My two cents...........I agree. It's OK to have the pity party. I have a
recipe that never fails me in trying times. I sit where I can see a clock and
I give myself 15 minutes to cry, rant or scream - fifteen minutes a day, always
at the same time. The rest of the time, I chase away negative thoughts. I
continue the 15 min. sessions for as many days as I need. Amazingly, after a
few days, I have no more tears left and I start to feel a bit silly because I
need fewer and fewer minutes to think about myself and my pain and my
disability. Life is good again - difficult but good.
Diane in Canada
----- Original Message -----
From: Heather & Pieter
To: Robert Pall ; jrushton ; Gerry Surette ; tmic-list@eskimo.com
Sent: Monday, March 24, 2008 3:29 PM
Subject: Re: [TMIC] It's okay...
Rob,
I have never counted the days since I got TM. I just go by years. For me it
is now 4 1/2 yrs. I think if I counted the days I would probably curl up in a
ball and not uncurl for a long time. Positive attitude is what we need but as
I said to Jeanne it is okay to have a little 'Pity Party for One' every now and
again. Now I'm going to figure out what 4000 days computes to.
Have a good day
Heather in Calgary
----- Original Message -----
From: Robert Pall
To: jrushton ; Gerry Surette ; tmic-list@eskimo.com
Sent: Monday, March 24, 2008 12:39 PM
Subject: RE: [TMIC] It's okay...
Jeanne:
What a wonderful e mail. You are so right in your thinking! I truly
believe that only someone who has TM can appreciate what we are going thru. I
have often said to my wife that I wish she could have my TM for just 5 minutes.
Then perhaps she could or would understand the horror of having a condition
which no matter how hard we try never really gets better.....and is with us
24/7 always. For me that means that nearly the past 4000 days have been without
relief! Yet I still try to maintain a positive attitude....we either continue
living or chose to start dying! I choose life!
Rob in New Jersey
----------------------------------------------------------------------------
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: Monday, March 24, 2008 12:14 PM
To: Gerry Surette; tmic-list@eskimo.com
Subject: [TMIC] It's okay...
You can be as emotional as you want, any time you want!! I think
most of us try to be 'up' and 'positive' as often as we can but there comes a
time when our old bodies just plain get bone tired and then it's time to take
the time for ourselves to rest, both physically and emotionally.
When I first came down with TM, I decided I was going to be old Mary
Poppins and choose the positive over the negative which is the way I've always
liked to live my life as often as I could...the 'cup is half full' not 'half
empty', and laugh so I don't cry? Well, that can still work a good part of the
time but by gosh, you just can't always make it! AND it's okay!!!
Not too long ago I decided I was taking way too much Lyrica (approved
by my provider) because I didn't like the side effects. Well, the first week
was one of the worst and there were definite withdrawals both horribly painful
and emotional. One day I was on the front porch swing just sobbing from my
toes and who shows up but one of my daughters right out of the blue. (God's
doing, for sure) and I just couldn't stop crying. It scared her to death
because both my girls don't see me cry very often. I usually laugh just to
hear myself laugh (true!). Well, this was a cleansing of the soul and a good
way to get some of that 'stuff' out of my body, I would swear. After that, I
felt better, got lots of good hugs from my daughter and Jack and I was back on
my way. Sometimes we are so hard on ourselves. God wants us to be good to
ourselves so we can also be good to others.
