You know, it's funny (odd), but Dave and I were separated at the time I
got hit with TM. I was openly dating and in fact, was visiting a friend in
Ohio when it happened.
I lived in Ohio for a year before I couldn't stand it any more and begged
Dave to let me come home. He finally
You just walk vey carefullyyou where good boots or rubber soles and
if needed you use a cane. My legs actually feel better in the
winterit is the summer humidity that is the worst!
Rob in New Jersey
From: jharpe...@aol.com [mailto:jharpe...@aol.com]
For me the only issues I have with winter is an increase in pain, the heat
makes my spasms much worse than cold. I have never lived any where other than
snowy Michigan so I think coping with the ice and snow have just become
normal. I just wear rubber soled tennis shoes and keep going. As
Kevin,
I also believe in Karma and also tried to live my life according to the
golden rule. Which makes me wonder, if I did something so bad to someone,
that I would end up in this situation. If I made any mistakes that warrant
this, I would remember. It's hard to say that people reap
I was wondering this, too. I got an invite but no information and anything
I clicked on just took me back to the same invitation.
The TMIC is plenty for me and the forum (_http://www.myelitis.org/forum/_
(http://www.myelitis.org/forum/) ) is there for people who want more. The
forum is kind of
BARBARA:
I FOUND AN INTERNET SITE www.hdis.com where you can order on line or by
phone 1-800-269-4663. I have found the customer service people are very
helpful. You can sign up for automatic delivery and you get a discount, or
you can order as you need them. It takes less than a week to
HEY SWEETIE:
DON'T BLAME YOURSELF. IF WE ALL LOOK BACK, WE HAVE ALL DONE THINGS TO HURT
OUR SIGNIFICANT OTHERS. THE MAIN THING IS WE REPENT AND TRY TO MAKE AMENDS
TO OUR LOVE ONES. YOU KNOW DAVE LOVES YOU OR HE WON'T BE THERE FOR YOU AT
THIS TIME. I THINK ALL OUR INTIMATE MOMENTS ARE
Janice..
My name is Kathy Blaschko and I am 48 as of March 19th. I have been on and off
this list since I found it in 2001 (I think). I was 27 (1988) when I first
started with the symptoms of TM and was not diagnosed properly till I was 34
(1995). During that time they kept telling me I was in
Hi all,
The Transverse Myelitis Network has nothing to do with the TMA or TMA Forums.
It was started by anotehr member here who wanted a site where we could exchange
comments/photos/messages/info in a more face-to-face way and there is also a
Chat where you can talk to others members who are
*The Transverse Myelitis Network is another great way for patients to
communicate and compare notes. Many of the TMIC members participate there.
Our own Marieke is one of the administrators. I advocate for NMO, and work
with Sandy Siegel and the TMA crew, and I also have my own site, of
I have to respectfully add to Grace's comment below. She is absolutely correct
when she states that the groups are formed to spread awareness of TM, ADEM, NMO
and the other neuroimmunologic disorders. The TMA was not formed to hold a
monopoly on support groups. It was formed as a non-profit
I agree, Debbie, the more support groups that help more people, the more
the word gets out, the better. No quibbling here at all.
I just didn't want the people who start new support groups to get offended
if they invite people from the TMIC and we decline. It's nothing personal,
it's just
Well, it was answered before I was even out of bed.
:-)
The only thing I have to add is that if anyone has an awareness group let
me know and I can add it to the page at
http://www.myelitis.org/support.htm
At 09:22 AM 6/15/2009, Deborah Nord Capen wrote:
I have to respectfully add to Grace's
I believe karma is strictly an interpersonal thing and that there are
many factors in the world which are driven by the nature of our
universe. Good and bad things happen with out regard to who it
affects. Karma had nothing to do with the plague, the 2004 tsunami,
the 1918 flu pandemic,
VERY well said, Debbie!
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I have a question for you all and I would really appreciate an answer. I would
like to know why people send an email into the list with a Read Receipt
attached. For some reason I cannot explain, this really bothers me and makes
me feel Violated. I would really like to know what they do with
I've never noticed that, Kathy. Maybe it's just one of those automatic
things from some e-mail servers? I think if anything it's just a way of making
sure you got and saw it and that it didn't get lost in cyberspace.
Does it appear along the bottom of e-mails? That's where ads usually are
*It's just a feature of mail programs that notifies the sender that their
mail has been received and opened. I only use it for business
correspondence. *
*Grace*
* *
I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members of
the TM site.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to
I have never noticed it, where is it located?
Ella
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I would be more like you in temperatures but were I live there isn't many
places with airconditioners...so I have noticed that after 3 o'clock in the
afternoon I get hotbut I also have hot flashes at any time too.and I
can just be on the computer just like right now and be sweating up a
I get my incontinent pads from a company called Shield Healthcare..and they
deliver my diapers right to my door...I have have Medi-cal here in
California pays for it...ask your doctor to call in the prescription..and
that's it.
Debi
From: jharpe...@aol.com
Date: 6/14/2009 8:34:43 PM
To:
I have these rubber kleets that pull onto your snow boots they have metal
spikes on the bottom..they are very good and well made...I haven't even got
close to slipping with them.
Also my wheel chair is all terrain I am really impressed with it..I can
go threw dirt grass and snow...deep sand
It was easier when i was rehabbing in the city... someone shoveled
the front of the building and the
LiftLine, the paratransit pulled up near the entrance. Now home in
the small town, I paid tons to get my walkways shoveled, but often
the area i need to land and go down-- my ramps and extra
When i was in Rochester, I live in a HUD-assisted building and wrote,
called and complained that the front doors were not button doors,
were heavy, required a key and a push.
Think HUD would adhere to the ADA? The courtyard facing doors had a
push bar, which would have made life easier
Add to the list of complaints: Have you noticed that at many hotels, the
ADA rooms are furthest from the elevators? And yes, you are lucky if they
have ADA rooms on the first floor. Also, the rooms often face the parking
lot and seldom the garden, pool or view? Is this discrimination?
OK, I am with you there!!! Getting ready to turn 50 in two weeks.! now everynight sitting with AC on, ceiling fan going and two room fans blowing on me and just sweating bricks!! so now trying to figure out does it have something to do with TM or menopause
-- Original message
AMEN!
-- Original message from Jim Lubin jlu...@eskimo.com: -- Well, it was answered before I was even out of bed. :-)The only thing I have to add is that if anyone has an awareness group let me know and I can add it to the page at
I wish my wheelchair would go over grass, so i could go in my yard...
what kind of wheelchair do you have?
I have these rubber kleets that pull onto your snow boots they
have metal spikes on the bottom..they are very good and well
made...I haven't even got close to slipping with them.
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