Re: [TMIC] is this an M.S. problem?
Diane, My daughter gets fevers of unknown origin, as we have been told to call them. For us, over the years we have learned that her level of injury (now c5) affects her thermostat and she cannto regulate her temp. She did not sweat for four to five years and we always had to assist in getting her temp down externally. Geting her shoes and socks off, spraying her with water, getting her under fans, etc...it helps a lot but if she gets too cold too fast that is also an issue so there needs to be a balance or there appears to be too much input. The same is true for the cold, we need to warm her externally before her body catches up. She began sweating in her feet about 6-8 months ago. When she was first diagnosed she was only seven months and she was in the hospital for about 6 weeks and we could not go home with a fever. We used to give her a cold washcloth to cool her off and it became so habitual that she still asks to sleep with one at night, six years later. She especially gets hot at night so she finds it helpful. Most of her fevers we found were being addressed through the use of these external means. But she has had real fevers too where she has needed medicine. IT took us a long time to be able to differentiate. As they both would register as fevers on a thermometer. To this day there are times we start with external means and see how she responds. Hope that helps. Mary Anne [EMAIL PROTECTED] wrote: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - *From:* randy rankin [EMAIL PROTECTED] *To:* TM Group tmic-list@eskimo.com *Sent:* Tuesday, October 14, 2008 9:29 PM *Subject:* [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . -- Mary Anne Egan The Stettler Group, Inc. [EMAIL PROTECTED] (908) 806-3001 (908) 806-3113 Fax
Re: [TMIC] is this an M.S. problem?
Diane, I also forgot to mention..you said something about your thermostat being screwed up..and yes..I'm right there with you on that too. Anymore I never know if I'm going to be too hot or cold when I go to bed. I seem to sweat okay for the most part...but now usually when I go to bed I have to leave my left leg out from under the covers. My left side is my worst side. Before TM I was one that always had to be covered as I was usually always cool, but anymore...there is no rhyme or reason with my thermostat either. Kevin - Original Message From: Mary Anne Egan [EMAIL PROTECTED] To: Diane [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; TM Group tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:29:53 AM Subject: Re: [TMIC] is this an M.S. problem? Diane, My daughter gets fevers of unknown origin, as we have been told to call them. For us, over the years we have learned that her level of injury (now c5) affects her thermostat and she cannto regulate her temp. She did not sweat for four to five years and we always had to assist in getting her temp down externally. Geting her shoes and socks off, spraying her with water, getting her under fans, etc...it helps a lot but if she gets too cold too fast that is also an issue so there needs to be a balance or there appears to be too much input. The same is true for the cold, we need to warm her externally before her body catches up. She began sweating in her feet about 6-8 months ago. When she was first diagnosed she was only seven months and she was in the hospital for about 6 weeks and we could not go home with a fever. We used to give her a cold washcloth to cool her off and it became so habitual that she still asks to sleep with one at night, six years later. She especially gets hot at night so she finds it helpful. Most of her fevers we found were being addressed through the use of these external means. But she has had real fevers too where she has needed medicine. IT took us a long time to be able to differentiate. As they both would register as fevers on a thermometer. To this day there are times we start with external means and see how she responds. Hope that helps. Mary Anne [EMAIL PROTECTED] wrote: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - From: randy rankin To: TM Group Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . -- Mary Anne Egan The Stettler Group, Inc. [EMAIL PROTECTED] (908) 806-3001 (908) 806-3113 Fax
Re: [TMIC] is this an M.S. problem?
