Re: [TMIC] Is anyone here?
Glad to hear from u guys. Deb I can offer a few tips. I keep a calendar (carry it with me every where I go - all of my doctor appointments etc). In the back there are sheets where I keep notes from all my doctor visits so I can remember most of what they said. I also have sticky pads around the house so when I think of something I write it down. I use sticky so it doesn't hit the floor or pushed in trash. I eventually collect and combine, and stick in my calendar. I even keep 3/5 cards in my wallet in case something comes up when I am out and about. I can no longer go anywhere without help, can't cook (not that I did much anyway, ha ha) I just started new Rituxan treatment yesterday. Not sure how long before I am suppose to know difference. I had new lesions again on 9 may, this time thoracic. Do any of u keep having new lesions? It is so depressing. I also have to try and keep a log for my urologist. Had 2 Botox treatments and so far not working. Might send me to MUSC. I can't wait until I can be seen at Johns Hopkins -God I hope they come up with something. If I could just get around Independently, have enough breath and strength to get from my bedroom to the kitchen.I don't know how you are still working. You must be so exhausted. Please remember keeping your body happy is the most important. Not getting rest is the worse thing you can do. I spent a lot to time planning my daughters wedding. We had the wedding, my son,daughter-in-law and NEW grandson was here to include my son's new in-laws. After all was done,I slept all day Saturday and Sunday and never felt so rested. Had not done this since being sick. I was always doing something. Now I know this illness has priority over everything I plan to do. I will find a way to make things work. I will keep all in my prayers. Candy Sent from my iPad On May 18, 2012, at 11:43 PM, Janice Nichols jan...@centurytel.net wrote: Deb, I can’t believe you are still working.What do you do and how old are you? I am so sorry about all the pain you are in and really hope the meds, whatever they are, do the job. Keep posting to us and let us know how you are doing. Janice From: Deb Monteleone Sent: Friday, May 18, 2012 5:27 PM To: 'Janice Nichols' ; tmic-list@eskimo.com ; 'Robert Pall' Subject: RE: [TMIC] Is anyone here? Janice and all members, You hit the nail on the head, for me anyway. I am guilty of mostly reading and occasionally writing. I still go to my “in person” MS support group for mainly that reason, to help the newly diagnosed. I figure they were there for me, I do take a break every now and then. I have TM that was caused by MS. As most of this group I am in constant pain, both legs and feet. Whenever possible I take my shoes off because they cause my feet, then legs to hurt more. I haven’t worn socks in just over 3 years. Lucky me, from not wearing shoes around the house and still hanging on to a lot of extra weight I got Plantar Fasciitis in my left foot. It was like a knife going into my heel every step I took. Went and got a shot in the heel, then 3 months later another one, then 2 weeks later a 3rd one, hopefully 3rd is the charm. But since this started in December I now have to wear shoes ALL the time and a splint at night. Needless to say, my feet and legs were/are not happy wearing shoes so my symptoms (numb, needles, spasticity, etc.) have intensified, but the interesting thing is they are not as sharp. I am also in the process of eliminating my Avinza (morphine) from my arsenal of meds. Doctor gave me Oxicontin to help with any possible withdrawal, I am using only one a day instead of the 1 2x a day if necessary as prescribed. Never did drugs so not sure what withdrawal feels like. Tomorrow will be a full week, 2 days I did take the 2nd pill. I have felt odd at times, I guess edgy, confused and more pain. Hope I can continue without Morphine and will try to stop Oxicontin next week. Unfortunately I did find out that I need to ease the pain somewhat. Before I stopped the morphine, I was at work in so much pain, had to leave at 1:00, cried all the way home. The next morning when taking my morning meds, I noticed the days before was still there, I had gone to work unarmed. At least it explained it. I know this is long but wanted to mention how great this site has been for my husband to really understand TM. He reads all of the emails which helps him to believe and understand what I say is truly happening to me daily. As a human we tend to diminish a person’s symptoms over time but this groups emails keep it real. I thank you all for sharing on this site, it helps in so many ways and I apologize for not participating more. Not an excuse but after working all day I just wanted to read and not get involved. My bad. Make it a great day, Deb
RE: [TMIC] Is anyone here?
