Good to hear from Jim and Peg. I recently had the same thing happen to
me. I was in my onc's office and my daughter told me my eye was really red.
I actually had an eye bleed in the Onc's office. He said he couldn't say
it was from the Sprycel and called in the pharmacist and she said th
all! and 18's,
Susan
-Original Message-
From: Marcie Goodman
To: cmlhope
Sent: Sat, Mar 30, 2013 5:02 pm
Subject: Re: [CMLHope] eye bleeds
Hi Jeanie:
I totally agree that the eye doctors and even the best hematologists and
oncologists don't get the eye bleeds. I
: Marcie Goodman
To: cmlhope
Sent: Sat, Mar 30, 2013 5:02 pm
Subject: Re: [CMLHope] eye bleeds
Hi Jeanie:
I totally agree that the eye doctors and even the best hematologists and
oncologists don't get the eye bleeds. I just had my 4 year anniversary of
diagnosis and starting gleevec. I'v
Hi Jeanie:
I totally agree that the eye doctors and even the best hematologists and
oncologists don't get the eye bleeds. I just had my 4 year anniversary of
diagnosis and starting gleevec. I've had numerous eye bleeds, had them checked
out with the best opthamologist at Johns Hopkins here in B
Hello everyone, My eye is still red and hurts a little. I have been
applying cold compresses. The problem is an eye doctor wouldn't understand
the
meds I am taking and what they do, however I will go soon if it doesn't
clear up.
Anyone with advice on Eye bleeds
Jeanie<3
In a message da
vec. (I'm a month away from 2 years on Tasigna
and a year of PCRU.)
If your eyes itch, rubbing is not an option. I got relief with a cold
washcloth gently dabbed on closed eyes.
Patrick
--- On Wed, 1/23/13, Dorisbmt wrote:
From: Dorisbmt
Subject: [CMLHope] Eye bleeds.
To: cmlhope@go
Wow! Millie, that is cold. It has been cold here also for Florida. I am
running my heater right now. The sun is out but it's still cold at least
for me.
Going to take my daily walk, and eat an orange. I call it my D&C. hehe
Glad your home health care of over, but when you need it you need
Hi MartyGood to see you on line. I am hoping you are okay these days.
I just came off of two months of Home Care, but really need to work on building
my strength again. I will get there. I think that every day I get a bit back.
I just don't ever give up, but then that's me. I thank God
Hi Doris-bmt,
According to web-md a rare side effect of Gleevec is Retinal Hemorrhage as
well as Eye Bleeds.
Although I have never been on it, I had a bone marrow transplant almost 23
years ago, I have heard of this happening many times with people taking
Gleevec.
It usually subsides in a short
m: Dorisbmt
Subject: [CMLHope] Eye bleeds.
To: cmlhope@googlegroups.com
Date: Wednesday, January 23, 2013, 10:17 AM
I have had eye bleeds but I don't know if gleevec has anything to do with it.
I've been on gleevec since 2002.
Sent via the Samsung Galaxy S™ II Skyrocket™, an AT&a
I had two eye bleeds while on gleevec. I had rubbed my eye because they were so
dry. I had cramps in my fingers and legs also. I'm on sprycel now. No eye
bleeds so far. The eye bleeds usually clear up on their own. Good luck. Jeanie
Sent from my iPhone
On Jan 23, 2013, at 11:31 AM, "C.M. Houtz"
ork. They usually go away
within a day or so.
Marcie
-Original Message-
From: C.M. Houtz
To: cmlhope
Sent: Wed, Jan 23, 2013 11:32 am
Subject: Re: [CMLHope] Eye bleeds.
I had many eye bleeds while on Gleevec. I think I've only had one minor one
since being put on Tasigna. Each
I had many eye bleeds while on Gleevec. I think I've only had one minor one
since being put on Tasigna. Each time I went to the eye doctor and all was
well. I think it's something you have to have checked, but probably it will
go away in a few days. I noticed that I had more while in air co
I have had eye bleeds but I don't know if gleevec has anything to do with it.
