Re: [TMIC] Rick Steele
This is for a good cause so I am taking the time to forward it. Please read it and if it touches your heart, I can reassure you that Rick was a real person stricken with Transverse Myelitis. He was a fighter right up until the end. I know that times are tough, but if you can send even one dollar, it will be greatly appreciated by Rick's family. My love and Prayers to you all, Judy, Michigan In a message dated 9/21/2009 8:47:48 P.M. Eastern Daylight Time, cherp...@msn.com writes: Cindy, thank you so much for sharing this website with us. It was beautiful, what a wonderful person Rick was. I knew he certainly was here on the TMIC, but had no idea that he was so involved and how he gave so gracefully of himself in everything he did. He will truly be missed by all. R.I.P. dear Rick. Linda - Idaho - Original Message - From: _Cindy McLeroy_ (mailto:cindymcle...@socal.rr.com) To: _Tim Daum_ (mailto:talon...@aol.com) ; _Tillie Tamar Freeman_ (mailto:tamarfree...@earthlink.net) ; _Allen Rucker_ (mailto:ar...@aol.com) ; _Deborah Nord Capen_ (mailto:dca...@earthlink.net) ; _Joan Fink_ (mailto:mafi...@yahoo.com) ; _rick steele_ (mailto:rickste...@socal.rr.com) ; _teri apodaca_ (mailto:teriapod...@earthlink.net) ; _TMA/Deborah Capen_ (mailto:dca...@myelitis.org) ; _Bill Coomes_ (mailto:wildbil...@verison.net) ; _Diane Vecchione_ (mailto:dcvecchi...@aol.com) ; _Cindy McLeroy_ (mailto:cindymcle...@socal.rr.com) ; _Co Co Karpinski_ (mailto:cocoka...@yahoo.com) ; _Jan Reiber_ (mailto:jmrei...@sbcglobal.net) ; _joe zamora_ (mailto:jszam...@att.net) ; _Mary Ellen ECKHERT_ (mailto:roqu...@ca.rr.com) ; _Lou Shubin_ (mailto:oc...@aol.com) ; _mary woods_ (mailto:marybythese...@gmail.com) ; _rich jett_ (mailto:richj...@version.net) ; _Rick Benson_ (mailto:rban...@hotmail.com) ; _Sandy Parker_ (mailto:parkersw...@aol.com) ; _LORI MALLOY_ (mailto:jorlcummi...@earthlink.net) ; _Alan Kiehn_ (mailto:alandsyl...@cox.net) ; _Kandace Lowrey_ (mailto:kandace_el...@hotmail.com) ; _Richard Berliner_ (mailto:richa...@berliner-architects.com) ; _Marjie Garcia_ (mailto:gmar...@aol.com) ; _Rachelle ZUKERMAN_ (mailto:drr...@aol.com) ; _Dennis Loesch_ (mailto:dennisloe...@earthlink.net) ; _Beatrice loesch_ (mailto:wloe...@earthlink.net) ; _Shelly O'Brien_ (mailto:shel...@baughneng.com) ; _Sally McCabe_ (mailto:smcca...@cox.net) ; _Norma Flores_ (mailto:nflores...@bpusd.net) ; _Marvin Brownstein_ (mailto:marvbron...@yahoo.com) ; _kathy tyler_ (mailto:kjdty...@msn.com) ; _JOYZELLE RICHARDSON_ (mailto:wadi...@hotmail.com) ; _John Weidhaas_ (mailto:the2we...@aol.com) ; _Jesse maher_ (mailto:nicky_je...@verizon.net) ; _Geoff_ (mailto:geoff12...@yahoo.com) ; _Elaine Chapin_ (mailto:e...@ieee.org) ; _Dina Allison_ (mailto:dina...@hotmail.com) ; _Charley Graves_ (mailto:charleyhe...@charter.net) ; _Robert Slayton_ (mailto:slay...@chapman.edu) ; _Nicole Magner_ (mailto:curve...@gmail.com) ; _Tom Bintliff_ (mailto:tom...@aol.com) ; _Toni Appell_ (mailto:tjapp...@aol.com) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Monday, September 21, 2009 2:20 PM Subject: [TMIC] Rick Steele A website has been set up for Ricky Steele, the Southern CA TM support group member who passed away on September 3rd. Rick was an incredible man who truely did wake up every morning whistling like Jiminy Cricket. Please read his biography at the website to understand what a great person we lost. Also, if you can, please make a donation to the Transverse Myelitis Association in Rick's name. I know he would have like that. Here is the website: _http://memorialwebsites.legacy.com/ricksteele/Homepage.aspx_ (http://memorialwebsites.legacy.com/ricksteele/Homepage.aspx) Cindy McLeroy
Re: [TMIC] Comfortable Shoes Anyone?
