Re: [TMIC] I'm back!

[Jill Z]

Jaron, 
While you're in Brazil I think you should check out the juices with Acai Berry 
in them.  I have gotten TREMENDOUS relief from drinking this (new to my area) 
juice called Mona Vie that I've even become a distributor.  Its some super 
antioxidant berry that I am quite sure has anti-inflammatory properties to it.  
It may not work for everyone but I even have my Dr. hooked on it.  And he said 
he has other patients that drink it and have found relief.
Give it a try (at least for a month or 2) and let me know what you think.
Have a great day!
Jill in Chicago

--- On Mon, 7/5/10, j ra rumc...@hotmail.com wrote:


From: j ra rumc...@hotmail.com
Subject: [TMIC] I'm back!
To: Transverse Myelytis tmic-list@eskimo.com
Date: Monday, July 5, 2010, 8:40 AM




Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron



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Re: [TMIC] I'm back! Acai

[Barbara Alma]

I've also heard Acai is good stuff, has good properties for weight loss, 
antioxidants, etc, but not good if you are on anti-coagulation therapy 
(coumadin or warfarin).  Dark berries have high amounts of Vitamin K.  I was 
eating a few too many blueberries lately until my son reminded me about them, 
darn it, I was really enjoying them.  I'm off them for a week or so.

Hugs, Barbara A in Auburn CA


-Original Message-
From: Jill Z jillybean60...@yahoo.com
To: Transverse Myelytis tmic-list@eskimo.com; j ra rumc...@hotmail.com
Sent: Thu, Jul 8, 2010 6:09 am
Subject: Re: [TMIC] I'm back!




Jaron, 
While you're in Brazil I think you should check out the juices with Acai Berry 
in them.  I have gotten TREMENDOUS relief from drinking this (new to my area) 
juice called Mona Vie that I've even become a distributor.  Its some super 
antioxidant berry that I am quite sure has anti-inflammatory properties to it.  
It may not work for everyone but I even have my Dr. hooked on it.  And he said 
he has other patients that drink it and have found relief.
Give it a try (at least for a month or 2) and let me know what you think.
Have a great day!
Jill in Chicago

--- On Mon, 7/5/10, j ra rumc...@hotmail.com wrote:


From: j ra rumc...@hotmail.com
Subject: [TMIC] I'm back!
To: Transverse Myelytis tmic-list@eskimo.com
Date: Monday, July 5, 2010, 8:40 AM


Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron

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[TMIC] Re: [TMIC] I'm back! Açaí

[bobby jim]

Well, I drank some açaí as well, then switched to pills, and noticed no 
difference.
Maybe I'll try a higher dose.

BobbyJim 
  From: Barbara Alma 
  To: jillybean60...@yahoo.com ; tmic-list@eskimo.com 
  Sent: Thursday, July 08, 2010 14:43
  Subject: Re: [TMIC] I'm back! Acai 


  I've also heard Acai is good stuff, has good properties for weight loss, 
antioxidants, etc, but not good if you are on anti-coagulation therapy 
(coumadin or warfarin).  Dark berries have high amounts of Vitamin K.  I was 
eating a few too many blueberries lately until my son reminded me about them, 
darn it, I was really enjoying them.  I'm off them for a week or so.

  Hugs, Barbara A in Auburn CA


  -Original Message-
  From: Jill Z jillybean60...@yahoo.com
  To: Transverse Myelytis tmic-list@eskimo.com; j ra rumc...@hotmail.com
  Sent: Thu, Jul 8, 2010 6:09 am
  Subject: Re: [TMIC] I'm back!


