Re: [TMIC] lesions, re-occurance of TM .... and such

2008-12-02 Thread Sharon M
After I tried Lyrica, I was put on Cymbalta.  That did work!  I was on it for a 
year plus and it really helped my leg pain.  I hope I can stay off it now 
because I am trying to be off drugs as much as I can stand.:) 

I do take Neurontin.  It helps.  When my rib banding gets bad I take extra 
Baclofen and increase my Neurontin a little. 

It's so hard to find that right combination!

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells 
here--this is where you belong

--- On Mon, 12/1/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED], [EMAIL PROTECTED], tmic-list@eskimo.com
Cc: Sharon M [EMAIL PROTECTED]
Date: Monday, December 1, 2008, 7:49 PM




I also tried Lyrica and all it did was make me loopy. Leg stinging was still 
the same and banding pain on waist did nto change
 
Any other suggestions? (also tried Neuroten) it did not work either
-- Original message from Sharon M [EMAIL PROTECTED]: 
-- 





Thanks for the info.  Unfortunately Lyrica didn't work for me.  I had a weird 
opposite reaction to it and it mad everything way worse.  I'm so glad to hear 
it is working for you!

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells 
here--this is where you belong

--- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote:

From: George Kittner [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED]
Date: Sunday, November 30, 2008, 9:44 PM







I am on Lyrica 100mg 3x day for my TM.  It seems to help a lot.  I originally 
started out at 50 mg 3x day and then 75 mg 3x day and have been on the current 
dosage of 100mg.  I was diagnosed in February 2005.  I have some pain in my mid 
back by late afternoon after working all day.  It hit at T7 for me.  When 
walking I lean toward my right side which is the side that it hit me on.  I 
recently went for a balance test and will be going for an evaluation which I am 
told they will be able to work with me to assist with helping with my walking.
 
Ask your doctor about Lyrica for TM.  Let me know what your doctor says and if 
he will prescribe it for you.
 
Valerie in Illinois


--- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote:

From: Sharon M [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: Pieter and Heather [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Friday, November 28, 2008, 9:21 AM






Thanks Heather.  The pain in my back was so severe last night that I decided I 
would see a doctor and insist that they get to the bottom of it.  I want to 
find out for sure what is causing this pain.  It is so easy to blame everything 
on MS.

I'm not a wimp when it comes to pain.  I have had chronic pain most of my life, 
but this is different.  

I don't think it would help to help to see neuro again.  He assumes the pain is 
nerve pain, is connected to TM level in my spine and says the Neurontin should 
help.  Hello!  Neurontin does not help.

How is your sister doing now?  I run a large MS support group on Yahoo and it's 
not unusual to have other family members with MS or some of the rare neuro 
diseases.

Hugs)))

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells 
here--this is where you belong

--- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote:

From: Pieter and Heather [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM



Sharon,
 
Are you going to be seeing your neuro again soon?  I would be asking him about 
it again.  Could it be another attack of the MS?  I know my sister has MS and 
hers was a severe attack back in the late 80's.  At that time they weren't sure 
it was MS.She then had a second severe attack in 1991 (when she was finally 
diagnosed). She figures she must have had MS even in the mid to late 70's and 
into the 80's but was never diagnosed.  So I'm sure that MS can bring attacks 
more than once.  
 
Have you also seen your family physician to rule out any other problems?  I 
know that even with TM or MS that we need to remember there are other medical 
problems other than these two that can cause problems.
 
Keep us posted
 
Heather in Calgary 

- Original Message - 
From: Sharon M 
To: tmic-list@eskimo.com 
Sent: Thursday, November 27, 2008 5:39 PM
Subject: [TMIC] lesions, re-occurance of TM  and such





Hi again everyone!  

I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98.  They 
have never found lesions in my spine but I do have lesions in my brain.  My 
original neuro says he still thinks I have a hidden lesion on my spine. 

In late August 08 I was hit again with the severe numbness.  This time on the 
right side instead of the original left side

Re: [TMIC] lesions, re-occurance of TM .... and such

2008-12-01 Thread Sharon M
Thanks for the info.  Unfortunately Lyrica didn't work for me.  I had a weird 
opposite reaction to it and it mad everything way worse.  I'm so glad to hear 
it is working for you!