Kevin and All, I was interested in what you said regarding always being cool or cold before TM. That's the way I was before TM. I also ran unusual low blood pressure and my core temp would be anywhere from 95.6 to 96. I wonder if this was an indication. Before TM, I hardly ever sweated unless I was out in the sun on very warm days. Now, if I'm doing anything here in my air conditioned house, I start sweating like I was digging ditches in 120 degree weather. But, I only sweat from my shoulders up. The more my head sweats, the more the sensation of my feet in an ice bucket. I wish we all could go in and have our wiring replaced! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: kevin weilacher [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:33:09 AM (GMT-0500) America/Bogota Subject: Re: [TMIC] is this an M.S. problem? Diane, I also forgot to mention..you said something about your thermostat being screwed up..and yes..I'm right there with you on that too. Anymore I never know if I'm going to be too hot or cold when I go to bed. I seem to sweat okay for the most part...but now usually when I go to bed I have to leave my left leg out from under the covers. My left side is my worst side. Before TM I was one that always had to be covered as I was usually always cool, but anymore...there is no rhyme or reason with my thermostat either. Kevin - Original Message From: Mary Anne Egan [EMAIL PROTECTED] To: Diane [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; TM Group tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:29:53 AM Subject: Re: [TMIC] is this an M.S. problem? Diane, My daughter gets fevers of unknown origin, as we have been told to call them. For us, over the years we have learned that her level of injury (now c5) affects her thermostat and she cannto regulate her temp. She did not sweat for four to five years and we always had to assist in getting her temp down externally. Geting her shoes and socks off, spraying her with water, getting her under fans, etc...it helps a lot but if she gets too cold too fast that is also an issue so there needs to be a balance or there appears to be too much input. The same is true for the cold, we need to warm her externally before her body catches up. She began sweating in her feet about 6-8 months ago. When she was first diagnosed she was only seven months and she was in the hospital for about 6 weeks and we could not go home with a fever. We used to give her a cold washcloth to cool her off and it became so habitual that she still asks to sleep with one at night, six years later. She especially gets hot at night so she finds it helpful. Most of her fevers we found were being addressed through the use of these external means. But she has had real fevers too where she has needed medicine. IT took us a long time to be able to differentiate. As they both would register as fevers on a thermometer. To this day there are times we start with external means and see how she responds. Hope that helps. Mary Anne [EMAIL PROTECTED] wrote: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - From: randy rankin To: TM Group Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities
Re: [TMIC] is this an M.S. problem?
Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - From: randy rankin To: TM Group Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem .
RE: [TMIC] is this an M.S. problem?
Hi Randy - I was diagnosed with TM in 2002 and then in Nov 2007 I started having vision problems - I saw double if I looked to my right - after an MRI of my head, it was changed to MS. But don't go by me, everyone's different - you should consult with your neurologist right away. I think it was MS from the beginning I and I wish they diagnosed it in 2002 - that way I could have started on the MS med copaxone then, and it COULD have prevented the attacks I have had since BERNARD BUTCHER From: randy rankin [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 14, 2008 9:29 PM To: TM Group Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem .
Re: [TMIC] is this an M.S. problem?
