Oh Diane you have a philosphy similiar to mine. When someone asks me how I'm doing I answer "Anytime I can wake up, get up and move it's a good day but some days are better than others!"
Candy K. ----- Original Message ----- From: "Diane" <[EMAIL PROTECTED]> To: "CANDIS KALLEY" <[EMAIL PROTECTED]>, "tmic-list" <tmic-list@eskimo.com> Sent: Wednesday, October 15, 2008 6:10:15 PM (GMT-0500) America/Bogota Subject: Re: [TMIC] is this an M.S. problem? Thanks to everyone who replied on the issue of fevers. How weird and wonderful we are !! I too have always had low blood pressure and a normal body temp of 96.8. My body & face only get slightly damp when I run a fever but the back of my head runs like a dripping tap & I have to wear a towel around my neck to catch it. My hubby keeps telling people there's never a dull moment with me. Guys, we breathing, we're thinking, we're talking. Life is good. Diane in Canada ----- Original Message ----- From: CANDIS KALLEY To: tmic-list Sent: Wednesday, October 15, 2008 12:42 PM Subject: Re: [TMIC] is this an M.S. problem? Kevin and All, I was interested in what you said regarding always being cool or cold before TM. That's the way I was before TM. I also ran unusual low blood pressure and my core temp would be anywhere from 95.6 to 96. I wonder if this was an indication. Before TM, I hardly ever sweated unless I was out in the sun on very warm days. Now, if I'm doing anything here in my air conditioned house, I start sweating like I was digging ditches in 120 degree weather. But, I only sweat from my shoulders up. The more my head sweats, the more the sensation of my feet in an ice bucket. I wish we all could go in and have our wiring replaced! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "kevin weilacher" <[EMAIL PROTECTED]> To: tmic-list@eskimo.com Sent: Wednesday, October 15, 2008 11:33:09 AM (GMT-0500) America/Bogota Subject: Re: [TMIC] is this an M.S. problem? Diane, I also forgot to mention..you said something about your thermostat being screwed up..and yes..I'm right there with you on that too. Anymore I never know if I'm going to be too hot or cold when I go to bed. I seem to sweat okay for the most part...but now usually when I go to bed I have to leave my left leg out from under the covers. My left side is my worst side. Before TM I was one that always had to be covered as I was usually always cool, but anymore...there is no rhyme or reason with my thermostat either. Kevin ----- Original Message ---- From: Mary Anne Egan <[EMAIL PROTECTED]> To: Diane <[EMAIL PROTECTED]> Cc: [EMAIL PROTECTED]; TM Group <tmic-list@eskimo.com> Sent: Wednesday, October 15, 2008 11:29:53 AM Subject: Re: [TMIC] is this an M.S. problem? Diane, My daughter gets "fevers of unknown origin", as we have been told to call them. For us, over the years we have learned that her level of injury (now c5) affects her thermostat and she cannto regulate her temp. She did not sweat for four to five years and we always had to assist in getting her temp down externally. Geting her shoes and socks off, spraying her with water, getting her under fans, etc...it helps a lot but if she gets too cold too fast that is also an issue so there needs to be a balance or there appears to be too much input. The same is true for the cold, we need to warm her externally before her body "catches up". She began sweating in her feet about 6-8 months ago. When she was first diagnosed she was only seven months and she was in the hospital for about 6 weeks and we could not go home with a "fever". We used to give her a cold washcloth to cool her off and it became so habitual that she still asks to sleep with one at night, six years later. She especially gets hot at night so she finds it helpful. Most of her "fevers" we found were being addressed through the use of these external means. But she has had real fevers too where she has needed medicine. IT took us a long time to be able to differentiate. As they both would register as fevers on a thermometer. To this day there are times we start with external means and see how she responds. Hope that helps. Mary Anne < [EMAIL PROTECTED] > wrote: Hey Randy. I have suspected MS (no definite dx yet). I've had no auditory or visual problems but vertigo/dizziness do come periodically. My sense of smell & taste are also affected. I get pins & needles in my face & sometimes a sensation that someone has stabbed me with a shapened pencil somewhere on the outside of my head. All my brain MRIs have been clear so who knows. Here's something I've never heard discussed on TMIC ... Periodically, I get really high fever. It usually comes with fatigue, emotional upset, etc. The doctors have no answer. I just think it's the nerve damage screwing up my thermostat. Anyone else get fever? Diane in Canada ----- Original Message ----- From: randy rankin To: TM Group Sent: Tuesday, October 14, 2008 9:29 PM Subject: [TMIC] is this an M.S. problem? I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . -- Mary Anne Egan The Stettler Group, Inc. [EMAIL PROTECTED] (908) 806-3001 (908) 806-3113 Fax
