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---BeginMessage---
From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL
PROTECTED]; [EMAIL PROTECTED]; [EMAIL
WELL I FINALLY GOT THE BIGGEST NEWS PROGRAM TO DO A SEGMANT ON THE MORNING
NEWS . IT WAS ON MONDAY MORNING. I WAS SHOCKED.
I CONTACTED ONE OF THE ANCHORS MR. ERIC PAULSEN. HE WROTE ME BACK. HE SAID
HE WOULD LOVE TO DO A INTERVIEW WITH ME. I TOLD HIM ALL ABOUT TM. HE NEVER
HEARD OF IT.
I
JUDE IS NOT DOING WELL AT ALL.SHE HAS THAT SORE ON HER TAILBONE IT IS
GETTING WORSE.
IT IS SO DEEP. SHE STILL IS ON ANTIBIOTICS. SHE STILL HAS MRSA AND ITS IN
HER BLOODSTREAM AND HER BONE.
WHEN I CALL ITS A EFFORT FOR HER TO TALK SHE IS SO WEAK AND IN SO MUCH PAIN.
THEY WHERE GOING TO LET HER
Pam
Congratulations on getting TM on the news in LA. Is this available in the
internet for us to view? A little birdie told me you had plans in the works to
talk with Oprah and to get recognition for TM so I wasn't as surprised as some
will be to read your post. However, I'm super impressed
WHAT Oh my gosh! Tell us all about it, Pam! So exciting! Thanks,
Patti, for sharing!
Jeanne in Dayton
---Original Message---
From: [EMAIL PROTECTED]
Date: 4/23/2008 10:05:24 AM
To: tmic-list-at-eskimo.com
Subject: [TMIC] Pam's work for TM
Pam
Congratulations on getting TM on
I sit here smiling as I hang my head in shame. lol
I've been on tmic for over four years and I've only visited the archives once.
It just wasn't as interesting as opening my computer and reading an up-to-date
post.
Fear and loneliness are as bad as lack of knowledge and the tmic has provided a
I just started a new drug to help relieve banding. The drugs
name is Tizanidine or Zanaflex. Do any of you take it or have you
previously taken it. I have just started and am not up to the normal
dose yet...however I am finding a noticable improvement in the banding.
It is interesting that
*Hi Rob,*
**
*Though I do not take it, a lot of my MS friends do, and with very good
results. It eases the banding from the MS Hug.*
**
*Grace*
Anyone have experience with either or both of these?
I'm trying to figure out which one to get.
The Eagle has extra wheels for switching to a companion chaoir... not
something i need, but i like that the seat pad comes as a solid unit
with the removable insert.
The Invacare seems fine, I just
I just wanted you all to know that I've got an appointment next Tuesday to
try the WalkAid (for foot drop) that one of you brought up. I sent for the
info and they have a really good DVD to watch and got Jack and I pretty
excited...enough that we did make an appt to see if it would work for me.
Jeanne:
I agree that Lyrica gives you the munchieshowever after putting
on some weight I quickly lost it...my secretkeep nothing you like to
eat in your house and try not to go out to eat. Lyrica has been a help
but it feels like the other med is acting like a booster
Yes I have taking it for 4 or 5 years now in in conjunction with baclofin. I
find it helps alot.
From: Robert Pall [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] New Medication
Date: Wed, 23 Apr 2008 16:04:21 -0400
I just started a new drug to help relieve banding. The drugs
re: Zanaflex.
I have been on it for 4 years, I am on quite high doses of it and it helps,
though I wish I did not havr to take it at all. It really lowers my blood
pressure and worsens my orthostatic hypotension. If you increase your dosage be
sure to do it slowly over a period of up to 3
Jeanne,
Glad to hear that you are going to give it a try. I went last Tues and had the
test to try it out. The Orthotist was quite excited that he found the nerve
and could make it work for me and get my toes to life the way they should if
you are a good candidate for it. He said I am an
Thanks, Rob...prayer is the only reason I am upright!!!
Jeanne
---Original Message---
From: Robert Pall
Date: 4/23/2008 3:40:07 PM
To: jrushton
Subject: RE: [TMIC] WalkAid - Foot drop
Hey Jeanne:
Please let me know how things work out.I once believed that my right
leg
HI JEANNE, I HAVE NO IDEA HOW PATTI KNEW ONLY 3 OF US KNEW.IT JUST WAS FATE.
IT JUST ALL FELL IN PLACE. THEY HAD A FRENCH QUARTER FESTIVAL HERE. THEY HAD
ALOT OF STARS HERE FOR THE GALA ON SATURDAY NIGHT. OPRAH WAS IN THE PLAY.
I GOT TO SIT IN THE PRESS BOX I MET SO MANY STARS THE PLAY WAS
OHMYGOSH!! I am so excited for you, Heather!! Be sure and keep us posted
on how you are doing! This is when I wish we could see each other's before
and after on videos!!!
Jeanne
---Original Message---
From: Heather Pieter
Date: 4/23/2008 3:43:42 PM
To: jrushton; tmic
Subject:
Gerry, how are you doing??