I am wondering about new shoes too. What type of sandals did you wear? I can't find anything but sports shoes that I can wear with my AFO. - Original Message - From: L T CHERPESKI To: TMIC-LIST Sent: Wednesday, September 23, 2009 12:14 AM Subject: [TMIC] Comfortable Shoes Anyone? This topic has come up before, but of course I can't remember what I learned at the time. Has anybody found a pair of shoes that are really comfortable? You know, good ones that can actually touch our nerve burning feet without pulling our hair out. I wore my sandals all last winter in the snow. I just can't stand to have shoes touch the tops of my feet. If you've found good ones, what brand and where do you find them? A big thank you to all Linda - Eagle, ID
Re: [TMIC] Comfortable Shoes Anyone?
*Hi Linda,* ** *I wear garden shoes year round, rain, snow, sleet or hail. Mine are called Sloggers and are relatively inexpensive, and come in a lot of different colors. I've stocked up on them to make sure I've always got a pair. They are like walking on Memory Foam, and don't aggravate that damnable burning. They have a strap around the back that is actually permanently attached, so they're easy to keep on. Before my friend discovered them for me, I had a real problem with stepping out of my shoes, as I have no grip in my toes. I'm strictly a blue jeans person, and they actually look nice with them. A lot of my nurse buddies have picked up a pair or two to wear to work, and really like them.* ** *Gracie *
Re: [TMIC] OT: ALS Stem Cell Treatment
I thought he was. Do you know if human trials have started? Kevin bgunny7...@aol.com wrote: Yeah, Doug's workin on that also
Re: [TMIC] Rick Steele
Terry and I had the pleasure of meeting Rick at the first TM Symposium we went to approx. 8+ years ago. Since then, we have had several visits with he and his partner, Bob, (we live fairly close to one another). The last time we had visited their home, they had recently put in the redwood paths in their yard to make the slope wheelchair accessible, (which is most incredible, by the way). Terry had not seen the majority of the yard until that time. He finally got get up to the koi pond and stream that runs down the slope. Rick was so proud of his home and overwhelmed that he could finally have the run of it once again. Rick was an extraordinary man and will be greatly missed. He had a beautiful smile, a great sense of humor and a huge heart, just to name a few of his wonderful qualities. Sandy
[TMIC] RATS WALK AGAIN!
http://www.kintera.org/TR.asp?a=gsJRK4OMIkLQJcJs=ivLYI9NTKiIRJ7NSKtEm=mjIQK6NQLjL5HReeve Foundation supported scientists at UCLA and the University of Zurich have been able to make rats with completely transected spinal cords recover to the point that they can step and fully support their own weight. This is a first! Rats in the study had completely severed spinal cords. They underwent a three-part intervention. Scientists gave the rats a combination of the drug quipazine, and then epidural electrical stimulation. This treatment activates the spinal cord's neural circuitry and makes it functional again. Then the rats were given locomotor training. The combination proved extremely effective. Within a relatively short period of time, the rats were walking again. The voluntary stepping of the rats on a treadmill was almost indistinguishable from their stepping prior to their spinal cord injury. --
Re: [TMIC] Comfortable Shoes Anyone?
Hi Grace, I'm writing down all of this info. Sounds like these may do the trick. Where do you buy them?? Thanks for the input. Linda - Original Message - From: Grace M.mailto:grace...@gmail.com To: L T CHERPESKImailto:cherp...@msn.com Cc: TMIC-LISTmailto:tmic-l...@eskimo.net Sent: Wednesday, September 23, 2009 7:33 AM Subject: Re: [TMIC] Comfortable Shoes Anyone? Hi Linda, I wear garden shoes year round, rain, snow, sleet or hail. Mine are called Sloggers and are relatively inexpensive, and come in a lot of different colors. I've stocked up on them to make sure I've always got a pair. They are like walking on Memory Foam, and don't aggravate that damnable burning. They have a strap around the back that is actually permanently attached, so they're easy to keep on. Before my friend discovered them for me, I had a real problem with stepping out of my shoes, as I have no grip in my toes. I'm strictly a blue jeans person, and they actually look nice with them. A lot of my nurse buddies have picked up a pair or two to wear to work, and really like them. Gracie
Re: [TMIC] Comfortable Shoes Anyone?
