Re: [TMIC] Fwd: Good Idea!
You are absolutely right! there are rules regarding what should be discussed here and this has crossed the line. If its not about TM but may be of benefit to us OT or off topic is supposed to be in the subject line, politics and religion are not supposed to be. We used to have Muslim and Hindu contributers who had great wisdom to share about surviving TM in this group but were discriminated against in posts and they left! This used to be strictly enforced! we do everyone a disservice when we offend and lose members who could offer much help when we banter on about non TM subjects that have a narrow view point!! Mindy King we4king...@verizon.net On Oct 5, 2010, at 3:50 AM, Emily wrote: Is this the right forum for this discussion? If it is, how do I remove myself from the TMIC list? I get enough of this kind of email from other sources and really don’t want to see it here when this is a Transverse Myletis discussion list. I’m new here and I’m sorry for feeling this way but I thought it was going to be about TM. From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, October 05, 2010 12:42 AM To: bgunny7...@aol.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! Let’s be clear: Those persons who destroyed the Twin Towers in my City while I watched, were NOT MUSLIMS. They had twisted things like a New York Pretzel to have it do what they wanted of it—taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was “Kill them all and let the Lord sort them out.” Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let’s sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies. No: It is because those murderers knew too little of the Qur’an that they committed such evil, not too much. They knew nothing of the Qur’an or Islam in the Name of which they killed so many. I say, if people want to sincerely worship God, let them. There is too little of this, not too much. Dalton From: bgunny7...@aol.com Date: Mon, 4 Oct 2010 16:04:09 EDT To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Good Idea! Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 4 Oct 2010 13:04:45 -0700
Re: [TMIC] Iron Defensiency
Yes I donate blood and have to supplement before I do so they don't turn me away Mindy King we4king...@verizon.net On Sep 1, 2010, at 10:53 PM, Carol E wrote: Does anyone have iron deficiency as a result of the TM or the meds they are taking? Carol in Addison, IL
Re: [TMIC] Meds question
Frank is right about the ineffectiveness of the pain meds they are giving you- like barking up the wrong tree. I asked the members of this group to tell me what their doctors prescribed (and in what dosages) and shared the list with my DR. She put me on 75 mg lyrica 2x a day and gave me 100 mg amantadine (morning and noon) to counteract the drowsiness side effect and it has really made life bearable. Lyrica took some getting used to: I had nausea for a week and didn't get full effectiveness for 2 weeks but it was worth it. Mindy King we4king...@verizon.net On Aug 4, 2010, at 1:51 AM, Rev. Craig Crossman wrote: Does anyone else have any experience with taking Tramadol (a type of morphine I think) and/or hydrocodone for pain relief with TM? Are there any options anyone could suggest? I have been taking both for over a year in increasing doses, and I am now averaging eight to twelve Tramadol (50 mg) and two hydrocodone (5/500) every day but they no longer seem as effective as they were. I am also having to work with a primary care physician and nurse practitioner, neither of whom has any experience with TM, but they are all that are available in our community. The nearest neurologist is over two hours away so I do not get to consult with her very often. It is a pain to have to “educate” my providers, but it seems to be the only choice at this time. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] TM Info request
