Re: [TMIC] Extent of your TM? Pins and Needles
I loved this, Dalton. Luckily I had already retired from teaching so I didn't have to work after I got TM. I have too many issues to work anyway. A fellow teacher who worked with me had spina bifida and was in a wheelchair. She asked our new principal for a teacher's aid and he refused. She quit her job and stays at home, drawing disability when she could have been productive. I suppose my biggest regret is not being able to be productive in some way. My hands are paralyzed, and that makes it difficult to do much. Church, the internet and tv are my life; I need to find something more to do to feel like I have a purpose. Suggestions anyone? Have a wonderful day! Peachy From: Dalton Garis malugss...@gmail.com To: PAMELA S subers...@msn.com; molokai...@gmail.com; TMC Group tmic-list@eskimo.com Sent: Wednesday, January 4, 2012 7:41 AM Subject: Re: [TMIC] Extent of your TM? Pins and Needles Reminds me of my last semester at college; Since my arms were almost as weak as my legs and torso, I got the idea of using my office chair, which was on casters, to glide around the halls to and from classes and other appointments. But the Dean didn't like it. He was (and likely still is) an anglophile. That's someone who worships the old upper class British orthodoxy. I think he fancied himself some kind of colonial boss. Anyway, he saw me gliding on my office chair getting into the elevator and stopped me. Dalton, you can't go around like this. Why not? It works and allows me to attend to all my duties. It's not acceptable. Get a wheelchair, then. My arms are just as weak as my legs. I couldn't use a wheelchair. Then get one of those electric scooters. I teach on two campuses a half-mile apart. Who's going to load and unload the beast from my car? I don't care. I can't have one of my professors rolling around the halls in an office chair. It's just not acceptable. What would people think? Not proper, ay? What do they know? They should have some regard for the end that awaits all of us. I didn't last another semester. They got rid of me. But in truth, I could no longer do the work. That's when I understood the difference between a team and a family. A team eliminates weakened members while a family supports them, nurses them back, or takes care of them until they pass on. The workplace is like a team, I guess. But our country should be like a family toward its citizens. There I go again. Dalton From: PAMELA S subers...@msn.com Date: Tue, 3 Jan 2012 18:41:50 -0800 To: molokai...@gmail.com, TMC Group tmic-list@eskimo.com Subject: RE: [TMIC] Extent of your TM? Pins and Needles Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 3 Jan 2012 18:45:00 -0800 Jim, I could walk all along...but by holding my legs or joints stiff and swinging from the hip and I didn't get far. After steroids I was very weak, and couldn't tolerate any weight or get far for about 4 months. then I had a complete recovery over about a year except for occassional fatigue and spasming. In 2000, I lost it for 11 months and recovered over another year. I had progressive weakness starting about 2008 until August 2010 when I couldn't do anything let alone sit for more than an hour. I'm now getting around with orthotics and a brace for walking. But, I have a lot of muscle weakness and easily get pain aside from pins and needles, and burning with any exertion. Also, my hands and arms are now involved. But, I still get around pretty good if I can pace myself. Pam Date: Tue, 3 Jan 2012 11:55:22 -1000 From: molokai...@gmail.com To: tmic-list@eskimo.com Subject: [TMIC] Extent of your TM? Pins and Needles From the discussion of Pins and Needles it seems that most of you are able to get around and have some use of your legs. I have pins and needles from my feet to my belly and no use of my legs at all. And they weigh a ton. Been like this since day one. Did any of you lose the use of your legs and then get them back? If so, how long did it take and how did you do it? Jim
Fw: [TMIC] January Birthdays
Have a wonderful birthday! Priscilla - Forwarded Message - From: Barbara H. barbara...@gmail.com To: tmic tmic-list@eskimo.com Sent: Sunday, January 1, 2012 12:50 AM Subject: [TMIC] January Birthdays Happy Birthday to the New Year's kids from January! Please send any additions or corrections to tmic-list@eskimo.com. 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1-17 Ginna Hamilton (ginnahamil...@yahoo.com) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
Re: [TMIC] ? time for scooter
yep, it's time! I've had 2; get a small one that comes apart and you can put into the trunk of your car. You will really enjoy it. Have a wonderful day! Priscilla From: L T CHERPESKI cherp...@msn.com To: john snodgrass jcs...@yahoo.com; rn11...@yahoo.com; tmic tmic-list@eskimo.com Sent: Thursday, December 15, 2011 8:37 PM Subject: Re: [TMIC] ? time for scooter So true John. Cheryl ~ time for you to take a deep breath and relax. Your job now is to enjoy the holidays and let everybody else do all the work. You've more than earned it!! Hugs, Linda (Eagle, ID) - Original Message - From: john snodgrass To: rn11...@yahoo.com ; tmic Sent: Thursday, December 15, 2011 6:16 PM Subject: Re: [TMIC] ? time for scooter if ya gotta get a scooter ya gotta get a scooter. Just like everything else with this stuff,,ya do when ya can and when ya cant ya dont. From: rn11...@yahoo.com rn11...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Thursday, December 15, 2011 8:13 PM Subject: [TMIC] ? time for scooter Hi, Today I went to my granddaughters' school for a Christmas lunch,then to my oncologist for bone strengthening infusion. I'm wiped out and my back is going crazy with spasms. I've decided to try and get a scooter;I just can't walk very much now. The walker just isn't enough now. It's been over 16 yrs with tm,and now I'm fighting the cancer too,and I'm just exhausted. I'll contact my pcp after the holidays,and see if I can get one. Cheryl
Re: [TMIC] December Birthdays
Happy birthday, Dec. baybees! Have a wonderful day! Peachy From: Roger Terese Pratt r.c.pr...@frontier.comTo: L T CHERPESKI cherp...@msn.com Cc: tmic tmic-list@eskimo.com; Barbara H. barbara...@gmail.com Sent: Monday, December 5, 2011 6:43 PMSubject: Re: [TMIC] December Birthdays Thanks. I'll be 62 on the 23rd. Wait, what were we talking about? Oh, well, happy birthday to all the other December kids. - Roger in Kennewick, WA - Original Message -From: "L T CHERPESKI" cherp...@msn.comTo: "tmic" tmic-list@eskimo.com, "Barbara H." barbara...@gmail.comSent: Friday, December 2, 2011 8:59:51 PMSubject: Re: [TMIC] December Birthdays HAPPY HAPPY BIRTHDAY TO ALL DECEMBER KIDS! - Original Message - From: Barbara H. To: tmic Sent: Thursday, December 01, 2011 10:09 PM Subject: [TMIC] December Birthdays Happy Birthday to those born in December!Please send any additions or corrections to tmic-list@eskimo.com.12-2 Meghan (bluemeg...@hotmail.com)12/2 Ashlee Black (tracey.bl...@hnoins.com)12/3 Janice (jan...@centurytel.net)12-3 Wim from Holland (wim_from_holl...@hotmail.com)12-4 Jan Burgess (ja...@rogers.com)12-7 Patti in Wisconsin (patticoo...@wi.rr.com)(wpcoo...@gmail.com)12-8 Lori Malloy (jorlcummi...@earthlink.net)12-15 Alton Ryder(a-ry...@comcast.net)12-18 Rod Jenke (rktje...@chariot.com.au)12/23 Roger Pratt (r.c.pr...@frontier.com)12-25 Gilly (mingalettegt@activ8.net.au)12/31 Janet (j.d...@shaw.ca)
Re: [TMIC] is it too early? (off topic)
Go for it! I think you are lucky to have someone who will go out with you, despite any disabilities you have. (I don't mean that the way it sounds, lol) My advice would be to concentrate on her, not yourself. Don't tell her sob stories about your divorce and illness. Relax and enjoy yourself! Have a wonderful day! Priscilla From: kimharrison...@comcast.net kimharrison...@comcast.net To: j dunn j.d...@shaw.ca Cc: Jeron Rampersad rumc...@hotmail.com; tmic-list@eskimo.com Sent: Friday, October 14, 2011 10:55 PM Subject: Re: [TMIC] is it too early? (off topic) life as we know it is to short we don't know what tomorrow brings.. so go for it.. live it up! enjoy !!! you deserve it! From: j dunn j.d...@shaw.ca To: Jeron Rampersad rumc...@hotmail.com, tmic-list@eskimo.com Sent: Friday, October 14, 2011 9:20:41 PM Subject: Re: [TMIC] is it too early? (off topic) Hello Jeron Yes sirree bob, you go, you go and have a great time. If you have spoken at great length - then the homework is done, and the party can begin. Have a great time! Janet - From: Jeron Rampersad Sent: Friday, October 14, 2011 11:42 AM To: tmic-list@eskimo.com Subject: [TMIC] is it too early? (off topic) Hey guys, I need some advice. Most of you would remember my wife leaving me in April of this year. Since then I've found acceptance of my lonliness and it really was not too bad. Anyway, some 2 months ago I met up an old friend from way back and well, let's just say sometimes life just has a way of hooking 2 people up. My problem is I'm going away with her this weekend to a resort on the island of Tobago for her birthday. I'm kind of wondering if I'm ready to spend a weekend with someone alone. Haven't thought about that since my separation/divorce. What if I start having real feelings for her? What if she wants more out of this relationship after this weekend, even though we spoke about it at lenght. I was really honest with her from the get go, suppose honesty becomes my downfall? Should I be scared guys? or should I just go and have funforget TM/fibromyalgia/vasculitis for a weekend and enjoy the company of a woman who I might like? Regards, Jeron
Re: [TMIC] an update
Dear Laura, I am so sorry about your relapse, but with time, things may change, and you will be able to come home to your girls. Hopefully, they will adjust easily with their father, and he will continue homeschooling them. I will be praying for you and others who have new problems. I wonder when it will be my time to go to long term care. At 68, I could be there soon, considering that I feel weaker every day, and have difficulty in keeping good caregivers. Keep in touch with our group. Wishing you all the best! Peachy --- On Wed, 3/16/11, Laura Beaudin laura.beau...@gmail.com wrote: From: Laura Beaudin laura.beau...@gmail.com Subject: [TMIC] an update To: f...@yahoogroups.com, msersl...@yahoogroups.com, Transverse Mylitis Group tmic-list@eskimo.com, transversemyelitissupp...@yahoogroups.com Date: Wednesday, March 16, 2011, 11:54 AM now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Laura Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!
