http://www.quadomated.com/adaptive-awesomeness/
This site has a description of the
surgery.http://www.medtronic.com.au/your-health/multiple-sclerosis/getting-a-device/surgery/index.htm
The tubing takes the drug straight from the pump to your spine. That is why
you use so much less.
KK
Date: Tue, 10 Jun 2014 15:50:31 -0500
Subject: Re:
http://powerchairdiaries.com/2014/05/23/working-class-hero/
OK watch the video. I used to have a speech machine just like his.
As far as using weights - nothing for left arm 5 lb in right. WOO-HOO!
KK
https://www.youtube.com/watch?v=P7A2oSEw_Gk
This is the ad
KK
From: bobbiehumphre...@gmail.com
Date: Thu, 8 May 2014 16:56:25 -0400
To: quad-list@eskimo.com
Subject: [QUAD-L] TV commercial with Quad
Has anybody seen the Petco commercial with a male quad in a manual wheelchair
being
http://www.astronomy.com/observing/sky-events/2014/02/watch-a-total-lunar-eclipse-april-15
http://www.usatechguide.org/blog/clamp-lantern-flashlight-wheelchair-accessory/
Rather expensive for what I had in mind to use it for. Head lights for
wheelchair!
Be sure to watch the video.
Mar 26, 2014 09:34PMJUST PASSING IT ON
*HAVE YOU ALL CONSIDERED
THIS!?!?!?!?!?!...just saying!!That, maybe, what we are now experiencing with
our MS symptoms is what we humanoids were suppose to be like all
along!?!?!?!?!!I mean, think about itWasn't it a
The guy who wrote this is just now getting into wheelchair full time. He still
thinks he can keep up with his bladder issues. Losing ground rather quickly.
Give me your friends email address maybe we can chat a bit. Plenty of groups
chats out there for us MSer's.
KK
Date: Thu, 27 Mar
passing it on!
KK
From: ecata...@allegromedical.com
To: kkba...@outlook.com
Date: Mon, 24 Mar 2014 13:03:32 -0400
Subject: Limited Time - Belly Bag Urinary Drainage Bag - Only $15.99
Limited Time Only - Belly Bag Urinary Drainage Bag - Only $15.99.
Limited Time
Son bought (with my income tax money) a laptop with a stand to attach to my
wheelchair. He is setting it up for me but it has Windows 8. People have been
complaining about it being hard. I'll be using either a mouse or the stylus I
made out of a piece a plastic plumbing T. The stand is to
It's about ECU
http://www.ablenetinc.com/Assistive-Technology/Environmental-Control-Units-ECU
in selling if anybody is looking for an ECU.
It can control phone,tv,stero, lights, bed, appliances
Derrick W
On 3/21/2014 12:37 PM, KK Batte wrote:
It's about ECU
http://www.ablenetinc.com/Assistive-Technology
I want one!!!
http://www.dcimotors.com/
http://www.nbcolympics.com/content/sochi-2014-paralympics-telecast-schedule
for my new Medicare paid wheelchair done. Nursing home health agency called
today because they don't order wheelchairs. One more thing down.
Can any one suggest a back that will support my upper back? Every back I ever
had stopped at the angel bones. Guess I need a full back this time .
KK
http://www.paralympic.org/sochi-2014
A little
walk down memory lane...
This
should bring back a lot of memories.
Just to give you guys a moment to dream, I am going to the park to watch the
ducks. It is almost noon 62 degrees.
KK - loving today's weather in Houston TX
CC: quad-list@eskimo.com
From: blan...@verizon.net
Subject: Re: [QUAD-L] 12 of snow here in New Jersey GOT YOU BEAT
Date: Sat, 15 Feb
Subject:
Texting Elderly
Texting
Elderly
An elderly
couple had just learned how to send text messages on their cell phones. The
wife was a romantic type, and the
PR Newswire
NEW YORK, Feb. 6, 2014
.@UnitedSpinal Hosts Free Feb Webinars: Access to #Catheters Home
Modifications for #Wheelchair Users #accessibility http://bit.ly/1bZJbsm
NEW YORK, Feb. 6, 2014 /PRNewswire-USNewswire/ -- United Spinal Association's
membership division, National
I have a front door remote opener. But if the door is locked, the remote
doesn't work.
When you are alone, how do you unlock open the door?
KK
Date: Sun, 2 Feb 2014 20:40:37 -0500
Subject: would you please post this
From: elizabeth2...@gmail.com
To: kkba...@outlook.com
You said you could post things for me since I am unable to do it. They are
discussing colostomy on the QUAD-L email group. Would you please post this
link to a past
Sorry guys but I got sick with flu type illness Christmas. Finish the
antibiotics tomorrow still not better. GRRR!!
