Re: [TMIC] It's okay...

Mon, 24 Mar 2008 13:07:31 -0700

When i feel as you do I Have a perfect solution; Have a nice warm bubble bath; I have rpoblems with my circulation; mt feet are usually purple; I light a candle drop myself in an empty bath; { I have rpoblems distinguishing hot and cold) let the water flow over me. Move my legs to increase the bubbles and as James brown says in his song I feel so good. 


From: Heather & Pieter <[EMAIL PROTECTED]>

To: Robert Pall <[EMAIL PROTECTED]>, jrushton 
<[EMAIL PROTECTED]>, Gerry Surette <[EMAIL PROTECTED]>, 
tmic-list@eskimo.com

Subject: Re: [TMIC] It's okay...
Date: Mon, 24 Mar 2008 13:29:22 -0600

Rob,


I have never counted the days since I got TM.  I just go by years.  For me 
it is now 4 1/2 yrs.  I think if I counted the days I would probably curl 
up in a ball and not uncurl for a long time.  Positive attitude is what we 
need but as I said to Jeanne it is okay to have a little 'Pity Party for 
One' every now and again.  Now I'm going to figure out what 4000 days 
computes to.


Have a good day

Heather in Calgary
  ----- Original Message -----
  From: Robert Pall
  To: jrushton ; Gerry Surette ; tmic-list@eskimo.com
  Sent: Monday, March 24, 2008 12:39 PM
  Subject: RE: [TMIC] It's okay...


  Jeanne:

      What a wonderful e mail. You are so right in your thinking! I truly 
believe that only someone who has TM can appreciate what we are going thru. 
I have often said to my wife that I wish she could have my TM for just 5 
minutes. Then perhaps she could or would understand the horror of having a 
condition which no matter how hard we try never really gets better.....and 
is with us 24/7 always. For me that means that nearly the past 4000 days 
have been without relief! Yet I still try to maintain a positive 
attitude....we either continue living or chose to start dying! I choose 
life!


  Rob in New Jersey



------------------------------------------------------------------------------
  From: jrushton [mailto:[EMAIL PROTECTED]
  Sent: Monday, March 24, 2008 12:14 PM
  To: Gerry Surette; tmic-list@eskimo.com
  Subject: [TMIC] It's okay...



        You can be as emotional as you want, any time you want!!  I think 
most of us try to be 'up' and 'positive' as often as we can but there comes 
a time when our old bodies just plain get bone tired and then it's time to 
take the time for ourselves to rest, both physically and emotionally.



        When I first came down with TM, I decided I was going to be old 
Mary Poppins and choose the positive over the negative which is the way 
I've always liked to live my life as often as I could...the 'cup is half 
full' not 'half empty', and laugh so I don't cry?  Well, that can still 
work a good part of the time but by gosh, you just can't always make it!  
AND it's okay!!!



        Not too long ago I decided I was taking way too much Lyrica 
(approved by my provider) because I didn't like the side effects.  Well, 
the first week was one of the worst and there were definite withdrawals 
both horribly painful and emotional.  One day I was on the front porch 
swing just sobbing from my toes and who shows up but one of my daughters 
right out of the blue.  (God's doing, for sure) and I just couldn't stop 
crying.  It scared her to death because both my girls don't see me cry very 
often.  I usually laugh just to hear myself laugh (true!).  Well, this was 
a cleansing of the soul and a good way to get some of that 'stuff' out of 
my body, I would swear.  After that, I felt better, got lots of good hugs 
from my daughter and Jack and I was back on my way.  Sometimes we are so 
hard on ourselves.  God wants us to be good to ourselves so we can also be 
good to others.