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells 
here--this is where you belong

--- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote:
From: George Kittner [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED]
Date: Sunday, November 30, 2008, 9:44 PM

I am on Lyrica 100mg 3x day for my TM.  It seems to help a lot.  I originally 
started out at 50 mg 3x day and then 75 mg 3x day and have been on the current 
dosage of 100mg.  I was diagnosed in February 2005.  I have some pain in my mid 
back by late afternoon after working all day.  It hit at T7 for me.  When 
walking I lean toward my right side which is the side that it hit me on.  I 
recently went for a balance test and will be going for an evaluation which I am 
told they will be able to work with me to assist with helping with my walking.
 
Ask your doctor about Lyrica for TM.  Let me know what your doctor says and if 
he will prescribe it for you.
 
Valerie in Illinois


--- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote:

From: Sharon M [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: Pieter and Heather [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Friday, November 28, 2008, 9:21 AM






Thanks Heather.  The pain in my back was so severe last night that I decided I 
would see a doctor and insist that they get to the bottom of it.  I want to 
find out for sure what is causing this pain.  It is so easy to blame everything 
on MS.

I'm not a wimp when it comes to pain.  I have had chronic pain most of my life, 
but this is different.  

I don't think it would help to help to see neuro again.  He assumes the pain is 
nerve pain, is connected to TM level in my spine and says the Neurontin should 
help.  Hello!  Neurontin does not help.

How is your sister doing now?  I run a large MS support group on Yahoo and it's 
not unusual to have other family members with MS or some of the rare neuro 
diseases.

Hugs)))

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells
 here--this is where you belong

--- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote:

From: Pieter and Heather [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM



Sharon,
 
Are you going to be seeing your neuro again soon?  I would be asking him about 
it again.  Could it be another attack of the MS?  I know my sister has MS and 
hers was a severe attack back in the late 80's.  At that time they weren't sure 
it was MS.She then had a second severe attack in 1991 (when she was finally 
diagnosed). She figures she must have had MS even in the mid to late 70's and 
into the 80's but was never diagnosed.  So I'm sure that MS can bring attacks 
more than once.  
 
Have you also seen your family physician to rule out any other problems?  I 
know that even with TM or MS that we need to remember there are other medical 
problems other than these two that can cause problems.
 
Keep us posted
 
Heather in Calgary 

- Original Message - 
From: Sharon M 
To: tmic-list@eskimo.com 
Sent: Thursday, November 27, 2008 5:39 PM
Subject: [TMIC] lesions, re-occurance of TM  and such





Hi again everyone!  

I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98.  They 
have never found lesions in my spine but I do have lesions in my brain.  My 
original neuro says he still thinks I have a hidden lesion on my spine. 

In late August 08 I was hit again with the severe numbness.  This time on the 
right side instead of the original left side.  The numbness has not gotten 
better this time.   Then about 3 weeks ago I had a sudden,
 sharp severe pain in my back at that same level.  I saw my new neuro last week 
and he said it was all connected.  I had already figured it was connected. 
lol

I am having much worse back pain lately, too.  Really bad and nothing helps 
it.  It's pain, burning and weakness

That said, I am really doing pretty good.  MS has kicked my butt at times and I 
have never been symptom-free since the TM attack Labor Day, 1997.  I've just 
gotten worse over time.

I am one of the lucky TMers, though, so I really hate to complain.   I know it 
could be so much worse.  I just wonder what you experts have to say about this 
latest occurance for me.

hugs to you all

Sharon Marsden


--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 25, 2008, 3:32 PM

tmic-digest Digest  Volume 2008 : Issue 457

Today's Topics:
  Re: [TMIC] Re: tmic-digest

Re: [TMIC] lesions, re-occurance of TM .... and such

2008-12-01 Thread kimr1999






I also tried Lyrica and all it did was make me loopy. Leg stinging was still the same and banding pain on waist did nto change

Any other suggestions? (also tried Neuroten) it did not work either
-- Original message from Sharon M [EMAIL PROTECTED]: -- 



Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird opposite reaction to it and it mad everything way worse. I'm so glad to hear it is working for you!SharonThe bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong"--- On Sun, 11/30/08, George Kittner [EMAIL PROTECTED] wrote:
From: George Kittner [EMAIL PROTECTED]Subject: Re: [TMIC] lesions, re-occurance of TM  and suchTo: [EMAIL PROTECTED]Date: Sunday, November 30, 2008, 9:44 PM





I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally started out at 50 mg 3x day and then 75 mg 3x day and have been on the current dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid back by late afternoon after working all day. It hit at T7 for me. When walking I lean toward my right side which is the side that it hit me on. I recently went for a balance test and will be going for an evaluation which I am told they will be able to work with me to assist with helping with my walking.

Ask your doctor about Lyrica for TM. Let me know what your doctor says and if he will prescribe it for you.

Valerie in Illinois
--- On Fri, 11/28/08, Sharon M [EMAIL PROTECTED] wrote:
From: Sharon M [EMAIL PROTECTED]Subject: Re: [TMIC] lesions, re-occurance of TM  and suchTo: "Pieter and Heather" [EMAIL PROTECTED], tmic-list@eskimo.comDate: Friday, November 28, 2008, 9:21 AM




Thanks Heather. The pain in my back was so severe last night that I decided I would see a doctor and insist that they get to the bottom of it. I want to find out for sure what is causing this pain. It is so easy to blame everything on MS.I'm not a wimp when it comes to pain. I have had chronic pain most of my life, but this is different. I don't think it would help to help to see neuro again. He assumes the pain is nerve pain, is connected to TM level in my spine and says the Neurontin should help. Hello! Neurontin does not help.How is your sister doing now? I run a large MS support group on Yahoo and it's not unusual to have other family members with MS or some of the rare neuro diseases.Hugs)))SharonThe bluebird in the cedar tree spoke to me... "Your heart's desire dwells here--this is where you belong"--- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote:
From: Pieter and Heather [EMAIL PROTECTED]Subject: Re: [TMIC] lesions, re-occurance of TM  and suchTo: [EMAIL PROTECTED], tmic-list@eskimo.comDate: Thursday, November 27, 2008, 10:42 PM

Sharon,

Are you going to be seeing your neuro again soon? I would be asking him about it again. Could it be another attack of the MS? I know my sister has MS and hers was a severe attack back inthe late 80's. At that time they weren't sure it was MS.Shethen had a second severe attack in 1991 (when she was finally diagnosed).She figures she must have had MS even in the mid to late 70's and into the 80's but was never diagnosed. So I'm sure that MS can bring attacks more than once. 

Have you also seen your family physician to rule out any other problems? I know that even with TM or MS that we need to remember there are other medical problems other than these two that can cause problems.

Keep us posted

Heather in Calgary 

- Original Message - 
From: Sharon M 
To: tmic-list@eskimo.com 
Sent: Thursday, November 27, 2008 5:39 PM
Subject: [TMIC] lesions, re-occurance of TM  and such




Hi again everyone! I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They have never found lesions in my spine but I do have lesions in my brain. My original neuro says he still thinks I have a hidden lesion on my spine. In late August 08 I was hit again with the severe numbness. This time on the right side instead of the original left side. The numbness has not gotten better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in my back at that same level. I saw my new neuro last week and he said it was "all connected". I had already figured it was "connected". lolI am having much worse back pain lately, too. Really bad and nothing helps it. It's pain, burning and weaknessThat said, I am really doing pretty good. MS has kicked my butt at times and I have never been symptom-free since the TM attack Labor Day, 1997. I've just gotten worse over time.I am one of the lucky TMers, though, so I really hate to complain. I know it could be so much worse. I just wonder what you experts have to say about this latest occurance for me.hugs to you allSharon Marsden--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]Subject: tmic-digest D

Re: [TMIC] lesions, re-occurance of TM .... and such

2008-11-28 Thread Sharon M
Thanks Heather.  The pain in my back was so severe last night that I decided I 
would see a doctor and insist that they get to the bottom of it.  I want to 
find out for sure what is causing this pain.  It is so easy to blame everything 
on MS.

I'm not a wimp when it comes to pain.  I have had chronic pain most of my life, 
but this is different.  