KKB
Date: Thu, 16 Jan 2014 11:24:16 -0800
From: scamper2...@att.net
Subject: Re: [QUAD-L] Re: quad site
To: wheelch...@aol.com; gah17...@aol.com
CC: quad-list@eskimo.com
Love the storm names. Keep y our socks on snuggle tight!
KK
From: bobbiehumphre...@gmail.com
Date: Fri, 3 Jan 2014 16:47:08 -0500
To: quad-list@eskimo.com
Subject: [QUAD-L] Very, very cold tonight
Hi All,
Here in Northern New Jersey we got 8 inches of snow overnight today's
I have a Mason 2000ADJ which is cheap I know. This is my 3rd pump in 4 years.
They seem to lose pump pressure over time. I have gotten a new pump each time
- no charge - of course. But this newest one isn't keeping the level where it
should be.
What kind of Alternating air mattress do
If it is my time, I ain't going to fight it BUT... I am not going to do
anything to make it happen today.
Now if life got to be a chore just to breathe, then I may have to think twice.
LOL!!!
Make everyday count.
KK
From: bobbiehumphre...@gmail.com
Date: Wed, 4 Dec 2013 16:22:48 -0500
But they are easier to keep clean. If I didn't have one, I'm not sure I could
stand living. The idea of being in a wet diaper is appalling.
KK
CC: bobbiehumphre...@gmail.com; gah17...@aol.com; quad-list@eskimo.com
From: gentr...@yahoo.com
Subject: Re: [QUAD-L] Posts?
Date: Fri, 29 Nov 2013
Tell me about Skype. I haven't tried it. Have a camera but no microphone. Is
it free it call someone else with Skype?
KK
From: da...@immortaldesigns.co
To: ismaelcavaz...@gmail.com; quad-List@eskimo.com
Subject: RE: [QUAD-L] Need to test my skype account
Date: Sat, 5 Oct 2013 18:59:57 -0700
http://www.youtube.com/watch?v=NokH2IHCUd4feature=em-uploademail
Yes Elizabeth this is another Chris, the quad video. But please watch it
help me figure this out.
He makes it look like it takes so little energy. Is this really life using a
lift? Is it safe to use a lift when you are alone.
http://www.renalandurologynews.com/non-uti-problems-common-with-urethral-catheters/article/311531/#
May cause bladder stones if improperly inserted.
Subject: Chobani, Inc. Voluntarily Recalls Greek Yogurt Because of Product
Concerns
Date: Thu, 5 Sep 2013 11:13:27 -0500
To: kkba...@outlook.com
From: f...@service.govdelivery.com
Chobani, Inc. Voluntarily Recalls Greek Yogurt Because of Product Concerns
You are subscribed to
http://www.contactmusic.com/story/blair-underwood-makes-mum-proud-as-wheelchair-bound-cop_389
His Mom has Multiple Sclerosis
http://online.wsj.com/article/SB10001424127887323415304578368591622892684.html#project=IVHackprintarticleTabs=interactive
attachment: ShowLetter.jpg
July 26, 2006
Re: ADA Anniversary Launch of Taxis For All – North America
Dear Friend:
United Spinal Association, one of the founding groups of the New York
City Taxis For All Campaign coalition, is pleased to announce the
launch of Taxis For All -North
Since I am one of the few females I will at least put a word.
Had uterine cancer in 1979 had all that stuff taken out. Don't
even remember much about those things. LOL!
After 3 years of recovering I have finally accepted that this is as
good as I am going to get. Got the referral for OT at home.
I have eating under control bathing. I can stand for about 10
minutes, long enough to wash the dishes. My aid comes 29 hours a
week. But I want to be able to
I have a C-3 partial a T-6/7 partial.
No feeling from nipple line down except for right arm. No feeling
except at muscle/joint connection. My biggest problem is with muscle
spasms.
KK
Hey at least with most SCI's you know what happened, the cause of not
being able to move. MS has been around since the 1400's. They still
don't know what causes it, how to fix it, how to prevent getting it.
It would be great to be able to move again but I am not counting on
it for me.
Too many trees in my area. LOL
KK
Can I SCREAM?
I live in a retired community. All that means is everyone, except
me my neighbor who is 54 I am 58, are over 65. People are
dropping all around me. No one wants to go any place or do
anything. I may be in a wheelchair can't remember sh** but I am
not dead.
