FW: [TMIC] Artist w TM in New York times

2009-06-28 Thread Bob and Sue Mattis
 
 
Speaking as one WITH TM, and not as a caregiver, I find it much easier
to understand where this man might have been coming from.  It is very
possible that the evening might have literally taken every ounce of his
inner strength to get through and was truly done.  Nothing more to
give.  If there is anyone on the list who suffers with TM who has not
felt the exhaustion that drains literally everything out of you..at
least just once.then you are lucky.  Perhaps it took everything this
man had just to do what he had to that night.  We all push ourselves to
one degree or another. We HAVE to. That's how we get through each and
every day with TM.  Perhaps his push was much harder that day than ours.
Let's give him the benefit of the doubt and not be so critical of this
man.
 
-Original Message-
From: bobby jim [mailto:elbobber...@earthlink.net] 
Sent: Saturday, June 27, 2009 9:11 PM
To: T Kanon; Akua
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Artist w TM in New York times
 
Inasmuch as am an artist myself and also caregiver to my wife with MS I
can understand Shonibare's 'rudeness' but ne'rda'less I find it a bit
harsh.
 
With or without a disability, as an artist he is at the mercies of a
very fickle public.
Maybe he just doesn't give a hoot.
 
Bobberino 
From: T Kanon mailto:sseco...@yahoo.com  To: Akua
mailto:a...@artfarm.com  Cc: tmic-list@eskimo.com
Sent: Friday, June 26, 2009 4:58 PM
Subject: Re: [TMIC] Artist w TM in New York times
 

Last night was the opening of this artist's exhibit at the Brooklyn
Museum and I attended.  Two people helped him walk down the aisle and
onto the stage.  It looked as if his hands were affected too.  After the
lecture I saw him in his wheelchair being taken to a limo.  I went over
to him and asked if indeed he had TM.  He didn't even look at me and
just said I'm done.  A guard said he is very tired.  I know he was tired
but he was also very rude!!!
Tobe 
Brooklyn NY

--- On Wed, 6/24/09, Akua a...@artfarm.com wrote:

From: Akua a...@artfarm.com
Subject: [TMIC] Artist w TM in New York times
To: tmic-list@eskimo.com
Date: Wednesday, June 24, 2009, 9:42 PM
very interesting article on interesting artist who had...transverse
myelitis.  and was paralyzed.  but no longer is.. regained ability to
walk after three years in  a wheelchair
http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1
http://www.nytimes.com/2009/06/21/arts/design/21sont.html?_r=1scp=1sq
=shonibarest=cse scp=1sq=shonibarest=cse
 
 
-- 
 


Re: [TMIC] Sex

2009-06-28 Thread Janice
Wim, I realize that you being a man and me being a woman, we may be coming from 
different directions on this topic.   But,
I agree with you 100% that the love that is fostered before TM will carry you 
through the devastation of TM.That being said,
there are some really self-centered people in this married world that seem 
perfectly happy until something like TM happens, and
then the selfishness comes out.   If those struck with TM don't push the 
partner away out of anger and bitterness, and the healthy
partner is not of the selfish variety, the marriage has a chance to really be 
enhanced.   As you said, there are many ways to show
love and affection, sex being only one of them.

Janice   
  - Original Message - 
  From: wim from holland 
  To: bgunny7...@aol.com ; TMIC 
  Sent: Sunday, June 28, 2009 7:55 AM
  Subject: RE: [TMIC] Sex


  It is good now and then to pick up this subject again. All growen up people 
and we have all to deal with it. Nobody is an exeption in that, to talk about 
it is just like subject like 'going to the toilet'. Nobody seen you doing it, 
but verery body knows and understands it happens.
   
  My TM is between t6 - t10. You can say threre is no sex at all. Tm struck me 
at the age of 43, lucky we had 3 kids already. From that period on ( 6 month 
before) sex became more and more a problem and from the day of TM there was 
none. Because of the spasme I had du the temp differences, nice laying against 
to each other was also not possible, after a minut my legs started to spasm and 
I was kicking her. After a while also the lust was gone. Sometimes I forsed my 
self to concentrate on it, but it ended with thinking on shopping lists and 
bills I had to pay. 
   
  Lucky for me, my wife had seen that the love was still the same, but only the 
sex part was gone, we had both our tears about that. Now 12 years later we are 
still married, show our love in many ways to each other ( don't forget that 
part). Kids are all out of the house and we can do what we like, within all 
restricktions of the TM. The not understanding part of the outside world hits 
us harder as what we made out of it.
   
  Wim from Holland.
   

--
  From: bgunny7...@aol.com
  Date: Thu, 25 Jun 2009 10:02:40 -0400
  To: Tmic-list@eskimo.com
  Subject: [TMIC] Sex


  Some Interesting points have been brought up in this discussion, so I'm gonna 
chime in. Understand, I'm only speaking for myself, but there may be some 
points to ponder here. Ok, when I first got married again, and she came to 
Ohio, things went well the first night we were together,  but, after I got to 
see her demeanor and attitude, things went quickly down the tubes. It didn't 
take long for her to tell me she hated me, and wished I was dead. I suppose 
part of that was because I forced her to go to work. In any case, with me, not 
all men, physical attraction was the main purpose to get involved. One needs to 
take time to find out what kind of person lives inside the one you want to tie 
up with, and, is that the same person that's projected to the world, or are 
they different? Are they one person at home, and another to the outside world. 
If so, then that's a phoney. Since this wonderful probelm of TM has so 
graciously decided to rule my life, I've begun to see that looks don't mean a 
helluva lot. Oh, not the physicality doesn't matter, but it shouldn't be 
uppermost. In your youth, maybe, but as you age, you take on a different 
outlook. I know for myself, attitude plays a big role. If your a weasel of a 
person, nothings gonna happen, no matter how hard I try, or what pill I take. 
If, and if, I feel the desire, and your receptive, possibly. Also, age plays a 
role in this. I find the oder I get, the less desire I have. As far as feelings 
go, meaning sensation, if my partner has diminished sensation, I'll do what it 
takes to try and get some back. It's like, if you don't use it, you lose it 
syndrome. Maybe that'll work, maybe it wont, but, if you have feelings for you 
partner, you'll at least try. Men have a way of thinking, well, I can't feel 
anything or if you can't feel anything, what's the use. Oh yeah, what about at 
least giving it a shot. Your mind may come into play here in that, you remember 
what it was like, maybe it'll be that way again. But, if you don't try. you'll 
never know. One thing I've found out through my trek in life is, men need to 
know they're needed, and women need to know they're loved. If those two needs 
are met, the rest should fall into place. If you love each other, then damnit, 
show it. It's never too late to experiment. Take those old tapes that are 
playing in your mind, instilled by parents who say, certain sexual techniques 
if you will, are taboo, and throw em in the shit can. There's nothing taboo 
about loving someone, and showing them that you do. I gotta do more thinking on 