I've been on gleevec since 2002.
Sent via the Samsung Galaxy S™ II Skyrocket™, an AT&T 4G LTE smartphone.
--
[CMLHope]
A support group of http://cmlhope.com
-
You rec
Sun, May 8, 2011 9:38 pm
Subject: [CMLHope] Eye Bleeds
I've been on Gleevec since March '09, should let Zavie know that I can be his
newest member of the zero club. But tonight I got an eye bleed. Doesn't hurt
but looks awful. Anyone have any info on what to expect?
Thanks, dea
While on Gleevec, I had lots of eye bleeds.two or three a year. I went
to my Eye Doctor, who always checked them out. At that time I didn't have
any idea that it was from the Gleevec. Mine went away after a week or so,
but they scared me at the time. I never did tell my Oncologist, so th
.
From: sherri swanson
To: cmlhope@googlegroups.com
Sent: Mon, May 9, 2011 11:49:29 AM
Subject: Re: [CMLHope] Eye Bleeds
Okay, I have a silly question. Every once in awhile I wake up with my right or
left eye in the corner all blood shot. It looks terrible and like I've been
Susan
>
>
>
>
> -Original Message-
> From: maggy...@bellsouth.net
> To: cmlhope
> Sent: Mon, May 9, 2011 3:41 am
> Subject: Re: [CMLHope] Eye Bleeds
>
> I was on Gleevac when one day I woke up with bilateral eye bleeds. I
> was immediately removed f
Sent: Mon, May 9, 2011 3:41 am
Subject: Re: [CMLHope] Eye Bleeds
I was on Gleevac when one day I woke up with bilateral eye bleeds. I was
immediately removed from the Gleevac. If Gleevac can make your eyes bleed
it's potentially possible for it to make your brain bleeed - and to cause
Your blood vessels are very close to the skin in your eye, you may have
wiped your eye to hard with a towel after taking a shower or rubbed it hard
for some reason. It doesn't take much.
greenie
--
[CMLHope]
A support group of http://cmlhope.com
---
Give it about 3 to 5 days and it will go away. I get them once in a
while.
greenie
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to thi
r over 1.5 years now. This week I
may be restarted on a lower dose of Gleevac per my hematologist. We will see.
From: judy
To: cmlhope@googlegroups.com
Cc: jam_92...@yahoo.com
Sent: Sun, May 8, 2011 11:34:39 PM
Subject: Re: [CMLHope] Eye Bleeds
Hello Marcie t
. Keep on fighting. Best regards Michael Hedlund
Sweden
-Original Message-
From: Marcie
To: cmlhope@googlegroups.com
Date: Mon, 9 May 2011 00:38:35 -0400
Subject: [CMLHope] Eye Bleeds
I've been on Gleevec since March '09, should let Zavie know that I can
be his newest
s.com
Sent: Mon, May 9, 2011 12:38:35 AM
Subject: [CMLHope] Eye Bleeds
I've been on Gleevec since March '09, should let Zavie know that I can be his
newest member of the zero club. But tonight I got an eye bleed. Doesn't hurt
but
looks awful. Anyone have any info on what to expe
I've been on Gleevec since March '09, should let Zavie know that I can
be his newest member of the zero club. But tonight I got an eye bleed.
Doesn't hurt but looks awful. Anyone have any info on what to expect?
Thanks, dear friends. Even my wonderful doctor says every now and then
"go chec
nths ago
when it was 0.012. In a month they will recheck and then decide if I need to
be on anything.
From: Victoria Reiter
To: CMLHope@googlegroups.com
Sent: Sun, March 20, 2011 9:29:56 AM
Subject: [CMLHope] Eye bleeds
I've been on Gleevec for
t 11:10 AM, Susan Zimmerman wrote:
> Dear Marty,
>
> Is this stem cell transplant available for type 1 diabetes patients?
