[TMIC] It's okay...
You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty , and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] So strange Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) Gerry! I was just getting ready to ask if anyone had heard from you! You have really gone thru some rough times and now they are going to remove your spleen? Your advise is good...thank you! You are in my prayers..Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 3/24/2008 10:15:02 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange I know exactly how you feel. I 've had tm since the age 0f 21 have been able to function until 2001 when I had a relapse. I too am 60 years young. My plete count has gone way down a side effect of TM after numerous treatments i now have itp. I have gone through three treatments of immunoglobiulin which have not worked. Now I have another treatment to go through to raise my plete count at which time they will remove my speen. I urge everyone to have there white blood cells plete count examined on a regular bases. Life with TM is always a daily challenge. like they say it is like a box of choclate you never know what will happen day to day. yes you have to have a positive attidude. It is your life and you only have control of it. It is up to you to decide if you will fight it or let it get to you. for me I would rather fight . It is hard but life is worth it From: Robert Pall [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] So strange Date: Mon, 24 Mar 2008 10:56:52 -0400 Just a fast topic for discussion. In my case TM is like a box of chocolates...you never know what you are going to get! It seems to me that how I feel from day to day is never the same! Some days are just terrible and some days are not so bad. I cannot point to the weather because that does not always have an effect on me. I do know if I get sick, even with a cold, my symptoms are always worse. Today is a beautiful day in sunny New Jersey and yet I feel terrible...why? For me the biggest problem is the banding on my right leg just above the knee. When it gets very bad (like today) it makes walking much more difficult and I walk with an even stiffer leg than usual. Is it possible that as our spine regenerates (even though it is a very long process...decades) we still experience changes all the time,
RE: [TMIC] It's okay...
Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitudewe either continue living or chose to start dying! I choose life! Rob in New Jersey From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty', and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette mailto:[EMAIL PROTECTED] Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] So strange Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) Gerry! I was just getting ready to ask if anyone had heard from you! You have really gone thru some rough times and now they are going to remove your spleen? Your advise is good...thank you! You are in my prayers..Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 3/24/2008 10:15:02 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange I know exactly how you feel. I 've had tm since the age 0f 21 have been able to function until 2001 when I had a relapse. I too am 60 years young. My plete count has gone way down a side effect of TM after numerous treatments i now have itp. I have gone through three treatments of immunoglobiulin which have not worked. Now I have another treatment to go through to raise my plete count at which time they will remove my speen. I urge everyone to have there white blood cells plete count examined on a regular bases. Life with TM is always a daily challenge. like they say it is like a box of choclate you never know what will happen day to day. yes you have to have a positive attidude. It is your life and you only have control of it. It is up to you to decide if you will fight it or let it get to you. for me I would rather fight . It is hard but life is worth it From: Robert Pall [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] So strange Date: Mon, 24 Mar 2008 10:56:52 -0400 Just
RE: [TMIC] It's okay...
Me, too, by gum!!! BUT, it is okay to have those days where we need to curl up in bed, rest our body and soul and then get up and start all over again! j ---Original Message--- From: Robert Pall Date: 3/24/2008 1:40:04 PM To: jrushton; Gerry Surette; tmic-list@eskimo.com Subject: RE: [TMIC] It's okay... Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitude... we either continue living or chose to start dying! I choose life! Rob in New Jersey From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty , and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] So strange Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) Gerry! I was just getting ready to ask if anyone had heard from you! You have really gone thru some rough times and now they are going to remove your spleen? Your advise is good...thank you! You are in my prayers..Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 3/24/2008 10:15:02 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange I know exactly how you feel. I 've had tm since the age 0f 21 have been able to function until 2001 when I had a relapse. I too am 60 years young. My plete count has gone way down a side effect of TM after numerous treatments i now have itp. I have gone through three treatments of immunoglobiulin which have not worked. Now I have another treatment to go through to raise my plete count at which time they will remove my speen. I urge everyone to have there white blood cells plete count examined on a regular bases. Life with TM is always a daily challenge. like they say it is like a box of choclate you never know what will happen day to day. yes you have to have a positive attidude. It is your life and you only have control of it. It is up to you
Re: [TMIC] It's okay...
Jeanne, It is okay to have a 'Pity Party for One' at times. Sort of clears the air. I do that every once in a while myself and I'm sure that more of us do it as well. Heather in Calgary - Original Message - From: jrushton To: Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 10:14 AM Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty', and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] So strange Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) Gerry! I was just getting ready to ask if anyone had heard from you! You have really gone thru some rough times and now they are going to remove your spleen? Your advise is good...thank you! You are in my prayers..Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 3/24/2008 10:15:02 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange I know exactly how you feel. I 've had tm since the age 0f 21 have been able to function until 2001 when I had a relapse. I too am 60 years young. My plete count has gone way down a side effect of TM after numerous treatments i now have itp. I have gone through three treatments of immunoglobiulin which have not worked. Now I have another treatment to go through to raise my plete count at which time they will remove my speen. I urge everyone to have there white blood cells plete count examined on a regular bases. Life with TM is always a daily challenge. like they say it is like a box of choclate you never know what will happen day to day. yes you have to have a positive attidude. It is your life and you only have control of it. It is up to you to decide if you will fight it or let it get to you. for me I would rather fight . It is hard but life is worth it From: Robert Pall [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] So strange
Re: [TMIC] It's okay...