Jaron, 
While you're in Brazil I think you should check out the juices with 
Acai Berry in them.  I have gotten TREMENDOUS relief from drinking this (new to 
my area) juice called Mona Vie that I've even become a distributor.  Its some 
super antioxidant berry that I am quite sure has anti-inflammatory properties 
to it.  It may not work for everyone but I even have my Dr. hooked on it.  And 
he said he has other patients that drink it and have found relief.
Give it a try (at least for a month or 2) and let me know what you 
think.
Have a great day!
Jill in Chicago

--- On Mon, 7/5/10, j ra rumc...@hotmail.com wrote:


  From: j ra rumc...@hotmail.com
  Subject: [TMIC] I'm back!
  To: Transverse Myelytis tmic-list@eskimo.com
  Date: Monday, July 5, 2010, 8:40 AM


  Hi guys,
  A couple of months ago I left Brasil for the Caribbean to spend some 
time alone and try to rediscover life before TM. It's been tough, especially 
because I decided to quit meds. No gabapentin, no miosan (for the shakes, think 
it's called xanaflex elsewhere) no valium, just sleeping pills. I know most of 
you thought I was pushing my wife away, but she's been really understanding as 
to why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
  Here's the weird part, I found a little girl with TM in Trinidad, my 
home country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
  Her parents managed to raise somewhere near $12 US already and 
they plan to take her to Johns Hopkins. I got in contact with the doctors there 
and they are ready to accept her case.
  So, I'm not sure what actually happened to me over the last few 
months, but I think I found what I was looking fornot in a selfish journey 
to the islands, but in the eyes of a child.
  Now I'm home in Rio de Janeiro and I think I'm going to play with my 
cat for a bit then take my wife out for lunch, then take her to the FIFA World 
Cup finals in South Africa. Another journey perhaps, this time with my wife!
  Bye guys,
  Jeron


--
  Hotmail: Trusted email with Microsoft’s powerful SPAM protection. 
Sign up now.  

Re: [TMIC] I'm back!

[Barbara Alma]

Hello Jeron,
 
I'm so glad that you made it home safely and I'm sure that your wife is happy 
to be spending time with you again. A journey to So. Africa with her sounds 
marvelous.  Enjoy, whatever you do!

I usually answer messages offline, directly, person to person.  This time I 
decided to do it on list.  I guess after all of your inner thoughts of wanting 
to experience life again as you had known it, you also found your heart.  One 
never knows entirely what to expect when traveling, you cannot tell ahead of 
time what kinds of experiences you'll encounter or how you'll handle them when 
you do, especially with TM.  
 
I think that you were meant to meet Christa - she and her family needed some 
help and you were able to reach out to them and help get the ball rolling for 
them.  I only hope that Christa will get the proper medical care that she needs 
and that she'll have a decent recovery.  It always has saddened my heart when I 
hear or think of children getting diseases or syndromes that affect their lives 
and prevent them from being the active and healthy children that they deserve 
to be.
  
Hugs, Barbara A in Auburn CA



-Original Message-
From: j ra rumc...@hotmail.com
To: Transverse Myelytis tmic-list@eskimo.com
Sent: Mon, Jul 5, 2010 6:40 am
Subject: [TMIC] I'm back!


Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now. 
= 

[TMIC] I'm back!

[j ra]

Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron
  
_
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https://signup.live.com/signup.aspx?id=60969

Re: [TMIC] I'm back!

[Jan Hargrove]

Glad you're home and your dreams were fulfilled...it sounds to me like 
your real purpose was to meet Christa, which in turn helped you!  What a 
wonderful adventure!
So glad you shared! Welcome home!
 
janh   Stillwater, OK





From: j ra rumc...@hotmail.com
To: Transverse Myelytis tmic-list@eskimo.com
Sent: Mon, July 5, 2010 8:40:43 AM
Subject: [TMIC] I'm back!

Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron


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Re: [TMIC] I'm back!

[Janice Nichols]

Jeron,

You made my day!!!Ever think you were sent to Trinidad for a reason?   
Your goodness and caring in reaching out to another has paid off tremendously - 
both
for you and Christa.   You are my kind of people!
Janice



From: j ra 
Sent: Monday, July 05, 2010 8:40 AM
To: Transverse Myelytis 
Subject: [TMIC] I'm back!


Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron



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Re: [TMIC] I'm back!

[Pieter and Heather]

Oh Jeron,

You have made me so happy to read this letter.  
I have wondered how you were doing. 
Thank you for letting us know how you are.

Wow!! What a journey you have had. 
To meet Christa and to be able to help her while all along she in some way was 
helping you too. 
I'm sure that you and Christa will stay in touch. 
Please let us know how she makes out at John Hopkins if possible. 

Enjoy yourself with some relaxing at home with you wife and your cat.

