Re: [TMIC] numb hand

2007-02-26 Thread Candis Kalley
Kevin, For what it is worth, I was told by my Neuro, physcial therarpist, and Dr. Kerr at John Hopkins, that the lesions cause trouble from the point on. I was first dx with lesions from T1 and T2 and possibly some at C4 down. After 25 days, the lesions appeared from C4 down to T2 - This is

[TMIC] Venting!

2007-02-26 Thread Regina Rummel
I am so scared! I AM VENTING. THERE IS NO ONE ELSE I CAN SHARE THE FOLLOWING WITH: Just a few weeks ago, it became obvious that I am getting gradually worse every day. I felt vulnerable using the cane and started using the walker. Following are the latest symptoms: The

Re: interstim therapy [TMIC]

2007-02-26 Thread ceckenberg
Helga: Yes, I am going to go to Baltimore on March 16 to give it a try: I'll get back to everyone to let you know how it goes. The research suggests that most folks who have this get at least 50% improvement, and I don't know what improvement means, but I will before all is said and done. Cora

Re: [TMIC] Venting!

2007-02-26 Thread Jenna Stentz
Oh Regina, I am so sorry you are going through all of this. I am glad you have an MRI scheduled. Can you go to the emergency room and get someones attention to all the problems you are having? Can you get in to see your Dr. sooner?? Make sure you write down when the new symptoms

RE: [TMIC] Venting!

2007-02-26 Thread Trudy
Regina, I wish I could find the words that would be able to help you thru this awful time in your life. But please do not give up! I have been having some of the same weird symptoms over the past few weeks. Weird taste in my mouth and awful headaches. I see my neuro tomorrow. But I so agree with

RE: [TMIC] Venting!

2007-02-26 Thread Candis Kalley
Regina, Like Jenna and Trudy, I am so sorry that you are going through a VERY difficult time. I'm not sure where you live but I know that when the weather changes here in FL - which right now seems to be daily- my symptoms are much worse!The Highs and Lows really effect my TM. I will

Re: [TMIC] Venting!

2007-02-26 Thread Kevin Wolfthal
Regina, The difficulty walking, standing, bending, lifting and numbness in my feet, and now in my hands, are worse than the pain for me. If I could get from my condo to my car without help, I wouldn't feel trapped, and the psychological value of that is greater than the pain. Today my pain

Re: [TMIC] Venting!

2007-02-26 Thread Kevin Wolfthal
Larry, Thank you for your kind thoughts. I'm sorry that you suffer with pain also. I find that family and friends don't really 'get it' (what chronic pain means) though they think they do. But I don't blame them, they try. I take Effexor XR, an anti-depressant that I think is in the same

Re: [TMIC] numb hand

2007-02-26 Thread Kevin Wolfthal
Trudy, I live in CT. I've been to doctors and hospitals here and in NYC. Every one said something different, but when I asked for a painkiller, they refused. Usually I hear: you're already taking too many medications. I take 2 BP drugs Vasotec Metoprolol, Xanax, 81mg Aspirin/day, Effexor XR,

Re: [TMIC] Venting!

2007-02-26 Thread Larry Throne
Kevin, Your correct effexor is very similar to cymbalta. I was on it for several years before changing. I did benefit from it but I work at a psychiatric hospital and was able to see the benefits of cymbalta when it first came out. And my doctor is more aggressive than most. And your also correct