>
> Susan
>
>
>
> -Original Message-
> From: Martin Gartenberg
> To: cmlhope
> Sent: Sun, Mar 20, 2011 5:44 pm
> Subject: Re: [CML
Dear Marty,
Is this stem cell transplant available for type 1 diabetes patients?
Susan
-Original Message-
From: Martin Gartenberg
To: cmlhope
Sent: Sun, Mar 20, 2011 5:44 pm
Subject: Re: [CMLHope] eye bleeds and brain bleeds
Dear Susan,
I am so happy for you being off of
Dear Susan,
I am so happy for you being off of Gleevec and doing quite well. I hope that
this goes on for you for many, many years.
I will pray for your mother-in-law to at least have an easy time of it, and
that her suffering is very little.
You do know that you are her guardian angel...
*18's
Dear Marty,
You've really got a handle on it! And I clear my throat to you, as well!
Things with mother-in-law are
getting toward the hospice house decisionshe can't get free of pain.
Thanks for caring. Yes, G_d is really
watching over us all, including you! He will go to great lengths
toria Reiter
To: CMLHope@googlegroups.com
Sent: Sun, March 20, 2011 9:29:56 AM
Subject: [CMLHope] Eye bleeds
I've been on Gleevec for eleven years and began to have occasional eye bleeds
about six years ago. This lasted for a short time and then stopped. Now I'll
have perhaps one eye b
I've been on Gleevec for eleven years and began to have occasional eye
bleeds about six years ago. This lasted for a short time and then stopped.
Now I'll have perhaps one eye bleed a year and count myself lucky. I was
unaware that a few people were having bleeding in the brain and am not
certain
From: Sandy Byrd
To: CMLHope@googlegroups.com
Sent: Wed, Sep 15, 2010 11:19 aco
Subject: [CMLHope] EYE BLEEDS
I am having more frequent eye bleeds now, and would like to know how many
of you have had this side effect and how often you have them. I am on 400
mg Gleevec a day a
I've 2 in 5 years.
_
From: cmlhope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf
Of ANGELYN ESDERS
Sent: September-15-10 8:00 PM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] EYE BLEEDS
I've been on 300 mg Gleevec since Jan. 2001 and have never yet
I've been on 300 mg Gleevec since Jan. 2001 and have never yet had an eye
bleed.
<
Angie in Canada
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
T
veral days to
dissipate, others they are gone the next day! I wish you well! Jim
Rodeghier
--- On Wed, 9/15/10, Sandy Byrd wrote:
From: Sandy Byrd
Subject: [CMLHope] EYE BLEEDS
To: CMLHope@googlegroups.com
Date: Wednesday, September 15, 2010, 1:19 PM
Dear Warrior
HI Sandy,
I have had two eye bleeds while on Gleevec and one on Tasigna. I am
grateful they are not too badI did go to the eye doc and she reassured me
that
no damage was donegood luck to you..Beth
--
[CMLHope]
A support group of http://cmlhope.com
---
fortunate. You all take care...Millie
- Original Message -
From: Virginia Garner
To: cmlhope@googlegroups.com
Sent: Wednesday, September 15, 2010 6:23 PM
Subject: Re: [CMLHope] EYE BLEEDS
I have had eye bleeds for years. For me they seem to come in clusters. One
time
m to be any rhyme or reason to it. My
ophthalmologist says not to worry. I've had some really good deep solid red
ones that elicit lots of sympathy from lots of people!
-Original Message-
From: Sandy Byrd
To: CMLHope@googlegroups.com
Sent: Wed, Sep 15, 2010 11:19 am
Subj
Dear Warriors
I am having more frequent eye bleeds now, and would like to know how many of
you
have had this side effect and how often you have them. I am on 400 mg Gleevec
a
day and have been in remission October, 2009.
Thank you in advance for any info you can give me.
