Re: [TMIC] Re: (TMIC) Sex.
Gracie, No need for you to feel funny about posting re: sex. I feel the same way as you do. Losing the desire for sex as well as the physical ability (all the dust balls and spider webs) inside there makes me feel much less than a woman than I certainly used to. However, Something happened this week that surprised the heck out of me and Dave. We went out, after a couple of years, and sought out my previous hairstylist, found her and I had my hair colored blond and then highlighted on top of that and Dave got his cut which blended the white in so that it looked very nice on him. We both found ourselves looking better, feeling like dressing better...he shaved and I put on make-up for the first time in a long time. It is really nice to feel pretty again for Dave and he says he feels the same way. It made us have feelings that we hadn't had in a long while and as the saying goes, where there is a will, there is a way. So, without going into details, a good time was had by all and now I find myself keeping up with my makeup and making an effort to get dressed and get out of bed, which does take some effort. Well, my dear friend, you take care...don't let yourself get too far down today, and remember that Pam is all around you all of the time as I feel her near my side especially when I am working on a project I know that we both would enjoy doing together. I love you, Jude In a message dated 6/24/2009 6:48:26 A.M. Eastern Daylight Time, grace...@gmail.com writes: I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. Okay, signing off before I totally embarrass myself. Grace **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222585065x1201462786/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [TMIC] Re: (TMIC) Sex.
THAT IS SUCH A FABULOUS STORY, JUDE!? I am so very happy for you and Dave! SPARKER -Original Message- From: heyjude48...@aol.com To: grace...@gmail.com; tmic-list@eskimo.com Sent: Sat, Jun 27, 2009 1:41 am Subject: Re: [TMIC] Re: (TMIC) Sex. Gracie, ? No need for you to feel funny about posting re:? sex.? I feel the same way as you do. ? Losing the desire for sex as well as the physical ability (all the dust balls and spider webs) inside there makes me feel much less than a woman than I certainly used to.? However, ? Something happened this week that surprised the heck out of me and Dave.? We went out, after a couple of years, and sought out my previous hairstylist, found her and I had my hair colored blond and then highlighted on top of that and Dave got his cut which blended the white in so that it looked very nice on him.? We both found ourselves looking better, feeling like dressing better...he shaved and I put on make-up for the first time in a long time.? It is really nice to feel pretty again for Dave and he says he feels the same way.? It made us have feelings that we hadn't had in a long while and as the saying goes, where there is a will, there is a way. ? So, without going into details, a good time was had by all and now I find myself keeping up with my makeup and making an effort to get dressed and get out of bed, which does take some effort. ? Well, my dear friend, you take care...don't let yourself get too far down today, and remember that Pam is all around you all of the time as I feel her near my side especially when I am working on a project I know that we both would enjoy doing together. ? I love you, Jude ? In a message dated 6/24/2009 6:48:26 A.M. Eastern Daylight Time, grace...@gmail.com writes: I can't believe?that I am going to reply to this, as it's an issue that I just try hard to avoid, but.?okay, so here goes.? During my first NMO hit, I lost all feeling *there*.? At first?I was hopeful that it would slowly come back, but my second bad hit sealed the deal.? I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it.? Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed.? Later that night,?one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient.? We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely.? (She's amazing, and I've since had her as?my nurse in the?neuro ward, many times.)? Finally, I just took a big swallow and blurted it out.? She told me the truth, that?in my case it was unlikely that?feeling would return, but that one?should still k! eep?hoping that one day there would be some increase in sensation.? She was correct---I have been numb from my sensory level downwards since 2005.? Most of my body still feels as if it has been shot up with Novocaine.?? ? Anyways, I?was shell shocked and actually mourned the loss.? To lose something that is so integral to one's life, is a violation of sorts.? It was bad enough that?I had?no control over my other bodily functions,?but the loss of physical sexuality was adding insult to injury.? I felt as if I had lost my *person-hood*, and had suddenly become androgynous.? I still fight those feelings, and yes, sometimes I still cry about it.? Sexual contact offers an intimacy like no other.? Some of us are more sexual than others, and the loss can often be the cruelest cut of all.?? ? These days I try hard not to ever even think about it.??Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have.? I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me.??For me, it's been a tough loss to deal with. ? Okay, signing off?before?I totally embarrass myself. ? Grace?? An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
Re: [TMIC] Re: (TMIC) Sex.
AOL Email Good Go'in Jude!!You did well!! Janice - Original Message - From: heyjude48...@aol.com To: grace...@gmail.com ; tmic-list@eskimo.com Sent: Saturday, June 27, 2009 3:41 AM Subject: Re: [TMIC] Re: (TMIC) Sex. Gracie, No need for you to feel funny about posting re: sex. I feel the same way as you do. Losing the desire for sex as well as the physical ability (all the dust balls and spider webs) inside there makes me feel much less than a woman than I certainly used to. However, Something happened this week that surprised the heck out of me and Dave. We went out, after a couple of years, and sought out my previous hairstylist, found her and I had my hair colored blond and then highlighted on top of that and Dave got his cut which blended the white in so that it looked very nice on him. We both found ourselves looking better, feeling like dressing better...he shaved and I put on make-up for the first time in a long time. It is really nice to feel pretty again for Dave and he says he feels the same way. It made us have feelings that we hadn't had in a long while and as the saying goes, where there is a will, there is a way. So, without going into details, a good time was had by all and now I find myself keeping up with my makeup and making an effort to get dressed and get out of bed, which does take some effort. Well, my dear friend, you take care...don't let yourself get too far down today, and remember that Pam is all around you all of the time as I feel her near my side especially when I am working on a project I know that we both would enjoy doing together. I love you, Jude In a message dated 6/24/2009 6:48:26 A.M. Eastern Daylight Time, grace...@gmail.com writes: I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. Okay, signing off before I totally embarrass myself. Grace -- An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!