I was Diagnosed a little over 3 years ago and like you did not lose mobility. my scar is at C4-C5 and I suffered hand weakness for almost 2 years, I'm a chair caner so I have worked my way past it but my over all physical strength is much reduced. I have central nerve pain from the chest down and a sensation called Lhermittes sign I shock myself whenever I tip my head down, thats on top of the feeling of electric current buzzing through my body 24/7 I don't have banding. this is very different from most TM sufferers but I have found 2 others like me (one lives in India) my balance is poor but I do okay without a cane these days (it took 2 years) I need some light to stay upright. In total dark I can't tell which way is up. I am sole in the care of my family DR. in my case this works out fine she has read up on the disease and writes my prescriptions based on what I've found others taking here. sorry you've had the need to find us but this is your best resource for help with coping with TM Mindy King (a PK) we4king...@verizon.net On Jul 26, 2010, at 12:09 PM, Rev. Craig Crossman wrote: I was diagnosed almost exactly a year ago. I had gone to the ER because someone at church noticed I was dragging my left leg and thought I might be having a stroke. No stroke, but after all the tests were done my doctor came in to tell me about TM. I was fortunate because he is well-known as one of the best neurosurgeons in the Pittsburgh, PA area. I haven’t had a lot of mobility issues until this summer. Like you I can get around the house OK but I do use a cane in public. My balance is off enough that I tend to lose it quite often. It wouldn’t do for people to think the new Baptist preacher had been nipping at the bottle! Over the last year there has been a marked decrease in feeling and function in my hands. I have a lot of trouble even picking up a pill. Eleven years ago I broke my back in an accident and have a partial spinal cord injury, so even on the best days I only have 20% nerve function from the waist down. The doctor could not rule out that the injury sort of made me more vulnerable to something like TM. One thing… I have read in these messages people talking about “banding” and it seems they know where on the spinal cord the damage is. What is banding? I never asked my doctor about where I am most damaged but I am not sure it would make any difference to me if I did know. I also know I am older than most (57) to be diagnosed for the first time. I’ve had a couple of messages from Gunny. And I read about his friend who said “It’s about ability, not disability.” Actually, I have never thought of myself as disabled. I just have some health issues which means I must do things a bit differently than others. But so far it has not been a big deal. I am just stubborn enough to refuse to let it get to me. From: Patricia Cooley [mailto:patticoole...@gmail.com] Sent: Monday, July 26, 2010 9:17 AM To: 'Rev. Craig Crossman' Subject: RE: [TMIC] TM Info request WELCOME TO OUR TM CLUB. I AM SORRY THAT IT TOOK SOMETHING LIKE TM TO BRING YOU TO US. YOU WILL FIND A LOT OF ANSWERS TO YOUR QUESTIONS, SO DON’T BE AFRAID TO ASK ANYTHING. WE HAVE HEARD IT ALL AND MOST OF US HAVE EXPERIENCED IT ALL AT ONE TIME OR ANOTHER. FIRST, LET ME ANSWER YOUR QUESTION. A LOT OF US DO SUFFER IN THE HEAT, AND WE HAVE TO BE VERY CAREFUL NOT TO GET OVER HEATED. I AM FORTUNATE IN THAT WAY. HEAT DOESN’T BOTHER ME AT ALL, BUT THAT MAY BE I AM USUALLY COLDER THAN EVERYONE ELSE. WHEN EVERYONE ELSE IS WARM, I USUALLY REACH FOR MY SWEATER. HOW MOBILE ARE YOU. I AM ABLE TO WALK UNAIDED IN THE HOUSE, BUT WHEN I GO OUT IT IS USUALLY WITH A CANE AND/OR WALKER. I DID PURCHASE A 3 WHEEL ELECTRIC CART OVER A YEAR AGO, SO I CAN GET OUT TO FUNCTIONS THAT REQUIRE A LOT OF WALKING. IT HAS BEEN 2 YEARS THIS PAST JUNE THAT I WAS DIAGNOSED WITH TM. I HAVE COME A LONG WAY, AND THEY SAY THE FIRST 2 YEARS IS WHEN YOU WILL GET MOST OF YOUR IMPROVEMENT. I HAVE FOUND THAT EXERCISE IS VERY, VERY IMPORTANT TO KEEP UP WHAT MUSCLE STRENGTH YOU HAVE AND TO MAYBE INCREASE IT. YOUR RIGHT, MANY DOCTORS HAVE NEVER SEEN A PATIENT WITH TM. I HAVE RECENTLY MOVED SO WILL HAVE TO FIND ALL NEW DOCTORS. I AM NOT LOOKING FORWARD TO IT, BUT YOU HAVE TO DO WHAT YOU HAVE TO DO. GOOD LUCK WITH YOUR NEW DOCTOR, AND KEEP US INFORMED ON YOUR PROGRESS. GOD BLESS AND TAKE CARE. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Sunday, July 25, 2010 12:26 PM To: tmic-list@eskimo.com Subject: [TMIC] TM Info request Hello, I was very glad to find this e-list. I am “new” to TM having been diagnosed one year ago. We moved from PA to Kansas in April. This has been a hot summer with 20+ days straight of temps in upper 90’s to low 100’s, and I find I am
Re: [TMIC] Neurontin
You don't have to stick with this Dr. just because Dr. Kerr recommended him. the advantage of taking Lyrica over Neurontin if you don't have side effects is that it is more effective at vastly smaller dosages : 75 mg rather than 300 mg several times a day. I have taken the combination of lyrica and cymbalta together for 2 years, Cymbalta is an antidepressant which for some unknown reason helps reduce nerve damage pain as a positive side effect. I requested it because i felt like jumping off a cliff to stop the pain and I was depressed and angry about contracting TM. I went off Cymbalta when I felt ready to face living again. never tried neurontin and I've been told if I 'm doing well on Lyrica not to switch. My neuro dumped me as a patient because he said I had a 4 in a million chance of a reoccurrence and any well informed family Dr, could manage my pain treatment. this has worked really well for me, my Dr. reads whatever info I hand her about TM and she asks me what meds you all on the tmic list are taking. I now take 75 mg lyrica am 50 mg pm amantadine to counter the drowziness. a blood pressure med and a prescription antacid/reflux. Mindy King we4king...@verizon.net On May 17, 2010, at 8:42 AM, Robert Pall wrote: I went last week to a new Neuro recommended to me by Dr. Kerr. Besides having me take new MRI's including the brain (never had this one before) he is taking me off Cymbalta and starting me up on Neurontin ( 100 mg per day). He saw no reason to be taking Cymbalta as I am already taking Lyrica and according to the new Dr. both Cymbalta and Lyrica do the same thing and taking both of them is not effective it is just overkill. I wonder if any of the other members who are taking both Lyrica and Cymbalta were ever told this… and what should I expect from the neurontin? I am hoping it will help the banding. What negative side effects have any of you suffered with the neurontin? Thx Rob in New Jersey
[TMIC] just for inspiration
Just a video and article about a blind horse in my neck of the woods who competed in the Extreme Cowboy Race a few days ago. http://www.youtube.com/watch?v=Pgp2dt56oMo http://www.dispatch.com/live/content/life/stories/2010/04/13/blind- horse-races-for-crowd.html we don't always have to look to other people to find inspiration to overcome adversity! Mindy the artisan
Re: [TMIC] Suicide Inducing Drugs?
I found the articles refered to by NPR: http://www.reutershealth.com/archive/2010/04/13/eline/links/ 20100413elin006.html http://latimesblogs.latimes.com/booster_shots/2010/04/anticonvulsants- suicide-risk-gabapentin.html I have never been on Gababentin/Neurontin but the relief I get from Lyrica was worth the month of side effects I went through to get to relief (the makers acknowledge lyrica's temporary suicide risk and has information for patients and doctors). Anti depressants also carry a risk of increased suicide until the user adjusts. the suicide risk is also temporary and passes when the taker adjusts. It is good to know that this is a possibility so that doctors, patients and their family's can monitor the patient for such a side effect but if you do the math the risk is very small and keeping an eye on it can lower the risk even more. more worrisome to me is the crackdown of off label uses of medications like these 2 drugs that so many of us off label users find so helpful. Mindy the artisan On Apr 13, 2010, at 4:18 PM, Akua wrote: neurontin and gabapentin (sp) just on NPR didn't hear it all but something about suicide... for those on it, you might want to check it out. I remember refusing Neurontin for my pain while in the nursing home, because of side effects and being chastised and derided for my decision repeatedly. I am so grateful I resisted the pressure. With depression as an attendant to TM, suicide inducing chemicals are a burden we don't need. --
