RE: [TMIC] Rectal problems
Naomi: You couldn't have said it better. I have 3 wonderful children, my middle child, Ashlee, is the one that was hit with TM. Her older brother is graduating from high school today and her little sister is finishing up her last day of 4th grade today. Ashlee is done with 7th grade today. It wasn't that long ago that I heard my two daughters talking and it took all I had to not cry at what they were saying to each other (I have a baby monitor in Ashlee's room so that if she needs me during the night, she can call for me.) They were in Ashlee's room and I was in mine. My little girl, Kenli, was telling Ash how much she missed Ashlee taking care of her and running around in the yard with her. She was explaining to Ashlee that this hasn't only effected Ashlee, it has affected everyone in our family. They were being very open with each other and it was at that moment that I realized that I had raised two very good, grateful, affectionate, caring, but also independent daughters. It couldn't have been a prouder moment for me. Like I said before, my son is graduating from high school today. Instead of going out running around every night with his friends and running around after graduation tonight, he is coming home (on his own free will) to celebrate with the rest of us and our neighbors. He would much rather be at home with us and hanging out with our neighbor friends than be out running the streets. Have a great day! Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, June 07, 2007 8:29 PM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Rectal problems Jude, I wasn't sure if you were directing your questions to Natalie or me, but I can add my two cents. The finger thing that you speak of is the digital stimulation. It is done by inserting one or two fingers in the rectum, to stimulate the anus which causes the bowels to move. As I said before, this was something that my husband had to do for me in the early stages of TM. To assume, that I feel worse than you, because I am a quad is very a sumptuous on your part. Apparently that isn't true, because I don't feel like ending it all. To be fair to you, I understand that feeling, because I've been through the 'why me and what did I do to deserve this and this is the end of life as I know it. Well, that was the end of life as I knew it. Now I have a brand-new life, in which I have to do things differently than the last life. While I was struggling to live in the early days of TM, I ask the good Lord to spare my life, to let me live it to see one more day. He saw fit to answer my prayers. When I was conscious enough to realize that I could move nothing but my head, I felt like I would have been better off not seeing another day. I was deeply depressed. My family was very supportive. My husband was by my side, day and night for two straight months. My daughter and son was begging me to hang on. My mother was there for me to cry on her shoulder. I felt if I gave up on life, I would have let all their prayers and care be in vain. That would be so selfish of me. I worked very hard to put the life that the Lord granted me, to good use. I worked hard in rehabilitation to gain some strength and movement. Just the tiniest of task completed was cause for celebration. Besides, I had my 49th birthday party in the hospital. In attendance were a host of friends, family, nurses, doctors, therapists and other patients who I had met along the way. I was only 48 years old! I still have a life to live. I still have something to give back to this world. I thank the Lord for sparing me my mind. I can still think on my own! I could still talk (once my throat healed from the ventilator). Oh yes! I was still alive and have something to offer. I think now about how much I would have missed if I had not lived. My daughter, Danielle and her husband Damon, has a two-year-old, Kayla, who light up the room as soon as she hit the door. She likes playing choo-choo train, while standing on my foot rest of my wheelchair, and us riding around the island in the kitchen. She loves playing elevator, while standing on my foot rest while I tilt the cheer up and down. She loves playing in my hospital bed and pushing the buttons to make it go up and down. She thinks coming to Mam Ma's house is like being in an amusement park. I think about how my daughter would have felt when
Re: [TMIC] Rectal problems
Tracy, Yes, I know the feeling of having raised wonderful children. It is one that you never forget. Congratulations to your son! Kudos to him for wanting to spend this special time in his life, with his family and neighbors. Stay the loving mother that you are and revel in your children's success. Naomi C-4 quad since July 2, 2005 ** See what's free at http://www.aol.com.