Rob, I have never counted the days since I got TM. I just go by years. For me it is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a ball and not uncurl for a long time. Positive attitude is what we need but as I said to Jeanne it is okay to have a little 'Pity Party for One' every now and again. Now I'm going to figure out what 4000 days computes to. Have a good day Heather in Calgary - Original Message - From: Robert Pall To: jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 12:39 PM Subject: RE: [TMIC] It's okay... Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitudewe either continue living or chose to start dying! I choose life! Rob in New Jersey -- From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty', and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] So strange Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) Gerry! I was just getting ready to ask if anyone had heard from you! You have really gone thru some rough times and now they are going to remove your spleen? Your advise is good...thank you! You are in my prayers..Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 3/24/2008 10:15:02 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange I know
Re: [TMIC] It's okay...
When i feel as you do I Have a perfect solution; Have a nice warm bubble
bath; I have rpoblems with my circulation; mt feet are usually purple; I
light a candle drop myself in an empty bath; { I have rpoblems
distinguishing hot and cold) let the water flow over me. Move my legs to
increase the bubbles and as James brown says in his song I feel so good.
From: Heather Pieter [EMAIL PROTECTED]
To: Robert Pall [EMAIL PROTECTED], jrushton
[EMAIL PROTECTED], Gerry Surette [EMAIL PROTECTED],
tmic-list@eskimo.com
Subject: Re: [TMIC] It's okay...
Date: Mon, 24 Mar 2008 13:29:22 -0600
Rob,
I have never counted the days since I got TM. I just go by years. For me
it is now 4 1/2 yrs. I think if I counted the days I would probably curl
up in a ball and not uncurl for a long time. Positive attitude is what we
need but as I said to Jeanne it is okay to have a little 'Pity Party for
One' every now and again. Now I'm going to figure out what 4000 days
computes to.
Have a good day
Heather in Calgary
- Original Message -
From: Robert Pall
To: jrushton ; Gerry Surette ; tmic-list@eskimo.com
Sent: Monday, March 24, 2008 12:39 PM
Subject: RE: [TMIC] It's okay...
Jeanne:
What a wonderful e mail. You are so right in your thinking! I truly
believe that only someone who has TM can appreciate what we are going thru.
I have often said to my wife that I wish she could have my TM for just 5
minutes. Then perhaps she could or would understand the horror of having a
condition which no matter how hard we try never really gets better.and
is with us 24/7 always. For me that means that nearly the past 4000 days
have been without relief! Yet I still try to maintain a positive
attitudewe either continue living or chose to start dying! I choose
life!
Rob in New Jersey
--
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: Monday, March 24, 2008 12:14 PM
To: Gerry Surette; tmic-list@eskimo.com
Subject: [TMIC] It's okay...
You can be as emotional as you want, any time you want!! I think
most of us try to be 'up' and 'positive' as often as we can but there comes
a time when our old bodies just plain get bone tired and then it's time to
take the time for ourselves to rest, both physically and emotionally.
When I first came down with TM, I decided I was going to be old
Mary Poppins and choose the positive over the negative which is the way
I've always liked to live my life as often as I could...the 'cup is half
full' not 'half empty', and laugh so I don't cry? Well, that can still
work a good part of the time but by gosh, you just can't always make it!
AND it's okay!!!
Not too long ago I decided I was taking way too much Lyrica
(approved by my provider) because I didn't like the side effects. Well,
the first week was one of the worst and there were definite withdrawals
both horribly painful and emotional. One day I was on the front porch
swing just sobbing from my toes and who shows up but one of my daughters
right out of the blue. (God's doing, for sure) and I just couldn't stop
crying. It scared her to death because both my girls don't see me cry very
often. I usually laugh just to hear myself laugh (true!). Well, this was
a cleansing of the soul and a good way to get some of that 'stuff' out of
my body, I would swear. After that, I felt better, got lots of good hugs
from my daughter and Jack and I was back on my way. Sometimes we are so
hard on ourselves. God wants us to be good to ourselves so we can also be
good to others.
Jeanne
---Original Message---
From: Gerry Surette
Date: 3/24/2008 11:58:01 AM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] So strange
many thanks; The procedure itself is not painful; the bone marrow
retival
for biopsy is uncomfortable. the side effects though of three days
for five
hours each day is to say the least NEVER AGAIN I had a high
fever chills
etc; on top of my leg and feet spasms. It was certainly a
memerable week
Thank God jesus was by my side as well as my wife who when I had
my spams I
tend to hypervenilate; the pain is so great. She is there to calm
me down
and help me breathe normally until my spasm ends. You all know
what these
are. it is TM: life is never preditable. you have to roll with
the
punches. You just have to be thankful that the day you have no
pain is a
blessing. You have to make the best of it. Sorry if I am being
emotional but
the is the way I feel I have to take each day as it comes and be
thankful
for any blessing I receive. gerry
From: jrushton [EMAIL PROTECTED]
To: Gerry Surette [EMAIL PROTECTED],
tmic-list@eskimo.com
Subject: RE: [TMIC] So strange
Re: [TMIC] It's okay...