Fw: Re: [TMIC] Back problems before TM
Dr. Kerr told me that I had probably had a blood clot on my spinal cord. Have a wonderful day! Peachy --- On Fri, 3/18/11, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] Back problems before TM To: Alton Ryder a-ry...@comcast.net, Todd Tarno toddtm2...@sbcglobal.net Cc: TMIC tmic-list@eskimo.com Date: Friday, March 18, 2011, 11:10 AM What happens when you have a spinal stroke? Is it different than getting struck with TM in the spine? Janice From: Alton Ryder Sent: Thursday, March 17, 2011 3:16 PM To: Todd Tarno Cc: TMIC Subject: Re: [TMIC] Back problems before TM I believe that a spinal stroke was the source of my problems as well. Dr. Kerr concurred. The spinal fluid was clear of leukocytes. Alton On Mar 9, 2011, at 5:06 PM, Todd Tarno wrote: I might have had a spinal cord stroke
Fw: : [TMIC] off topic
You have my deepest sympathy, Jane. No one knows your sorrow unless they, too, have lost a child. We're here for you, and I will be praying for comfort and peace in the days ahead. Priscilla --- On Thu, 12/2/10, Jan Hargrove jmh1...@sbcglobal.net wrote: From: Jan Hargrove jmh1...@sbcglobal.net Subject: : [TMIC] off topic To: celr...@aol.com, TMIC-LIST@eskimo.com Date: Thursday, December 2, 2010, 6:33 PM Jane, My thoughts and prayers are with you and your family, especially your granddaughter who was there when she passed. I'm certain that as you said, she's in a better place w/o shots hospital, et al. janh From: celr...@aol.com celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Thu, December 2, 2010 11:11:06 AM Subject: [TMIC] off topic Since you are all part of my cyber family I wanted to ask for prayer for my family and me. My daughter died yesterday. She was 41 and diabetic, on dialysis, poor health. Her daughter was with her and it was sudden. She didn't say anything just collapsed and that was it. She had been through s much all her life and now she is at rest with the Lord. Her name is Pamela Caldwell. No more needles and hospitals. Please forgive me if I offend anyone but I needed to talk. Jane/Splendora Tx
Re: [TMIC] bad pain all over (on topic)
I'm concerned about this change; has there been a great change in the temp. or weather? Did you over do or walk too much recently? Have you checked your blood pressure? When my BP drops down low, I have more pain and weakness. I never know from one day to the next what TM will bring. I will keep you in my thoughts. Have a wonderful day! Priscilla --- On Mon, 11/15/10, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] bad pain all over (on topic) To: Akua a...@artfarm.com, tmic-list@eskimo.com Date: Monday, November 15, 2010, 1:23 AM Well folks; I seem to be in a downward slope at the moment. I hope it is not permanent. It probably will clear up soon on its own. My whold body is in pain, but especually the hands and upper legs and lower back, keeping me house-bound for the mment. I will try to go out today, but I can only stand up for a little while and can’t walk at all. I could use the elbow crutcher, except that my arms and hands are getting weaker now. Thanks for keeping me in your thoughts. Dalton From: Akua a...@artfarm.com Date: Sun, 14 Nov 2010 16:24:06 -0500 To: tmic-list@eskimo.com Subject: Re: [TMIC] bad pain all over (on topic) Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 14 Nov 2010 13:24:13 -0800 So sorry to read this, Dalton. That sounds like the pain I had when TM took hold --pervasive, internal lightning bolts, that shut me up.riveting. Leaving me aswoon. That was while i was still walking. It abated, to return mainly at night, waking me leaving twitching on the floor, truly wracked with pain. I've read other people have banding and areas. Until mine subsided I couldn't pinpoint an area. Naltrexone has blunted the sharp edge for me and made the agony twisters subside -- but my TM resulted in paralysis. Akua --
Fw: Re: [TMIC] Save the last dance
Thanks for the info Gunny. I fondly remember the song and dancing to it in h.s. I also remember The Edsels. Is there a pic of the group online? I hope you'll share more stories. Have a wonderful day! Priscilla --- On Tue, 11/16/10, bgunny7...@aol.com bgunny7...@aol.com wrote: From: bgunny7...@aol.com bgunny7...@aol.com Subject: [TMIC] Save the last dance To: Tmic-list@eskimo.com Date: Tuesday, November 16, 2010, 4:22 PM Some of you may recall that I was the drummer with a group called the Edsels in the late 50's. We recorded a song called Rama Lama Ding Dong. Anyway, I was talkin with Harry Green (2nd Tenor), and Marshall Sewel (Bass) the other night, and we discussed George (Wydell) Jones who passed away two years ago. George was the lead singer with us. Marshall asked what was wrong with me using a cane, so I told him. He asked if that was anything like Polio and I told him the difference, and started complaining. He said, Ya know, Doc Had Polio. Doc who I asked. He said Doc Pomus who's real name was Jerome Felder. I never met him but Marshall had so he related this story. Doc contracted Polio as a child way back and in his early years, and was confined to a wheel chair. It seems he and his wife were at an awards ceremony where Doc was watching his wife dance with other guys that they of course knew, so Doc penned a song for her as he watched called Save the last dance for me. If anyone here is old enough, the Drifters recorded that back in the early 60's. Check out the Drifters on You Tube, click on save the last dance for me, and listen to the words. Just goes to show what you can do if you set your mind to it. He wrote a ton of other hits also, but this one especially hit home with me. Something I never knew before. I guess we never stop learning.