Re: [TMIC] Hospital
Jeron, I run counter to the belief that things happen for a reason... not totally true but the reason is that everyone and everything in this world ages, breaks down and comes to an end. the God of my understanding does not punish us with disease, pestilence and tragedy! those things are just part of nature. The dinosaurs didn't deserve the asteroid, the Haitians weren't punished for the sins of their ancestor's and none of us deserved TM. I believe in a loving God who sees the other perspective: how suffering can transform our soul and even 50 years of suffering is over in the blink of an eye to a God who knows we can spend eternity with him. Some children are born already diseased and suffering, why was I lucky enough to enjoy 47 years without any misery to speak of. Life isn't fair but it is rich with things to experience and I have come to the conclusion that I want to continue experiencing the wonders around me in spite of having to endure the 24/7 pain TM has imposed on me. Jeron, you are in my prayers Mindy the artisan On Mar 24, 2010, at 11:00 PM, Janice Nichols wrote: Jeron, Listen to Rob, he is right that there is absolutely NO blame that can be put on ourselves for TM or recurrences of it.Just do as the doc's say and remember that you got better the first time and you will improve again the second time. Just remember you have all of us here wanting you to get better, which you will with time and, assuming, therapy. Remember, we have all had our times of being really scared and wondering what the future will bring, but you need to ask your family for strong support and help to get you through this. With your strength and faith, your TM family will help you get through this as well as your biological family. Please keep us informed of your progress on good days and your mindset on bad days.Hopefully we can help. Janice From: Robert Pall Sent: Wednesday, March 24, 2010 2:43 PM To: j ra ; Transverse Myelytis Subject: RE: [TMIC] Hospital Jeron: I know you are terrified and I don't blame youbut please remember you are not alone. When did you have your first onset? What tests did the Dr. give you in determining his diagnosis? How old are you? And finally how are they presently treating you (are they giving you steroids?). Keep your head upthings will get better! All the best! Rob in New Jersey From: j ra [mailto:rumc...@hotmail.com] Sent: Wednesday, March 24, 2010 3:10 PM To: Transverse Myelytis Subject: RE: [TMIC] Hospital Good day my friends, Got some bad news today. I returned to the hospital a couple of days ago because I was feeling some pain and with TM, precaution is imperative. My neurologist just confirmed recurrent TM. I was doing so good, I was doing everything right, why me? I hate this, I have to start all over again. I am scared. I don't know what to do. My wife is terrified and my family is traumatised and it is all my fault.. help me please... Jeron Date: Tue, 23 Mar 2010 11:32:11 -0700 From: toddtm2...@sbcglobal.net Subject: RE: [TMIC] Hospital To: rumc...@hotmail.com Hey Jeron, Sorry to hear that you're in the hospital. Herniated discs is got to be very painful on top of TM. The drop foot will get better with exercises and the pin needle will get better with drugs. lol Please keep us updated on your stay hospital. We are thinking of you, Todd in Corpus Christi, TX --- On Tue, 3/23/10, j ra rumc...@hotmail.com wrote: From: j ra rumc...@hotmail.com Subject: RE: [TMIC] Children To: jan...