        Jeanne

        -------Original Message-------

        From: Gerry Surette
        Date: 3/24/2008 11:58:01 AM
        To: [EMAIL PROTECTED]
        Cc: tmic-list@eskimo.com
        Subject: RE: [TMIC] So strange


        many thanks; The procedure itself is not painful; the bone marrow 
retival
        for biopsy is uncomfortable. the side effects though of three days 
for five
        hours each day is to say the least" NEVER AGAIN" I had a high 
fever chills
        etc; on top of my leg and feet spasms. It was certainly a 
memerable week
        Thank God jesus was by my side as well as my wife who when I had 
my spams I
        tend to hypervenilate; the pain is so great. She is there to calm 
me down
        and help me breathe normally until my spasm ends. You all know 
what these
        are. it is T<M<: life is never preditable. you have to roll with 
the
        punches. You just have to be thankful that the day you have no 
pain is a
        blessing. You have to make the best of it. Sorry if I am being 
emotional but
        the is the way I feel I have to take each day as it comes and be 
thankful

        for any blessing I receive. gerry

        >From: "jrushton" <[EMAIL PROTECTED]>

        >To: "Gerry Surette" <[EMAIL PROTECTED]>, 
<tmic-list@eskimo.com>

        >Subject: RE: [TMIC] So strange
        >Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time)
        >

        >Gerry!  I was just getting ready to ask if anyone had heard from 
you!  You
        >have really gone thru some rough times and now they are going to 
remove

        >your

        >spleen?  Your advise is good...thank you!  You are in my 
prayers..Jeanne in

        >Dayton, WA
        >
        >-------Original Message-------
        >
        >From: Gerry Surette
        >Date: 3/24/2008 10:15:02 AM
        >To: [EMAIL PROTECTED]
        >Cc: tmic-list@eskimo.com
        >Subject: RE: [TMIC] So strange
        >

        >I know exactly how you feel. I 've had tm since the age 0f 21 
have been

        >able

        >to function until 2001 when I had a relapse. I too am 60 years 
young. My

        >plete count has gone way down a side effect of TM after numerous
        >treatments

        >i now have itp. I have gone through three treatments of 
immunoglobiulin
        >which have not worked. Now I have another treatment to go through 
to raise
        >my plete count at which time they will remove my speen. I urge 
everyone to
        >have there white blood cells plete count examined on a regular 
bases. Life
        >with TM is always a daily challenge. like they say it is like a 
box of
        >choclate you never know what will happen day to day. yes you have 
to have a
        >positive attidude. It is your life and you only have control of 
it. It is

        >up

        >to you to decide if you will fight it or let it get to you. for 
me I would

        >rather fight . It is hard but life is worth it
        >
        >
        > >From: "Robert Pall" <[EMAIL PROTECTED]>
        > >To: <tmic-list@eskimo.com>
        > >Subject: [TMIC] So strange
        > >Date: Mon, 24 Mar 2008 10:56:52 -0400
        > >

        > >        Just a fast topic for discussion. In my case TM is like 
a box of

        > >chocolates...you never know what you are going to get!

        > >        It seems to me that how I feel from day to day is never 
the same!
        > >Some days are just terrible and some days are not so bad. I 
cannot point
        > >to the weather because that does not always have an effect on 
me. I do
        > >know if I get sick, even with a cold, my symptoms are always 
worse.

        > >Today is a beautiful day in sunny New Jersey and yet I feel
        > >terrible...why?

        > >       For me the biggest problem is the "banding" on my right 
leg just
        > >above the knee. When it gets very bad (like today) it makes 
walking much
        > >more difficult and I walk with an even stiffer leg than usual. 
Is it
        > >possible that as our spine regenerates (even though it is a 
very long
        > >process...decades) we still experience changes all the time, 
because the
        > >feelings are somewhat different, and for TM'rs change is never 
good. It
        > >seems that when I start to get used to the feelings I have, and 
try to

        > >accept them, they suddenly change.

        > >      I try to live with TM as best as I can. I try to keep a 
positive
        > >attitude and give thanks that I am able to work, walk and drive 
which so
        > >many of my fellow TM'rs cannot do....but some days are harder 
than

        > >others!

        > >     Last week I heard from one of our group who after 11 years 
had a
        > >relapse. For me this is truly scary. I don't know what I would 
do if
        > >this happened to me. I have had TM for more than 10 years and I 
am now
        > >60, which means that on top of TM I am starting to experience 
the
        > >problems that come with aging such as arthritis. Sometimes I 
feel that

        > >the only place we can go is down!

        > >     Sorry for the depressing attitude...I just need to talk to 
the group
        > >when I feel this way and then forget about it, get back my 
positive

        > >attitude, and move on.
        > >     Thank you for letting me vent!
        > >
        > >Rob in New Jersey
        >
        >
        >








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