Re: [TMIC] I met a TMer!!!!!

[Gillian Clark]

That's very kind of you Jan :)), I just don't often to have something 
constructive to say these days.  I think too maybe I'm a bit too unconventional 
in my approach to help many of the new people.  Of course, I didn't really need 
to tell you that, did I?  :))

hugs
Gilly
  - Original Message - 
  From: Jan Hargrove 
  To: TM list ; Gillian Clark 
  Sent: Sunday, September 13, 2009 12:40 AM
  Subject: Re: [TMIC] I met a TMer!


G'Day to you, too!

I'm so glad for you that you've met another tmer in 'real' life..but 
I'm asking you to please not go into retirement again and never speak up!!  We 
miss you!!
Hugs, janh


--- On Sat, 9/12/09, Gillian Clark  wrote:


  G'day All,

  It's been such a long time since I've written to the list but I 
assure you, I've been reading and keeping up with you all.  I was devastated to 
hear we have lost another member of our family.  R.I.P.  Rick.

  I've bought myself out of posting retirement today because something 
so special has happened!  I have just said goodbye to my visitors.  They 
are Allen and Andrea Southern.  Andrea is a member of our list, a lurking 
member but a member none the less.

  After 8 years of tm I've never met another person "in the flesh" who 
has it.

  We had a lovely visit and I can't begin to describe how wonderful it 
was to have a "real life" conversation with another tmer.

  OK, I won't ramble anymore but I did so want to share with you all.

  hugs
  Gilly, the old girl from Australia. 

Re: [TMIC] I met a TMer!!!!!

[Gillian Clark]

G'day Janice, 

I know what you mean about our list, they most certainly saved me and it's 
always wonderful to know you are all here.  Having Andrea here in the flesh was 
just something else again.  Also the fact that our residuals are just so 
similar was especially "bonding".

hugs
Gilly
  - Original Message - 
  From: Janice 
  To: Gillian Clark ; TM list 
  Sent: Saturday, September 12, 2009 11:25 PM
  Subject: Re: [TMIC] I met a TMer!


  That would be totally awesome to experience that.  I felt a lot like you 
do now when I started on this website.   It was
  wonderful to finally talk to others who had the same disease. I hope I 
experience a meeting with someone with TM too.
  Janice
- Original Message - 
From: Gillian Clark 
To: TM list 
Sent: Saturday, September 12, 2009 3:18 AM
Subject: [TMIC] I met a TMer!


G'day All,

It's been such a long time since I've written to the list but I assure you, 
I've been reading and keeping up with you all.  I was devastated to hear we 
have lost another member of our family.  R.I.P.  Rick.

I've bought myself out of posting retirement today because something so 
special has happened!  I have just said goodbye to my visitors.  They are 
Allen and Andrea Southern.  Andrea is a member of our list, a lurking member 
but a member none the less.

After 8 years of tm I've never met another person "in the flesh" who has it.

We had a lovely visit and I can't begin to describe how wonderful it was to 
have a "real life" conversation with another tmer.

OK, I won't ramble anymore but I did so want to share with you all.

hugs
Gilly, the old girl from Australia.

Re: [TMIC] I met a TMer!!!!!

[Gillian Clark]

Kevin, we didn't spend the whole time talking about our symptoms etc, perhaps 
just how we cope daily with the situations that arise.  Our husbands were with 
us and of course it was very helpful for them too.  There were times when we 
actually talked about entirely unrelated tm topics but it always came back to 
tm.

How are your beautiful canes coming along?  

hugs
Gilly
  - Original Message - 
  From: kevin weilacher 
  To: Gillian Clark ; TM list 
  Sent: Saturday, September 12, 2009 10:51 PM
  Subject: Re: [TMIC] I met a TMer!


  Gilly, that is wonderful...I know how cool it was for me when I met two other 
TMr's here locally for the first time. It was kind of goofy because the whole 2 
hours or so of our conversation consisted of comparing symptoms and such but it 
was such a comfort I guess, knowing that there were others right there in front 
of me, that knew exactly what I had and was experiencing. It kind of gives you 
something of a special bond that you don't always experience with other 
"friends"
  Here's to your continued friendship with them...
  Take care,
  Kevin




--
  From: Gillian Clark 
  To: TM list 
  Sent: Saturday, September 12, 2009 4:18:20 AM
  Subject: [TMIC] I met a TMer!