{{Hugs}}
from Heather in Calgary


  - Original Message - 
  From: j ra 
  To: Transverse Myelytis 
  Sent: Monday, July 05, 2010 7:40 AM
  Subject: [TMIC] I'm back!


  Hi guys,
  A couple of months ago I left Brasil for the Caribbean to spend some time 
alone and try to rediscover life before TM. It's been tough, especially because 
I decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
  Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
  Her parents managed to raise somewhere near $12 US already and they plan 
to take her to Johns Hopkins. I got in contact with the doctors there and they 
are ready to accept her case.
  So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
  Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for 
a bit then take my wife out for lunch, then take her to the FIFA World Cup 
finals in South Africa. Another journey perhaps, this time with my wife!
  Bye guys,
  Jeron


--
  Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up 
now. 

Re: [TMIC] I'm back!

[Lori Biehler]

Hi Jeron,
Amazing how well one feels when they help others!
Enjoy your time in South Africa!
Lori


From: j ra 
Sent: Monday, July 05, 2010 9:40 AM
To: Transverse Myelytis 
Subject: [TMIC] I'm back!


Hi guys,
A couple of months ago I left Brasil for the Caribbean to spend some time alone 
and try to rediscover life before TM. It's been tough, especially because I 
decided to quit meds. No gabapentin, no miosan (for the shakes, think it's 
called xanaflex elsewhere) no valium, just sleeping pills. I know most of you 
thought I was pushing my wife away, but she's been really understanding as to 
why I needed to regain some independence. I did all the things I said I was 
going to do and I proved that TMers still have a lot of life in them. I know I 
am lucky to be a walker, allbeit with a cane, but we are strong people. As a 
group, we can do anything and we are always going to be there for 
eachotherno matter what. I really think that without you guys, I could not 
complete my journey, so thanks!
Here's the weird part, I found a little girl with TM in Trinidad, my home 
country in the Caribbean. I saw an article about her in the newspapers and 
decided to contact her parents. I met them. The kid's name is Christa. She is 
10 years old and has been diagnosed with TM some 10 months now, but her family 
does not have the money for treatment and treatment is not available in 
Trinidad. So they've been battling with this thing of ours all the while 
without proper care, so I got involved. Christa, is the sweetest little kid I 
ever met, she makes your heart melt with her innocent smile and she's so upbeat 
all the time, despite being in a wheelchair. She has the strenght that I think 
I was looking for all along. Imagine, I actually thought that while I was there 
I was going to do everything in my power to help her, but all along she was 
helping me.
Her parents managed to raise somewhere near $12 US already and they plan to 
take her to Johns Hopkins. I got in contact with the doctors there and they are 
ready to accept her case.
So, I'm not sure what actually happened to me over the last few months, but I 
think I found what I was looking fornot in a selfish journey to the 
islands, but in the eyes of a child.
Now I'm home in Rio de Janeiro and I think I'm going to play with my cat for a 
bit then take my wife out for lunch, then take her to the FIFA World Cup finals 
in South Africa. Another journey perhaps, this time with my wife!
Bye guys,
Jeron



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[TMIC] I'm back, with photo

[Barbara Alma]

Hello all,
 
Just a quick note to let you all know that Pete and I are well, safe, and back 
on the road to our vacation as planned.  We spent last night in a shelter near 
Nashville, and it could not have been more pleasant.  Our hearts went out, and 
continue to do so, to all of the people that have had losses, both personal and 
physical, from this tragic mess from the storms over the weekend.  Those that 
we came in contact with seemed to take it so very well, and most had been 
rescued from their homes by boat with their furniture floating around.  Many 
are waiting for family and friends to come and pick them up and take them with 
them to their homes once the roads are open to do so and others aren't sure 
what they are going to do.  So very sad.
 