[TMIC]

2009-06-28 Thread Janice
I was just thinking the last few days of all of the responses from TM'ers that 
are artistic.  There are quite a few of you. You  seem to have a varied
interest in the arts and are still doing your thing.Coming from one who has 
absolutely no artistic ability, I really respect
what you all do.   I have always appreciated the arts (all forms), just was 
only able to appreciate it from afar. Thanks for
what you donate to pretty up the world!   Janice

Re: [TMIC] Facebook Page

2009-06-28 Thread bradebi

LOL...I love it..I am playing three games that are so addicting that I
forget that I have email I need to be reading..
 
Now when folks wonder why the list is slow, they should go to facebook and
check out Farm Town.  That must be where everyone disappears sometimes.
- Original Message - 
From: bradebi 
To: Akua ; tmic-list@eskimo.com ; Jim Lubin 
Sent: Friday, June 26, 2009 3:29 PM
Subject: Re: [TMIC] Facebook Page


I am too!!!...I love Farm Town!.I am taking a break... .I am into
building my Zoo right now..it is addicting too!.
Debi
 
 
 

---Original Message---
 
From: Jim Lubin
Date: 6/25/2009 7:37:10 PM
To: Akua;  tmic-list@eskimo.com
Subject: Re: [TMIC] Facebook Page
 
there are several TM-ADEM-NMO groups on Facebook, most are linked here
http://www.myelitis.org/support.htm

Jim 
(who has become addicted to the Farm Town game on Facebook)

At 06:43 PM 6/24/2009, Akua wrote:

I'm digging Facebook--- what about creating a fan page.
-- 

Jim Lubin   
jlu...@eskimo.com
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org




 



 Spiral_notebook.jpg

RE: [TMIC] Sex

2009-06-28 Thread jrushton
 Very well put, Wim.  Thank you for sharing..Jeanne
 
---Original Message---
 
From: wim from holland
Date: 6/28/2009 7:55:28 AM
To: bgunny7...@aol.com;  TMIC
Subject: RE: [TMIC] Sex
 
It is good now and then to pick up this subject again. All growen up people
and we have all to deal with it. Nobody is an exeption in that, to talk
about it is just like subject like 'going to the toilet'. Nobody seen you
doing it, but verery body knows and understands it happens.
 
My TM is between t6 - t10. You can say threre is no sex at all. Tm struck me
at the age of 43, lucky we had 3 kids already. From that period on ( 6 month
before) sex became more and more a problem and from the day of TM there was
none. Because of the spasme I had du the temp differences, nice laying
against to each other was also not possible, after a minut my legs started
to spasm and I was kicking her. After a while also the lust was gone.
Sometimes I forsed my self to concentrate on it, but it ended with thinking
on shopping lists and bills I had to pay. 
 
Lucky for me, my wife had seen that the love was still the same, but only
the sex part was gone, we had both our tears about that. Now 12 years later
we are still married, show our love in many ways to each other ( don't
forget that part). Kids are all out of the house and we can do what we like,
within all restricktions of the TM. The not understanding part of the
outside world hits us harder as what we made out of it.
 
Wim from Holland.
 


From: bgunny7...@aol.com
Date: Thu, 25 Jun 2009 10:02:40 -0400
To: Tmic-list@eskimo.com
Subject: [TMIC] Sex


Some Interesting points have been brought up in this discussion, so I'm
gonna chime in. Understand, I'm only speaking for myself, but there may be
some points to ponder here. Ok, when I first got married again, and she came
to Ohio, things went well the first night we were together,  but, after I
got to see her demeanor and attitude, things went quickly down the tubes. It
didn't take long for her to tell me she hated me, and wished I was dead. I
suppose part of that was because I forced her to go to work. In any case,
with me, not all men, physical attraction was the main purpose to get
involved. One needs to take time to find out what kind of person lives
inside the one you want to tie up with, and, is that the same person that's
projected to the world, or are they different? Are they one person at home,
and another to the outside world. If so, then that's a phoney. Since this
wonderful probelm of TM has so graciously decided to rule my life, I've
begun to see that looks don't mean a helluva lot. Oh, not the physicality
doesn't matter, but it shouldn't be uppermost. In your youth, maybe, but as
you age, you take on a different outlook. I know for myself, attitude plays
a big role. If your a weasel of a person, nothings gonna happen, no matter
how hard I try, or what pill I take. If, and if, I feel the desire, and your
receptive, possibly. Also, age plays a role in this. I find the oder I get,
the less desire I have. As far as feelings go, meaning sensation, if my
partner has diminished sensation, I'll do what it takes to try and get some
back. It's like, if you don't use it, you lose it syndrome. Maybe that'll
work, maybe it wont, but, if you have feelings for you partner, you'll at
least try. Men have a way of thinking, well, I can't feel anything or if you
can't feel anything, what's the use. Oh yeah, what about at least giving it
a shot. Your mind may come into play here in that, you remember what it was
like, maybe it'll be that way again. But, if you don't try. you'll never
know. One thing I've found out through my trek in life is, men need to know
they're needed, and women need to know they're loved. If those two needs are
met, the rest should fall into place. If you love each other, then damnit,
show it. It's never too late to experiment. Take those old tapes that are
playing in your mind, instilled by parents who say, certain sexual
techniques if you will, are taboo, and throw em in the shit can. There's
nothing taboo about loving someone, and showing them that you do. I gotta do
more thinking on this matter, but these are the thoughts that have been
running through my mind since this subject came up.