  G'day All,

  It's been such a long time since I've written to the list but I assure you, 
I've been reading and keeping up with you all.  I was devastated to hear we 
have lost another member of our family.  R.I.P.  Rick.

  I've bought myself out of posting retirement today because something so 
special has happened!  I have just said goodbye to my visitors.  They are 
Allen and Andrea Southern.  Andrea is a member of our list, a lurking member 
but a member none the less.

  After 8 years of tm I've never met another person "in the flesh" who has it.

  We had a lovely visit and I can't begin to describe how wonderful it was to 
have a "real life" conversation with another tmer.

  OK, I won't ramble anymore but I did so want to share with you all.

  hugs
  Gilly, the old girl from Australia.

Re: [TMIC] I met a TMer!!!!!

[pjv1234]

It's exciting isn't it?  
I met Heather from Calgary after two years of emails and phone calls.
I met Jude while she was sick and then got to watch her get better and  
I had the priviledge of meeting Carol and her precious Jim who just passed away 
as well as  Lynne Meyers and two others at a Michigan meeting.
Each time I sit with another TMer I leave feeling invigorated.  We can moan and 
groan and laugh all at the same time and it's such fun! 
Patti  -  Michigan
 Gillian Clark  wrote: 
> G'day All,
> 
> It's been such a long time since I've written to the list but I assure you, 
> I've been reading and keeping up with you all.  I was devastated to hear we 
> have lost another member of our family.  R.I.P.  Rick.
> 
> I've bought myself out of posting retirement today because something so 
> special has happened!  I have just said goodbye to my visitors.  They are 
> Allen and Andrea Southern.  Andrea is a member of our list, a lurking member 
> but a member none the less.
> 
> After 8 years of tm I've never met another person "in the flesh" who has it.
> 
> We had a lovely visit and I can't begin to describe how wonderful it was to 
> have a "real life" conversation with another tmer.
> 
> OK, I won't ramble anymore but I did so want to share with you all.
> 
> hugs
> Gilly, the old girl from Australia.

Re: [TMIC] need advice

[fr...@franksheldon.com]

 I am scheduled to see our medical doctor next week, but thought maybe someone 
might have some ideas to help me till then.

Linda,

You missed my E-mail:

Metamucil at least once a day. Follow the direction.

H2O- Water at least a liter (Quart) every day. Coffee & Tea don't count!!

Mineral oil: One Tablespoonful every day, orally!

Prunes one a day or every other day, orally.  There is now a plum drink that 
may work just as well.

I hope that helps

F

[TMIC] Looking for TMr's from N.E. Ohio area

[kevin weilacher]

Who here on the list is from what is classified as the N.E. Ohio area.
I have the 2007-2008 TMA directory and I'm sure that there have been some 
changes or updates.
I'm looking at trying to start a NE Ohio TMA support group. I know there is an 
Ohio support group but I believe the closest area is Columbus. Honestly, that 
is a bit too far for me to drive for support meeting get togethers.
I know Gunny is on here and I know about Ella in Elyriacan anyone help me 
out..?
I think we could benefit from something like thisespecially in light of the 
recent posting from Gilly...where she said that she just recently met another 
TM'r. How many others are out there that would like to meet another TM'r and 
you might have someone in your "back yard" so to speak that you don't know 
about.

Thanks,
Kevin



  

[TMIC] need advice

[Linda]

I have had TM for nearly 7 years now, and as embarrassing as it is to admit, my 
bowels and bladder are not getting better, in fact at times they are 
worse.I take Metamucil faithfully every morning and for some time that 
helped my bowels, but lately it is notI feel the urge and can not hold it 
in and have an accidentany suggestions or any good thoughts as what to do? 
I don't know whether to take the metamucil 2 times a day or add something else. 
I am on meds for my bladder and so far so good there. I am scheduled to see our 
medical doctor next week, but thought maybe someone might have some ideas to 
help me till then.
Thanks.Linda in Ohio


  

Re: [TMIC] Unidentified subject!

[Akua]

I wonder if this could work for TM?  Does anyone take this blood 
pressure medicine and notice any difference?  Maybe with some blue 
gatorade and blue M&M's it would work better...hehe


http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109


Saving this! Thanks Jill!
Akua

--

Re: [TMIC] I met a TMer!!!!!