Re: [TMIC] It's my birthday
Hi James, My world came crashing down in 2001. My hands were paralyzed! It was very painful and depressing at first, but slowly I have become more resigned to my situation. Everyone tells me that I have a great attitude, and that is because I had two options--a positive attitude or bad attitude--so I decided that I've always been positive and I would remain that way. People don't sympathize for long any way. Drugs for depression help, too. Keep your chin up! We are here for you. Have a wonderful day! Priscilla From: James Berg molokai...@gmail.com To: kimharrison...@comcast.net Cc: john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com; rn11...@yahoo.com Sent: Tue, September 28, 2010 1:50:57 AM Subject: Re: [TMIC] It's my birthday I'm Jim and I've only had TM for 6 months. I'm 63 and have led a very active life here in Hawaii. In a two day period in March I became paralyzed from the waist down. No bladder or bowel function. A week of Solu-medrol and then a week of IVIG treatment that cost 27,000 and no results. Neither my wife or I are able to work (she cares for me) and we are going into bankruptcy. We've lost the house and live with my son. I cry for my wife who has to suffer with me. I pray and pray for relief. I have almost committed suicide several times but leaving my wife that way has held me together. I can not imagine living like this for 10 or more years. Kudos to all of you who have managed some level of happiness. On Mon, Sep 27, 2010 at 12:41 PM, kimharrison...@comcast.net wrote: Yes we all have days like this... my 6 year anniversay is comming up oct 6th and it's hard not to dwell on how my life changed so much within a few hours... to go from being so active to tired just getting out of bed and try to explain to others how I feel. my TM family gets me thru so much! - Original Message - From: john snodgrass jcs...@yahoo.com To: rn11...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Sent: Monday, September 27, 2010 5:56:11 PM Subject: RE: [TMIC] It's my birthday Rob is right. yesterday i had a terrible day. wanted to go visit my 79 year old dad and couldn't. chair to bed all day! there was an accident below my home Saturday evening and i wanted to hurry to see if i could help or was it family or what and i almost fell down a lot of times! if i wanted to be sure on my feet i should use a stick or a walker but i am hard headed and wont s i look like a drunk man walking. today was a little better but still a lot of pain. I am @ 2.5 years into this thing and there was one day when i was so frustrated that i cried. sometimes you have to if you have to. i think self pity is natural when it comes to health problems. anyone who would cast a bad light on someone for that just may find themselves in a worse condition. not long after I had my virus in my spine i found out that one of my best friends had a virus that went to his heart. he is still functioning who who woulda thunk it! sometimes i just want to walk right out of this body. then i think of my loved ones and friends,and of course you folks that fight this same fight with me. keep on the firing line. tomorrow is a better day. --- On Mon, 9/27/10, rn11...@yahoo.com rn11...@yahoo.com wrote: From: rn11...@yahoo.com rn11...@yahoo.com Subject: RE: [TMIC] It's my birthday To: Robert Pall rp...@neillsupply.com Cc: tmic-list@eskimo.com Date: Monday, September 27, 2010, 5:39 PM Rob, I think everyone has days that tm is overwhelming. There have been several days lately that I've cried about all that I lost when tm struck me on 8/13/95. Except for those here on the list,nobody gets it and how hard just getting out of bed and functioning every day is. I thank all of you for being here. Yes Rob,tomorrow will be a better day! Cheryl in Easthampton,MA. --- On Mon, 9/27/10, Robert Pall rp...@neillsupply.com wrote: From: Robert Pall rp...@neillsupply.com Subject: RE: [TMIC] It's my birthday To: alle...@aol.com, tmic-list@eskimo.com Date: Monday, September 27, 2010, 3:21 PM What a coincidence ...today is my Bar Mitzvah ...it is exactly 13 years for me today...not sure how to celebrate. I came down with TM one week after my 50th birthdaytherefore when i had my big 10 year mark it was the first time I allowed myself self pity...I broke down for a day or two and just felt so much self pity..and then i realized how many wonderful things I have and I went back to my normally positive attitudebut today after 13 years I just think when I go home I will have a good cry allow myself tonight to feel sorry for myself. Tomorrow will be a better day! Ella ...give yourself a little time to grieve for what you have lost and then do your best to put it behind you... All the best! Rob in New Jersey From: alle...@aol.com
Fw: Re: Fw: Re: [TMIC] Feet Burns
Thanks for the suggestion about the support hose. My right foot and my stomach swell. What helps bloating of the stomach? I have cut my Lyrica down to 2x (75mg) from 3x a day, but it hasn't helped the swelling any. My legs still burn a little, but today I got sunburned and they are on fire now! Lots of rest and sleep help me the most. Guess I'd better go to bed now and see if I can go to sleep. Have a wonderful day! Priscilla From: c...@austin.rr.com c...@austin.rr.com To: Todd Tarno toddtm2...@sbcglobal.net; TMIC tmic-list@eskimo.com Sent: Fri, September 17, 2010 3:53:58 PM Subject: Re: Re: Fw: Re: [TMIC] Feet Burns I think you are right about that Todd because I can feel the burning subside when I put on my support hose. It will also cause my urine bag to fill faster as my legs give up the water from being squeezed by the hose. Just something I noticed after I started wearing hose a few years agoCody in Austin Sent from my BlackBerry® wireless device From: Todd Tarno toddtm2...@sbcglobal.net Date: Fri, 17 Sep 2010 12:28:06 -0700 (PDT) To: TMICtmic-list@eskimo.com Subject: Fw: Re: Fw: Re: [TMIC] Feet Burns I have been told by my doctor that, Our feet burns more when our feet are swollen, as the swelling goes down, our feet will not burn as much. I have notice that my feet are now only 50% swollen and I do believe the burning is 50% less. Todd --- On Thu, 9/16/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: Fw: Re: [TMIC] another wonderful night To: Janet Dunn j.d...@shaw.ca, 'Akua' a...@artfarm.com, tmic-list@eskimo.com Date: Thursday, September 16, 2010, 10:47 PM I have similar feelings too in my feet. A couple of weeks ago I spilt some juice on my foot and my neice grabbed a cloth and started washing it off. My foot really started spasming - scared us both. I hate it when I am walking and the bottom of my foot will start to spasm - it almost makes you fall. Janice From: Janet Dunn Sent: Thursday, September 16, 2010 9:52 PM To: 'Akua' ; tmic-list@eskimo.com Subject: RE: Fw: Re: [TMIC] another wonderful night My feet burn too, in fact, lately I cannot dry the bottoms of them with a towel as it causes a very uncomfortable feeling. I do know that since I have been taking 150mg of Lyrica 2x a day, the burning is not so bad. They are just cold all the time. Even when it is smokin hot outside, the feet, they stay cold! Janet From:Akua [mailto:a...@artfarm.com] Sent: September 16, 2010 5:45 PM To: tmic-list@eskimo.com Subject: Re: Fw: Re: [TMIC] another wonderful night . I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX my feet BURN too! Akua in the southenr finger lakes, NY --
[TMIC] Re: Swelling Feet
It is the right foot that swells, the right arm and hip are larger, and the right side of my face is larger than the left side. It's so strange. I would have trouble pulling up the hose since my hands and arms are so weak and I can't move my fingers. My caregiver could do it though. Thanks, Cody, for the reply. Have a wonderful day! Priscilla From: c...@austin.rr.com c...@austin.rr.com To: pkeen...@yahoo.com; t...@eskimo.com Sent: Sun, September 19, 2010 1:08:15 PM Subject: Swelling Feet Priscilla...It seems like everyone with TM has a dominate side of their body in terms of pain and other issues related to TM. Mine is my left and it sounds like yours is the right side. I had to start wearing the hose after I had a huge blood clot in my left leg. I also sleep with my feet elevated. When I wake up in the mornings the skin is lose around my toes. Then I put on my support hose and get dressed. When I take them off at bedtime my ankles will start swelling. That is why I sleep with them elevated. The hose are very tight and difficult to put on (much harder than pantyhose, I think :). I get the feet on first and then pull them up around my thighs. At first it's difficult but it gets much easier after a little practice. Hope that helps youCody in Austin Sent from my BlackBerry® wireless device
Re: Fw: Re: Fw: Re: [TMIC] Feet Burns
Thanks, Todd, I'll try that! I wanted to add that scented lotions make my legs burn more, especially lavender scented. Thanks for the reply. Have a wonderful day! Priscilla From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Sun, September 19, 2010 3:36:42 PM Subject: Re: Fw: Re: Fw: Re: [TMIC] Feet Burns Hey Priscilla, If you're able to submerge your sunburn in a bathtub for 30 minutes, Put 2 cups of Espon Salt into your warm bath water , because the water will get colder after a few minutes. Too bad this doesn't work on burning feet. lol Hope you're feeling better very soon, Todd CC, TX --- On Sun, 9/19/10, Priscilla Keene pkeen...@yahoo.com wrote: From: Priscilla Keene pkeen...@yahoo.com Subject: Fw: Re: Fw: Re: [TMIC] Feet Burns To: tmic-list@eskimo.com Date: Sunday, September 19, 2010, 1:09 AM Thanks for the suggestion about the support hose. My right foot and my stomach swell. What helps bloating of the stomach? I have cut my Lyrica down to 2x (75mg) from 3x a day, but it hasn't helped the swelling any. My legs still burn a little, but today I got sunburned and they are on fire now! Lots of rest and sleep help me the most. Guess I'd better go to bed now and see if I can go to sleep. Have a wonderful day! Priscilla From: c...@austin.rr.com c...@austin.rr.com To: Todd Tarno toddtm2...@sbcglobal.net; TMIC tmic-list@eskimo.com Sent: Fri, September 17, 2010 3:53:58 PM Subject: Re: Re: Fw: Re: [TMIC] Feet Burns I think you are right about that Todd because I can feel the burning subside when I put on my support hose. It will also cause my urine bag to fill faster as my legs give up the water from being squeezed by the hose. Just something I noticed after I started wearing hose a few years agoCody in Austin Sent from my BlackBerry® wireless device From: Todd Tarno toddtm2...@sbcglobal.net Date: Fri, 17 Sep 2010 12:28:06 -0700 (PDT) To: TMICtmic-list@eskimo.com Subject: Fw: Re: Fw: Re: [TMIC] Feet Burns I have been told by my doctor that, Our feet burns more when our feet are swollen, as the swelling goes down, our feet will not burn as much. I have notice that my feet are now only 50% swollen and I do believe the burning is 50% less. Todd --- On Thu, 9/16/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: Fw: Re: [TMIC] another wonderful night To: Janet Dunn j.d...@shaw.ca, 'Akua' a...@artfarm.com, tmic-list@eskimo.com Date: Thursday, September 16, 2010, 10:47 PM I have similar feelings too in my feet. A couple of weeks ago I spilt some juice on my foot and my neice grabbed a cloth and started washing it off. My foot really started spasming - scared us both. I hate it when I am walking and the bottom of my foot will start to spasm - it almost makes you fall. Janice From: Janet Dunn Sent: Thursday, September 16, 2010 9:52 PM To: 'Akua' ; tmic-list@eskimo.com Subject: RE: Fw: Re: [TMIC] another wonderful night My feet burn too, in fact, lately I cannot dry the bottoms of them with a towel as it causes a very uncomfortable feeling. I do know that since I have been taking 150mg of Lyrica 2x a day, the burning is not so bad. They are just cold all the time. Even when it is smokin hot outside, the feet, they stay cold! Janet From:Akua [mailto:a...@artfarm.com] Sent: September 16, 2010 5:45 PM To: tmic-list@eskimo.com Subject: Re: Fw: Re: [TMIC] another wonderful night . I do feel both of my feet feel like there should be flames coming off my feet. lol Hope this helps, Todd in CC, TX my feet BURN too! Akua in the southenr finger lakes, NY --
Fw: [TMIC] re bladder problems.
