to this day I still have a poofy tummy that I did not have before TM and sometimes it is worse than others. Each doctor I mentioned it to just shrugged their shoulders so I didn't give it any more thought. I'm glad you mentioned it...Jeanne **Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010)
Re: [TMIC] Re: tmic-digest Digest V2008 #478
In response to: To this day I have a poofy tummy and have never once contributed it to the disease. I thought I had just gained weight over the years. Isn't that strange? Jude Well, I know that it is very normal that as we grow older and as soon as I started 'the change' it was harder and harder to keep the weight off but then I was able to do all sorts of things to help. But when TM hit and I came home from ICU/PT/Rehab, I thought I had become pregnant somewhere in those three weeks...6 months worth!!! At 58 years old no less ! Amazing! jEmoticon1.gif
Re: [TMIC] Re: tmic-digest Digest V2008 #478
AOL EmailHi Jude, It's so good to see you posting. I'm hoping that means you're feeling at least a little better? You know you are always in my prayers, dear Jude. Linda - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, December 04, 2008 9:27 PM Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #478 I gained a beer belly at the onset and have kept it ever since. Who duh thunk it??? Jude In a message dated 12/4/2008 10:19:37 P.M. Eastern Standard Time, [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] writes: Oh my gosh! same here I feel like the Stay Puff Marshmellow Gal! I gained 90 lbs when I got sick 4 years ago and have yet to lose any of it, -- Original message from jrushton [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]: -- In response to: I spent nine weeks in the hospital from Jan. to April in 1981. I haven't heard anyone talking about a swollen belly. I was 235 with 42 waist when I got this. When in the hospital I swelled so when discharged I was 205 with 60 inch waist. It stayed like that for many weeks, and when it finally went down any nervous excitement would make it blow up, this went on for over 20 yrs. When it blew up the band of pain was sometimes nearly unbearable. Ken in N.M. Ken, to this day I still have a poofy tummy that I did not have before TM and sometimes it is worse than others. Each doctor I mentioned it to just shrugged their shoulders so I didn't give it any more thought. I'm glad you mentioned it...Jeanne -- Make your life easier with all your friends, email, and favorite sites in one place. Try it nowhttp://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010.
Re: [TMIC] Re: tmic-digest Digest V2008 #478
In response to: I have taken Tramadol since day one, but not along with the other drugs you mention. The Tramadol has never, to my notice, done anything for me, but I have not seen a neuro' for years. Maybe I ought to make an appointment one day to see what new drugs might do to help my banding. It is so tight that much of the time I cannot eat...like tonight. Maybe if I wasn't taking it with the others it wouldn't work so well for me either, Jude. I always worry so about taking too much and that's not good either. I found the band hurting so bad I couldn't think of anything else and add to that the pain from there on down, it just doesn't do much for our quality of life, does it?? j
