Hey there:
I, too, have no gall bladder..had it removed when I was 24 years
old.
I started out on 400mgs. of Gleevec upon dx'es and that's where I've
stayed
since the beginning. Nothing really bothers me as far as eating,
except
I have noticed I have a lot of "bloating" at times here
lately.
Awesome, Zavie!
On Jun 12, 3:34 pm, "Zavie miller" <[EMAIL PROTECTED]> wrote:
> Chat Reminder - Tuesday 9:00
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[CMLHope]
A sup
Hi:
When I go to see my doctor once ever four months, they already have
the orders at their lab ahead of time and ask you to come in thirty to
forty-five mintutes before doctor's appointed time for them to draw
the blood and do the tests. The CBC test is usually done and
presented to the doctor'
Dear Roger:
I am sorry for just now getting back to you as I've been sort of laid
up for past three days with lower back pain & not doing a whole lot
but laying around & reading. Felt much better this morning, so I am
now trying to play "catch up" with everything.
As for the "fogged mind" or "Gl
Cammy
Thanks! I went on line to look it up and I think I will call the
doctor to get a script. It sounds wonderful. I joined WW on line as
well but I never did check it.I couldn't get the site to work for me
or find my way around ( and I am pretty computer savy). I don't do
meetings because they
Hi
Welcome to the club. Sorry you had to join! But what a great group of
people. I named CML "Leukie the Dragon" and I became the dragon slayer
while moving into remission. It was an image that helped me. Funny
how Twilight Zone, Dragons and so many other things become our way of
placing this in
Sue, Barb and Lori: I joined WW for the umpteenth time April 24th 07. I am down
12 pounds there plus the 8- I lost from the beginning of the year. I gained 50+
pounds in the last 3 1/2 years from the Gleevic, the Lovenox shots, Procrit and
pity party. I have 51.9 pounds to lose to get to my goal
Hello Brooklyn,
Love your sense of humour. You are right about how hard it is tell
people about. In the beginning I sort of resented the way it changed
how people interact iwth me.
Love the twilight zone analogy
Congrats on your success thus far with Gleevec. A vast majority of
patients
Hi Doug,
Thanks so much for the update. I have been curious about mini SCT's
as I am about to turn 50 (shh, don't tell anyone ;-) )
Fortunately I have had a good response to low dose IFN, Gleevec and
now Sprycel. I do not have a sibling match and I did have my
stem cells harvested.
You have a
Barb,
Thanks for writing. Like you, I was particularly concerned about that age
window especially since the Gleevec was no longer working. I did not want to
suddenly move into a blastic phase which reduces the chances somewhat of a
successful BMT. Just before I came into hospital, I learned that
Hi Doug,
I was interested in your post with the BMT. You have a fabulous
attitude. That will bring you through this ! Early on in my
diagnosis, we looked at harveting stem cells for a possible BMT down
the road.They said my 'window' was getting narrow too and I had no sib
match. I went to City
Susan, Lori and Rebecca,
Well, looks like we can have our little on line WW meeting while we
support each other with CML eh? I gained 45 pounds on gleevec. My
normal weigh was 140 but I had lost down to 124 prediagnosis. My
spleen was enlarged. I wieghed in at 169 a month ago. I plan to get
down
Rob,
Thank you. I have started one, but haven't kept it up well. I will keep
trying.
Doug
.
_
From: CMLHope@googlegroups.com [mailto:[EMAIL PROTECTED] On Behalf
Of Rob
Sent: Wednesday, June 13, 2007 11:51 PM
To: CMLHope@googlegroups.com
Subject: [CMLHope] Re: To Dr. Douglas Hampton -
Brooklyn,
Thank you. And I am wishing the best on your treatment.
Doug
> -Original Message-
> From: CMLHope@googlegroups.com
> [mailto:[EMAIL PROTECTED] On Behalf Of brooklyn bruiser
> Sent: Thursday, June 14, 2007 3:53 AM
> To: CMLHope
> Subject: [CMLHope] Re: To Dr. Douglas Hampton
Dr. Doug - wishing you blessings, peace, and good things...
Brooklyn Bruiser
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