Hi, To address questions from a few of you: I am 55 for 10 more days. I work in Human Resources at a State University doing Excel macros, Word mail merges; oversee a document Imaging system among other things. I like my job; it gets me out of the house, keeps my brain challenged and is really my only form of socializing these days. I use a Roho cushion on my chair, sit next to a window to help regulate temperature (they just bought me a cooling vest to help), and I have a scooter for the afternoons or all day if I’m having a bad day. It is very tiring some days but I need to pay the bills and most important have health insurance. I can’t afford to pay cobra for 2 years (1,600 a month) until I would be eligible for Medicare as a disabled person. I would really like to work an hour or two less a day but that screws with my pension, social security and misc other things at the job. It might come to that eventually, take it as it comes. I got TM June 2008. Had to learn how to walk again, I did, I still concentrate on walking and especially steps to help add any improvement. I use a cane, but I bought a really beautiful Cocobolo wood cane so I love using it and I think people see the beauty of the wood not a handicapped person. I sleep really long and late on the weekends; my husband does 98% of the cooking, laundry and cleaning so that really helps me be able to work. If I didn’t have him there is no way I could work full time or any time. I know I should take better care to get more sleep, stretch, etc but I actually exercise at work by just going to the bathroom or lunchroom as they are very far from my desk. When at home I really don’t walk far at all. I use my phone for a calendar and notes, although the sticky notes around the house is good as my phone is off or in bedroom when home. I did get a tablet for work so I can organize all my notes etc. for each project. I feel kind of silly when I can’t remember things when speaking with others. Now I will have it all in one place that I can look up quickly, of course I still have to finish figuring out how to organize it to be useful. What is a Rituxan treatment? If you have new lesions, do you also have MS like I do, I thought for the most part TM was a one hit event. My husband is great about reading the emails. As he does most of the house stuff I know he would eventually get a little resentful as most humans would. The emails seem to keep it in his mind what I am going through. The important part is, it is not always me trying to explain it, which I think naturally loses effect after a while. If you can get your family or friends to read a few of these emails (the ones that show others have same problems as you) I think it could help a lot. I have also sent out my own email to friends and family on occasion as an update of my life (kind of like what some people put in xmas cards) except it’s not xmas. It helps do exactly what Iris said, it’s not for them to feel sorry for us - just understand why we are not up for many of the activities we previously took for granted. It was weird; a few days ago I was watching 3 different people walking down the hall at work. I thought, look, they have no idea how great it is to do such a simple thing and not even have to think about how to do it. I wasn’t mad, it just amazes me how much we all take for granted until something happens to you. I have had one real exasperation where I needed steroids, although I had many maybe I overdid it and that’s why my symptoms are so bad. Being an always on the go person before TM it is just ridiculous to me what over doing it is. Since I got TM/MS I wondered how you would know the difference between over doing, an urinary tract infection (have had my share) or a real relapse/exasperation. Now I know, which is kind of good in a sad way. Hope I covered it all. Thank you for caring and being out there to talk to. I agree that this site was better before people left for facebook. I have no time for facebook but I’m sure it’s great for those at home, it’s more like having a personal real time conversation, but I do miss the larger quantity of emails here. Sometimes I don’t read these emails for five days, but when I’m ready they are waiting for me. Make it a great day, Deb From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Friday, May 18, 2012 11:44 PM To: Deb Monteleone; tmic-list@eskimo.com; 'Robert Pall' Subject: Re: [TMIC] Is anyone here? Deb, I can’t believe you are still working.What do you do and how old are you? I am so sorry about all the pain you are in and really hope the meds, whatever they are, do the job. Keep posting to us and let us know how you are doing. Janice From: mailto:aiki...@optonline.net Deb Monteleone Sent: Friday, May 18, 2012 5:27 PM To: mailto:jan...@centurytel.net 'Janice Nichols' ; mailto:tmic-list
Re: [TMIC] Is anyone here?