what will TM think of next. Gerry, I loved this. It is sooo true! Have a wonderful day! Priscilla - Forwarded Message From: Gerry Surette suret...@sympatico.ca To: jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Sun, July 11, 2010 8:18:30 PM Subject: [TMIC] re bladder problems. tell me about it. I just recovered from chronic myleopathy felt like passing an elephant through my penis. I somehow know what you ladies go through giving birth. anyway prior to that bout i used to go to the bathroom almost every 1 1/2 hours during the night. hardly none during the day. once the myleopathy passed i was prescribed 0.4mg of flomax cr ( for men only). I was told by the eurologist that 40 - 60% of men over 50 suffer from enlarged prostates. once I started this medication : i only take it at bedtime as it causes dizzyness. I rarely go to the bathroom maybe twice during the night. this is another great side effect of TM . what will TM think of next. Hope this helps. gerry in Montreal p.s. weather stinks no comment
Fw: [TMIC] This link was on the Forum today...surgery for 4-yr old with TM - WoW
Bernie, I was thinking the same thing. The lesion would have to be repaired I would think. just sayin' Have a wonderful day! Priscilla From: Bernard Pelow bpe...@austin.rr.com To: TMIC tmic-list@eskimo.com Sent: Sat, July 10, 2010 1:45:17 AM Subject: Re: [TMIC] This link was on the Forum today...surgery for 4-yr old with TM - WoW I am not sure how this will work? TM does the damage at the cord level, so how is transferring nerves from one leg to another going to help? Any of you got an idea as to this, especially medically trained persons I was a paramedic training to be an RN, and I cannot see how this is a fix for TM. The only way a nerve transplant would work was if the girl had Gulliame Barre' and the myelin from that nerve was destroyed; then replacing it might work. But for TM, I don't see or understand it. The article said very little as to how the doctors came to this conclusion. Peace, Bernie in Texas On 7/9/2010 11:14 AM, Pieter and Heather wrote: On the TM Forum today there was this link. It is about a little 4 yr old girl with TM and a first ever surgery to see if it can help her walk. WoW. Heather in Calgary http://www.wbaltv.com/health/24188659/detail.html No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.830 / Virus Database: 271.1.1/2992 - Release Date: 07/09/10 13:36:00
Re: [TMIC] forgot to say that I'm home
Hey Barbara, I'm relieved to know you finally made it home. You were gone a really long time! I know it wasn't fun spending time in the hospital. I leave next Tues. to go to KC (plane-5 hrs.) to my daughter's and on to Branson (car-4 hrs.) Thurs. and Fri. nights. Did you stop in Branson to see some shows? I know I'll be tired, but I plan to rest a lot and take it slow. I'm in good health with limited walking so I'll take my wheel chair with me just in case. My worst problem is that my hands are paralyzed so I'm taking a friend with me to help me in the airports and getting on and off the planes. I have a hard time climbing steps and at some airports where they don't have a jetway, they have to roll in a portable lift to get me up to the door. That's awkward because I feel like everyone is watching me. Anyone live near KC? It would be great meeting someone else with TM. I haven't been on a vacation for 2 years, and I'm really excited. Enjoy the holiday weekend and never forget those who served our country for our freedom! Peachy in sunny TN From: Barbara Alma balmat...@aol.com To: tmic-list@eskimo.com Sent: Fri, May 28, 2010 7:35:01 PM Subject: [TMIC] forgot to say that I'm home I'm sorry that I forgot to tell you all that I arrived safely home late on Friday, May 21st. We managed to put 7608 miles on our van and enjoyed practically the entire trip. It really was a great trip, and was almost without incident. With regard to health problems: I fared really well, other than a bout of pneumonia and a night in the hospital in Colorado. This sounds bad, but I have gotten pneumonia at home many times. It was worse getting it on the road, as it has taken me so much longer to recuperate than usual, so that's the worse part. It also made the last week and a half of our trip a bummer, without much fun. No gambling in Vegas since I couldn't handle the smoky casinos, but that probably saved me some money. We managed to see 2 shows though. I had about 7 days out of 46 of laying in bed, resting my back overall. Not too bad, but they were spread out. We managed to see family and friends that we hadn't seen in several years, did things that we didn't know existed, and went to states that we had planned on visiting, but didn't really know when we'd do it. All this because our god-daughter planned her wedding. So, right after this, I'm going to call her and thank her for planning her wedding and for us having the opportunity to push my inner thoughts into planning this wonderful trip. She really didn't have any awareness of this when she planned it, but my mind started to wander, I only wondered if I could handle it. I wholehearted recommend to anyone who really wants to do any kind of a journey, whether it's a days drive or whatever, to give yourself the chance. We stopped often, whenever I felt that I needed to, sometimes every hour, sometimes in 2 hours, but I did it. We've done short trips in the past, and I did much better this time as it allowed for more relaxation since we had more time. Hugs, Barbara A in Auburn CA
[TMIC] OT My Mom
I am so saddened to hear of your loss. May the Lord bless and keep you and give you peace. Priscilla - Forwarded Message From: jrushton jrush...@columbiaenergyllc.com To: j ra rumc...@hotmail.com; tmic tmic-list@eskimo.com Sent: Sun, March 21, 2010 11:08:36 PM Subject: Re: [TMIC] OT My Mom Your TM family is here for you. Jeron Thank you, Jeron, for sending your note. It is so true. Jeanne
Fw: [TMIC] my Mom - Update
Hi Kevin, I am so sorry to hear that your mother is refusing to eat. Try to visit her as soon as you can and encourage her to eat. Remember that we are all here for you and we really care. Keep us posted on her condition and take care of yourself. Priscilla - Forwarded Message From: L T CHERPESKI cherp...@msn.com To: tmic-list@eskimo.com; Kevin Wolfthal wolft...@optonline.net Sent: Wed, February 24, 2010 8:43:42 PM Subject: Re: [TMIC] my Mom - Update Hi Kevin, I'm really sorry about your mom. Please know that both you and your mom are in my thoughts and prayers. Would you please keep us updated on how she is doing? Take care, Linda - Original Message - From: Kevin Wolfthal To: tmic-list@eskimo.com Sent: Wednesday, February 24, 2010 4:26 PM Subject: [TMIC] my Mom - Update My Mom is still refusing to eat. I sent our health companion Kedra to the nursing home to sit with her and try to get her to eat. She always liked Kedra. If her depression doesn't lift, she may be moved to a geriatric psychiatric unit. I am going to try to visit her, but I don't know if I can yet. Please keep the prayers coming. Prayers to you all, Kevin
Fw: [TMIC] re OT Prayer Request
Praying for a complete recovery of your mother, and also for your health and well-being. Priscilla - Forwarded Message From: L T CHERPESKI cherp...@msn.com To: tmic-list@eskimo.com; Kevin Wolfthal wolft...@optonline.net Sent: Fri, February 12, 2010 10:20:54 PM Subject: Re: [TMIC] re OT Prayer Request Kevin, I will keep your mom in my prayers, that she will be healed. Please know that you are in my prayers as well. You need to rest and take care during this time. I know from experience how exhausting this is. Do you have someone who can help out? Stay with you? hugs, Linda - Original Message - From: Kevin Wolfthal To: tmic-list@eskimo.com Sent: Friday, February 12, 2010 7:32 PM Subject: [TMIC] re OT Prayer Request Thank you all for your prayers. My Mom has been moved to a nursing home for rehab tonight. I am exhausted from dealing with hospitals from my sick bed. You are all kind. I wish I could thank you individually. Please know you are all in my prayers and thoughts. Kevin
Re: [TMIC] Stem cells injected into spinal cord
http://www.cnn.com/2010/HEALTH/01/21/stem.cell.spine/index.html?section=cnn_latest Have a wonderful day! Priscilla From: CANDIS KALLEY cakal...@embarqmail.com To: TMIC-LIST TMIC-LIST@eskimo.com Sent: Thu, January 21, 2010 10:01:46 PM Subject: [TMIC] Stem cells injected into spinal cord I just saw First stem cells injected into spinal cord roll by on CNN - has anyone seen any news on this? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Cymbalta generic Duloxetine
I have the same donut and cymbalta problem. I've never heard of the generic--is it available here? Priscilla (snowed in in TN) From: CANDIS KALLEY cakal...@embarqmail.com To: TMIC-LIST TMIC-LIST@eskimo.com Sent: Fri, December 18, 2009 7:35:57 PM Subject: [TMIC] Cymbalta generic Duloxetine Has anyone used the generic Duloxetine? Canada lists this as a generic and at half the price. Wondering if I should try this during the doughnut hole problems - almost $1100 for all meds during this period. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: Re: [TMIC] Age
