After I tried Lyrica, I was put on Cymbalta. That did work! I was on it for a
year plus and it really helped my leg pain. I hope I can stay off it now
because I am trying to be off drugs as much as I can stand.:)
I do take Neurontin. It helps. When my rib banding gets bad I take extra
Baclofen and increase my Neurontin a little.
It's so hard to find that right combination!
Sharon
The bluebird in the cedar tree spoke to me... "Your heart's desire dwells
here--this is where you belong"
--- On Mon, 12/1/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM .... and such
To: [EMAIL PROTECTED], [EMAIL PROTECTED], tmic-list@eskimo.com
Cc: "Sharon M" <[EMAIL PROTECTED]>
Date: Monday, December 1, 2008, 7:49 PM
I also tried Lyrica and all it did was make me loopy. Leg stinging was still
the same and banding pain on waist did nto change
Any other suggestions? (also tried Neuroten) it did not work either
-------------- Original message from Sharon M <[EMAIL PROTECTED]>:
--------------
Thanks for the info. Unfortunately Lyrica didn't work for me. I had a weird
opposite reaction to it and it mad everything way worse. I'm so glad to hear
it is working for you!
Sharon
The bluebird in the cedar tree spoke to me... "Your heart's desire dwells
here--this is where you belong"
--- On Sun, 11/30/08, George Kittner <[EMAIL PROTECTED]> wrote:
From: George Kittner <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM .... and such
To: [EMAIL PROTECTED]
Date: Sunday, November 30, 2008, 9:44 PM
I am on Lyrica 100mg 3x day for my TM. It seems to help a lot. I originally
started out at 50 mg 3x day and then 75 mg 3x day and have been on the current
dosage of 100mg. I was diagnosed in February 2005. I have some pain in my mid
back by late afternoon after working all day. It hit at T7 for me. When
walking I lean toward my right side which is the side that it hit me on. I
recently went for a balance test and will be going for an evaluation which I am
told they will be able to work with me to assist with helping with my walking.
Ask your doctor about Lyrica for TM. Let me know what your doctor says and if
he will prescribe it for you.
Valerie in Illinois
--- On Fri, 11/28/08, Sharon M <[EMAIL PROTECTED]> wrote:
From: Sharon M <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM .... and such
To: "Pieter and Heather" <[EMAIL PROTECTED]>, tmic-list@eskimo.com
Date: Friday, November 28, 2008, 9:21 AM
Thanks Heather. The pain in my back was so severe last night that I decided I
would see a doctor and insist that they get to the bottom of it. I want to
find out for sure what is causing this pain. It is so easy to blame everything
on MS.
I'm not a wimp when it comes to pain. I have had chronic pain most of my life,
but this is different.
I don't think it would help to help to see neuro again. He assumes the pain is
nerve pain, is connected to TM level in my spine and says the Neurontin should
help. Hello! Neurontin does not help.
How is your sister doing now? I run a large MS support group on Yahoo and it's
not unusual to have other family members with MS or some of the rare neuro
diseases.
Hugs)))
Sharon
The bluebird in the cedar tree spoke to me... "Your heart's desire dwells
here--this is where you belong"
--- On Thu, 11/27/08, Pieter and Heather <[EMAIL PROTECTED]> wrote:
From: Pieter and Heather <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM .... and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM
Sharon,
Are you going to be seeing your neuro again soon? I would be asking him about
it again. Could it be another attack of the MS? I know my sister has MS and
hers was a severe attack back in the late 80's. At that time they weren't sure
it was MS.She then had a second severe attack in 1991 (when she was finally
diagnosed). She figures she must have had MS even in the mid to late 70's and
into the 80's but was never diagnosed. So I'm sure that MS can bring attacks
more than once.
Have you also seen your family physician to rule out any other problems? I
know that even with TM or MS that we need to remember there are other medical
problems other than these two that can cause problems.
Keep us posted
Heather in Calgary
----- Original Message -----
From: Sharon M
To: tmic-list@eskimo.com
Sent: Thursday, November 27, 2008 5:39 PM
Subject: [TMIC] lesions, re-occurance of TM .... and such
Hi again everyone!
I was hit with TM suddenly in 9/97 and then was dxed with MS in 8/98. They
have never found lesions in my spine but I do have lesions in my brain. My
original neuro says he still thinks I have a hidden lesion on my spine.
In late August 08 I was hit again with the severe numbness. This time on the
right side instead of the original left side. The numbness has not gotten
better this time. Then about 3 weeks ago I had a sudden, sharp severe pain in
my back at that same level. I saw my new neuro last week and he said it was
"all connected". I had already figured it was "connected". lol
I am having much worse back pain lately, too. Really bad and nothing helps
it. It's pain, burning and weakness....
That said, I am really doing pretty good. MS has kicked my butt at times and I
have never been symptom-free since the TM attack Labor Day, 1997. I've just
gotten worse over time.
I am one of the lucky TMers, though, so I really hate to complain. I know it
could be so much worse. I just wonder what you experts have to say about this
latest occurance for me.
hugs to you all
Sharon Marsden
--- On Tue, 11/25/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: tmic-digest Digest V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November 25, 2008, 3:32 PM
tmic-digest Digest Volume 2008 : Issue 457
Today's Topics:
Re: [TMIC] Re: tmic-digest Digest V2 [ "jrushton"
<[EMAIL PROTECTED] ]
#yiv622080814 #yiv413693790 #yiv1122938698 #yiv625162981 #yiv1833211580 v\:* {
}
#yiv622080814 #yiv413693790 #yiv1122938698 #yiv625162981 #yiv1833211580 v\:* {
}
Jenna, it must be 'where' the lesion is and how much damage it has or they have
done. Also, I think it also my have to do with how long it went on from the
onset before anything was done to 'stop' it?? Your earlier comment, "who knows
for sure" is right on! Jeanne
-------Original Message-------
From: Jenna
Date: 11/24/2008 8:13:40 PM
To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
It is complicated. But I have 3 lesions on my spine. And damage to my optic
nerve. So since the damage to the optic nerve was first, before the first
problems showed up in the spine, it is call Divic's version of MS. I hope this
makes some kind of since. But the weird thing to me is so many of you my
friends have no lesions, just inflammation and can not walk and here I am with
3 lesions and can still walk???
Jenna
From: Pieter and Heather <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 2:20:58 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
That is the way I understand it too Jude. My sister who is 3 yrs younger than
me has MS. It is the one that progresses slowly but everytime she has and MRI
she has more lesions on both spine and brain.
Heather in Calgary
----- Original Message -----
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Monday, November 24, 2008 12:06 PM
Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
Hello All,
It has been my understanding that with TM one must have lesions on the spine
but not on the brain. If one has lesions on the brain it is indicative of MS.
Am I misinformed regarding this information?
God Bless You,
Jude
In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, [EMAIL
PROTECTED] writes:
Frank,
They were never able to locate a lesion on my spine and from what I have read
on the message forums this is true for alot of people.
I had mutiple MRIs done both with and without contrast.
Lynne
--- On Sun, 11/23/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
> From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
> Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431
> To: "jrushton" <[EMAIL PROTECTED]>, [EMAIL PROTECTED], "TMIC"
> <tmic-list@eskimo.com>
> Date: Sunday, November 23, 2008, 4:30 PM
> > i have a question, has anyone else been told that
> they don't have > lesions on their spine? my neuro
> says mine is just swelling from c6-t3 > and t9-t10., so
> what does that mean?
>
> What does swelling from c6-t3 > and t9-t10 mean??
>
> Did you have an MRI with and with out gadolium
> (enhansement)?
>
> F
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