Deb, I can’t believe you are still working.What do you do and how old are you? I am so sorry about all the pain you are in and really hope the meds, whatever they are, do the job. Keep posting to us and let us know how you are doing. Janice From: Deb Monteleone Sent: Friday, May 18, 2012 5:27 PM To: 'Janice Nichols' ; tmic-list@eskimo.com ; 'Robert Pall' Subject: RE: [TMIC] Is anyone here? Janice and all members, You hit the nail on the head, for me anyway. I am guilty of mostly reading and occasionally writing. I still go to my “in person” MS support group for mainly that reason, to help the newly diagnosed. I figure they were there for me, I do take a break every now and then. I have TM that was caused by MS. As most of this group I am in constant pain, both legs and feet. Whenever possible I take my shoes off because they cause my feet, then legs to hurt more. I haven’t worn socks in just over 3 years. Lucky me, from not wearing shoes around the house and still hanging on to a lot of extra weight I got Plantar Fasciitis in my left foot. It was like a knife going into my heel every step I took. Went and got a shot in the heel, then 3 months later another one, then 2 weeks later a 3rd one, hopefully 3rd is the charm. But since this started in December I now have to wear shoes ALL the time and a splint at night. Needless to say, my feet and legs were/are not happy wearing shoes so my symptoms (numb, needles, spasticity, etc.) have intensified, but the interesting thing is they are not as sharp. I am also in the process of eliminating my Avinza (morphine) from my arsenal of meds. Doctor gave me Oxicontin to help with any possible withdrawal, I am using only one a day instead of the 1 2x a day if necessary as prescribed. Never did drugs so not sure what withdrawal feels like. Tomorrow will be a full week, 2 days I did take the 2nd pill. I have felt odd at times, I guess edgy, confused and more pain. Hope I can continue without Morphine and will try to stop Oxicontin next week. Unfortunately I did find out that I need to ease the pain somewhat. Before I stopped the morphine, I was at work in so much pain, had to leave at 1:00, cried all the way home. The next morning when taking my morning meds, I noticed the days before was still there, I had gone to work unarmed. At least it explained it. I know this is long but wanted to mention how great this site has been for my husband to really understand TM. He reads all of the emails which helps him to believe and understand what I say is truly happening to me daily. As a human we tend to diminish a person’s symptoms over time but this groups emails keep it real. I thank you all for sharing on this site, it helps in so many ways and I apologize for not participating more. Not an excuse but after working all day I just wanted to read and not get involved. My bad. Make it a great day, Deb From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Thursday, May 17, 2012 9:13 AM To: tmic-list@eskimo.com; Robert Pall Subject: Re: [TMIC] Is anyone here? Still here! It seems to be another “quiet” time. At night after going to bed, I seem to think of things I want to ask the group, but then with my brilliant memory, I forget by morning. We have had some new people join the group lately, which is good. I think there are many of us that still read whatever comes across our website, but don’t bother to get into it either because they are subjects that have been discussed long ago and they put their 2 cents worth in at that time, or feel they have nothing to offer. We really need to respond more for the new ones just joined and the new ones need to jump in and add to the conversation too.This is a great website with terrific people and we need to keep it going with comments and questions and responses. Janice From: Robert Pall Sent: Thursday, May 17, 2012 7:33 AM To: tmic-list@eskimo.com Subject: [TMIC] Is anyone here? Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
Still here! :-) It seems like the list here goes pretty quiet for several days in a row and then will have a flurry of mail for a few days. I'm about the same -- walking, but not always steady, balance issues, bathroom issues, fatigue and muscle spasms, but overall doing well. Barbara H. http://barbarah.wordpress.com On Thu, May 17, 2012 at 8:33 AM, Robert Pall robthe...@aol.com wrote: Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
Rob we are still here. At least I know I am. It seems everyone has gone to the several Face Book groups like Transverse Myelitis Folks. I know all the posts can be a bit much at times.. I am doing the best I can hope you are too. Patti On Thu, May 17, 2012 at 7:33 AM, Robert Pall robthe...@aol.com wrote: Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
RE: [TMIC] Is anyone here?