We have such a renewed respect for The Red Cross, not to say that we didn't 
have one before, but seeing first hand the fabulous work that they do, it's 
really different.  And, we were in a Jewish Community Center, which was an 
awesome center, with really wonderful people who were member volunteers helping 
out the Red Cross.  These people could not do enough for those who came into 
the shelter needing a place to stay for the night or longer.  So many with just 
the clothes on their backs, they quickly came through with a change of 
clothing, and plenty more.  Just this morning they were asking those who needed 
shoes to let them know what sizes they needed.  An amazing amount of donations 
were already there just the day after, so at least those who needed it can get 
some clean clothes to change into and keep.  There were some children of 
volunteers that were walking around handing out t-shirts, warm socks and water. 
 At mealtime the children would assist in carrying the plates for those who 
needed it, it was wonderful to see them so eager to help others. Although our 
visit to the shelter was not on our itinerary, we are actually very thankful 
that we made it part of our vacation, as we were enriched by the experience 
firsthand, seeing how well people come together in a crisis.
 
We have learned how much we take for granted and how much we need to give 
thanks for that seems to just slip by kind of without too much notice.   

We enjoyed a good dinner with BobbyJim tonight, he's such a big teddy bear, 
probably as many would have suspected.  We missed meeting his wife though, as 
she wasn't up to getting out a bit.  She works a full-time job, which is 
wonderful, so I have to respect her for all that she can do that I cannot find 
the stamina to do myself.  Here's a photo of the 3 of us, and if anyone isn't 
sure, I'm the one in the middle, lol.  BobbyJim has the white shirt on and Pete 
has the black one.  
 
Take care all, and take the time to smell the roses, or daisies, whichever you 
prefer.
 
Hugs to all,  Barbara A (back on the road again, lol)


Hugs, Barbara A in Auburn CA


=

Re: [TMIC] I'm back home

[natalie mizenko]

Gunny,
  I have told him IF he were in this position, I would not be cursing while 
taking care of him.  It's little things tho that he cusses about.  Like when my 
foot falls off my shower chair he'll say GD and things like that.  I tell him 
You are saying that to me.  He disagreeshe says he is saying it for 
purely what just happened and no one should have to go thru what I do.  He just 
won't accept it and move on.  I don't know if he ever will.  He still holds 
grudges from when he was a child.  He is wonderful at all household duties - I 
couldn't ask for a more supportive partner in that way.  He comes home at lunch 
and fixes me a sandwich or whatever and usually he has already been here to let 
home health in (for my wound vac)  urostomy.  He helps them do all that and 
really doesn't mind at all.  Seems to find it a challenge.  I am worried about 
him tho - I know he is depressed and he has admitted to it, but will not do 
anything about it - EVER.  He holds too much in.  He
 doesn't even watch TV anymore.  The only thing he does at night is crossword 
puzzles from the papers.  I'm worried about him.  I told him to get a check up 
w/ the heart dr. and he will not.  His stress must be sky high.  He says the 
more you  push me the lease I'm likely to do it.  So it is hard to be silent.  
Oh well, sorry for the novel.  Thanks for caring, Natalie M.
  
  

[EMAIL PROTECTED] wrote:   Nat:
   
 Try to make your husband understand that it's not your fault you have 
accidents. It's the TM that does it. Also remind him of his wedding vows. You 
might suggest that if the shoe were on the other foot, you'd do whatever is 
necessary to get the job done. Sometimes you can't sugar coat things, you have 
to take the bull by the horns and kick back. Use discretion.
   
  Gunny




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Re: Fwd: Re: [TMIC] I'm back home

[natalie mizenko]

Rick,
  Thanks for the nice email.  You read it like I see it too.  I try so hard not 
to say anything to me when he is in fury over something.  It usually doesn't 
last long at all.  It is short lived.  He is a perfectionist and that is part 
of it.  I recall when I was and how little things bothered me, but w/ my life 
changes, I can't be a perfectionist I feel anymore.  His name is Michael.  
We've been married 30 years.  I better go.  Thanks for the prayers, Natalie M.
  