Don't
What is the cost? Imagine it is expensive being so new.
My aid was filing my toe nails today I almost kicked her in the
face. Hate it when I have no control over the legs.
Was sitting outside drinking my coffee the maintenance man came up
started talking. HUD will be here for inspection today. We
started talking about my handicapped accessible kitchen. The
counters are a regular width so nothing can be done on that count but
the switches are at the back
http://www.newscientisttech.com/article.ns?
id=mg19125606.200feedId=health_rss20
Overcoming paralysis is a case of mind over matter
15 July 2006
Celeste Biever
Magazine issue 2560
A MAN paralysed from the neck down by knife injuries sustained five
years ago can now check his email, control
Did you hear that Sid Barrett died last weekend? He was the co-
founder of Pink Floyd.
I have to request a therapist who knows about CNS symptoms. If there
is no one, they either must find someone or I go to another place.
Like I kept telling my mother, it is your body, speak up tell them
what you need.
KK
http://www.unitedspinal.org/publications/action/2006/07/01/accessible-taxis-everywhere-a-realistic-goal/Accessible Taxis Everywhere: A Realistic GoalWhat’s good news for people with disabilities who want to use taxis in New York City is good news for people with disabilities nationwide.By Terry
Here they have to meet strict building codes. It took 3 years to get
them to keep the trees hide the garbage make the entire store
parking wheelchair accessible. It is a super Walmart. Takes me 2
days to get groceries one day drugs such the next. It is such a
happy store. Just
Study participants wanted
Forgiveness Copying after SCI
[EMAIL PROTECTED]
Parenting with a Disability
[EMAIL PROTECTED]
KK
PS - Does anyone else get this magazine? It is free from the VA
has some great subjects. Last month it was MS. This month it is
about legislation. No I was
I have no feeling from the chest down, don't even know where my body
is unless I look at it. Used to be able to walk by looking where my
feet were. awfully tiring on the poor damaged brain tho. Kept
running into walls.
I do have muscle spasms but only feel them at the point where muscle
KK is my initials. I am female, 58, MS since 1960, wheelchair last
12 years.
This same question should be asked of everyone - injured or not. All
we have is today. That's it. Make the best of the moment you have.
Worrying just gives you wrinkles. Then you have to buy a cream
make someone else rich. Don't worry in the first place keep your
own pennies!
KK
The one I get most often is - How can you be so happy?
I live in The Woodlands TX. That pretty much describes it. Trees
block all structures from the roads. No signs can be more than 5 ft
tall. Trees, trees more trees!
2 blocks down the street is a shopping center. It is hidden in the
trees also.
Every structure must be wheelchair
He has been on a Discovery channel show. The man who slept for 19 years I think is the name of the episode.KKOn Jul 4, 2006, at 11:59 AM, [EMAIL PROTECTED] wrote: http://articles.news.aol.com/news/_a/injured-mans-brain-rewires-itself/20060703184509990001?ncid=NWS000101 Dave
I have Yahoo Instant Message running all the time. So if anyone
wants to chat look me up.
[EMAIL PROTECTED]
http://www.workshopsolutions.com/index.htm
My upper body strength is getting worse by the day. Just tried
sitting on a ball my insides felt wobbley. Didn't fall but...
Is there a site that you go to for these types of exercises?
KK
I have a dial up system so my speed is slow. I can only listen to
stations with bands like 26. Love Beethoven.com but they do have
commercials. BostonPete.com has a lot of types of music but for some
unknown to me reason it will only play one song then the sound
stops. It says it is
How old when you had kids?KKOn Jun 28, 2006, at 10:46 AM, [EMAIL PROTECTED] wrote: broken at 19 - married at 26. job at 31, retired at 58. still crazy after all these years. Dave In a message dated 6/27/2006 4:25:39 P.M. US Mountain Standard Time, DAANOO writes: Hi Dave,how old were you
After getting lost, not once but twice, I finally found the docs new
office. Was
only 45 minutes late. Late enough to have to cancel my Uro appt for
kidney pain
relief. Rescheduled it for tomorrow.
Have a colonscopy endscopy scheduled. But I know it is only a MS
related
swallowing
The doc gave me Half Lytely. Thank goodness it is only a quart to
drink. Always had these tests done first thing in the morning. She
is doing it at 4:00 in the evening. Will be hard not to put anything
in my mouth all day.
