Great idea, Diane!!! I do have to say that having a disability has its good
points, though! By golly, when we get into the airport there is hardly a
time when someone doesn't physically take me in my wheelchair right to the
front of the line and walk me through! Plus the handicapped rooms at the
hotels usually are larger and so easy to move around in! We've got to look
at the brighter points every chance we get, don't we!!?
Jeanne
-------Original Message-------
From: Diane
Date: 3/24/2008 8:05:59 PM
To: Heather & Pieter; Robert Pall; jrushton; Gerry Surette;
tmic-list@eskimo.com
Subject: Re: [TMIC] It's okay...
My two cents...........I agree. It's OK to have the pity party. I have a
recipe that never fails me in trying times. I sit where I can see a clock
and I give myself 15 minutes to cry, rant or scream - fifteen minutes a day,
always at the same time. The rest of the time, I chase away negative
thoughts. I continue the 15 min. sessions for as many days as I need.
Amazingly, after a few days, I have no more tears left and I start to feel a
bit silly because I need fewer and fewer minutes to think about myself and
my pain and my disability. Life is good again - difficult but good.
Diane in Canada
----- Original Message -----
From: Heather & Pieter
To: Robert Pall ; jrushton ; Gerry Surette ; tmic-list@eskimo.com
Sent: Monday, March 24, 2008 3:29 PM
Subject: Re: [TMIC] It's okay...
Rob,
I have never counted the days since I got TM. I just go by years. For me
it is now 4 1/2 yrs. I think if I counted the days I would probably curl up
in a ball and not uncurl for a long time. Positive attitude is what we need
but as I said to Jeanne it is okay to have a little 'Pity Party for One'
every now and again. Now I'm going to figure out what 4000 days computes to
Have a good day
Heather in Calgary
----- Original Message -----
From: Robert Pall
To: jrushton ; Gerry Surette ; tmic-list@eskimo.com
Sent: Monday, March 24, 2008 12:39 PM
Subject: RE: [TMIC] It's okay...
Jeanne:
What a wonderful e mail. You are so right in your thinking! I truly
believe that only someone who has TM can appreciate what we are going thru.
I have often said to my wife that I wish she could have my TM for just 5
minutes. Then perhaps she could or would understand the horror of having a
condition which no matter how hard we try never really gets better.....and
is with us 24/7 always. For me that means that nearly the past 4000 days
have been without relief! Yet I still try to maintain a positive attitude...
we either continue living or chose to start dying! I choose life!
Rob in New Jersey
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: Monday, March 24, 2008 12:14 PM
To: Gerry Surette; tmic-list@eskimo.com
Subject: [TMIC] It's okay...
You can be as emotional as you want, any time you want!! I think most of us
try to be 'up' and 'positive' as often as we can but there comes a time when
our old bodies just plain get bone tired and then it's time to take the time
for ourselves to rest, both physically and emotionally.
When I first came down with TM, I decided I was going to be old Mary Poppins
and choose the positive over the negative which is the way I've always liked
to live my life as often as I could...the 'cup is half full' not 'half empty
, and laugh so I don't cry? Well, that can still work a good part of the
time but by gosh, you just can't always make it! AND it's okay!!!
Not too long ago I decided I was taking way too much Lyrica (approved by my
provider) because I didn't like the side effects. Well, the first week was
one of the worst and there were definite withdrawals both horribly painful
and emotional. One day I was on the front porch swing just sobbing from my
toes and who shows up but one of my daughters right out of the blue. (God's
doing, for sure) and I just couldn't stop crying. It scared her to death
because both my girls don't see me cry very often. I usually laugh just to
hear myself laugh (true!). Well, this was a cleansing of the soul and a
good way to get some of that 'stuff' out of my body, I would swear. After
that, I felt better, got lots of good hugs from my daughter and Jack and I
was back on my way. Sometimes we are so hard on ourselves. God wants us to
be good to ourselves so we can also be good to others.