I don't think it would help to help to see neuro again.  He assumes the pain is 
nerve pain, is connected to TM level in my spine and says the Neurontin should 
help.  Hello!  Neurontin does not help.

How is your sister doing now?  I run a large MS support group on Yahoo and it's 
not unusual to have other family members with MS or some of the rare neuro 
diseases.

Hugs)))

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells 
here--this is where you belong

--- On Thu, 11/27/08, Pieter and Heather [EMAIL PROTECTED] wrote:
From: Pieter and Heather [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM


AOL Email
 
Sharon,
 
Are you going to be seeing your neuro again 
soon?  I would be asking him about it again.  Could it be another 
attack of the MS?  I know my sister has MS and hers was a severe attack 
back in the late 80's.  At that time they weren't sure it was 
MS.She then had a second severe attack in 1991 (when she was finally 
diagnosed). She figures she must have had MS even in the mid to late 70's 
and into the 80's but was never diagnosed.  So I'm sure that MS can bring 
attacks more than once.  
 
Have you also seen your family physician to rule 
out any other problems?  I know that even with TM or MS that we need to 
remember there are other medical problems other than these two that can cause 
problems.
 
Keep us posted
 
Heather in Calgary 


  - Original Message - 
  From: 
  Sharon 
  M 
  To: tmic-list@eskimo.com 
  Sent: Thursday, November 27, 2008 5:39 
  PM
  Subject: [TMIC] lesions, re-occurance of 
  TM  and such
  

  


  Hi again 
everyone!  

I was hit with TM 
suddenly in 9/97 and then was dxed with MS in 8/98.  They have 
never found lesions in my spine but I do have lesions in my brain.  
My original neuro says he still thinks I have a hidden lesion on my 
spine. 

In late August 08 I 
was hit again with the severe numbness.  This time on the right 
side instead of the original left side.  The numbness has not 
gotten better this time.   Then about 3 weeks ago I had a 
sudden, sharp severe pain in my back at that same level.  I saw my 
new neuro last week and he said it was all connected.  I had 
already figured it was connected. lol

I am having much 
worse back pain lately, too.  Really bad and nothing helps 
it.  It's pain, burning and weakness

That said, I am 
really doing pretty good.  MS has kicked my butt at times and I 
have never been symptom-free since the TM attack Labor Day, 1997.  
I've just gotten worse over time.

I am one of the lucky 
TMers, though, so I really hate to complain.   I know it could 
be so much worse.  I just wonder what you experts have to say about 
this latest occurance for me.

hugs to you 
all

Sharon 
Marsden


--- On Tue, 11/25/08, 
[EMAIL PROTECTED] 
[EMAIL PROTECTED] wrote:

From: 
  [EMAIL PROTECTED] 
  [EMAIL PROTECTED]
Subject: tmic-digest Digest 
  V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 
  25, 2008, 3:32 PM

tmic-digest Digest  Volume 2008 : Issue 457

Today's Topics:
  Re: [TMIC] Re: tmic-digest Digest V2  [ jrushton
[EMAIL PROTECTED] ]

  
  #yiv625162981 #yiv1833211580 v\:* {

}


  #yiv625162981 #yiv1833211580 v\:* {
}


  


  
Jenna, it must be 'where' the lesion is and how much damage 
it has or they have done.  Also, I think it also my have to 
do with how long it went on from the onset before anything was 
done to 'stop' it?? Your earlier comment, who knows for 
sure is right on!  Jeanne
 

---Original 
Message---
 

From: Jenna
Date: 
11/24/2008 8:13:40 PM
To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
[EMAIL PROTECTED]
Subject: Re: 
[TMIC] Re: tmic-digest Digest V2008 #431
 
It 
is complicated. But I have 3 lesions on my spine.  And 
damage to my optic nerve.   So since the damage to the 
optic nerve

Re: [TMIC] lesions, re-occurance of TM .... and such

2008-11-27 Thread Sharon M
That's what my first neuro says too.  Thanks.