[TMIC] Re: (TMIC) Sex.
*I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. * ** *Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. * ** *These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. * ** *Okay, signing off before I totally embarrass myself.* ** *Grace *
Re: [TMIC] Re: (TMIC) Sex.
Oh, Gracie, don't be embarrassed. We can talk about anything on here and get very up close and personal and no one should be offended because we are all part of one and that is TM. If you need to ask questions, ask. If you have a worry, share it with us. If you want to cry, we'll cry with you. If you want to talk about sex, hey, we'll be right there to talk about it with you! Just remember that we are a family of friends. Jeanne ---Original Message--- From: Grace M. Date: 6/24/2009 5:47:49 AM To: tmic-list@eskimo.com Subject: [TMIC] Re: (TMIC) Sex. I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. Okay, signing off before I totally embarrass myself. Grace rosy_hint.gif
Re: [TMIC] Re: (TMIC) Sex.
Great note, Randy... ---Original Message--- From: rj_ran...@yahoo.com Date: 6/24/2009 1:45:09 PM To: jrushton; Grace M. Subject: Re: [TMIC] Re: (TMIC) Sex. Its not a taboo subject. I was engaged to be married when my second episode hit. The wedding was going to be the end of june and I had an event in feb and another in april. I think that the marriage plans were doomed after the feb relapse because the TM impacted the urinary tract and prostrate. Things went down hill from there and the wed was pushed off and finally we ended it She had already found another bow anyway and I was lucky to have found the truth out before me tied the not. So yes the subject is delicate ITS NOT a facebook topic lol but here it is appropriate because as biological beings (Maslov's heiharcy -spelling) that's just as much of who we are as eating, walking and socializing. I think studies will prove me right but healthy married people live longer than single and its more than just sharing a house or income that keeps people going. Sent from my Verizon Wireless BlackBerry From: jrushton Date: Wed, 24 Jun 2009 09:30:34 -0500 (Central Daylight Time) To: Grace M.grace...@gmail.com Subject: Re: [TMIC] Re: (TMIC) Sex. Oh, Gracie, don't be embarrassed. We can talk about anything on here and get very up close and personal and no one should be offended because we are all part of one and that is TM. If you need to ask questions, ask. If you have a worry, share it with us. If you want to cry, we'll cry with you. If you want to talk about sex, hey, we'll be right there to talk about it with you! Just remember that we are a family of friends. Jeanne ---Original Message--- From: Grace M. Date: 6/24/2009 5:47:49 AM To: tmic-list@eskimo.com Subject: [TMIC] Re: (TMIC) Sex. I can't believe that I am going to reply to this, as it's an issue that I just try hard to avoid, but. okay, so here goes. During my first NMO hit, I lost all feeling *there*. At first I was hopeful that it would slowly come back, but my second bad hit sealed the deal. I can remember lying in my hospital bed trying to get up the nerve to speak with my doc about it. Finally one day I mentioned it in passing, but didn't really press the matter---I was too embarrassed. Later that night, one of my neuro nurses came in to sit and talk with me about the disease, as I was her first NMO patient. We talked a lot about nerves and nerve damage, and as I was very savvy re: the implications of having relapsing NMO, we spoke freely. (She's amazing, and I've since had her as my nurse in the neuro ward, many times.) Finally, I just took a big swallow and blurted it out. She told me the truth, that in my case it was unlikely that feeling would return, but that one should still keep hoping that one day there would be some increase in sensation. She was correct---I have been numb from my sensory level downwards since 2005. Most of my body still feels as if it has been shot up with Novocaine. Anyways, I was shell shocked and actually mourned the loss. To lose something that is so integral to one's life, is a violation of sorts. It was bad enough that I had no control over my other bodily functions, but the loss of physical sexuality was adding insult to injury. I felt as if I had lost my *person-hood*, and had suddenly become androgynous. I still fight those feelings, and yes, sometimes I still cry about it. Sexual contact offers an intimacy like no other. Some of us are more sexual than others, and the loss can often be the cruelest cut of all. These days I try hard not to ever even think about it. Whenever I do, I become extremely angry at what I perceive to be the unfairness of it all, and I lose sight of what I do still have. I should be very grateful for every day that I draw a breath---unfortunately, sometimes the negative feelings get the better of me. For me, it's been a tough loss to deal with. Okay, signing off before I totally embarrass myself. Grace rosy_hint.gif