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[TMIC] Creating

2009-06-28 Thread Akua

Dear Janice,

I believe that everyone has a creative ability and those that say 
they have none, just haven't found their medium/genre/mode of 
expression yet.


As a child I did everything I do now -- and more,truth be told.

In between then and now there were things I dropped/stopped/left. The 
only things I've done continuously was write and sing. I stopped 
dancing, instrument playing, and visual artmaking for years. When my 
mother died in 1996, my grief left me dumbstruck and I started 
working with hot glass and making paper. So I believe that at any time

something may arrive to open that door to some new creative possibility.

Joy in the making,
Akua (who is mourning the death of Michael Jackson)

I was just thinking the last few days of all of the responses from 
TM'ers that are artistic.  There are quite a few of you. You  seem 
to have a varied
interest in the arts and are still doing your thing.Coming from 
one who has absolutely no artistic ability, I really respect
what you all do.   I have always appreciated the arts (all forms), 
just was only able to appreciate it from afar. Thanks for

what you donate to pretty up the world!   Janice



--



Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Todd Tarno
That won't happen again.
 
We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of your e-mails because of how TM 
has hit you.  But, you are right that this site doesn't have many quads, like 
you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take just to 
write an e-mails.  Both of you DO write wonderful long e-mails.  I do treasure 
each  everyone of your e-mails. 
I have trouble keeping up with this site, 
more power to you to do more than one sit.
Just know ya'll do have a FAN,
Todd in Corpus Christi, TX


--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM



Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I 
IDENTIFY more. I feel as though I offended you by saying this. There are issues 
and concerns of being a quad they are not addressed in the TM site and I would 
imagine it's because most people on this site are not quadriplegics. I go where 
I can find the information that helps me. If I did not want to be on this site, 
I could simply delete it from my contacts. There is nothing holding me back. I 
have asked questions on here regarding autonomic dysflexia, only to have no one 
respond. Because I later found out that it's a medical condition for 
quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers 
I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his 
hostility?? He knew that there would be a need for additional information, and 
that's all it is, is additional information.
I have been a member of this site, since I came home from the hospital in 2006, 
but I am always looking for any and all information that could be of help to me 
(as I'm sure all of us would be). There are people that use this site that are 
also members on the Yahoo Transverse Myelitis site. Should they just pick one 
or the other.
I have met many people through this site, one who has become my best friend who 
has TM. I would not trade that for anything, but your e-mail makes me feel as 
though I am unwelcomed or a traitor of sorts. This brings me to tears. As I 
have poured my heart out on this site (reluctant to make my personal problems 
public), but felt comfortable enough to share with others who are, also 
suffering with relationship problems, pain and depression. That won't happen 
again.


-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network









Then what is holding you back?  Why don't you simply quit this site and use the 
other one that you say you prefer?  What's the big deal?
 
Jude
 

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, 
ladyno...@aol.com writes:

I am also a member of the paraplegic/quadriplegic website that Jim has started. 
Although I have TM, which left me a quadriplegic, I identify more with the 
members of the paraplegic quadriplegic site then with the members of the TM 
site.
 
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis



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Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Dex Packard
I wish you people would learn to use BCC! That means that there is only one 
address showing not a whole bunch



  - Original Message - 
  From: Todd Tarno 
  To: ladyno...@aol.com 
  Cc: TMIC 
  Sent: Sunday, June 28, 2009 3:25 PM
  Subject: Re: [TMIC] Transverse Myelitis Network


That won't happen again.

We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of your e-mails because of 
how TM has hit you.  But, you are right that this site doesn't have many quads, 
like you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take just 
to write an e-mails.  Both of you DO write wonderful long e-mails.  I do 
treasure each  everyone of your e-mails. 
I have trouble keeping up with this site, 
more power to you to do more than one sit.
Just know ya'll do have a FAN,
Todd in Corpus Christi, TX


--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


  From: ladyno...@aol.com ladyno...@aol.com
  Subject: Re: [TMIC] Transverse Myelitis Network
  To: heyjude48...@aol.com, tmic-list@eskimo.com
  Date: Wednesday, June 17, 2009, 12:03 PM


  Jude,
  First of all, I never said I PREFER the paraplegic/quadriplegic site. 
I said I IDENTIFY more. I feel as though I offended you by saying this. There 
are issues and concerns of being a quad they are not addressed in the TM site 
and I would imagine it's because most people on this site are not 
quadriplegics. I go where I can find the information that helps me. If I did 
not want to be on this site, I could simply delete it from my contacts. There 
is nothing holding me back. I have asked questions on here regarding autonomic 
dysflexia, only to have no one respond. Because I later found out that it's a 
medical condition for quadriplegics, so I went to the paraplegic/quadriplegic 
site to get the answers I needed. I'm sure Jim uses these sites, HE CREATED 
THEM! Where is his hostility?? He knew that there would be a need for 
additional information, and that's all it is, is additional information.
  I have been a member of this site, since I came home from the 
hospital in 2006, but I am always looking for any and all information that 
could be of help to me (as I'm sure all of us would be). There are people that 
use this site that are also members on the Yahoo Transverse Myelitis site. 
Should they just pick one or the other.
  I have met many people through this site, one who has become my best 
friend who has TM. I would not trade that for anything, but your e-mail makes 
me feel as though I am unwelcomed or a traitor of sorts. This brings me to 
tears. As I have poured my heart out on this site (reluctant to make my 
personal problems public), but felt comfortable enough to share with others who 
are, also suffering with relationship problems, pain and depression. That won't 
happen again.



  -Original Message-
  From: heyjude48...@aol.com
  To: ladyno...@aol.com
  Sent: Wed, Jun 17, 2009 4:26 am
  Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this 
site and use the other one that you say you prefer?  What's the big deal?