  

[EMAIL PROTECTED] wrote:   Hey Natalie, He's a good man and it probably just 
breaks his heart to think back to the way things were before TM. My wife gets 
so frustrated with me so I know exactly how you feel. Doll, you can't help 
yourself but you can try and do more for yourself, if your able. But always 
know your limitations and If you need help you have to call on him. I have seen 
people sit around and whine and depend on everyones help. I have found in my 10 
years the less you ask for help the more you get. You know how much he loves 
you and that will never change, he's probably just tired and this hurts him to 
see you, his little bride in this shape. I will always pray a special prayer 
that he shows you the respect and admiration that you deserve. Your a great 
woman. I can tell. God be with you. By the way whats your husbands name and 
tell him for me thanks for taking such good care of you. Rick

--
GOD BLESS US ALL


-- Original message --
From: natalie mizenko 

 Rick,
 Thanks for the get well wishes. Sometimes it is difficult like when my 
 husband says all these foul words while I'm transferring to my shower chair 
 or 
 I've had an accident in my pants. He gets ugly then and makes me feel so bad. 
 Oh well. He is so good in other ways. Natalie M.
 
 
 
 Note: forwarded message attached.
 
 -
 Moody friends. Drama queens. Your life? Nope! - their life, your story.
Play Sims Stories at Yahoo! Games. 



   
-
Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games. 

Re: [TMIC] I'm back home

[natalie mizenko]

Pam,
  Thanks for your nice email.  I'm sorry for the embarrassment you had to go 
thru on the handicap restroom.  I get mad at that  to see a healty looking 20 
something getting into the car, time and time again, in the handicap parking 
zone.I try to tell myself I don't know her; there might be problems, but it is 
difficult.  Natalie M.
  
  

[EMAIL PROTECTED] wrote:   NATALIE I CAN ONLY IMAGINE HOW YOU FEEL. WHEN I 
WAS N THE HOSPITAL THE LAST 2 WEEKS I FELT THE SAME WAY. THEY WOULD NOT LET ME 
DO ANYTHING WITHOUT 2 NURSES, IT DROVE ME CRAZY. I CAN WALK AGAIN WITH A WALKER 
AND I HAVE TO GET A BRACE THAT GOES UP TO MY KNEE. THEY SAID I HAD TO WEAR IT 
MOST OF THE TIME HOW LONG I DO NOT KNOW.
  IT WAS MY B/D AND I HAD ALOT OF FRIENDS THERE AND MY ONLY FAMILY SINCE 
KATRINA IS MY HUSBAND DAN. I HAD TO GO ON THE BED PAN I WAS SO UPSET WITH ALL 
MY GUESTS THERE AND ALL MY FRIENDS I KNOW COMING IN AND OUT SINCE I WORKED 
THERE .EVERYONE WENT OUTSIDE MY ROOM ,IT TOOK FOR EVER BEFORE SOMEONE WOULD 
COME THEY WHERE VERY BUSY. I COULD NOT HOLD IT MUCH LONGER. DAN PUT ME ON THE 
BED PAN SOMETHING HE NEVER HAD TO DO. HE SAID THANK GOD THIS IS JUST TILL YOU 
GO HOME.
  I KIND OF KNOW HOW YOU FEEL BUT I CONSIDER MYSELF FORTUNATE I CAN GET AROUND.
  I JUST EXCEPTED THE FACT THAT WHEN I GO OUT I BRING EXTRA CLOTHES AND SHOES. 
I ALWAYS HAVE WHAT I CALL MY HYGEINE BAG WITH ME. I ONLY HAD ONE ACCIDENT I WAS 
WAITING TO GO INTO THE HANDICAP ROOM BUT THEY HAD 3 GIRLS USING IT WHO WHERE 
NOT HANDICAPPED AT ALL AND I WET MY PANTS. I WAS FURIOUS, I GAVE THOSE GIRLS A 
BAD TIME. I THEN HAD SOMEONE CALL SECURITY. I WAS SO EMBARRASED BUT MY ANGER 
MADE ME STRONGER.THAT PARTICULAR STORE HAS RULES AND REGULATIONS. IF YOU ARE 
NOT HANDICAPPED YOU CANNOT USE THOSE ROOMS.
  THEY NOW HAVE PEOPLE WHO C HECK THE BATHROOMS OFTEN. I WAS ALSO TOLD IF I 
NEEDED TO GO TO THE LADIES ROOM JUST TELL ANYONE AND THEY WILL MAKE SURE NO ONE 
BUT PEOPLE WHO ARE HANDICAPPED ARE IN THERE.
  DAN TOLD ME HE WAS SO UPSET WITH OUR GUESTS AND THAT WAS THE FIRST TIME HE 
EVER HAD TO PUT ME ON A BED PAN.
  LIKE YOU SAID THEY ARE SO GOOD IN SO MANY OTHER WAYS.YOUR NOT ALONE . I KNOW 
LOTS OF PEOPLE ON THE LIST LIKE YOU SOME LIKE ME. ITS OUR LIFE NOW WHY I DO NOT 
KNOW BUT WE JUST DEAL WITH IT THE BEST WAY WE CAN.
  I AM GLAD YOUR HOME. SORRY ABOUT THE STAFF INFECTION. I HOPE YOU FEEL BETTER 
EVERYDAY .
   GOD BLESS TIAD PAM
  PS I NEVER EVER SAID THIS BEFORE TO THE LIST JUST IN PRIVATE E-MAILS. I NOW 
HAVE NO PROBLEM WITH THIS. I WANT TO THANK EVERYONE FOR THE WARM WISHES AND MY 
B/D E-MAILS.