Getting you loud clear on Long Island Rob Barney From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Thursday, May 17, 2012 9:13 AM To: tmic-list@eskimo.com; Robert Pall Subject: Re: [TMIC] Is anyone here? Still here! It seems to be another quiet time. At night after going to bed, I seem to think of things I want to ask the group, but then with my brilliant memory, I forget by morning. We have had some new people join the group lately, which is good. I think there are many of us that still read whatever comes across our website, but don't bother to get into it either because they are subjects that have been discussed long ago and they put their 2 cents worth in at that time, or feel they have nothing to offer. We really need to respond more for the new ones just joined and the new ones need to jump in and add to the conversation too.This is a great website with terrific people and we need to keep it going with comments and questions and responses. Janice From: Robert Pallmailto:robthe...@aol.com Sent: Thursday, May 17, 2012 7:33 AM To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Subject: [TMIC] Is anyone here? Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
Is anyone here? Actually, some people are outside gardening, some people are working on their boats(getting them ready to be launched for the season), some people have been traveling to and from a graduation, some have been just sitting outside listening to the birds, grass and trees singing songs of spring.. I could go on, and on. pH
Re: [TMIC] Is anyone here?
Hi Rob, I'm still here,but seldom get posts from the tmic site. Sadly,it seems almost everyone has moved to facebook. I'm not a fan of that site,so I just don't post much anymore. If I post on tmic, I get few replies. I do wish facebook would go away (fat chance of that) so we could have our group back. I miss everyone! There was a nice feel to our tmic group. I hope you are doing okay. Cheryl From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Thursday, May 17, 2012 8:33 AM Subject: [TMIC] Is anyone here? Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
There is a specific group on Facebook called People Living with Transverse Myelitis that you can join. it's like this, but you can chat with people live without emails, and also share as we do here. I just got the invite on Facebook, or you can join and search People Living with Transverse Myelitis and click 'join' and it takes about a minute to be accepted. Looks interesting to me, and can't wait to chat with folks one on one without waiting hours or days for a reply. Might want to check it out. peace, Bernie in Texas
Re: [TMIC] Is anyone here?
Hi, I am still here. I have been busy going to the nursing home where my mom is, with Alzheimers. I also spend a lot of time pertaining to my dad, who is on his own but needs help with different areas of his life. It is alway great to hear from those on this list, asking questions, seeking companionship, etc. I have been here for about 8 years. Gary in Niles, MI - Original Message - From: Barbara H. To: Robert Pall Cc: tmic-list@eskimo.com Sent: Thursday, May 17, 2012 8:54 AM Subject: Re: [TMIC] Is anyone here? Still here! :-) It seems like the list here goes pretty quiet for several days in a row and then will have a flurry of mail for a few days. I'm about the same -- walking, but not always steady, balance issues, bathroom issues, fatigue and muscle spasms, but overall doing well. Barbara H. http://barbarah.wordpress.com On Thu, May 17, 2012 at 8:33 AM, Robert Pall robthe...@aol.com wrote: Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
Hi, yes I'm still here although I'm never quite sure whether I should be. I seem to be the only UK contributor and would like to say thanks everyone for including me. I miss the regular emails and have joined Facebook with a view to making contact there. Iris UK On Thu, May 17, 2012 at 3:10 PM, Gary Thomas gbthomas8...@sbcglobal.netwrote: ** Hi, I am still here. I have been busy going to the nursing home where my mom is, with Alzheimers. I also spend a lot of time pertaining to my dad, who is on his own but needs help with different areas of his life. It is alway great to hear from those on this list, asking questions, seeking companionship, etc. I have been here for about 8 years. Gary in Niles, MI - Original Message - *From:* Barbara H. barbara...@gmail.com *To:* Robert Pall robthe...@aol.com *Cc:* tmic-list@eskimo.com *Sent:* Thursday, May 17, 2012 8:54 AM *Subject:* Re: [TMIC] Is anyone here? Still here! :-) It seems like the list here goes pretty quiet for several days in a row and then will have a flurry of mail for a few days. I'm about the same -- walking, but not always steady, balance issues, bathroom issues, fatigue and muscle spasms, but overall doing well. Barbara H. http://barbarah.wordpress.com On Thu, May 17, 2012 at 8:33 AM, Robert Pall robthe...@aol.com wrote: Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] Is anyone here?