I was struck down in 2001 and I was 59 years old. I may be the oldest at 67 years old now. Have a wonderful day! Priscilla in TN From: jrushton jrush...@columbiaenergyllc.com To: tmic tmic-list@eskimo.com Sent: Sat, December 12, 2009 1:09:51 AM Subject: Fw: Re: [TMIC] Age I was 58 when hit with TM 5/2005. There is a little 13 year old here in town also hit with TM just this year. Too sad but she is doing great! j ---Original Message--- From: Mindy King Date: 12/10/2009 11:54:06 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Age 2007 age 46 Mindy the Artisan On Dec 11, 2009, at 12:35 AM, Janice Nichols wrote: Hey! I have a request. I was talking to my neuro and he was curious to know the ages that my website friends were when they were hit with TM. Do you all mind sending me that info - even if you only read messages and don't usually respond? I would like to get as many ages to him as possible. I told him you all were a pretty cooperative group! Thanks guys Janice, Missouri the King Family: Mindy, Larry, Anna and Ben we4king...@verizon.net
Re: [TMIC] December Birthdays
My dear Carol, I know this Christmas will be difficult for you, but I know that you will have a good one with the rest of your family. Life goes on, and you shouldn't feel guilty celebrating Christmas without Jim. He would want you to have a good time. As you said, he's listening to the angels sing in heaven. What a beautiful image! Have a Merry Christmas, everyone. Priscilla From: cjb...@aol.com cjb...@aol.com To: tmic-list@eskimo.com Sent: Wed, December 2, 2009 12:17:22 PM Subject: [TMIC] December Birthdays I will be celebrating Our Saviors birth and knowing that my Jim is without pain and is hearing the Herald Angels sing in person. I know he would want me and all of you to keep up the fight and give everyone more hugs this year. I will be with my little girls,yea!!! GOD BLESS THE BIRTHDAY KIDS, AND THE REST OF YOU TOO! Carol Belz
Re: [TMIC] December birthdays!
Have a very happy birthday everyone, and especially to Gilly who will celebrate on Christmas Day! Priscilla From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com Sent: Tue, December 1, 2009 11:19:47 PM Subject: [TMIC] December birthdays! Happy Birthday to the December kids! Please send any additions or corrections to tmic-l...@eskimo.com. 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jan...@centurytel.net) 12-3 Wim from Holland (wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.com) 12-7 Patti in Wisconsin (patticoo...@wi.rr.com) 12-8 Lori Malloy (jorlcummi...@earthlink.net) 12-10 Shirley from UK (shirley.up...@dsl.pipex.com) 12-15 Alton (a.ry...@ix.netcom.com) 12-15 CarolAnn (ladycame...@aol.com) 12-18 Rod Jenke (rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@verizon.net ) 12-25 Gilly () 12/31 Janet (j.d...@shaw.ca)
Re: [TMIC] Feet
Mine is at c5 and c6. My legs were paralyzed briefly, but I can walk now, a little shakey but I can walk! It happened in 2001. Have a wonderful day! Priscilla From: Amanda Diskey adis...@yahoo.com To: Priscilla Keene pkeen...@yahoo.com; tmic-list@eskimo.com Sent: Fri, October 2, 2009 7:46:06 AM Subject: Re: [TMIC] Feet hi priscilla, i don't blame you! what are we circus freaks! where is your tm? mine is at c5 but my arms are fine,, its my hands that are a pain. my right hand is stiff and my left is not. i can even move the fingers on my left hand some. i cannot grip well with my left hand and not at all with my right one. can you use your legs? i am in a wheelchair. just curious. amanda From: Priscilla Keene pkeen...@yahoo.com To: Janice jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Thursday, October 1, 2009 11:29:23 PM Subject: Re: [TMIC] Feet Hi Janice, No, they were normal before TM. My arms and hands are another story: my right arm is twisted inward slightly, my right hand is stiff, cannot lift my right hand-it droops like foot drop, I use a utensil holder on my right hand, I type with my right thumb. My left arm is twisted outward slightly. My left fingers are curled slightly, I can lift my left hand. I can push down my pants with my left hand, but have to pull up with the right. I can't feel hot or cold water on my arms or hands. I can't drive. I can't raise my arms over my head. Does anyone else have these strange characteristics? My neurologist had never seen this phenomenom before and wanted me to come to the university where he teaches to show his students. I opted not to do so. Have a wonderful day everyone! And happy birthday to all those celebrating this month. Priscilla in TN From: Janice jan...@centurytel.net To: Priscilla Keene pkeen...@yahoo.com; tmic-list@eskimo.com Sent: Wed, September 30, 2009 11:05:38 PM Subject: Re: [TMIC] Feet I am assuming that the feet were not a problem before TM. Janice, Missouri - Original Message - From: Priscilla Keene To: Janice ; tmic-list@eskimo.com Sent: Wednesday, September 30, 2009 8:07 PM Subject: Re: [TMIC] Feet Mine are just like yours! Have a wonderful day! Priscilla From: Janice jan...@centurytel.net To: Catherine camoa...@yahoo.com; Todd Tarno toddtm2...@sbcglobal.net; Transverse Mylitis Group tmic-list@eskimo.com Sent: Tue, September 29, 2009 7:59:34 PM Subject: Re: [TMIC] Feet Do both of yours turn in or just one. My left in fine, my right sure wants to go right (outwards). We need to be able to control our feet or no telling what direction we will end up!! Janice, Missouri - Original Message - From: Catherine To: Todd Tarno ; Transverse Mylitis Group Sent: Tuesday, September 29, 2009 5:22 PM Subject: Re: [TMIC] Feet Hey Janice, mine turn in as well. Love Catherine From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, September 29, 2009 3:22:07 PM Subject: Re: [TMIC] Feet Hey Janice, Both of my feet turn inward. My walk is more scissors walk. Todd in CC, TX --- On Mon, 9/28/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Feet To: tmic-l...@eskimo.net Date: Monday, September 28, 2009, 9:47 PM Hello All, I was wondering if any of you had one or both feet that wants to turn out. My right foot leans to the right instead of walking straight. When I straighten it, it feels like I am walking pigeon-toed. Do any of you have something like that? Janice, Missouri Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile
Re: [TMIC] Feet
Mine are just like yours! Have a wonderful day! Priscilla From: Janice jan...@centurytel.net To: Catherine camoa...@yahoo.com; Todd Tarno toddtm2...@sbcglobal.net; Transverse Mylitis Group tmic-list@eskimo.com Sent: Tue, September 29, 2009 7:59:34 PM Subject: Re: [TMIC] Feet Do both of yours turn in or just one. My left in fine, my right sure wants to go right (outwards). We need to be able to control our feet or no telling what direction we will end up!! Janice, Missouri - Original Message - From: Catherine To: Todd Tarno ; Transverse Mylitis Group Sent: Tuesday, September 29, 2009 5:22 PM Subject: Re: [TMIC] Feet Hey Janice, mine turn in as well. Love Catherine From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, September 29, 2009 3:22:07 PM Subject: Re: [TMIC] Feet Hey Janice, Both of my feet turn inward. My walk is more scissors walk. Todd in CC, TX --- On Mon, 9/28/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: [TMIC] Feet To: tmic-l...@eskimo.net Date: Monday, September 28, 2009, 9:47 PM Hello All, I was wondering if any of you had one or both feet that wants to turn out. My right foot leans to the right instead of walking straight. When I straighten it, it feels like I am walking pigeon-toed. Do any of you have something like that? Janice, Missouri Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile
Fw: [TMIC] Looking for TMr's for support groups