-
  See what's new at AOL.com and Make AOL Your Homepage.


   
-
Building a website is a piece of cake. 
Yahoo! Small Business gives you all the tools to get online.

Re: [TMIC] I'm back home

[natalie mizenko]

Regina,
  Thanks for all the well wishes.  My daughter  son-in-law are back in 
Missouri now.  Natalie M.
  
  

Regina Rummel [EMAIL PROTECTED] wrote: Natalie,
  So glad you're home with your daughter and son in law to look after you.  I 
hope this surgery will help diminish that awful pain you complained about 
earlier.  Take care.
  R
  

natalie mizenko [EMAIL PROTECTED] wrote:
  Hello to everyone...I've missed you all.  My urostomy surgery was 
much more than I had planned on it being.  I also got a stah infection (my 
first ever) very soon afterwards and he had to open up my womb.  A womb vac 
(which is used alot anymore) was connected to the tubing, etc. and other 
medical stuff.  They say the vacs cut your healing time in half.  My womb now 
is like 1/2 inch deep, so he might just stitch me up next week and no more 
wound vac.  This is my lst day out of bed.  My daughter and son-in-law are 
here.  So, thought while they are showering I'd drop you all a line.  Hope 
folks are doing ok.  later - Natalie M.  

-
  Moody friends. Drama queens. Your life? Nope! - their life, your story.
Play Sims Stories at Yahoo! Games. 



   
-
Fussy? Opinionated? Impossible to please? Perfect.  Join Yahoo!'s user panel 
and lay it on us.

Fwd: Re: [TMIC] I'm back home

[natalie mizenko]

Grace,
  Thanks for the well wishes.  They are much appreciated.  Natalie M.
  
  

Note: forwarded message attached.
   
-
Building a website is a piece of cake. 
Yahoo! Small Business gives you all the tools to get online.---BeginMessage---
Hi Natalie,

I'm so glad that you are on the mend.  Be sure to take care of yourself and
don't try to overdo.

Hugs,

Grace




   srote:

  s

 --
 Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games.
 http://us.rd.yahoo.com/evt=48224/*http://sims.yahoo.com/


---End Message---

Re: [TMIC] I'm back home

[natalie mizenko]

Pam,
  You take care too.  Sorry you were in the hospital too.  I hate them so much. 
 Natalie M.
  
  

[EMAIL PROTECTED] wrote:   GLAD YOUR HOME. SORRY ABOUT THE STAFF I HAD IT 
ITS NO FUN. I JUST GOT OUT THE HOSPITAL MYSELF I WAS THERE FOR LABOR DAY MY 
B/D. I SURVIVED AND AM DOING GREAT.
  YOU TAKE CARE OF YOURSELF.
GOD BLESS TIAD PAM




-
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-
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Check out fitting  gifts for grads at Yahoo! Search.

Fwd: Re: [TMIC] I'm back home

[natalie mizenko]

Rick,
  Thanks for the get well wishes.  Sometimes it is difficult like when my 
husband says all these foul words while I'm transferring to my shower chair or 
I've had an accident in my pants.  He gets ugly then and makes me feel so bad.  
Oh well.  He is so good in other ways.  Natalie M.
  