Take care, ya'll,
S
I take mine with lots of water with food. Have had no problems. All the
best on your journey. My bothersome side effect is Peripheral Neuropathy.
So far it hasn't affected my balance and it is not painful...so we will
hope for the best. Here is to a great new year for all of us on this
Yes Sprycell is much easier than the other drugs to take, but I still take
it with food although you don't have to, and my doctor told me it is a lot
different than the other cml drugs.Good luck and let us know how you are
doing.
Jeanie<3
In a message dated 12/13/2009 12:35:22 P.M. Pacifi
Spyrecel easy to take with or without food? that's a huge plus. I couldn't
seem to eat enough befoer taking Gleevac, horrible nausea.
--- On Sat, 12/12/09, icandoall...@aol.com wrote:
From: icandoall...@aol.com
Subject: Re: [Possible Spam][CMLHope] Eye bleeds
T
Good luck on your journey into the world of Sprycell-it has a lot less side
effects than Gleevec, at least for me it does. it's easy to take-with our
without food.
Let us know how you feel on it-I do have headaches and nasal problems.
Blessings,
Jeanie<3
In a message dated 12/10/2009 11:0
Hi Susan,
I go to Moffitt also-see Dr Balducci-I really like him.
I am on 100 mgs of Sprycell and my blood is already back to normal.
Good luck,
Jeanie<3
In a message dated 12/10/2009 2:23:32 P.M. Pacific Standard Time,
rszim0...@aol.com writes:
For Tony, yes my counts are slowly rising, ha
For Tony, yes my counts are slowly rising, have about 40% leukemic cells in my
blood now but still in cytogenetic
remission. I try to go as natural as possible with eating and supplements and
also have a biofeedback machine
called a SCIO machine which treats me weekly for leukemia. I think that
remission.
--- On Wed, 12/9/09, Tony Lanoue wrote:
From: Tony Lanoue
Subject: RE: [Possible Spam][CMLHope] Eye bleeds
To: cmlhope@googlegroups.com
Date: Wednesday, December 9, 2009, 10:39 PM
2 1/2 years on nothing are your counts stable or are they slowly rising,
because maybe the Gleevec di
: CMLHope@googlegroups.com
Subject: [Possible Spam][CMLHope] Eye bleeds
Thanks for the post, Maggie May regarding eye bleeds. I had 2 1/2 yrs on
gleevec after diagnosis on Feb 14, 2005. Then a brain bleed with many eye
bleeds beforehand caused me to stop. I have been on nothing for 2 1/2 more
years
Thanks for the post, Maggie May regarding eye bleeds. I had 2 1/2 yrs on
gleevec after diagnosis on Feb 14, 2005. Then a brain bleed with many eye
bleeds beforehand caused me to stop. I have been on nothing for 2 1/2 more
years, still in cytogenetic remission, but soon will have to go back to
Dear Gay,
Thank you for the tip on bilberry extractI will get on it right away!
Susan
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed
Yes, eyebleeds caused by Gleevec, listed as one of the side effects.
Not serious but very scary.
Blessings
Jeanie<3
In a message dated 6/5/2009 7:36:50 P.M. Eastern Daylight Time,
sheila.a.wat...@gmail.com writes:
Hi Susie Q,
Interesting we go by the same here...:) :)
Yes to the eye
Hi Susie Q, yes I've had the eyebleeds.
Actually just one but it scared me.
It cleared up right away and didn't hurt at all.
Do you mean your platelets are high.
Blessings,
Jeanie<3
There is Moffit Cancer Center in Tampa and Orlando has a cancer center
also.
Good luck,
In a message dated 6/
Hello everyone,
I am having a terrible time with eyebleeds.
The white of my right eye is covered in blood.
It looks frightening and is very embarrassing!
Is anyone else having this problem?
I am on 200 mg of Gleevec and doing very well:)
My best to everyone.
Penny
--~--~-~--~~--
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