@centurytel.net, pieterheat...@shaw.ca, Transverse Myelytis tmic-list@eskimo.com Date: Tuesday, March 23, 2010, 3:14 AM Hey all, Firstly, I'm in the hospital again for more treatments (severe back pain due to herniated discs and dragging right leg, pins and needles etc). I asked Prof. Ivan about the connection and he disagrees based on many things he started to explain that I may have been too drugged up to understand. So, I asked him for medical journals on said topic and he reckons he has got some. I will get back to you on this. Also, stem cell research is still probably the only help for TMers with chronic pain and disabilities directly attributed to TM and MS. my 2 cents at 4 am at Clinica Sao Vincente Gavea, Rio de Janeiro, Brasil Jeron From: jan...@centurytel.net To: pieterheat...@shaw.ca; tmic-list@eskimo.com Subject: Re: [TMIC] Children Date: Mon, 22 Mar 2010 22:30:22 -0500 Jeepers! You do have a lot of autoimmune illnesses in your family.Kind of scary. I really don't understand insurance companies. They would be really happy if they only had to insure very healthy people that have no accidents of any kind.What a crock. Janice From: Pieter and Heather Sent: Sunday, March 21, 2010 12:57 PM To: Janice Nichols ; tmic-list@eskimo.com Subject: Re: [TMIC] Children Janice, I'm not sure about TM
[TMIC] Lyrica
Hi all, I weaned off Cymbalta 10 months ago after a major improvement in pain, my other medication is Lyrica and I have been on it since before TM was diagnosed as the cause of my nerve pain. I was taking 150 mg 2X a day for the majority of the last 3 years, not knowing if it was really still helping all that much (or at all) and wanting to know if I could tolerate life on a smaller dosage. You can't just stop taking it or you'll have hell to pay (physical withdrawal), every time I've missed a dose I've been in agony, so I've set about weaning off. first I dropped to 75mg at night and 150 during the day. the first 4 days were miserable but after that I felt no worse than I did at the higher level. Then I halved the day time dosage and after 4 days still felt okay. I tried quitting the night dose altogether but that didn't work out so I switched to 50 mg morning and night. I had hoped I could go completely unmedicated but I have to be realistic and feel good about my accomplishment. 1/3 of my previous dosage is a big gain, I'm more alert and functional on less and that is such a gift! I have too much on my plate right now to lose a week to withdrawal misery. I don't post much but thanks for being there when I need you. Mindy the artisan
[TMIC] tmic hijacked
looks like Kevin Weilacher's email has been hijacked I'm getting spam from his address Mindy the artisan
Re: [TMIC] Fwd: Fw: New Virus danger tksRobin
The only thing Circulating is this warning which if you had done your research is about a vintage virus (eradicated) and new warnings are considered a hoax. We all need to throw away any attachment we weren't expecting. If you get an attachment that looks legit you can always email the person who sent it to you to verify it before opening anything. If it's suspect don't open it, throw it out and empty your trash. Wha Lah: tragedy avoided. Mindy the Artisan On Feb 11, 2010, at 12:54 PM, celr...@aol.com wrote: From: Lynnette Sharp sharpg...@sbcglobal.net Date: February 11, 2010 12:15:23 PM EST To: Barbara Roach bobby...@newwavecomm.net, Jane Elrod celr...@aol.com, Liz Little elittl...@gmail.com Subject: Fw: New Virus danger tksRobin - Original Message - From: Jason Dean To: Grandpa Dean ; chad dear ; Johnnie Norman ; James Lynnette Sharp ; RICHARD WHITE ; Samantha ; Dad ; Donna ; Drena Sent: Wednesday, February 10, 2010 11:09 PM Subject: Fwd: New Virus danger tksRobin --- On Mon, 2/8/10, bes...@aol.com bes...@aol.com wrote: From: bes...@aol.com bes...@aol.com Subject: Fwd: New Virus danger tksRobin To: debmirand...@yahoo.com, lsmanh...@aol.com, jhcro...@aol.com, a...@tntcrane.com, m.es...@yahoo.com, jasondea...