[Grace M.]

*Hi Gilly.  *
**
*Isn't it a great feeling to meet someone else who has TM face to face?  I
got to meet two of my NMO friends in the flesh, and it was wonderful.
Someone else actually *gets it*, you know?   *
**
*Many hugs, and see ya at Facebook,  *
*Gracie*


>
>
>
>  G'day All,
>
> It's been such a long time since I've written to the list but I assure you,
> I've been reading and keeping up with you all.  I was devastated to hear we
> have lost another member of our family.  R.I.P.  Rick.
>
> I've bought myself out of posting retirement today because something so
> special has happened!  I have just said goodbye to my visitors.  They
> are Allen and Andrea Southern.  Andrea is a member of our list, a lurking
> member but a member none the less.
>
> After 8 years of tm I've never met another person "in the flesh" who has
> it.
>
> We had a lovely visit and I can't begin to describe how wonderful it was to
> have a "real life" conversation with another tmer.
>
> OK, I won't ramble anymore but I did so want to share with you all.
>
> hugs
> Gilly, the old girl from Australia.
>
>

Re: [TMIC] I met a TMer!!!!!

[Jan Hargrove]

G'Day to you, too!
 
I'm so glad for you that you've met another tmer in 'real' life..but I'm asking 
you to please not go into retirement again and never speak up!!  We miss you!!
Hugs, janh


--- On Sat, 9/12/09, Gillian Clark  wrote:






G'day All,
 
It's been such a long time since I've written to the list but I assure you, 
I've been reading and keeping up with you all.  I was devastated to hear we 
have lost another member of our family.  R.I.P.  Rick.
 
I've bought myself out of posting retirement today because something so special 
has happened!  I have just said goodbye to my visitors.  They are Allen and 
Andrea Southern.  Andrea is a member of our list, a lurking member but a member 
none the less.
 
After 8 years of tm I've never met another person "in the flesh" who has it.
 
We had a lovely visit and I can't begin to describe how wonderful it was to 
have a "real life" conversation with another tmer.
 
OK, I won't ramble anymore but I did so want to share with you all.
 
hugs
Gilly, the old girl from Australia.

Re: [TMIC] Unidentified subject!

[Grace M.]

*I've taken it for years and no it doesn't make a difference.  MS is a
totally different disease process than idiopathic TM, though MS patients can
certainly present with TM.  *
**
*Grace*

On Sat, Sep 12, 2009 at 7:53 AM, Jill Z  wrote:

>   I wonder if this could work for TM?  Does anyone take this blood
> pressure medicine and notice any difference?  Maybe with some blue gatorade
> and blue M&M's it would work better...hehe
>
>
> http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109
>

[TMIC] Death

[Janice]

Okay, Frank.   This morning, after rereading your response to death and all the 
"activities" you say you have done in your life, I
realize I should read all my emails BEFORE I take my meds for the nite.  I 
don't think 6 of you could have accomplished all
of that!  Sounds good, though.
Janice

Re: [TMIC] I met a TMer!!!!!

[Janice]

That would be totally awesome to experience that.  I felt a lot like you do 
now when I started on this website.   It was
wonderful to finally talk to others who had the same disease. I hope I 
experience a meeting with someone with TM too.
Janice
  - Original Message - 
  From: Gillian Clark 
  To: TM list 
  Sent: Saturday, September 12, 2009 3:18 AM
  Subject: [TMIC] I met a TMer!


  G'day All,

  It's been such a long time since I've written to the list but I assure you, 
I've been reading and keeping up with you all.  I was devastated to hear we 
have lost another member of our family.  R.I.P.  Rick.

  I've bought myself out of posting retirement today because something so 
special has happened!  I have just said goodbye to my visitors.  They are 
Allen and Andrea Southern.  Andrea is a member of our list, a lurking member 
but a member none the less.

  After 8 years of tm I've never met another person "in the flesh" who has it.

  We had a lovely visit and I can't begin to describe how wonderful it was to 
have a "real life" conversation with another tmer.

  OK, I won't ramble anymore but I did so want to share with you all.

  hugs
  Gilly, the old girl from Australia.

Re: [TMIC] Death

[fr...@franksheldon.com]

> Life just isn't fair - even to good people. 

