Hey there Jeanie!
It has been a while since I have talked to you. We've been a part of this
group for a very long time, haven't we? :)...
I have been taking Gleevec now for 12 years this past February. Started
out on 400mgs. and am now down to just taking a 100mg. tablet a day. So
much be
to ask questions, like has
> he or she ever seen this before with gleevec etc...??Has it been successfully
> been treated on others???with what???
>
> Take care, my best, 18
> s
>
>
> Beth
>
>
> -Original Message-
> From: kathy walls
> To: cmlhop
what???
Take care, my best, 18
s
Beth
-Original Message-
From: kathy walls
To: cmlhope
Sent: Tue, Mar 29, 2016 12:42 pm
Subject: Re: [CMLHope] To Susan Zimmerman
Hi all,
I am real new to the CML world only 14 months out from diagnosis. I have
learned a lot from reading posts
Hi and yes I use bag balm. My son bought it at a farm store.
I had rashes, boils, and you name it while on Gleevec.
It works really well.
My doctor gave me some hydrocortizone cream.
Try anything you can and see what works for you.
Mile soda water solution is good also.
Blessings
Jeanie<3
In a
Hi Kate,
I am sad that you have to be here, but at the same time I am also glad that
your here. Sad you have CML but glad because you will be able to learn many
things from everyone of us that are here.
Do you know or possibly know of anyone that have used Bag Balm? Well you
actually now know of
I only know that some CMLers have a rash but not acne. Most I have heard
of treat with an anti-itch creme. I am sure others will be able to tell
you more. I haven't had one, just remember the talk.
Welcome to the club that no one wants to be a member of. I have been
around for 14 years
Ri
Hi all,
I am real new to the CML world only 14 months out from diagnosis. I have
learned a lot from reading posts here. It's been helpful. My dr is a CML dr
and I've had very good results medicine wise but he has no answers for side
effects Specially bad acne break outs. All he says it's b
Marcie,
So glad the gall bladder settled down. I give our God ALL the credit for that!
So sorry to hear about your husband's issues as well. Is he doing ok now? Not
sposed to take turns at the hospital. How will you ever get in a vacation?
Blessings at Passover time.
Love,
Susan F. Zimmerm
Dear Jeanie, so sorry you are still in the dark about the side pain. I was
hoping they would ask for a pet scan to rule out a different kind of cancer. I
encourage you again to get to the bottom of it.is it at all connected to
plural effusion? Ponatinib has some ability to give heart or blee
of my system it eventually all grew
back.It was terrifying for me to be losing my hair.That which does not kill us
only makes us stronger...Angie
From: 'Marcie Goodman' via CMLHope
To: cmlhope@googlegroups.com
Sent: Saturday, March 26, 2016 1:26 PM
Subject: Re: [CMLHope] To
mission from CML since July 2001. I have been off Gleevec
>>> for 10 months now. So far so good.
>>> With a tag-team like leukemia and lupus, one never knows what to expect
>>> next.
>>> Anyway, Life is good. No complaints.
>>> Angie in Canada
>>>
July 2001. I have been off Gleevec for
>> 10 months now. So far so good.
>> With a tag-team like leukemia and lupus, one never knows what to expect next.
>> Anyway, Life is good. No complaints.
>> Angie in Canada
>>
>>
>> From: 'Marcie Goodman'
Hi Marcie and happy Easter to you too.
Glad your pain has stopped. Mine used to stop too but now is constant.
Have you had your gallbladder out? I had mine out years ago.
Yes get an MRI or ultrasound as soon as you can. I just had a chest X-ray and
showed my lungs were good and nothing chang
gt; Anyway, Life is good. No complaints.
> Angie in Canada
>
>
> From: 'Marcie Goodman' via CMLHope
> To: cmlhope@googlegroups.com
> Sent: Thursday, March 24, 2016 5:07 PM
> Subject: Re: [CMLHope] To Susan Zimmerman
>
> Susan, as always, I have you and R
Thanks, Susan. I missed an appointment for blood labs because my husband was in
the hospital and having complications from his medical issues. No one to blame
but myself.
The pain on side has gone so at least for now I'm not going to worry about it.
I'll be following up this week with my docto
Thanks so very much, Jeanie. The pain on right side has stopped but I wish get
an ultrasound as soon as I feel stronger. You are correct - faith and pills!
Best wishes for a blessed and Happy Easter.
Marcie
Sent from my iPhone
> On Mar 24, 2016, at 5:19 PM, 'Icandoallttc' via CMLHope
> wro
> To: cmlhope@googlegroups.com
> Sent: Thursday, March 24, 2016 5:07 PM
> Subject: Re: [CMLHope] To Susan Zimmerman
>
> Susan, as always, I have you and Roy in my prayers. Please let us know how
> your test turns out.
>
> I just got out of hospital because my red cells b
Hi Anthony and good to hear from you. My right side pain was with me for a
while but got worse when put in Tasigna.
It now goes up to a 10 and have to take pain meds for it. No cure just
management. Probably a lot like Lupus.
What tki do you take?
My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟
I also get mild right side painAnthony LanoueSent with MailBuzzrOn Mar 24, 2016, 5:44 PM, Icandoallttc' via CMLHope wrote:Hi Susan and thanks so much. My side pain is still bad but tests show nothing. Just treating the pain. I read something about an MS hug. My side pain has a lot of similari
' via CMLHope
To: cmlhope@googlegroups.com
Sent: Thursday, March 24, 2016 5:07 PM
Subject: Re: [CMLHope] To Susan Zimmerman
Susan, as always, I have you and Roy in my prayers. Please let us know how your
test turns out.
I just got out of hospital because my red cells bottomed out an
Hi Susan and thanks so much.
My side pain is still bad but tests show nothing. Just treating the pain. I
read something about an MS hug. My side pain has a lot of similarities to
that.
I think the tkis caused this as it got worse when I had to go on Tasigna.
My Creatine was up but it seems
Thank you so much, Jeanie!!! You are special to us all. How's the sideache and
any more tests about it specifically?
18"s,
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and
shall have wonderful peace." Ps.37:11
On Thursday, March 24, 2016 'Icando
Marcie,
I'm hoping for some quiet time for you and your hubby. Not exactly dull, but
peaceful!
Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and
shall have wonderful peace." Ps.37:11
On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope
wrot
So sorry to hear about a hospital stay. These are not places we want to hang
outlow red cells does not sound good, but I'm sure you have great docs. Was
that low a gradual thing or quick? Seems they should or could have caught it
before you bottomed out if it was gradual.
I sure hope it tu
Hi Susan and Marcie
Prayers for both of you. Sorry for your hospital stay but we need them when we
get sick. I hope you find the root of your problems.
I had my gallbladder out many years ago. That's some bad pain. Good luck.
Susan good luck off meds. Hang in there and fight. Blessings
Susan, as always, I have you and Roy in my prayers. Please let us know how your
test turns out.
I just got out of hospital because my red cells bottomed out and I became very
sick. So some transfusions and several days later, just came home. I will be
undergoing more tests, might have gallblad
Thanks for the encouragement. I may write him but not confident he would have
any different answers. Dr. Jessica Altman is completely on top of things for
me. I"ve been to two other specialists at Nwestern to dig into
causesnothing unusual except cavernous malformations turns up. Have checke
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