RE: [TMIC] age at incident
Hi Carol - yes, I was. I was diagnosed with TM in 2002 but could walk OK until 2005 lots of MRIs that showed leasons in my spine but not my brain - around thanksgiving 2007, I started seeing double if I looked to my right - MRI showed leasion on optic nerve - then they diagnosed me with MS. Now I take Copaxone injections every day. BERNARD BUTCHER From: Carol [mailto:[EMAIL PROTECTED] Sent: Friday, June 20, 2008 8:51 PM To: Alton Ryder Cc: TM List Subject: Re: [TMIC] age at incident Hi all, I'm a little behind in my reading, but as I was reading this message from Alton, I wanted to report that I had my appointment with my new neuro this past week. And he thinks that it is very probable that I also had a spinal cord infarct. But it is now 3 years after the fact. If you don't remember my most recent messages, my former neuro wanted to start me on MS shots 2 months ago. My brain MRI, C-spine and Thoracic spine were unchanged from 3 years ago which was not positive for MS. Actually, my thoracic was changed, it showed the old injury and it not being active. My vision evoked response test or VER was also negative for MS. My new doctor is leaving some leeway, but says probably 80% sure that it is not MS. Those of you who were originally diagnosed with TM, were any of your diagnosis changed to MS around the age of 55-58 or older? Carol in Culver, IN - Original Message - From: Alton Ryder mailto:[EMAIL PROTECTED] To: Bob and Sue Mattis mailto:[EMAIL PROTECTED] Cc: TM List mailto:tmic-list@eskimo.com Sent: Thursday, June 05, 2008 6:14 PM Subject: Re: [TMIC] age at incident Took 10 minutes to become paralyzed from the waist down (T12) Strictly speaking, neither of us have TM. Myelitis is an inflammation of the myelin; I don't believe any infection can have such a sudden onset. Moreover, my spinal fluid was clear of white blood cells that would have been marshaled to fight an inflammation. I, perhaps we, had an infarction of a branch artery within the cord. Alton
RE: [TMIC] age at incident
Sorry, I forgot to mention - I was 55 when diagnosed with MS BERNARD BUTCHER From: Butcher, Bernard G (NY80) [mailto:[EMAIL PROTECTED] Sent: Monday, June 23, 2008 7:54 AM To: Carol; Alton Ryder Cc: TM List Subject: RE: [TMIC] age at incident Hi Carol - yes, I was. I was diagnosed with TM in 2002 but could walk OK until 2005 lots of MRIs that showed leasons in my spine but not my brain - around thanksgiving 2007, I started seeing double if I looked to my right - MRI showed leasion on optic nerve - then they diagnosed me with MS. Now I take Copaxone injections every day. BERNARD BUTCHER From: Carol [mailto:[EMAIL PROTECTED] Sent: Friday, June 20, 2008 8:51 PM To: Alton Ryder Cc: TM List Subject: Re: [TMIC] age at incident Hi all, I'm a little behind in my reading, but as I was reading this message from Alton, I wanted to report that I had my appointment with my new neuro this past week. And he thinks that it is very probable that I also had a spinal cord infarct. But it is now 3 years after the fact. If you don't remember my most recent messages, my former neuro wanted to start me on MS shots 2 months ago. My brain MRI, C-spine and Thoracic spine were unchanged from 3 years ago which was not positive for MS. Actually, my thoracic was changed, it showed the old injury and it not being active. My vision evoked response test or VER was also negative for MS. My new doctor is leaving some leeway, but says probably 80% sure that it is not MS. Those of you who were originally diagnosed with TM, were any of your diagnosis changed to MS around the age of 55-58 or older? Carol in Culver, IN - Original Message - From: Alton Ryder mailto:[EMAIL PROTECTED] To: Bob and Sue Mattis mailto:[EMAIL PROTECTED] Cc: TM List mailto:tmic-list@eskimo.com Sent: Thursday, June 05, 2008 6:14 PM Subject: Re: [TMIC] age at incident Took 10 minutes to become paralyzed from the waist down (T12) Strictly speaking, neither of us have TM. Myelitis is an inflammation of the myelin; I don't believe any infection can have such a sudden onset. Moreover, my spinal fluid was clear of white blood cells that would have been marshaled to fight an inflammation. I, perhaps we, had an infarction of a branch artery within the cord. Alton
RE: [TMIC] age at incident
Feb 4, 2001.I was 43 and thought I was having a nice routine strokebut no!!! I'm not sure if it was the kharma ploice striking me down for unpaid parking tickets or what. Anyway...at 50 I'm still on the planet and all in all...things could be worse Neil (in Ns) From: [EMAIL PROTECTED]: tmic-list@eskimo.com; [EMAIL PROTECTED]: Re: [TMIC] age at incidentDate: Fri, 6 Jun 2008 23:05:49 -0600 I was 51 - toes started tingling and numbness spread up to my chest. Now age 57 and among the walking wounded. And I would like to add that I am ever so thankful for each and every one in our TM family. Thank you, Jim, once again for all that you have done and continue to do for us all. Happy Birthday to all of the JUNE babies! Linda - Original Message - From: Alton Ryder To: TM List Sent: Thursday, June 05, 2008 6:05 AM Subject: [TMIC] age at incident I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton _ If you like crossword puzzles, then you'll love Flexicon, a game which combines four overlapping crossword puzzles into one! http://g.msn.ca/ca55/208