Janice,

My life has changed a lot. I now exercise every day. I hate it, but exercise 
keeps me slim and keeps my body working. I have lost 20 pounds over the last 
several years so my Blood sugars, blood pressure and Lipids are now normal, but 
I could easily gain weight and return to where I was three years ago.

Listen to Lori, I did.

F

Re: [TMIC] I met a TMer!!!!!

[kevin weilacher]

Gilly, that is wonderful...I know how cool it was for me when I met two other 
TMr's here locally for the first time. It was kind of goofy because the whole 2 
hours or so of our conversation consisted of comparing symptoms and such but it 
was such a comfort I guess, knowing that there were others right there in front 
of me, that knew exactly what I had and was experiencing. It kind of gives you 
something of a special bond that you don't always experience with other 
"friends"
Here's to your continued friendship with them...
Take care,
Kevin





From: Gillian Clark 
To: TM list 
Sent: Saturday, September 12, 2009 4:18:20 AM
Subject: [TMIC] I met a TMer!

 
G'day 
All,
 
It's been such a 
long time since I've written to the list but I assure you, I've been reading 
and 
keeping up with you all.  I was devastated to hear we have lost another 
member of our family.  R.I.P.  Rick.
 
I've bought 
myself out of posting retirement today because something so special has 
happened!  I have just said goodbye to my visitors.  They are 
Allen and Andrea Southern.  Andrea is a member of our list, a lurking 
member but a member none the less.
 
After 8 years of 
tm I've never met another person "in the flesh" who has it.
 
We had a lovely 
visit and I can't begin to describe how wonderful it was to have a "real life" 
conversation with another tmer.
 
OK, I won't 
ramble anymore but I did so want to share with you all.
 
hugs
Gilly, the old 
girl from Australia.


  

RE: [TMIC] Death

[wim from holland]

The fact that I had TM made me see the future in an other way. I always step on 
two thougths. One , you will getting old, the other, I hope that I am not 
getting old, because this way I need more and more help, can't do less and less 
on my own. Before I can't do anything on my own I hope I leave this planet. The 
first said to me, you have to hold on as long as possible for your wife, kids 
and grandkids.

 

Personal, I don't have a problem if I not waking up the next morning. I did 
read a book about people who had a nearly death expiriment. Some during a 
operation, some after an accident. They are all alike and conferm what my 
belive is based what the bible said.  The book is written by a hart surgent, 
who spook with his patients after they were dead for a few moments. They speak 
about a warm peacefull feeling, feel the love in there harts. Some see there 
own operation, some drift away to a warm peacefull light, meeting relatifs who 
died before.

 

the most beautifull story is about a kid nearly dead by drowning,  who mets a 
girl, wich seemes to be her sister Liane, she did not know she had one. The kid 
got answers on all het questions, the light she saw, is that God. No , het 
sister answered, it is just his breath. The white persons she saw, are those 
angels? No, other souls who are visible for you now, ones you are back you 
can't see them, but they are also around you, I am also around you now and 
then. After she was brought back to life she spook with her parents who admid 
she had a sister two years before her birth, she died after an illness. And her 
name was indeed Liane. 

 

Because the writer has also a medical background, he explains a lot of matters. 
Fact is that non believers are starting to go to church, now and then, a lot 
quit there job and start working in heathcare or socialcare. Believers who go 
the church on regular base, are going less to church but are more active on 
social matters. The book explains that every soul has an eternal life. The 
writer is a dutch doctor called Pim van Lommel, can't find the book in Engish 
yet. 

 

Wim from Holland

 

 


From: jan...@centurytel.net
To: tmic-l...@eskimo.net
Date: Fri, 11 Sep 2009 12:01:26 -0500
Subject: [TMIC] Death




TM'ers,
I have only been on this website about a year, but lately it seems that we are 
losing several members.Maybe Frank can weigh
in on this one.Are these people dying because of TM, or is it that they 
have had it for so many years and they are elderly?
Or  is it because TM brings on other complications? What do you all 
know about this? I am really getting
concerned.
 
Janice
_
RU Live de place to be voor Messengerfans
http://www.rulive.nl/

[TMIC] Unidentified subject!