Re: [TMIC] Rectal problems
Jude, I wasn't sure if you were directing your questions to Natalie or me, but I can add my two cents. The finger thing that you speak of is the digital stimulation. It is done by inserting one or two fingers in the rectum, to stimulate the anus which causes the bowels to move. As I said before, this was something that my husband had to do for me in the early stages of TM. To assume, that I feel worse than you, because I am a quad is very a sumptuous on your part. Apparently that isn't true, because I don't feel like ending it all. To be fair to you, I understand that feeling, because I've been through the 'why me and what did I do to deserve this and this is the end of life as I know it. Well, that was the end of life as I knew it. Now I have a brand-new life, in which I have to do things differently than the last life. While I was struggling to live in the early days of TM, I ask the good Lord to spare my life, to let me live it to see one more day. He saw fit to answer my prayers. When I was conscious enough to realize that I could move nothing but my head, I felt like I would have been better off not seeing another day. I was deeply depressed. My family was very supportive. My husband was by my side, day and night for two straight months. My daughter and son was begging me to hang on. My mother was there for me to cry on her shoulder. I felt if I gave up on life, I would have let all their prayers and care be in vain. That would be so selfish of me. I worked very hard to put the life that the Lord granted me, to good use. I worked hard in rehabilitation to gain some strength and movement. Just the tiniest of task completed was cause for celebration. Besides, I had my 49th birthday party in the hospital. In attendance were a host of friends, family, nurses, doctors, therapists and other patients who I had met along the way. I was only 48 years old! I still have a life to live. I still have something to give back to this world. I thank the Lord for sparing me my mind. I can still think on my own! I could still talk (once my throat healed from the ventilator). Oh yes! I was still alive and have something to offer. I think now about how much I would have missed if I had not lived. My daughter, Danielle and her husband Damon, has a two-year-old, Kayla, who light up the room as soon as she hit the door. She likes playing choo-choo train, while standing on my foot rest of my wheelchair, and us riding around the island in the kitchen. She loves playing elevator, while standing on my foot rest while I tilt the cheer up and down. She loves playing in my hospital bed and pushing the buttons to make it go up and down. She thinks coming to Mam Ma's house is like being in an amusement park. I think about how my daughter would have felt when she found out last week she was expecting again, and not be able to share that with me. My son, Dante, has a six year old son, who used to be my running buddy. We used to hit the science centers, children's museums, video game stores, McDonald's and anyplace else, we thought would be interesting. He is old enough to remember me when I wasn't confined to a wheelchair so it took him a little while to adjust to me being different than before. He is so smart and mature for his age. I think about how I would have missed him losing his first teeth. We took pictures of him without his front teeth. Jude, just think about those who you would leave behind that love you so much and would never recover from their loss. Yes, your life may be a little different now, but you are still you! Having Transverse Myelitis, changes all of our lives in different ways. Through all the bowel programs, self cathing, neuropathy, blurred vision, bladder problems, paralysis and all other things that come with TM, never lose sight that each day is a gift from God. I wake up every day, and thank the Lord that he let me see one more day. I can spend the day with my husband, children, grandchildren or friends. It's up to me to decide what I want to do with it. I spend a lot of my time on the computer. This is no big different from what I used to do before I had TM. I love the computer! I use Dragon NaturallySpeaking, voice recognition program to type what I say. The computer is my connection to the outside world. I do some online work for my nephew, who runs his own business. Natalie, there are people on this message board who you can always communicate with when you're feeling down and consider us family members and we are always concerned about your health and welfare. You can e-mail me directly at [EMAIL PROTECTED] _ (mailto:[EMAIL PROTECTED] ) Ask your primary care physician to refer you to a psychologist or psychiatrist, and you may also want to check out some antidepressants. Do what ever it
Re: [TMIC] Rectal problems
Jude, I used to have to do the digital stimulation and my early months of TM. Yes it is very unnatural feeling to lay in the bed on your side, waiting to use the bathroom. Sometimes I would have to get the Enemee suppository. Thanks to gravity and my diet, I am able to use the bedside commode. Though I have the bowels master, the bladder thing is a whole different subject for me. I have a Foley catheter in constantly have a urinary track infection. Tomorrow, I have an appointment for the urologist to complain about another UTI. Naomi C-4 quad since July 2, 2005 ** See what's free at http://www.aol.com.