Hi Candy, Well...I don't know...I've always been a bit of a cold blooded person...I mean ever since I can remember..and my blood pressure has always been pretty much spot on...120/60 give or take a couple pointsso I don't know. You mention about the head sweating...geez...don't I know.. At night sometimes...I wake up and my head is drenched... or if I do something strenuous around the house (like sweep the kitchen..)my forehead drips like someone sprayed me with water..now, I don't really notice much sweating from the waist down..even when I have to wear diapers..I get a little warm around the waist but not to the point where I sweat.. Yes...I'd be up for a rewiring...strip out all the old and replace with some new.. Take care, Kevin - Original Message From: CANDIS KALLEY [EMAIL PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 12:42:19 PM Subject: Re: [TMIC] is this an M.S. problem? Kevin and All, I was interested in what you said regarding always being cool or cold before TM. That's the way I was before TM. I also ran unusual low blood pressure and my core temp would be anywhere from 95.6 to 96. I wonder if this was an indication. Before TM, I hardly ever sweated unless I was out in the sun on very warm days. Now, if I'm doing anything here in my air conditioned house, I start sweating like I was digging ditches in 120 degree weather. But, I only sweat from my shoulders up. The more my head sweats, the more the sensation of my feet in an ice bucket. I wish we all could go in and have our wiring replaced! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: kevin weilacher [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:33:09 AM (GMT-0500) America/Bogota Subject: Re: [TMIC] is this an M.S. problem? Diane, I also forgot to mention..you said something about your thermostat being screwed up..and yes..I'm right there with you on that too. Anymore I never know if I'm going to be too hot or cold when I go to bed. I seem to sweat okay for the most part...but now usually when I go to bed I have to leave my left leg out from under the covers. My left side is my worst side. Before TM I was one that always had to be covered as I was usually always cool, but anymore...there is no rhyme or reason with my thermostat either. Kevin - Original Message From: Mary Anne Egan [EMAIL PROTECTED] To: Diane [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; TM Group tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:29:53 AM Subject: Re: [TMIC] is this an M.S. problem? Diane, My daughter gets fevers of unknown origin, as we have been told to call them. For us, over the years we have learned that her level of injury (now c5) affects her thermostat and she cannto regulate her temp. She did not sweat for four to five years and we always had to assist in getting her temp down externally. Geting her shoes and socks off, spraying her with water, getting her under fans, etc...it helps a lot but if she gets too cold too fast that is also an issue so there needs to be a balance or there appears to be too much input. The same is true for the cold, we need to warm her externally before her body catches up. She began sweating in her feet about 6-8 months ago. When she was first diagnosed she was only seven months and she was in the hospital for about 6 weeks and we could not go home with a fever. We used to give her a cold washcloth to cool her off and it became so habitual that she still asks to sleep with one at night, six years later. She especially gets hot at night so she finds it helpful. Most of her fevers we found were being addressed through the use of these external means. But she has had real fevers too where she has needed medicine. IT took us a long time to be able to differentiate. As they both would register as fevers on a thermometer. To this day there are times we start with external means and see how she responds. Hope that helps. Mary Anne [EMAIL PROTECTED] wrote: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - From: randy rankin To: TM Group
Re: [TMIC] is this an M.S. problem?
Hello my friend, Since June 3, 2002, I have spiked fevers on almost a daily basis and yet deep inside my body I feel like I am made of ice water. I have not perspired since the onset, but when I am over-tired or late in changing my fentanyl patch, I have bouts of Autonomic-dysreflexia and the only thing that helps then is valium. It sounds as though broken thermostats go hand in hand with Transverse Myelitis. My basic temperature is 97.2* Even in the hospital with sepsis (blood infection) I rarely had a temp of over 98*. Isn't that crazy? Most people would be spiking super high temperatures. On to other news...Now it is my turn to ask you for your Prayers and good thoughts for Pam as she is in the hospital unable to move her legs. She told me that she woke up feeling kind of funny, but went ahead and got ready for her day when all of a sudden her hips and back began hurting terribly. She lay down on the bed and before she knew it she couldn't move her legs. Neighbors took her to the hospital where she was admitted right away. This has happened to her before and brings to mind the question, Is there such a thing as remitting/recurring TM, or does she have MS? Pam's neurologist says it is TM...there are no lesions on her brain. I need to go as I am having a vancomycin IV treatment and it is about ready to finish. I have to watch the volume of medicine in the tubing to avoid getting air in my pic-line. That would do me in for sure. Anyone who needs Pam's phone number or address can email either Ella or me. I can't reach my notebook where it is written down or I would give it to you now. Peace and Prayers, Jude In a message dated 10/15/2008 7:29:18 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada - Original Message - From: _randy rankin_ (mailto:[EMAIL PROTECTED]) To: _TM Group_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
Re: [TMIC] is this an M.S. problem?
HA!!! Diane, you are a breath of fresh air to all of us!!! Jeanne in Dayton who has this problem with freezing, sweating, and shivering sometimes all at the same time
Re: [TMIC] is this an M.S. problem?