Sharon

The bluebird in the cedar tree spoke to me... Your heart's desire dwells 
here--this is where you belong

--- On Thu, 11/27/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: Re: [TMIC] lesions, re-occurance of TM  and such
To: [EMAIL PROTECTED]
Date: Thursday, November 27, 2008, 5:42 PM

 One of mine said that they  r sometimes toob small to seeSent from my Verizon 
Wireless BlackBerryFrom:  Sharon M [EMAIL PROTECTED]
Date: Thu, 27 Nov 2008 16:39:25 -0800 (PST)
To: tmic-list@eskimo.com
Subject: [TMIC] lesions, re-occurance of TM  and such
  Hi again everyone!   

I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98.  They 
have never found lesions in my spine but I do have lesions in my brain.  My 
original neuro says he still thinks I have a hidden lesion on my spine. 

In late August 08 I was hit again with the severe numbness.  This time on the 
right side instead of the original left side.  The numbness has not gotten  
better this time.   Then about 3 weeks ago I had a sudden, sharp severe pain in 
my back at that same level.  I saw my new neuro last week and he said it was 
all connected.  I had already figured it was connected. lol

I am having much worse back pain lately, too.  Really bad and nothing helps 
it.  It's pain, burning and weakness

That said, I am really doing pretty good.  MS has kicked my butt at times and I 
have never been symptom-free since the TM attack Labor Day, 1997.  I've just 
gotten worse over time.

I am one of the lucky TMers, though, so I really hate to complain.   I know it 
could be so much worse.  I just wonder what you experts have to say about this 
latest occurance for me.

hugs to you all

Sharon Marsden


--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:
From:  [EMAIL PROTECTED] [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 25, 2008, 3:32 PM

tmic-digest Digest  Volume 2008 : Issue 457

Today's Topics:
  Re: [TMIC] Re: tmic-digest Digest V2  [ jrushton
[EMAIL PROTECTED] ]
AOL Email#yiv2048505932 #yiv1833211580 v\:* {}#yiv2048505932 #yiv1833211580 
v\:* {} Jenna, it must be 'where' the lesion is and how much damage it has or 
they have done.  Also, I think it also my have to do with how long it went on 
from the onset before anything was done to 'stop' it?? Your earlier comment, 
who knows for sure is right on!  Jeanne ---Original Message--- From: 
JennaDate: 11/24/2008 8:13:40 PMTo: Pieter and Heather; [EMAIL PROTECTED]; 
[EMAIL PROTECTED]; [EMAIL PROTECTED]: Re: [TMIC] Re: tmic-digest Digest V2008 
#431 It is complicated. But I have 3 lesions on my spine.  And damage to my 
optic nerve.   So since the damage to the optic nerve was first, before the 
first problems showed up in the spine, it is call Divic's version of MS.  I 
hope this makes some kind of since.  But the weird thing to me is so many of 
you my friends have no lesions, just inflammation and can not walk and here I 
am with
 3 lesions and can still walk??? 
 Jenna

From: Pieter and Heather [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 2:20:58 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431

 That is the way I understand it too Jude.  My sister who is 3 yrs younger than 
me has MS.  It is the one that progresses slowly but everytime she has and MRI 
she has more lesions on both spine and brain.   Heather in Calgary - 
Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; 
tmic-list@eskimo.com Sent: Monday, November 24, 2008 12:06 PMSubject: Re: 
[TMIC] Re: tmic-digest Digest V2008 #431
Hello All, It has been my understanding that with TM one must have lesions on 
the spine but not on the brain.  If one has lesions on the brain it is 
indicative of MS. Am I misinformed regarding this information?   God Bless 
You,Jude In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, 
[EMAIL PROTECTED] writes:Frank,
They were never able to locate a lesion on my spine and from what I have read 
on the message forums this is true for alot of people.  

I had mutiple MRIs done both with and without contrast.
Lynne


--- On Sun, 11/23/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

 From: [EMAIL PROTECTED] [EMAIL PROTECTED]
 Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
 To: jrushton [EMAIL PROTECTED], [EMAIL PROTECTED], TMIC 
 tmic-list@eskimo.com
 Date: Sunday, November 23, 2008, 4:30 PM
        i have a question, has anyone else been told that
 they don't have  lesions on their spine? my neuro
 says mine is just swelling from c6-t3  and t9-t10.,  so
 what does that mean? 
 
 What does  swelling from c6-t3  and t9-t10 mean??
 