She apparently lost track of her dog was trying to retrieve it off the side walk her chair got stuck in the sand. She yelled but with the air conditioners on, no one heard her. She got out of the chair crawled to a shady spot under a tree. She had breathed in sand smothered died.KKOn Jun
I can only relate in my MS situation. Fatigue plus overheating my
body stops moving from C3 down. I can not tell when I am either hot
or tired so it is bad news for me. This fatigue would cause me not
to have the strength to continue to raise my head above the sand.
Whenever I leave
There are extensions that can be placed on the tape player buttons so
you can use your fists to turn it on off. I'll see if I can find a
site with a picture.
KK
Lori, you don't get the books on tape for the blind? Not being able
to hold a book I have gotten them for years. Just finished Cybil
Shepard's book this morning.
| Stem Cell Trigger Protein Isolated || posted by art on Friday June 23, @06:30 (Research) || http://www.bostoncure.org:8080/article.pl?sid=06/06/23/1131211 |++[0]art writes
I did watch it. I too had questions. But the woman's own doctor
solved the case.
That is the stuff nightmares are made of.
KK
Moving that far south it is a different world than Houston area. I
survive the heat with a cool vest. Looks like a hunting vest but
has pockets inside where you place chemical ice packs. They last
from 4 - 6 hours. There are days when I wear it inside the house
with the air
http://www.npr.org/templates/story/story.php?storyId=5498671All Things Considered, June 20, 2006 · Twelve years ago, Tennessee launched a bold experiment in health care that drew national attention. The state guaranteed health insurance to every poor resident.Now Tennessee is again drawing
OK no one has mentioned my way yet. I squirt it on the side of the
sink wipe the brush in it. I also do hair mousse that way.
She is a quad. It is very informativeKKParalyzed and PregnantDHC Jun 12 07:00pm Special/Other, 60 Mins.A paralyzed woman's pregnancy.Original Airdate: June 12, 2006.Future Airings:Paralyzed and Pregnant, DHC Jun 12 10:00pmParalyzed and Pregnant, DHC Jun 17 02:00pm
When will the time be right for you? For me it is when I can no longer take care of myself. Today I realized that I was nearer than I thought to that point. But I have too much to do yet in this world.KKOn Jun 10, 2006, at 5:42 PM, [EMAIL PROTECTED] wrote: I think a bottle of valium and a
it on the Waiver. We're doing the paperwork now, but the program already looks good to me already. With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte [EMAIL PROTECTED] wrote: It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them
How in the world do you get in/on that thing! We are having a
hurricane evacuation meeting tomorrow. Maybe I should bring it up
with Emergency Preparedness.
KK
All horses are run aways.
I like this story.KKThe Bone Collector (1999)USA Jun 06 08:00pm Add to My CalendarMovies, 155 Mins.**+ (Rated R)A quadriplegic detective and a patrol cop try to catch a killer re-creating grisly crimes. Based on the book by Jeffery Deaver.Cast: Denzel Washington, Angelina Jolie, Queen Latifah,
Just ordered all these tapes from Library for the blind
handicapped. First 3 are by The Bone Collector author.
The Cold Moon : A Lincoln Rhyme Novel (Lincoln Rhyme Novels by
Jeffery Deaver
The Twelfth Card (A Lincoln Rhyme Novel) -- by Jeffery Deaver
The Lesson of Her Death -- by
Glossing Over Mistreatment in the Magbie CaseBy Colbert I. KingSaturday, April 8, 2006; A23Jonathan Magbie was a 27-year-old man who was paralyzed from the neck down as a result of a childhood accident. Although he had never been convicted of a criminal offense and although he required private
If it is a parking lot, like a grocery store or Walmart, the police do not have the right to give tickets because it is considered private property.KKOn May 26, 2006, at 4:13 PM, [EMAIL PROTECTED] wrote: In a message dated 5/25/2006 9:15:12 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes:
In most of the stalls I have been in room has been taken from the
other stalls. The hc stalls look large luxurious in comparison.
I think waiting, in their face so they have to see you, makes a
statement without saying a word.
This is from their web site www.megabus.com They aren't in the south yet. Would be a great way to travel into Houston for appointments thou. The buses that leave here aren't wheelchair accessible.\KKDo your buses take wheelchairs?If you normally use a wheelchair and are able to climb the few
Hey Mark - Is there a YMCA in your area? We have 2 in our tiny town. They have a sliding scale payment plan a lift to get you in out. The warm warm, heck any heat at all makes my body stop functioning. That makes it impossible to go to any of the rehab pools. The indoor pool at the Y is not
Yes income minus ALL medical expenses. I only paid $19 a month.KKOn May 19, 2006, at 12:38 PM, Miss Liz wrote:how do they determine a sliding scale?do you show proof of income? From: KK BatteTo: RollinOn ; quad-List@eskimo.comSent: Friday, May 19, 2006 1:28 PMSubject: Re: [QUAD-L] 3milesHey Mark
It takes 3-6 months in Texas. The 3 months if you have a wonderful
doc who will pester them to get it done quickly.