Re: [TMIC] Rectal problems
... Foley catheter ... constant [UTI] ... I have managed to self-insert a Foley for years without an UTI. I do it by drinking ~15 glasses of water each day and by drinking a large glass of 27% cranberry juice each morning. It has its downside - I empty a liter leg bag two to three times a day and still put almost two liters into the bed bag. An upside - I don't get up during the night. Alton On Jun 4, 2007, at 6:0013 PM, [EMAIL PROTECTED] wrote: Jude, I used to have to do the digital stimulation and my early months of TM. Yes it is very unnatural feeling to lay in the bed on your side, waiting to use the bathroom. Sometimes I would have to get the Enemee suppository. Thanks to gravity and my diet, I am able to use the bedside commode. Though I have the bowels master, the bladder thing is a whole different subject for me. I have a Foley catheter in constantly have a urinary track infection. Tomorrow, I have an appointment for the urologist to complain about another UTI. Naomi C-4 quad since July 2, 2005 See what's free at AOL.com.
Re: Re: [TMIC] Rectal problems
Hi Jude, I use Miralax and it is like a miracle to my bowels. There is also a prescription capsule that also adds water to the bowels and help on bowel management. It is called Amitiza. I have taken both at times but w/ both of them I get small accidents. I think because both of them has similar properties to the bowel. I have not researched this, but what I've been told by medical professionals. Now Miralax as I've seen on tv lately is non-prescription, but I've used it for years and it is not addictive in any way; still works the same after all these years. Amitiza is a new pill and I guess for those who don't like Miralax it is available in prescription and is just a capsule. I drink my Miralax in orange juice you can't taste it at all - there are no other drinks that work as well, I've tried. I'm sorry you have such a rough go of the bm program, but perhaps one of these will work for you better. Natalie Mizenko [EMAIL PROTECTED] wrote: When I asked about renal failure Gunny informed me that renal failure is actually a kidney problem. So my medical Ignorance showed up again. I was refering to having problems with bowel incontinance. I appoligize for the mistake and I hope noone was confused as I was. Sorry, Rick I made a correction in the subject area of this e-mail. I think that is the rectal area back there. From: [EMAIL PROTECTED] Date: 2007/06/01 Fri PM 05:30:49 EDT To: [EMAIL PROTECTED], Tmic-list@eskimo.com Subject: Re: [TMIC] Renal problems In response to Rick's topic, Renal Failure, I am not even sure what it is and what it involves. I mean I can tell by the name what organs are affected, what brings renal faiilure about and what can we do to be more health conscious? What I would like to know as well, is there anyone out there who has to do digital bowel stimulation and removal while lying on one's side in bed? That is the way that I have to do it and it is gross! Not to mention, tiring. Peace and Prayers, Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com. - Get the Yahoo! toolbar and be alerted to new email wherever you're surfing.
Re: [TMIC] Rectal problems
Jude, for some reason my cursor is down at the bottom of the box, it started about 2 weeks ago and sometimes I forget it bring my cursor up. Scroll further down and see if you don't see my message, Thanks, Natalie [EMAIL PROTECTED] wrote: Nothing came through on the List site...try again please. Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT - See what's free at AOL.com. - Finding fabulous fares is fun. Let Yahoo! FareChase search your favorite travel sites to find flight and hotel bargains.
Re: Re: [TMIC] Rectal problems
When I asked about renal failure Gunny informed me that renal failure is actually a kidney problem. So my medical Ignorance showed up again. I was refering to having problems with bowel incontinance. I appoligize for the mistake and I hope noone was confused as I was. Sorry, Rick I made a correction in the subject area of this e-mail. I think that is the rectal area back there. From: [EMAIL PROTECTED] Date: 2007/06/01 Fri PM 05:30:49 EDT To: [EMAIL PROTECTED], Tmic-list@eskimo.com Subject: Re: [TMIC] Renal problems In response to Rick's topic, Renal Failure, I am not even sure what it is and what it involves. I mean I can tell by the name what organs are affected, what brings renal faiilure about and what can we do to be more health conscious? What I would like to know as well, is there anyone out there who has to do digital bowel stimulation and removal while lying on one's side in bed? That is the way that I have to do it and it is gross! Not to mention, tiring. Peace and Prayers, Jude Our present troubles are quite small and won't last very long. Yet they produce for us an immeasurably great Glory that will last forever 2 Corinthians 4:17 NLT ** See what's free at http://www.aol.com.