@yahoo.com, eduardo_ni...@yahoo.com Date: Monday, February 8, 2010, 6:16 AM -Original Message- From: susie askins terskins...@yahoo.com To: bes...@aol.com Sent: Sat, Feb 6, 2010 7:04 pm Subject: Fw: New Virus danger tksRobin - Forwarded Message From: Lois McDearmont l...@cmaaccess.com To: SUSAN TERSKINS terskins...@yahoo.com Sent: Sat, February 6, 2010 6:57:37 PM Subject: Fw: New Virus danger tksRobin - Original Message - From: Sherry I To: Barbara Hester ; Brittany Fairchild ; cbohoncl...@sbcglobal.net ; dana...@mosquitofestival.com ; Dawn Russell ; Dennis Spagna ; Erin Murphy ; Glenna Senf ; Jody Fairchild ; John Fairchild ; Kenny and Joann Jones ; Kim O'Connor ; Lois McDearmont ; Sarah Oakes Sent: Saturday, February 06, 2010 1:40 PM Subject: FW: New Virus danger tksRobin Date: Fri, 5 Feb 2010 08:46:46 -0800 From: thserva...@yahoo.com Subject: New Virus danger tksRobin To: thserva...@yahoo.com This was forwarded to me from a reliable source. READ IMMEDIATELY !! HI ALL THIS was sent to me by our son who is in charge of the computers for the state of Florida -- whenever he receives anything like this it is a warning to the State as well as all us little people -- VERY IMPORTANT , PLEASE READ THIS Anyone-using Internet mail such as Yahoo, Hotmail, AOL and so on. This information arrived this morning, Direct from both Microsoft and Norton Please send it to everybody you know who has Access to the Internet. You may receive an apparently harmless e-mail titled 'Mail Server Report' If you open either file, a message will appear on your screen saying: 'It is too late now, your life is no longer beautiful' Subsequently you will LOSE EVERYTHING IN YOUR PC, And the person who sent it to you will gain access to your Name, e-mail and password. This is a new virus which started to circulate on Saturday afternoon. AOL has already confirmed the severity, and the anti virus software's are not capable of destroying it.. The virus has been created by a hacker who calls himself 'life owner'. PLEASE SEND A COPY OF THIS E-MAIL TO ALL YOUR FRIENDS, And ask them to PASS IT ON IMMEDIATELY! THIS HAS BEEN CONFIRMED BY SNOPES. http://www.snopes.com/computer/virus/mailserver.asp Hotmail: Trusted email with powerful SPAM protection. Sign up now.
Re: [TMIC] (ot) I sing whiter shade of pale
Thanks for all the kind words. My battle with TM could be called sub-acute, my damage is at C4-C5 (MRI pics on facebook) and though I experienced weakness of the arms and legs and bladder challenges I always remained one of the walking wounded. Acute pain unabated is my biggest issue and I feel I have some lung/ diaphragm issues still which frustrate me when I sing. Mindy the Artisan On Jan 24, 2010, at 11:22 AM, Patricia Cooley wrote: Thanks for sending this video. You must be very proud of your ability to sing. I can’t carry a tune in a basket so I admire anyone that can. Besides your beautiful voice, I couldn’t help being impressed with your ability to stand so tall and straight for so long. That is another thing I can’t do at this time. I can stand, but need to lean on something for support. Keep singing, Mindy, and keep posting your video. Patti - Wisconsin From: Mindy King [mailto:we4king...@verizon.net] Sent: Friday, January 22, 2010 2:57 PM To: tmic-list@eskimo.com Cc: Mindy King Subject: [TMIC] (ot) I sing whiter shade of pale As promised last fall, I finally edited and posted whiter shade of pale to Youtube and Darkness , Darkness as well a Whiter Shade of Pale Darkness, Darkness.mov Mindy the Artisan
[TMIC] (ot) I sing whiter shade of pale
As promised last fall, I finally edited and posted whiter shade of pale to Youtube and Darkness , Darkness as well a Whiter Shade of Pale Darkness, Darkness.mov Mindy the Artisan
Re: [TMIC] sympom check question
24/7 since March 1 2007 from the chest down and google Lhermittes sign, I have that too. Mindy the Artisan On Jan 8, 2010, at 3:39 PM, randy rankin wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] OT: sorry...