  

Note: forwarded message attached.
   
-
Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games. ---BeginMessage---
Well you have a pity party all you want ,they don't know what we are feeling. 
My  wife feels great all the time, Never gets a cold, diarea, diaper rash, etc. 
Sometimes I got to get away from my wife. She gets negative I think it's 
because nobody ever had to do anything to help me, nowHUH! You keep  being a 
sweetheart. R

--
GOD BLESS US ALL


-- Original message --
From: natalie mizenko [EMAIL PROTECTED]

 Rick,
   Thanks for all the well wishes.  It is so thoughtful of you.  My family is 
 downshairs (down one complete step) but I can't get down there.  My 
 son-in-law 
 lives in that room when he is here and usually my husband follows suit, then 
 my 
 daughter.  It's just not the same being at the top of the other room looking 
 down, so I said I'm going to get on my computer.  It seems the more I am 
 paralyzed I've let more things bother me able my disability.  I know I should 
 not, but it does.  And my husband will NEVER watch tv w/ me in our bedroom, 
 which is a nice flat screen tv.  He says he's never interested in tv, but 
 when 
 they come he is glued to it down there.  Just having a little pity on myself 
 which I should not I know.  Thanks anyway again, Nat M.
   
   
 
 [EMAIL PROTECTED] wrote:   Hi Natalie, so glad things went well for 
 you. As a group we all pray for your continued healing. Stafh is no joke and 
 hopefully you'll never see its ugly head again. Just glad your back and 
 better. 
 Just luv ya. Rick
 
 --
 GOD BLESS US ALL
 
 
 -- Original message --
 From: natalie mizenko 
 
  Hello to everyone...I've missed you all. My urostomy surgery was much 
  more than I had planned on it being. I also got a stah infection (my first 
  ever) very soon afterwards and he had to open up my womb. A womb vac (which 
  is 
  used alot anymore) was connected to the tubing, etc. and other medical 
  stuff. 
  They say the vacs cut your healing time in half. My womb now is like 1/2 
  inch 
  deep, so he might just stitch me up next week and no more wound vac. This 
  is 
 my 
  lst day out of bed. My daughter and son-in-law are here. So, thought while 
  they are showering I'd drop you all a line. Hope folks are doing ok. later 
  - 
  Natalie M. 
  
  
  -
  Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games. 
 
 
 

 -
Yahoo! oneSearch: Finally,  mobile search that gives answers, not web links. 

---End Message---

Re: [TMIC] I'm back home

[Grace M.]

Hi Natalie,

I'm so glad that you are on the mend.  Be sure to take care of yourself and
don't try to overdo.

Hugs,

Grace




   srote:

  s

 --
 Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games.
 http://us.rd.yahoo.com/evt=48224/*http://sims.yahoo.com/

[TMIC] I'm back home

[natalie mizenko]

  Hello to everyone...I've missed you all.  My urostomy surgery was much 
more than I had planned on it being.  I also got a stah infection (my first 
ever) very soon afterwards and he had to open up my womb.  A womb vac (which is 
used alot anymore) was connected to the tubing, etc. and other medical stuff.  
They say the vacs cut your healing time in half.  My womb now is like 1/2 inch 
deep, so he might just stitch me up next week and no more wound vac.  This is 
my lst day out of bed.  My daughter and son-in-law are here.  So, thought while 
they are showering I'd drop you all a line.  Hope folks are doing ok.  later - 
Natalie M.  

   
-
Moody friends. Drama queens. Your life? Nope! - their life, your story.
 Play Sims Stories at Yahoo! Games. 

[TMIC] I'm back -- didja miss me? :-)

[JHarper33]

Sometimes the volume of mail from the list runs a little slow, 
but it slowly began to dawn on me the last few days that I hadn't had 
any TMIC mail for a while. I checked the archives, and lo and behold, 
there were several days worth of messages I hadn't received. Somehow I must've 
gotten kicked off the list -- that's happened occasionally -- so I resubscribed 
and am sending this test message to see if it goes through.

Good to hear our Aussie friends are ok.

Alton -- so sorry to hear about your shoulder.