Jeanne
-------Original Message-------
From: Gerry Surette
Date: 3/24/2008 11:58:01 AM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] So strange
many thanks; The procedure itself is not painful; the bone marrow
retival
for biopsy is uncomfortable. the side effects though of three days
for five
hours each day is to say the least" NEVER AGAIN" I had a high fever
chills
etc; on top of my leg and feet spasms. It was certainly a memerable
week
Thank God jesus was by my side as well as my wife who when I had my
spams I
tend to hypervenilate; the pain is so great. She is there to calm me
down
and help me breathe normally until my spasm ends. You all know what
these
are. it is T<M<: life is never preditable. you have to roll with the
punches. You just have to be thankful that the day you have no pain
is a
blessing. You have to make the best of it. Sorry if I am being
emotional but
the is the way I feel I have to take each day as it comes and be
thankful
for any blessing I receive. gerry
>From: "jrushton" <[EMAIL PROTECTED]>
>To: "Gerry Surette" <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
>Subject: RE: [TMIC] So strange
>Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time)
>
>Gerry! I was just getting ready to ask if anyone had heard from
you! You
>have really gone thru some rough times and now they are going to
remove
>your
>spleen? Your advise is good...thank you! You are in my
prayers..Jeanne in
>Dayton, WA
>
>-------Original Message-------
>
>From: Gerry Surette
>Date: 3/24/2008 10:15:02 AM
>To: [EMAIL PROTECTED]
>Cc: tmic-list@eskimo.com
>Subject: RE: [TMIC] So strange
>
>I know exactly how you feel. I 've had tm since the age 0f 21 have
been
>able
>to function until 2001 when I had a relapse. I too am 60 years
young. My
>plete count has gone way down a side effect of TM after numerous
>treatments
>i now have itp. I have gone through three treatments of
immunoglobiulin
>which have not worked. Now I have another treatment to go through to
raise
>my plete count at which time they will remove my speen. I urge
everyone to
>have there white blood cells plete count examined on a regular
bases. Life
>with TM is always a daily challenge. like they say it is like a box
of
>choclate you never know what will happen day to day. yes you have to
have a
>positive attidude. It is your life and you only have control of it.
It is
>up
>to you to decide if you will fight it or let it get to you. for me I
would
>rather fight . It is hard but life is worth it
>
>
> >From: "Robert Pall" <[EMAIL PROTECTED]>
> >To: <tmic-list@eskimo.com>
> >Subject: [TMIC] So strange
> >Date: Mon, 24 Mar 2008 10:56:52 -0400
> >
> > Just a fast topic for discussion. In my case TM is like a
box of
> >chocolates...you never know what you are going to get!
> > It seems to me that how I feel from day to day is never
the same!
> >Some days are just terrible and some days are not so bad. I cannot
point
> >to the weather because that does not always have an effect on me.
I do
> >know if I get sick, even with a cold, my symptoms are always worse.
> >Today is a beautiful day in sunny New Jersey and yet I feel
> >terrible...why?
> > For me the biggest problem is the "banding" on my right leg
just
> >above the knee. When it gets very bad (like today) it makes
walking much
> >more difficult and I walk with an even stiffer leg than usual. Is
it
> >possible that as our spine regenerates (even though it is a very
long
> >process...decades) we still experience changes all the time,
because the
> >feelings are somewhat different, and for TM'rs change is never
good. It
> >seems that when I start to get used to the feelings I have, and
try to
> >accept them, they suddenly change.
> > I try to live with TM as best as I can. I try to keep a
positive
> >attitude and give thanks that I am able to work, walk and drive
which so
> >many of my fellow TM'rs cannot do....but some days are harder than
> >others!
> > Last week I heard from one of our group who after 11 years
had a
> >relapse. For me this is truly scary. I don't know what I would do
if
> >this happened to me. I have had TM for more than 10 years and I am
now
> >60, which means that on top of TM I am starting to experience the
> >problems that come with aging such as arthritis. Sometimes I feel
that
> >the only place we can go is down!
> > Sorry for the depressing attitude...I just need to talk to
the group
> >when I feel this way and then forget about it, get back my positive
> >attitude, and move on.
> > Thank you for letting me vent!
> >
> >Rob in New Jersey
>
>
>
----------------------------------------------------------------------------
No virus found in this incoming message.
Checked by AVG.
Version: 7.5.519 / Virus Database: 269.22.0/1341 - Release Date: 3/24/2008
3:03 PM