Hi Frank, Wish I could do any of those. Can't even sit outside for more than 10 minutes since any changes in type of chair causes increased spasms and even tighter banding. I'm happy for those that can go out and enjoy themselves. Cheryl From: fr...@franksheldon.com fr...@franksheldon.com To: Butcher, Bernie (SFS) bernie.butc...@honeywell.com; Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com; Robert Pall robthe...@aol.com Sent: Thursday, May 17, 2012 9:25 AM Subject: Re: [TMIC] Is anyone here? Is anyone here? Actually, some people are outside gardening, some people are working on their boats(getting them ready to be launched for the season), some people have been traveling to and from a graduation, some have been just sitting outside listening to the birds, grass and trees singing songs of spring.. I could go on, and on. pH
Re: [TMIC] Is anyone here?
pH, I hope you are able to do all you mentioned.I find myself outside as much as possible too - until it gets hot that is! Janice From: fr...@franksheldon.com Sent: Thursday, May 17, 2012 8:25 AM To: Butcher, Bernie (SFS) ; Janice Nichols ; tmic-list@eskimo.com ; Robert Pall Subject: Re: [TMIC] Is anyone here? Is anyone here? Actually, some people are outside gardening, some people are working on their boats(getting them ready to be launched for the season), some people have been traveling to and from a graduation, some have been just sitting outside listening to the birds, grass and trees singing songs of spring.. I could go on, and on. pH
Re: [TMIC] Is anyone here?
Candy, What kind of treatment is rutaxin? What will it do for you and how has TM left you? Janice From: Candy Sent: Thursday, May 17, 2012 11:33 AM To: rn11...@yahoo.com Cc: Robert Pall ; tmic Subject: Re: [TMIC] Is anyone here? Hi. I am a new member and finding it very hard to find anyone using the actual website. I do not like Facebook. Was hoping the forum used on the site would stay current with folks given their experiences and treatment. I use to blond to a site for sarcoidosis called team inspire. they have a great set up for communicating and being able to talk with an individual off line. Having new health issues are scary and hope to find others who have similar problems. I am sitting at my infusion center getting my first rutaxin treatment. God bless all Candy Sent from my iPad On May 17, 2012, at 9:32 AM, rn11...@yahoo.com rn11...@yahoo.com wrote: Hi Rob, I'm still here,but seldom get posts from the tmic site. Sadly,it seems almost everyone has moved to facebook. I'm not a fan of that site,so I just don't post much anymore. If I post on tmic, I get few replies. I do wish facebook would go away (fat chance of that) so we could have our group back. I miss everyone! There was a nice feel to our tmic group. I hope you are doing okay. Cheryl -- From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Thursday, May 17, 2012 8:33 AM Subject: [TMIC] Is anyone here? Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey =
Re: [TMIC] Is anyone here?