Have a wonderful day! Priscilla Keene in Tennessee - Forwarded Message From: lynne myers lynnemye...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Wednesday, September 16, 2009 8:46:23 AM Subject: Re: [TMIC] Looking for TMr's for support groups Lynne Myers Olivet MI Michigan Support Group Leader --- On Tue, 9/15/09, L T CHERPESKI cherp...@msn.com wrote: From: L T CHERPESKI cherp...@msn.com Subject: Re: [TMIC] Looking for TMr's for support groups To: 'Butcher, Bernie (SFS)' bernie.butc...@honeywell.com, 'Robert Pall' rp...@neillsupply.com, 'Janice' jan...@centurytel.net, 'Jill Z' jillybean60...@yahoo.com, 'Catherine' camoa...@yahoo.com, 'Laura Beaudin' laura.beau...@gmail.com, Patricia Cooley patticoo...@wi.rr.com Cc: 'kevin weilacher' hwyfli...@yahoo.com, 'Transverse Mylitis Group' tmic-list@eskimo.com Date: Tuesday, September 15, 2009, 9:28 PM Linda Cherpeski - Eagle, Idaho (Boise area) - Original Message - From: Patricia Cooley To: 'Butcher, Bernie (SFS)' ; 'Robert Pall' ; 'Janice' ; 'Jill Z' ; 'Catherine' ; 'Laura Beaudin' Cc: 'kevin weilacher' ; 'Transverse Mylitis Group' Sent: Tuesday, September 15, 2009 8:28 AM Subject: RE: [TMIC] Looking for TMr's for support groups Patti - S.E. Wisconsin From:Butcher, Bernie (SFS) [mailto:bernie.butc...@honeywell.com] Sent: Tuesday, September 15, 2009 6:48 AM To: Robert Pall; Janice; Jill Z; Catherine; Laura Beaudin Cc: kevin weilacher; Transverse Mylitis Group Subject: RE: [TMIC] Looking for TMr's for support groups Barney - LI, NY From:Robert Pall [mailto:rp...@neillsupply.com] Sent: Tuesday, September 15, 2009 7:44 AM To: Janice; Jill Z; Catherine; Laura Beaudin Cc: kevin weilacher; Transverse Mylitis Group Subject: RE: [TMIC] Looking for TMr's for support groups Rob-Marlboro New Jersey From:Janice [mailto:jan...@centurytel.net] Sent: Monday, September 14, 2009 11:20 PM To: Jill Z; Catherine; Laura Beaudin Cc: kevin weilacher; Transverse Mylitis Group Subject: Re: [TMIC] Looking for TMr's for support groups Janice - Columbia, Missouri - Original Message - From:Jill Z To:Catherine ; Laura Beaudin Cc:kevin weilacher ; Transverse Mylitis Group Sent:Sunday, September 13, 2009 9:54 PM Subject:Re: [TMIC] Looking for TMr's for support groups Jill From Chicago --- On Sun, 9/13/09, Laura Beaudin laura.beau...@gmail.com wrote: From: Laura Beaudin laura.beau...@gmail.com Subject: Re: [TMIC] Looking for TMr's for support groups To: Catherine camoa...@yahoo.com Cc: kevin weilacher hwyfli...@yahoo.com, Transverse Mylitis Group tmic-list@eskimo.com Date: Sunday, September 13, 2009, 8:29 PM ...and I'm Laura from Edmonton, Alberta. :) On Sun, Sep 13, 2009 at 7:25 PM, Catherine camoa...@yahoo.com wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass.
Re: [TMIC] That banding feeling
I, too, have banding, but it has lessened over the 8 years I've had TM. It wasextremely painful for the first few years, but now I only have pain below my right breast at night.My hands are paralyzed, and I can't unhook my bra so sometimes I have to sleepwith it on,andthat really hurts--I try to go to sleep asap! Lyrica helps me a lot with the banding. ~I've got that banding feeling, ohohoh, that banding feeling I've got that banding feeling And it's not gone, gone, gone It's not gone, gone, gone ohohohohoh!~LOL Have a wonderful day! Priscilla From: L T CHERPESKI cherp...@msn.comTo: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; heyjude48...@aol.comSent: Monday, August 17, 2009 11:20:58 PMSubject: Re: [TMIC] That banding feeling Hi Jude, It's so good to see you posting. It's been too long and we've missed you. I'm getting pretty sick of this banding too. And I've had the same thing with the breathing. What's up with that?? The first time it happened I was actually a little scared. If I would mind my P's and Q's and nottry to do too much in one day,ALL of myaches and pains would be more manageable.well, maybe love, Linda - Original Message - From: heyjude48...@aol.com To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com Sent: Monday, August 17, 2009 6:09 PM Subject: Re: [TMIC] That banding feeling Hi Jeanne, The banding has been exactly the same for me. It has been with me since day one and starts underneath my breasts and goes all the way around my abdomen. When it gets real bad, it continues downward until I feel completely enveloped by it. Sometimes it hurts so badly it hurts to even breathe. I don't let TM or anything get me down, but I am beginning to feel angry, after seven years. I am pissed because I cannot work in the garden and go places without it being a big deal to get dressed, fix my hair and sometimes put on make up so the pain doesn't show so badly. I was told that I looked old when I am in pain...by a sweet 14 year old boy. "Thank you very much". For the constipation problem, for years I have used Fish Oil capsules, one per day and I get them from the health food store or my pharmacy. They work like a dream. And I have the kind of bowel that moves the poop down to "the vault", but will not push it out, so I have done digital removable for ever and ever. It's not fun, but we need to do what we need to do... Love and Prayers, Jude In a message dated 8/11/2009 1:09:43 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-)Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks!-- Laura
Re: [TMIC] OT: music moment
One of my favorites, and well done. Thanks for sending. Have a wonderful day! Priscilla From: wim from holland wim_from_holl...@hotmail.com To: TMIC tmic-list@eskimo.com Sent: Tuesday, July 14, 2009 7:21:14 PM Subject: [TMIC] OT: music moment For my brother in laws 50th aneversery, my 2 sons, 2 nefews and there mother payed Hotel Claifornia for him. It is now on You Tube All 4 of them play or played in bands as gitarists and singers. On the left and middle my oldest and youngest son, they play in 'The Real Thing' and 'MANoMAN' both local bands. The drummer here is no longer in a band, the 12 string player plays in 'Textures', plays also in the US and the are all over Europe and Russia with the band. Wim from Holland http://www.youtube.com/watch?v=s_iD_oj2ZBIeurl=http%3A%2F%2Fomatit%2Ehyves%2Enl%2F%3Fref%3Dnewscrap%26pageid%3D3JTWVB0WRDICGCG0Wfeature=player_embedded Plan je party en pimp je uitnodigingen met Windows Live Events
Re: [TMIC] Blurred vision
It's funny you would post that today as it seems like my vision has been very blurry and I was wondering what I could do as my meds are working so great now and I don't want to change. I think it's the lyrica I take. Neurontin caused blurry vision when I took it in the past. Have a wonderful day! Priscilla From: Akua a...@artfarm.comTo: tmic-list@eskimo.comSent: Thursday, July 9, 2009 12:12:34 AMSubject: Re: [TMIC] Blurred visionOxybutnin ( a detrol la type) did that to me. I stopped and yes, my vision improvedso now i only use it when there is a special event or a day of traveling.AkuaDuring the course of my medication regimen, I had taken medication that has caused me to have blurred vision. I know there has been others who have complained about having their vision impaired due to medication. My question is this: has anyone stopped taking the medication and have their vision improve or return to normal?NaomiC-4 Quadriplegic, since July 2, 2005Due to Transverse Myelitis--
Fw: Re: [TMIC] Pam. Montz
I am so shocked to hear about our dear friend Pam. Sometimes she would send me a personal message, encouraging and consoling me when I felt a little sorry for myself. I wish I could have known her personally. My thoughts and prayers go out to her family and the entire TMIC group. !!TIAD!! Have a wonderful day! Priscilla --- On Sun, 6/7/09, Jenna jkste...@yahoo.com wrote: From: Jenna jkste...@yahoo.com Subject: Re: [TMIC] Pam. Montz To: heyjude48...@aol.com Cc: TMIC tmic-list@eskimo.com Date: Sunday, June 7, 2009, 9:08 PM Jude, thanks for the information. I know you are hurting and you are still so eloquent when you write. We have to be grateful and thankful for the experiences we have had with her, and you are right we need to do something that will make a difference for TM in her name. Because she has done so much for so many of us. Jenna From: heyjude48...@aol.com heyjude48...@aol.com To: jharpe...@aol.com; TMIC-List@eskimo.com Sent: Sunday, June 7, 2009 9:57:46 PM Subject: Re: [TMIC] Pam. Montz We all have received the same short message about Pam. I spoke with her daily as she had recently got a free long distance telephone set up. It was fun talking as long as we wanted to. Anyway, she had been complaining about pain in her left shoulder that continued down her arm. Nothing she did for it helped. She had fallen in the house and landed on her shoulder and that''s what I understand what prompted her to go to the hospital. Her doctor wanted her to go but Pam didn't want to. Obviously, she ended up taking her Dr's advice. Once she left for the hospital, I never heard from her again and I thought everything was hunky-dory until I received the short email from Dan regarding Pam passing away. I don't have the heart to call Dan and ask him for the details. I guess Linda spoke with Dan who told her that Pam had blood thinner than water or something like that. It was Linda's thought, and Mine as well, that Pam must have had a blood clot that went right to either her heart or to her brain. At any rate, she passed quickly and without pain. That is the most that any of us can hope for. Pam will be sadly missed by many of us and may we do good works in Pam's name and memory for the rest of our lives. All My Love and Respect to the Transverse Myelitis Support Group List, Jude In a message dated 6/7/2009 9:02:24 P.M. Eastern Daylight Time, jharpe...@aol.com writes: I am totally stunned. Does anyone know what happened? Barbara H. http://barbarah.wordpress.com/ In a message dated 6/7/2009 9:00:18 P.M. Eastern Daylight Time, alle...@aol.com writes: I have some sad news. I had written to Pam Thurs (I think) and received this reply today. I don't know anything other than this but let's keep her family in prayer..Ella -Original Message- From: montzma...@aol.com To: elbanks...@aol.com Sent: Sun, 7 Jun 2009 10:56 am Subject: Re: Hi Pam pam passed away sat. night at touro hospital An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com. We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? Explore WhereItsAt.com.