Do you even have someone assigned to your case yet?
Let me know if you get dry mouth. Again I stopped taking Neurontin
for 5 days, only take 900mg, now I have things crawling on me
biting me. Not really but that is what it feels like.
Finally broke down took a Neurontin at lunch. Couldn't take the
pain any more.
KK
Allergic to wasps bees. No perfume or scents for me ever. I even
had a bee attack me while wearing a beautiful flowered blouse. Guess
it wasn't a very bright bee!
KK
Thought you might get a laugh from this one!Prisoner In Wheelchair EscapesCall Crime Stoppers With InformationPOSTED: 4:12 pm CDT May 5, 2006HOUSTON -- A prisoner in a wheelchair escaped while he was being transferred Thursday night, officials told KPRC Local 2.It happened when METRO Lift
My computer has been my way to connect to others. Have friends from all over the world. I chatted just yesterday with someone from Australia who was home playing hooky.KKOn May 5, 2006, at 7:56 PM, S. Dial wrote:John, What you said pretty much mirrors my experience regarding no friends and
I have a friend who is losing use of both arms hands. He is still
working wants to continue but can't figure out what to do about the
joystick issue.
What are the alternatives to him using the joystick?
KK
You would love it here. This is our theater. Free tickets on the
grass for most concerts.
http://pavilion.woodlandscenter.org/
This is who is coming.
http://www.tickco.com/venue_schedules/woodlands_pavilion.htm
Kid Rock, Nine Inch Nails, Melissa Etheridge, Rob Thomas...
I just got my 3rd chair, 2nd power chair in 15 years. I have private
insurance no Medicare. Insurance company was being a hard a**
about the new chair. But I have gotten so much worse in the last 3
years, it was necessary.
Letters written by neuro internists finally got approval but
And remember, they are allowed to advertise. Another way to get someone to ASK for the drug. I am thinking about asking for Requip for restless leg syndrome. If I hadn't seen it on tv, I wouldn't know to ask for it.The bruises on my legs are horrible. Wake myself up kicking myself. OUCH!KKOn
How much Ditropan are you taking? Just changed to it a few weeks ago. It isn't helping. Still have to wear diapers SP cath.KKOn Apr 27, 2006, at 9:57 AM, ~LittleQuad~ wrote:i do too - may also try sanctura... is similar but stronger results for me... took for 2 weeks until started messing with
I have one of those chairs. Using it in the shower (I have to take a
shower) water gets everywhere. I have cut slits in the curtain,
sometimes it works, other times wet floor.
KK
I need a new mouse am thinking about going wireless. Anybody use
one? How long do the batteries last?
What about wireless keyboards? I am using a right hand Divorak
keyboard set up because only the right arm works.
Where you foot pad is, I decided to get articulating legs that raise
up down. Helps prevent swelling in legs.Now for transferring,
it is easiest to remove the leg closest to whatever I am transferring
into. My chair is a Quantum rehab chair.
My legs are heavy only have one arm to
What I did (for the month I tried it) was go down on Neurontin
start the Lyrica at the same time.
Went to Neurologist today. He is not changing something that works
(Neurontin) for pain seizures to something new that has the same
side effect (dry mouth).
Am I the only MSer on the list?
I am 57(58 on the 12th), female, single, mother of 3, grandmother of
4 a half. Lesion on brain stem, C-3 T-6/7
I like to do needlework in bed so I need bright light. Yes I have a
special frame to work it on it takes forever to finish but it gives
me something to do besides just vegetate.
Also have periods when I can't speak so I am hoping the remote
controller will work. Should be getting it
I found that cleaning with alcohol the connectors from the bag to the
catheter. That has stopped most infections. Except now I have a
drug resistant pseudomonas viral infection. Been on a week of Cipro
then another week of Levaquin. Fever is gone since Levaquin.
I just ordered this from QVC. Hoping the remote will work from the bed.3 Outlet Wireless Lighting System with RemoteQVC Price $25.23Shipping and Handling $4.47Save! Buy two or more and save on S H. Let this three-outlet wireless system with remote help you take charge of lighting. Well suited
1 - 100 of 103 matches
Mail list logo