 Did you have an MRI with and with out gadolium
 (enhansement)?
 
 F


      




One site has it all. Your email accounts, your social

Re: [TMIC] lesions, re-occurance of TM .... and such

2008-11-27 Thread Pieter and Heather
AOL EmailSharon,

Are you going to be seeing your neuro again soon?  I would be asking him about 
it again.  Could it be another attack of the MS?  I know my sister has MS and 
hers was a severe attack back in the late 80's.  At that time they weren't sure 
it was MS.She then had a second severe attack in 1991 (when she was finally 
diagnosed). She figures she must have had MS even in the mid to late 70's and 
into the 80's but was never diagnosed.  So I'm sure that MS can bring attacks 
more than once.  

Have you also seen your family physician to rule out any other problems?  I 
know that even with TM or MS that we need to remember there are other medical 
problems other than these two that can cause problems.

Keep us posted

Heather in Calgary 
  - Original Message - 
  From: Sharon M 
  To: tmic-list@eskimo.com 
  Sent: Thursday, November 27, 2008 5:39 PM
  Subject: [TMIC] lesions, re-occurance of TM  and such


Hi again everyone!  

I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98.  
They have never found lesions in my spine but I do have lesions in my brain.  
My original neuro says he still thinks I have a hidden lesion on my spine. 

In late August 08 I was hit again with the severe numbness.  This time 
on the right side instead of the original left side.  The numbness has not 
gotten better this time.   Then about 3 weeks ago I had a sudden, sharp severe 
pain in my back at that same level.  I saw my new neuro last week and he said 
it was all connected.  I had already figured it was connected. lol

I am having much worse back pain lately, too.  Really bad and nothing 
helps it.  It's pain, burning and weakness

That said, I am really doing pretty good.  MS has kicked my butt at 
times and I have never been symptom-free since the TM attack Labor Day, 1997.  
I've just gotten worse over time.

I am one of the lucky TMers, though, so I really hate to complain.   I 
know it could be so much worse.  I just wonder what you experts have to say 
about this latest occurance for me.

hugs to you all

Sharon Marsden


--- On Tue, 11/25/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:

  From: [EMAIL PROTECTED] [EMAIL PROTECTED]
  Subject: tmic-digest Digest V2008 #457
  To: [EMAIL PROTECTED]
  Date: Tuesday, November 25, 2008, 3:32 PM


tmic-digest Digest  Volume 2008 : Issue 457Today's 
Topics:  Re: [TMIC] Re: tmic-digest Digest V2  [ jrushton[EMAIL PROTECTED] 
]Jenna, it must be 'where' the lesion is and how much damage it has or they 
have done.  Also, I think it also my have to do with how long it went on from 
the onset before anything was done to 'stop' it?? Your earlier comment, who 
knows for sure is right on!  Jeanne

---Original Message---

From: Jenna
Date: 11/24/2008 8:13:40 PM
To: Pieter and Heather;  [EMAIL PROTECTED];  [EMAIL PROTECTED]; 
 tmic-list@eskimo.com
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431

It is complicated. But I have 3 lesions on my spine.  And 
damage to my optic nerve.   So since the damage to the optic nerve was first, 
before the first problems showed up in the spine, it is call Divic's version of 
MS.  I hope this makes some kind of since.  But the weird thing to me is so 
many of you my friends have no lesions, just inflammation and can not walk and 
here I am with 3 lesions and can still walk??? 


Jenna 






From: Pieter and Heather [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 2:20:58 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431


That is the way I understand it too Jude.  My sister who is 3 
yrs younger than me has MS.  It is the one that progresses slowly but everytime 
she has and MRI she has more lesions on both spine and brain.  

Heather in Calgary 
- Original Message - 
From: [EMAIL PROTECTED] 
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com 
Sent: Monday, November 24, 2008 12:06 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431


  Hello All,

  It has been my understanding that with TM one must have 
lesions on the spine but not on the brain.  If one has lesions on the brain it 
is indicative of MS.

  Am I misinformed regarding this information?  

  God Bless You,
  Jude

  In a message dated 11/24/2008 8:34:00 A.M. Eastern 
Standard Time, [EMAIL PROTECTED] writes:
  Frank