Jude

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight 
Time, ladyno...@aol.com writes:
  I am also a member of the paraplegic/quadriplegic website 
that Jim has started. Although I have TM, which left me a quadriplegic, I 
identify more with the members of the paraplegic quadriplegic site then with 
the members of the TM site.

  Naomi
  C-4 Quadriplegic, since July 2, 2005
  Due to Transverse Myelitis


--
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Steps! 



--
  Download the AOL Classifieds Toolbar for local deals at your 
fingertips.


--
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RE: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Lori Biehler
If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!

 

From: Dex Packard [mailto:d...@centurytel.net] 
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis Network

 

I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch

 

 

 

- Original Message - 

From: Todd Tarno mailto:toddtm2...@sbcglobal.net  

To: ladyno...@aol.com 

Cc: TMIC mailto:tmic-list@eskimo.com  

Sent: Sunday, June 28, 2009 3:25 PM

Subject: Re: [TMIC] Transverse Myelitis Network

 


That won't happen again.

 

We do enjoy reading ALL of your e-mails.

I'm sadden that I'm unable to answer a few of your e-mails because of how TM
has hit you.  But, you are right that this site doesn't have many quads,
like you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take
just to write an e-mails.  Both of you DO write wonderful long e-mails.  I
do treasure each  everyone of your e-mails. 

I have trouble keeping up with this site, 

more power to you to do more than one sit.

Just know ya'll do have a FAN,

Todd in Corpus Christi, TX



--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM

Jude,

First of all, I never said I PREFER the paraplegic/quadriplegic site. I said
I IDENTIFY more. I feel as though I offended you by saying this. There are
issues and concerns of being a quad they are not addressed in the TM site
and I would imagine it's because most people on this site are not
quadriplegics. I go where I can find the information that helps me. If I did
not want to be on this site, I could simply delete it from my contacts.
There is nothing holding me back. I have asked questions on here regarding
autonomic dysflexia, only to have no one respond. Because I later found out
that it's a medical condition for quadriplegics, so I went to the
paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses
these sites, HE CREATED THEM! Where is his hostility?? He knew that there
would be a need for additional information, and that's all it is, is
additional information.

I have been a member of this site, since I came home from the hospital in
2006, but I am always looking for any and all information that could be of
help to me (as I'm sure all of us would be). There are people that use this
site that are also members on the Yahoo Transverse Myelitis site. Should
they just pick one or the other.

I have met many people through this site, one who has become my best friend
who has TM. I would not trade that for anything, but your e-mail makes me
feel as though I am unwelcomed or a traitor of sorts. This brings me to
tears. As I have poured my heart out on this site (reluctant to make my
personal problems public), but felt comfortable enough to share with others
who are, also suffering with relationship problems, pain and depression.
That won't happen again.




-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this site and use
the other one that you say you prefer?  What's the big deal?

 

Jude

 

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time,
ladyno...@aol.com
http://us.mc822.mail.yahoo.com/mc/compose?to=ladyno...@aol.com  writes:

I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members
of the TM site.

 

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis

 


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Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Richard Ashford
Todd' one of the reasons I reclused from this web site is because I had three 
members of my immediately family die and I needed to deal with funeral homes 
and I actually had to ask this list for donations and the people that I thought 
would help, did just did and I don't remember seeing Todd Tarno's name even as 
much as a salutation. I'm not picking on you but I know this, If you send a 
e-mail to Jim or anyone else on this list your email will eventually be 
answered. This is an amazing web site and if you are not satisfied with your 
business here, you can always go some where else and I guarentee you'll not 
find as many people who for you, I'm sorry your a quad, and is every one else 
is too. So please stop gripping because you feel your 2 cents are not heard, 
because it is heard. and we all love you and your e-mail gets heard. This was 
Jim dream and he could not be able to manage it on his on. We all keep it 
working.  So be carefull when you
 insinuate. Your friend Rick Ashford.





From: Todd Tarno toddtm2...@sbcglobal.net
To: ladyno...@aol.com
Cc: TMIC tmic-list@eskimo.com
Sent: Sunday, June 28, 2009 5:25:50 PM
Subject: Re: [TMIC] Transverse Myelitis Network


That won't happen again.

We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of your e-mails because of how TM 
has hit you.  But, you are right that this site doesn't have many quads, like 
you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take just to 
write an e-mails.  Both of you DO write wonderful long e-mails.  I do treasure 
each  everyone of your e-mails. 
I have trouble keeping up with this site, 
more power to you to do more than one sit.
Just know ya'll do have a FAN,
Todd in Corpus Christi, TX


--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM


Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I 
IDENTIFY more. I feel as though I offended you by saying this. There are issues 
and concerns of being a quad they are not addressed in the TM site and I would 
imagine it's because most people on this site are not quadriplegics. I go where 
I can find the information that helps me. If I did not want to be on this site, 
I could simply delete it from my contacts. There is nothing holding me back. I 
have asked questions on here regarding autonomic dysflexia, only to have no one 
respond. Because I later found out that it's a medical condition for 
quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers 
I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his 
hostility?? He knew that there would be a need for additional information, and 
that's all it is, is additional information.
I have been a member of this site, since I came home from the hospital in 2006, 
but I am always looking for any and all information that could be of help to me 
(as I'm sure all of us would be). There are people that use this site that are 
also members on the Yahoo Transverse Myelitis site. Should they just pick one 
or the other.
I have met many people through this site, one who has become my best friend who 
has TM. I would not trade that for anything, but your e-mail makes me feel as 
though I am unwelcomed or a traitor of sorts. This brings me to tears. As I 
have poured my heart out on this site (reluctant to make my personal problems 
public), but felt comfortable enough to share with others who are, also 
suffering with relationship problems, pain and depression. That won't happen 
again.


-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this site and use the 
other one that you say you prefer?  What's the big deal?
 