Jeanne
-------Original Message-------
From: Gerry Surette
Date: 3/24/2008 11:58:01 AM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] So strange
many thanks; The procedure itself is not painful; the bone marrow retival
for biopsy is uncomfortable. the side effects though of three days for five
hours each day is to say the least" NEVER AGAIN" I had a high fever chills
etc; on top of my leg and feet spasms. It was certainly a memerable week
Thank God jesus was by my side as well as my wife who when I had my spams I
tend to hypervenilate; the pain is so great. She is there to calm me down
and help me breathe normally until my spasm ends. You all know what these
are. it is T<M<: life is never preditable. you have to roll with the
punches. You just have to be thankful that the day you have no pain is a
blessing. You have to make the best of it. Sorry if I am being emotional but
the is the way I feel I have to take each day as it comes and be thankful
for any blessing I receive. gerry
>From: "jrushton" <[EMAIL PROTECTED]>
>To: "Gerry Surette" <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
>Subject: RE: [TMIC] So strange
>Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time)
>
>Gerry! I was just getting ready to ask if anyone had heard from you! You
>have really gone thru some rough times and now they are going to remove
>your
>spleen? Your advise is good...thank you! You are in my prayers..Jeanne in
>Dayton, WA
>
>-------Original Message-------
>
>From: Gerry Surette
>Date: 3/24/2008 10:15:02 AM
>To: [EMAIL PROTECTED]
>Cc: tmic-list@eskimo.com
>Subject: RE: [TMIC] So strange
>
>I know exactly how you feel. I 've had tm since the age 0f 21 have been
>able
>to function until 2001 when I had a relapse. I too am 60 years young. My
>plete count has gone way down a side effect of TM after numerous
>treatments
>i now have itp. I have gone through three treatments of immunoglobiulin
>which have not worked. Now I have another treatment to go through to raise
>my plete count at which time they will remove my speen. I urge everyone to
>have there white blood cells plete count examined on a regular bases. Life
>with TM is always a daily challenge. like they say it is like a box of
>choclate you never know what will happen day to day. yes you have to have a
>positive attidude. It is your life and you only have control of it. It is
>up
>to you to decide if you will fight it or let it get to you. for me I would
>rather fight . It is hard but life is worth it
>
>
> >From: "Robert Pall" <[EMAIL PROTECTED]>
> >To: <tmic-list@eskimo.com>
> >Subject: [TMIC] So strange
> >Date: Mon, 24 Mar 2008 10:56:52 -0400
> >
> > Just a fast topic for discussion. In my case TM is like a box of
> >chocolates...you never know what you are going to get!
> > It seems to me that how I feel from day to day is never the same!
> >Some days are just terrible and some days are not so bad. I cannot point
> >to the weather because that does not always have an effect on me. I do
> >know if I get sick, even with a cold, my symptoms are always worse.
> >Today is a beautiful day in sunny New Jersey and yet I feel
> >terrible...why?
> > For me the biggest problem is the "banding" on my right leg just
> >above the knee. When it gets very bad (like today) it makes walking much
> >more difficult and I walk with an even stiffer leg than usual. Is it
> >possible that as our spine regenerates (even though it is a very long
> >process...decades) we still experience changes all the time, because the
> >feelings are somewhat different, and for TM'rs change is never good. It
> >seems that when I start to get used to the feelings I have, and try to
> >accept them, they suddenly change.
> > I try to live with TM as best as I can. I try to keep a positive
> >attitude and give thanks that I am able to work, walk and drive which so
> >many of my fellow TM'rs cannot do....but some days are harder than
> >others!
> > Last week I heard from one of our group who after 11 years had a
> >relapse. For me this is truly scary. I don't know what I would do if
> >this happened to me. I have had TM for more than 10 years and I am now
> >60, which means that on top of TM I am starting to experience the
> >problems that come with aging such as arthritis. Sometimes I feel that
> >the only place we can go is down!
> > Sorry for the depressing attitude...I just need to talk to the group
> >when I feel this way and then forget about it, get back my positive
> >attitude, and move on.
> > Thank you for letting me vent!
> >
> >Rob in New Jersey
>
>
>
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