Oh Diane you have a philosphy similiar to mine. When someone asks me how I'm doing I answer Anytime I can wake up, get up and move it's a good day but some days are better than others! Candy K. - Original Message - From: Diane [EMAIL PROTECTED] To: CANDIS KALLEY [EMAIL PROTECTED], tmic-list tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 6:10:15 PM (GMT-0500) America/Bogota Subject: Re: [TMIC] is this an M.S. problem? Thanks to everyone who replied on the issue of fevers. How weird and wonderful we are !! I too have always had low blood pressure and a normal body temp of 96.8. My body face only get slightly damp when I run a fever but the back of my head runs like a dripping tap I have to wear a towel around my neck to catch it. My hubby keeps telling people there's never a dull moment with me. Guys, we breathing, we're thinking, we're talking. Life is good. Diane in Canada - Original Message - From: CANDIS KALLEY To: tmic-list Sent: Wednesday, October 15, 2008 12:42 PM Subject: Re: [TMIC] is this an M.S. problem? Kevin and All, I was interested in what you said regarding always being cool or cold before TM. That's the way I was before TM. I also ran unusual low blood pressure and my core temp would be anywhere from 95.6 to 96. I wonder if this was an indication. Before TM, I hardly ever sweated unless I was out in the sun on very warm days. Now, if I'm doing anything here in my air conditioned house, I start sweating like I was digging ditches in 120 degree weather. But, I only sweat from my shoulders up. The more my head sweats, the more the sensation of my feet in an ice bucket. I wish we all could go in and have our wiring replaced! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: kevin weilacher [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:33:09 AM (GMT-0500) America/Bogota Subject: Re: [TMIC] is this an M.S. problem? Diane, I also forgot to mention..you said something about your thermostat being screwed up..and yes..I'm right there with you on that too. Anymore I never know if I'm going to be too hot or cold when I go to bed. I seem to sweat okay for the most part...but now usually when I go to bed I have to leave my left leg out from under the covers. My left side is my worst side. Before TM I was one that always had to be covered as I was usually always cool, but anymore...there is no rhyme or reason with my thermostat either. Kevin - Original Message From: Mary Anne Egan [EMAIL PROTECTED] To: Diane [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; TM Group tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:29:53 AM Subject: Re: [TMIC] is this an M.S. problem? Diane, My daughter gets fevers of unknown origin, as we have been told to call them. For us, over the years we have learned that her level of injury (now c5) affects her thermostat and she cannto regulate her temp. She did not sweat for four to five years and we always had to assist in getting her temp down externally. Geting her shoes and socks off, spraying her with water, getting her under fans, etc...it helps a lot but if she gets too cold too fast that is also an issue so there needs to be a balance or there appears to be too much input. The same is true for the cold, we need to warm her externally before her body catches up. She began sweating in her feet about 6-8 months ago. When she was first diagnosed she was only seven months and she was in the hospital for about 6 weeks and we could not go home with a fever. We used to give her a cold washcloth to cool her off and it became so habitual that she still asks to sleep with one at night, six years later. She especially gets hot at night so she finds it helpful. Most of her fevers we found were being addressed through the use of these external means. But she has had real fevers too where she has needed medicine. IT took us a long time to be able to differentiate. As they both would register as fevers on a thermometer. To this day there are times we start with external means and see how she responds. Hope that helps. Mary Anne [EMAIL PROTECTED] wrote: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell taste are also affected. I get pins needles in my face sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer
Re: [TMIC] is this an M.S. problem?
I have had strange sensations with my sense of smell. Sometimes I smell things similar to the smell of smoke. First I thought it was coming from my air conditioner in Florida but when I got to NY it was the same. Neuro sent me for brain eeg and mri. Both showed nothing. I guess I still have a brain but the sensations are still there but not as much. In a message dated 10/14/2008 9:29:46 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