Jude

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, 
ladyno...@aol.com writes:
I am also a member of the paraplegic/quadriplegic website that Jim has started. 
Although I have TM, which left me a quadriplegic, I identify more with the 
members of the paraplegic quadriplegic site then with the members of the TM 
site.

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis



An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! 



Download the AOL Classifieds Toolbar for local deals at your fingertips.



Dell Days of Deals! June 15-24 - A New Deal Everyday!  

Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Dex Packard
Did it ever occur to you that every e-mail address you put in a message can be 
copied by others? 



  - Original Message - 
  From: Lori Biehler 
  To: 'Dex Packard' ; 'Todd Tarno' ; ladyno...@aol.com 
  Cc: 'TMIC' 
  Sent: Sunday, June 28, 2009 6:18 PM
  Subject: RE: [TMIC] Transverse Myelitis Network


  If reading a bunch of addresses was the worst thing that happened to me this 
year, I would really consider myself blessed!

   

  From: Dex Packard [mailto:d...@centurytel.net] 
  Sent: Sunday, June 28, 2009 7:11 PM
  To: Todd Tarno; ladyno...@aol.com
  Cc: TMIC
  Subject: Re: [TMIC] Transverse Myelitis Network

   

  I wish you people would learn to use BCC! That means that there is only one 
address showing not a whole bunch

   

   

   

- Original Message - 

From: Todd Tarno 

To: ladyno...@aol.com 

Cc: TMIC 

Sent: Sunday, June 28, 2009 3:25 PM

Subject: Re: [TMIC] Transverse Myelitis Network

 

  That won't happen again.

   

  We do enjoy reading ALL of your e-mails.

  I'm sadden that I'm unable to answer a few of your e-mails because of 
how TM has hit you.  But, you are right that this site doesn't have many quads, 
like you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take just 
to write an e-mails.  Both of you DO write wonderful long e-mails.  I do 
treasure each  everyone of your e-mails. 

  I have trouble keeping up with this site, 

  more power to you to do more than one sit.

  Just know ya'll do have a FAN,

  Todd in Corpus Christi, TX



  --- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM

Jude,

First of all, I never said I PREFER the paraplegic/quadriplegic 
site. I said I IDENTIFY more. I feel as though I offended you by saying this. 
There are issues and concerns of being a quad they are not addressed in the TM 
site and I would imagine it's because most people on this site are not 
quadriplegics. I go where I can find the information that helps me. If I did 
not want to be on this site, I could simply delete it from my contacts. There 
is nothing holding me back. I have asked questions on here regarding autonomic 
dysflexia, only to have no one respond. Because I later found out that it's a 
medical condition for quadriplegics, so I went to the paraplegic/quadriplegic 
site to get the answers I needed. I'm sure Jim uses these sites, HE CREATED 
THEM! Where is his hostility?? He knew that there would be a need for 
additional information, and that's all it is, is additional information.

I have been a member of this site, since I came home from the 
hospital in 2006, but I am always looking for any and all information that 
could be of help to me (as I'm sure all of us would be). There are people that 
use this site that are also members on the Yahoo Transverse Myelitis site. 
Should they just pick one or the other.

I have met many people through this site, one who has become my 
best friend who has TM. I would not trade that for anything, but your e-mail 
makes me feel as though I am unwelcomed or a traitor of sorts. This brings me 
to tears. As I have poured my heart out on this site (reluctant to make my 
personal problems public), but felt comfortable enough to share with others who 
are, also suffering with relationship problems, pain and depression. That won't 
happen again.




-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network

  Then what is holding you back?  Why don't you simply quit 
this site and use the other one that you say you prefer?  What's the big deal?

   

  Jude

   

  In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight 
Time, ladyno...@aol.com writes:

I am also a member of the paraplegic/quadriplegic website 
that Jim has started. Although I have TM, which left me a quadriplegic, I 
identify more with the members of the paraplegic quadriplegic site then with 
the members of the TM site.

 

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis

 




An Excellent Credit Score is 750. See Yours in Just 2 Easy 
Steps!
 

 




Download the AOL Classifieds Toolbar 

RE: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Lori Biehler
Yes I know that, just doesn't seem really important when one deals with
really sick people or people reaching out for help. I pick my battles.

Enough said.

Peace Out!

 

From: Dex Packard [mailto:d...@centurytel.net] 
Sent: Sunday, June 28, 2009 9:41 PM
To: Lori Biehler; 'Todd Tarno'; ladyno...@aol.com
Cc: 'TMIC'
Subject: Re: [TMIC] Transverse Myelitis Network

 

Did it ever occur to you that every e-mail address you put in a message can
be copied by others? 

 

 

 

- Original Message - 

From: Lori Biehler mailto:lbieh...@earthlink.net  

To: 'Dex Packard' mailto:d...@centurytel.net  ; 'Todd
mailto:toddtm2...@sbcglobal.net  Tarno' ; ladyno...@aol.com 

Cc: 'TMIC' mailto:tmic-list@eskimo.com  

Sent: Sunday, June 28, 2009 6:18 PM

Subject: RE: [TMIC] Transverse Myelitis Network

 

If reading a bunch of addresses was the worst thing that happened to me this
year, I would really consider myself blessed!

 

From: Dex Packard [mailto:d...@centurytel.net] 
Sent: Sunday, June 28, 2009 7:11 PM
To: Todd Tarno; ladyno...@aol.com
Cc: TMIC
Subject: Re: [TMIC] Transverse Myelitis Network

 

I wish you people would learn to use BCC! That means that there is only one
address showing not a whole bunch

 

 

 

- Original Message - 

From: Todd Tarno mailto:toddtm2...@sbcglobal.net  

To: ladyno...@aol.com 

Cc: TMIC mailto:tmic-list@eskimo.com  

Sent: Sunday, June 28, 2009 3:25 PM

Subject: Re: [TMIC] Transverse Myelitis Network

 


That won't happen again.

 

We do enjoy reading ALL of your e-mails.

I'm sadden that I'm unable to answer a few of your e-mails because of how TM
has hit you.  But, you are right that this site doesn't have many quads,
like you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take
just to write an e-mails.  Both of you DO write wonderful long e-mails.  I
do treasure each  everyone of your e-mails. 