Re: [TMIC] age at incident
I was 37. It took about 3 days to become totally paralyzed. Started with back pain and tingling from my feet up. Then the weakness set in. Lynn in RI - Original Message - From: Krissy Z To: Bob and Sue Mattis Cc: TM List Sent: Friday, June 06, 2008 8:50 AM Subject: RE: [TMIC] age at incident Boy can I relate. It was 3 years ago this past May,felt a tingling in my backbone, then legs got all rubbery felt like they were falling asleep. Within 1/2 hour I could not walk or feel my legs. I was 44. ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Thu, 6/5/08, Bob and Sue Mattis [EMAIL PROTECTED] wrote: From: Bob and Sue Mattis [EMAIL PROTECTED] Subject: RE: [TMIC] age at incident To: [EMAIL PROTECTED], [EMAIL PROTECTED], tmic-list@eskimo.com Date: Thursday, June 5, 2008, 5:33 PM July 28, 2000 is the DAY THAT WILL LIVE IN INFAMY. I was 49. Took 10 minutes to become paralyzed from the waist down (T12), and now one of the “walking wounded”. Sue M. Now 57 -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 9:50 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton -- Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
RE: [TMIC] age at incident
Boy can I relate. It was 3 years ago this past May,felt a tingling in my backbone, then legs got all rubbery felt like they were falling asleep. Within 1/2 hour I could not walk or feel my legs. I was 44. ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Thu, 6/5/08, Bob and Sue Mattis lt;[EMAIL PROTECTED]gt; wrote: From: Bob and Sue Mattis lt;[EMAIL PROTECTED]gt; Subject: RE: [TMIC] age at incident To: [EMAIL PROTECTED], [EMAIL PROTECTED], tmic-list@eskimo.com Date: Thursday, June 5, 2008, 5:33 PM July 28, 2000 is the DAY THAT WILL LIVE IN INFAMY. nbsp;I was 49.nbsp; Took 10 minutes to become paralyzed from the waist down (T12), and now one of the “walking wounded”. Sue M. Now 57 nbsp; -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 9:50 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident nbsp; I was 38. nbsp; Barbara H. http://barbarah.wordpress.com/ nbsp; nbsp; nbsp; In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. nbsp;A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton nbsp; Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
RE: [TMIC] age at incident
I guess I should have clarified a little better. I had been experiencing back pain for 3 or 4 days, but attributed it to working from sun-up to sun-down at our town's festival. Apparently there was more going on than I realized. From the point of excruciating pain in lower back to paralysis was 10 minutes. What led up to the onset might have been days in coming. Sue -Original Message- From: Alton Ryder [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 6:14 PM To: Bob and Sue Mattis Cc: TM List Subject: Re: [TMIC] age at incident Took 10 minutes to become paralyzed from the waist down (T12) Strictly speaking, neither of us have TM. Myelitis is an inflammation of the myelin; I don't believe any infection can have such a sudden onset. Moreover, my spinal fluid was clear of white blood cells that would have been marshaled to fight an inflammation. I, perhaps we, had an infarction of a branch artery within the cord. Alton
Re: [TMIC] age at incident
I was 51 - toes started tingling and numbness spread up to my chest. Now age 57 and among the walking wounded. And I would like to add that I am ever so thankful for each and every one in our TM family. Thank you, Jim, once again for all that you have done and continue to do for us all. Happy Birthday to all of the JUNE babies! Linda - Original Message - From: Alton Rydermailto:[EMAIL PROTECTED] To: TM Listmailto:tmic-list@eskimo.com Sent: Thursday, June 05, 2008 6:05 AM Subject: [TMIC] age at incident I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton
[TMIC] age at incident
I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton
Re: [TMIC] age at incident
I was 26 this past Feb. it was 20 years for me.. Although I did not find out what I had till 1994. Till then they said I was in the beginning stages of MS.. Kathy - Original Message - From: Tracey L. Black To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 8:55 AM Subject: RE: [TMIC] age at incident Ashlee was 11 Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 9:50 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton -- Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
RE: [TMIC] age at incident
ONE WEEK AFTER MY 50TH BIRTHDAY! ROB IN NEW JERSEY From: LadyOwl1961 [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 10:16 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] age at incident I was 26 this past Feb. it was 20 years for me.. Although I did not find out what I had till 1994. Till then they said I was in the beginning stages of MS.. Kathy - Original Message - From: Tracey L. Black mailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 8:55 AM Subject: RE: [TMIC] age at incident Ashlee was 11 Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 9:50 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302 .