[Jill Z]

I wonder if this could work for TM?  Does anyone take this blood pressure 
medicine and notice any difference?  Maybe with some blue gatorade and blue 
M&M's it would work better...hehe
 
http://www.webmd.com/multiple-sclerosis/news/20090817/blood-pressure-drug-may-help-treat-ms?ecd=wnl_mls_091109

Re: [TMIC] Death

[Heyjude48458]

 
 
Dear Janice,
 
Pam was my best friend and I miss her every  minute of every day that 
passes.  My heart goes out to every person  who has to experience the 
heartbreak 
of losing someone they  love.
 
I have lost both of my parents, my two brothers,  all of my Aunts and 
Uncles and so far, all but one of my very close  friends.
 
I have learned to celebrate their passing on to  a far better place than 
this old world, and in fact, I even feel left out  and want to be with them 
more than I want to be  here.
 
But I know that God must have more work for me  to do here because this is 
where I wake up every morning...right in this  same old bed, with all of the 
pain and agony, mentally and  physically.
 
I take on the responsibility and try to do the  best for my fellow man and 
remember to tell those that I care for that I  love them.  I Pray for all I 
know, and those that I don't know... I  don't know what else to  do.  I 
don't know if that is  enough.  I answer every email and feel fortunate that 
there is  someone out there who understands the way I feel.
 
I love you,
Jude
 
 
In a message dated 9/11/2009 1:01:58 P.M. Eastern Daylight Time,  
jan...@centurytel.net writes:

TM'ers,
I have only been on this website about a year, but lately it seems  that we 
are losing several members.Maybe Frank can  weigh
in on this one.Are these people dying because of  TM, or is it that 
they have had it for so many years and they are  elderly?
Or  is it because TM brings on other  complications?  What do 
you all know about this? I am really  getting
concerned.
 
Janice

[TMIC] Re: Fw: Good Wishes

[Heyjude48458]

 
 
I have chosen to reply, hoping that you will not  be offended.  It is a 
lovely thing that you are doing; and I will do  what you ask us to do.  The 
only thing is through natural  causes  (illness/accidents) I don't know if I 
have twelve people to  send these lovely thoughts to, but I will try to send 
as many as I can  think of.
 
Thank you for the lovely endeavor.  This  will get us off of our lazy bums 
and do something for a good  cause...helping our fellow friends and family.
 
Closing with Love,
Jude
 
 
In a message dated 9/11/2009 11:26:33 P.M. Eastern Daylight Time,  
cherp...@msn.com writes:

 

 
Sent: Friday, September 11, 2009 9:14 PM
Subject: Good Wishes





 
 
Today is  September 7, 2009. I am supposed to pick 12 women (who have  
touched my life) and whom I think would want to participate.  I think that if 
this group of women were ever to be in a  room together, there is nothing that 
would be impossible. I  hope I chose the right twelve. My love, gestures 
and  communications hopefully remind you how special you are.  Please send 
this back to me. Remember to make a wish before  you read the quotation. That's 
all you have to do. There is  nothing attached. Just send this to twelve 
women and let me  know what happens on the fourth day. Sorry, did you make a  
wish yet? If not make a wish before you read  on
"May there be peace within. May you trust that  you are exactly where you 
afaith in yourself and others. May  you use the gifts that you have received, 
and pass on the  love that has been given to you. May you be content with  
yourself just the way you ar e. Let this knowledge settle  into your bones, 
and allow your soul the freedom to sing,  dance, praise and love. It is 
there for each and every one  of us." Now, send this to 12 women within the next
15  minutes. And remember to send this back. I count as 1...  You'll see 
why.
Suggestion: copy and paste rather than  forwarding it. "Life isn't about 
waiting for the storm to  pass. It's about learning to dance in the rain.re 
meant to  be. May you not forget the infinite possibilities that are  born of  

[TMIC] I met a TMer!!!!!

[Gillian Clark]

G'day All,

It's been such a long time since I've written to the list but I assure you, 
I've been reading and keeping up with you all.  I was devastated to hear we 
have lost another member of our family.  R.I.P.  Rick.

I've bought myself out of posting retirement today because something so special 
has happened!  I have just said goodbye to my visitors.  They are Allen and 
Andrea Southern.  Andrea is a member of our list, a lurking member but a member 
none the less.

After 8 years of tm I've never met another person "in the flesh" who has it.

We had a lovely visit and I can't begin to describe how wonderful it was to 
have a "real life" conversation with another tmer.

OK, I won't ramble anymore but I did so want to share with you all.

hugs
Gilly, the old girl from Australia.