I have trouble keeping up with this site, 

more power to you to do more than one sit.

Just know ya'll do have a FAN,

Todd in Corpus Christi, TX



--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM

Jude,

First of all, I never said I PREFER the paraplegic/quadriplegic site. I said
I IDENTIFY more. I feel as though I offended you by saying this. There are
issues and concerns of being a quad they are not addressed in the TM site
and I would imagine it's because most people on this site are not
quadriplegics. I go where I can find the information that helps me. If I did
not want to be on this site, I could simply delete it from my contacts.
There is nothing holding me back. I have asked questions on here regarding
autonomic dysflexia, only to have no one respond. Because I later found out
that it's a medical condition for quadriplegics, so I went to the
paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses
these sites, HE CREATED THEM! Where is his hostility?? He knew that there
would be a need for additional information, and that's all it is, is
additional information.

I have been a member of this site, since I came home from the hospital in
2006, but I am always looking for any and all information that could be of
help to me (as I'm sure all of us would be). There are people that use this
site that are also members on the Yahoo Transverse Myelitis site. Should
they just pick one or the other.

I have met many people through this site, one who has become my best friend
who has TM. I would not trade that for anything, but your e-mail makes me
feel as though I am unwelcomed or a traitor of sorts. This brings me to
tears. As I have poured my heart out on this site (reluctant to make my
personal problems public), but felt comfortable enough to share with others
who are, also suffering with relationship problems, pain and depression.
That won't happen again.




-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this site and use
the other one that you say you prefer?  What's the big deal?

 

Jude

 

In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time,
ladyno...@aol.com
http://us.mc822.mail.yahoo.com/mc/compose?to=ladyno...@aol.com  writes:

I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members
of the TM site.

 

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis

 


  _  


An Excellent Credit Score is 750. See
http://pr.atwola.com/promoclk/100126575x1221322979x1201367215/aol?redir=htt
p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=Jun
eExcfooterNO62  Yours 

Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread JHarper33
Good grief, Rick. Todd was not at all griping or insinuating  anything. He 
wrote a very gracious response to the previous e-mails in this  thread.
 
Barbara H.
 
 
In a message dated 6/28/2009 9:19:53 P.M. Eastern Daylight Time,  
ashfo...@att.net writes:

 
Todd' one of the reasons I reclused from this web site is because I had  
three members of my immediately family die and I needed to deal with funeral  
homes and I actually had to ask this list for donations and the people that 
I  thought would help, did just did and I don't remember seeing Todd Tarno's 
name  even as much as a salutation. I'm not picking on you but I know this, 
If you  send a e-mail to Jim or anyone else on this list your email will 
eventually be  answered. This is an amazing web site and if you are not 
satisfied with your  business here, you can always go some where else and I 
guarentee you'll not  find as many people who for you, I'm sorry your a quad, 
and 
is every one  else is too. So please stop gripping because you feel your 2 
cents are not  heard, because it is heard. and we all love you and your 
e-mail gets heard.  This was Jim dream and he could not be able to manage it 
on 
his on. We all  keep it working.  So be carefull when you insinuate. Your 
friend Rick  Ashford.


 

 From: Todd Tarno  toddtm2...@sbcglobal.net
To: ladyno...@aol.com
Cc: TMIC  tmic-list@eskimo.com
Sent: Sunday, June 28, 2009 5:25:50  PM
Subject: Re: [TMIC]  Transverse Myelitis Network

That won't happen again.
 
We do enjoy reading  ALL of your e-mails.
I'm sadden that I'm  unable to answer a few of your e-mails because of how 
TM has hit  you.  But, you are right that this site doesn't have many quads, 
 like you  Jim.  I'm amazed at ALL of your's e-mails.   What it must take 
just to write an e-mails.  Both of you DO write  wonderful long e-mails.  I 
do treasure each  everyone of your  e-mails. 
I have trouble  keeping up with this site, 
more power to you  to do more than one sit.
Just know ya'll do  have a FAN,
Todd in Corpus  Christi, TX


--- On Wed, 6/17/09, ladyno...@aol.com  ladyno...@aol.com wrote:



From:  ladyno...@aol.com ladyno...@aol.com
Subject: Re:  [TMIC] Transverse Myelitis Network
To:  heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June  17, 2009, 12:03 PM


Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic  site. I 
said I IDENTIFY more. I feel as though I offended you by  saying this. There 
are issues and concerns of being a quad they are  not addressed in the TM 
site and I would imagine it's because most  people on this site are not 
quadriplegics. I go where I can find the  information that helps me. If I did 
not 
want to be on this site, I  could simply delete it from my contacts. There is 
nothing holding me  back. I have asked questions on here regarding 
autonomic dysflexia,  only to have no one respond. Because I later found out 
that 
it's a  medical condition for quadriplegics, so I went to the  
paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim  uses 
these sites, 
HE CREATED THEM! Where is his hostility?? He knew  that there would be a need 
for additional information, and that's all  it is, is additional 
information.
I have been a member of this site, since I came home from the  hospital in 
2006, but I am always looking for any and all information  that could be of 
help to me (as I'm sure all of us would be). There  are people that use this 
site that are also members on the Yahoo  Transverse Myelitis site. Should 
they just pick one or the  other.
I have met many people through this site, one who has become my  best 
friend who has TM. I would not trade that for anything, but your  e-mail makes 
me 
feel as though I am unwelcomed or a traitor of sorts.  This brings me to 
tears. As I have poured my heart out on this site  (reluctant to make my 
personal problems public), but felt comfortable  enough to share with others 
who 
are, also suffering with relationship  problems, pain and depression. That 
won't happen  again.



-Original Message-
From:  heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17,  2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis  Network


 
 
Then what is holding you back?   Why don't you simply quit this site and 
use the other one that  you say you prefer?  What's the big  deal?
 