[TMIC] Naomi
Has anyone heard from Naomi lately? She was to have surgery recently, but I've not heard from her since. Naomi, if you see this, please let us know how you are! !TIAD! Priscilla
Fw: Re: [TMIC] SURG ON FRIDAY
Jeff, I'm praying that your surgery is successful and your recovery is complete, and you will eventually function normally. Have a blessed day, Priscilla in TN --- On Wed, 4/29/09, Jan Hargrove jmh1...@sbcglobal.net wrote: From: Jan Hargrove jmh1...@sbcglobal.net Subject: Re: [TMIC] SURG ON FRIDAY To: msersl...@yahoogroups.com, tmic-list@eskimo.com, jeff bernier jeffsmokeea...@yahoo.com Date: Wednesday, April 29, 2009, 3:23 PM Jeff, You'll be in our hearts and prayers...I think it'll be interesting to see what happens with once the mass is removed! Keep us updated as you feel like it..janh --- On Wed, 4/29/09, jeff bernier jeffsmokeea...@yahoo.com wrote: I HAVE SURG ON FRIDAY TO REMOVE A MASS ON THE BACK OF MY NECK,AFTER YEARS OF BEING DX WITH MS AND THE DOCS TELLING ME IT ISNT RELATED TO MY CONDITION IM FINALLY GETTING IT TAKEN OUT. JUST A NOTE,I KNOW 2 OTHER PEOPLE THAT HAVE HAD THE SAME PROBLEM AS MY SELF,ONE OF THEM WAS WAS DX WITH MS 22 YEARS AGO.THEY BOTH HAD THE MASS REMOVED AND ARE NOW FUNCTIONING NORMALLY WITH NO OTHER COMPLICATIONS,SO GO FIGURE! JEFF DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
Re: [TMIC] Re: tmic-digest Digest V2009 #255
Dear Dee,
I am so sorry to hear about Arthur. I hope you found support from the group
during your time spent on the site. Stay with us if you have time, but if
not, to unsubscribe from the list, send email to tmic-list-requ...@eskimo.com,
with the Subject unsubscribe. That's all that's needed. You are in our hearts
and prayers.
God is good all the time!
Priscilla in TN
--- On Mon, 4/20/09, Delores Storey deloresto...@yahoo.com wrote:
From: Delores Storey deloresto...@yahoo.com
Subject: [TMIC] Re: tmic-digest Digest V2009 #255
To: tmic-list@eskimo.com
Date: Monday, April 20, 2009, 11:52 AM
Please remove me from the mailing e-mail list. My husband Arthur made his
transition 3/20/09. I appreciate the information and friendship available to us
on this site. Again thank you all and I know God is blessing us each and every
one.
Dee
--- On Thu, 4/9/09, tmic-digest-requ...@eskimo.com
tmic-digest-requ...@eskimo.com wrote:
From: tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #255
To: tmic-dig...@eskimo.com
Date: Thursday, April 9, 2009, 6:55 PM
tmic-digest Digest Volume 2009 : Issue 255
Today's Topics:
Re: [TMIC] RE: tmic-digest Digest V2 [ Janice
jan...@centurytel.net ]
#yiv2140879355 #yiv338963554 .hmmessage P {
PADDING-RIGHT:0px;PADDING-LEFT:0px;PADDING-BOTTOM:0px;MARGIN:0px;PADDING-TOP:0px;}
#yiv2140879355 #yiv338963554 {
FONT-SIZE:10pt;FONT-FAMILY:Verdana;}
Okay, you all are making me feel braver about traveling. Also, I have a great
husband to help me. Marieke, you surprised me when you said you wear a
brace. How did that come about and how does it help you? Janice
- Original Message -
From: marieke dufresne
To: tmic-list@eskimo.com
Sent: Thursday, April 09, 2009 3:45 PM
Subject: [TMIC] RE: tmic-digest Digest V2009 #247
I have travelled by plane alone and with my boyfriend (now ex). Last time I
went alone was from Montreal QC, Canada to Seattle, WA. Took 2 planes there and
2 back. (Mtl to Toronto to Seattle there, Seattle to Vancouver BC to Mtl back).
The long rides were 6 hrs, the short was 1.5 hrs (Mtl-TO) and 30 min (SeaTac to
Van).
I travel with my wheelchair and bring my cane and wear my long leg brace. When
I travel alone I usually get bumped to FIRST Class for FREE! I ask for seats
close to the bathroom (and often they figure since I am alone I will need more
help as I am in a chair, and they have more time to help when in 1st class).
The first time I travelled alone I was nervous about going through security,
the only time they ever gave me problems was going from Mtl to TO to Seattle.
The Mtl security (US side) was ok really, but one lady there wanted me to take
off my brace... um, I need to take off my shoes/pants.. I just looked at them
and said, it's a brace that surrounds my leg, no hollow parts, I can't hide
anything there. I was pissed, not b/c that they wanted to check it, that's
fine, but it was her attitude that really got to me. She was rude and talked
like I was mentally challenged. Um , hello, I may be in a wheelchair, but I
am perfectly capable of making conversation! Grrr...
Don't let the difficulties of travelling stop you! It sounds harder than it is,
and I was plenty worried, but it turned out just fine and I had a great flight!
(the attendents were so very nice and helpful and it doesn't hurt that I look
under 18 sometimes!).
Marieke 33yo, t...@t1 since March 18, 2004
Date: Thu, 9 Apr 2009 12:38:45 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2009 #247
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest Volume 2009 : Issue 247
Today's Topics:
Re: [TMIC] Lack of Communication [ Trudy Ogilvie mother...@gmail.com ]
--Forwarded Message Attachment--
Date: Thu, 9 Apr 2009 14:44:48 -0400
From: mother...@gmail.com
To: pieterheat...@shaw.ca
CC: tmic-list@eskimo.com
Subject: Re: [TMIC] Lack of Communication
Heather I have found that sometimes you just have to do what you have to do!!
I flew alone to be with my mom when she was in her late 80's and I was so glad
that I did. Everyone was so kind and helpful. I too use a walker and sometimes
a cane! Long trips are awful but my son is getting married in Lima, Peru in
November and I am definitely going to be there! I have hand controls on my car
because I do not have any real control over my legs. All rental cars have
handicapped equipped cars. And they are not allowed to charge extra for the
device. There are different types but it's so easy, you catch on very quickly.