I have been on the Facebook TM rooms and found much too much chatting and not enough TM info. My mailbox was constantly filled with just chit chat. I hated when this happened in our group and I still do. I like to hear how people are doing but I do not want qan hour by hour dialogue. Sorry but the facebook group does not work for me! Rob in New Jersey -Original Message- From: kevin weilacher hwyfli...@yahoo.com To: Bernie Pelow bpe...@austin.rr.com; rn11974 rn11...@yahoo.com; TMIC tmic-list@eskimo.com Sent: Thu, May 17, 2012 5:31 pm Subject: Re: [TMIC] Is anyone here? Actually, The best Facebook group is the Transverse Myelitis Folks group... https://www.facebook.com/groups/TMFolk/ That is where you'll find the most activity and the majority of the old timers that were on this group It is a closed group meaning that only people that are members of that group can see what it being posted, that way we can chat about some of the more personal things regarding TM and not worry about the rest of your Facebook friends reading about it... and also, the group welcomes family members and caregivers with open arms... If they are interested in being active in someones dealings with TM, then they are welcome to join in and see for themselves what we are going through. I hope to see some of you there.. Kevin From: Bernie Pelow bpe...@austin.rr.com To: rn11...@yahoo.com rn11...@yahoo.com; TMIC tmic-list@eskimo.com Sent: Thursday, May 17, 2012 9:56 AM Subject: Re: [TMIC] Is anyone here? There is a specificgroup on Facebook called People Living with TransverseMyelitis that you can join. it's like this, but you can chat with people live without emails, and also share as we do here. I just got the invite on Facebook, or you can join and search People Living with Transverse Myelitis and click 'join' and it takes about aminute to be accepted. Looks interesting to me, and can't waitto chat with folks one on one without waiting hours or days fora reply. Might want to check it out. peace, Bernie in Texas
Re: [TMIC] Is anyone here?
Granted...the Facebook groups aren't for everyone...but a large majority of people are actively seeking out the groups now In the TM Folks group, the majority of the info posted, is TM related...and of course, there is the occasional post that takes a different turn off subject. Personally, I like off subject posts on occasion.it's kind of nice to hear about something non TM related once in awhile. It takes my mind off of the TM and gives me something new to think about... I don't like dwelling on TM 24/7 so when there is something new that's posted, it's kind of refreshing. As far as a person's mailbox getting filled upthat doesn't happen anymore. Facebook changed that. You now have to sign up to get daily posts in your mailbox Prior to that, you could set the parameters to not receive the posts to your mailbox. The way the groups are set up nowFacebook is a great way to network with others in your own area and also to go into the chat room and chat real time. It's all personal preferenceand Facebook works for me... From: Robert Pall robthe...@aol.com To: hwyfli...@yahoo.com; tmic-list@eskimo.com Sent: Thursday, May 17, 2012 7:11 PM Subject: Re: [TMIC] Is anyone here? I have been on the Facebook TM rooms and found much too much chatting and not enough TM info. My mailbox was constantly filled with just chit chat. I hated when this happened in our group and I still do. I like to hear how people are doing but I do not want qan hour by hour dialogue. Sorry but the facebook group does not work for me! Rob in New Jersey -Original Message- From: kevin weilacher hwyfli...@yahoo.com To: Bernie Pelow bpe...@austin.rr.com; rn11974 rn11...@yahoo.com; TMIC tmic-list@eskimo.com Sent: Thu, May 17, 2012 5:31 pm Subject: Re: [TMIC] Is anyone here? Actually, The best Facebook group is the Transverse Myelitis Folks group... https://www.facebook.com/groups/TMFolk/ That is where you'll find the most activity and the majority of the old timers that were on this group It is a closed group meaning that only people that are members of that group can see what it being posted, that way we can chat about some of the more personal things regarding TM and not worry about the rest of your Facebook friends reading about it... and also, the group welcomes family members and caregivers with open arms... If they are interested in being active in someones dealings with TM, then they are welcome to join in and see for themselves what we are going through. I hope to see some of you there.. Kevin From: Bernie Pelow bpe...@austin.rr.com To: rn11...@yahoo.com rn11...@yahoo.com; TMIC tmic-list@eskimo.com Sent: Thursday, May 17, 2012 9:56 AM Subject: Re: [TMIC] Is anyone here? There is a specific group on Facebook called People Living with Transverse Myelitis that you can join. it's like this, but you can chat with people live without emails, and also share as we do here. I just got the invite on Facebook, or you can join and search People Living with Transverse Myelitis and click 'join' and it takes about a minute to be accepted. Looks interesting to me, and can't wait to chat with folks one on one without waiting hours or days for a reply. Might want to check it out. peace, Bernie in Texas