normally good advice but they can't prescribe something the drug companies haven't developed. Nerve damage pain is something that until recently was in our heads Mindy On Dec 23, 2009, at 8:33 PM, Janice Nichols wrote: I don't have that problem, but either your doc or the pharmacist you go to should help - especially the pharmacist. They know more about drugs than doctors. Janice -- From: Patricia Cooley patticoo...@wi.rr.com Sent: Wednesday, December 23, 2009 12:38 PM To: 'Kevin Wolfthal' wolft...@optonline.net; tmic- l...@eskimo.com Subject: RE: [TMIC] OT: sorry... Kevin: I went through the same thing when I first came home from the hospital. I don't know if it was a result of some of my meds, but I have found that if I take a daily acidophilus tablet each morning I am O.K. I am also the type of person that when I become stressed out about anything, it affects my digestive system so I try not to become too stressed, if that is possible. I hope you can find some solution to your problem. Patti - Wisconsin -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: Wednesday, December 23, 2009 6:16 AM To: tmic-list@eskimo.com Subject: [TMIC] OT: sorry... Forgive me for bothering the board again. I have nowhere else to turn right now, and I know you have all experienced most everything. Along with my recent anxiety has come digestive problems. Getting to the bathroom has also become harder because my mobility is worse. I am getting a new wheelchair for that reason. Constipation and terrible gas. Of course, this makes my tm symptoms and anxiety worse. I tried prune juice which has helped before, not this time. Gas-X helps a little. I welcome all thoughts. Kevin the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net
Re: [TMIC]
chest down as my damage is a C4-C5 and I feel like I'm being electrocuted. In fact no 2 of us are exactly alike. Mindy On Dec 19, 2009, at 11:14 PM, Janice Nichols wrote: Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice
Re: [TMIC] OT need advice
I'm with those who are encouraging you to try Cymbalta. It saved my life period! and I successfully weaned off it when I found it no longer necessary. Mindy the Artisan On Dec 18, 2009, at 4:26 PM, rj_ran...@yahoo.com wrote: Feeling u. Been there many many times. I wonder how many others. --Original Message-- From: Kevin Wolfthal To: tmic-list@eskimo.com Subject: [TMIC] OT need advice Sent: Dec 18, 2009 1:27 PM Hi friends, I have been having bad anxiety lately. I've had it a long time, but not this bad. i take xanax, which helps sometimes, but lately not so much. It's gotten worse since I had to give my Mom CPR last year. She is doing better..but I am in constant stress and worry now. Combined with my TM symptoms, it's overwhelming. I try breathing exercises sometimes, but still can't shake this. How do you deal with anxiety? Thanks, Kevin Sent from my Verizon Wireless BlackBerry the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net
Re: [TMIC] Age
Remember that this is just a reflection of those who are attracted to this support group and not an average age of survivors in general. Mindy the Artisan On Dec 12, 2009, at 12:16 AM, laura.eich...@gmail.com wrote: Doesn't seem like a lot have been hit during middle age? (40s and 50s) On Sat, Dec 12, 2009 at 12:12 AM, Priscilla Keene pkeen...@yahoo.com wrote: I was struck down in 2001 and I was 59 years old. I may be the oldest at 67 years old now. Have a wonderful day! Priscilla in TN From: jrushton jrush...@columbiaenergyllc.com To: tmic tmic-list@eskimo.com Sent: Sat, December 12, 2009 1:09:51 AM Subject: Fw: Re: [TMIC] Age I was 58 when hit with TM 5/2005. There is a little 13 year old here in town also hit with TM just this year. Too sad but she is doing great! j ---Original Message--- From: Mindy King Date: 12/10/2009 11:54:06 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Age 2007 age 46 Mindy the Artisan On Dec 11, 2009, at 12:35 AM, Janice Nichols wrote: Hey! I have a request. I was talking to my neuro and he was curious to know the ages that my website friends were when they were hit with TM.Do you all mind sending me that info - even if you only read messages and don't usually respond?I would like to get as many ages to him as possible. I told him you all were a pretty cooperative group! Thanks guys Janice, Missouri the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net -- Laura www.photographybylauraann.com the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net
Re: [TMIC] Age
2007 age 46 Mindy the Artisan On Dec 11, 2009, at 12:35 AM, Janice Nichols wrote: Hey! I have a request. I was talking to my neuro and he was curious to know the ages that my website friends were when they were hit with TM.Do you all mind sending me that info - even if you only read messages and don't usually respond?I would like to get as many ages to him as possible. I told him you all were a pretty cooperative group! Thanks guys Janice, Missouri the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net
Re: [TMIC] Fwd: Check out CHRISTMAS AT ARLINGTON
That brought tears to my eyes My father-in-law passed away dec 20 2008 and we buried him at Arlington in January of this year. Mindy the Astisan On Dec 9, 2009, at 3:31 PM, bgunny7...@aol.com wrote: From: naname...@aol.com Date: December 9, 2009 4:14:22 AM EST To: bgunny7...@aol.com Subject: Check out CHRISTMAS AT ARLINGTON Click here: CHRISTMAS AT ARLINGTON the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net