Tho it sounds like you have lots of people to ferry you around. Have a
wonderful time!! I love it when our family gets together! Cherish those
moments!
Again, ENJOY!!!
Trudy
On Thu, Apr 9, 2009 at 1:20 AM, Pieter and Heather pieterheat...@shaw.ca
wrote:
Janice et al,
I will be
RE: [TMIC] Where is everyone
Dear Jude, I hope that you are on the mend now since your surgery. Is it painful to sit up? I am still sensitive since my pressure sore 8 years ago. I feel so terrible about your not having any one to stay with while Dave has his surgery. If I didn't have 2 different caregivers, I could be in the same situation. Patti had some good ideas to share. Another idea, probably not a good one, but could you stay in a nursing home temporarily? I know several people who had to do this. I wish you well. Happy Easter! Priscilla Please send your new e-mail address again. --- On Wed, 4/8/09, Patricia Cooley patticoo...@wi.rr.com wrote: From: Patricia Cooley patticoo...@wi.rr.com Subject: RE: [TMIC] Where is everyone To: heyjude48...@aol.com, tmic-list@eskimo.com Date: Wednesday, April 8, 2009, 4:03 PM HI JUDE: THE ONLY RESPONSE I RECEIVED IS THIS ONE. I AM SO SORRY YOU ARE NOT DOING SO WELL. I HAD THOUGHT YOU WERE DOING PRETTY GOOD SINCE YOU RETURNED FROM THE HOSPITAL. I WONDER IF THERE ISN’T ANY SOCIAL ORGANIZATION THAT CAN ARRANGE FOR SOMEONE TO BE WITH YOU WHILE DAVE IS HAVING HIS SURGERY. IF THERE IS, YOUR DOCTOR’S OFFICE OR THE HOSPITAL SHOULD BE ABLE TO PUT YOU IN TOUCH WITH THEM. I SURE WISHED WE ALL LIVED CLOSER SO WE COULD HELP EACH OTHER IN TIMES LIKE THIS. AT TIMES LIKE THIS WE SURE NEED FAMILY. I AM SO FORTUNATE THAT MY DAUGHTER AND HER FAMILY LIVE JUST UP THE STREET. I DO HAVE MY HUSBAND WHICH I AM SO GRATEFUL FOR, BUT HE CAN’T DO EVERYTHING. HE DOES SO MUCH AS IT IS. PLEASE KEEP US INFORMED AND KNOW WE ARE PRAYING FOR YOU BOTH. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Wednesday, April 08, 2009 3:38 AM To: patticoo...@wi.rr.com Subject: Re: [TMIC] Where is everyone Did you get my response Patti? I did get your note and sent you a short answer. I am not well at all and am concerned about Dave having surgery and have no place to go. One of my so called friends offered me to stay at her house but yesterday she called and told me I could not stay there now. I am not well and we are both worried about the other. You take care now. I love you, Jude In a message dated 4/7/2009 10:40:33 A.M. Eastern Daylight Time, patticoo...@wi.rr.com writes: THINGS HAVE BEEN QUIET, BUT I DID SEND YOU A SHORT MESSAGE YESTERDAY A.M. I HOPE YOU GOT IT. PATTI - WISCONSIN From: heyjude48...@aol.com [mailto:heyjude48...@aol.com] Sent: Tuesday, April 07, 2009 8:57 AM To: rn11...@yahoo.com; TMIC-LIST@eskimo.com Subject: Re: [TMIC] Where is everyone I am still here, but there has been little or no activity for a long time. I came home from the hospital and there was no one on the List. Love you, Jude In a message dated 4/7/2009 9:18:22 A.M. Eastern Daylight Time, rn11...@yahoo.com writes: Hi I haven't had any messages in 2 days.Is it just really quiet? Cheryl in rainy Easthampton,Mass. A Good Credit Score is 700 or Above. See yours in just 2 easy steps! New Deals on Dell Netbooks - Now starting at $299
Fw: RE: [TMIC] a presurgery update on Jude
I am hoping to hear good news about Jude's surgery. She is some spunky lady and a courageous fighter. Jude, we hope your surgery is successful. Most of us know about pressure sores and how long the healing process is, and many of us are sending up prayers for a quick and complete recovery. We understand if you don't post for a while. I live a half mile from Bristol Motor Speedway and am surrounded by campers and thousands of race fans this weekend. I guess i'll be homebound until Mon. Have a wonderful day everyone! Priscilla --- On Fri, 3/20/09, Patricia Cooley patticoo...@wi.rr.com wrote: From: Patricia Cooley patticoo...@wi.rr.com Subject: RE: [TMIC] a presurgery update on Jude To: pjv1...@chartermi.net, 'tmic-list-at-eskimo.com' tmic-list@eskimo.com Date: Friday, March 20, 2009, 12:26 PM PATTI: THANKS FOR YOUR POST ABOUT JUDE. WE ARE ALL PRAYING FOR HER TO HAVE SUCCESSFUL SURGERY AND A COMPLETE AND FAST RECOVERY. WE WILL BE WAITING FOR YOUR POST. THANKS AGAIN. PATTI IN WISCONSIN -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Friday, March 20, 2009 10:08 AM To: tmic-list-at-eskimo.com Subject: [TMIC] a presurgery update on Jude I talked with Jude Wednesday evening by telephone, because I had a sore throat and runny nose and couldn't visit her in person. She had been on the phone all afternoon with other TMers (as Jude would say -you know who you are) and said she realized that her last message sounded like she was afraid of her surgery. Jude told me she wasn't afraid anymore. She wasn't/isn't looking forward to the recovery. She knows there are a lot of us praying for her and feels those prayers. Jude responded to a prayer that I sent her. At 7:00 AM this morning said she wrote that she was waiting for the ambulance to pick her up at home and transport her to the hospital for today's surgery. She was to be at the hospital at ten and the surgery is scheduled for one something. Jude sounded relaxed in her post so I still believe that she is at peace regarding her situation. One of us will write (Ella, Pam, Linda, myself) as soon as we know anything more. Blessings to all Patti - Michigan
Fw: Re: [TMIC] Re: How goes it??
Dear Phranque, It sounds as if you had a terrible blow to that hand and arm. I hope you heal quickly and you don't have a lot of pain. (Ya'll know that Phranque knows best how to handle pain!) Take care! Priscilla in beautiful TN --- On Sat, 3/21/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: Re: [TMIC] Re: How goes it?? To: pjv1...@chartermi.net, mother...@gmail.com, fr...@franksheldon.com Cc: tmic tmic-list@eskimo.com Date: Saturday, March 21, 2009, 11:24 AM Frank, this is Janice. How are you doing now that it has been a couple of days since you had the hand worked on. If you don't reply, I will assume you are too sore or too bandaged to write back.Or, you could do the old hunt and peck with the other hand.Anyway, wished you the best! - Original Message - From: pjv1...@chartermi.net To: mother...@gmail.com; fr...@franksheldon.com Cc: tmic tmic-list@eskimo.com Sent: Saturday, March 21, 2009 8:09 AM Subject: Re: [TMIC] Re: How goes it?? Frank, I hope you heal well and that the worst is behind you. Spring is comming soon so sitting in the sunshine will be an option in your healing process. Are you typing one-handed now? Keep in touch even if you only type I'm here. One-armed hugs, Patti - Michigan fr...@franksheldon.com fr...@franksheldon.com wrote: Just wondering how things are going... Trudy, I thought I wrote an email before going to the hospital, so many days ago. I just was released, am home, and recouping from all the surgeries to my left hand, wrist, radius ulna (bones in forearm) and Elbow. Typing is very difficult so will write more tomorrow F
Re: [TMIC] Missing
I also had to resubscribe. Hope I haven't missed any news. Have a wonderful day! Priscilla --- On Tue, 3/10/09, jharpe...@aol.com jharpe...@aol.com wrote: From: jharpe...@aol.com jharpe...@aol.com Subject: [TMIC] Missing To: tmic-list@eskimo.com Date: Tuesday, March 10, 2009, 9:46 AM Evidently I was somehow inadvertently unsubscribedagain. I know sometimes the list is quiet, but it hit me it had been several days since anything had come through from TMIC. I can't get in the archives to see what I've missed -- I keep getting a Problem loading page message. I'll try it again later. If anyone has sent me an update for the birthday list since Friday, please send it again. Thanks! Barbara H. http://barbarah.wordpress.com/ A Good Credit Score is 700 or Above. See yours in just 2 easy steps!