Jude
 
 
In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight  Time, 
_ladyno...@aol.com_ 
(http://us.mc822.mail.yahoo.com/mc/compose?to=ladyno...@aol.com)  
writes:

I am also a member of the  paraplegic/quadriplegic website that Jim has 
started. Although  I have TM, which left me a quadriplegic, I identify more 
with  the members of the paraplegic quadriplegic site then with the  members of 
the TM site.
 
Naomi
C-4 Quadriplegic, since  July 2, 2005
Due to Transverse Myelitis

 

An Excellent Credit Score is 750. _See Yours in Just 2 Easy  

Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread kimr1999






Barbara, I aslo read the same, Looks like Todd was giving kuddos to the TM quads that were able to type lengthly emails here is what he wrote and as far as I can see it is nothing short of praise how can the below be misread or how was it put Rick? So be carefull when you insinuate
(Todds email) I'm amazed at ALL of your's e-mails. What it must take just to write an e-mails. Both of you DO write wonderful long e-mails. I do treasure each  everyone of your e-mails. 

-- Original message from jharpe...@aol.com: -- 


Good grief, Rick. Todd was not at all griping or insinuating anything. He wrote a very gracious response to the previous e-mails in this thread.

Barbara H.


In a message dated 6/28/2009 9:19:53 P.M. Eastern Daylight Time, ashfo...@att.net writes:


Todd' one of the reasons I reclused from this web site is because I had three members of my immediately family die and I needed to deal with funeral homes and I actually had to ask this list for donations and the people that I thought would help, did just did and I don't remember seeing Todd Tarno's name even as much as a salutation. I'm not picking on you but I know this, If you send a e-mail to Jim or anyone else on this list your email will eventually be answered. This is an amazing web site and if you are not satisfied with your business here, you can always go some where else and I guarentee you'll not find as many peoplewho for you, I'm sorry your a quad, and is every one else is too. So please stop gripping because you feel your 2 cents are not heard, because it is heard. and we all love you and your e-mail gets heard. This was Jim" dream and he could not be able to manage it on his on. We all keep it working. So be carefull when you insinuate. Your friend Rick Ashford.



From: Todd Tarno toddtm2...@sbcglobal.netTo: ladyno...@aol.comCc: TMIC tmic-list@eskimo.comSent: Sunday, June 28, 2009 5:25:50 PMSubject: Re: [TMIC] Transverse Myelitis Network




That won't happen again.

We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of your e-mails because of how TM has hit you. But, you are right that this site doesn't have many quads, like you  Jim. I'm amazed at ALL of your's e-mails. What it must take just to write an e-mails. Both of you DO write wonderful long e-mails. I do treasure each  everyone of your e-mails. 
I have trouble keeping upwith this site, 
more power to you to do more than one sit.
Just know ya'll do have a FAN,
Todd in Corpus Christi, TX
--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:
From: ladyno...@aol.com ladyno...@aol.comSubject: Re: [TMIC] Transverse Myelitis NetworkTo: heyjude48...@aol.com, tmic-list@eskimo.comDate: Wednesday, June 17, 2009, 12:03 PM

Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I IDENTIFY more. I feel as though I offended you by saying this. There are issues and concerns of being a quad they are not addressed in the TM site and I would imagine it's because most people on this site are not quadriplegics. I go where I can find the information that helps me. If I did not want to be on this site, I could simply delete it from my contacts. There is nothing holding me back. I have asked questions on here regarding autonomic dysflexia, only to have no one respond. Because I later found out that it's a medical condition for quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his hostility?? He knew that there would be a need for additional information, and that's all it is, is additional information.
I have been a member of this site, since I came home from the hospital in 2006, but I am always looking for any and all information that could be of help to me (as I'm sure all of us would be). There are people that use this site that are also members on the Yahoo Transverse Myelitis site. Should they just pick one or the other.
I have met many people through this site, one who has become my best friend who has TM. I would not trade that for anything, but your e-mail makes me feel as though I am unwelcomed or a traitor of sorts. This brings me to tears. As I have poured my heart out on this site (reluctant to make my personal problems public), but felt comfortable enough to share with others who are, also suffering with relationship problems, pain and depression. That won't happen again.-Original Message-From: heyjude48...@aol.comTo: ladyno...@aol.comSent: Wed, Jun 17, 2009 4:26 amSubject: Re: [TMIC] Transverse Myelitis Network







Then what is holding you back? Why don't you simply quit this site and use the other one that you say you prefer? What's the big deal?

Jude


In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, ladyno...@aol.com writes:

I am also a member of the paraplegic/quadriplegic website that Jim has started. Although I have TM, which left me a quadriplegic, I 

[TMIC] Sheesh! Stop it Guys!

2009-06-28 Thread Grace M.
*Todd did not intentionally do anything wrong.  He wrote an extremely
supportive post to Naomi.  He in no way disparaged this list, or anyone on
it.  I've known Todd since I first became ill and he has never been ANYTHING
but good to me, and I have never seen him post anything negative to anyone
on this list site.  I also know that he would help anyone here that he
could, if he had the means to do so.  Sadly, not all of us have the means to
do so, myself included.  For the life of me I do not understand what has
been going on here lately.*
**
*Grace*


Re: [TMIC] I'm on you tube

2009-06-28 Thread JHarper33
I just watched the first bit, but very cool! We could have  used this years 
ago -- we had a Bentwood rocker with a cane seat that kept  needing to be 
replaced every few years, so we finally got rid of it. But I  rocked all of 
my babies in it -- pleasant memories!
 
It was neat to see you. It's great that you put this online  for others 
to benefit from.
 
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
 
 
In a message dated 6/27/2009 12:41:44 A.M. Eastern Daylight Time,  
we4king...@verizon.net writes:

My  husband and I made a you tube video, Mainly for chair caners and it's 
long (10  min) but if any of you know anyone who wants to restore one of 
those oak and  cane WW1 wheelchairs send them to my video site as they are done 
the same way  as the chair I'm working on.