Thanks Frank. I know Timberland is a great brand name and I know how soft moccasins are. These are all great ideas - thank you everybody! All last winter my doctor looked at my feet, raised his eyebrows and just shook his head.won't he be pleasantly surprised when I arrive in real shoes! - Original Message - From: fr...@franksheldon.commailto:fr...@franksheldon.com To: L T CHERPESKImailto:cherp...@msn.com ; TMIC-LISTmailto:tmic-l...@eskimo.net Sent: Wednesday, September 23, 2009 8:11 AM Subject: Re: [TMIC] Comfortable Shoes Anyone? Timberland non-skid mocassins
Re: [TMIC] Comfortable Shoes Anyone?
Thanks Patti - these sound great too. I can't feel cold on my feet, but I can sure feel the wonderful burning when I put anything on them. Also can't stand to have any kind of sock or slipper on my feet. We'll get this figured out. Lots of great ideas here. Linda - Idaho - Original Message - From: pjv1...@chartermi.netmailto:pjv1...@chartermi.net To: TMIC-LISTmailto:tmic-l...@eskimo.net ; L T CHERPESKImailto:cherp...@msn.com Sent: Wednesday, September 23, 2009 8:34 AM Subject: Re: [TMIC] Comfortable Shoes Anyone? I seldom wear my AFO due to the burning when my feet are in lace- up shoes. I look for shoes that I can slip off quickly including loafers and clogs that have wide toes. The last two styles that worked for me are: New Balance 811 and Cobbies Cuddlers. Both styles have the short heel that helps keep my foot from sliding around. The insides are smooth without irritating seams and both have elastic side inserts that stretch to limit the amout of pressure on the foot when taking a step. I need shoes because my feet freeze, but if I wear them my feet burn. I hope you can find something soon. Patti - Michigan L T CHERPESKI cherp...@msn.commailto:cherp...@msn.com wrote: This topic has come up before, but of course I can't remember what I learned at the time. Has anybody found a pair of shoes that are really comfortable? You know, good ones that can actually touch our nerve burning feet without pulling our hair out. I wore my sandals all last winter in the snow. I just can't stand to have shoes touch the tops of my feet. If you've found good ones, what brand and where do you find them? A big thank you to all Linda - Eagle, ID
Re: [TMIC] Comfortable Shoes Anyone?
Ok, I went on line and looked at the sloggers. These I could wear! And hey, you can even put them in the dishwasher. I cracked up when I read that part. Thanks Grace - I also like the fact that they don't have much height, which just adds to the wobbles for me. Linda Original Message - From: Grace M.mailto:grace...@gmail.com To: L T CHERPESKImailto:cherp...@msn.com Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, September 23, 2009 8:16 PM Subject: Re: [TMIC] Comfortable Shoes Anyone? Irish, You'll find them at www.sloggers.comhttp://www.sloggers.com/ I LOVE them. Gracie On Wed, Sep 23, 2009 at 9:49 PM, L T CHERPESKI cherp...@msn.commailto:cherp...@msn.com wrote: Hi Grace, I'm writing down all of this info. Sounds like these may do the trick. Where do you buy them?? Thanks for the input. Linda - Original Message - From: Grace M.mailto:grace...@gmail.com To: L T CHERPESKImailto:cherp...@msn.com Cc: TMIC-LISTmailto:tmic-l...@eskimo.net Sent: Wednesday, September 23, 2009 7:33 AM Subject: Re: [TMIC] Comfortable Shoes Anyone? Hi Linda, I wear garden shoes year round, rain, snow, sleet or hail. Mine are called Sloggers and are relatively inexpensive, and come in a lot of different colors. I've stocked up on them to make sure I've always got a pair. They are like walking on Memory Foam, and don't aggravate that damnable burning. They have a strap around the back that is actually permanently attached, so they're easy to keep on. Before my friend discovered them for me, I had a real problem with stepping out of my shoes, as I have no grip in my toes. I'm strictly a blue jeans person, and they actually look nice with them. A lot of my nurse buddies have picked up a pair or two to wear to work, and really like them. Gracie
Re: [TMIC] Comfortable Shoes Anyone?
: *Hiya Irish, * *The dishwasher, LOL! I either throw mine in the washer on gentle, or wear them into the shower and scrub them while I'm in there. I've got several pairs of each color. :-) * *XOXO * *Gracie*