Barbara H.
Back in the sandbox :-)

Re: [TMIC] I'm back -- didja miss me? :-)

[BobbyJim]

No clue as to why you were 
dropped..?
I'd blame AOL, 
heh,heh,heh.:):):)

As for the folks down undah, Western Australia is 
getting battered again by yet another monster storm. 
Yikes

Bobberino, always stirrin' up stuff.

From: [EMAIL PROTECTED] 
To: tmic-list@eskimo.com 
Sent: Thursday, March 30, 2006 7:45 AM
Subject: [TMIC] I'm back -- didja miss me? :-)

Sometimes the volume of mail from the list runs a little slow, 
but it slowly began to dawn on me the last few days that I hadn't had 
any TMIC mail for a while. I checked the archives, and lo and behold, 
there were several days worth of messages I hadn't received. Somehow I must've 
gotten kicked off the list -- that's happened occasionally -- so I resubscribed 
and am sending this test message to see if it goes through.

Good to hear our Aussie friends are ok.

Alton -- so sorry to hear about your shoulder.

Barbara H.
Back in the sandbox :-)

[TMIC] I'm back HOME again!

[Sharon Marsden]

I have cried and cried (and smiled a bunch, too) after reading the responses here on TMIC to my first post several days ago. I'm sending hugs back to each of you. Thank you, thank you, thank you! I know that you folks here understand the pain and difficulties. I'm so glad I came back to TMIC! From reading your responses I see that I left out some thingsI am on Neurontin. I take 3400 mg. a day. And I up it for a few daysif I'm having more problems.I forgot to mention in my first post that I also have been dxed with Trigeminal Neuralgia. I takeNeurontin for Trigeminal Neuralgia as well as for spasms and nerve pain.     AND in 2002 I nearly died in a bad rollover wreck. The accident investigator said I rolled my van "9 or 10 times over and over and end to end". I was driving erratically that day and was going 90 mph they said. I don't really remember much but I do know I shouldn't have been driving. I wasn't wearing a seat belt either. I was literally scalped when my hair got caught in the broken dash cover and tore my scalp off (it was successfully reattached with 54 staples), I broke my neck (just a laminar fracture), broke all my right posterior ribs, co lapsed a lung and had some big gashes, etc. I floated between life and death for nearly a week. It's been a really long road to recovery from that wreck. I no longer drive as a result of that wreck. The accident investigator said he wouldn't charge me if I voluntarily stopped driving. lol I had already made that de!
 cision
 though. I didn't hit anyone or cause anyone else to wreck and for that I am very thankful. Having MS made recovery harder, according to my doctors. I have a lot of back problems as a result of that wreck and I'm even 'spacier' than I was before (if that's really possible). I used to be on antidepressants but stopped them (on my own) a year ago. I clearly need something again though. My primary care gave me samples of Cymbalta to try but I haven't started them yet. I've decided to try Sam E first. My 35 year old daughter has suffered with depression for a long time and she just started on Sam E the first of the year and the change in her has been incredible. Absolutely incredible! I've ordered some Sam E to try before I go on a regular antidepressant. But I will do something. I don't like feeling like this and I know I ne!
 ed to do
 something about it. I also have cognitive dysfunction caused by the plaques in my brain. I have short term memory loss and I often have to 'search' for words in my brain. I usually remember them after a while though. I hate to feel stupid! I've always been really sharp mentally... so it's hard. I work at keeping my brain functioning. I read everyday and I do crosswords puzzles on the advice of my neurologist. I also find if I play cards regularly it also helps me 'think'. I can't think of anything else to tell you all. I am going to work on answering individually too.Thanks again friends.Sharon
	
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[TMIC] I'm Back

[cherpent]

Hi Elisabeth,

Just checking up on up to see how you are doing. I know you are probably not up to sitting at the computer yet, but wanted to let you know we are all thinking of you. The last we heard, you had an appointment on the 2nd because something was still wrong. Our thoughts and prayers are with you.

Would we happy to hear from you when you are up to it. You have been through so much and we know how strong you are. We know you have lots of fight in you so give it your all!!

Hope you are well enough soon so that you can bring us up to date on how you are doing. We are anxiously awaiting.

Blessings from your concerned TM Family

Linda in Bothell, WA