Jeanne
---Original Message---
From: Gerry Surette
Date: 4/23/2008 3:38:39 PM
To: [EMAIL PROTECTED]
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] New Medication
Yes I have taking it for 4 or 5 years now in in conjunction with baclofin. I
find it helps alot.
New MedicationHi Rob,
I take 4 mg of Zanaflex at betime. I took a lot more than the 4 mg. when I was
in the hospital and when I first came home. I had a problem at that time
though as it screwed up my liver enzymes. I had to stop taking it. A different
neuro started me back on it again about
Reading this just tickles me pink!!! What an exciting time for you and
please, please keep us posted on what is going on! We'll be your
cheerleading club all of the way and our prayers will be with you that this
is just what is needed. Oprah is so respected that maybe by even talking to
her the
Zanaflex was the first medication my Neuro prescribed, but he switched me to
Baclofen because I was constantly tired.
I hate to hear that about the Lyrica, because you are one of the reasons I was
willing to give it a try. I only take 75mg every 12 hours so I still have
break-through pain,
My Neuro said to expect weight gain from Lyrica and when asked why he said due
to increased appetite. Being a little stubborn sometimes, I decided to beat
the munchies and lost twelve pounds. Rob is right - don't buy them - don't
have them in the house. Show some ATTITUDE! (most of the
Hi, Patti... I really was worried about the weight gain but that was when I
was on 150mg. Every 4 hours and now am on the same as you, 75mg every 12
hours. Not being able to move around like pre TM also attributes to the
weight gain for me.
Some don't seem to be bothered with weight gain at
Good for you I'm working on it right now (losing the 15 pounds) and the
'getting started' is the hardest part and HOORAY!, I'm past that part! I
even bought a new scale!
Jeanne
---Original Message---
From: [EMAIL PROTECTED]
Date: 4/23/2008 4:26:41 PM
To: jrushton; Robert
Great news!! Jeanne I hope it works out for you!
And Heather fantastic news! Keep us up to date on how it all goes. At times
I have thought about doing a clinical trial with one thing or another but
it's quite a commitment to keeping records etc... but if you can get if free
that would be
New MedicationRob, My doctor put me on Zanaflex and it helps some. I take a
lot of medications, but only get so much help and then just have to live with
the rest. I am one of the lucky ones who can walk. With me the hardest part
is the fatigue and constant nerve pain. I guess it could be
Hi Jeanne I just completed three of four five hours days receiving iv
immunglobin to raise my white blood cell count. On tuesday I will have my
spleen removed. otherwise happy to see spring finally arrive in montreal ;
How about you? What is new?
From: jrushton [EMAIL PROTECTED]
To: Gerry
I've embarked on a soft carving journey since TM has rendered my other
art forms inaccessible. I'm ready to send some images to Jude
as soon as I get an address.
In case you're reading this Jude, know I wish you ease and healing.
Akua
--
Hello all,
Can anyone suggest a good places to buy catheter supplies that they are happy
with. I had been getting mine at Southwest Medical Supplies and this month
ordered from 3 different manufacturers and 2 have been cheap (quality) and
replaced in the last 2 weeks.
Thank you,
Ella
ebay had the best quality and price for bags
i get catheters from Allegro and Best buy
Allegro had the best price for gloves
Best buy and allegro for surgilube
Akua
Hello all,
Can anyone suggest a good places to buy catheter supplies that they
are happy with. I had been getting mine at
What a nice person you are, Akua...Jeanne
---Original Message---
From: Akua
Date: 4/23/2008 6:11:20 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Card Shower for Jude
I've embarked on a soft carving journey since TM has rendered my other
art forms inaccessible. I'm ready to send
In a message dated 4/23/2008 4:51:00 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Thanks, Rob...prayer is the only reason I am upright!!!
Jeanne
That just reminded me.. often when I lose my balance and begin to tip one
way or another, my oldest son will say, Stay
Barbara, did you ever notice when you talk out loud to yourself when you
walk, you seem to 'work' better or am I the only odd one in the bunch?? As
awkward as I walk (like a drunk) I really don't fall all that often any more
like I did the first year. It throws everyone around me in a tizzy
Oh, Kevin...I'm so glad you told me. I'll let you know when we get back but
that cost is sure a detriment, right? I regularly wear holes in the bottom
of my right sock so at least if I were to get it I would save on having to
buy new socks, right??!!
I've probably told you before but I'm numb
Hi, Roger! I noticed you live in Kennewick and that excited me since you
are the closest one so far on our TMIC list! My daughter and her family
also live in Kennewick.
Are you going to be going to the symposium in Seattle? It would so nice to
get to meet you!
Jeanne in Dayton, WA
TM since
You're still in my prayer pot, Gerry. You take care of yourself and let us
know when you are back home all safe and sound?
Jeanne
---Original Message---
From: Gerry Surette
Date: 4/23/2008 6:07:11 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] New Medication
Once you did the therapy and it worked, did it stay? What an amazing thing
if it did! I'm going to try it! Thanks, Sal...as always! Jeanne
---Original Message---
From: sal r
Date: 04/24/08 00:00:09
To: jrushton
Subject: Re: [TMIC] WalkAid - Foot drop
hey jeanne, i was reading
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