Re: [TMIC] age at incident
So young. I was 58. I was dx'd with definitive ATM and 'possible' MS. My neuro said that statistically, the later in life you develop neurological disease, the lower your chances of developing full blown MS. I was never sure if he was trying to raise my morale or if he did have those statistics. Whatever the reason, it helped a lot with the initial shock of having to live life differently. Besides, the sun is shining. Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 9:50 AM Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton -- Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
Re: [TMIC] age at incident
I was 35. - Original Message - From: Diane To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 10:23 AM Subject: Re: [TMIC] age at incident So young. I was 58. I was dx'd with definitive ATM and 'possible' MS. My neuro said that statistically, the later in life you develop neurological disease, the lower your chances of developing full blown MS. I was never sure if he was trying to raise my morale or if he did have those statistics. Whatever the reason, it helped a lot with the initial shock of having to live life differently. Besides, the sun is shining. Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 9:50 AM Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
Re: [TMIC] age at incident
me to, I was 38, onset 1 year ago [EMAIL PROTECTED] wrote: I was 38. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] age at incident
I was 55, just retired from work and had just made the woman's tennis team. In the middle of the night. I too thought it was a pinched nerve. TM possible MS but I still have so much to be thankful for and each day is a gift. I can sit and hold my new grandson, hug my four grown kids and travel. Now I'm 62... a true baby boomer!!! My son is flying in from Phoenix tonight to ask his girlfriend for her hand in marriage!! He's going to surprise her at the top terrace of the Kennedy Center. He's 33 and she's 30 I am so excited.. Have a good day. Trudy On Thu, Jun 5, 2008 at 8:05 AM, Alton Ryder [EMAIL PROTECTED] wrote: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton
RE: [TMIC] age at incident
51 started it all, another hit at 54 Now diagnosis is MS BERNIE BUTCHER -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 11:09 AM To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident me to, I was 38, onset 1 year ago [EMAIL PROTECTED] wrote: I was 38. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302 )
[TMIC] age at incident
Terry was 55 and hit at T-7. He is still taking 7 mg of steroids a day. No cataracts, but his bones have deteriorated. He will be going in for his second shoulder replacement soon. Sandy **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] age at incident
I was in my early 20's when I was stricken I am 49 now..so I guess I have MS to look forward to hua? Debi T4 incomplete spastic paraplegic ---Original Message--- From: Diane Date: 6/5/2008 7:24:01 AM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident So young. I was 58. I was dx'd with definitive ATM and 'possible' MS. My neuro said that statistically, the later in life you develop neurological disease, the lower your chances of developing full blown MS. I was never sure if he was trying to raise my morale or if he did have those statistics. Whatever the reason, it helped a lot with the initial shock of having to live life differently. Besides, the sun is shining. Diane in Canada - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Thursday, June 05, 2008 9:50 AM Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. notbook_tile1.gifgardening2.gif
[TMIC] (TMIC) Age at Incident
Hi there, I took the liberty of copying and pasting this information from the TM Forum. I read that Forum everyday and try and answer some of the questions people new with TM ask. I am not sure if many of the 'oldsters' in this group do that. I found the Forum so very helpful when I first was out of the hospital. Heather in Calgary How old were you when you got TM? 0-9 years old 3% [ 10 ] 10-19 years old 12% [ 33 ] 20-29 years old 14% [ 38 ] 30-39 years old 27% [ 71 ] 40-49 years old 20% [ 53 ] 50-59 years old 16% [ 44 ] 60-69 years old 3% [ 8 ] 70-79 years old 0% [ 2 ] 80 years old or higher 1% [ 3 ] Total Votes : 262 vote_lcap.gifvoting_bar.gifvote_rcap.gif
RE: [TMIC] age at incident
It was right before my 40th b-day. On my 40th b-day I got a spinal tap. -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 11:09 AM To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident me to, I was 38, onset 1 year ago [EMAIL PROTECTED] wrote: I was 38. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
[TMIC] age at incident
I was 39.I will be 62 on 6/17. Cheryl
RE: [TMIC] age at incident
July 28, 2000 is the DAY THAT WILL LIVE IN INFAMY. I was 49. Took 10 minutes to become paralyzed from the waist down (T12), and now one of the walking wounded. Sue M. Now 57 -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 05, 2008 9:50 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] age at incident I was 38. Barbara H. http://barbarah.wordpress.com/ http://barbarah.wordpress.com/ In a message dated 6/5/2008 8:05:43 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I was 62 when I was nailed eleven years ago. A tiny infarction in the spinal cord at T9-10 dropped me in minutes. Barbara Alma said, I believe, that she was 48. Alton _ Get trade secrets for amazing burgers. Watch http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302 Cooking with Tyler Florence on AOL Food.
Re: [TMIC] age at incident
Took 10 minutes to become paralyzed from the waist down (T12) Strictly speaking, neither of us have TM. Myelitis is an inflammation of the myelin; I don't believe any infection can have such a sudden onset. Moreover, my spinal fluid was clear of white blood cells that would have been marshaled to fight an inflammation. I, perhaps we, had an infarction of a branch artery within the cord. Alton
Re: [TMIC] age at incident
I was 52. Akua -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/
[TMIC] Age at incident
I had recently turned Fifty. Jude **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)