Mindy the Artist 
_http://www.youtube.com/watch?v=dr75Po5pinM_ 
(http://www.youtube.com/watch?v=dr75Po5pinM) 



=

**An Excellent Credit Score is 750. See Yours in Just 2 Easy 
Steps! 
(http://pr.atwola.com/promoclk/100126575x1221323006x1201367222/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun
eExcfooterNO62)


Re: [TMIC] Transverse Myelitis Network

2009-06-28 Thread Richard Ashford
Barbara, I apoligize, I was wrong and the message was taken in the wrong frame 
of mind. Please forgive me Todd. I have noone but myself to blame for the 
rudness. Since new years eve I have lost My Son, My Father, and my favorite 
Aunt. I suspose I was just lashing. I'm sorry that I spoke to you in such a 
way. I'm para and I have no Idea how the Quads feel. It is my worst nightmare 
to be in your position. Please, except my appoligy'. Rick





From: jharpe...@aol.com jharpe...@aol.com
To: ashfo...@att.net; toddtm2...@sbcglobal.net
Cc: tmic-list@eskimo.com
Sent: Sunday, June 28, 2009 8:52:18 PM
Subject: Re: [TMIC] Transverse Myelitis Network

Good grief, Rick. Todd was not at all griping or insinuating anything. He wrote 
a very gracious response to the previous e-mails in this thread.
 
Barbara H.

In a message dated 6/28/2009 9:19:53 P.M. Eastern Daylight Time, 
ashfo...@att.net writes:
Todd' one of the reasons I reclused from this web site is because I had three 
members of my immediately family die and I needed to deal with funeral homes 
and I actually had to ask this list for donations and the people that I thought 
would help, did just did and I don't remember seeing Todd Tarno's name even as 
much as a salutation. I'm not picking on you but I know this, If you send a 
e-mail to Jim or anyone else on this list your email will eventually be 
answered. This is an amazing web site and if you are not satisfied with your 
business here, you can always go some where else and I guarentee you'll not 
find as many people who for you, I'm sorry your a quad, and is every one else 
is too. So please stop gripping because you feel your 2 cents are not heard, 
because it is heard. and we all love you and your e-mail gets heard. This was 
Jim dream and he could not be able to manage it on his on. We all keep it 
working.  So be carefull when you
 insinuate. Your friend Rick Ashford.





From: Todd Tarno toddtm2...@sbcglobal.net
To: ladyno...@aol.com
Cc: TMIC tmic-list@eskimo.com
Sent: Sunday, June 28, 2009 5:25:50 PM
Subject: Re: [TMIC] Transverse Myelitis Network


That won't happen again.

We do enjoy reading ALL of your e-mails.
I'm sadden that I'm unable to answer a few of your e-mails because of how TM 
has hit you.  But, you are right that this site doesn't have many quads, like 
you  Jim.  I'm amazed at ALL of your's e-mails.  What it must take just to 
write an e-mails.  Both of you DO write wonderful long e-mails.  I do treasure 
each  everyone of your e-mails. 
I have trouble keeping up with this site, 
more power to you to do more than one sit.
Just know ya'll do have a FAN,
Todd in Corpus Christi, TX


--- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote:


From: ladyno...@aol.com ladyno...@aol.com
Subject: Re: [TMIC] Transverse Myelitis Network
To: heyjude48...@aol.com, tmic-list@eskimo.com
Date: Wednesday, June 17, 2009, 12:03 PM


Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I 
IDENTIFY more. I feel as though I offended you by saying this. There are issues 
and concerns of being a quad they are not addressed in the TM site and I would 
imagine it's because most people on this site are not quadriplegics. I go where 
I can find the information that helps me. If I did not want to be on this site, 
I could simply delete it from my contacts. There is nothing holding me back. I 
have asked questions on here regarding autonomic dysflexia, only to have no one 
respond. Because I later found out that it's a medical condition for 
quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers 
I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his 
hostility?? He knew that there would be a need for additional information, and 
that's all it is, is additional information.
I have been a member of this site, since I came home from the hospital in 2006, 
but I am always looking for any and all information that could be of help to me 
(as I'm sure all of us would be). There are people that use this site that are 
also members on the Yahoo Transverse Myelitis site. Should they just pick one 
or the other.
I have met many people through this site, one who has become my best friend who 
has TM. I would not trade that for anything, but your e-mail makes me feel as 
though I am unwelcomed or a traitor of sorts. This brings me to tears. As I 
have poured my heart out on this site (reluctant to make my personal problems 
public), but felt comfortable enough to share with others who are, also 
suffering with relationship problems, pain and depression. That won't happen 
again.


-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network


Then what is holding you back?  Why don't you simply quit this site and use the 
other one that you say you prefer?  What's the big deal?
 
Jude

Re: [TMIC] Sheesh! Stop it Guys!

2009-06-28 Thread jrushton
Gosh, and it's not even a full moon!!!  OK..  I always tell my kids that you
cannot change one second of what has already happened...just learn from it,
go forward and try to be a better person than you were the day before.  Some
of you have heard me say this soHOW ABOUT STARTING OVER FROM THIS MOMENT
ON  We're only human.  We have each other in this TM thing and that is a
very special thing to have.  Jeanne


 
---Original Message---
 
From: Grace M.
Date: 06/28/09 21:04:19
To: tmic-list@eskimo.com
Subject: [TMIC] Sheesh! Stop it Guys!
 
Todd did not intentionally do anything wrong.  He wrote an extremely
supportive post to Naomi.  He in no way disparaged this list, or anyone on
it.  I've known Todd since I first became ill and he has never been ANYTHING
but good to me, and I have never seen him post anything negative to anyone
on this list site.  I also know that he would help anyone here that he could
 if he had the means to do so.  Sadly, not all of us have the means to do so
 myself included.  For the life of me I do not understand what has been
going on here lately.
 
Grace
 01_tile.jpg01_side.gif

[TMIC] is it raining everywhere?

2009-06-28 Thread Akua

is it grief over public losses  and our private struggles?
I'm reading *anger* vented at friends  (Todd)  who merely quoted an/others.
Let's not beat each up-- TM already does that.
Akua
--