Thanks Heather. The pain in my back was so severe last night that I decided I
would see a doctor and insist that they get to the bottom of it. I want to
find out for sure what is causing this pain. It is so easy to blame everything
on MS.
I'm not a wimp when it comes to pain. I have had chronic pain most of my life,
but this is different.
I don't think it would help to help to see neuro again. He assumes the pain is
nerve pain, is connected to TM level in my spine and says the Neurontin should
help. Hello! Neurontin does not help.
How is your sister doing now? I run a large MS support group on Yahoo and it's
not unusual to have other family members with MS or some of the rare neuro
diseases.
Hugs)))
Sharon
The bluebird in the cedar tree spoke to me... "Your heart's desire dwells
here--this is where you belong"
--- On Thu, 11/27/08, Pieter and Heather <[EMAIL PROTECTED]> wrote:
From: Pieter and Heather <[EMAIL PROTECTED]>
Subject: Re: [TMIC] lesions, re-occurance of TM .... and such
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Date: Thursday, November 27, 2008, 10:42 PM
AOL Email
Sharon,
Are you going to be seeing your neuro again
soon? I would be asking him about it again. Could it be another
attack of the MS? I know my sister has MS and hers was a severe attack
back in the late 80's. At that time they weren't sure it was
MS.She then had a second severe attack in 1991 (when she was finally
diagnosed). She figures she must have had MS even in the mid to late 70's
and into the 80's but was never diagnosed. So I'm sure that MS can bring
attacks more than once.
Have you also seen your family physician to rule
out any other problems? I know that even with TM or MS that we need to
remember there are other medical problems other than these two that can cause
problems.
Keep us posted
Heather in Calgary
----- Original Message -----
From:
Sharon
M
To: tmic-list@eskimo.com
Sent: Thursday, November 27, 2008 5:39
PM
Subject: [TMIC] lesions, re-occurance of
TM .... and such
Hi again
everyone!
I was hit with TM
suddenly in 9/97 and then was dxed with MS in 8/98. They have
never found lesions in my spine but I do have lesions in my brain.
My original neuro says he still thinks I have a hidden lesion on my
spine.
In late August 08 I
was hit again with the severe numbness. This time on the right
side instead of the original left side. The numbness has not
gotten better this time. Then about 3 weeks ago I had a
sudden, sharp severe pain in my back at that same level. I saw my
new neuro last week and he said it was "all connected". I had
already figured it was "connected". lol
I am having much
worse back pain lately, too. Really bad and nothing helps
it. It's pain, burning and weakness....
That said, I am
really doing pretty good. MS has kicked my butt at times and I
have never been symptom-free since the TM attack Labor Day, 1997.
I've just gotten worse over time.
I am one of the lucky
TMers, though, so I really hate to complain. I know it could
be so much worse. I just wonder what you experts have to say about
this latest occurance for me.
hugs to you
all
Sharon
Marsden
--- On Tue, 11/25/08,
[EMAIL PROTECTED]
<[EMAIL PROTECTED]> wrote:
From:
[EMAIL PROTECTED]
<[EMAIL PROTECTED]>
Subject: tmic-digest Digest
V2008 #457
To: [EMAIL PROTECTED]
Date: Tuesday, November
25, 2008, 3:32 PM
tmic-digest Digest Volume 2008 : Issue 457
Today's Topics:
Re: [TMIC] Re: tmic-digest Digest V2 [ "jrushton"
<[EMAIL PROTECTED] ]
#yiv625162981 #yiv1833211580 v\:* {
}
#yiv625162981 #yiv1833211580 v\:* {
}
Jenna, it must be 'where' the lesion is and how much damage
it has or they have done. Also, I think it also my have to
do with how long it went on from the onset before anything was
done to 'stop' it?? Your earlier comment, "who knows for
sure" is right on! Jeanne
-------Original
Message-------
From: Jenna
Date:
11/24/2008 8:13:40 PM
To: Pieter and Heather; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]
Subject: Re:
[TMIC] Re: tmic-digest Digest V2008 #431
It
is complicated. But I have 3 lesions on my spine. And
damage to my optic nerve. So since the damage to the
optic nerve was first, before the first problems showed up in
the spine, it is call Divic's version of MS. I hope this
makes some kind of since. But the weird thing to me is so
many of you my friends have no lesions, just inflammation and
can not walk and here I am with 3 lesions and can still walk???
Jenna
From: Pieter and
Heather <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED];
[EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Monday, November 24,
2008 2:20:58 PM
Subject: Re: [TMIC] Re:
tmic-digest Digest V2008 #431
That is the way I
understand it too Jude. My sister who is 3 yrs younger
than me has MS. It is the one that progresses slowly but
everytime she has and MRI she has more lesions on both spine
and
brain.
Heather in Calgary
-----
Original Message -----
From:
[EMAIL PROTECTED]
To:
[EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent:
Monday, November 24, 2008 12:06 PM
Subject:
Re: [TMIC] Re: tmic-digest Digest V2008 #431
Hello All,
It has been my understanding
that with TM one must have lesions on the spine but not
on
the brain. If one has lesions on the brain it is
indicative of MS.
Am I misinformed regarding this
information?
God Bless
You,
Jude
In a message dated 11/24/2008 8:34:00 A.M. Eastern
Standard Time, [EMAIL PROTECTED]
writes:
Frank,
They were never able to
locate a lesion on my spine and from what I have read on
the message forums this is true for alot of people.
I had mutiple MRIs done both with and without
contrast.
Lynne
--- On Sun, 11/23/08,
[EMAIL PROTECTED] <[EMAIL PROTECTED]>
wrote:
> From: [EMAIL PROTECTED]
<[EMAIL PROTECTED]>
> Subject: Re: [TMIC]
Re: tmic-digest Digest V2008 #431
> To: "jrushton"
<[EMAIL PROTECTED]>, [EMAIL PROTECTED],
"TMIC" <tmic-list@eskimo.com>
> Date: Sunday,
November 23, 2008, 4:30 PM
> >
i have a question, has anyone else been told
that
> they don't have > lesions on their spine?
my neuro
> says mine is just swelling from c6-t3
> and t9-t10., so
> what does that mean?
>
> What does swelling from c6-t3 > and
t9-t10 mean??
>
> Did you have an MRI with
and with out gadolium
> (enhansement)?
>
> F
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