Kevin,
For what it is worth, I was told by my Neuro, physcial therarpist, and Dr. Kerr
at John Hopkins, that the lesions cause trouble from the point on.
I was first dx with lesions from T1 and T2 and possibly some at C4 down. After
25 days, the lesions appeared from C4 down to T2 - This is
I am so scared!
I AM VENTING. THERE IS NO ONE ELSE I CAN SHARE THE FOLLOWING WITH:
Just a few weeks ago, it became obvious that I am getting gradually worse
every day. I felt vulnerable using the cane and started using the walker.
Following are the latest symptoms:
The
Helga: Yes, I am going to go to Baltimore on March 16 to give it a try:
I'll get back to everyone to let you know how it goes. The research
suggests that most folks who have this get at least 50% improvement, and I
don't know what improvement means, but I will before all is said and
done.
Cora
Oh Regina,
I am so sorry you are going through all of this. I am glad you have an MRI
scheduled. Can you go to the emergency room and get someones attention to all
the problems you are having? Can you get in to see your Dr. sooner??
Make sure you write down when the new symptoms
Regina,
I wish I could find the words that would be able to help you thru this awful
time in your life. But please do not give up! I have been having some of the
same weird symptoms over the past few weeks.
Weird taste in my mouth and awful headaches. I see my neuro tomorrow. But I
so agree with
Regina,
Like Jenna and Trudy, I am so sorry that you are going through a VERY difficult
time.
I'm not sure where you live but I know that when the weather changes here in FL
- which right now seems to be daily- my symptoms are much worse!The Highs
and Lows really effect my TM.
I will
Regina,
The difficulty walking, standing, bending, lifting and numbness in my
feet, and now in my hands, are worse than the pain for me. If I could
get from my condo to my car without help, I wouldn't feel trapped, and
the psychological value of that is greater than the pain. Today my pain
Larry,
Thank you for your kind thoughts.
I'm sorry that you suffer with pain also. I find
that family and friends don't really 'get it' (what chronic pain means)
though they think they do. But I don't blame
them, they try.
I take Effexor XR, an anti-depressant that I think
is in the same
Trudy,
I live in CT. I've been to doctors and hospitals
here and in NYC. Every one said something different,
but when I asked for a painkiller, they refused. Usually
I hear: you're already taking too many medications.
I take 2 BP drugs Vasotec Metoprolol, Xanax, 81mg Aspirin/day, Effexor XR,
Kevin,
Your correct effexor is very similar to cymbalta. I was on it for several years before changing. I did benefit from it but I work at a psychiatric hospital and was able to see the benefits of cymbalta when it first came out. And my doctor is more aggressive than most. And your also correct
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