Heather, you made us laugh over the 4000 days! Funny you should call it a Pity Party' because that is exactly what I call it, too!! We are way too smart!!! j ---Original Message--- From: Heather Pieter Date: 3/24/2008 2:29:48 PM To: Robert Pall; jrushton; Gerry Surette; tmic-list@eskimo.com Subject: Re: [TMIC] It's okay... Rob, I have never counted the days since I got TM. I just go by years. For me it is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a ball and not uncurl for a long time. Positive attitude is what we need but as I said to Jeanne it is okay to have a little 'Pity Party for One' every now and again. Now I'm going to figure out what 4000 days computes to Have a good day Heather in Calgary - Original Message - From: Robert Pall To: jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 12:39 PM Subject: RE: [TMIC] It's okay... Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitude... we either continue living or chose to start dying! I choose life! Rob in New Jersey From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty , and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry From: jrushton [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] So strange Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) Gerry! I was just getting ready to ask if anyone had heard from you! You have really gone thru some rough times and now they are going to remove your spleen? Your advise is good...thank you! You are in my prayers..Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 3/24/2008 10:15:02 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange I know exactly how you feel. I 've had tm since the age 0f 21 have been able to function until 2001 when I had a relapse. I
Re: [TMIC] It's okay...
My two cents...I agree. It's OK to have the pity party. I have a recipe that never fails me in trying times. I sit where I can see a clock and I give myself 15 minutes to cry, rant or scream - fifteen minutes a day, always at the same time. The rest of the time, I chase away negative thoughts. I continue the 15 min. sessions for as many days as I need. Amazingly, after a few days, I have no more tears left and I start to feel a bit silly because I need fewer and fewer minutes to think about myself and my pain and my disability. Life is good again - difficult but good. Diane in Canada - Original Message - From: Heather Pieter To: Robert Pall ; jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 3:29 PM Subject: Re: [TMIC] It's okay... Rob, I have never counted the days since I got TM. I just go by years. For me it is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a ball and not uncurl for a long time. Positive attitude is what we need but as I said to Jeanne it is okay to have a little 'Pity Party for One' every now and again. Now I'm going to figure out what 4000 days computes to. Have a good day Heather in Calgary - Original Message - From: Robert Pall To: jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 12:39 PM Subject: RE: [TMIC] It's okay... Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitudewe either continue living or chose to start dying! I choose life! Rob in New Jersey From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty', and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is TM: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being
Re: [TMIC] It's okay...
Great idea, Diane!!! I do have to say that having a disability has its good points, though! By golly, when we get into the airport there is hardly a time when someone doesn't physically take me in my wheelchair right to the front of the line and walk me through! Plus the handicapped rooms at the hotels usually are larger and so easy to move around in! We've got to look at the brighter points every chance we get, don't we!!? Jeanne ---Original Message--- From: Diane Date: 3/24/2008 8:05:59 PM To: Heather Pieter; Robert Pall; jrushton; Gerry Surette; tmic-list@eskimo.com Subject: Re: [TMIC] It's okay... My two cents...I agree. It's OK to have the pity party. I have a recipe that never fails me in trying times. I sit where I can see a clock and I give myself 15 minutes to cry, rant or scream - fifteen minutes a day, always at the same time. The rest of the time, I chase away negative thoughts. I continue the 15 min. sessions for as many days as I need. Amazingly, after a few days, I have no more tears left and I start to feel a bit silly because I need fewer and fewer minutes to think about myself and my pain and my disability. Life is good again - difficult but good. Diane in Canada - Original Message - From: Heather Pieter To: Robert Pall ; jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 3:29 PM Subject: Re: [TMIC] It's okay... Rob, I have never counted the days since I got TM. I just go by years. For me it is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a ball and not uncurl for a long time. Positive attitude is what we need but as I said to Jeanne it is okay to have a little 'Pity Party for One' every now and again. Now I'm going to figure out what 4000 days computes to Have a good day Heather in Calgary - Original Message - From: Robert Pall To: jrushton ; Gerry Surette ; tmic-list@eskimo.com Sent: Monday, March 24, 2008 12:39 PM Subject: RE: [TMIC] It's okay... Jeanne: What a wonderful e mail. You are so right in your thinking! I truly believe that only someone who has TM can appreciate what we are going thru. I have often said to my wife that I wish she could have my TM for just 5 minutes. Then perhaps she could or would understand the horror of having a condition which no matter how hard we try never really gets better.and is with us 24/7 always. For me that means that nearly the past 4000 days have been without relief! Yet I still try to maintain a positive attitude... we either continue living or chose to start dying! I choose life! Rob in New Jersey From: jrushton [mailto:[EMAIL PROTECTED] Sent: Monday, March 24, 2008 12:14 PM To: Gerry Surette; tmic-list@eskimo.com Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty , and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne ---Original Message--- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least NEVER AGAIN I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally
